I Was CONVINCED I Had Bulbar Onset ALS
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- Опубликовано: 29 май 2021
- Hi everyone! Thank you so much for watching my video. I hope it gave you some comfort to know that you aren’t alone. Health anxiety can be so isolating but I want you to know that so truly understand.
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Cherellethinks
This was a big step for me and I put it off for so long because I was worried people would judge me for trying to make a living from this but it was either go back to full time work and have very little time to create content or utilise everything that I know and attempt to help people to get to the place that I am at now which is living a happy, full and joyful life with my health anxiety kept at bay. My Patreon is the place to go if you want to learn to manage your health anxiety. 🤍
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(I feel superrrrr awkward and uncomfortable even putting this on here but some very kind people have asked me to do so, so here it is!)
DISCLAIMER: I am NOT medical professional or a therapist so please always seek out medical advice.
Thank you so much for your videos its so reassuring listening to other health anxiety suffers. I myself have been dealing with health anxiety for as long as I can remember. My recent fixation has been that I have heart disease, as I recently checked my blood pressure and it came up high, that I've now frightened myself from checking it again. Some days can be tortuous, but its always encouraging to hear how far you have come with your journey ♡♡
Thank you for another great video 👏 it’s really crazy what our minds can do. I’ve definitely been at the point where it’s not even ‘what if’ it’s ‘I have’. We really convince ourselves that we have all the symptoms, and sometimes they really are all there but perhaps caused by the anxiety (as you said). Look forward to the next video ❤️
I also want to thank you for your videos because when I started thinking i had als i came across your videos and made me feel so much better knowing it was my anxiety that was causing my twitching.
ALS is the scariest disease ever, it’s seriously terrifying … I wish it didn’t exist ! Hopefully one day they find a cure, or at least a way to stop it’s progression …
i was diagnosed yesterday at a major neurological institute. death sentence.
@@leaveittolefty … Oh no ! Very sorry … What made you go in symptom wise ? Did you have a feeling you had it or was it a total surprise ?
@@funkyflights ive been having neurological symptoms for a while and kept getting passed around dr to dr. i finally got accepted on referral by my new PCP. He and I both thought it was MS. i was stunned when new neuromuscular specialist said ALS yesterday. still wrapping my head. more testing to come
@@leaveittolefty … Man, neurological conditions seem to get missed over and over for a long while before a clear diagnosis… I wish you all the best, and maybe with some good luck some future tests will reveal it’s something else and not ALS !
@@funkyflights my prayer! i just cant believe it. thanks for kindness 💐
Remember anxiety mimics symptoms to what your thinking about
Can it also mimic of you having some slurred speech or you could feel something weird in your tongue but no twitching?
@@crimson2586 i think it mimics.
HI 👋🏻 what symptons did you have? And do you know how bad they can?
@@crimson2586it can’t mimic slurred speech but it can make your tongue feel weird and it can also make you feel a ball in your throat
@@crimson2586 I'm having that..how are you doing?
I’m going through the EXACT same thing right now. Thank you so much for sharing God Bless you
Thanks Cherelle for posting this. Health anxiety is so powerful. I have convinced myself many times that I have a serious illness. I get all the symptoms etc but after tests nothing is found. I have had health anxiety for years. Currently got symptoms now. Throat problems. With this I do know I have a hiatal hernia and sometimes I feel really bad but I have to ask myself is my health anxiety making me feel worse. It's a terrible situation and very depressing at times.
Thanks so much for your comment Michael. You’re right. Health anxiety is very very powerful and often torturous! It’s definitely tough. 🤍
This video described the last 6 months of my life. Clean emg helped me. I still have my moments but I remind myself of the clean emg.
I’m dealing with this as I type. Thank you for this.
I relate so much to you , I remember when I started having muscle twitches all over my body I googled it and I lived with so much anxiety and had a few panicked attacks where I ended up been hospitalized by the fear I had I thought for sure I had als even after lots of neurological tests doctors told me I didn’t had it i went to other doctors as well and I still didn’t believe it. Now after 2 years I know I don’t have als but it was one of the worst times of my life because my mind started playing trick on me and making me have all types of symptoms due to high anxiety, i spent hours on the internet looking for answers and things got worst. I’m so happy I have overcome this dark period of my life.
R u facing same issue now
Hi Carla... what symptons did you have? Im having the worst time of my life.
@@ariannasignoretti5383 I’m also going through this. I started off with tendinitis in my Knees’s, elbow, wrist, and almost every finger. I was convinced I had Rheumatoid Arthritis after googling it, I started getting better though, but my back and neck started to ache. Back down the rabbit hole… A few days later I started doing these full body relaxation guided meditations. I also started exercising after a couple years of inactivity(couch potato). Then tremors started in my hands, then developed in my shoulders(mostly left shoulder), and oddly just my left leg/foot. I also get the occasional muscle twitch in my right bicep, and I wasn’t sure if the other tremors were actually muscles twitching. This has led me down the ALS rabbit hole, that has stressed me out even more. Though today when I found this video it’s brought on a lot of relief, like hey I’m not the only one. So now I’m fairly certain it was a combination of my situational anxiety and the stress. I often tense my muscles when I’m stressed, this puts a lot of pressure on the spine. That and I thought my anxiety was very mild, perhaps it’s not as mild as I thought, I’m 25 so it may be the onset of general anxiety, or this is a one off case where I kept looking at web-MD like pages and worried myself into a frenzy as well as my mother. I have an appointment with a chiropractor in case I pinched a nerve in my neck when I was trying to relieve the neck pain. Maybe it will just be a placebo effect or maybe the chiro fixes it idk but for $100 I think it’s worth it. I shall see. I hope we both get better soon, just know I’m out here on this blue dot just as worried. -Taylor.
@@JohnDoe69986
HI TAYLOR 👋🏻
Appreciate your detailed reply 💜
Im having the worst time of my life and I do not see the end of the tunnel . 😞 everything started in May with some very bad internal vertigo and back/neck pain and now I got to the the point where I have numbness and bad weakness in all my limbs.. i also get muscle tension on my legs and bad tremors especially on my right arm to the point that its hard to type and write so I'm down the als rabbit hole 😔 my neurological exam went all fine but my doctor prescribed a EMG so waiting on that . I feel lost and see no purpose .
What exams have you done so far? Are you thinking is this all anxiety? How bad are your tremors? Can you do things like before?
Sometimes talking to people who understand makes u feel better.
Thank you in advance🙏🏻 and I am gonna pray for you too
@@ariannasignoretti5383 The vertigo and back/neck pain could be caused by either a pinched nerve or the stress. I know the stress had me freaking out over the RA to the point I was dizzy and nauseous, that went away as my knees eventually got better and I could walk(at the time I was terrified of living in pain), I had a burning sensation in all my fingers. I used a rather powerful massager one day and it relieved a lot of the tension in my muscles and I immediately started getting better. Though a massager can aggravate a pinched nerve so be careful with that I only used it for the tendinitis. But before that when I was still in a lot of pain I watched that movie father Stu with my grandmother. Out of curiosity I looked ALS up, the movie is about a guy with ALS, and I saw a picture of the areas affected, and it matched all my pain areas. I felt like I was having a panic attack and had to walk away couldn’t read the web page any further, but if I had I’d have known that those weren’t pain areas but areas you get progressively weaker. So I sort of fooled myself into thinking I had it then, but my tendinitis started healing and the fear went away. Until I started having these tremors a month or so later. First in my shoulders and then my leg, now I’m noticing every little muscle spasm/twitch, and my mind is probably creating more, so I’m pretty sure it’s just my anxiety. I haven’t seen a doctor yet, my appointment is on Sept 14th, quite a while for someone as stressed as me. The weakness your feeling could be a lack of sleep from all the worry or the tremors themselves using up energy, also when I’m stressed I don’t eat as much which causes low energy. The last couple days I’ve been eating a lot of salad and I got some one a day vitamins. If you’re feeling numbness/tingling though that means it’s almost certainly not ALS, I don’t remember where I read that at but I know I did. A pinched nerve will cause numbness and tingling, and muscle weakness depending on which nerve. Also the nerve so long as they are not compressed for too long can recover it just takes some time. My tremor in my foot is like this low buzzing feeling, which is another reason to think I don’t have ALS, as I looked up ALS twitch and it’s like a whole muscle contraction that’s noticeable from the outside. Also my tremors seem to go away when I do these relaxation meditations. My tremors though are pretty mild, but when I think about them they get more intense. Also after I go on walks my legs seem to vibrate more when I lay down. The tremors are mild enough I can still do things and this video has made my hand tremors a lot better. Oh and you’re very welcome, I was frantic for awhile looking for any sort of answers. Though definitely get that EMG done, I can’t wait to get one because I know that’s like a for sure way to find out if I have something wrong or not.
Girrrrlll.... I am you haha. Had a baby end of July, a month later gushed some blood during BM and that snowballed into what seems to be your story as well. Colon cancer>lymphoma>ALS. Trying to work through the ALS fear right now after seeing neuro and getting a clean neuro exam. Now realizing I have terrible health anxiety, thanks to your videos and I’ll be work working on getting help for that :) thanks for shedding some light on this. Good to know there are others out there like me ☺️ best wishes!
Hi knesia. How are you now? Can you tell me your experience?
Perfectly fine :) just anxious about health in general but learning to trust God with my worries and anxieties and that ultimately his my life is in His hands! It’s crazy though how many “symptoms” I had at the height of my anxiety and now I don’t have any more of those symptoms. I did have an EMG back then, even though I knew I don’t need it. It came back normal. Hope you’re doing ok :)
@@kseniaapeych
Thanks for your reply 💜
Im having the worst time of my life and I do not see the end of the tunnel . 😞 everything started in May with some very bad internal vertigo and back/neck pain and now I got to the the point where I have numbness and bad weakness in all my limbs.. I feel like its hard to type and write so I'm down the als rabbit hole 😔 my neurologist prescribed a EMG so waiting on that . I feel lost.
I love how you mentioned God and putting everything in His hands. It's the only thinking I'm relying on atm.
How did it all go away? And how did it start ? If you are happy to share...
Sometimes talking to people who understand makes u feel better.
Thank you 🙏🏻 and glad you are in good health
@06:00: "I was very focused on how I was speaking, I was making mistakes.."
- This! I developed this pattern as well, the neurologist called it 'Intrusive thoughts"'. It's like a background process that's running all the time checking if I'm speaking correctly, walking correctly, constantly monitoring my body for signs of neurological degeneration. This was when I was afraid I had a brain tumor.
This helped me tremendously. I often question why sometimes I get twitches or issues when I "feel" like I am not thinking about it. It is always running in the background.
Going through the right no for the past 8 months. I do have slurred speech but all test benign. I seems to get past it then the anxiety comes back and I’m convinced d again. Glad you are ok I hope I am soon. Seeing a sp each therapeutic tomorrow
@@lavoneflamand8301 Good luck, I hope everything comes back clear! With the passage of time the fear of ALS has slowly subsided...but I still think about it every day.
So did you hyperfocus on your speech and started slurring as well? How did you get out of it? @@SelfReflective
@@kaphakapha1035Yes, I'm still doing it, I'm very careful how I pronounce words, and if I see people straining to understand me or they ask me to repeat myself I get really worried that I might have bulbar ALS. I can't say I've gotten out of it....
These car talks make me feel so much better
I’m so pleased! 🤗💜
Wow this makes so much sense. Because I’m Literally experiencing all of this.
Thank you for sharing your experiences it helps me alot
Thanks for watching! 🤍
Been making my way through all your content. Thank you.
I had the same thing and still have it occasionally! I have occasional twitch on tongue, also localized, and I can see it and feel it. I also had subjective feeling that I have a problem with talking and swallowing, I even had the constant yawning problem! I wish I never ever heard of this disease.
I am living what you just have said, I've been feeling I collect too much saliva, I don't drool but I feel y speech has become slurred, I am convinced I have ALS bulbar, I played EMG and RM and everything went well, I was diagnosed with Benign Fascicualtion.
Thanks for sharing this
In that bulbar boat right now. First thought i had limb onset and got an EMG on my whole left side (Clean). Now think i have bulbar because i feel like my speech is slurred(everyone around me says I'm not.) I do feel like its harder to speak and i mess up my words sometimes, but i don't know if that just from the anxiety. Trying to get out of the rabbit hole. It is interesting how in the beginning the twitching was my biggest issue and now i am almost at peace with it and would just want these other symptoms to go away. Anyways thanks for the video, really needed some perspective from someone kinda going through the same stuff. Cheers!
I'm in the same boat mate.. I've noticed that I am slurring my words and I can't get some words out.. like my words kinda merge into one and I'm messing words up. It's literally destroying me.. and the more you focus on it.. the worse it gets
@@Mawo3pg yea man it is rough. Did you have an EMG? or seen someone?
@@andysheffield7631 no buddy not yet
@@Mawo3pg your gonna be ok man. Let me know how it goes
@Mr. Mr. man sorry to hear that, the struggle is real and the anxiety is constant. I get that 💯 just believe in the docs and let time pass.
January 18th things just changed ..burning all over twitches, muscle jerks night sweats…two nueros they all say it’s benign …now we’re in March and I’ve been choking on food and my own saliva this was a great week for me I wasn’t anxious enjoying my life but the third time I choked I panicked and now I’m back in the rabbit whole of misery and fear I’ve never felt a fear like this
Hey Rhonda sorry to hear quick question does your tongue move around a lot or not really curious cuz I’m having my tongue moving around
I’m so sorry you went through this!
I do have ALS was diagnosed in March 2023 limb on set & I’m 39 with 2 kids, it took me 17 months to get diagnosed. I kept convincing myself that it wasn’t ALS/MND. I knew it was because I kept/keep progressing. All the little things that you think you’re imagining if it really is a real neuromuscular disease over time will get worse. Your window of normal starts to close & the disease declares itself. It takes so much testing & time, & everyone moves at different speeds.
Anxiety is the devil but try to tell yourself that if I am really sick I won’t get better. Then give it time, but LIVE your life. ❤
I Have a awful health anxiety and OCD (male 28) and I'm im the bulbar Als rabbit hole .. I read about it and after a week I have started to slurre many words, No one have heard it when they speak to me, but! I have it recorded when I do slurre, so I really are slurring my words. I also started stuttering.
After the first slurre I got so hyperaware of my speech. I have never had any problems with my speech, my speech is my biggest gift in my life so when something is off with it, I know for sure something is really wrong. During this time, I also remember my tongue feeling fatigue. I do not slurre all the time it's coming and going.
I’ve also developed in the last 2-3 days a scalloped tounge and burning sensation on my tounge (never had this before), fasiculations all over my body, mostly on my left buttcheek, it also feels like I have lost the coordination of my tounge and my tounge is always touching my teeth while I’m speaking, I never had braces and I have straight teeth. And today I have bit my tounge like 15 times meanwhile I'm speaking ..
So to my question, is this the bulbar onset of ALS? Because how can it be possible for me to slurre my words for 17 days with just hyperawareness and health anxiety, it should not be possible right?
Health anxiety is just a loop you can’t get out of
It’s possible
I’m in this rabbit hole right now , I had pneumothorax 4 months ago from smoking and no surgery was needed it went away on its own for months after that I been worried about lung disease because my shortness of breath still continues to this day , so I went to every kind of doctor , cardiologist, pulmonologist, neurologist and they all say it’s from anxiety now I feel all this twitches in my body mainly in calf’s and cramps , face feels wierd twitching all over , now I’m scared of this disease but my neurologist didn’t give me a referral for emg so I’m still worried
I feel the bulbar als phase of my health anxiety was the most annoying because my talking was bad, my chewing was bad, etc. this video was definitely felt lol
For how many months did you ever felt it? And did your symptoms improved as times goes by? I'm still really worried rn 'cause i'm in that anxiety phase itself :')
@@crimson2586 I’m all good now. No more anxiety, no more worries
@@dennisparrottjr.889 thanks for responding asap :) have you also felt like something weird about your tongue that might also be the reason of your slurred speech or like probably excessive salivation? Generally, i could still talk properly but there are some words like monitor that i'm a bit having an issue. Idk what to do seriously
@@crimson2586 you’re anxiety is what’s causing you to hyper focus on it. My best advice is to realize your triggers and promote mindfulness to achieve peace with the weird bodily sensations you feel
@@dennisparrottjr.889 Same thought, probably my brain is too exhausted and just enabling these weird a$$ sensations. I still can't figure it out whether if these are "the early signs" or just how powerful a mind can replicate or mimic symptoms of other illnesses whether its terminal or a cureable one. i'll just avoid using google from now on if i'm having an anxious mind.
Did your anxiety only start after you had your baby? Pregnant now and struggling with health anxiety so much
Hi Cherelle,
Thank you so much for posting these videos. I’m currently going through terrible health anxiety for the first time after a series of bizarre infections. I’ve been researching day and night like you describe and am barely sleeping due to not having any medical answers to what was/is going on. I just watched your lymph node video and am wondering if you know why one would swell up and go down a few days later, and then another close by, and then another close by? I’ve had 2 swell up and go down by my jaw and now I have one at the back of my neck. They’re all on the same side of my head. Any insight would be massively appreciated. I can understand one popping up, but 3?
I spotted no one replied to you and in case you or anyone else still needs reassurance, I wanted to say I've been there! I was so anxious about it, I went to the Dr's about mine which felt really big (I think they generally say 2cm+ is considered worth checking out) - she found about 8 swollen over my body, though I had only gone in with 2 so that was even worse!! I went through all the referrals and checks including having one removed. The Surgeon said to me he went through the same thing once - he said 'some people are just lumpy'. Even having a hematologist give me the all-clear I still didn't believe I was safe for ages! Eventually they went down, after almost a year, they still pop up every now and again, I always think - i'm just lumpy! Hope this helps x
Yes it was very helpful
Now that you mention the twitch I haven’t twitch in awhile
That’s great! 👏🏽🤍
Great video. I was diagnosed with ALS in October 2020 but I saw 3 other doctors and had 3 other EMG and was told that it’s just BFS. Twitching has been since January 2020 and hasn’t stopped. I was told it might not ever stop, but I’m getting used to it now.
How are you now ?
@@SergoArakelyan13 Still having twitching but no weakness or other issues!
Wow! It must have been really hard for you! I am happy you are fine!
so you don't have als?? what were all your symptoms?
@@bradenokeefe4392 do you have als
Get big twitches when I'm either waking up, going to sleep or sat doing nothing when I'm out and about it doesn't happen it's so annoying it's been going on for over a month now and it's freaking me the hell out!
Are u ok now?
@@user-xx7ce4we1e no I think I've got pancreatic cancer again.
I get really bad dry mouth and scallop tongue with anxiety, worst first thing in morning. Been taking magnesium now for a month to try control my twitching all doctor told me it’s anxiety related. Horrible thing to suffer from x
I'm 30 about to turn 31.
about 2 months ago I started having issues.
My sister pointed out one of my legs was much smaller than the other, I looked down and sure it is. It's the leg I had multiple sciatic flares in because of a herniated disc (that was diagnosed by a MRI about 2 years ago.
I'm also an alcoholic with alcoholic fatty liver disease, one night im drinking beer and out of nowhere I broke out into full body itching and a huge health scare about whether I might have cirrhosis started I was really scared.
I start getting sober the itchiness proceeds for 2 weeks but what I notice is that about 4-5 days into this my smaller leg started spasming / rippling / twitching. Another symptom I have is that my upper arms are 'stiff' and feel clumsy, they get very easily fatigued too, the same can be said for any group of muscles now especially my right leg.
I went to the doctors today and more or less wasted my time, had a strength exam and he said nothing here is indicative of ALS or motor neurons and basically left it at that. Never referred me for a neurologist or anything and I have been left absolutely terrified.
I'm so f*cking scared :(
How are you!! :(
Convinced I have bulbar onset too. Weird throat sensation and I think my voice is starting to feel different
I'm also having that weird digesting sensation where i could even feel my going down to my lower chest/diaphragm area plus some weird feeling towards my tongue because it looks uneven to me and some minor slurred speeches/stuttering and mispronuncing some words then i'll proceed to read it again until i could say it correctly.
@@crimson2586 how are you now? Did it go away?
I been having horrible facial symptoms. Throat going numb , facial muscles going numb , gag reflexes going numb as well . I've been to every specialist I can think of . Neurologist, cardiologist, vein specialist, ent. Everyone says I'm normal . This must be horrible anxiety .
Do you take medication for your anxiety?
Have you ruled out b12, iron and b9 deficiencies? Those can all cause numbness
How are you now ?
@@boop5287 everything but b9
I'm better than what I was but I still have issues til this day . I was finally diagnosed this year by my neurologist with Small fiber neuropathy. Somedays are better than others but I keep pushing
4 month’s ago I woke up and couldn’t swallow liquids and solids, now 2 months later I can eat and drink better again gladly. But I still have a hard time some days
Also have lots of twitches in my calves and near the elbows. Still have these
Pronouncing words wrong aswell still have these
It’s ruining my life
Sounds like Lyme. Many people with latent Lyme become active after they have a baby. And this is important information because Lyme can be passed to your baby when you’re pregnant.
And anxiety is one of the most common symptoms of Lyme.
Imagine googling ALS thinking you have it and it says it happens more to young men! Yup I was convinced I had it.
I'm also on a similar situation rn of me having my 2nd health anxiety attack within a month (and its driving me nuts!)
So the run down is like this, a few days ago, i noticed that i can't say a phrase i used to say a bit properly but since its a fast phased word, i kept on trying 'till i perfect it and then i just kept on adding up some other words even to the point of me saying words that i don't even say that much everyday (especially some words with heavy R's on it) and then i started to feel this weird sensation of me feeling my food going down even further 'till the lower chest/diaphragm-ish area but no struggle on swallowing nor chewing. I also had some muscles tensions around my cheekbone yesterday and i had 3 twitches there but it wasn't constant twitches like theres some gaps of minutes/hours on each twitches and 1 to my lower left foot. If i kept on thinking that i should say these long sentences or narratives without stuttering or mispronouncing a word, it would just keep on happening the more i focus on it. But as of now, i don't really experience constant twitches but rather occasionally. I just hope that what i'm feeling rn with these shtty symptoms are just my severe anxiety attack since i had 2 attacks within a month and its kinda new to me. Wishing myself a goodluck and for everyone else who are having a similar situatuon despite of us still having some different symptoms though ;) take care.
Update: i'm having some weird feeling of my other side of my tongue is a bit down and then a muscle strain happened on my left cheeks. If someone went to a similar situation, how long before your slurred speech and other issues subsided? thank you for those who will answer.
@@crimson2586 how are you nowadays, please answer :(
@@alandanger6285 Still alive and kickin' lol fortunately enough, nothing happened to me.
@@crimson2586 that's good to hear!!!.
The thing with the food got me panicking because I also felt like that when I had my symptoms, but they were accompanied by hip pain, acid reflux, and some random pains in the abdomen. That was my first health anxiety after a while I got some blood work and the doctor said everything was fine. 2 days later I started feeling the twitches in random areas and weird spasms while trying to sleep weirdly enough only during the evenings. At night I don't feel like I spasms. Now I'm scared I might have ALS :(
@@alandanger6285 In your case, ALS is the least of your problems. Random muscle aches or random sharp pains that are happening within your body is not ALS, but you might have some other issues especially when you mentioned that you have acid reflux. For me, our body still has a lot more mysteries with uncertain answers to it.
My eye twitched for months after my mom died. The only that helps is ignoring it.
I'm literally terrified right now. Twitches everywhere and especially on my tongue. I feel like I have weakness in my jaw, arms, and legs, and I think I see atrophy in my arm. I'm so anxious.
I’m the exact same, twitches all over, started in my leg and now it’s everywhere! Its been months and months!
Let’s try not to worry! I’m
Sure we’re totally fine xx
How are you sara
Does anyone else experience tongue fatigue? I’ve been coughing excessively from post covid … and my tongue tires easily now when eating. Anyone else.
Yep. Get tired of speaking troughout the day and hard to manage food around in my mouth. How are you now?
@@Sveinarkul I’m doing alright thank you. I learned that the reason my jaw more than anything tires is because I clench down on the right side without realizing. So it becomes tired as a result. I also tend to sleep on my right side. My tongue seems fine though. I hope you’re well.
You are beautifull cherell
Thank you! That’s very kind. 🤍
@Cherelle Thinks I’m so glad to have these videos on twitching because it’s my main symptom and it’s daily. Widespread from head to toes. How did you find you coped when it was constant? Like watching TV or resting before bed? These are the hardest times for me. Thanks for helping me during this tough time!🙏🏼❤️
Just like me🙄
@@NeroMC it’s insane!!! At least we have each other
@@veepee_xo9868 where do your twitches are?are you having stress in your life? Do you have other Symptoms?
@@NeroMC they’re widespread.. I get them all over. My legs and feet most often. Feet, calves and knees regularly. How about you? My stress is caused by health anxiety.
@@veepee_xo9868 also random...but most on legs...calf... Its like a snowball...stress cause this symptoms and this symptoms cause stress and fear... But are those the ONLY symptoms you have?
Any more on your eye ?? Any update ?
Thanks for asking! Torn retina but it will likely heal on its own. 😊
For the past 3 months I have had muscle weakness in my legs I can't see a neuro until February 3rd so I'm stuck seriously worried about ALS or MS. My speech isn't slurred but it feels like words are getting stuck in the back of my throat. No twitching but I know I won't relax until I see a neuro. I've had health anxiety since my childhood and I'm not 48. I have no idea how to make it stop. I've tried everything l.
Im currently worried sick about ALS right now
How are you?
@@strangerthingslove8252 I'm doing a bit better with the worry now. I was having twitches, muscles tightness and perceived weakness. it took at least 2 months before I finally convinced myself I didn't have it
Could you do another video of thoughts
What sort of thoughts? 😊
@@cherellethinks uncontrolled thoughts
Intrusive
I have been thinking I have als. I’ve had an emg which showed only carpal tunnel. I have all over fine twitches and jerks. Last night I was reading aloud and I’m like dang where is all this saliva coming from. Now I’m convinced that I have als bulbar. I have a Neuro appt coming up and the last time I just saw my other Neuro dr she examined me and said no you do not have als. However she could not explain the muscle twitching I’m having. Now excessive saliva not drooling but I feel I just have to swallow more saliva. I’m scared about my upcoming appointment and I know an als diagnosis takes from 9 to 13 months so I’m like there goes my entire year meaning this will be on my mind every day as I wait it out. I’m so glad you shared this. It makes me feel like finally I have someone to relate to me that’s helpful.
How did your app go
Hi derry
How are you doing?
How things has gone for you since you wrote thi and comment ?
Are you okay?
Did u ever feel a sense of like u Had to regurgitate ur food/had food stuck in ur throat when u ate? I’ve seen 3 doctors that all convince me I don’t have bulbar onset and that my perceived weakness in my arms and legs are imagination. This video helped me a lot
I have this issue. Constantly "clearing" my throat to get food out.
Same
This is literally me NOW. I feel like I AM different too.
Hi 👋🏻
What do you feel?
In a very dark place too ..
This isn't funny when you are going through something like this but I'll tell you I had to laugh when you said you were "collecting more evidence" that you had ALS!! Please don't think I'm mean because I've had my share of hypochondriac moments. And as a health care professional as I am it's even worse because you see so much. After the birth of my first child I developed carpal tunnel in my hands but I convinced myself I must have multiple sclerosis and even thought my vision was failing. I kept checking my eyesight with and without glasses over and over, driving myself crazy. When I progressed to thinking I must have a brain tumor my doctor said, "Okay, I'll give you a CT scan of your head and we'll put this thing to bed once and for all." It was negative and I was finally able to stop catasrophizing about my health.
I wanted to say its just Anxiety and fear of ALS but I have gait issues for over 2 months now where my weight shifts mostly to the right side when walking byt its mild.I did have my right leg uo to the hip Mildly atrophied but I had noticed that atrophy for over 1+ year and.I never knew about ALS back then.I have some twiches too but I mainly feel them before I sleep while relaxing on my bed they're just fee twiches but happening everyday since the day 1 month before when I started considering that I might haveALS.Around the same day I started getting those twiches in a low number but daily..If that wasn't enough my rught part of my face mainly the cheek area tends to get tight often
How are you?
@@thaislence7510 I don't think I have ALS anymore
Did the twitches go away?
Yes
Yes! I still get them occasionally if I have a really stressful day but honestly they don’t bother me at all anymore :)
Omg thank you so much this gave me so much relief I am so stressed out about my twitches. It scares me when people on internet say they have it for 10 years etc etc. Thank youuuuu
My twitches got away in 2 weeks and never came back.
@@radhikanamdev6597 lol thank m goodness for the comment now I can relax btw I’m only 18 smh
You’re beautiful 🤩 dang I love to hear u talk are u Indian???
Thanks! No I’m mixed race - Jamaican, Maltese, Somali and white 🤗
I'm convinced I have lung cancer at the moment ffs
I remember going through that one as well! Chronic cough but it was allergies 😩🤣
Try cold showers :)
Thanks! Ive been taking cold showers for a long long time after discovering Wim Hof and I’ve actually been really good for well over a year now. 😊
@@cherellethinks yay!!!
What kind of accent does she have? Is it French it’s sexy
Thank you! 🤣 I have a British accent. Wales to be exact. 🏴
Hello mamasita 😘
Hello! 🤍
You thought you had als? You don't so why publish this? Grow up and stop seeking attention. I know first hand what it is to have als. It's horrific. It's not something to just talk about and make a video about your imaginated problem. Real people really have it and have really died from it!
magnesium defiency is risk factor to ALS and anxiety depletes magnesium and the syntomps are twiches and slurred speech. Magnesium is need for the body to function correctly and you know what can happen is your body does not work correctly it can end in cancer, ALS, parkison any sort of weird issue, sudden death. Think very carefully when you eat a vegetable becasue is the only way to obtain magnesium.