Managing Ehlers Danlos Syndrome with Low Dose Naltrexone
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- Опубликовано: 27 окт 2023
- In this episode pharmacist Jay Gill interviews Dr. Norman Marcus, the Director of the Norman Marcus Pain Institute in New York. Dr. Marcus educates us about Ehlers Danlos Syndrome (EDS), a group of inherited connective tissue disorders. It involves every tissue of the body, but it tends to present in the skin, joints and blood vessels. With EDS, collagen is weakened or loose which leads to unusually stretchy skin or over flexible joints. Dr. Marcus uses the Beighton Score to help diagnose patients with hypermobility. This is just one of the things he looks for when considering a diagnosis of EDS. Patients with EDS typically present with joint pain, diffuse pain, fatigue, fragile skin or internal pain from blood vessels rupturing. Dr. Marcus shares his thoughts on using low dose naltrexone (LDN) and very low dose naltrexone (VLDN) to help manage this disease.
You can learn more about Dr. Marcus and his practice at www.normanmarcuspaininstitute...
I am 57 - this is soo me, I am so glad I found LDN many years ago, it has been a life changer for me. After decades of medial gaslighting, telling me I was 'just' depressed!
Because you choose to share 🎉I am pain >less with LDN ❤
Awesome!!
So interesting to hear about how chronic pain is a closed feedback loop essentially.
I'm in so much distress. I can't get a prescription from anyone for LDN. This condition is killing my soul. The worst condition and mind destroyer as the medical professionals that I have come across have no idea how debilitating this is.
I'm ready for dignitas because I cant take much more of NHS ignorance and lack of understanding.
1:10 “Earlers Downers Syndrome” - if you’re recording you could at least get the name right…
Will VLDN negate the effects of percocet if taken 8 hrs apart?
Who does the transcription of RUclips videos? Horrible job on this one.