It truly is amazing... people who have to live with health issues become "doctors" themselves, and know so much about what they need! And especially people like YOU who want to help others with what you've figured out!! BRAVO!! 😊
I think that its wonderful what you are doing. I'm so glad that I ran across one of your videos. To be honest I wish I would have seen them before now. You are an inspiration to anyone that has an osteomy. I just wish that I would have kept my osteomy rather than getting a 2nd j-pouch. I'd be a lot better off. Live and learn.
So I am very new to an ileostomy. Just got it April '23. I got the stoma dome right away b/c I didn't like the feel of anything touching the stoma for example a seatbelt. It's fantastic. No one notices it no matter what I wear and you will want the velcro to keep it where you want it. It helps when you're wearing tighter clothing and allows for output to flow down. If you're working out and need to be on your stomach it protects the stoma. You'll find many ways it improves your comfort. I wear it 24/7. When you need more velcro you can just order that and don't have to reorder the plastic piece over and over again. I hope it works for you as much as it has for me.
My Grandmother had her colostomy back in the mid 1950’s. It must have been much more difficult back then, and things weren’t talked about and ideas shared back then. You’re doing a great job educating the masses!❤
I don’t have IBD. Know nothing about ostomies and not sure how this channel got recommended to me; But, I am glad it did. You are the reason I subscribed to your channel. You are amazing and the fact that you are sharing to educate others is such a motivation for me.
Hi from Boston!! I’ve been wearing the stoma Dome for a couple of years. I had the same problem w high waisted pants. But it’s also good for when my dog snuggles w me and his back is against my belly, the dome helps keep my output flowing when it used to pancake when the dog laid against me!! Happy 2024!!!
God bless you. Thank you for sharing. I don't have an ostomy, but understanding the challenges you face was so helpful. You are courageous and brave and full of grace for others. ❤
The frustrating thing is I have only found one electrolyte powder covered by FSA. It is called Cure Hydration and the Lemon flavor is amazing!!!!! . The other flavors are not bad either, but the Lemon is the best electrolyte lemon flavor I’ve tasted thus far.
My favorite product I bought last year was a Stoma Goggle! It's a big suction cup that goes over your bag for while you're in the shower to keep your bag and wafer dry... it's silly and not totally necessary, sure, but I do really love it (and I've found that it keeps my wafer from peeling away prematurely, since I can make a bag+wafer last a whole week).
I also just switched to Liquid IV. The peach flavor is too sweet for me. I’ve been mixing the peach 1/2 and 1/2 with unsweetened decaf iced tea. You can use caffeinated tea…I feel better without the caffeine so that’s my choice. Anyway, I love the peach tea combo. I agree w Maggie, it’s thickened up my flow a little bit. Yay for small victories!
I’ve just started to use the Diamond charcoal sachets. Not only do they thicken output but for me, it has stopped my stoma bag from ballooning at night time.
I used Thermacare heat patches or the CVS brand for period cramps. They helped a lot when I was working full time. The instructions say to stick them to your skin. I reversed them and stuck them to my underwear. My skin is too sensitive for most adhesives.
Hi Maggie, I live in CT we had about 8"of snow, now the rain and heavy winds are coming and flooding. Praying my backyard doesn't get flooded to bad. I love watching your videos. You are very helpful to people out here who have an ostomy bad. Glad you get to try new products and see if they work better for you. Take care💜
Liquid IV was great for me during radiation and chemo. It had to be ordered online back in 2019, so glad to see it readily available. Even saw it at Costco.
Thank you for the suggestions and ideas. As always, very practical and helpful. Take care during this particular storm. We just has 8+ inches of snow on Sunday and now getting 3-4 inches of rain on top of it.
I’ve suffered from my first period to my last one and the best thing I’ve used is powered ginger in sweet tea, it’s quite bitter so you really need sweet tea. Try it I even used it when I was in early labour it’s brilliant.
Excellent job Maggie. I am new to having a ostomy. I love your videos. You are such a cutie pie and your hubby also. I am praying for you to have a baby real soon. I am an old lady but I need your help. Because I have Illness’s I spend most my time laying down. So my stoma sits in urine ,(my output, ) all the time. Is it going to die? It scares me,but I don’t know what else to do. Can you give me some ideas what I can do? Thankyou so much for reading this. Hugs from Maddy, in Oregon
Fellow Barbie Butter here. The dripstick suggestion is one I will be trying. I’ve had further surgery for a hernia in my bottom wound and since then the “dollops” have become a nightmare. Difficult to predict but it’s worth a try. Thank you. Excellent advice as ever.
Hi Maggie, for cramps I highly recommend Buscopan (hyoscine butylbromide). I was in hospital for severe period related issues and one of the nurses casually said "oh we all use (this medication) so we can go about our day when cramps are bad". I had it in the house for IBD anyway (severe bowel cramps) and it actually works! *Disclaimer make sure you ask your doctor, especially if you are on any other medication. We can buy it over the counter (not prescription) in the uk so I imagine its not particularly dangerous! The other life saver product i bought after ostomy was a U shaped body pillow. Hands down the best purchase EVER as I sleep so well now!
I really like the ThermaCsare one-use heatpacks made for using on your lower back for period pain or other stomach cramps. They don't stick on, but have a soft, elastic belt with velcro to hold in place. They also have some with adhesive and other shapes if those fit you better.
Fellow Barbie butt here I just found you and what a great find. I have never heard of the stoma dome. I think I need this. I have so many complications from my crohn’s. Liquid IV is my savior between infusions. Thanks for your videos.
For period patches, my sister has some gnarly period symptoms and her stomach doesn't tolerate pills, so she will use pain relieving patches on her back and abdomen (usually the Icy Hot brand). Tiger Balm has some great products she uses, as well. My sensitive skin won't tolerate any of that, but she swears by both the patches and balm.
Hi Maggie. I have a colostomy and find I have to pull my waist of my pants down below my stoma or the output doesn't go down. That stoma guard sounds like it might help but I am confused how it works? Would it be possible to show it in a video? You look so pretty all the time...I just love your platform. Thanks for sharing! ❤
Absolutely!! Let me try it for a couple of days and I'll share it in a video again! I filmed this today and have been wearing it for a few hours - very comfortable! I'll trying it with high waisted pants tomorrow to see what it does:)
You got me hooked on Nuun😊. I enjoy the Rest. Now, you got me on Liquid IV. I have a bunch of flavors. When they came out with the sugar-free ones, I had to try all 3 of them. My favorite is the White Peach 😋.
Thanks so much. Live in Canada but was able to order the Ostoform from the states and the Diamonds from Canada. I have a hernia which is aggravating my output and my stoma. Even stopped your video to find the items. Once again thanks, you do feel a void in offering support and what works!
I take the liquid iv and put it in a bottle, dissolve it in a little warm water, shake it up and then add the cold water to it and shake it again. I store it in the fridge and trade out bottles as I empty it. I don't like artificial sweeteners and the small amount of sugar is just enough to trick my brain into really liking it. My flavor is watermelon. So good!
I pray you are safe as well. I’m in eastern North Carolina. This was a rough one. My son and daughter in law had a tree fall on their house. Unfortunately a limb went through the roof into their master bedroom. They currently are camping in our guest room.
I also find this brand to be excellent. Sometimes I just add more water to taste BUT tangerine is the best flavor 🤫 soooo smooth ! I don’t have an osteomy but am in treatment for breast cancer so hydration has been critical for function and sleep. Love your channel! Thank you 🙏🏾
Maggie, I received my free products right after I had my ostomy. I went through some of the items too fast. My skin reacted badly to Coloplast. I think I could probably use Convatec but I can’t remember whether they would work for me. Hollister is what I’m using now!
I've been drinking Liquid IV for years, the sugar-free lemon lime flavor. I buy it at either Costco or Sam's Club, it occasionally comes on sale and I stock up. I also use Trio Pearls, it's basically the same at your Diamond packets.
I really like the liquid IV but I cut or tear off the corner and dump it into a water bottle 16oz and shake it carefully. Seeks to work pretty good :) We are looking at ICE this weekend but we will see Oregon is strange. Happy New Year to you two
Heyyyyy HAPPY NEW YEAR!!!...GUESS WHAT...I am android user also...have a Samsung phone just like yours and a watch...but a sony tv!!! Darn!!! Please let us know what kind of exercises you do...take care!!!
I have learned so much about my ostomy from you...I appreciate all the help and stories that you share. I have to ask though... I just started drinking liquid iv and I love it. How many do you drink in a day? I have read were only supposed to drink 1 pack per day? Please help
Do you think using a pessary would help with that outpouching problem? I know next to nothing about them, since I had a hysterectomy long ago, but one of my old neighbors had a uterine prolapse & used a pessary to help support things. Then again, using a pessary & a tampon at the same time might be no bueño, too!
Lmnt (element) has more sodium as its geared for people working outside and sweating. I would love to try the IV in the white peach. I totally understand about tampons, always had the same problem. Had a hysterectomy so I no longer have to deal with that anymore thank goodness.
This is new to my mom so she gets a lot of irritation under the flange really red under the entire thing is this because of leakage and the discharge is to thin? Also the peach powder what does this do? I read something prevents gas build up and bag explosions which happens.
I’ve been looking into getting a stomadome for pretty much the same reason. I have such a hard time wearing jean. The waist band usually always hits right across my stoma. I really haven’t worn jeans since my surgery over two years ago because of this reason. Or anything that has a higher compression. Maybe I’ll finally get myself one!
I have a Stoma Dome and don't like it. When wearing leggings and snug-fitting clothes you can see the dome. You are right about it being small but it still shows. I do like it when I've traveling to keep the seat belt from laying directly on my stoma.
Hi Maggie my name is Patricia we exchanged messages previously and you are a friend of Eric from vegan ostomy and I had told you my big change for 2023 was on Amazon I found an amazing product from a medical company in China and it's a one-piece bag and it's only 2.00 per bag I didn't have high expectations but they have more than met my expectations because I have IBS and even with coloplast and Hollister I would get leaks and you know what with this product I get leaks a lot less and the flanges stick a lot better without using extenders or anything❤❤❤❤ if anybody wants the name of the company I would be happy to give it
Hi I'm sorry they would not let me reply to you directly but the name of the company is Hubei Heagi medical instrument company. Let me know if you require further information 😊😊😊 blessings from Toronto
NOT TMI, THATS WHY WE WATCH YOU. MY OUTPUT IS ALL WATER, IM NOW USING 2 PACKS OF THE THICKENING AGENT WITH EVRY EMPTY..WHICH IS 15/20 TIMES A DAY. 320-480 CC/mL a day. Its crazy. Im exhausted. Thermawrap works great for heat.
You might consider trying a temporary adhesive like Glue Dots to attach the dome to the appliance. They're similar to the gluey adhesive on mailers that you can rub off with your finger. They hold things but are easily removed or replaced.
Thanks for all of your helpful information! Proctocolectomy surgery with a large parastomal hernia repair and possible stoma resiting coming soon and I am terrified!!!🫣
It truly is amazing... people who have to live with health issues become "doctors" themselves, and know so much about what they need! And especially people like YOU who want to help others with what you've figured out!! BRAVO!! 😊
I think that its wonderful what you are doing. I'm so glad that I ran across one of your videos. To be honest I wish I would have seen them before now. You are an inspiration to anyone that has an osteomy. I just wish that I would have kept my osteomy rather than getting a 2nd j-pouch. I'd be a lot better off. Live and learn.
So I am very new to an ileostomy. Just got it April '23. I got the stoma dome right away b/c I didn't like the feel of anything touching the stoma for example a seatbelt. It's fantastic. No one notices it no matter what I wear and you will want the velcro to keep it where you want it. It helps when you're wearing tighter clothing and allows for output to flow down. If you're working out and need to be on your stomach it protects the stoma. You'll find many ways it improves your comfort. I wear it 24/7. When you need more velcro you can just order that and don't have to reorder the plastic piece over and over again. I hope it works for you as much as it has for me.
My Grandmother had her colostomy back in the mid 1950’s. It must have been much more difficult back then, and things weren’t talked about and ideas shared back then. You’re doing a great job educating the masses!❤
I don’t have IBD. Know nothing about ostomies and not sure how this channel got recommended to me; But, I am glad it did. You are the reason I subscribed to your channel. You are amazing and the fact that you are sharing to educate others is such a motivation for me.
Hi from Boston!! I’ve been wearing the stoma Dome for a couple of years. I had the same problem w high waisted pants. But it’s also good for when my dog snuggles w me and his back is against my belly, the dome helps keep my output flowing when it used to pancake when the dog laid against me!! Happy 2024!!!
God bless you. Thank you for sharing. I don't have an ostomy, but understanding the challenges you face was so helpful. You are courageous and brave and full of grace for others. ❤
I just love your honesty and the way you explain things! Glad you’re doing well. ❤
You are sooo real!!! Don't ever stop
The frustrating thing is I have only found one electrolyte powder covered by FSA. It is called Cure Hydration and the Lemon flavor is amazing!!!!! . The other flavors are not bad either, but the Lemon is the best electrolyte lemon flavor I’ve tasted thus far.
My favorite product I bought last year was a Stoma Goggle! It's a big suction cup that goes over your bag for while you're in the shower to keep your bag and wafer dry... it's silly and not totally necessary, sure, but I do really love it (and I've found that it keeps my wafer from peeling away prematurely, since I can make a bag+wafer last a whole week).
You could also maybe use it while swimming, depending on how big it is.
@@ShyAnn291, definitely too impractical for swimming, unless you're planning to swim in your own pool. 😅😂
Ere did u get it
Where did you find it at? Never heard of one.
@@katiea7101 me neither
You are such a joy for me
I also just switched to Liquid IV. The peach flavor is too sweet for me. I’ve been mixing the peach 1/2 and 1/2 with unsweetened decaf iced tea. You can use caffeinated tea…I feel better without the caffeine so that’s my choice. Anyway, I love the peach tea combo. I agree w Maggie, it’s thickened up my flow a little bit. Yay for small victories!
I’ve just started to use the Diamond charcoal sachets. Not only do they thicken output but for me, it has stopped my stoma bag from ballooning at night time.
I used Thermacare heat patches or the CVS brand for period cramps. They helped a lot when I was working full time. The instructions say to stick them to your skin. I reversed them and stuck them to my underwear. My skin is too sensitive for most adhesives.
Hi Maggie, I live in CT we had about 8"of snow, now the rain and heavy winds are coming and flooding. Praying my backyard doesn't get flooded to bad. I love watching your videos. You are very helpful to people out here who have an ostomy bad. Glad you get to try new products and see if they work better for you. Take care💜
Oh my gosh! Stay warm! The wind just started up with this storm - I'm fairly certain our basement is already flooding!
@LetsTalkIBD , Thank-you for your response.😊
I am sorry Maggie I forgot to say happy 2024 and blessings from Toronto😊😊😊
I've tried the Diamonds but really love the ile-sorb pouches the best. They get me through the night as long as I don't eat too close to bedtime.
Liquid IV was great for me during radiation and chemo. It had to be ordered online back in 2019, so glad to see it readily available. Even saw it at Costco.
Thank you Maggie. Your videos always are very helpful. Have a beautiful 2024. Love to you and Zak from Italy.
Happy New Year to you Zac and all your family.😊😊❤❤❤
You are Amazing & I hope that you feel better & find the best and more comfortable supplies
Thank you for the suggestions and ideas. As always, very practical and helpful. Take care during this particular storm. We just has 8+ inches of snow on Sunday and now getting 3-4 inches of rain on top of it.
Happy 2024!
Thank you so much for your 'infocasts' -
You are so great at explaining what you experience.
God Bless you ❤
Thank you so much for your support!! 🩷
I’ve suffered from my first period to my last one and the best thing I’ve used is powered ginger in sweet tea, it’s quite bitter so you really need sweet tea. Try it I even used it when I was in early labour it’s brilliant.
Excellent job Maggie. I am new to having a ostomy. I love your videos. You are such a cutie pie and your hubby also. I am praying for you to have a baby real soon.
I am an old lady but I need your help. Because I have Illness’s I spend most my time laying down. So my stoma sits in urine ,(my output, ) all the time. Is it going to die? It scares me,but I don’t know what else to do. Can you give me some ideas what I can do? Thankyou so much for reading this. Hugs from Maddy, in Oregon
Fellow Barbie Butter here. The dripstick suggestion is one I will be trying. I’ve had further surgery for a hernia in my bottom wound and since then the “dollops” have become a nightmare. Difficult to predict but it’s worth a try. Thank you. Excellent advice as ever.
Hi Maggie, for cramps I highly recommend Buscopan (hyoscine butylbromide). I was in hospital for severe period related issues and one of the nurses casually said "oh we all use (this medication) so we can go about our day when cramps are bad".
I had it in the house for IBD anyway (severe bowel cramps) and it actually works!
*Disclaimer make sure you ask your doctor, especially if you are on any other medication.
We can buy it over the counter (not prescription) in the uk so I imagine its not particularly dangerous!
The other life saver product i bought after ostomy was a U shaped body pillow. Hands down the best purchase EVER as I sleep so well now!
I really like the ThermaCsare one-use heatpacks made for using on your lower back for period pain or other stomach cramps. They don't stick on, but have a soft, elastic belt with velcro to hold in place. They also have some with adhesive and other shapes if those fit you better.
Hello, good to hear from you again and. Thanks for sharing with us. And Happy new year 🎉 take care 🙂
Fellow Barbie butt here I just found you and what a great find. I have never heard of the stoma dome. I think I need this. I have so many complications from my crohn’s. Liquid IV is my savior between infusions. Thanks for your videos.
For period patches, my sister has some gnarly period symptoms and her stomach doesn't tolerate pills, so she will use pain relieving patches on her back and abdomen (usually the Icy Hot brand). Tiger Balm has some great products she uses, as well. My sensitive skin won't tolerate any of that, but she swears by both the patches and balm.
Hi Maggie. I have a colostomy and find I have to pull my waist of my pants down below my stoma or the output doesn't go down. That stoma guard sounds like it might help but I am confused how it works? Would it be possible to show it in a video? You look so pretty all the time...I just love your platform. Thanks for sharing! ❤
Absolutely!! Let me try it for a couple of days and I'll share it in a video again! I filmed this today and have been wearing it for a few hours - very comfortable! I'll trying it with high waisted pants tomorrow to see what it does:)
@@LetsTalkIBD Thank you so much Maggie! It's exciting to see if it works!!
You got me hooked on Nuun😊. I enjoy the Rest. Now, you got me on Liquid IV. I have a bunch of flavors. When they came out with the sugar-free ones, I had to try all 3 of them. My favorite is the White Peach 😋.
Thanks so much. Live in Canada but was able to order the Ostoform from the states and the Diamonds from Canada. I have a hernia which is aggravating my output and my stoma. Even stopped your video to find the items. Once again thanks, you do feel a void in offering support and what works!
I take the liquid iv and put it in a bottle, dissolve it in a little warm water, shake it up and then add the cold water to it and shake it again. I store it in the fridge and trade out bottles as I empty it. I don't like artificial sweeteners and the small amount of sugar is just enough to trick my brain into really liking it. My flavor is watermelon. So good!
I pray you are safe as well. I’m in eastern North Carolina. This was a rough one. My son and daughter in law had a tree fall on their house. Unfortunately a limb went through the roof into their master bedroom. They currently are camping in our guest room.
I also find this brand to be excellent. Sometimes I just add more water to taste BUT tangerine is the best flavor 🤫 soooo smooth ! I don’t have an osteomy but am in treatment for breast cancer so hydration has been critical for function and sleep. Love your channel! Thank you 🙏🏾
Maggie, I received my free products right after I had my ostomy. I went through some of the items too fast. My skin reacted badly to Coloplast. I think I could probably use Convatec but I can’t remember whether they would work for me. Hollister is what I’m using now!
I've been drinking Liquid IV for years, the sugar-free lemon lime flavor. I buy it at either Costco or Sam's Club, it occasionally comes on sale and I stock up. I also use Trio Pearls, it's basically the same at your Diamond packets.
I really like the liquid IV but I cut or tear off the corner and dump it into a water bottle 16oz and shake it carefully. Seeks to work pretty good :) We are looking at ICE this weekend but we will see Oregon is strange. Happy New Year to you two
It must be nice for the designer or design team when they hear that a product they've come up with or developed works really well for someone.
Love your sweatshirt!
Heyyyyy HAPPY NEW YEAR!!!...GUESS WHAT...I am android user also...have a Samsung phone just like yours and a watch...but a sony tv!!! Darn!!! Please let us know what kind of exercises you do...take care!!!
Can I ask how often do you drink the liquid IV?
Usually one packet a day in water!
@@LetsTalkIBD Thank you Maggie
I love drip drop
Yes watch from Toronto Ontario Canada
I have learned so much about my ostomy from you...I appreciate all the help and stories that you share. I have to ask though... I just started drinking liquid iv and I love it. How many do you drink in a day? I have read were only supposed to drink 1 pack per day? Please help
I only drink 1 a day unless my ostomy is super active or I'm feeling dehydrated! Then I'll go to 2!
I just checked out the weather for your "area". The storm is named Finn. Stay safe!
Do you think using a pessary would help with that outpouching problem? I know next to nothing about them, since I had a hysterectomy long ago, but one of my old neighbors had a uterine prolapse & used a pessary to help support things. Then again, using a pessary & a tampon at the same time might be no bueño, too!
Where did you find the diamond things for the ostomy. I want to try them for my daughter
I have the link in the description!
Lmnt (element) has more sodium as its geared for people working outside and sweating. I would love to try the IV in the white peach. I totally understand about tampons, always had the same problem. Had a hysterectomy so I no longer have to deal with that anymore thank goodness.
This is new to my mom so she gets a lot of irritation under the flange really red under the entire thing is this because of leakage and the discharge is to thin? Also the peach powder what does this do? I read something prevents gas build up and bag explosions which happens.
I’ve been looking into getting a stomadome for pretty much the same reason. I have such a hard time wearing jean. The waist band usually always hits right across my stoma. I really haven’t worn jeans since my surgery over two years ago because of this reason. Or anything that has a higher compression. Maybe I’ll finally get myself one!
I'll say so far it is working great for me for this purpose!!
I bought maternity pants so I could wear jeans! Regular jeans didn't offer enough stretch for my ostomy and plus size pants were too big all over!
I really don't understand what that last little round cap thing was for? She popped it on her bag, but I don't know what it does?
It acts as a stoma guard and keeps your pants from pressing too much on the bag! It has an opening on the bottom of it to let output enter the bag!
❤❤. Happy New Year.🎉🎉😊😊
Do them diamonds really work
You deffinately should be paid by these companies for tis advertising. 👍
I’m sure she does!
Hi Maggie is there anymore news on getting pregnant we’re dying to find out?
No - no IUI's yet! :) I'll keep everyone updated when I get through that process!
I have a Stoma Dome and don't like it. When wearing leggings and snug-fitting clothes you can see the dome. You are right about it being small but it still shows. I do like it when I've traveling to keep the seat belt from laying directly on my stoma.
Hi Maggie and Zak
What was the name of the sticks ?
Does it have the fake sugar in it? I cannot drink or eat that stuff, it bothers my Ibs
Hi Maggie my name is Patricia we exchanged messages previously and you are a friend of Eric from vegan ostomy and I had told you my big change for 2023 was on Amazon I found an amazing product from a medical company in China and it's a one-piece bag and it's only 2.00 per bag I didn't have high expectations but they have more than met my expectations because I have IBS and even with coloplast and Hollister I would get leaks and you know what with this product I get leaks a lot less and the flanges stick a lot better without using extenders or anything❤❤❤❤ if anybody wants the name of the company I would be happy to give it
I’d like to know the company.
Hi I'm sorry they would not let me reply to you directly but the name of the company is Hubei Heagi medical instrument company. Let me know if you require further information 😊😊😊 blessings from Toronto
NOT TMI, THATS WHY WE WATCH YOU. MY OUTPUT IS ALL WATER, IM NOW USING 2 PACKS OF THE THICKENING AGENT WITH EVRY EMPTY..WHICH IS 15/20 TIMES A DAY. 320-480 CC/mL a day. Its crazy. Im exhausted. Thermawrap works great for heat.
Patches work. They didn't work for me for the first days. After that, they work quickly.
LMNT is pronounced "element" 💗
🌼☀️
Proszę o tłumaczenie na język polski❤
So your hole has moved....according to an earlier vid !
You might consider trying a temporary adhesive like Glue Dots to attach the dome to the appliance. They're similar to the gluey adhesive on mailers that you can rub off with your finger. They hold things but are easily removed or replaced.
Thanks for all of your helpful information! Proctocolectomy surgery with a large parastomal hernia repair and possible stoma resiting coming soon and I am terrified!!!🫣