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My wife was diagnosed at 53yo. She had to leave her job as a nurse, and I had to leave my job so I could take care of her 24/7. She has progressed very rapidly as a year ago I was able to still work and leave her at home. Thank You so much for this video, I hope it helps others.
@mikenoshoro5812 Please hang in there! I am caring for my mom and it's challenging , but I am making it. Your wife is very fortunate to have such a caring spouse. Please find a support group and hang in there!
Thank you. My husband has this, Dx'd at 56 and is now 63. We made the best of our days while we could. He's in Memory Care now. I feel like we're in a slow motion, daily haze. I'm SO glad I have Christ in my life. He's been and is my Stabilizer. and is our Sustainer.
my mom's behavior was insane starting at about age 50. never diagnosed and worked until about 70 as a top realtor, but looking back, i now realize my dad did like 90% of the heavy lifting on literally everything. mom was diagnosed with alzheimer's last year, and mcd 2.5 years ago. My life feels like hell after my dad got pseudo dementia and refused to eat for 6 months then died of starvation at home with hospice, so now mom is more difficult than ever!
Dr Natalie I can never repay you or thank you enough for your knowledge, kindness and support that you not only shared with me at one of the most difficult times in my life trying to care for my Babydoll during her final year of her life the so called medical professionals that were available for us were useless in offering any assistance and or knowledge about her condition or help for me. I found your sight in desperation and your calming voice and advice and prognosis took a huge burden off my shoulders and made life so much less stressful for both of us. When I would research medical postings and information it would just confuse me all the more it helped so much to get plain descriptions of the symptoms and care of my wife. No it didn’t make her better but it made me be a better caregiver. I still follow you because I feel like if I stay informed that maybe I can help others and direct them to you as well as comfort them it’s what God has in his way led me to do. Many blessings to you and your family and to the those who have demintia and the caregivers.
I have TWO siblings with dementia. One was in her 70s when developing problems in her thinking. My brother is 63 years old, with not only cognitive issues, but stage 4 cancer. Major differences in supporting these two: Sister already retired and on Medi/Medical. Easy to get her into skilled nursing. Brother still working. Had him on FMLA, and employer based insurance. Self pay nursing facility due to making too much money for Medicaid and two young for Medicare. Still too much money in bank for Medicaid. A living nightmare.
A woman I know was the primary caregiver to her extremely demented husband for more than a decade. This guy never completed a sentence and had to be coached in order to brush his teeth. This woman is not a physician, but she gave seminars on non-medical things that caregivers need to know, at Columbia University. She also wrote a book about the whole experience called TO LOVE WHAT IS. Strongly recommended!
Help! My husband age 64 has been diagnosed with Alzheimer's at age 61! He was forced to retire. His MMSE is now about 13!! I tried to given him the MOCA and he scored below 10! He has zero memory. Has no ability not think. Cannot complete a task, cannot follow directions, has significant language issues. He is completely amnestic all day long.. Then anxious and frustrated by any direction . I'm about to lose my mind trying to do it all and keep my eyes on him. 😢
My father had undiagnosed diabetes for about 6-7 years and when he was diagnosed it was a month before they treated him. I lived 1200 miles away. He started to show signs in his late 50s. His brother and his employers noticed loss of mental acuity. I had to bring him south to where most of our family then lived. He stayed with my brother, then me, then finally my sister who lived on a farm. Eventually he had to be placed in a SNF. He needed surgery (amputation) due to gangrene and they inserted a feeding tube due to aspiration, but it irritated his diaphragm caused constant hiccups and he was aspiration his own fluids. Within 5 years of my father's diabetes diagnosis, I was diagnosed with diabetes. Being a medical coder at the time, I asked my endocrinologist if he thought diabetes could cause dementia since it could affect nerves all over the body, so why not the brain? He said he hadn't heard of it. A few years later a paper was published about a link to the brain (diabetes, insulin, etc.). A hollow victory for me that I "knew" before they published it. It didn't help my father, who died at age 69. I'm 69 now and don't have dementia.
I’ve read/listened to doctors talk about how diabetes can affect your blood circulation and that’s why I thought it was linked to dementia but wasn’t thinking about nerve damage as well.
@@monicacarballar5140 Diabetes can affect your brain, heart, eyes, kidneys, stomach, blood circulation, nerve (sensations), skin, and more. It's been 21 years since I worked in coding but in that job you learn a lot simply by how the codes and body systems can be combined and classified. I realize this page is about dementia but there are other diseases that can also manifest with dementia. That's one reason to give the doctors a full history and observations. It helps to properly diagnose and treat the patient.
I believe sugar and medications play a HUGE role in dementia . I actually think if more people did KETO/Carnivore diets with grass fed , vaccine and antibiotic free meats they could potentially cure if not prevent dementia all together . Again, this would be a entire lifestyle change and committment and there are environmental factors like water laden with heavy metals and the very air we breathe but food is always the medicine 💊
My almost 89 year old MIL in law is leaving the house all the time. I have to keep an eye on her all the time. Now, she is verbally abusing me and my children. Last week, one day, she pulled on my 12 year old's shirt collar and asked him where her shoes were. Since my oldest and I were at our appointments, I hid her shoes so my youngest didn't have to go find her. I don't know if the next step is for her to get physically aggressive. We are looking for a memory care for her.
Thank you for this detailed and insightful video! It helped me to better decipher the difference between early-onset and early-stage dementia. I found myself using those terms interchangeably, but giving this video a watch clarified it. I will make sure to keep this in mind, so thank you again! :)
Alcohol plays a part: 1 in 8 people with young-onset dementia also have alcohol-related brain damage (ARBD). In late-onset dementia, 1 in 10 also have ARBD. It complicates understanding what the heck's going on. But it simplifies caretaking b/c Al-Anon principles are amazingly applicable to dementia. (Al-Anon is a support group for people with an alcoholic loved one.)
My Husband was diagnosed with Early Onset Alziemers Dementia at the age of 62 after contracting Covid, he also has a past of Alcoholism and Severe Adult ADHD. We don't know about his Father's side of medical conditions. He was Diagnosed by a Lumbar Puncture. Lately he come up with Expressive Aphasia. And Yes he was a Waiter having problems at Work and hiding it from me and that made me very Sad.😢
Im 35 and my grandmother is 84. She is late stage dementia . Was a professional athlete for 25 years . Didnt drink or smoke . I saw the warning signs when my grandma was in her sixties . One time , she was driving me to work , and we had went for coffee . We got out to get into the car, and she went to sit in and start the wrong car. Another time , she walked to the bank up the street , and she forgot where she was. Another time , she forgot how to start her car. These were all incidents that compiled over time until they started happening frequently . I believe anti-depressents and SUGAR has ALOT to do with people developing dementia. 🙏💥
For people who have down syndrome, it’s very important that they get all the testing done for Alzheimer’s. Historically that hasn’t really been happening. Doctors have been going on symptoms alone because the testing is invasive and can be difficult to do for somebody who has down syndrome. However, people with down syndrome are now being diagnosed with something called down syndrome regression disorder. It looks like Alzheimer’s, but it is missing The proteins and plaque deposits necessary for an Alzheimer’s diagnosis.
@@DementiaCareblazers I have 6 adult kids who have Ds. (My biological daughter and five who are adopted) We have one who is 20 who is regressing so we stay in close contact with doctors in the know about DSRD.
@@HardlyAMemorymy daughter has DS is 23. Her behaviour in the evening changes so much she is unrecognizable. Repeats, gets stubborn and ocd is bad.Getting her to bed is a 3 hour task due to all her rituals. Never thought of early dementia at 23. Ill look into regression disorder.
I'm 38 and am struggling terribly with memory both long and short term as well as understanding what people are saying- i had a stroke in 2020 and am wondering if I'm developing something like this. I alsonhave an autoimmune disease and am wondering if it could be autoimmune dementia. Don't see my neurologist again til December! Bah.
@violetadelepine6969 I am so tired we started hospice yesterday. He also has multiple myeloma cancer, and being the soul caregiver had put a toll on me. I know I have to take care of myself.
I know it’s not studied a lot but what about anoxia from a heart attack that causes dementia symptoms and the FDG pet scan is not normal and neither is the MRI but CSF is kinda normal so not Alzheimer’s not FTD. NFL test normal. Neuropsychological testing not normal. No answers.
No disrespect but it seems like to me that ever since covid and ever since people got vaccines everybody's talking about Alzheimer's and Dementia well and it also seems like to me that doctors and scientists of all of a sudden been lacking and not able to detect early on set sincerely
Explore our Care Collective for personalized support, live Q&As with dementia experts, and a supportive caregiver community:
careblazers.com/new-member-welcome-offer/
My wife was diagnosed at 53yo. She had to leave her job as a nurse, and I had to leave my job so I could take care of her 24/7. She has progressed very rapidly as a year ago I was able to still work and leave her at home. Thank You so much for this video, I hope it helps others.
@mikenoshoro5812 Please hang in there! I am caring for my mom and it's challenging , but I am making it. Your wife is very fortunate to have such a caring spouse. Please find a support group and hang in there!
@@skylarsky3173 I have found a great support group and I can not tell you how great it is! Thanks for your support.
Thank you. My husband has this, Dx'd at 56 and is now 63. We made the best of our days while we could. He's in Memory Care now. I feel like we're in a slow motion, daily haze. I'm SO glad I have Christ in my life. He's been and is my Stabilizer. and is our Sustainer.
Prayers over you in Jesus name 💕
my mom's behavior was insane starting at about age 50. never diagnosed and worked until about 70 as a top realtor, but looking back, i now realize my dad did like 90% of the heavy lifting on literally everything. mom was diagnosed with alzheimer's last year, and mcd 2.5 years ago. My life feels like hell after my dad got pseudo dementia and refused to eat for 6 months then died of starvation at home with hospice, so now mom is more difficult than ever!
Dr Natalie I can never repay you or thank you enough for your knowledge, kindness and support that you not only shared with me at one of the most difficult times in my life trying to care for my Babydoll during her final year of her life the so called medical professionals that were available for us were useless in offering any assistance and or knowledge about her condition or help for me.
I found your sight in desperation and your calming voice and advice and prognosis took a huge burden off my shoulders and made life so much less stressful for both of us. When I would research medical postings and information it would just confuse me all the more it helped so much to get plain descriptions of the symptoms and care of my wife. No it didn’t make her better but it made me be a better caregiver.
I still follow you because I feel like if I stay informed that maybe I can help others and direct them to you as well as comfort them it’s what God has in his way led me to do. Many blessings to you and your family and to the those who have demintia and the caregivers.
I have TWO siblings with dementia. One was in her 70s when developing problems in her thinking. My brother is 63 years old, with not only cognitive issues, but stage 4 cancer. Major differences in supporting these two: Sister already retired and on Medi/Medical. Easy to get her into skilled nursing. Brother still working. Had him on FMLA, and employer based insurance. Self pay nursing facility due to making too much money for Medicaid and two young for Medicare. Still too much money in bank for Medicaid. A living nightmare.
Look into Lady Bird Deed to transfer money to children.. no look back to see what money had.
Apply for social security disability for your brother.
@@notmeee7302we have
A woman I know was the primary caregiver to her extremely demented husband for more than a decade. This guy never completed a sentence and had to be coached in order to brush his teeth.
This woman is not a physician, but she gave seminars on non-medical things that caregivers need to know, at Columbia University. She also wrote a book about the whole experience called TO LOVE WHAT IS. Strongly recommended!
My great grandmother, grandmother, grandmother’s sister, and now my mom all have had early onset. I’m getting evaluated on the 15th and I’m 40yo.
💖
Help! My husband age 64 has been diagnosed with Alzheimer's at age 61! He was forced to retire. His MMSE is now about 13!!
I tried to given him the MOCA and he scored below 10! He has zero memory. Has no ability not think. Cannot complete a task, cannot follow directions, has significant language issues.
He is completely amnestic all day long..
Then anxious and frustrated by any direction .
I'm about to lose my mind trying to do it all and keep my eyes on him. 😢
I’m sad for you.
I completely understand, my husband is 59, DX at 57, every day is ground hog day! The daily stresses are endless, you’re not alone!
See his doctor and see if you can get help to cope with him.
My father had undiagnosed diabetes for about 6-7 years and when he was diagnosed it was a month before they treated him. I lived 1200 miles away. He started to show signs in his late 50s. His brother and his employers noticed loss of mental acuity. I had to bring him south to where most of our family then lived. He stayed with my brother, then me, then finally my sister who lived on a farm. Eventually he had to be placed in a SNF. He needed surgery (amputation) due to gangrene and they inserted a feeding tube due to aspiration, but it irritated his diaphragm caused constant hiccups and he was aspiration his own fluids.
Within 5 years of my father's diabetes diagnosis, I was diagnosed with diabetes. Being a medical coder at the time, I asked my endocrinologist if he thought diabetes could cause dementia since it could affect nerves all over the body, so why not the brain? He said he hadn't heard of it. A few years later a paper was published about a link to the brain (diabetes, insulin, etc.). A hollow victory for me that I "knew" before they published it. It didn't help my father, who died at age 69. I'm 69 now and don't have dementia.
I’ve read/listened to doctors talk about how diabetes can affect your blood circulation and that’s why I thought it was linked to dementia but wasn’t thinking about nerve damage as well.
@@monicacarballar5140 Diabetes can affect your brain, heart, eyes, kidneys, stomach, blood circulation, nerve (sensations), skin, and more. It's been 21 years since I worked in coding but in that job you learn a lot simply by how the codes and body systems can be combined and classified.
I realize this page is about dementia but there are other diseases that can also manifest with dementia. That's one reason to give the doctors a full history and observations. It helps to properly diagnose and treat the patient.
I believe sugar and medications play a HUGE role in dementia . I actually think if more people did KETO/Carnivore diets with grass fed , vaccine and antibiotic free meats they could potentially cure if not prevent dementia all together . Again, this would be a entire lifestyle change and committment and there are environmental factors like water laden with heavy metals and the very air we breathe but food is always the medicine 💊
My almost 89 year old MIL in law is leaving the house all the time. I have to keep an eye on her all the time. Now, she is verbally abusing me and my children. Last week, one day, she pulled on my 12 year old's shirt collar and asked him where her shoes were. Since my oldest and I were at our appointments, I hid her shoes so my youngest didn't have to go find her. I don't know if the next step is for her to get physically aggressive. We are looking for a memory care for her.
Thank you Natalie .Always very informative content
Thank you for this detailed and insightful video! It helped me to better decipher the difference between early-onset and early-stage dementia. I found myself using those terms interchangeably, but giving this video a watch clarified it. I will make sure to keep this in mind, so thank you again! :)
My love one has EOD and is very quickly going down hill in palliative care now she is 67 now and was 60 when diagnosed
Thank you so much for your Work
Such great teaching on this subject.
Thank you for thus information.
Alcohol plays a part: 1 in 8 people with young-onset dementia also have alcohol-related brain damage (ARBD). In late-onset dementia, 1 in 10 also have ARBD. It complicates understanding what the heck's going on. But it simplifies caretaking b/c Al-Anon principles are amazingly applicable to dementia. (Al-Anon is a support group for people with an alcoholic loved one.)
Will you please give a few brief examples of how al-anon principles apply?
My Husband was diagnosed with Early Onset Alziemers Dementia at the age of 62 after contracting Covid, he also has a past of Alcoholism and Severe Adult ADHD. We don't know about his Father's side of medical conditions. He was Diagnosed by a Lumbar Puncture. Lately he come up with Expressive Aphasia. And Yes he was a Waiter having problems at Work and hiding it from me and that made me very Sad.😢
Thank you.
Im 35 and my grandmother is 84. She is late stage dementia . Was a professional athlete for 25 years . Didnt drink or smoke . I saw the warning signs when my grandma was in her sixties . One time , she was driving me to work , and we had went for coffee . We got out to get into the car, and she went to sit in and start the wrong car. Another time , she walked to the bank up the street , and she forgot where she was. Another time , she forgot how to start her car. These were all incidents that compiled over time until they started happening frequently . I believe anti-depressents and SUGAR has ALOT to do with people developing dementia. 🙏💥
For people who have down syndrome, it’s very important that they get all the testing done for Alzheimer’s. Historically that hasn’t really been happening. Doctors have been going on symptoms alone because the testing is invasive and can be difficult to do for somebody who has down syndrome. However, people with down syndrome are now being diagnosed with something called down syndrome regression disorder. It looks like Alzheimer’s, but it is missing The proteins and plaque deposits necessary for an Alzheimer’s diagnosis.
Thanks for sharing 💖
@@DementiaCareblazers I have 6 adult kids who have Ds. (My biological daughter and five who are adopted) We have one who is 20 who is regressing so we stay in close contact with doctors in the know about DSRD.
@@HardlyAMemorymy daughter has DS is 23. Her behaviour in the evening changes so much she is unrecognizable. Repeats, gets stubborn and ocd is bad.Getting her to bed is a 3 hour task due to all her rituals. Never thought of early dementia at 23. Ill look into regression disorder.
I'm 38 and am struggling terribly with memory both long and short term as well as understanding what people are saying- i had a stroke in 2020 and am wondering if I'm developing something like this. I alsonhave an autoimmune disease and am wondering if it could be autoimmune dementia. Don't see my neurologist again til December! Bah.
Please talk about normal pressure hydrocephalus dementia.
I wish more people understood that the "t" in often is not voiced. It's pronounced "offen." Signed, disgruntled former English teacher
You working overtime? 😂 I have teachers in my family and I don’t think you can help it? It’s cute.
Vascular dementia my husband had.
Same my husband too.
@violetadelepine6969 I am so tired we started hospice yesterday. He also has multiple myeloma cancer, and being the soul caregiver had put a toll on me. I know I have to take care of myself.
@@jlove7839 sad for hour husband and sad for our self too and for the child.God Is Good
My husband was just diagnosed with vascular dementia.Married 50 yrs. Neither of us have any experience with dementia of any kind.
I know it’s not studied a lot but what about anoxia from a heart attack that causes dementia symptoms and the FDG pet scan is not normal and neither is the MRI but CSF is kinda normal so not Alzheimer’s not FTD. NFL test normal. Neuropsychological testing not normal. No answers.
Other than memory loss, functioning on daily basis, speach problems, what orher symptoms are for dementia?
No disrespect but it seems like to me that ever since covid and ever since people got vaccines everybody's talking about Alzheimer's and Dementia well and it also seems like to me that doctors and scientists of all of a sudden been lacking and not able to detect early on set sincerely
Lol, more people are getting dementia because the vaccines kept them alive long enough to get it!
THIS!!