I've had my ostomy for over 30 years. You are a nice refresher! I still, after all this time, am devastated when I have a leak or blowout. It really undermines my self-reliance. Nice to know I'm not alone.
I’m happy I found this Cecily’s channel. Recently had my 5th surgery on bowel… have had ileostomy for 4 yrs and had complications such as obstructions from huge parastomal hernia. I had it repaired in Feb 2024 with complications, abcess, blood clots and my stoma is now flush with my skin and I’m having issues with skin irritation which I guess I was lucky as with my other stoma I didn’t have issues. I’m trying different ways to try to get this irritation under control. Some days I feel so alone and depressed. I have been listening and watching these videos and a few others. If anyone has had a flush stoma and has any advice for what worked for you pls let me know as I am open for suggestions. Love and good health to you Cecily and everyone. ❤️🩹❤️🩹
great video , you are a great example to young people who have to get an ostomy , im about 7 years post surgery and like you it was a game changer for me , wish I had gotten one 30 years ago , people like you take the stigma away from having "the bag" , hope you are in good health , good wishes and thanks from an old guy in Ireland
It may not be easy to have an ostomy, but it is much easier than not getting one. For me, the choice was having an ileostomy or being dead. I can LIVE with this!
I’ve had my Ostomy for 25 years. You have a great video/channel. Tip for helping with leakage at the bottom of the pouch: tear off a small piece of toilet paper and fold it into the closure. Rip off any paper that sticks out and then Velcro it shut.
Say No to NPO! :-) Hope you are doing well. Thanks so much for sharing. I sincerely appreciate you showing how things are in real life. Many educational ostomy videos show the picture perfect scenario which is amazing when that happens but it’s important for people to know it can be a challenge at times…but there are always solutions. Thanks again and hope to touch base soon!
Yeah, that picture perfect, sterile scenario is not always that helpful. You expressed it so well in your comment! Great comments and I couldn't have said it better.
Thanks so much, Rick! I have missed posting and connecting with you all a lot. I hope your ostomy is doing well and that you’re adjusting well-I know it can be hard but you’ve got this! 💜
I am really impressed with your instructional videos for those who need to figure out how to best manage an ostomy. I could have benefited greatly when I had my surgery. That was 40 years ago. I was 36 years of age. Since then the process of living life with an ileostomy has presented many challenges. As we get older our body changes and so the management of the Ostomy skin and general health also changes. I urge you to continue to take your audience with you on your journey. Peace and Blessings.
Thanks for your video. Being "all over the place" helped my wife and I since we are "newbies." I'm six months out. I'm not able to change my apparatus due to my stroke(23 years post with left side weakness). We did pick up on the sure seal which will help with my leaks as we continue to experiment with finding the "best fit" with products:. Wafer, bag, stoma paste, etc. Anyway I just wanted to thank you. Good luck in school! Your experience of life with a stoma is my experience too. UC to Chrone's Colitis to no colon has been a challenge for this 70 year old but life is better. Hang in there.
March 2022 I had a permanent colonostomy due to cancer. I had less than 2 weeks notice. I have resisted watching videos etc. Just a quick Thank You. Didn't know how much I needed to see someone else has the same issues.
I very recently saw your you tube videos and I must tell you you are truly inspiring and have been so very helpful in the short time I have been following your channel. I’ve had my ileostomy now for almost 1 1/2 yrs… I had 4 bowel surgeries due to diverticular disease. My reversal did not go well.. more structures developed and long story short I have decided to keep my ostomy as it truly has given me much better quality of life 👍 Thank you so much for sharing your story and taking the time out of your busy life to make these You Tube videos. I have subscribed to your channel and look forward to seeing more of your videos. I’ve learned so much from you and a few other young adult ostomates.. happy to hear you are doing better and thank you again Cecily for sharing your story 💗😊
Yet again another super informative honest video from you, thank you! Why does that always happen - you've got your manky nag off given eventing a nice clean, crusted the stoma the skin is nice and dry and so ready for the bag and all of a sudden your output decides to make an appearance! Not Just once but continuously until you somehow manage to quickly slap that pouch on after yet 100 more wipes and cleans and crusting! 🤬 Watching you go through the same issues that I do is making me feel so emotional in a cathartic way.. I really needed that because not even my stoma nurse understands! You're a gem, I totally understand the fatigue as I'm knocked out half the time uncontrollably.. lots of love from me in the UK 🇬🇧 ❤️
So glad to see you back, I have had my Ileostomy since January and I really liked your videos as I prepared for surgery. I really liked those sure seals, will definitely will be ordering them. Keep smiling and thanks for the update.
Hi Mike! The SureSeal rings are absolutely great, so I’m glad you’re going to try them. The surgery is always really intimidating-there’s a lot to accept in a very short amount of time. I hope it went well and that your recovery was swift. It makes my heart sing to know that my videos were there in your pre-surgical life. Thanks so much for sharing a part of your story with me. It means a lot 💜
Just found your channel. I am a 58 year old woman who was diagnosed with Crohn’s at the end of 2020 and have had an ileostomy since 10/21. I love the SureSeal rings and they have been a godsend when I got peristomal pyoderma Gangrenosum. Sending you positive thoughts and a big virtual hug!
I am an older guy from England about to have a stoma. I have watched a couple of your videos now and have subscribed to your channel. You are a very brave and inspirational woman.. thankyou for what you do. George, South Yorkshire, England
Don't have a stoma but you gave me so many ideas for dealing with my continuous glucose monitor, which really irritates my skin and falls off all the time. I'm gonna try out the powder for sure. Thank you for making this, it was super educational!
That Active Lifestyle seal ring looks like a great extra item to use when traveling etc. You have a lot more products available in the US than we have in Europe. I’ll have to find a store that could ship me some of these. Thanks for the video update 😊 Greetings from Norway 🇳🇴
Hi Trond! Thanks for your comment...I'm so frustrated that you can't get Sure Seal rings in Norway. While I hope that a nearby medical supplies store might be able to ship you some of these, you've inspired me to film a video about how to dupe the rings with normal tegaderm. I want you to have something like Sure Seal rings for traveling because they really help with leak prevention when you're changing diet, getting on and off airplanes, sleeping in hotel rooms, swimming, showering, and just about everything! Stay tuned for that 💜
@@CecilyLivingBeyondtheBag I’m looking forward seeing your videos. I just want to thank you for making videos like this one 😊 I remember watching another youtuber just before my surgery, she was probably 16/17 when she made a video just like this one showing all the steps with cleaning and changing the bag. Because of this when the stoma nurse came to my room and said it’s time to change the bag i had on since the surgery, I told her that I wanted to do everything myself and she could watch and help if needed. She was surprised and told me she never had experienced anyone taking charge of stoma so fast after the surgery. So i have to thank you and other youtubers for making such awesome videos that helps people getting ready for their stoma surgery and hint and tips along the way. Thanks 😊 🌹
@@TrondOleJensen that’s so awesome! I’m really impressed that you changed it on your own for the first time…something I wish I’d done in retrospect. Very cool 😎 I’m so happy that someone was there to help guide you through the process. I didn’t find that on RUclips for a while…and it really does help. Thanks for this comment-it made me smile.
Hi! I just met you, I love how chatty you are and how you just keep rolling on while doing what you need to do - this was very interesting and I can't imagine being so chill - really want to hear more from you.
"blowouts are an inevitability, they will happen"....this was the first video I saw after I started to change the bag on my own and I was experiencing blowouts and I was so frustrated, hearing you say that was a turning point for me, everything was downhill after that, great leak stopping advice
Thank you for being so real. I just had emergency surgery for diverticulitis with perforation. Got this ostomy and it is a real inny, the flat bags were not working after 2 weeks. Had 3 blowouts in 1 days, my belly skin under is in horrible shape. Watching your videos has truly given me some peace of mind.
Thank you so much for your videos. I’m getting a loop ileostomy soon and you have helped me navigate all my fears and have given me confidence when it comes time to change my bag.
I had a regular ostomy for several years but since I'm physically active at work and home, I had a lot of blowouts. Finally, after a couple years of off and on research, I had my ostomy converted to a BCIR. It's not without problems but much less trouble and worry than wearing a bag.
I've never had any kind of stoma, just trying to get some education! However, I did want to say, I'm always amazed at how great nurses are. I'd walk into work hating my life (and it's customer service based!) Yet these people have such patience and never make me feel like I'm just a number. There must be nurses who hate it, but if so, they're damn good actors!😄
Cecily, you rock, girl. I so appreciate you! I've had a colostomy and urostomy since September 28th, 2015, due to recurrent gynecological cancer. I'm going to try the sure seal rings. I know this video is a year old, but I hope you are doing well! I struggle with depression and anxiety since my cancer surgery. Two ostomies has been such a challenge. But we have to persevere! I hope you're close to finishing school as well. Go, YOU!
Your wafer is much more complicated than mine. I’ve had a colostomy for 21 years. I gently pull off old wafer , wash area, apply skin barrier , add new wafer ,pouch and all done
Hi Judith! That's so cool. If you don't mind me asking, what brand of bag/wafer do you use? I feel that Coloplast's two-piece systems are definitely a bit more complicated than Hollister's, so that might be the difference in our routines. It's great to hear from veteran ostomates like you...it gives me and all the new ostomates who read your comment hope that this lifestyle is sustainable. Thanks for sharing! 👏
You are truly kind to show us how you change your pouch. Me, if I left my stoma unprotected for 15 minutes before reapplying the wafer and pouch I would have an output mess. I have to prepare everything I need in advance before removing my appliance quickly remove it, clean, dry and slap on the new one. You have a cute little stoma, mine is much larger. And the only pouches that work for me are coloplast two piece. If I were younger I’d ask you out but I’m not so please just accept the compliment.
Thanks for this video, Im about to get a surgery and its not reversible, but I’m still trying other ways maybe I won’t have to get a surgery, I still watch ur videos so I’ll be ready just incase, be strong & continue to inspire us
I was just in the hospital this past Sunday coz I coughed up a blood clot. All my labs, chest X-ray and CT Scan came back negative. I have a follow up appointment tomorrow with my GP. I’m like you, still have more questions than answers. I know this video came out awhile ago, but just seeing it now. Hope you are doing well.
Hi Cecily, I use the Coloplast rig just like yours, including the deep convex baseplate; however, I haven't been using the ring. I went a long time with no issues or blowouts but recently have been having a LOT of blowouts and I wonder if the ring would make a difference? What do you think? Thanks and bravo to you for being so brave and for your very helpful videos. I see you still have a picc line; I hope all is well, love. Cheers.
I do the TP trick, too. To curb the odor, I put a few drops of essential oil on it. Some activated charcoal works, too. The velcro doesn't always hold up, so I use little clips to secure, and it works great. Just for info.
I just have to say ur kitty is adorable. Love black cats 🐈⬛. Me and husband are both disabled and retired and have alot of health issues as well. We share are home with 2 beautiful black cats, 1 male, 1 female and they are definitely are fur babies. Animals bring so much companionship and comfort to so many people. Thank you for being so open about ur challenges and problems. Iam sure ur helping more people then u even relieze. God bless you
Wow so I have had my ostomy for about 3 weeks/ nearly a month and I just stumbled across this video and within the first 45sec I exhaled. It feels very good to come across a community that I can ask any question I may have about my ostomy, it feels like it has already been so much change in my life, since my cancer diagnosis. I just want to say thank you so much, for making these videos. I'm still just learning what all of the products are and how they are used, so I'm guessing you can imagine how incredible t is for me to see your content.
Goodness, blow outs seem to happen with the 2 piece products. I have had an ileostomy since 1985 and have never had a blow out. I use the one piece Convatec product. Less expensive, simpler to apply and easy to flush. Change out about every 3-4 days. Easy peasy.
Fantastic information. My surgery is in two days. What does the marshmallow mean? What kind of bag do you use? It looked as if it carried all your needs? I want to be prepared and you are my source of information. Thank you
My name is tom I got my stoma last year I the middle of January through February I was in a care home since March I love with my sister and her husband and kids she helps me to change my bag thank you for helping me in to get use to mine ❤
Fold the end opposite of 2 dot hook n loop ie an envelope When emptying fold it to to hook n loop dots. So it will not get get soiled. I use an elastic belt. I use skin tak too. Let it dry
Thank you for your video,I don’t have this illness but like to know how others cope with these illnesses.I’m watching a year since your illness Hope Celia you are in much better health and able to cope day to day.Stay safe.❤️
I use teraderm skin tape and alcohol-free baby wipes. They're so affordable and the teraderm can be easily custom-cut. Teraderm skin tape keeps my skin dry and no sweat because it's a breathable skin tape. Not more skin rash and so light on the skin that you don't feel it. Most of all, it is waterproof and the ileostomy bag sticks to it permanently. I can shower without any worries. I use a bidet to wash off the inner bag and my stoma while wearing the bag. Kneel down beside the toilet seat and use the bidet to spray the inside of the bag and stoma. Just make sure the water pressure is not too high.
Hi Cecily, I have been watching your videos and you are so strong and positive. My name is Neil, I have had a colostomy, it prolapsed i then had further surgery and have had my colon removed and now have a iliostomy. I have a question for you my output is just liquid and I are going to the bathroom 10 to 12 times a day, do you have any advice? You are truly an INSPIRATION.. Keep up with the videos and I hope that you are staying well.
Hello Neil , I have a temporary loop ileostomy, I’ve had for 5 months now due to endometriosis in my rectum that was removed (bowel resection) surgeon is waiting for it to heal before I am clear for a reversal… but since you have an ileostomy , your stool will always be watery, soft etc because it doesn’t make it to the large intestines which normally hardens poo, but I realized that every time I eat rice, bread, cake etc my output is more of a pasty consistency.. and I try to reduce how much I eat thus fewer trips to the bathroom .. it used to be 10+ times for me per day , but now I’m down to about 5-7 times emptying daily ..
White rice. Marshmallows.green plantain.potatoe.kitkat candy. Espagueti with Alfredo sauce. Don't drink any soda o juice after eat wait half hour.and used desitin in around you estoma.after all powder and skin barrier just around no to much.
Im very upset about getting a colostomy bag.I have a very weak stomache and not sure i can handle it but im tired of not going anywhere because of accidents.Its affecting my marriage.Thank you for your knowledge
Hello Cecily. I just found you. I’m new to this 1st emergency operation day before thanksgiving 2022 2 nd one was March 28 an 29th. That one tried to kill me. The nurses I had for the most part sucked. I found that a my 20 oz gateraid bottle will help to cover stoma when leaking when you’re trying to change everything. Also I use the 2 piece click on If you wet a paper towel an wipe the rings it helps hook up bag. I am trying to get a Stoma Genie for the big change so I can use soap an water to help skin I have a high output bag so I prep everything so I can do it fast I also have small sticky plastic that I put around like your big ones A lot of things I learned on my own. Thank You for your videos. I have a ilostomy so I have to change a bandage on left side also. Small hole but the belt goes right through so i build it up a little. When I use gator aid bottle had to balance it on corner of sink top so I could go faster. Thanks again ✌️✌️🇺🇸🇺🇸
Thank you for the video. Please define retraction for those of us who aren’t in the know yet. Please DO mention the good brands and products bc need all the help we can get from veterans😊
My stoma output leaks out of the stoma loads when I change My bag.. I use stoma power to cover over any sore skin touching my stoma & it's frustrating when Iv put the powder on & output leaks as I have to keep wiping & cleaning the skin again & again each time which makes the skin very sore x
I have been using them for at least7 years can't live without them. I also use a magnum bag and love the plug to empty to protect my skin due to itching. my wound nurse told me to use floventHFA MY GU doc gives me the Rx. USO's o useCavilon then skin tac in my abdomen liquid adhesive to help prevent leaks. I also get wafers cut or I use new Hope hole😊 cutter I use protective seal convex (New) and use a brava ring in the outside ring to help with leaks. I also infuse 2 liters a day. I'm looking into pic covers. Any suggestions I do more and use other products would love to chat so glad your on
Very informative. Love your cat. Please wash your hands after touching your cat before you change your bag though. Cats carry a lot of germs. Do you wear a pouch/belt when you leave your home?
I cut my wafer off center to help it not be on the scar so much I use mineral oil which is cheap compared to baby oil and use deodorizer to help prevent smelly things. Now there is a thing called stomacloak which has charcoal imbedded to help with odor. Washable works pretty well
12 mins with your stoma behaving... I was like what devilry.... How you get it to behave so well. Don't know if this helps anyone but i find that on mornings when i wake up my gut is like still asleep... So i can get a 20 mins of peace to try to execute a change... The worst luck i have had was 1hr 45mins... Trying to change... Because after every wipe... Boop... Out it came and i had to wipe again....
My husband has an ileostomy and is not able to change his bag. He has sooo many blowouts. He has deep skin creases a hernia and a horribly prolapsed stoma. I have talked with wound clinic, Coloplast, Convatec nurses and nothing seems to help. We are both in ours seventies and it seems more than we can stand. I dont know where else to turn.
hello thanks for updates //I had to live with this for so long, its nice to see you doing great //its not been easy, for me at 14 years old , and doing the best I can in life , Jobs, money ,and my trade hydraulic , and work 7 days a week ,and marriage , its not easy on dates //lol
Reversed here, but found the spray easiest to remove bag, spray wiat 30 to 60 seconds and come off easy peasy, my stoma was good only in the morning when I first woke up.
I totally agree, Cann! The spray is simply the best. For some reason mine were delayed in my most recent Edgepark order so I didn't have them on hand for the video but I wish I had. It's great for protecting the peristomal skin from denuding. Thanks for the tip and congratulations on your reversal! I hope you're doing well 💜
Is it okay for the lubricant to touch the stoma? That would help but thought maybe it shouldn't go against the stoma. I'm new to this. Thank you for information. Still having a lot of leaks. Keep getting new things to try. Thanks again
Hi Amanda! Great question....I linked the shelves in the description but I'll leave it here as well. They are "Command Wall and Cabinet Organizer, Satin Nickel" shelves and can be found on Amazon at www.amazon.com/Command-Cabinet-Organizer-1-Organizer-BATH37-SN-ES/dp/B01C60CAYU/ref=sr_1_1_sspa?dchild=1&keywords=3m+command+shelf&qid=1628027809&sr=8-1-spons&psc=1&spLa=ZW5jcnlwdGVkUXVhbGlmaWVyPUEyMEJDWExMOVZBOU9FJmVuY3J5cHRlZElkPUEwNjgwMzA5MTNUR1pOUTJKN0ZLUyZlbmNyeXB0ZWRBZElkPUEwODk5MjM0MTZEREpDMTVVTVpETyZ3aWRnZXROYW1lPXNwX2F0ZiZhY3Rpb249Y2xpY2tSZWRpcmVjdCZkb05vdExvZ0NsaWNrPXRydWU%3D I cannot recommend them enough! They've really streamlined my bag-changing process.
Hi Cecile, thank you so much for this video. My home nurse brought me the Coloplast Brava Elastic Barrier Strips. They are such a security for bedtime. Remember I had a colonoscopy. I am trying the coloplast 2 piece click. I realized I needed to be able to see my retracted stoma and it might give me a heads up on if I am getting a wafer infiltrate. Thanks for your love ❤️ for us. God bless you…
Hi Linda! I always love reading your sweet comments. I think that the elastic strips are a great option for extra security over night. I hope that you can sleep better knowing that you have an extra layer of leak protection. I totally agree that a 2-piece system is preferable for someone like you with a retracted stoma. Having the ability to see the stoma as you are placing the bag is a huge advantage over 1-piece systems. Please keep me updated and let me know if you are still having trouble with leaks. You can get through this...I promise. Sending love your way, as always 💜
@@CecilyLivingBeyondtheBag what I get from visiting you is a dose of strength to just chill. And I hope that we can strengthen each other thru all these challenges. I get down so much that I surprise myself because I have always been the upbeat one. Just like you it is hard to always be upbeat in this situation BUT we can do it. Keep up the great work.
You really do help me too, Linda. Very few ostomates that I’ve met on RUclips also struggle with retractions, so talking to you makes me feel much less alone. I lost my optimism for a long time after I first became an ostomate-but time really does help. I hope that you can get some surgical intervention so it’s easier to keep a bag on. I know how hard it is to live with sleepless nights and leaky days…but you’re adapting and I’m so proud of you. Keep your head up 💜💜💜
@@CecilyLivingBeyondtheBag well now I get a new challenge. This week I have been having terrible cramping it has gotten worse each day. My stoma opening in my skin is shrinking still. So I get up have my coffee and the stool starts but it is so skinny less than half licorice rope and I think the stool is backing up or maybe not able to get out as fast as it wants. It made me really feel sick this morning. I have no idea if this is normal. I did however get a recommendation from Dr on call that she would get me an appt next week with my surgeon. He told me that if he has to do a stoma revision he might as well just hook me back up so not sure what will happen. Later today I tried my third irrigation and about 250 of water never came out. Maybe my colon needed a drink of water. I have not felt well today and wonder how much is physical or mental. I do have high anxiety but never felt like this. Darn I am whining but am also unsure of what is really happening. it has been almost 12 weeks post op. I am not totally healed from the Hartmans procedure yet. 💕
@@CecilyLivingBeyondtheBag hello you. Ok so I emptied my bag which is still on after 2 days YAH, but it stinks. Normally the only time I have odor is when I empty and it is not this bad. Does the bags get permeated or something? My home nurse is ordering me some bag deodorizer. When you talk about getting down after 1 yr of 2 bouts diverticulitis 9 UTI’s then diverticulitis again, then the rupture it started in June 2020 and I had my surgery June 2021. 1 yr of antibiotics I just didn’t think it could get worse. I actually asked the good Lord where was the line to surrender as I just can’t do this. BUT as usual I slapped myself, metaphorical of course and am trying to be the positive person I am. For one week though I had the biggest pity party. So now I tell myself I get to have a pity party once a month. I can get in the shower and cry my eyes out. It actually feels good. 💗
I can drink beer and its been ok for me 1 or 2 beer a in a day is all I drink , no blow out ,//I use the Hollister 8770 clips with CONVATEC SUR FIT Natura 1 1/2 drainables //I find it easy for me as I still rebuild car engines at my age and I have a 1960 Willys Jeep C J 5 i am rebuilding //so try Convatec 1 1/4 .
Hi Flower Petals! I'm not sure, do you mean that you have a blood level vitamin B12 of 8.15? I'm not a medical provider, so please take this with a grain of salt, but if you have a B12 level of 8.15 pg/ml then you should definitely ask to be re-tested. If accurate, that is an alarmingly low value. Normal adult vitamin B12 values range from 190 and 950 picograms per milliliter (pg/mL), and doctors generally consider anything below 200 pg/ml to be on the lower end. Please look into your result and ask your provider if therapies like vitamin B12 injections. 💙
No way would my insurance pay for as many remover wipes you use. The remover spray is less expensive than using that many wipes and much less pulling on the skin. Your wafer is large. I found going to a smaller wafer helps me from getting more skin irritation. Great videa
@@CecilyLivingBeyondtheBag yes my austomy nurse told me and it's all new too me I just had my ostomy then major complications do too it I been in the hospital 3 months tomorrow now a couple day ago my ileostomy it's been a trip and he been giving me tip do too the massave problems I am having send me a shout if both work together well it's I tell you is going to be important too know because my problem child I call mine is going too fight me all the way. All love and prayers I pray your well GOD BLESS 🙏 ❤
I’m so sorry to hear that you’ve been struggling with the health of your stoma, Keith! I know what it’s like to spend months in the hospital with no end in sight…you’re in my prayers. Ostomy complications can be so scary but I hope you’ll be back to your normal life soon. Thank you so much for your kindness and positivity-you’re going to get through this! 💕
Good god, this woman is as amazingly strong as she is drop dead gorgeous and brilliant. A real inspiration.
Yes, she is really bright and beautiful. What a nice comment you left. So glad that you said that.
I've had my ostomy for over 30 years. You are a nice refresher! I still, after all this time, am devastated when I have a leak or blowout. It really undermines my self-reliance. Nice to know I'm not alone.
I feel the defeat every time I leak or have a blowout which is 3 to 4 times night or day!
I’m happy I found this Cecily’s channel. Recently had my 5th surgery on bowel… have had ileostomy for 4 yrs and had complications such as obstructions from huge parastomal hernia. I had it repaired in Feb 2024 with complications, abcess, blood clots and my stoma is now flush with my skin and I’m having issues with skin irritation which I guess I was lucky as with my other stoma I didn’t have issues. I’m trying different ways to try to get this irritation under control. Some days I feel so alone and depressed. I have been listening and watching these videos and a few others. If anyone has had a flush stoma and has any advice for what worked for you pls let me know as I am open for suggestions. Love and good health to you Cecily and everyone. ❤️🩹❤️🩹
great video , you are a great example to young people who have to get an ostomy , im about 7 years post surgery and like you it was a game changer for me , wish I had gotten one 30 years ago , people like you take the stigma away from having "the bag" , hope you are in good health , good wishes and thanks from an old guy in Ireland
It may not be easy to have an ostomy, but it is much easier than not getting one. For me, the choice was having an ileostomy or being dead. I can LIVE with this!
I’ve had my Ostomy for 25 years.
You have a great video/channel.
Tip for helping with leakage at the bottom of the pouch: tear off a small piece of toilet paper and fold it into the closure. Rip off any paper that sticks out and then Velcro it shut.
Say No to NPO! :-) Hope you are doing well. Thanks so much for sharing. I sincerely appreciate you showing how things are in real life. Many educational ostomy videos show the picture perfect scenario which is amazing when that happens but it’s important for people to know it can be a challenge at times…but there are always solutions. Thanks again and hope to touch base soon!
Yeah, that picture perfect, sterile scenario is not always that helpful. You expressed it so well in your comment! Great comments and I couldn't have said it better.
Glad you’re back. Just got my ileostomy a couple months ago and your videos have helped a lot. Keep them coming
Thanks so much, Rick! I have missed posting and connecting with you all a lot. I hope your ostomy is doing well and that you’re adjusting well-I know it can be hard but you’ve got this! 💜
@@CecilyLivingBeyondtheBag ppq
You do give me hope as an ostimate. I have also had many complications and your positive attitude about it all is very uplifting.
Thank you so much, Sharlotte! Never give up hope-I think that’s the most important thing we have. You all give me hope, too 💜
I am really impressed with your instructional videos for those who need to figure out how to best manage an ostomy. I could have benefited greatly when I had my surgery. That was 40 years ago. I was 36 years of age. Since then the process of living life with an ileostomy has presented many challenges. As we get older our body changes and so the management of the Ostomy skin and general health also changes. I urge you to continue to take your audience with you on your journey. Peace and Blessings.
Thanks for your video. Being "all over the place" helped my wife and I since we are "newbies." I'm six months out. I'm not able to change my apparatus due to my stroke(23 years post with left side weakness). We did pick up on the sure seal which will help with my leaks as we continue to experiment with finding the "best fit" with products:. Wafer, bag, stoma paste, etc. Anyway I just wanted to thank you. Good luck in school! Your experience of life with a stoma is my experience too. UC to Chrone's Colitis to no colon has been a challenge for this 70 year old but life is better. Hang in there.
March 2022 I had a permanent colonostomy due to cancer. I had less than 2 weeks notice. I have resisted watching videos etc. Just a quick Thank You. Didn't know how much I needed to see someone else has the same issues.
Love your helpful information. I got a Diaper Genie to keep everything together for trash day.
We are in a same boat did mine in February had Virginia Fistula due to cancer it was hard it still even hard because some days it does come back
February 2023
Thank you!! We have a friend and this helps so much, self care is so important 🙏🙏 I’m glad more education now ❤
I very recently saw your you tube videos and I must tell you you are truly inspiring and have been so very helpful in the short time I have been following your channel. I’ve had my ileostomy now for almost 1 1/2 yrs… I had 4 bowel surgeries due to diverticular disease. My reversal did not go well.. more structures developed and long story short I have decided to keep my ostomy as it truly has given me much better quality of life 👍 Thank you so much for sharing your story and taking the time out of your busy life to make these You Tube videos. I have subscribed to your channel and look forward to seeing more of your videos. I’ve learned so much from you and a few other young adult ostomates.. happy to hear you are doing better and thank you again Cecily for sharing your story 💗😊
You are wonderful and so informative! Thank you for taking the time to do this for those of us who live this nightmare!
Yet again another super informative honest video from you, thank you! Why does that always happen - you've got your manky nag off given eventing a nice clean, crusted the stoma the skin is nice and dry and so ready for the bag and all of a sudden your output decides to make an appearance! Not Just once but continuously until you somehow manage to quickly slap that pouch on after yet 100 more wipes and cleans and crusting! 🤬
Watching you go through the same issues that I do is making me feel so emotional in a cathartic way.. I really needed that because not even my stoma nurse understands! You're a gem, I totally understand the fatigue as I'm knocked out half the time uncontrollably.. lots of love from me in the UK 🇬🇧 ❤️
So glad to see you back, I have had my Ileostomy since January and I really liked your videos as I prepared for surgery. I really liked those sure seals, will definitely will be ordering them. Keep smiling and thanks for the update.
Hi Mike! The SureSeal rings are absolutely great, so I’m glad you’re going to try them. The surgery is always really intimidating-there’s a lot to accept in a very short amount of time. I hope it went well and that your recovery was swift. It makes my heart sing to know that my videos were there in your pre-surgical life. Thanks so much for sharing a part of your story with me. It means a lot 💜
Just found your channel. I am a 58 year old woman who was diagnosed with Crohn’s at the end of 2020 and have had an ileostomy since 10/21. I love the SureSeal rings and they have been a godsend when I got peristomal pyoderma Gangrenosum. Sending you positive thoughts and a big virtual hug!
I am an older guy from England about to have a stoma. I have watched a couple of your videos now and have subscribed to your channel. You are a very brave and inspirational woman.. thankyou for what you do.
George, South Yorkshire, England
Don't have a stoma but you gave me so many ideas for dealing with my continuous glucose monitor, which really irritates my skin and falls off all the time. I'm gonna try out the powder for sure.
Thank you for making this, it was super educational!
That Active Lifestyle seal ring looks like a great extra item to use when traveling etc. You have a lot more products available in the US than we have in Europe. I’ll have to find a store that could ship me some of these. Thanks for the video update 😊 Greetings from Norway 🇳🇴
Hi Trond! Thanks for your comment...I'm so frustrated that you can't get Sure Seal rings in Norway. While I hope that a nearby medical supplies store might be able to ship you some of these, you've inspired me to film a video about how to dupe the rings with normal tegaderm. I want you to have something like Sure Seal rings for traveling because they really help with leak prevention when you're changing diet, getting on and off airplanes, sleeping in hotel rooms, swimming, showering, and just about everything! Stay tuned for that 💜
@@CecilyLivingBeyondtheBag I’m looking forward seeing your videos. I just want to thank you for making videos like this one 😊 I remember watching another youtuber just before my surgery, she was probably 16/17 when she made a video just like this one showing all the steps with cleaning and changing the bag. Because of this when the stoma nurse came to my room and said it’s time to change the bag i had on since the surgery, I told her that I wanted to do everything myself and she could watch and help if needed. She was surprised and told me she never had experienced anyone taking charge of stoma so fast after the surgery. So i have to thank you and other youtubers for making such awesome videos that helps people getting ready for their stoma surgery and hint and tips along the way. Thanks 😊 🌹
@@TrondOleJensen that’s so awesome! I’m really impressed that you changed it on your own for the first time…something I wish I’d done in retrospect. Very cool 😎 I’m so happy that someone was there to help guide you through the process. I didn’t find that on RUclips for a while…and it really does help. Thanks for this comment-it made me smile.
Hi! I just met you, I love how chatty you are and how you just keep rolling on while doing what you need to do - this was very interesting and I can't imagine being so chill - really want to hear more from you.
"blowouts are an inevitability, they will happen"....this was the first video I saw after I started to change the bag on my own and I was experiencing blowouts and I was so frustrated, hearing you say that was a turning point for me, everything was downhill after that, great leak stopping advice
Thank you for being so real. I just had emergency surgery for diverticulitis with perforation. Got this ostomy and it is a real inny, the flat bags were not working after 2 weeks. Had 3 blowouts in 1 days, my belly skin under is in horrible shape. Watching your videos has truly given me some peace of mind.
I am so grateful you, young lady. I feel grateful today that I discovered you. Thank you.
Thank you so much for your videos. I’m getting a loop ileostomy soon and you have helped me navigate all my fears and have given me confidence when it comes time to change my bag.
I had a regular ostomy for several years but since I'm physically active at work and home, I had a lot of blowouts. Finally, after a couple years of off and on research, I had
my ostomy converted to a BCIR. It's not without problems but much less trouble and worry than wearing a bag.
Where was your BCIR performed?
Your video wasn't all over the place at all. It was great.
Thank you so much!
I've never had any kind of stoma, just trying to get some education! However, I did want to say, I'm always amazed at how great nurses are. I'd walk into work hating my life (and it's customer service based!) Yet these people have such patience and never make me feel like I'm just a number. There must be nurses who hate it, but if so, they're damn good actors!😄
Cecily, you rock, girl. I so appreciate you! I've had a colostomy and urostomy since September 28th, 2015, due to recurrent gynecological cancer. I'm going to try the sure seal rings. I know this video is a year old, but I hope you are doing well! I struggle with depression and anxiety since my cancer surgery. Two ostomies has been such a challenge. But we have to persevere! I hope you're close to finishing school as well. Go, YOU!
Mam I ve had a colostomy and urostomy
Your wafer is much more complicated than mine. I’ve had a colostomy for 21 years. I gently pull off old wafer , wash area, apply skin barrier , add new wafer ,pouch and all done
Hi Judith! That's so cool. If you don't mind me asking, what brand of bag/wafer do you use? I feel that Coloplast's two-piece systems are definitely a bit more complicated than Hollister's, so that might be the difference in our routines. It's great to hear from veteran ostomates like you...it gives me and all the new ostomates who read your comment hope that this lifestyle is sustainable. Thanks for sharing! 👏
You are truly kind to show us how you change your pouch. Me, if I left my stoma unprotected for 15 minutes before reapplying the wafer and pouch I would have an output mess. I have to prepare everything I need in advance before removing my appliance quickly remove it, clean, dry and slap on the new one. You have a cute little stoma, mine is much larger. And the only pouches that work for me are coloplast two piece. If I were younger I’d ask you out but I’m not so please just accept the compliment.
Thanks for this video, Im about to get a surgery and its not reversible, but I’m still trying other ways maybe I won’t have to get a surgery, I still watch ur videos so I’ll be ready just incase, be strong & continue to inspire us
I was just in the hospital this past Sunday coz I coughed up a blood clot. All my labs, chest X-ray and CT Scan came back negative. I have a follow up appointment tomorrow with my GP. I’m like you, still have more questions than answers. I know this video came out awhile ago, but just seeing it now. Hope you are doing well.
Hi Cecily, I use the Coloplast rig just like yours, including the deep convex baseplate; however, I haven't been using the ring. I went a long time with no issues or blowouts but recently have been having a LOT of blowouts and I wonder if the ring would make a difference? What do you think? Thanks and bravo to you for being so brave and for your very helpful videos. I see you still have a picc line; I hope all is well, love. Cheers.
I do the TP trick, too. To curb the odor, I put a few drops of essential oil on it. Some activated charcoal works, too. The velcro doesn't always hold up, so I use little clips to secure, and it works great. Just for info.
You are an amazing young woman you will give a lot of comfort to many people,god bless you,
I just have to say ur kitty is adorable. Love black cats 🐈⬛. Me and husband are both disabled and retired and have alot of health issues as well. We share are home with 2 beautiful black cats, 1 male, 1 female and they are definitely are fur babies. Animals bring so much companionship and comfort to so many people. Thank you for being so open about ur challenges and problems. Iam sure ur helping more people then u even relieze. God bless you
I’m 3 weeks in, but I’ve had 4 picc lines in the past. Thank you so much! Y’all are amazing! Thank you!
Wow so I have had my ostomy for about 3 weeks/ nearly a month and I just stumbled across this video and within the first 45sec I exhaled. It feels very good to come across a community that I can ask any question I may have about my ostomy, it feels like it has already been so much change in my life, since my cancer diagnosis. I just want to say thank you so much, for making these videos. I'm still just learning what all of the products are and how they are used, so I'm guessing you can imagine how incredible t is for me to see your content.
What are your foot restrictions hun? My husband has had a bag for a year now. Good for you, for doing all of these videos. Bless
Goodness, blow outs seem to happen with the 2 piece products. I have had an ileostomy since 1985 and have never had a blow out. I use the one piece Convatec product. Less expensive, simpler to apply and easy to flush. Change out about every 3-4 days. Easy peasy.
Same,have the one piece also,work great,no blowouts, better having the urostomy then being in the ground.✌️👍
I use same pouch system for the same reason. Have trouble with the same type of leakage from the spout, too. But, like you, sticking with Coloplast. 👍
I had to laugh when you got surprised. I named mine "Sneaky Pete" and now you know why. It will catch you not paying attention and bingo, gotcha !!
Thank you for sharing the helpful information 🙏
Fantastic information. My surgery is in two days. What does the marshmallow mean? What kind of bag do you use? It looked as if it carried all your needs? I want to be prepared and you are my source of information. Thank you
Hi a little tip i use kitchen roll to dry my skin after using wet wipes non fragrance, works for me
Love your video! I’m very new at iliostomy world! Would you list the pouch you used?? I’m using Coloplast.
Love your informational vids!
I'm learning about the ostomy bag and now it works
My name is tom I got my stoma last year I the middle of January through February I was in a care home since March I love with my sister and her husband and kids she helps me to change my bag thank you for helping me in to get use to mine ❤
Fold the end opposite of 2 dot hook n loop ie an envelope
When emptying fold it to to hook n loop dots. So it will not get get soiled. I use an elastic belt. I use skin tak too. Let it dry
Thank you for your video,I don’t have this illness but like to know how others cope with these illnesses.I’m watching a year since your illness Hope Celia you are in much better health and able to cope day to day.Stay safe.❤️
I use teraderm skin tape and alcohol-free baby wipes. They're so affordable and the teraderm can be easily custom-cut.
Teraderm skin tape keeps my skin dry and no sweat because it's a breathable skin tape. Not more skin rash and so light on the skin that you don't feel it. Most of all, it is waterproof and the ileostomy bag sticks to it permanently.
I can shower without any worries.
I use a bidet to wash off the inner bag and my stoma while wearing the bag.
Kneel down beside the toilet seat and use the bidet to spray the inside of the bag and stoma. Just make sure the water pressure is not too high.
Hi Cecily, I have been watching your videos and you are so strong and positive. My name is Neil, I have had a colostomy, it prolapsed i then had further surgery and have had my colon removed and now have a iliostomy. I have a question for you my output is just liquid and I are going to the bathroom 10 to 12 times a day, do you have any advice? You are truly an INSPIRATION.. Keep up with the videos and I hope that you are staying well.
Hello Neil , I have a temporary loop ileostomy, I’ve had for 5 months now due to endometriosis in my rectum that was removed (bowel resection) surgeon is waiting for it to heal before I am clear for a reversal… but since you have an ileostomy , your stool will always be watery, soft etc because it doesn’t make it to the large intestines which normally hardens poo, but I realized that every time I eat rice, bread, cake etc my output is more of a pasty consistency.. and I try to reduce how much I eat thus fewer trips to the bathroom .. it used to be 10+ times for me per day , but now I’m down to about 5-7 times emptying daily ..
White rice. Marshmallows.green plantain.potatoe.kitkat candy. Espagueti with Alfredo sauce. Don't drink any soda o juice after eat wait half hour.and used desitin in around you estoma.after all powder and skin barrier just around no to much.
Im very upset about getting a colostomy bag.I have a very weak stomache and not sure i can handle it but im tired of not going anywhere because of accidents.Its affecting my marriage.Thank you for your knowledge
Hello Cecily. I just found you. I’m new to this 1st emergency operation day before thanksgiving 2022 2 nd one was March 28 an 29th. That one tried to kill me. The nurses I had for the most part sucked. I found that a my 20 oz gateraid bottle will help to cover stoma when leaking when you’re trying to change everything. Also I use the 2 piece click on If you wet a paper towel an wipe the rings it helps hook up bag. I am trying to get a Stoma Genie for the big change so I can use soap an water to help skin I have a high output bag so I prep everything so I can do it fast I also have small sticky plastic that I put around like your big ones A lot of things I learned on my own. Thank You for your videos. I have a ilostomy so I have to change a bandage on left side also. Small hole but the belt goes right through so i build it up a little. When I use gator aid bottle had to balance it on corner of sink top so I could go faster. Thanks again ✌️✌️🇺🇸🇺🇸
Hey, Rhode Island is a great place!
Thank you for the video. Please define retraction for those of us who aren’t in the know yet.
Please DO mention the good brands and products bc need all the help we can get from veterans😊
My nurse suggested using Pam cooking spray on the inside of my bag to prevent some of the pancaking .
My stoma output leaks out of the stoma loads when I change My bag.. I use stoma power to cover over any sore skin touching my stoma & it's frustrating when Iv put the powder on & output leaks as I have to keep wiping & cleaning the skin again & again each time which makes the skin very sore x
Very helpful video, I'm just going to try Coloplast so that helped a lot. I feel confident I will get it on successfully 💕
I have been using them for at least7 years can't live without them. I also use a magnum bag and love the plug to empty to protect my skin due to itching. my wound nurse told me to use floventHFA MY GU doc gives me the Rx. USO's o useCavilon then skin tac in my abdomen liquid adhesive to help prevent leaks. I also get wafers cut or I use new Hope hole😊 cutter I use protective seal convex (New) and use a brava ring in the outside ring to help with leaks. I also infuse 2 liters a day. I'm looking into pic covers. Any suggestions I do more and use other products would love to chat so glad your on
What do you use for a pick cover
Hi Cecily…Great To See You Again 😊….Great Informative Video….Thank You
Very informative. Love your cat. Please wash your hands after touching your cat before you change your bag though. Cats carry a lot of germs. Do you wear a pouch/belt when you leave your home?
I started out with a bag ,it leaked all the time ,so I had the Dr.to put a jay pouch in my body so much better for me.
I cut my wafer off center to help it not be on the scar so much I use mineral oil which is cheap compared to baby oil and use deodorizer to help prevent smelly things. Now there is a thing called stomacloak which has charcoal imbedded to help with odor. Washable works pretty well
12 mins with your stoma behaving... I was like what devilry.... How you get it to behave so well.
Don't know if this helps anyone but i find that on mornings when i wake up my gut is like still asleep... So i can get a 20 mins of peace to try to execute a change...
The worst luck i have had was 1hr 45mins... Trying to change... Because after every wipe... Boop... Out it came and i had to wipe again....
Very helpful video ty for sharing! Come back to wow lol !
MAY GOD BLESS YOU. THANK YOU FOR THIS INFO
I have to change the whole set because the wafer leaks. And bags are so expensice in the Philippines. Any reco?
Thank you great video.
My husband has an ileostomy and is not able to change his bag. He has sooo many blowouts. He has deep skin creases a hernia and a horribly prolapsed stoma. I have talked with wound clinic, Coloplast, Convatec nurses and nothing seems to help. We are both in ours seventies and it seems more than we can stand. I dont know where else to turn.
hello thanks for updates //I had to live with this for so long, its nice to see you doing great //its not been easy, for me at 14 years old , and doing the best I can in life , Jobs, money ,and my trade hydraulic , and work 7 days a week ,and marriage , its not easy on dates //lol
I have one too… i wish i could give u a hug we have come along way
Reversed here, but found the spray easiest to remove bag, spray wiat 30 to 60 seconds and come off easy peasy, my stoma was good only in the morning when I first woke up.
I totally agree, Cann! The spray is simply the best. For some reason mine were delayed in my most recent Edgepark order so I didn't have them on hand for the video but I wish I had. It's great for protecting the peristomal skin from denuding. Thanks for the tip and congratulations on your reversal! I hope you're doing well 💜
Is it okay for the lubricant to touch the stoma? That would help but thought maybe it shouldn't go against the stoma. I'm new to this. Thank you for information. Still having a lot of leaks. Keep getting new things to try. Thanks again
Hey cecily what are your little shelves in your bathroom called and. Where can I get them
Hi Amanda! Great question....I linked the shelves in the description but I'll leave it here as well. They are "Command Wall and Cabinet Organizer, Satin Nickel" shelves and can be found on Amazon at www.amazon.com/Command-Cabinet-Organizer-1-Organizer-BATH37-SN-ES/dp/B01C60CAYU/ref=sr_1_1_sspa?dchild=1&keywords=3m+command+shelf&qid=1628027809&sr=8-1-spons&psc=1&spLa=ZW5jcnlwdGVkUXVhbGlmaWVyPUEyMEJDWExMOVZBOU9FJmVuY3J5cHRlZElkPUEwNjgwMzA5MTNUR1pOUTJKN0ZLUyZlbmNyeXB0ZWRBZElkPUEwODk5MjM0MTZEREpDMTVVTVpETyZ3aWRnZXROYW1lPXNwX2F0ZiZhY3Rpb249Y2xpY2tSZWRpcmVjdCZkb05vdExvZ0NsaWNrPXRydWU%3D
I cannot recommend them enough! They've really streamlined my bag-changing process.
You are awesome Thankyou so much❤
I watched it again. Thank u
Hi Cecile, thank you so much for this video. My home nurse brought me the Coloplast Brava Elastic Barrier Strips. They are such a security for bedtime. Remember I had a colonoscopy. I am trying the coloplast 2 piece click. I realized I needed to be able to see my retracted stoma and it might give me a heads up on if I am getting a wafer infiltrate. Thanks for your love ❤️ for us. God bless you…
Hi Linda! I always love reading your sweet comments. I think that the elastic strips are a great option for extra security over night. I hope that you can sleep better knowing that you have an extra layer of leak protection. I totally agree that a 2-piece system is preferable for someone like you with a retracted stoma. Having the ability to see the stoma as you are placing the bag is a huge advantage over 1-piece systems. Please keep me updated and let me know if you are still having trouble with leaks. You can get through this...I promise. Sending love your way, as always 💜
@@CecilyLivingBeyondtheBag what I get from visiting you is a dose of strength to just chill. And I hope that we can strengthen each other thru all these challenges. I get down so much that I surprise myself because I have always been the upbeat one. Just like you it is hard to always be upbeat in this situation BUT we can do it. Keep up the great work.
You really do help me too, Linda. Very few ostomates that I’ve met on RUclips also struggle with retractions, so talking to you makes me feel much less alone. I lost my optimism for a long time after I first became an ostomate-but time really does help. I hope that you can get some surgical intervention so it’s easier to keep a bag on. I know how hard it is to live with sleepless nights and leaky days…but you’re adapting and I’m so proud of you. Keep your head up 💜💜💜
@@CecilyLivingBeyondtheBag well now I get a new challenge. This week I have been having terrible cramping it has gotten worse each day. My stoma opening in my skin is shrinking still. So I get up have my coffee and the stool starts but it is so skinny less than half licorice rope and I think the stool is backing up or maybe not able to get out as fast as it wants. It made me really feel sick this morning. I have no idea if this is normal. I did however get a recommendation from Dr on call that she would get me an appt next week with my surgeon. He told me that if he has to do a stoma revision he might as well just hook me back up so not sure what will happen. Later today I tried my third irrigation and about 250 of water never came out. Maybe my colon needed a drink of water. I have not felt well today and wonder how much is physical or mental. I do have high anxiety but never felt like this. Darn I am whining but am also unsure of what is really happening. it has been almost 12 weeks post op. I am not totally healed from the Hartmans procedure yet. 💕
@@CecilyLivingBeyondtheBag hello you. Ok so I emptied my bag which is still on after 2 days YAH, but it stinks. Normally the only time I have odor is when I empty and it is not this bad. Does the bags get permeated or something? My home nurse is ordering me some bag deodorizer. When you talk about getting down after 1 yr of 2 bouts diverticulitis 9 UTI’s then diverticulitis again, then the rupture it started in June 2020 and I had my surgery June 2021. 1 yr of antibiotics I just didn’t think it could get worse. I actually asked the good Lord where was the line to surrender as I just can’t do this. BUT as usual I slapped myself, metaphorical of course and am trying to be the positive person I am. For one week though I had the biggest pity party. So now I tell myself I get to have a pity party once a month. I can get in the shower and cry my eyes out. It actually feels good. 💗
Were you not a candidate for the "J loop" or whatever the surgery is called where a way to reconnect the rectum ?
Where did you get the wall shelves?
You can get the spray to takeoff the bag
Where can I go to obtain a sample of the C-19 for further study?
I have had leakage on the far end of my bag. I use two part.
What do you do about gas? I have a lot of gas my bag swells up embarrasses me, when I make all these noises.
You said you had multiple ostomies? I'm on my second. I'm a reostomste after j pouch failure
I love your kitty!
Can u make more videos of changing the bags please.
I can drink beer and its been ok for me 1 or 2 beer a in a day is all I drink , no blow out ,//I use the Hollister 8770 clips with CONVATEC SUR FIT Natura 1 1/2 drainables //I find it easy for me as I still rebuild car engines at my age and I have a 1960 Willys Jeep C J 5 i am rebuilding //so try Convatec 1 1/4 .
Anyone got any suggestions on things that really work for odour tried everything for 7 years now and nothing works
Beautiful ✨
Hi 😊😊great video.....👍👍
Thank you so much ☺️
I am at 8.15. Do you think you may have a vitamin B12 deficiency?
Hi Flower Petals! I'm not sure, do you mean that you have a blood level vitamin B12 of 8.15? I'm not a medical provider, so please take this with a grain of salt, but if you have a B12 level of 8.15 pg/ml then you should definitely ask to be re-tested. If accurate, that is an alarmingly low value. Normal adult vitamin B12 values range from 190 and 950 picograms per milliliter (pg/mL), and doctors generally consider anything below 200 pg/ml to be on the lower end. Please look into your result and ask your provider if therapies like vitamin B12 injections. 💙
What a Godsent! Thanks so much! I remember those college days; I recommend not putting your career (studies) first, if that makes any sense. ☺
My stoma has constant output, I could never sit there like that without holding something on my stoma
I’m allergic to tegaderm. I’ll be stuffed if I ever have to get an ostomy
No way would my insurance pay for as many remover wipes you use. The remover spray is less expensive than using that many wipes and much less pulling on the skin. Your wafer is large. I found going to a smaller wafer helps me from getting more skin irritation. Great videa
I’m a Caregiver for my wife and leakage has been a problem
I heard marshmallows and peanut butter were good too help slow down output
Hey Keith! I knew about marshmallows but never tried peanut butter before 🤔 That’s a great tip…thank you so much for sharing ❤️
@@CecilyLivingBeyondtheBag yes my austomy nurse told me and it's all new too me I just had my ostomy then major complications do too it I been in the hospital 3 months tomorrow now a couple day ago my ileostomy it's been a trip and he been giving me tip do too the massave problems I am having send me a shout if both work together well it's I tell you is going to be important too know because my problem child I call mine is going too fight me all the way. All love and prayers I pray your well GOD BLESS
🙏 ❤
I’m so sorry to hear that you’ve been struggling with the health of your stoma, Keith! I know what it’s like to spend months in the hospital with no end in sight…you’re in my prayers. Ostomy complications can be so scary but I hope you’ll be back to your normal life soon. Thank you so much for your kindness and positivity-you’re going to get through this! 💕