Collin, your suggestions are always great! I so appreciate all the support I get from amazing ostomates like you! Just to be able to communicate and share tips with others makes all the difference in living this way. You are a gift to an ostomate’s mental health!!
I find your videos very informative, I am 72 not active for the last year as chemo taxed me just got a colostomy and now on round 3 of chemo, it’s nice to see video’s from someone who actually has a osteomyelitis, I have watched a few RUclips videos and there is not way they actually have a stoma, your videos actually show the stoma which is refreshing as I was beginning to think mine was the only one to look like it, I especially liked the video of how you can bath with your osteomyelitis. Thank you for so much information
We’re so glad we could help! Please let us know if there’s anything else we can do to help. And there may be some videos you’re seeing where people are not showing stomas because they often get flagged as violent content for some reason.
Great! If only I had known your channel months ago. I’ve learnt so much more from you than some of the support workers I’ve had. It’s good getting to know you too. Thank you so much
This video is outstanding! I’m so happy that another person with an ileostomy can actually talk to me about hydration. I have really struggled with it despite drinking nearly 1 gallon of water per day even prior to cancer, chemo, radiation, and ileostomy. I just prefer water than other beverages, which is why I drink so much of it not to chug just to drink.but I’ve had to learn to drink it and I’ve had to learn to add electrolytes to my water. But I’ve also now started eating food. Have electrolytes my body beans as that seems to be a more efficient way of getting it in.
Hi I've had an ileostomy without a large colon since 2020. I am 49 and have just had a surgery for disc removal and fusion in my neck. Its very important to please note that while having a stoma and having any surgery in the future that you understand that the anesthesia your given may shut down your digestive system and so having outpatient surgeries may require impatient surgery so they can keep you hydrated after the surgery. I only learned this by having the outpatient surgery and going home drinking all my water then getting nauseous and sick due to my digestive system being shut down for the surgery. Thank you for this information.
I am 2 years in and i STRUGGLE with hydration. I never drank a ton before my ostomy so trying to get it in now plus more, its been the hardest part of this for me.
Its tough to stay ahead of it even without an ostomy! Thats why we're such big proponents of building routines, so it become a habit rather than something you have to constantly be reminded to do. Easily said, challenging to do, but ALWAYS worth while :)
Yet another excellent video. I didn't even realise that we had extra hydration needs. I will be acting on some of these recommendations. More water coming my way!
So glad you like it! Even if we didnt have ostomys, its said that about 75% of Americans do not meet their daily hydration needs - wont hurt to get some more hydration going regardless
@@collinjarvis6251 I have a question for you Collin. Given your active life, you must have tried swimming. How long can you swim without the adhesive on the bags becoming a bit suspect? I am only 18 months into mine so I have no idea and need to know how many spare to take on holiday.
@@andrewgreenwood8554 I swim fairly often! Generally speaking, as long as im wearing my Stealth Belts I dont feel that the water makes the bags come off any sooner than they would need to otherwise. I typically will swim like 30-40 mins lap swimming or occasionally go surfing. I'd definitely bring more appliances than you think you'll need to be safe when you go on holiday and while you're still adjusting to your set up... but 9 years into have an ostomy and I dont even think twice about whether i'll be in the water or not. Maybe that will have to be my next video! :)
it will varey widely from person to person! also, the *amount* is only a part of the puzzle, but when and how you drink that amount will also have an impact. :) Happy Hydrating!
I'm post surgury as well. Like I'm still in the hospital. They've stressed the importance of staying hydrated so the fact your nurse said 2.5 liters is a little shakey to me. I'm supposed to have a gallon and a half but I'm also a larger man so that might make a difference.
@@waynegraham7608 this was quite a while ago now and I found out pretty quickly that was barely enough. On a hot day or a day where I’m active it doesn’t cut it so I usually have 3l and on days where I’m super active as much as 5-6
Your video was very informative, with hydration. I have a problem with that because I don't like water. So I Have to force it down and never seems to be enough. I use drip drop but it becomes to much sugar. Any suggestions?
Really appreciate this video. I have a tendency to have coffee in the morning and diet Dr Pepper at lunch. I have to focus on getting more water into my daily routine.
Glad you found it helpful! And you can still have your routine coffee and dr pepper if it works for you currently - just getting more water in the mix throughout the day will still give some improvement.
Im due to have a iliostomy in 2 weeks, even though I've had my chemo, I'm still got and healthy, i drink around 2-3 lots of liquid a day will that help with my lower anterior resection
Check out ostomy.org for great resources for new ostomates, and be sure to check out our shorts on this channel for FAQ's and some advice. Let us know if there are any videos you would find helpful. We take feedback seriously and we would love to help you feel more confident and comfortable.
Collin, your suggestions are always great! I so appreciate all the support I get from amazing ostomates like you! Just to be able to communicate and share tips with others makes all the difference in living this way. You are a gift to an ostomate’s mental health!!
I find your videos very informative, I am 72 not active for the last year as chemo taxed me just got a colostomy and now on round 3 of chemo, it’s nice to see video’s from someone who actually has a osteomyelitis, I have watched a few RUclips videos and there is not way they actually have a stoma, your videos actually show the stoma which is refreshing as I was beginning to think mine was the only one to look like it, I especially liked the video of how you can bath with your osteomyelitis. Thank you for so much information
We’re so glad we could help! Please let us know if there’s anything else we can do to help. And there may be some videos you’re seeing where people are not showing stomas because they often get flagged as violent content for some reason.
Great! If only I had known your channel months ago. I’ve learnt so much more from you than some of the support workers I’ve had. It’s good getting to know you too. Thank you so much
what a fantastic informative video
This video is outstanding! I’m so happy that another person with an ileostomy can actually talk to me about hydration. I have really struggled with it despite drinking nearly 1 gallon of water per day even prior to cancer, chemo, radiation, and ileostomy. I just prefer water than other beverages, which is why I drink so much of it not to chug just to drink.but I’ve had to learn to drink it and I’ve had to learn to add electrolytes to my water. But I’ve also now started eating food. Have electrolytes my body beans as that seems to be a more efficient way of getting it in.
Hi I've had an ileostomy without a large colon since 2020. I am 49 and have just had a surgery for disc removal and fusion in my neck. Its very important to please note that while having a stoma and having any surgery in the future that you understand that the anesthesia your given may shut down your digestive system and so having outpatient surgeries may require impatient surgery so they can keep you hydrated after the surgery. I only learned this by having the outpatient surgery and going home drinking all my water then getting nauseous and sick due to my digestive system being shut down for the surgery. Thank you for this information.
Happy to help!
A wealth of information, thanks!
I am 2 years in and i STRUGGLE with hydration. I never drank a ton before my ostomy so trying to get it in now plus more, its been the hardest part of this for me.
Its tough to stay ahead of it even without an ostomy! Thats why we're such big proponents of building routines, so it become a habit rather than something you have to constantly be reminded to do. Easily said, challenging to do, but ALWAYS worth while :)
I have problems holding onto bottles cups etc due to arthritis in hands and have to count on water bottles but love your Ideas
Thank you for another great information. I found that bodyarmorlyte has great electrolytes ,good in potassium
Thanks for sharing that tip, and we’re glad you found the video helpful.
Yet another excellent video. I didn't even realise that we had extra hydration needs. I will be acting on some of these recommendations. More water coming my way!
So glad you like it! Even if we didnt have ostomys, its said that about 75% of Americans do not meet their daily hydration needs - wont hurt to get some more hydration going regardless
@@collinjarvis6251 I have a question for you Collin. Given your active life, you must have tried swimming. How long can you swim without the adhesive on the bags becoming a bit suspect? I am only 18 months into mine so I have no idea and need to know how many spare to take on holiday.
@@andrewgreenwood8554 I swim fairly often! Generally speaking, as long as im wearing my Stealth Belts I dont feel that the water makes the bags come off any sooner than they would need to otherwise. I typically will swim like 30-40 mins lap swimming or occasionally go surfing. I'd definitely bring more appliances than you think you'll need to be safe when you go on holiday and while you're still adjusting to your set up... but 9 years into have an ostomy and I dont even think twice about whether i'll be in the water or not.
Maybe that will have to be my next video! :)
@@collinjarvis6251 That’s great news Collin. Thanks for replying. I guess it would make an interesting video.
this is great! Even if you do i.v. nutrition you need to drink your water. You are a great example for all of us who exercise alot! Thankyou!!
That was great, thank you. I have stage four kidney disease, am 77, due to watery output. Dehydration affects my eyes, energy and short of breath.
I'm shocked as my ostomy nurse told me post-surgery just 2-2.5L a day. I will definitely be increasing this.
it will varey widely from person to person! also, the *amount* is only a part of the puzzle, but when and how you drink that amount will also have an impact. :) Happy Hydrating!
I'm post surgury as well. Like I'm still in the hospital. They've stressed the importance of staying hydrated so the fact your nurse said 2.5 liters is a little shakey to me. I'm supposed to have a gallon and a half but I'm also a larger man so that might make a difference.
@@waynegraham7608 this was quite a while ago now and I found out pretty quickly that was barely enough. On a hot day or a day where I’m active it doesn’t cut it so I usually have 3l and on days where I’m super active as much as 5-6
Thank you. Very helpful.
Your video was very informative, with hydration. I have a problem with that because I don't like water. So I Have to force it down and never seems to be enough. I use drip drop but it becomes to much sugar. Any suggestions?
Really appreciate this video. I have a tendency to have coffee in the morning and diet Dr Pepper at lunch. I have to focus on getting more water into my daily routine.
Glad you found it helpful!
And you can still have your routine coffee and dr pepper if it works for you currently - just getting more water in the mix throughout the day will still give some improvement.
Did you ever listen to "Kent Carnivore" - he is amazing what he experienced and learned about food and how to be in control with a stoma bag.
Thank you very interesting
Im due to have a iliostomy in 2 weeks, even though I've had my chemo, I'm still got and healthy, i drink around 2-3 lots of liquid a day will that help with my lower anterior resection
I use a Cirkul water bottle due to being able to drink flavored water without any sugars
I had ileostomy 7 months where i can buy stealth belts like yours.
Go to stealthbelt.com and call 800-237-4491 if you have questions!
How much is stealth belt and where can we buy that stealth bag.
Go to stealthbelt.com to see our full range of products and prices and give us a call if you have any questions!
I have ileostoma as well not even 3 weeks in and im lost please help
Check out ostomy.org for great resources for new ostomates, and be sure to check out our shorts on this channel for FAQ's and some advice. Let us know if there are any videos you would find helpful. We take feedback seriously and we would love to help you feel more confident and comfortable.
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What is the genie tube
It collects waste so you can effectively clean your skin.