At this point I just don't want a Dr. that RE -victimizes me. I won't tolerate complete lack of empathy, condescension, not listening or any form of ridicule. Errors are bad, but the attitudes are inexcusable.
@@Silenceisconsent Yeah that sounds about right. What really annoys me is that they find the notes from the doctor who doesn't listen and just gaslights, but everything else doesn't exist. I had a surgeon say that I needed an EGD, UGI, ph test, and esophageal manometry before seeing a surgeon. Literally had all of those done...she just didn't bother to look.
@@incognito595 So true, and it may actually get worse. Ethical scientists do care, but determining who's trustworthy isn't easy and impossible under certain conditions like hospitalization.
I love private health care in Mexico. My first visit with the cardiologist lasted 70 mins while she sat with me and went through my file, hand-wrote my family history of cv disease, did a carotid scan and ekg at a first rate hospital. It cost $35.
This outrageousness runs down to our animals healthcare too. Over 1K for dental cleaning, 70 dollars for a checkup(but is never just a checkup) and $186 for 6 months of EFFECTIVE flea treatment. 😭
I've been gas lit so often, and have tried to self advocate, and get treated worse. I truly appreciate your channel and advice, and wished I had met a doctor like you in my life.
Yes when a person self, or even 'other ' advocates they are labeled argumentative, difficult, and one of my favs > non-compliant. And the 'treated worse' is palpable.
Happened to me again on Tuesday after I asked what could have happened during cataract surgery that had an outcome for me that was painful and took a month to improve. That doctor didn't even do the surgery but it wound up sounding like they were friends. The blame was placed on me and I was unconscious during the procedure. Their voice kept rising and I finally cut it off and said that I didn't say anything derogatory against anyone, I just said that it was an awful experience for ME. More gaslighting and accusations by then followed. Just a horrible experience all around.
I've been complaining of earaches, especially when any air gets blown in them, cold or warm, and some swelling on the bones behind my ear. My latest GP, who I've complained about this issue to for a few years, finally said, listen, I'm not an ENT, you need to get one. I asked, could you at the least please look in my ear and see if it looks ok. You would have thought I had asked him to wash my feet.
I mean you can only self advocate and do so much but nothing will happen if that doctor just doesnt want to treat you. After self advocating and they still dont want to treat you then you self advocate by going somewhere else .
That's the truth! The more you advocate for yourself, the worse the treatment is. How could YOU possibly know your OWN body? Gasp! They are so arrogant!
I have a very symptomatic fibroid that has caused severe pain and bleeding. It has been a nightmare. I was recently diagnosed with a DVT. I told 2 ER doctors, an urgent care doctor, 2 OBGYNs, and an advice nurse that stopping birth control was going to cause horrific bleeding and I was already severely anemic. I asked what I should do and begged for help. They all treated me like crap and like I was silly. They apparently know more about my body than I do. They said I was worrying for nothing and that I didn't know that was going to happen. Less than a week after stopping the birth control I was admitted to the hospital and had to be given blood transfusions. They left me to suffer and treated me like I was some stupid hysterical woman. It is ridiculous. They had zero compassion. Shout out to the medical records worker who accidentally sent me a copy of the messages sent between my doctors. Now I know just how much my doctors dislike me. Why be a doctor if you think only certain people deserve help?
Its not only ridiculous, it goes directly against the hippocratic oath and their function as a healing professional. Its not you, its the insurance and profit based medical industry, but the ultimate responsibility still lies with the MDs themselves. I have changed MDs prior to surgeries for this behavior and had to wait another 6 mo, but you are dealing with short time horizon, dangerous conditions so didnt have so many options Dont keep blaming yourself its not you
The practice of gynecology was developed by white men experimenting on black female slaves and its still like that. Your pain is not real your opinion is not relevant be quiet and take it.
How dreadful for you! Awful to see in black & white exactly how unkindly & meanly your doctors had spoken about you. Sorry that you went through such traume
You totally hit home with the chronic pain. I have so much going on, Fibromyalgia, IBS, probable chronic fatigue, migraines, lymphocytic colitis, plus and then add the mental health issues, PTSD (childhood onset), dissociative amnesia, depression, panic, and this list goes on. Cymbalta and Celebrex are my pain meds and PTSD meds with Topamax, Aimovig and Sumatriptan for migraines. I’ve given up going anywhere for pain relief even if my pain level is climbing up towards 9 or 10 or more. I’m allergic to non-synthetic opiates like morphine. And I can’t get any real pain relief anymore. I’m treated like an addict seeking a hit. So I just stay home, soak in the tub, then crawl under my weighted blanket with my service dog next to me and cry.
I feel your pain. I can so relate. I am so sorry that you were going through this crap. My pain doctor beats me and yells at me before I can even respond. He’s a big bully and I don’t know what to do.
I cant find anyone to help me with chronic pain. I was even chadtized seriously by a professional while staying at a nursinghome after major surgery, for taking too much tylenol. Five years later, still no help. I take lots of asperin. Around sixteen a day. I only can just make it in and out of wheelchair be ause of pain. I am so fed up with today' s attitudes. 😢
When I had a hip replacement, my nurses were extremely sympathetic when I woke up in a fright. They helped ease my anxiety until I was better. And were watchful the whole time I was there.
20 years of psychiatric misdiagnosis for get this: Hypothyroidism, Type 2 Diabetes, and an Eating Disorder. But they were more than happy to prescribe psychiatric medication, electric shock therapy, transcranial stimulation, and a whole slew of other atrocities and abused.
As for hyperthyroidism, you would only need iodine, as in my case. I was on meds 100mcg daily for 5 yrs, and then the Lord led me to Lugol's solution iodine drops. I took 5 drops daily and my thyroid started producing my own thyroxin. Within months i was off meds and still am, 4 yrs later. Feeling great. I am 71. In my case my blood tests were always normal, but i felt bad. I googled it n found out 30% of ppl who have hypo test normal and science doesn't know why. I was one of them. Best way to see if you are hypo is to take your basal body temperature every morning as soon as you wake up BEFORE YOU GET UP. Normal is 36.2°C mine was 34.2 or lower for an entire month. One week is enough to do it. I was also cold most of the time. Iodine is a must for thyroid function and all other glands. Prevents also cyst formation and is given to cancer patients. Boosts immunity. When i told my British educated gastroenterologist about it, she was shocked. She said they don't teach them that in medical school. Of course they don't. How else would pharma mafia otherwise make a fortune, if iodine is a cheap fix for many health problems? Google Hypothyroidism and also dr. David Brownstein. There are many videos about iodine.
Did a Psychiatrist dx your hypothyroidism, type 2 diabetes? Why on earth didn't you go to your primary doctor or GYN? Did you just go to your Psychiatrist for AN eating disorder and he just had you get blood work to see if your thyroid was to low and to check for diabetes?
I had gone to my PCP and OB/ Gyn. The problem was that the system of care I was in was grossly inadequate. When I got my full medical records - including psych - and those records were evaluated by a higher level of care, there were major red flags that came up. Some things just didn't make sense. Why wasn't my thyroid and A1C being tested if I was on certain medications? Why wasn't my PCP referring me out to specialized care? I chose to go out of network to a different city to a better system of care. The providers I have now are much better educated than the previous ones.
Omg, this really hit home. I was rarely sick, so I didn’t have much interaction with doctors. When I got cancer 2 years ago, I was shocked at the lack of “care” in my care team. I am one of those people who won’t open my mouth or stand up for myself. I also have panic attacks around doctors so that doesn’t help either but I can’t help it. I met my oncologist and radiation doctor and thought I’d be taken care of…I was not. I was in horrible pain from my large tumor, and the first attempt at my surgery failed because the oncologist didn’t realize how much it had spread. I needed chemo and radiation before they could try again. I was never told about any effects, whether short term or long term. I told them about my pain from the beginning-and it was daily pain where you’re shaky and nauseous and can’t think straight. I wasn’t given anything to help, and the treatments just added to the pain. I was honest about my mental struggle…again nothing. I was hemorrhaging but they thought I was over exaggerating until I went to my family doctor and my hemoglobin was 5 and he sent me to the ER for a transfusion. Twice I had infections that they blew of my symptoms when I told them. They made me think my symptoms were normal side effects of treatments and I didn’t know what was normal or not anymore. Again, it was my family doctor who diagnosed the infections. I realized my cancer doctors were there to order the treatments and do the surgery, and that’s where their care ended. However, by keeping me weak, I had nothing in me to fight effects. 2 years later, I have very little quality of life. I have developed severe PTSD where I relive everything all day long, every day like a movie playing in my mind. The day I was discharged from the hospital after surgery is the last time I saw any of them. I never went back for any follow ups. They did so much damage to me mentally and physically. I joined a Facebook support group just for my type of cancer and there are 7000 members. So many of them had doctors like mine and patients are suffering. On a positive note though, all the nurses and radiation techs, and anesthesiologists, and techs who do imaging tests, are all wonderful and caring and comforting. And you are amazing! 🙂
So sorry to hear this. Keep listening to what others say in regards to who they feel is a good compassionate caring Dr. Don't give up you will find someone who is good soon. You deserve good care & to be heard treated fairly & well. I know exactly what you mean but will give praise when due if deserve. I have been very lucky met right medical people right time & thank God forever as if hadn't crossed our path at those time my Husband would not have survived as long as he did. Keep being honest don't change someone you meet will lead you to right people ❤ Believe me there are some really good Drs out there I hope you find 1 real soon & get right care/treat you justly deserve. Best health for you 🙏
Before I share my personal experience; have you tried EMDR therapy? It can help people with PTSD process trauma so it stops invading their daily lives. ❤ We had a similar experience when my late husband was diagnosed with cancer. The doctors straight-up lied about whether they could tell if his cancer had spread or not; like some kind of conspiracy; performed incapacitating, useless procedures, and in the end, when he was dying in 10/10 pain, still wouldn’t prescribe narcotic pain meds. The nurses, however; in the hospitals, those who visited him at home, the hospice workers; were almost all wonderful! The only exception was one who didn’t check his fresh surgical wounds or show me how to care for his new feeding tube, resulting in a serious infection. All I can say is you basically have to be your own doctor these days, and you may not be supported in getting proper care even if you know exactly what that should be! 🤦♀️
@@misspat7555 I will look into the therapy you mentioned…thank you! I’m sorry about your experience too. There is so much I found out and realized after everything was over and done. I know now you have to speak up and be your own advocate. It was hard when I was going through it because they were rushing to start everything and I was so sickly. It’s not fair to have to be on top of everything too. It was just such an eye opening, disappointing thing to realize I couldn’t have trust in them. ❤️
@@jangriffin-fi1yx Thank you so much! There are some very caring healthcare providers…I just didn’t have the ones I needed at the time. Plus I was so sick that everything moved very quickly, and I didn’t have the time to change. I have a wonderful family doctor who stepped in to help when they were ignoring symptoms. I feel on more than one occasion he saved my life. He said he hated stepping on other doctors toes, but he was shocked how they were letting me go downhill. I realized how quickly things can go very bad. I am grateful for my family doctor every day. ❤️
Plus, since I have So Much wrong! FIBROMYALGIA (All In My Head) NOT!!!!!!!! Plus, PTSD,CFS,PANIC, 2-HERNIATED DISCS.,KNEES BONE ON BONE, DEPRESSION, NEED HERNIA MESH REMOVAL (KEEP POSTPONING IT. CAUSE I am Nervous about it. Retired NURSE. I know what happens during Surgery. 😢
That's scary to see,that you are a nurse and know all this😓...CAN I RECOMMEND A BOOK FOR YOU THO? I BELIEVE IT WOULD BE OF GREAT HELP TO YOUR LIST..."HEAL YOUR BODY", LOUISE HAYES,ONCE YOU SEE THE MENTAL THOUGHTS AND COMPARE THEM TO THE PHYSICAL CAUSES...YOU WILL PROBABLY CONSIDER A CHIROPRACTOR OR MASSAGE THERAPISTS,FOR MANY OF YOUR ISSUES,THE MESH IS ANOTHER BALL GAME.
I have been to the emergency room, on at least 3 occasions over the years, where my pain concerns have been completely dismissed. Finally able to be seen buy a pain management specialist, only to find that I have degenerative joint disease, and degenerative bone disease in my entire spine, and feet. I could have gotten a relief 20 years ago, if someone had taken me seriously. Thank you so much for your videos! You give so many of us hope
Thank you for talking about this subject. I know it's not just a battle my husband and I have been fighting. It's a battle soooooo many have been having My husband was victimized when he was put on the vent to save his life from the Delta variant of Covid. He was put on the vent against his will, I was lied to so I could make the choice for him, and when they pulled him off of it 7 days later he was made to smell his own feces, he was starved for days and days and he was talked to like an abusive parent would speak to their unwanted child. There are even notes from a doctore on his chart begging them to put him on a feeding tube because days and days later they still had given him nothing. Now he has nerve damage and subsequent pain due to impropper proning and damage in the top of his lungs from the vent being forced. He remembers through the sedation the multiple tries to vent him before they finally was successful. Of cours, I had Covid too and even if I didn't I wouldn't have been able to be there. They wouldn't have allowed it. Another time I took my husband to the ER for shortness of breath when he had the flu. He hadn't been diagnosed with it but our son and I had and after his issues with covid and the vent, we decided he needed to be at the hospital. When I got there, they took him to answer screening questions and then basically tried to kidnap him because they asked if he had any thoughts of suicide and he said he wish he'd died when they put him on the vent but he's there for care so he doesn't. Instead of understanding of asking followup questions, they freaked out, threatened to sedate him and keep him there. They wouldn't even let him leave. When they finally let me back to be with him, he was out of breath and trying to leave. I tried to find him a chair so he could sit and catch his breath but they wouldn't allow me, they wouldn't allow him to leave. I had a nurse screaming in my face they whole time, they called the police and at that point ushered us into a small "holding cell" for a lack of better words. I had to calm my husband, the cop, and the smart assed snarky doctor down. All of that happened between August 2021 to November 2022 and since then we both have very little trust in the medical personnel in our area. We're in North Western KY/ Southern IN area
I am just beyond appalled at what happened to your poor husband by medical professionals!!!! Dear God it's almost Beyond Frigging Belief!? Please Report this to the Damn medical board!!! And also do your best to record or document any and all interactions. Use your smart phone to have some actual Proof of what's being said and done!! Horrible, ABSOLUTELY Horrible treatment of your poor husband!!!!!!😠
As someone who is on the autism spectrum, it's difficult to know how you are feeling or how to express it to the doctor, especially when it's hard to even speak. Just getting to the appointment is upsetting and nerve wracking. I never sleep the night before an appointment. If I feel like this, I can only imagine how many more do. I literally cannot speak and it's awful just trying to act normal and make eye contact when you'd rather crawl under a rug. I feel rushed at the doctor so I just deal with things that I am already getting treatment for. I wish I could just hand the doctor a note and not even have to speak. I feel bad for the old people or people like me that maybe need a more sensitive doctor that can pick up on things and try to make it easier for their patients. I only respond well to kindness, as I'm sure most people do.
@@jenniferlong808 I know that it seems that logical and simple. It's just very difficult to communicate for me. I write great, just fine, but to speak my mind I just become confused. I have this brain to mouth disconnect. I don't have the energy at my age anymore. I've been through a lot and am burnt out on life and people I guess. I've stayed with a PA for years now because I feel the most comfortable around her. She's great, but I've needed a doctor for more specialized care for all my health issues. I don't have the energy to hop from doctor to doctor. Just one appt is so mentally draining, even to see the one I like. I suppose I sound like I'm whining. I'm great with animals, not so much people.
Perhaps write an email or letter, or have someone do that for you, to your doctor prior to your appointment, describing your problems, symptoms, questions, and whatever else the doctor needs to know to help you.
Respect you taking on this subject. I'm a hospital RN and can attest to what you are commenting on. The ER often blames the symptoms (esp. if they can't find the cause) on the patient, the love the psychiatric card. I had a nurse friend get a wound infection and the surgeon asked him, "what did you do?". It's true.
My medical care has really deteriorated in the past years. It's unbelievable. So bad , I feel I can't even tell my unbelievable stories. I wish I had a doctor like you. I Think the doctors are too busy to even care and their under pressure not to order tests to save money. You need to be beyond help, to qualify for a test. Example: I had serious hydronephrosis far a year , suffered greatly before anyone did a test And I complained to several doctors.I had to go to work with all of this discomfort and fevers.
There is a very dark cloud of corruption over medicine. I have had severe R sided back and groin pain for 5 years. First diagnosed as piriformis syndrome, than sacroilletis. Injections and PT didn't help over 2 and 1/2 yrs. The doctors jumped to recommend a Sacro-Illiac Fusion -- a horrible surgery and 2yr recovery and that often results in new pain that is chronic. Then a neuromodulator implant! I saw new doctors who asked me, "What did they think about this L5 disc? What did they think about this hip arthritis and labral tear? ". I was told by the previous doctors " It does not look that bad on the x-ray". Talk about gaslighting! And I sadly believe, corruption. There was a conflict of interest and primary gain for the surgeons to do a massive surgery to implant pricy prosthetics and devices IN YOU BODY. L5 injections and hip joint injections have finally achieved some relief for me. I could have been completely debilitated by now and turned into a permanent severely ill patient. Almost 5 yrs of my life wasted, in pain, as it is.
An excellent presentation of critically important truth. Recently, being sent to the ER desperately needing electrolytes and other help, I never saw a physician. I called the Chair of Emergency Medicine (whom I knew) with the Trauma Level I hospital from where I had retired. That was only one of several substandard experiences. When, during tine out, I corrected the nurse who had made many errors in my allergies, and immediately, I was sedated!
I’ve had 3 direct relatives who died in hospital care due to negligence (one being my Mom). They spend more energy trying to avoid being held responsible than caring for their patients
Have you heard about Jean Descamps at Providence Milwaukie Hospital ER? Jean was actively dying when doctors and nurses decided he was faking it. They called police to pick him up. The officer asked them twice "are you sure?" The police took Jean to a psychiatric hospital but in removing him from the back seat, they realized he was already dead. The officer proceded to do CPR. He really took more care than the medical staff, but it was too late. The 26 year old young man passed.
Horrible. Doctors are sick individuals. I think they are psychopaths, sociopaths to be honest. Dumb as f#ch also. I think...the best thing you can do is just study yourself, read, read and listen to podcasts to regaining health as changing lifestyle and see what makes you sick. Changing diet. Doctors are arrogant, dumb ( sorry, but this is my observation ) and do not care. Plus, they are following orders from above, which do not benefit people.
Yes... They apparently didn't want him to die there. The man who said it was purely a behavioral issue was obviously in a personal hate situation with someone who has become an addict. He should not serve the public in this manner with that chip on his shoulder
At this point in my medical journey I'm very lucky to have the specialist I do.My shoulder surgeon is one of the best surgeons I have ever seen.He sent me to his elbow surgeon for my cubital release being done in a couple of weeks.Both of these Drs have great compassion and speak to me as an equal to them person.I am a complex patient (hEDS,Chiari,BIH).It means so much to me at this point in my life being respected and listened to.
Às some one who has had cancer, every time I go to a Dr ( new) I get questioned about my allergies and why I am so many medications! I have to stand up for my self all the time
What does a patient do when they are completely gaslit and abandoned? I’ve worked in the medical field for 30 years, 16 of those in neurosurgery, and I’ve been through 14 necessary brain surgeries. I could literally be the poster child for this Live because of all the medical gaslighting and PTSD I’ve been thru. My last brain surgery was to remove a mass in my brain, and then I was fired from my job while in the ICU two days after my surgery. I deeply regret giving my life to the medical field now, and regret having the mass removed. I went into medicine to help people, and I’m deeply saddened the care from health care is gone.
I am deeply grateful for this this video and this dedicated doctor I have been abused so much in the medical profession due to many factors. It is absolutely lovely to have someone with a heart and intelligent awareness speak up and empower people to help the doctor help them
I'm currently in this situation. Went to ER for breathing issues. I didn't want to burden anyone ,especially not the ER. I ended up having pneumonia, acute Bronchitis, rhino virus. The 2nd day of my hospital stay they were already trying to get me to say I was ready to go home. I felt so much like a burden to them. 6 days later, I was sent home. My left side was killing me and Noone seemed to want to address it during my hospital stay. Currently at home and in so much pain. I'm afraid of going to the ER because of the treatment I received the last time( 1 month ago). I do have an appt at the end of this month with Dr. . It's a long wait, but I'd rather suffer in silence than have the last experience again. I am tears watching this video.
I love that I can contact my doctor via email through their app. I also love that he knows he doesn’t know everything, unlike so many doctors. It’s been a 20 year journey for me to finally figure out what’s wrong with me. I had to study myself and ask for the tests.
Thank you for making this and similar videos. I have had chronic pain for almost 20 years now. I have been thru many of the challenges with the health care system mentioned in this video. I would love to hear you talk more about chronic pain in a future video-hearing about new advances for CP patients would be great since I have been dealing with it for so long. Thanks again for the helpful content!
17:29 Very pertinent question. I have had TWO "simple, routine" biopsies that turned into horrible long term health nightmares. One was at U hosp in Denver where I was told I had stage 4 cancer (untrue), other was a private Dermatology practice in Pueblo. Both were extreme and radical procedures, and when I went to other doctors for help afterwards I was told they were "butchers", "shouldn't be in practice", and that they were "cocaine users". I couldn't find an atty to help w/out $85K upfront. Both doKtors are still in practice butchering people and protected by OUR insurance companies, medical industry, and attorneys.
Attitudes from 98% of the physicians I meet are deplorable. I'm a medical professiona w a PhD, l but STILL get talked down to, get refused to have my questiins answered, or get told (just this week) ,"You're just sensitive!" I looked at my neurologist this week and said, "Sensitive? That's not a very scientific explanation for pain from hypoxyapetite crystals on my superior rotator cuff". Then the doctor refused to explain what a Martin-Gruber anastomosis was, which I have in my arms. They ASSUME I don't understand, so they ignore my questions. And EVERYONE assumes you're a drug seeker. I won't even get into that.... Grrrr.
I had a broken tooth for a week before a Dr/Dentist was able to extract it. Asking for a stronger pain med than what's available over the counter because those weren't working , I was met with resistance and a feeling that the GP Dentist and the dental surgeon thought I was a opioid seeker. I know to some this is a minor inconvenience but it seems like the Dr's now a days take pride in being ultra conservative in their approach to pain relief much to the non drug seeking ,for nefarious reasons, "normal" patients suffering.
Most of that is due to government interference. The amount of paperwork a doctor has to do to justify giving you a few days worth of hydrocodone is absolutely ridiculous! Their licenses can even be at risk if the government feels they were a little loose with their prescriptions, without the government knowing the slightest thing about the patient whatsoever.
Absolutely. It took them 2 weeks to see me. When I called,in tears, I was told “I am sorry you are experiencing discomfort. You can take Tylenol or Motrin until your appointment.” I was way past discomfort and even begged my husband to grab his pliers and pull it.” I also had a hysterectomy. Never saw the doctor at all, not before or after. It was not explained how she was going to do this ie vaginally, laparoscopic and I was sent home with 10 Tylenol 3’s. Worst pain ever. Their response, sorry that is all we are allowed to give. The list goes on and on. I worked in the medical field for 14 years and have never seen such blatant disregard for patient care. As a last ditch effort I went to the ER for possible heart attack/angina. I was given an EKG and blood draw. 5 hours later after suffering intense pain, I walked out. I have completely given up on the medical field. I am 58 and have lived a pretty good life. Whatever happens, happens.
@@jameswhite6986 this entire drug crisis was brought on by the pharmaceutical companies and the physicians that were getting kickbacks for using and prescribing these narcotics, so now the people have to suffer, as a nurse I was forced to give drug addicts narcotics even when I knew they were not in pain, so what they are doing now is called cover your a$$ medical care, has nothing to do with patient care it all about the physicians
I went to the closest emergency care for a stroke. The office check in told me to sit and wait. When I persisted they suggested I drive myself down town to the hospital.!!!! Finally, someone took me for a scan. I was sent to the hosp. by ambulance with 3 strokes.!!!!!!
I think Doctor K, I would feel safe with you being in my care in the next surgery. Right now, the fear factor for the next surgery is off the charts. I keep asking WHY? I get crickets. By the way, the pacemaker I have is running out of battery life. I keep saying I will do NO surgery of any kind until I know why my oxygen goes to 70. I think the Doctors in the next surgery should know. I should know I will be safe.
Hi Dr., Years and years of gaslighting bc of my chronic mental and physical condition. Diagnosed conditions. Being an Austistic female diagnosed in later life doesn't help. Hope has been hard, and I'm really lost. It was accidentally revealed to me that some random nurse in the ER who randomly notated a diagnoses of: facticious syndrome. WTH?! I spiraled mentally bc of it. I've been fighting hard to get better, and when anyone, henceforth, sees this in my charts, NO ONE will believe anything I say! I learned about the syndrome. Not only is it so not me, but the diagnostic procedures were not used. They won't let me know the nurse so I can speak to her, ask her "why?" I really am trying to be open. I do understand the mind-body connection for. But not facticious syndrome at all! My chart is ammended, but I'm still worried and angry about the ease of it getting into my charts. The ammendment doesn't make it disappear? I want it gone. So many of my providers admit that I'm a complicated case. I hate it, but they're not wrong. Anyway, I've been slipping through them cracks for years wo anyone advocating for me at the level that I need. What do I do? I'm so exhausted and hopeless and I feel like my providers don't really want to help me find good solutions... for years and years. I'm sure it's common, but I'm running out of resilience and strength. I know I wrote a book here. It's rly tough for me to becsuccint aboutbmyself. I'm glad I ran across your video, tho. You'll likely not see this or reply. I had to try. Thx for your channel. It's unique.
I got misdiagnosed for years for having bipolar and borderline personality when I actually found out I have anxiety, ptsd, depression, adhd combined type and autism. hard to find the right doctors that are willing to help. some say i have too much and the dr dont have enough time even a pcp.
I'm in the UK I've had Dr's refuse to give me morphine instead giving me IV paracetamol, seen them google my genetic illness or ask me what treatment they should give me as they have never heard of it, been told by an anesthesiologist in the pain clinic he could do 6 appendectomy surgeries on what I take in 24 hours - it is scary having a long term health issue that causes chronic pain wondering which Dr will treat you and which will label you a drug addict and ignore you
Wow 🤗 you are Amazing Doctor straight talking 🎯 This also applies in Dentistry when a person needs to take care of dental health and they don’t. Many catastrophic outcomes when a tooth or teeth are infected and bacteria travels to heart 💜 Make sure you advise the doctor if you’ve had recent dental procedures like Root Canal 🦷. Maybe you can address this! Hard to find a good dentist or doctor in Melbourne FL!!!💜🤷🏻♀️
I was admitted to hospital with urosepsis. I knew nothing about the condition and was so sick I couldn't even ask. There were no beds available so I spent 5 days and nights in the ER hallway. I was terrified and felt just like a thing and not a human being. I was traumatized. After I was released and home again I continued to feel fearful that the infection would return and that I would go through the same experience
I love this channel. Much to learn and help people feel confident. Just had gallbladder removal surgery last week and to have an anesthesiologist who truly cares is a game changer.
I reported an anesthesiologist after he told me the Propofol would and I quote "it will really, really ,really hurt" but did not add any Lidocaine to the medication. I was told I had adequate care but the pain but unbelievable. This was the same doctor that refused to turn the lights down for me, would not allow me have headphones on and was annoyed because I needed an extra blanket. The nurse manager of the department told me enough to file a report but all he got was a slap on the wrist, I'm just thankful I was only having a short procedure. Also he told me he didn't believe in redheads needing extra anesthesia and I needed to grow up.
For cataract surgery I needed twice the amount of anesthesia/sedation, my anesthesiologist said. I took care to tell him I was a redhead even though my hair has turned blond with age.
I lived in Massachusetts and the medical care in that state is unbeatable. I miss that. I moved to South Carolina and medical care here is horrible. I had a stroke and the neurologist assigned to me had me come in for follow up in a week and he told me he never wanted to see me in his office again and the only way he would see me would be in the ER.
I live in NC now and lived in MA for 10 years. Great care there! Recently my husband and I decided to buy a 2nd house there because of his job ( long story ) and guess who has an appointment at MA General in June? lol
Most people in pain want to get better. They want the problem cured. Fakers dont want to get better they just want meds. A sincere person in pain wants the source fixed.
The problem with someone who has been suffering from chronic pain and other symptoms that they have been experiencing for a year or more and they are actively seeking treatment from specialists and the primary care provider and then directed to go to the ER ….then this person will avoid going to the hospital because of the poor treatment and attention they receive from their past experiences with the ER, they can end up ignoring something that is really serious. Or when they are finally convinced to go to the ER because of how sick they are they can still say and show everything that they have to get attention to their symptoms and ask for help from every perspective that includes pain management or not and they can still be treated like they are invisible, not worth their time and effort. I think doctors are responding to addicts who are just lying about their situation by going overboard with the ability for them to be there for those people who are so obviously in need of their help
I had a fabulous anesthesiologist / pain mgmt doc for over 12 years. I have spinal injuries (with other comorbidities) and was at a daily MME=345. Had to find a new doctor this year when mine had to move for family. Currently at MME=180, but now have lymphoma & bone cancer (intermediate stage). Have been trying to impress upon him I am not getting pain relief. Have burned the hell out of my stomach on ibuprofen & Roboxin. Trying to find a new doctor, but until then HELP! I feel that if a pain management doc is an anesthesiologist as well, they are more knowledgeable and more reasonable.
Love your videos, and I wished that I came across them before I had my laparoscopic hysterectomy 3 weeks ago. I can relate to so much of this. I had awful experiences from NHS maternity 16 and 10 years ago. Felt coerced into interventions that I didn't want or need. I lost trust in the medical profession thereafter. I've been avoiding drs since then, until I was forced to seek help after becoming ill 3 years ago. This has led to where I am today. The whole process has been triggering. I was shaking and crying before being put to sleep. I'm so glad that I was put to sleep in a separate room to the theatre. Overall though, this time round was much better. I was listened to. My bodily autonomy was respected, and everything was explained to me, which was lacking in maternity. The surgeon gave the option to walk away at the last minute. I didn't walk away. I've been ill for so long, and in pain that I wanted my life back. I'm ok and recovering well, and I'm due to go back to work for a few days next week.
I have learned to be a good self advocate with narc Drs because I lived with one (a pharmacist) for many loooong years. My number one warning is to NOT cry, no matter what. The second is to not be accusatory in the least-be very respectful, no matter what. Encouraging a “what can WE do?” team attitude, it works for most Drs. The worst gaslighting I receive is through my pain mgmt Dr. I asked when my last MRI was. He said 2 years. I told him my pain was worse than 2 years ago and asked for a repeat MRI. He said he’d repeat it if it would make me feel better. I said thank you. When we met for the MRI results it turned out that ligaments in my hip were shredding / tearing in a severe way. Including a bursa. He didn’t say he was sorry for discouraging me to have an ultrasound but he did admit there was nothing he could do for me but send me back to the surgeon who referred me for impingement I see him this week. I feel very empowered.
@@foreverglow5685 The doctors thought the I had thoracic outlet syndrome. The nerve gets wrapped around the rib. They planned on taking the other side, but I didn’t let them. I knew that it was mistake when I woke up. The surgeon said it was really bad, but I didn’t believe him.
June 2023 I experienced the worst pain I ever had I couldn't sit took 5 ambulances in 10 days to ER. Yes I have chronic pain. This was different. I could barely move. I was told to SIT in waiting room 12 plus hours of course I couldnt. Left and tried agsin a surgeon said the pain was anxiety pain. 10 days later I couldn't lift my chest off bed. Called 911 bleeding. I was septic dx with a rectal abcess. Operated on and a year later I am finally recovered. Another prime example of this is the Lisa Edward's case who went to 2 hospitals with stroke symtoms and was discharged finally having the police called and 1 hour tirade of multiple police officers unable to move her failing body into the police van. She was left to urinate in the Gutter with officer standing around cracking jokes in front of a hospital. They mustered up the strength to slide her into back seat of a cruiser laying on her back her breathing already compromised succumbed to the stroke. Shameful
I injured my L knee last yr. MRI showed a complex meniscus tear, Baker's Cyst I bone contusion and had a partial meniscectomy, 10 mos. later I injured my R knee. I can't believe it! Not another nightmare injury .This is more painful.! X-ray shows no fracture & no significant arthritis. What does my ortho say? It's a underlining degenerative issue. He refuses to believe I could injured both knees in 10 mos. He gave me a cortisone shot and 48 hrs. later I could not stand on my leg and terrible pain in the knee. It's been almost 3 wks. and it keeps getting worse. Last wk. I went to the ER to see if I had a DVT. D-Dimer test was neg. The PA gave me Tramadol for pain, I never asked for them, but, was glad. Tomorrow I go back to see my ortho, and I will tell him his 1st diagnosis was dead wrong. I did indeed injured my 2 knees in 10 mos. I cannot go thru another yr. of pain & agony. I could scream. I cannot walk w/out walker and didn't need it before the cortisone shot.
@@jpslaym0936 Correct! I was trying to get off a low bench and b/c of the surgery to my L knee, I was mainly using R knee. It took me 4 attempts, it keep slipping out from under me. W/in 5 min. I knew I had injured it, but, was in denial. So stupid of me, I could just scream!
Thank you for being so sound minded!! I work in the emergency area and there are as you say so many wrongs and errors done against patients and I’m really really concerned!
I am happy to see something like this in a doctor talking about this especially for chronic pain patients. I have multiple issues going on starting off with limes disease in 2002, and then being in black mold which compromise. My immune system brought out my lime, and a dormant herpes zoster, I’ve been to the ER 19 times. I had a heart attack with my blood pressure 184/102 not able to move my body to have a doctor stick a pain in the bottom of my feet to see if he would get a reaction from me, and when they did hit all the people left, I’m in the records of being crazy when I try to speak up for myself now I don’t go to the emergency room anymore and doctors between doctors. They do communicate with each other because I couldn’t get an infectious disease doctors to see me in my local area I had to go to Tampa, which is 45 minutes from my house, I’m not crazy I’m sick. I’m getting your brain in a fix your brain and fix your whole body every part of you.
You are an amazing doctor. So many doctors today feel they are not adequately compensated and so they put in just the minimal effort possible. I recently went to a new neurologist who practiced closer to my home. I called a couple of times with problems that I thought were important. I was told she would return my call only if she thought my concern was important. No return call. She said she was never informed. Who knows. Mean time my old doc, takes calls as they come in. He only asks that I call during office hours. I am taking medicine that I can’t afford so he gives me samples. She offered samples but not enough. I have insurance but even with the insurance the medicine is really expensive. I am going back to the old neurologist. I have been with him since 1998. He treats me with the utmost respect. He even helped out my mother and my son when they had emergencies. Once when I needed a very specialised neurologist he told me where to go. What good is a doctor you can’t even talk to?
You are so wise, l love listening to you because l know lam getting the truth about the medical profession you are not sugarcoating it just giving it straight l have been interrogated last time l went to the emergency room for gastric issues the doctors talked to me like l was a drug dealer, it hurt my feelings to say the least , l am a elderly woman and would like to be treated like people treated my grandmother back in the day , we sure are living in some weird times can’t wait till God comes a calling and takes me to Heaven God Bless You Son for being so fair and honest in such a difficult world 🙏🇺🇸💕🙏🥰❤️🙏🌸🙏🥰🇺🇸🇺🇸🙏
Up until several years, I don’t trust the medical system but have to stick with them to keep me alive as a post transplant patient and complex history. However, to help to fix the problem regarding this video is to give them your opinions and ideas so the medical industry can incorporate if they’re willing to listen. This is what I’ve been doing and is working! 😊❤
Missed this one. My experience surgery and being the victim? Even the Doctors doing the surgery were victims. Doctors KNEW I had severe, high risk asthma before Surgery Easter 2011. I was told this in 2019. My oxygen went to 70 in the surgery. No amount of oxygen would raise it. They said my veins collapsed and had to call in a specialist to put IV back in. It was suppose to be a quick surgery and back home same day. I was there in the hospital for 3 days over Easter holiday. Very few people in the hospital and even less nurses. I was mostly alone for 3 days. Afterwards, never told why. Did I die on the table? Did they revive me? I think very seriously something very bad happened. Worst part? It was preventable and done on purpose.
I spent nearly two years in and out of the hospital for at least a year of total time (I’m under counting), and the number of medical errors, wrong medications given, and nurses crying from overwhelming stress… There was severe over crowding, mixing of severely ill dementia patients being placed in beds in units not setup to look after them… I even started to hallucinate because the constant bed alarms of dementia patients were going off 24/7 over the loudspeakers even at night… Oh and they ended up causing a dementia patient to lose consciousness, need shocked with a defibrillator and have paramedics rushed into the unit to stabilize them and take them down to the ER… All of this was because they gave an unruly frail female dementia patient wayyyy too much antipsychotic medication… It was brutal witnessing how poorly those who were unable to advocate for themselves were treated, and I will never ever ever leave a loved one on their own in a hospital!!!! I was awake enough after my major surgery to advocate for myself and yet still I had a nurse push 5 times the amount of morphine than I was supposed to have, all because the nurse mixed up my IV morphine for my epidural, they were supposed to just push more of the epidural because that was put in improperly and only was freezing one side of my body… Ugh… If it wasn’t for my old family doctor who was also a hospitalist at the hospital I was at. Well after my last procedure a few days ago I had two ballooning’s of my duodenal stenosis, as well as my gastrojejunostomy stenosis stretched by ballooning, and had a fun surprise, my biliary fistula is back… I had just had stents for a previous biliary fistula removed less than a year ago… 🤦♂️ Life is unbearable, and we have tried almost everything, plus I throw up multiple times a day, unable to keep food down, to the point I have to go in repeatedly every year to get my electrolytes back in balance as my potassium especially loves to crash to the point of my muscles locking up and my heart beating strangely…. This is all happening along with my sodium and calcium levels often crashing alongside the potassium, all due to vomiting… I have a rare case of extremely severe eosinophilic gastrointestinal enteritis, gastritis, and esophageal… It causes scaring of my sphincters in my duodenum and even my new gastrojujunostomy’s gastric outlet… Along with bleeding ulcers and small tears from vomiting so severely… I’m getting severe pancreatic pain again, and life is a living hell… I’m so weak I can barely force myself to go on my daily walk around the block… The pain can be excruciating, and the sweating from the waves of nausea is extremely unpleasant and embarrassing… Dealing with such a complicated medical situation you run into some of the most obnoxious, hurtful, and even lying doctors in my time, but also some of the best and most compassionate doctors… I think the problem is once you have gotten as bad as I am, I can look insane with pain, as I try and avoid going to the hospital as much as possible, as the emergency room is never fun because even with all my medical documentation, most doctors don’t care to take the time to read even the most basic of medical history right in front of their faces… One doctor was intentionally trying to call me crazy, and that I was exaggerating my pain, and my other symptoms… All it took from me was to look him in his eyes and then immediately Projectile vomiting blood all over his stupid white coat! Thats sure all it took to take that stupid little entitled grin off his face a when a stomach full of blood and my passed out body, now bleeding from a cut in my forehead as I hit the ground hard apparently… It’s just so sad that it takes something that severe to get these horrible medical professionals to actually be professional…. So many of these bad doctors should’ve quit after finding out they have zero compassion for patients while in med school…. I don’t remember much after hearing exactly what happened after I vomited blood all over him, and passed out… Why does it take such insane situations for some doctors to stop assuming they know what’s wrong before you even tell them anything… So many doctors who simply don’t listen, and have shut off their compassion, ability to listen, and would rather make assumptions based on their lazy stereotyping… My chronic illness is already getting really bad again and I have lost 8 pounds in two weeks, and am down to 121 pounds and I’m a male that’s almost six feet…
I had a doctor, my PCP , whom I had seen for years, come into the exam room with a medical trainee and furiously tell me it was my fault that he did not get the end of year money my insurance sends to doctors with high rates of success. He said it was because I did not get my blood sugar low enough. I was very shocked. I did not go back to him for about 18 months and asked for a referral to an endocrinologist. He refused. Now I see him twice a year only to have my two necessary prescriptions refilled. (He says he has 3000 patients.)
Went to the the ER for 1 serious thing but also requested an X-ray as I had excruciating pain in my back. Yeah we'll get ya x-rayed. I was admitted and kept getting blown off on the X-ray for a week. All they wanted to do was Tylenol. Which is crap on all my pain. Anyway it wasn't just the Drs it was the nurses and cnas. I had to threaten to call the cops n sue them before I was released. Went to the orthopedic Dr. He x-rayed. Turned out my back was broken in 2 different places. Shout out tho to the One CNA that did give a damn and try to help me
I am so fortunate to have a membership and can access my physician anytime. I would never abuse this, but I have her personal phone number. The membership fee is totally worth every penny. It is a shame that the good ones have had to resort to not dealing with insurance companies.
Ya i went to the ER because i pulled something in my lower back and had severe pain. All i wanted to know what i did or didnt do to cause the pain that was like a 25 on a pain scale. The drs there acted like i was there for drugs. In whick im already on pain meds but they were real gerks to me and my husband. Something has to change or there will be a lot of so called drs and nurses that will lose there job. Thats for sure. Thank you for bringing this info forward.
I have been getting my Dental Care at a nearby Dental College for the past few years. The care is provided by 4th year students (under Faculty Supervision of course) and always been happy with the care. Right from the beginning (during cooooviiiid 🙄) I communicated to Faculty and my then Student, about my Panic disorder (Merinthrophobia) and I was immediately exempted from wearing a mask in the clinic!! Even security know who I was and never harassed me. And my most recent student actually gave me her personal cell number to contact her if I had any problems!! I wish all practitioners had that kind of dedication!!
Another problem. Surgeons will not prescribe medications for pain relief. Surgeons recommend VERY serious operations. How can a person desperate in pain, make a good decision with good judgement about the surgery??? It is almost blackmailing the patient who is vulnerable and beaten down by pain. And, believe me, after the surgery and you are wheeled out of the OR, you don't exist for the surgeon.
If only more sets were like you. I've had Drs who get very angry if I ask a question. One said how dare you question my credentials when I just asked, do you really think my barely borderline blood pressure should be treated with meds? He walked out and the nurse asked me to leave because I shouldn't question. Recently a Dr said he wouldn't treat me for an ear infection with an antibiotic because they do more harm than help. I should just take an antihystamine. And use a me to pot. I got antibiotics from someone else
As a chronic pain sufferer (spinal stenosis, unhappy bladder, lupus…) I had been feeling rough. I didn’t want to be treated like I had before, so I lived with shortness of breath, chest pain, and dizziness for about 7 weeks. Finally someone forced me to go to the hospital, they too thought I was going to be dismissed (I was by all but one doctor). I had so many pulmonary emboli that the radiologist couldn’t count. I had bilateral pulmonary artery blockages. They didn’t mention the “wee MI” I had on the left side of my heart, nor the heart failure in the right side (but I am seeing a thrombosis doctor in a month). I am a good self (and other) advocate, but because I take pain meds, and still work full time, I am not VALUED. I was accompanied by a lawyer and a doctor on this trip to the hospital - even then we all thought I was going to be sent home with a virus.
When I had to find a new Dr. I made a point to look at reviews. I had a recommendation for a Dr. and the reviews noted how kind and approachable the office staff. I chose this Dr. as I knew any message I had for the Dr. would be relayed to my Dr.
I am terrified of seeing Any other Doctor even wonder about my GP...I can not trust these people and i have been so medically harmed both physically and mentally ...Horrifying
The surgeon who removed my gall bladder gave me Tramadol even though I insisted that I not receive any opioids. He waved away my concerns with the comment that I wasn't going to receive a "narcotic." I ended up trying to commit suicide because Tramadol causes Serotonin Syndrome. If he had bothered to listen to me in the first place, I would not have ended up in the psych ward because of his mistake. I literally had no control over my behavior because of what the Tramadol was doing to my brain.
EVER SINCE BIOLOGICAL & MEDICAL ETHICS CLASSES IN COLLEGE, THE FEW AUTHENTIC DOCTORS OUT THERE SPREADING THE TRUTH & DOING THE RIGHT THING, ARE AMONGST MY HEROES. TY.
When I had surgery two years ago the anesthesia nurse yelled at me for having a panic attack when I had let her know that I have PTSD. I shouldn’t have been treated so badly. My cardiac anesthesiologist finally called my surgeon to come help me and reassure me. My surgeon had a wonderful nurse along with him until I was sedated for a nerve block procedure before surgery.
I and many of my medical staff colleagues of color have been treated like pain seekers. I wrote to the Dept. Chief about my experience with the resident. The Chief didn’t believe me at all and defended the resident. Lesson learned is to contact the Hospital Chief Medical Officer and request a meeting if necessary.
This very thing is why I drive to a completely different town for women’s healthcare and anything major. I do have a local general physician who is amazing. But my local hospital and even my obstetrician, who was also female, were incredibly dismissive to the point of making me feel crazy when I did in fact have preeclampsia. I also feel this contributed to my sister in laws death following childbirth. I think making fun of patients is something that only inadequate medical staff does.
Dr Pearce McCarty was the only one that fixed my shoulder the bone kept coming out and the hospitol in Willmar mn , just put me out for 15 minutes to put bone back in orthopedics in Willmar wouldn't do surgery I took action in my own hands and found Dr Pearce McCarty at Abbott
I have gone to the ER with excruciating pain. I mean level 10 in my lower back. and buttocks. I was in tears from the pain and they refused to give me anything for relief even though they were sending me to x-ray for a CT of that area of my body. I insisted I could not move to get the CT scan. They reluctantly gave me a mild sedative so I would go. My sister was with me, but I was sent home with the same excruciating level 10 pain I arrived with. They did put me in a wheelchair with a script for 800mg of Motrin and rolled me out to my sister's waiting car. I cried all the way home! They made me feel like I just wanted drugs and was wasting their precious time.
Same recently happened to me. I had to have a lung biopsy for deep breast cancer in my chest wall. They made an incision on my throat, pulled forward on my ribs and took multiple samples of my lymph nodes. When I asked about pain meds the nurse said go home and take Tylenol. I felt like a horse had kicked me in the rib cage. When I had my mastectomy later I made the doctor swear on his life that I would get pain medication because I feel like they think everyone’s a drug seeker and just let you suffer even after serious surgeries. It’s inexcusable!!
At this point I just don't want a Dr. that RE -victimizes me. I won't tolerate complete lack of empathy, condescension, not listening or any form of ridicule. Errors are bad, but the attitudes are inexcusable.
Agreed!!!
@@Silenceisconsent Yeah that sounds about right. What really annoys me is that they find the notes from the doctor who doesn't listen and just gaslights, but everything else doesn't exist. I had a surgeon say that I needed an EGD, UGI, ph test, and esophageal manometry before seeing a surgeon. Literally had all of those done...she just didn't bother to look.
I agree completely. 👍
@@Silenceisconsent good luck with Mayo. They used to be great. Not so much anymore unless you are a wealthy and from the Middle East.
I have been in healthcare for 23 years, it's saddening to see the trajectories to failures and profiteering
It's been happening for far too long but the last few years have been a nightmare...
IT'S BEYOND THE HORROR OF A NIGHTMARE. THAT IS NO EXAGGERATION.THEY DON'T EVEN PRETEND TO CARE.
@@incognito595 So true, and it may actually get worse. Ethical scientists do care, but determining who's trustworthy isn't easy and impossible under certain conditions like hospitalization.
Thank you for your honesty. You see it first hand.
I saw it just working for eye surgeons. I see it with other doctors too
I love private health care in Mexico. My first visit with the cardiologist lasted 70 mins while she sat with me and went through my file, hand-wrote my family history of cv disease, did a carotid scan and ekg at a first rate hospital. It cost $35.
WoW that's nice to know, very encouraging too. Viva Mexico ❤
❤
Wow!! that is a dream come true
Wow wonderful
This outrageousness runs down to our animals healthcare too. Over 1K for dental cleaning, 70 dollars for a checkup(but is never just a checkup) and $186 for 6 months of EFFECTIVE flea treatment. 😭
I've been gas lit so often, and have tried to self advocate, and get treated worse. I truly appreciate your channel and advice, and wished I had met a doctor like you in my life.
Yes when a person self, or even 'other ' advocates they are labeled argumentative, difficult, and one of my favs > non-compliant.
And the 'treated worse' is palpable.
Happened to me again on Tuesday after I asked what could have happened during cataract surgery that had an outcome for me that was painful and took a month to improve. That doctor didn't even do the surgery but it wound up sounding like they were friends. The blame was placed on me and I was unconscious during the procedure. Their voice kept rising and I finally cut it off and said that I didn't say anything derogatory against anyone, I just said that it was an awful experience for ME. More gaslighting and accusations by then followed. Just a horrible experience all around.
I've been complaining of earaches, especially when any air gets blown in them, cold or warm, and some swelling on the bones behind my ear. My latest GP, who I've complained about this issue to for a few years, finally said, listen, I'm not an ENT, you need to get one. I asked, could you at the least please look in my ear and see if it looks ok. You would have thought I had asked him to wash my feet.
I mean you can only self advocate and do so much but nothing will happen if that doctor just doesnt want to treat you. After self advocating and they still dont want to treat you then you self advocate by going somewhere else .
That's the truth! The more you advocate for yourself, the worse the treatment is. How could YOU possibly know your OWN body? Gasp! They are so arrogant!
I have a very symptomatic fibroid that has caused severe pain and bleeding. It has been a nightmare. I was recently diagnosed with a DVT. I told 2 ER doctors, an urgent care doctor, 2 OBGYNs, and an advice nurse that stopping birth control was going to cause horrific bleeding and I was already severely anemic. I asked what I should do and begged for help. They all treated me like crap and like I was silly. They apparently know more about my body than I do. They said I was worrying for nothing and that I didn't know that was going to happen. Less than a week after stopping the birth control I was admitted to the hospital and had to be given blood transfusions.
They left me to suffer and treated me like I was some stupid hysterical woman. It is ridiculous. They had zero compassion.
Shout out to the medical records worker who accidentally sent me a copy of the messages sent between my doctors. Now I know just how much my doctors dislike me.
Why be a doctor if you think only certain people deserve help?
Its not only ridiculous, it goes directly against the hippocratic oath and their function as a healing professional. Its not you, its the insurance and profit based medical industry, but the ultimate responsibility still lies with the MDs themselves. I have changed MDs prior to surgeries for this behavior and had to wait another 6 mo, but you are dealing with short time horizon, dangerous conditions so didnt have so many options Dont keep blaming yourself its not you
@@jpslaym0936thank you
The practice of gynecology was developed by white men experimenting on black female slaves and its still like that. Your pain is not real your opinion is not relevant be quiet and take it.
😥
How dreadful for you! Awful to see in black & white exactly how unkindly & meanly your doctors had spoken about you.
Sorry that you went through such traume
You totally hit home with the chronic pain. I have so much going on, Fibromyalgia, IBS, probable chronic fatigue, migraines, lymphocytic colitis, plus and then add the mental health issues, PTSD (childhood onset), dissociative amnesia, depression, panic, and this list goes on. Cymbalta and Celebrex are my pain meds and PTSD meds with Topamax, Aimovig and Sumatriptan for migraines. I’ve given up going anywhere for pain relief even if my pain level is climbing up towards 9 or 10 or more. I’m allergic to non-synthetic opiates like morphine. And I can’t get any real pain relief anymore. I’m treated like an addict seeking a hit. So I just stay home, soak in the tub, then crawl under my weighted blanket with my service dog next to me and cry.
Have you had the DNA gene metabolism tests to see what medications your body can metabolize good?
Same here going on 5 years. Writhing in pain every day. I'm so sorry for you because there really is no worse feeling. ❤
I feel your pain. I can so relate. I am so sorry that you were going through this crap. My pain doctor beats me and yells at me before I can even respond. He’s a big bully and I don’t know what to do.
@@michelletoler1528beats you? Can you change doctor?
I cant find anyone to help me with chronic pain. I was even chadtized seriously by a professional while staying at a nursinghome after major surgery, for taking too much tylenol. Five years later, still no help. I take lots of asperin. Around sixteen a day. I only can just make it in and out of wheelchair be ause of pain. I am so fed up with today' s attitudes. 😢
When I had a hip replacement, my nurses were extremely sympathetic when I woke up in a fright. They helped ease my anxiety until I was better. And were watchful the whole time I was there.
Unsung heros of health care!
20 years of psychiatric misdiagnosis for get this: Hypothyroidism, Type 2 Diabetes, and an Eating Disorder.
But they were more than happy to prescribe psychiatric medication, electric shock therapy, transcranial stimulation, and a whole slew of other atrocities and abused.
Glad to know u felt this way also I just pushed for a MRI.they found a avm
As for hyperthyroidism, you would only need iodine, as in my case. I was on meds 100mcg daily for 5 yrs, and then the Lord led me to Lugol's solution iodine drops. I took 5 drops daily and my thyroid started producing my own thyroxin. Within months i was off meds and still am, 4 yrs later. Feeling great. I am 71.
In my case my blood tests were always normal, but i felt bad. I googled it n found out 30% of ppl who have hypo test normal and science doesn't know why. I was one of them.
Best way to see if you are hypo is to take your basal body temperature every morning as soon as you wake up BEFORE YOU GET UP. Normal is 36.2°C mine was 34.2 or lower for an entire month. One week is enough to do it. I was also cold most of the time.
Iodine is a must for thyroid function and all other glands. Prevents also cyst formation and is given to cancer patients. Boosts immunity.
When i told my British educated gastroenterologist about it, she was shocked. She said they don't teach them that in medical school. Of course they don't. How else would pharma mafia otherwise make a fortune, if iodine is a cheap fix for many health problems?
Google Hypothyroidism and also dr. David Brownstein. There are many videos about iodine.
It is all about millions of dollars commission from Big Pharma.
Did a Psychiatrist dx your hypothyroidism, type 2 diabetes? Why on earth didn't you go to your primary doctor or GYN? Did you just go to your Psychiatrist for AN eating disorder and he just had you get blood work to see if your thyroid was to low and to check for diabetes?
I had gone to my PCP and OB/ Gyn. The problem was that the system of care I was in was grossly inadequate. When I got my full medical records - including psych - and those records were evaluated by a higher level of care, there were major red flags that came up. Some things just didn't make sense. Why wasn't my thyroid and A1C being tested if I was on certain medications? Why wasn't my PCP referring me out to specialized care? I chose to go out of network to a different city to a better system of care. The providers I have now are much better educated than the previous ones.
Omg, this really hit home. I was rarely sick, so I didn’t have much interaction with doctors. When I got cancer 2 years ago, I was shocked at the lack of “care” in my care team. I am one of those people who won’t open my mouth or stand up for myself. I also have panic attacks around doctors so that doesn’t help either but I can’t help it. I met my oncologist and radiation doctor and thought I’d be taken care of…I was not. I was in horrible pain from my large tumor, and the first attempt at my surgery failed because the oncologist didn’t realize how much it had spread. I needed chemo and radiation before they could try again. I was never told about any effects, whether short term or long term. I told them about my pain from the beginning-and it was daily pain where you’re shaky and nauseous and can’t think straight. I wasn’t given anything to help, and the treatments just added to the pain. I was honest about my mental struggle…again nothing. I was hemorrhaging but they thought I was over exaggerating until I went to my family doctor and my hemoglobin was 5 and he sent me to the ER for a transfusion. Twice I had infections that they blew of my symptoms when I told them. They made me think my symptoms were normal side effects of treatments and I didn’t know what was normal or not anymore. Again, it was my family doctor who diagnosed the infections. I realized my cancer doctors were there to order the treatments and do the surgery, and that’s where their care ended. However, by keeping me weak, I had nothing in me to fight effects. 2 years later, I have very little quality of life. I have developed severe PTSD where I relive everything all day long, every day like a movie playing in my mind. The day I was discharged from the hospital after surgery is the last time I saw any of them. I never went back for any follow ups. They did so much damage to me mentally and physically. I joined a Facebook support group just for my type of cancer and there are 7000 members. So many of them had doctors like mine and patients are suffering. On a positive note though, all the nurses and radiation techs, and anesthesiologists, and techs who do imaging tests, are all wonderful and caring and comforting. And you are amazing! 🙂
So sorry to hear this. Keep listening to what others say in regards to who they feel is a good compassionate caring Dr. Don't give up you will find someone who is good soon. You deserve good care & to be heard treated fairly & well. I know exactly what you mean but will give praise when due if deserve. I have been very lucky met right medical people right time & thank God forever as if hadn't crossed our path at those time my Husband would not have survived as long as he did. Keep being honest don't change someone you meet will lead you to right people ❤ Believe me there are some really good Drs out there I hope you find 1 real soon & get right care/treat you justly deserve. Best health for you 🙏
Before I share my personal experience; have you tried EMDR therapy? It can help people with PTSD process trauma so it stops invading their daily lives. ❤
We had a similar experience when my late husband was diagnosed with cancer. The doctors straight-up lied about whether they could tell if his cancer had spread or not; like some kind of conspiracy; performed incapacitating, useless procedures, and in the end, when he was dying in 10/10 pain, still wouldn’t prescribe narcotic pain meds. The nurses, however; in the hospitals, those who visited him at home, the hospice workers; were almost all wonderful! The only exception was one who didn’t check his fresh surgical wounds or show me how to care for his new feeding tube, resulting in a serious infection. All I can say is you basically have to be your own doctor these days, and you may not be supported in getting proper care even if you know exactly what that should be! 🤦♀️
@@misspat7555 I will look into the therapy you mentioned…thank you! I’m sorry about your experience too. There is so much I found out and realized after everything was over and done. I know now you have to speak up and be your own advocate. It was hard when I was going through it because they were rushing to start everything and I was so sickly. It’s not fair to have to be on top of everything too. It was just such an eye opening, disappointing thing to realize I couldn’t have trust in them. ❤️
@@jangriffin-fi1yx Thank you so much! There are some very caring healthcare providers…I just didn’t have the ones I needed at the time. Plus I was so sick that everything moved very quickly, and I didn’t have the time to change. I have a wonderful family doctor who stepped in to help when they were ignoring symptoms. I feel on more than one occasion he saved my life. He said he hated stepping on other doctors toes, but he was shocked how they were letting me go downhill. I realized how quickly things can go very bad. I am grateful for my family doctor every day. ❤️
I have found Anaesthesiologists to be so kind and supportive. I really like this group of Specialists.
Plus, since I have So Much wrong! FIBROMYALGIA (All In My Head) NOT!!!!!!!! Plus, PTSD,CFS,PANIC, 2-HERNIATED DISCS.,KNEES BONE ON BONE, DEPRESSION, NEED HERNIA MESH REMOVAL (KEEP POSTPONING IT. CAUSE I am Nervous about it. Retired NURSE. I know what happens during Surgery. 😢
That's scary to see,that you are a nurse and know all this😓...CAN I RECOMMEND A BOOK FOR YOU THO? I BELIEVE IT WOULD BE OF GREAT HELP TO YOUR LIST..."HEAL YOUR BODY", LOUISE HAYES,ONCE YOU SEE THE MENTAL THOUGHTS AND COMPARE THEM TO THE PHYSICAL CAUSES...YOU WILL PROBABLY CONSIDER A CHIROPRACTOR OR MASSAGE THERAPISTS,FOR MANY OF YOUR ISSUES,THE MESH IS ANOTHER BALL GAME.
❤ disabled nurse it’s worse when you know. Sending love
You are a godsend, Doctor. There are NOT MANY LIKE YOU. TRULY. VERY FEW.
I have been to the emergency room, on at least 3 occasions over the years, where my pain concerns have been completely dismissed. Finally able to be seen buy a pain management specialist, only to find that I have degenerative joint disease, and degenerative bone disease in my entire spine, and feet. I could have gotten a relief 20 years ago, if someone had taken me seriously. Thank you so much for your videos! You give so many of us hope
Or they give you 2 Tylenol I have my own pain meds I don’t need theirs it’s for a ocular migraine that won’t stop
Thank you for talking about this subject. I know it's not just a battle my husband and I have been fighting. It's a battle soooooo many have been having
My husband was victimized when he was put on the vent to save his life from the Delta variant of Covid. He was put on the vent against his will, I was lied to so I could make the choice for him, and when they pulled him off of it 7 days later he was made to smell his own feces, he was starved for days and days and he was talked to like an abusive parent would speak to their unwanted child. There are even notes from a doctore on his chart begging them to put him on a feeding tube because days and days later they still had given him nothing. Now he has nerve damage and subsequent pain due to impropper proning and damage in the top of his lungs from the vent being forced. He remembers through the sedation the multiple tries to vent him before they finally was successful. Of cours, I had Covid too and even if I didn't I wouldn't have been able to be there. They wouldn't have allowed it.
Another time I took my husband to the ER for shortness of breath when he had the flu. He hadn't been diagnosed with it but our son and I had and after his issues with covid and the vent, we decided he needed to be at the hospital. When I got there, they took him to answer screening questions and then basically tried to kidnap him because they asked if he had any thoughts of suicide and he said he wish he'd died when they put him on the vent but he's there for care so he doesn't. Instead of understanding of asking followup questions, they freaked out, threatened to sedate him and keep him there. They wouldn't even let him leave. When they finally let me back to be with him, he was out of breath and trying to leave. I tried to find him a chair so he could sit and catch his breath but they wouldn't allow me, they wouldn't allow him to leave. I had a nurse screaming in my face they whole time, they called the police and at that point ushered us into a small "holding cell" for a lack of better words. I had to calm my husband, the cop, and the smart assed snarky doctor down.
All of that happened between August 2021 to November 2022 and since then we both have very little trust in the medical personnel in our area. We're in North Western KY/ Southern IN area
I am just beyond appalled at what happened to your poor husband by medical professionals!!!! Dear God it's almost Beyond Frigging Belief!? Please Report this to the Damn medical board!!! And also do your best to record or document any and all interactions. Use your smart phone to have some actual Proof of what's being said and done!! Horrible, ABSOLUTELY Horrible treatment of your poor husband!!!!!!😠
As someone who is on the autism spectrum, it's difficult to know how you are feeling or how to express it to the doctor, especially when it's hard to even speak. Just getting to the appointment is upsetting and nerve wracking. I never sleep the night before an appointment. If I feel like this, I can only imagine how many more do. I literally cannot speak and it's awful just trying to act normal and make eye contact when you'd rather crawl under a rug. I feel rushed at the doctor so I just deal with things that I am already getting treatment for. I wish I could just hand the doctor a note and not even have to speak. I feel bad for the old people or people like me that maybe need a more sensitive doctor that can pick up on things and try to make it easier for their patients. I only respond well to kindness, as I'm sure most people do.
Change doctors until you find one you like and understands you.
@@jenniferlong808 I know that it seems that logical and simple. It's just very difficult to communicate for me. I write great, just fine, but to speak my mind I just become confused. I have this brain to mouth disconnect. I don't have the energy at my age anymore. I've been through a lot and am burnt out on life and people I guess. I've stayed with a PA for years now because I feel the most comfortable around her. She's great, but I've needed a doctor for more specialized care for all my health issues. I don't have the energy to hop from doctor to doctor. Just one appt is so mentally draining, even to see the one I like. I suppose I sound like I'm whining. I'm great with animals, not so much people.
Take an advocate with you at all times. It’s not fair to you to be so uncomfortable going to a physician.
Why don’t you write what you want to tell the Dr and take it to the appointment?
Perhaps write an email or letter, or have someone do that for you, to your doctor prior to your appointment, describing your problems, symptoms, questions, and whatever else the doctor needs to know to help you.
Respect you taking on this subject. I'm a hospital RN and can attest to what you are commenting on. The ER often blames the symptoms (esp. if they can't find the cause) on the patient, the love the psychiatric card. I had a nurse friend get a wound infection and the surgeon asked him, "what did you do?". It's true.
My medical care has really deteriorated in the past years. It's unbelievable. So bad , I feel I can't even tell my unbelievable stories. I wish I had a doctor like you. I Think the doctors are too busy to even care and their under pressure not to order tests to save money. You need to be beyond help, to qualify for a test. Example: I had serious hydronephrosis far a year , suffered greatly before anyone did a test
And I complained to several doctors.I had to go to work with all of this discomfort and fevers.
There is a very dark cloud of corruption over medicine. I have had severe R sided back and groin pain for 5 years. First diagnosed as piriformis syndrome, than sacroilletis. Injections and PT didn't help over 2 and 1/2 yrs. The doctors jumped to recommend a Sacro-Illiac Fusion -- a horrible surgery and 2yr recovery and that often results in new pain that is chronic. Then a neuromodulator implant!
I saw new doctors who asked me, "What did they think about this L5 disc? What did they think about this hip arthritis and
labral tear? ". I was told by the previous doctors " It does not look that bad on the x-ray". Talk about gaslighting! And I sadly believe, corruption. There was a conflict of interest and primary gain for the surgeons to do a massive surgery to implant pricy prosthetics and devices IN YOU BODY. L5 injections and hip joint injections have finally achieved some relief for me. I could have been completely debilitated by now and turned into a permanent severely ill patient. Almost 5 yrs of my life wasted, in pain, as it is.
Try Earthing for pain management. Acupuncture also works.
Nerve ablation for pain relief might help.
An excellent presentation of critically important truth. Recently, being sent to the ER desperately needing electrolytes and other help, I never saw a physician. I called the Chair of Emergency Medicine (whom I knew) with the Trauma Level I hospital from where I had retired. That was only one of several substandard experiences. When, during tine out, I corrected the nurse who had made many errors in my allergies, and immediately, I was sedated!
I’ve had 3 direct relatives who died in hospital care due to negligence (one being my Mom). They spend more energy trying to avoid being held responsible than caring for their patients
Have you heard about Jean Descamps at Providence Milwaukie Hospital ER? Jean was actively dying when doctors and nurses decided he was faking it. They called police to pick him up. The officer asked them twice "are you sure?" The police took Jean to a psychiatric hospital but in removing him from the back seat, they realized he was already dead. The officer proceded to do CPR. He really took more care than the medical staff, but it was too late. The 26 year old young man passed.
😢
Horrible.
Doctors are sick individuals.
I think they are psychopaths, sociopaths to be honest.
Dumb as f#ch also.
I think...the best thing you can do is just study yourself, read, read and listen to podcasts to regaining health as changing lifestyle and see what makes you sick.
Changing diet.
Doctors are arrogant, dumb ( sorry, but this is my observation ) and do not care. Plus, they are following orders from above, which do not benefit people.
Yes... They apparently didn't want him to die there. The man who said it was purely a behavioral issue was obviously in a personal hate situation with someone who has become an addict. He should not serve the public in this manner with that chip on his shoulder
They all need to have a very important thing. Called. EMPATHY
The policeman, at least, tried.
At this point in my medical journey I'm very lucky to have the specialist I do.My shoulder surgeon is one of the best surgeons I have ever seen.He sent me to his elbow surgeon for my cubital release being done in a couple of weeks.Both of these Drs have great compassion and speak to me as an equal to them person.I am a complex patient (hEDS,Chiari,BIH).It means so much to me at this point in my life being respected and listened to.
I live in Hawaii, my name is Suzanne and I love your advice.
Ty Dr.
Às some one who has had cancer, every time I go to a Dr ( new) I get questioned about my allergies and why I am so many medications! I have to stand up for my self all the time
What does a patient do when they are completely gaslit and abandoned? I’ve worked in the medical field for 30 years, 16 of those in neurosurgery, and I’ve been through 14 necessary brain surgeries. I could literally be the poster child for this Live because of all the medical gaslighting and PTSD I’ve been thru. My last brain surgery was to remove a mass in my brain, and then I was fired from my job while in the ICU two days after my surgery. I deeply regret giving my life to the medical field now, and regret having the mass removed. I went into medicine to help people, and I’m deeply saddened the care from health care is gone.
I am deeply grateful for this this video and this dedicated doctor I have been abused so much in the medical profession due to many factors. It is absolutely lovely to have someone with a heart and intelligent awareness speak up and empower people to help the doctor help them
I'm currently in this situation. Went to ER for breathing issues. I didn't want to burden anyone ,especially not the ER. I ended up having pneumonia, acute Bronchitis, rhino virus. The 2nd day of my hospital stay they were already trying to get me to say I was ready to go home. I felt so much like a burden to them. 6 days later, I was sent home. My left side was killing me and Noone seemed to want to address it during my hospital stay. Currently at home and in so much pain. I'm afraid of going to the ER because of the treatment I received the last time( 1 month ago).
I do have an appt at the end of this month with Dr. . It's a long wait, but I'd rather suffer in silence than have the last experience again. I am tears watching this video.
Thank you for exposing this . God bless you
I have to admit that I've always had amazing experiences with anaesthesiologists. Very responsive and effective!
Same here. Every single one has helped make the experience less worrisome, and they seem to have great “bed side manners.”
I love that I can contact my doctor via email through their app. I also love that he knows he doesn’t know everything, unlike so many doctors. It’s been a 20 year journey for me to finally figure out what’s wrong with me. I had to study myself and ask for the tests.
You're a very wise young man with a good heart.
Thank you for making this and similar videos.
I have had chronic pain for almost 20 years now. I have been thru many of the challenges with the health care system mentioned in this video.
I would love to hear you talk more about chronic pain in a future video-hearing about new advances for CP patients would be great since I have been dealing with it for so long.
Thanks again for the helpful content!
You are such a blessing! Surgery is scary! So interesting to learn the meaning of the word victimisation! 😢.
17:29 Very pertinent question. I have had TWO "simple, routine" biopsies that turned into horrible long term health nightmares. One was at U hosp in Denver where I was told I had stage 4 cancer (untrue), other was a private Dermatology practice in Pueblo. Both were extreme and radical procedures, and when I went to other doctors for help afterwards I was told they were "butchers", "shouldn't be in practice", and that they were "cocaine users". I couldn't find an atty to help w/out $85K upfront. Both doKtors are still in practice butchering people and protected by OUR insurance companies, medical industry, and attorneys.
Attitudes from 98% of the physicians I meet are deplorable. I'm a medical professiona w a PhD, l but STILL get talked down to, get refused to have my questiins answered, or get told (just this week) ,"You're just sensitive!" I looked at my neurologist this week and said, "Sensitive? That's not a very scientific explanation for pain from hypoxyapetite crystals on my superior rotator cuff". Then the doctor refused to explain what a Martin-Gruber anastomosis was, which I have in my arms. They ASSUME I don't understand, so they ignore my questions.
And EVERYONE assumes you're a drug seeker. I won't even get into that.... Grrrr.
I think mostly drs are terrified of GOOGLE!! Just Google it! Answers ASAP🤣🤣🤣🤣
Sometimes they don't explain, because they don't know.
AGREED 👍 🤝 I found that out when I got cancer
@@JaneJones-uh5le then they should say that. But their ego prevents it.
@@loribryant884 🌹
Chronic pain patient here. I'm very careful not to ask for pain relief at the ERA for fear of being labeled as drug seeking.
I had a broken tooth for a week before a Dr/Dentist was able to extract it. Asking for a stronger pain med than what's available over the counter because those weren't working , I was met with resistance and a feeling that the GP Dentist and the dental surgeon thought I was a opioid seeker. I know to some this is a minor inconvenience but it seems like the Dr's now a days take pride in being ultra conservative in their approach to pain relief much to the non drug seeking ,for nefarious reasons, "normal" patients suffering.
As the pendulum swings so does the drug market
Most of that is due to government interference. The amount of paperwork a doctor has to do to justify giving you a few days worth of hydrocodone is absolutely ridiculous! Their licenses can even be at risk if the government feels they were a little loose with their prescriptions, without the government knowing the slightest thing about the patient whatsoever.
Absolutely. It took them 2 weeks to see me. When I called,in tears, I was told “I am sorry you are experiencing discomfort. You can take Tylenol or Motrin until your appointment.” I was way past discomfort and even begged my husband to grab his pliers and pull it.”
I also had a hysterectomy. Never saw the doctor at all, not before or after. It was not explained how she was going to do this ie vaginally, laparoscopic and I was sent home with 10 Tylenol 3’s. Worst pain ever. Their response, sorry that is all we are allowed to give. The list goes on and on. I worked in the medical field for 14 years and have never seen such blatant disregard for patient care.
As a last ditch effort I went to the ER for possible heart attack/angina. I was given an EKG and blood draw. 5 hours later after suffering intense pain, I walked out. I have completely given up on the medical field. I am 58 and have lived a pretty good life. Whatever happens, happens.
I was told pain meds don’t work before you have surgery when I shattered my wrist. Lol! That’s not how pain meds work.
@@jameswhite6986 this entire drug crisis was brought on by the pharmaceutical companies and the physicians that were getting kickbacks for using and prescribing these narcotics, so now the people have to suffer, as a nurse I was forced to give drug addicts narcotics even when I knew they were not in pain, so what they are doing now is called cover your a$$ medical care, has nothing to do with patient care it all about the physicians
I went to the closest emergency care for a stroke. The office check in told me to sit and wait. When I persisted they suggested I drive myself down town to the hospital.!!!! Finally, someone took me for a scan. I was sent to the hosp. by ambulance with 3 strokes.!!!!!!
I think Doctor K, I would feel safe with you being in my care in the next surgery. Right now, the fear factor for the next surgery is off the charts. I keep asking WHY? I get crickets. By the way, the pacemaker I have is running out of battery life. I keep saying I will do NO surgery of any kind until I know why my oxygen goes to 70. I think the Doctors in the next surgery should know. I should know I will be safe.
Hi Dr.,
Years and years of gaslighting bc of my chronic mental and physical condition. Diagnosed conditions. Being an Austistic female diagnosed in later life doesn't help. Hope has been hard, and I'm really lost. It was accidentally revealed to me that some random nurse in the ER who randomly notated a diagnoses of: facticious syndrome. WTH?! I spiraled mentally bc of it. I've been fighting hard to get better, and when anyone, henceforth, sees this in my charts, NO ONE will believe anything I say! I learned about the syndrome. Not only is it so not me, but the diagnostic procedures were not used. They won't let me know the nurse so I can speak to her, ask her "why?" I really am trying to be open. I do understand the mind-body connection for. But not facticious syndrome at all! My chart is ammended, but I'm still worried and angry about the ease of it getting into my charts. The ammendment doesn't make it disappear? I want it gone. So many of my providers admit that I'm a complicated case. I hate it, but they're not wrong. Anyway, I've been slipping through them cracks for years wo anyone advocating for me at the level that I need. What do I do? I'm so exhausted and hopeless and I feel like my providers don't really want to help me find good solutions... for years and years. I'm sure it's common, but I'm running out of resilience and strength. I know I wrote a book here. It's rly tough for me to becsuccint aboutbmyself. I'm glad I ran across your video, tho. You'll likely not see this or reply.
I had to try. Thx for your channel. It's unique.
Just fired a cardiologist for not listening to me.
I got misdiagnosed for years for having bipolar and borderline personality when I actually found out I have anxiety, ptsd, depression, adhd combined type and autism. hard to find the right doctors that are willing to help. some say i have too much and the dr dont have enough time even a pcp.
I wish every doctor was as empathetic and patient as you are👍🏻. I see that as a VERY Important part of the practice😊!
I'm in the UK I've had Dr's refuse to give me morphine instead giving me IV paracetamol, seen them google my genetic illness or ask me what treatment they should give me as they have never heard of it, been told by an anesthesiologist in the pain clinic he could do 6 appendectomy surgeries on what I take in 24 hours - it is scary having a long term health issue that causes chronic pain wondering which Dr will treat you and which will label you a drug addict and ignore you
I really need you as my doctor!
Wow 🤗 you are Amazing Doctor straight talking 🎯 This also applies in Dentistry when a person needs to take care of dental health and they don’t. Many catastrophic outcomes when a tooth or teeth are infected and bacteria travels to heart 💜 Make sure you advise the doctor if you’ve had recent dental procedures like Root Canal 🦷. Maybe you can address this! Hard to find a good dentist or doctor in Melbourne FL!!!💜🤷🏻♀️
I was admitted to hospital with urosepsis. I knew nothing about the condition and was so sick I couldn't even ask. There were no beds available so I spent 5 days and nights in the ER hallway. I was terrified and felt just like a thing and not a human being. I was traumatized. After I was released and home again I continued to feel fearful that the infection would return and that I would go through the same experience
I love this channel. Much to learn and help people feel confident. Just had gallbladder removal surgery last week and to have an anesthesiologist who truly cares is a game changer.
I reported an anesthesiologist after he told me the Propofol would and I quote "it will really, really ,really hurt" but did not add any Lidocaine to the medication. I was told I had adequate care but the pain but unbelievable. This was the same doctor that refused to turn the lights down for me, would not allow me have headphones on and was annoyed because I needed an extra blanket. The nurse manager of the department told me enough to file a report but all he got was a slap on the wrist, I'm just thankful I was only having a short procedure. Also he told me he didn't believe in redheads needing extra anesthesia and I needed to grow up.
What an arseh@le.
Sorry, but he is.😢
For cataract surgery I needed twice the amount of anesthesia/sedation, my anesthesiologist said. I took care to tell him I was a redhead even though my hair has turned blond with age.
Thank you for understanding and articulating this. You’re a trailblazer. I hope other MDs are paying attention.
I lived in Massachusetts and the medical care in that state is unbeatable. I miss that. I moved to South Carolina and medical care here is horrible. I had a stroke and the neurologist assigned to me had me come in for follow up in a week and he told me he never wanted to see me in his office again and the only way he would see me would be in the ER.
you told us what you didn't like about South Carolina but did not elaborate on the system in Massachusetts except to say you liked it.
I live in NC now and lived in MA for 10 years. Great care there! Recently my husband and I decided to buy a 2nd house there because of his job ( long story ) and guess who has an appointment at MA
General in June? lol
Report him immediately
Thank you Doctor for speaking out on this topic.
Most people in pain want to get better. They want the problem cured. Fakers dont want to get better they just want meds. A sincere person in pain wants the source fixed.
The problem with someone who has been suffering from chronic pain and other symptoms that they have been experiencing for a year or more and they are actively seeking treatment from specialists and the primary care provider and then directed to go to the ER ….then this person will avoid going to the hospital because of the poor treatment and attention they receive from their past experiences with the ER, they can end up ignoring something that is really serious. Or when they are finally convinced to go to the ER because of how sick they are they can still say and show everything that they have to get attention to their symptoms and ask for help from every perspective that includes pain management or not and they can still be treated like they are invisible, not worth their time and effort. I think doctors are responding to addicts who are just lying about their situation by going overboard with the ability for them to be there for those people who are so obviously in need of their help
I had a fabulous anesthesiologist / pain mgmt doc for over 12 years. I have spinal injuries (with other comorbidities) and was at a daily MME=345. Had to find a new doctor this year when mine had to move for family. Currently at MME=180, but now have lymphoma & bone cancer (intermediate stage). Have been trying to impress upon him I am not getting pain relief. Have burned the hell out of my stomach on ibuprofen & Roboxin. Trying to find a new doctor, but until then HELP! I feel that if a pain management doc is an anesthesiologist as well, they are more knowledgeable and more reasonable.
Love your videos, and I wished that I came across them before I had my laparoscopic hysterectomy 3 weeks ago.
I can relate to so much of this. I had awful experiences from NHS maternity 16 and 10 years ago. Felt coerced into interventions that I didn't want or need. I lost trust in the medical profession thereafter.
I've been avoiding drs since then, until I was forced to seek help after becoming ill 3 years ago. This has led to where I am today.
The whole process has been triggering. I was shaking and crying before being put to sleep. I'm so glad that I was put to sleep in a separate room to the theatre.
Overall though, this time round was much better. I was listened to. My bodily autonomy was respected, and everything was explained to me, which was lacking in maternity. The surgeon gave the option to walk away at the last minute. I didn't walk away. I've been ill for so long, and in pain that I wanted my life back.
I'm ok and recovering well, and I'm due to go back to work for a few days next week.
I have learned to be a good self advocate with narc Drs because I lived with one (a pharmacist) for many loooong years. My number one warning is to NOT cry, no matter what. The second is to not be accusatory in the least-be very respectful, no matter what. Encouraging a “what can WE do?” team attitude, it works for most Drs.
The worst gaslighting I receive is through my pain mgmt Dr. I asked when my last MRI was. He said 2 years. I told him my pain was worse than 2 years ago and asked for a repeat MRI. He said he’d repeat it if it would make me feel better. I said thank you. When we met for the MRI results it turned out that ligaments in my hip were shredding / tearing in a severe way. Including a bursa. He didn’t say he was sorry for discouraging me to have an ultrasound but he did admit there was nothing he could do for me but send me back to the surgeon who referred me for impingement I see him this week. I feel very empowered.
You explain things so well, thank you so much!
I’m here! Thank you for what you do!
Health systems speak mission statements... Hold them to it! Use their words to empower yourself to be heard!
You help a lot of people!
I was misdiagnosed so many times and ended up having my first rib removed.
Why was your rib removed ?
@@foreverglow5685
The doctors thought the I had thoracic outlet syndrome. The nerve gets wrapped around the rib. They planned on taking the other side, but I didn’t let them. I knew that it was mistake when I woke up. The surgeon said it was really bad, but I didn’t believe him.
June 2023 I experienced the worst pain I ever had I couldn't sit took 5 ambulances in 10 days to ER. Yes I have chronic pain. This was different. I could barely move. I was told to SIT in waiting room 12 plus hours of course I couldnt. Left and tried agsin a surgeon said the pain was anxiety pain. 10 days later I couldn't lift my chest off bed. Called 911 bleeding. I was septic dx with a rectal abcess. Operated on and a year later I am finally recovered. Another prime example of this is the Lisa Edward's case who went to 2 hospitals with stroke symtoms and was discharged finally having the police called and 1 hour tirade of multiple police officers unable to move her failing body into the police van. She was left to urinate in the Gutter with officer standing around cracking jokes in front of a hospital. They mustered up the strength to slide her into back seat of a cruiser laying on her back her breathing already compromised succumbed to the stroke. Shameful
I injured my L knee last yr. MRI showed a complex meniscus tear, Baker's Cyst I bone contusion and had a partial meniscectomy, 10 mos. later I injured my R knee. I can't believe it! Not another nightmare injury .This is more painful.! X-ray shows no fracture & no significant arthritis. What does my ortho say? It's a underlining degenerative issue. He refuses to believe I could injured both knees in 10 mos. He gave me a cortisone shot and 48 hrs. later I could not stand on my leg and terrible pain in the knee. It's been almost 3 wks. and it keeps getting worse. Last wk. I went to the ER to see if I had a DVT. D-Dimer test was neg. The PA gave me Tramadol for pain, I never asked for them, but, was glad. Tomorrow I go back to see my ortho, and I will tell him his 1st diagnosis was dead wrong. I did indeed injured my 2 knees in 10 mos. I cannot go thru another yr. of pain & agony. I could scream. I cannot walk w/out walker and didn't need it before the cortisone shot.
Its actually common and very easy to injure your “good” knee when trying to avoid pain and putting weight on the injured knee
@@jpslaym0936 Correct! I was trying to get off a low bench and b/c of the surgery to my L knee, I was mainly using R knee. It took me 4 attempts, it keep slipping out from under me. W/in 5 min. I knew I had injured it, but, was in denial. So stupid of me, I could just scream!
Thank you for being so sound minded!! I work in the emergency area and there are as you say so many wrongs and errors done against patients and I’m really really concerned!
This is so healing. 🙏
Thank you.
So much.
I am happy to see something like this in a doctor talking about this especially for chronic pain patients. I have multiple issues going on starting off with limes disease in 2002, and then being in black mold which compromise. My immune system brought out my lime, and a dormant herpes zoster, I’ve been to the ER 19 times. I had a heart attack with my blood pressure 184/102 not able to move my body to have a doctor stick a pain in the bottom of my feet to see if he would get a reaction from me, and when they did hit all the people left, I’m in the records of being crazy when I try to speak up for myself now I don’t go to the emergency room anymore and doctors between doctors. They do communicate with each other because I couldn’t get an infectious disease doctors to see me in my local area I had to go to Tampa, which is 45 minutes from my house, I’m not crazy I’m sick. I’m getting your brain in a fix your brain and fix your whole body every part of you.
You are an amazing doctor. So many doctors today feel they are not adequately compensated and so they put in just the minimal effort possible. I recently went to a new neurologist who practiced closer to my home. I called a couple of times with problems that I thought were important. I was told she would return my call only if she thought my concern was important. No return call. She said she was never informed. Who knows.
Mean time my old doc, takes calls as they come in. He only asks that I call during office hours. I am taking medicine that I can’t afford so he gives me samples. She offered samples but not enough. I have insurance but even with the insurance the medicine is really expensive. I am going back to the old neurologist. I have been with him since 1998. He treats me with the utmost respect. He even helped out my mother and my son when they had emergencies. Once when I needed a very specialised neurologist he told me where to go. What good is a doctor you can’t even talk to?
You are so wise, l love listening to you because l know lam getting the truth about the medical profession you are not sugarcoating it just giving it straight l have been interrogated last time l went to the emergency room for gastric issues the doctors talked to me like l was a drug dealer, it hurt my feelings to say the least , l am a elderly woman and would like to be treated like people treated my grandmother back in the day , we sure are living in some weird times can’t wait till God comes a calling and takes me to Heaven God Bless You Son for being so fair and honest in such a difficult world 🙏🇺🇸💕🙏🥰❤️🙏🌸🙏🥰🇺🇸🇺🇸🙏
Love you so much. Thank you for your service and videos.
Up until several years, I don’t trust the medical system but have to stick with them to keep me alive as a post transplant patient and complex history. However, to help to fix the problem regarding this video is to give them your opinions and ideas so the medical industry can incorporate if they’re willing to listen. This is what I’ve been doing and is working! 😊❤
I have fibromyalgia and cfs among other issues
You are a Godsend..So true nurse over 30 yrs.
Missed this one. My experience surgery and being the victim? Even the Doctors doing the surgery were victims. Doctors KNEW I had severe, high risk asthma before Surgery Easter 2011. I was told this in 2019. My oxygen went to 70 in the surgery. No amount of oxygen would raise it. They said my veins collapsed and had to call in a specialist to put IV back in. It was suppose to be a quick surgery and back home same day. I was there in the hospital for 3 days over Easter holiday. Very few people in the hospital and even less nurses. I was mostly alone for 3 days. Afterwards, never told why. Did I die on the table? Did they revive me? I think very seriously something very bad happened. Worst part? It was preventable and done on purpose.
I spent nearly two years in and out of the hospital for at least a year of total time (I’m under counting), and the number of medical errors, wrong medications given, and nurses crying from overwhelming stress… There was severe over crowding, mixing of severely ill dementia patients being placed in beds in units not setup to look after them… I even started to hallucinate because the constant bed alarms of dementia patients were going off 24/7 over the loudspeakers even at night… Oh and they ended up causing a dementia patient to lose consciousness, need shocked with a defibrillator and have paramedics rushed into the unit to stabilize them and take them down to the ER… All of this was because they gave an unruly frail female dementia patient wayyyy too much antipsychotic medication… It was brutal witnessing how poorly those who were unable to advocate for themselves were treated, and I will never ever ever leave a loved one on their own in a hospital!!!! I was awake enough after my major surgery to advocate for myself and yet still I had a nurse push 5 times the amount of morphine than I was supposed to have, all because the nurse mixed up my IV morphine for my epidural, they were supposed to just push more of the epidural because that was put in improperly and only was freezing one side of my body… Ugh… If it wasn’t for my old family doctor who was also a hospitalist at the hospital I was at.
Well after my last procedure a few days ago I had two ballooning’s of my duodenal stenosis, as well as my gastrojejunostomy stenosis stretched by ballooning, and had a fun surprise, my biliary fistula is back… I had just had stents for a previous biliary fistula removed less than a year ago… 🤦♂️
Life is unbearable, and we have tried almost everything, plus I throw up multiple times a day, unable to keep food down, to the point I have to go in repeatedly every year to get my electrolytes back in balance as my potassium especially loves to crash to the point of my muscles locking up and my heart beating strangely…. This is all happening along with my sodium and calcium levels often crashing alongside the potassium, all due to vomiting… I have a rare case of extremely severe eosinophilic gastrointestinal enteritis, gastritis, and esophageal… It causes scaring of my sphincters in my duodenum and even my new gastrojujunostomy’s gastric outlet… Along with bleeding ulcers and small tears from vomiting so severely… I’m getting severe pancreatic pain again, and life is a living hell… I’m so weak I can barely force myself to go on my daily walk around the block… The pain can be excruciating, and the sweating from the waves of nausea is extremely unpleasant and embarrassing…
Dealing with such a complicated medical situation you run into some of the most obnoxious, hurtful, and even lying doctors in my time, but also some of the best and most compassionate doctors… I think the problem is once you have gotten as bad as I am, I can look insane with pain, as I try and avoid going to the hospital as much as possible, as the emergency room is never fun because even with all my medical documentation, most doctors don’t care to take the time to read even the most basic of medical history right in front of their faces… One doctor was intentionally trying to call me crazy, and that I was exaggerating my pain, and my other symptoms… All it took from me was to look him in his eyes and then immediately Projectile vomiting blood all over his stupid white coat! Thats sure all it took to take that stupid little entitled grin off his face a when a stomach full of blood and my passed out body, now bleeding from a cut in my forehead as I hit the ground hard apparently…
It’s just so sad that it takes something that severe to get these horrible medical professionals to actually be professional…. So many of these bad doctors should’ve quit after finding out they have zero compassion for patients while in med school…. I don’t remember much after hearing exactly what happened after I vomited blood all over him, and passed out…
Why does it take such insane situations for some doctors to stop assuming they know what’s wrong before you even tell them anything… So many doctors who simply don’t listen, and have shut off their compassion, ability to listen, and would rather make assumptions based on their lazy stereotyping…
My chronic illness is already getting really bad again and I have lost 8 pounds in two weeks, and am down to 121 pounds and I’m a male that’s almost six feet…
I had a doctor, my PCP , whom I had seen for years,
come into the exam room with a medical trainee
and furiously tell me it was my fault that he did not get the end of year money my insurance sends to doctors
with high rates of success. He said it was because
I did not get my blood sugar low enough. I was
very shocked. I did not go back to him for about 18 months and asked for a referral to an endocrinologist. He refused. Now I see him twice a year only to have my two necessary prescriptions refilled. (He says he has 3000 patients.)
Medical staff, including doctors and nurses who have themselves had or have pain can many times be the best advocates.
Went to the the ER for 1 serious thing but also requested an X-ray as I had excruciating pain in my back. Yeah we'll get ya x-rayed. I was admitted and kept getting blown off on the X-ray for a week. All they wanted to do was Tylenol. Which is crap on all my pain. Anyway it wasn't just the Drs it was the nurses and cnas. I had to threaten to call the cops n sue them before I was released. Went to the orthopedic Dr. He x-rayed. Turned out my back was broken in 2 different places. Shout out tho to the One CNA that did give a damn and try to help me
Thanks for speaking the truth on this. Where do you find honest doctors?
I am so fortunate to have a membership and can access my physician anytime. I would never abuse this, but I have her personal phone number. The membership fee is totally worth every penny. It is a shame that the good ones have had to resort to not dealing with insurance companies.
Are you referring to "Concierge Medicine"?
It's called Concierge Medicine.
I wish health care provided concierge services for all. I wish all humans enjoyed that privilege.
Ya i went to the ER because i pulled something in my lower back and had severe pain. All i wanted to know what i did or didnt do to cause the pain that was like a 25 on a pain scale. The drs there acted like i was there for drugs. In whick im already on pain meds but they were real gerks to me and my husband. Something has to change or there will be a lot of so called drs and nurses that will lose there job. Thats for sure. Thank you for bringing this info forward.
I have been getting my Dental Care at a nearby Dental College for the past few years. The care is provided by 4th year students (under Faculty Supervision of course) and always been happy with the care.
Right from the beginning (during cooooviiiid 🙄) I communicated to Faculty and my then Student, about my Panic disorder (Merinthrophobia) and I was immediately exempted from wearing a mask in the clinic!! Even security know who I was and never harassed me. And my most recent student actually gave me her personal cell number to contact her if I had any problems!!
I wish all practitioners had that kind of dedication!!
❤❤❤❤❤❤❤❤❤❤You Dr. K.
Another problem. Surgeons will not prescribe medications for pain relief. Surgeons recommend VERY serious operations. How can a person desperate in pain, make a good decision with good judgement about the surgery??? It is almost blackmailing the patient who is vulnerable and beaten down by pain. And, believe me, after the surgery and you are wheeled out of the OR, you don't exist for the surgeon.
This!
If only more sets were like you. I've had Drs who get very angry if I ask a question. One said how dare you question my credentials when I just asked, do you really think my barely borderline blood pressure should be treated with meds? He walked out and the nurse asked me to leave because I shouldn't question. Recently a Dr said he wouldn't treat me for an ear infection with an antibiotic because they do more harm than help. I should just take an antihystamine. And use a me to pot. I got antibiotics from someone else
Love this doctor. He should get a GOLD PLAQUE.
As a chronic pain sufferer (spinal stenosis, unhappy bladder, lupus…) I had been feeling rough. I didn’t want to be treated like I had before, so I lived with shortness of breath, chest pain, and dizziness for about 7 weeks. Finally someone forced me to go to the hospital, they too thought I was going to be dismissed (I was by all but one doctor). I had so many pulmonary emboli that the radiologist couldn’t count. I had bilateral pulmonary artery blockages. They didn’t mention the “wee MI” I had on the left side of my heart, nor the heart failure in the right side (but I am seeing a thrombosis doctor in a month). I am a good self (and other) advocate, but because I take pain meds, and still work full time, I am not VALUED. I was accompanied by a lawyer and a doctor on this trip to the hospital - even then we all thought I was going to be sent home with a virus.
You are a special doctor.
No one is like you.
So...we are fucked.
i asked my anesthesiologist in the OR if he knew I was taking a MAOI .He didn't.
Oh my God...
@@inveritategloria TY for your reply..It happened 12 years ago and your's was the first, non-gaslight response I've gott.😃
I chose the seizure risk of Wellbutrin when I was 19. I don’t think I would ever want to have the cardiac risk of an maoi in the back of my mind 😮
When I had to find a new Dr. I made a point to look at reviews. I had a recommendation for a Dr. and the reviews noted how kind and approachable the office staff. I chose this Dr. as I knew any message I had for the Dr. would be relayed to my Dr.
I am terrified of seeing Any other Doctor even wonder about my GP...I can not trust these people and i have been so medically harmed both physically and mentally ...Horrifying
Thank you for your courage your honesty. You’re doing so much good work
Very well said, thank you for your compassion
Always they don’t help with much in the ER Unless you are having a heart attack or require immediate surgury
I believe medical professionals are stalling my care in the hopes I will pass on
The surgeon who removed my gall bladder gave me Tramadol even though I insisted that I not receive any opioids. He waved away my concerns with the comment that I wasn't going to receive a "narcotic." I ended up trying to commit suicide because Tramadol causes Serotonin Syndrome. If he had bothered to listen to me in the first place, I would not have ended up in the psych ward because of his mistake. I literally had no control over my behavior because of what the Tramadol was doing to my brain.
😢
EVER SINCE BIOLOGICAL & MEDICAL ETHICS CLASSES IN COLLEGE, THE FEW AUTHENTIC DOCTORS OUT THERE SPREADING THE TRUTH & DOING THE RIGHT THING, ARE AMONGST MY HEROES. TY.
When I had surgery two years ago the anesthesia nurse yelled at me for having a panic attack when I had let her know that I have PTSD. I shouldn’t have been treated so badly. My cardiac anesthesiologist finally called my surgeon to come help me and reassure me. My surgeon had a wonderful nurse along with him until I was sedated for a nerve block procedure before surgery.
Thank you for being you instead of a medical machine.❤
I and many of my medical staff colleagues of color have been treated like pain seekers. I wrote to the Dept. Chief about my experience with the resident. The Chief didn’t believe me at all and defended the resident. Lesson learned is to contact the Hospital Chief Medical Officer and request a meeting if necessary.
This very thing is why I drive to a completely different town for women’s healthcare and anything major. I do have a local general physician who is amazing. But my local hospital and even my obstetrician, who was also female, were incredibly dismissive to the point of making me feel crazy when I did in fact have preeclampsia. I also feel this contributed to my sister in laws death following childbirth. I think making fun of patients is something that only inadequate medical staff does.
Dr Pearce McCarty was the only one that fixed my shoulder the bone kept coming out and the hospitol in Willmar mn , just put me out for 15 minutes to put bone back in orthopedics in Willmar wouldn't do surgery I took action in my own hands and found Dr Pearce McCarty at Abbott
Just because one health care worker, or doctor was bad, doesn't mean that they all are.
99% are. 1% not.
Good luck with that
I have gone to the ER with excruciating pain. I mean level 10 in my lower back. and buttocks. I was in tears from the pain and they refused to give me anything for relief even though they were sending me to x-ray for a CT of that area of my body. I insisted I could not move to get the CT scan. They reluctantly gave me a mild sedative so I would go. My sister was with me, but I was sent home with the same excruciating level 10 pain I arrived with. They did put me in a wheelchair with a script for 800mg of Motrin and rolled me out to my sister's waiting car. I cried all the way home! They made me feel like I just wanted drugs and was wasting their precious time.
Same recently happened to me. I had to have a lung biopsy for deep breast cancer in my chest wall. They made an incision on my throat, pulled forward on my ribs and took multiple samples of my lymph nodes. When I asked about pain meds the nurse said go home and take Tylenol. I felt like a horse had kicked me in the rib cage. When I had my mastectomy later I made the doctor swear on his life that I would get pain medication because I feel like they think everyone’s a drug seeker and just let you suffer even after serious surgeries. It’s inexcusable!!