2023 Fatigue in EDS: An Overview of Causes, Assessment, and General Principles of Management

EDS ECHO Summit: Fatigue
Virtual Summit, October 21, 2023
An overview of the evaluation and management of the most common factors contributing to persistent fatigue in people with EDS.
Dr. Pocinki is a general internist in Rockville, Maryland. He has been interested in the joint hypermobility syndromes and related autonomic and sleep disorders since the late 1990’s, and has spoken often on these subjects at local and national meetings. He has received a variety of awards for service to his profession and his patients, most recently the American College of Physicians Leadership Award and The Ehlers-Danlos Society’s Lifetime Achievement Award.

[@melissahulett5879]

Thanks for all of the content you share. I was recently diagnosed with benign hypermobility syndrome,willis eckbom and also dysautonomia. Ive hurt and not felt well probably most of my life and im now 57. The diagnosis explains a lot. I hope to gain a lot of insight watching the videos. I also enjoy your fb page.

[@vynedvyne59]

Sir❤Thank you-the videos I have watched over the last 3 years have taken me off the floor and into life by applying the knowledge 🎉Bless you and those who fight for us😅

[@ruparkyitin]

antidepressants has not much effect to relive depression.
sleeping pills are not helping to get real sleep.
painkillers are not relieving pains...
in this situation, what shall i do?

[@TheEhlersDanlosSociety]

Our helpline can connect you with tips and resources for pain management! www.ehlers-danlos.com/eds-helpline/

[@Lionessliving]

Low dose Naltrexone.

[@ResurrectingOpal]

Gene Sight is a genetic test that helped me get matched with antidepressants that work for me! Before that I tried so many different meds and mixtures. It was so exhausting. I wish you the best! ❤️ finding the right medicine can help so so so much, but there are other small things you can do that might help a little bit.