Every new piece of information makes a difference to those of us with ET+. I'm 75 and have always had a tremor. It is increasing in amplitude in the last 15 years. Please keep pushing for more studies. Thank you.
Thank you so much! My family has familial Essential Tremor: my grandmother, my mother and her brother and my mother’s four children. A neurologist at UCLA once told me that having it so strong for generations would be great for researchers but none of us have ever looked for studies. I started inderal in grade school or high school, hit my limit of meds and had DBS a few years ago which has been wonderful. My brother takes a small dose of primadone and one of my sisters who is accelerating fast in her forties and fifties is nervous about medication but is clearly uncomfortable. I would love to find studies.
I suggest that you look up the information you are asking for, yourself to get accurate info. I actually had an appointment date for March or April for the DBS procedure, right at the onset of the COVID pandemic, so I decided to put it off until I felt safer about even going onto a hospital. ...I didn't want COVID in my brain...😢😂. I was kinda relieved when all elective surgeries were halted! My tremors were very bad, like a really old person with Parkinson! I went to a neurosurgeon specialist, who happened to be holding a seminar the very next day! I can't think of his name right now, but he's in Beaumont, Texas. There was, I think, another specialist and a few pharmaceutical reps representing their particular device. After hearing the audience members who had had the DBS, and seeing their results, and seeing the slides and details, I got really excited! I even called the presenters my heros and had some take a picture of them with me.😊 At about 52 or 53, I was the youngest in the room, but my tremors was the worst, by far. I'm glad now that I put it off because situations in my life soon after that surgery date, would have been too hard right during my recovery time. I am adopted so I don't know family history of this and other inhaditable neurological issues that also effects my life. I do plan to look into these trials.
I found this intriguing as someone currently studying the Nervous System in college and living with ET. Thank you. I look forward to expanding my knowledge to someday assist in this area of research.
My daughter and I both have ET. Cannabis definitely works and is very effective. My daughter studies in the Netherlands and has tried Cannabis on a regular basis and she swears it helps her shakes. As a young man I also tried Cannabis and I felt it improved my memory and I was able to study and pass my exams.
Every new piece of information makes a difference to those of us with ET+. I'm 75 and have always had a tremor. It is increasing in amplitude in the last 15 years. Please keep pushing for more studies. Thank you.
Thank you so much! My family has familial Essential Tremor: my grandmother, my mother and her brother and my mother’s four children. A neurologist at UCLA once told me that having it so strong for generations would be great for researchers but none of us have ever looked for studies. I started inderal in grade school or high school, hit my limit of meds and had DBS a few years ago which has been wonderful. My brother takes a small dose of primadone and one of my sisters who is accelerating fast in her forties and fifties is nervous about medication but is clearly uncomfortable. I would love to find studies.
What's the meaning of DBS pls?. I'm suffering from d disease too
I suggest that you look up the information you are asking for, yourself to get accurate info.
I actually had an appointment date for March or April for the DBS procedure, right at the onset of the COVID pandemic, so I decided to put it off until I felt safer about even going onto a hospital. ...I didn't want COVID in my brain...😢😂. I was kinda relieved when all elective surgeries were halted!
My tremors were very bad, like a really old person with Parkinson!
I went to a neurosurgeon specialist, who happened to be holding a seminar the very next day! I can't think of his name right now, but he's in Beaumont, Texas.
There was, I think, another specialist and a few pharmaceutical reps representing their particular device.
After hearing the audience members who had had the DBS, and seeing their results, and seeing the slides and details, I got really excited! I even called the presenters my heros and had some take a picture of them with me.😊
At about 52 or 53, I was the
youngest in the room, but my tremors was the worst, by far.
I'm glad now that I put it off because situations in my life soon after that surgery date, would have been too hard right during my recovery time.
I am adopted so I don't know family history of this and other inhaditable neurological issues that also effects my life.
I do plan to look into these trials.
I found this intriguing as someone currently studying the Nervous System in college and living with ET. Thank you. I look forward to expanding my knowledge to someday assist in this area of research.
My daughter and I both have ET. Cannabis definitely works and is very effective. My daughter studies in the Netherlands and has tried Cannabis on a regular basis and she swears it helps her shakes. As a young man I also tried Cannabis and I felt it improved my memory and I was able to study and pass my exams.
Most interesting. Hoping some developments occur soon.
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Thank you for putting these on! Look forward to more