I just got diagnosed and I have no clue. The doctor gave me meds but didn't say anything about diet... I'm so happy I found you, I wish you many many healthy days 🤗
I am so sorry for my late reply ! quarantine got me in rut ! lol i know its been quite awhile , how have you been feeling since your diagnosis ? how has your diet been ? Thank you for reaching out : )
@@StomachSister thanks for responding ❤️ I got budesonide and complementary Probiotics. Had to take 3 pills a day in the beginning but it worked within a couple days. I'm pretty good now, continually lowering doses to slowly wean my system off of the budesonide. I now only take one every other day and I'm still fine. Diet could be healthier 😅 but I know more of my trigger foods and avoid them. How about you, you haven't posted in a while and I was wondering how you're doing? :)
for me prefer all natural chicken breast n type nugget only when really no time for cook really sometime better and less dessert with less lactose too better n no soda too .i habe colitis 10year so i learn by time and listen to your body
I drink saki (has to be gluten free) I have been able to tolerate Tito’s vodka (on occasion) But my go - to is a gluten free brewery called Green’s , I can tolerate all of their beer ! I’ve tried plenty of gluten free beer but theirs is by far the best 💙 Have fun and be safe in Florida !
Does any one else suffer from the rectum area? Iam suffering from this part for too long and its very painful I went to 2 different doctors cause I thought i have hemorrhoids or anal fissures but they said I don’t have hemorrhoids iam also have microscopic colitis
I was diagnosed with CC about a week ago but I’ve been struggling with it for years now. I really feel you girl, I eat about the same thing every single day. It’s so repetitive and it makes me so sad 😩
Hi i apologize its taken me so long to reply! How have you been since your diagnosis ? What does your diet look like ? It is super repetitive and i get soooo frustrated, the illness alone sucks and not being able to eat and just get some satisfaction is one of the worst parts for me! Thanks for watching and reaching out and letting me know i'm not alone xoxo
After 15 yrs of CC which I just found out I have after a dr. visit. She's putting me Budesimide, which will eliminate the problem in 90% of cases. Don't wait like I did and end up with a year of extremely diffficult neuro symptoms including 4-5 hrs sleep on Ambien. I have zero appetite for one. If you're worried about this drug as it's a form of steroid, it's safer than regular steroids as it goes directly into the intestines or something like that - can't explain exactly. I wish someone had told me about this, so get help now from a GI doc. After a colonoscopy in July, because of my symptoms, I had a horrid reaction to the Propofol, the sedative they give due to my nervous system. The bowels are so connected to the nervous system. Now I even know when I'll eliminate because I get hot and shaky just before i poop.
I peel my potatoes and I eat loads of fruit! Most take-aways mess me up so I cook from scratch! Unless I eat out at a place with organic food or gluten free options. *ALL GM FOODS MESS ME UP* Plane white rice is better than brown rice for me.
What would we do without potatoes? Have you tried Calfia Farms coconut milk? I usually buy the almond/coconut blend but I also like the plain coconut milk. Are you as freaked out as I am about the lack of veggies in our diet? I’m trying to find a green powder to put in smoothies but I also know it’s not the same as fresh greens. Love your flying pig 😂
Haven’t tried the calfia farms yet ! I just noticed I can’t tolerate almond milk but seem to do okay with coconut milk. It used to freak me out the lack of balance in my diet but for now I’m just like .. at least there are SOME things I can eat because for so long it felt like I had zero options! If you find any good substitutes please share 💛💛💛 Hahaha thank you ! Had him forever and I just love to say “when pigs fly” and point to him 🤣😂💕
Do you have a problem with sugar at all.? I heard you say you eat Chocolate Chex cereal. I have a problem with every thing SWEET. Chocolate is also a no nono for me too.
Unfortunately no, I can’t eat out. 😫💔Cautious about the chance of cross contamination’s. I have never been on any steroid due to the long term side effects and damage they can cause. They may offer medically induced remission but once you stop taking the drugs the symptoms return causing relapse. Looking for a more long-term solution. There are a bunch of studies done & a lot of articles about it, this just my path tho ! ❤️💛❤️
Hi 🙋🏻♀️ yes I am able to tolerate coffee and tea. Only when I am not in a flare. If I’m in a flare I pretty much am intolerant to everything and anything.
Yes on the cocktails!!!
I just got diagnosed and I have no clue. The doctor gave me meds but didn't say anything about diet... I'm so happy I found you, I wish you many many healthy days 🤗
I am so sorry for my late reply ! quarantine got me in rut ! lol i know its been quite awhile , how have you been feeling since your diagnosis ? how has your diet been ? Thank you for reaching out : )
@@StomachSister thanks for responding ❤️ I got budesonide and complementary Probiotics. Had to take 3 pills a day in the beginning but it worked within a couple days. I'm pretty good now, continually lowering doses to slowly wean my system off of the budesonide. I now only take one every other day and I'm still fine. Diet could be healthier 😅 but I know more of my trigger foods and avoid them. How about you, you haven't posted in a while and I was wondering how you're doing? :)
Need this info. You’re a hero. Thx.
Excellent video. Thanks!
for me prefer all natural chicken breast n type nugget only when really no time for cook really sometime better and less dessert with less lactose too better n no soda too .i habe colitis 10year so i learn by time and listen to your body
Yes what can you drink alcohol wise???? Going to florida end of October!!!
I drink saki (has to be gluten free)
I have been able to tolerate Tito’s vodka (on occasion)
But my go - to is a gluten free brewery called Green’s , I can tolerate all of their beer !
I’ve tried plenty of gluten free beer but theirs is by far the best 💙
Have fun and be safe in Florida !
Does any one else suffer from the rectum area? Iam suffering from this part for too long and its very painful I went to 2 different doctors cause I thought i have hemorrhoids or anal fissures but they said I don’t have hemorrhoids iam also have microscopic colitis
I was diagnosed with CC about a week ago but I’ve been struggling with it for years now. I really feel you girl, I eat about the same thing every single day. It’s so repetitive and it makes me so sad 😩
Hi i apologize its taken me so long to reply! How have you been since your diagnosis ? What does your diet look like ?
It is super repetitive and i get soooo frustrated, the illness alone sucks and not being able to eat and just get some satisfaction is one of the worst parts for me!
Thanks for watching and reaching out and letting me know i'm not alone
xoxo
After 15 yrs of CC which I just found out I have after a dr. visit. She's putting me Budesimide, which will eliminate the problem in 90% of cases. Don't wait like I did and end up with a year of extremely diffficult neuro symptoms including 4-5 hrs sleep on Ambien. I have zero appetite for one. If you're worried about this drug as it's a form of steroid, it's safer than regular steroids as it goes directly into the intestines or something like that - can't explain exactly. I wish someone had told me about this, so get help now from a GI doc. After a colonoscopy in July, because of my symptoms, I had a horrid reaction to the Propofol, the sedative they give due to my nervous system. The bowels are so connected to the nervous system. Now I even know when I'll eliminate because I get hot and shaky just before i poop.
Can you have all of these great food suggestions while flaring? I've been symptomatic since September, just diagnosed this month.
I peel my potatoes and I eat loads of fruit!
Most take-aways mess me up so I cook from scratch! Unless I eat out at a place with organic food or gluten free options.
*ALL GM FOODS MESS ME UP*
Plane white rice is better than brown rice for me.
Hi has anyone tried Dicyclomine for MC? I’m trying it for the first time now
Please try fruit and vegetables don't eat packed food
Unable to tolerate any raw fruit or veggies unfortunately, I never eat anything processed though that’s for sure 💛
What would we do without potatoes? Have you tried Calfia Farms coconut milk? I usually buy the almond/coconut blend but I also like the plain coconut milk. Are you as freaked out as I am about the lack of veggies in our diet? I’m trying to find a green powder to put in smoothies but I also know it’s not the same as fresh greens. Love your flying pig 😂
Haven’t tried the calfia farms yet ! I just noticed I can’t tolerate almond milk but seem to do okay with coconut milk.
It used to freak me out the lack of balance in my diet but for now I’m just like .. at least there are SOME things I can eat because for so long it felt like I had zero options! If you find any good substitutes please share 💛💛💛
Hahaha thank you ! Had him forever and I just love to say “when pigs fly” and point to him 🤣😂💕
I can do rice milk sometimes. That’s all😟
i haven't given that a try yet ! will do and report back , thanks for the suggestion !
Have you tried rice "milk"?
Do you have a problem with sugar at all.? I heard you say you eat Chocolate Chex cereal. I have a problem with every thing SWEET. Chocolate is also a no nono for me too.
me too i cant to much cereal and event oatmeal n avoid milk n less sugar n no mucj fried n fatty
Are you okay?
Yes, thank you :)
Can you eat out? Have you ever been on budesonide?
Unfortunately no, I can’t eat out. 😫💔Cautious about the chance of cross contamination’s. I have never been on any steroid due to the long term side effects and damage they can cause. They may offer medically induced remission but once you stop taking the drugs the symptoms return causing relapse. Looking for a more long-term solution. There are a bunch of studies done & a lot of articles about it, this just my path tho ! ❤️💛❤️
Do you drink any caffeine?
Hi 🙋🏻♀️ yes I am able to tolerate coffee and tea. Only when I am not in a flare. If I’m in a flare I pretty much am intolerant to everything and anything.