Child of Courage (13+) - Fazeel Irfan
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- Опубликовано: 9 ноя 2024
- Fiftenn year old Fazeel suffers from a very rare and painful condition called severe recessive dystrophic epidermolysis bullosa (EB). His condition means he is in extreme pain, his joints are contracting and even the membranes in his mouth are fusing together. He has to go through between 4 and 6 hours of painful dressing changes every day and takes lots of medication to help him. Despite struggling to walk, to use his hands fully, to open his mouth easily, he continues to give 100% in everything he does in his life. He has one motto, to Never Give up!
Through all the pain and discomfort, he continues to attend a full day of school every day with extreme positivity and determination, as well as attending karate every week. He overcomes challenges on a daily basis, and he does it without complaint and with a smile. He is an ambassador for Debra, where he shares his story about living with EB to educate others as well as raising funds to support them. With the help of his loving family, Fazeel has an amazing outlook on life and has immense ambitions for the future.