6) Cycles of depression in the past decade have changed me. I don't tend to my physical appearance as I should, nor my home. Rarely leave my room or go out. Married 43 yrs to the most wonderful man! I grieve for who we used to be together.
I have had severe Fibromyalgia and Myalgic Encephalomyalitis for 31 years. Meaning, most of my life is spent laying down since sitting and standing are super painful and I'm exhausted all the time. This year I started Ketamine infusions as wel as a compounded nasal spray of Ketamine daily. It definitely helps but I have had tons of questions. It would help so much to have a group to be part of online for Fibromyalgia patients who use Ketamine so we could learn from each other and support each other. Is there such a thing? Where? Thanks so much for doing these videos. My own Ketamine doc isn't so informative. I feel like I'm floundering in the weeds without professional direction. So thank you!
I’m replying after reading your comment, currently attached to my 24 mg /30 ml /h infusion pump . I go home tomorrow. This is my 2 nd dose working 7 month treatment schedule. I’m in Melbourne Australia . Woman, mother of 5 , 52 yrs age . Needing a plan to navigate the system to fill the gap between these infusions. They are so vital but not enough if I am to gain headway with pain management. I’ve tried many lifestyle / diet changes& supplements. Still want to upgrade with support between these week respites that are costly but life changing. Wondering how to access nasal ketamine . I have a diagnosis of CPTSD also that interacts with Fibromyalgia and pain experience. So depression, and the need for mental distress support . I don’t v take any opioids or anti depressants. I have seen : studies and samples enough to know I’m not willing to use them in my plan. A support group is needed , reaching out to you and wishing you all wellness and helpful advances in your health.❤
@mamaelfian May you be blessed with answers and healing. What you want sounds necessary considering the illness/issues. I wish I had the power to grant that to you. Big hugs!
I’ve been dealing with crazy nerve pain from my ears to my jaw, and in my SI joint. They diagnosed it fibromyalgia. I’m sooo interested in these ketamine treatments because it seems like nothing else is working for me! I’m in so much pain!
Is your SI joint still bothering you? I had a fusion done on mine 5 years ago and have fibromyalgia, too. It helped tremendously. It took about a year to totally level out, but it was a good move. I-fuse was the procedure. Best wishes.
I have been dealing with this disease foe years now, and as complicated as it sounds, my doctor believes I have CRPS as well. This is making sense to me, though there are MANY similar symptoms. I have been getting ketamine infusions for a few years now, and recently have experienced this connection with god or the universe or whatever you want to call it. Something very deep and magical and spiritual. Thank you so much for your informative and rather enlightening video! 💕🙏💕
If this is effective for fibro, then it should be effective for CFS, RA, Dysautonomia as these are all disregulated nervous system issues. More and more it is coming to light the brain and nervous systems role in ALL chronic illness.
Good to get a better understanding of how ketamine works. I've been having regular infusions for the last few years (for fibro) and find it to be so hopeful in lowering my pain levels.
You're a great man Dr. Ko. This community of Fibromyalgia suffering patient appreciate you very very much. Thank you for giving us hope. From 10 Million strong!
1)Realizing this video was made 2.5 yrs ago....I am a FM gal of 61. Diagnosed at 33 by a rheumatologist who simply gave me a newspaper article to explain it (1993). Yup. That's all!
I have recently been diagnosed (after many years of being brushed off by dr's) with small fiber nueropathy after skin biopsy but not fibro, though I believe I do have fibro aswell because I have whole body pain, just havn't been diagnosed cuz most dr's are uneducated when it comes to pain syndromes. It switches from one pain symptom to a totally different pain symptom constantly. One day will have nerve pain in my hands and feet, then the next day it switches to whole body muscle cramps, then it switches to allodynia where it hurts to put pressure and the muscles start twitching and tremoring, then it will switch to burning in my face and top of head and on and on its crazy.
I've had FM for 40 plus years. I've spent most of my life investigating FM. May I ask you if you have Nonrestorative Sleep which is not the lack of sleep but rather the inability to recharge the body's energy after sleep. As if you feel like you have not slept after sleeping for countless hours. Nonrestorative sleep is one of the hallmarks of Fibromyalgia aka Centralized Sensitization.
@@ResetKetamine Hello I’ve been watching you a lot . I have serious agonizing nerve widespread pain like knives ,hot coals in my rectum ,wearing a razor blade corset and burning skin ,spine ,hip soul crushing pain! I can’t sit stand or lay down without excruciating debilitating crippling severe brutal pain,my clothes and all furniture hurts so I don’t sleep just broken sleep 😖😭 I’m getting infusion on Wednesday and 5 after that ,do you think this can help me ? I’m tried everything. This all started after I was forced off 16 years of 2mg ativan taken as prescribed for one panic attack! I’ve been on a opiate for a neck injury for 32 years and I’m opiate resistant now . Between the darn benzo and opiate my brain is so messed up and I’m excited because this is hopefully the way to rebuild the synaptic and neuron pathways and block the NMDA receptors. I appreciate you and the videos. Be well Dr Ko 🦋
8) Mainly for depression but FM, neuropathy, CRPS too. It's not for the weak of mind! The pain of the death of our 6 day old, 1st granddaughter in 2012 was prevalent. She is FINE in heaven; I am still grieving. This 2nd round has caused an awful FM flare. Rt here at Christmas. Not sure if or when I'll do it again. "Waking" to horrors that I wasn't real anymore were SSOOOO real this time. I was petrified! Even pinched on the dr to be sure i was "back on earth"!! Yes, I had prepared properly!! Still waiting on the positive this round. Setting & caregivers: wonderful! (Revitalizing Infusions, Kissimmee, FL)
7)Oh, he's been a pastor 30yrs of the same church. Cymbalta, fentanyl patches, elavil, methadone, opiates, muscle relaxers...a few things I've been on in 40yrs. I've now had 5 total K-IV infusions. 3 in Oct. 2 a week ago. 3hrs each.
I'm doing my first ketamine treatment under the tongue and I have SLE lupus is there any clear data on its benefits for my condition or for endometriosis?
How long does the pain relief effect last after few Ketamine infusions? Is it permanent? Is it at higher dose than the treatment for PTSD or depression? Or do patients need Ketamine intermittently? Thank u
5) (2004) w complete renal & liver failure as he'd abused RX meds for decades, even taking meds from sr citizens at his churches. I am the eldest of 5, very driven, perfectionist tendencies. Most FMers are.
Dr. Ko, Does Ketamine show any potential for helping trigeminal neuropathy? My hubby suffers from it, and it's terribly difficult to treat. Thanks for all of you awesome information!
I’ve tried ketamine infusions couple of times for central sensitization and chronic pain. But each time after infusion I get pain flare up lasting for several days. Can you please explain why this is happen and if it’s normal? Tnx
Hi! I'm Ricardo, anesthesiologist from Brazil! I work with intravenous infusion of Ketamine for depression and chronic pain. I would like to hear your opinion on ketamine-guided psychotherapy. Do you do it in your clinic?
I think memory encoding is what's being rescripted by the introspective or "spiritual" encounters. In other words, the patient is working through the body/minds trauma and resetting the fight or flight memory response.
CPTSD as well, probably the trigger in my case for FM; and/or the shitty fkn vaccines that the psychopaths force on just about everybody, including just about all children. Ketamine, psychedelics.. have been the only thing in the external world that has done anything worthwhile, and been profound and beautiful at that
4) Made it tough to express what was going on w me. I hid doans pills, Tylenol, excedrin. My dad went thru similar things tho not widespread pain. Mostly his chest, head, neck, depression. He was a pastor so this wasn't looked at kindly by fellow pastors. At. All. He died 30 days from 65. Sigh.
2)My legs, low back, hips began "being chewed on by zoo animals" when I was 6-7yrs old. At puberty, (12-13) after sitting still(school, church) pain made getting up & moving unbearable & embarrassing.
I have fibro and have been on all the drugs dr.s normally prescribe and it just seems like my symptoms have been getting worse over time. I've even tried CBD and Kratom but not much luck. I did try smoking ketamine once but it was more of a high than anything else so I would like to know if there is a better way to do this that would be more effective for pain relief.
We treat patients with intravenous (IV) ketamine with continuous vital sign monitoring. We believe this is the safest and most effective for pain relief.
They tried to kill you, but you are alive and you will get through this! :) Go natural in general, ketamine and proper use of psychedelics are great tools.
Anti inflammatory and opioids are not effective in fibromyalgia and in fact opioids will make it worse and cause opioid induced hyperalgesia - as the natural opioid system Is already maxed out with the central sensitisation possibly caused by glial cell inflammation - anti inflammatorys will only help if there is also peripheral inflammation as well as the fibromyalgia .As well as the Duloxetine you mention there are also the older tricyclic a/d. As well as attempting to boost the descending inhibitory pathways with neurotransmitters gabapentanoids can be used to dampen glutamate excitement- neither approach works in more than about 1/3 of patients with about 30% pain relief - the numbers are a little better with poly pharmacology such as Duloxetine with Lyrica - but still not great and with bad side effects so Ketamine in a most welcome development.
3) I thot every girl felt her insides being ripped out when urinating/bowel habits during her period. Migraines. Increased pain included shoulders, neck, every trigger point. Note that I'm like a copy of my paternal gr'mother and my Mom hated her.
Don't get me wrong ur wicked smart but that Colorado kid died of ketamine. Isn't this known as special k? Wasn't this known as a club drug in the 90s? Chance of addiction.
1) Ketamine must be used responsibly at all times, and ideally with doctors present. I'm not sure of the exact details of the death in Colorado, but it's not 100% safe, especially in high adrenaline situations involving carotid chokes & unknown medical history. 2) Ketamine was known as special K on the street and was known as a club drug. Read about the history of ketamine here: www.resetketamine.com/blog/2018/10/14/a-brief-history-of-ketamine 3) Please read this post about chance of addiction here: askp.org/are-ketamine-infusions-addictive/
Omg 😳 I thought this was a Cat tranquilizer Rx .. hmmm 🤔 I remember that story they stole the ketamine from a veterinarian clinic and took it orally.. .. man I’m just tired of having pain .. but I will do more research on this special K ..
![Felix "Unfair" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/Oswujxm2Ag0/mqdefault.jpg)
I had ketamine infusions to treat my depression and was surprised to find how beneficial it was for my diagnosed fibromyalgia.
Hi did you get good relief from your pain ?
6) Cycles of depression in the past decade have changed me. I don't tend to my physical appearance as I should, nor my home. Rarely leave my room or go out. Married 43 yrs to the most wonderful man! I grieve for who we used to be together.
I have had severe Fibromyalgia and Myalgic Encephalomyalitis for 31 years. Meaning, most of my life is spent laying down since sitting and standing are super painful and I'm exhausted all the time.
This year I started Ketamine infusions as wel as a compounded nasal spray of Ketamine daily. It definitely helps but I have had tons of questions.
It would help so much to have a group to be part of online for Fibromyalgia patients who use Ketamine so we could learn from each other and support each other. Is there such a thing? Where?
Thanks so much for doing these videos. My own Ketamine doc isn't so informative. I feel like I'm floundering in the weeds without professional direction. So thank you!
I’m replying after reading your comment, currently attached to my 24 mg /30 ml /h infusion pump . I go home tomorrow.
This is my 2 nd dose working 7 month treatment schedule. I’m in Melbourne Australia . Woman, mother of 5 , 52 yrs age . Needing a plan to navigate the system to fill the gap between these infusions. They are so vital but not enough if I am to gain headway with pain management.
I’ve tried many lifestyle / diet changes& supplements.
Still want to upgrade with support between these week respites that are costly but life changing.
Wondering how to access nasal ketamine .
I have a diagnosis of CPTSD also that interacts with Fibromyalgia and pain experience. So depression, and the need for mental distress support . I don’t v take any opioids or anti depressants. I have seen : studies and samples enough to know I’m not willing to use them in my plan.
A support group is needed , reaching out to you and wishing you all wellness and helpful advances in your health.❤
@mamaelfian May you be blessed with answers and healing. What you want sounds necessary considering the illness/issues. I wish I had the power to grant that to you. Big hugs!
I’ve been dealing with crazy nerve pain from my ears to my jaw, and in my SI joint. They diagnosed it fibromyalgia. I’m sooo interested in these ketamine treatments because it seems like nothing else is working for me! I’m in so much pain!
Is your SI joint still bothering you? I had a fusion done on mine 5 years ago and have fibromyalgia, too. It helped tremendously. It took about a year to totally level out, but it was a good move. I-fuse was the procedure. Best wishes.
I have been dealing with this disease foe years now, and as complicated as it sounds, my doctor believes I have CRPS as well. This is making sense to me, though there are MANY similar symptoms.
I have been getting ketamine infusions for a few years now, and recently have experienced this connection with god or the universe or whatever you want to call it. Something very deep and magical and spiritual.
Thank you so much for your informative and rather enlightening video! 💕🙏💕
Thank so much for watching our videos!
If this is effective for fibro, then it should be effective for CFS, RA, Dysautonomia as these are all disregulated nervous system issues. More and more it is coming to light the brain and nervous systems role in ALL chronic illness.
Good to get a better understanding of how ketamine works. I've been having regular infusions for the last few years (for fibro) and find it to be so hopeful in lowering my pain levels.
Wonderful to hear this and thanks for sharing!!
How did you get a chance of doing infusions? What country? =)
@@JonasAnandaKristiansson I am in Australis
Hi how much relief did you get ? Thank you
@@LibbyWithnall Did you recommended these ? How much relief did you get ? Thank you
You're a great man Dr. Ko.
This community of Fibromyalgia suffering patient appreciate you very very much.
Thank you for giving us hope.
From 10 Million strong!
1)Realizing this video was made 2.5 yrs ago....I am a FM gal of 61. Diagnosed at 33 by a rheumatologist who simply gave me a newspaper article to explain it (1993). Yup. That's all!
I have recently been diagnosed (after many years of being brushed off by dr's) with small fiber nueropathy after skin biopsy but not fibro, though I believe I do have fibro aswell because I have whole body pain, just havn't been diagnosed cuz most dr's are uneducated when it comes to pain syndromes.
It switches from one pain symptom to a totally different pain symptom constantly. One day will have nerve pain in my hands and feet, then the next day it switches to whole body muscle cramps, then it switches to allodynia where it hurts to put pressure and the muscles start twitching and tremoring, then it will switch to burning in my face and top of head and on and on its crazy.
Ouch! Sounds very painful. SFN may be a component of fibromyalgia as well. Check out this article here: www.ncbi.nlm.nih.gov/pmc/articles/PMC4348533/
I've had FM for 40 plus years. I've spent most of my life investigating FM. May I ask you if you have Nonrestorative Sleep which is not the lack of sleep but rather the inability to recharge the body's energy after sleep. As if you feel like you have not slept after sleeping for countless hours. Nonrestorative sleep is one of the hallmarks of Fibromyalgia aka Centralized Sensitization.
@@ResetKetamine Hello I’ve been watching you a lot . I have serious agonizing nerve widespread pain like knives ,hot coals in my rectum ,wearing a razor blade corset and burning skin ,spine ,hip soul crushing pain! I can’t sit stand or lay down without excruciating debilitating crippling severe brutal pain,my clothes and all furniture hurts so I don’t sleep just broken sleep 😖😭 I’m getting infusion on Wednesday and 5 after that ,do you think this can help me ? I’m tried everything. This all started after I was forced off 16 years of 2mg ativan taken as prescribed for one panic attack! I’ve been on a opiate for a neck injury for 32 years and I’m opiate resistant now . Between the darn benzo and opiate my brain is so messed up and I’m excited because this is hopefully the way to rebuild the synaptic and neuron pathways and block the NMDA receptors. I appreciate you and the videos. Be well Dr Ko 🦋
8) Mainly for depression but FM, neuropathy, CRPS too. It's not for the weak of mind! The pain of the death of our 6 day old, 1st granddaughter in 2012 was prevalent. She is FINE in heaven; I am still grieving. This 2nd round has caused an awful FM flare. Rt here at Christmas. Not sure if or when I'll do it again. "Waking" to horrors that I wasn't real anymore were SSOOOO real this time. I was petrified! Even pinched on the dr to be sure i was "back on earth"!! Yes, I had prepared properly!! Still waiting on the positive this round. Setting & caregivers: wonderful! (Revitalizing Infusions, Kissimmee, FL)
7)Oh, he's been a pastor 30yrs of the same church. Cymbalta, fentanyl patches, elavil, methadone, opiates, muscle relaxers...a few things I've been on in 40yrs. I've now had 5 total K-IV infusions. 3 in Oct. 2 a week ago. 3hrs each.
How is going?
I'm doing my first ketamine treatment under the tongue and I have SLE lupus is there any clear data on its benefits for my condition or for endometriosis?
How long does the pain relief effect last after few Ketamine infusions? Is it permanent? Is it at higher dose than the treatment for PTSD or depression? Or do patients need Ketamine intermittently? Thank u
5) (2004) w complete renal & liver failure as he'd abused RX meds for decades, even taking meds from sr citizens at his churches. I am the eldest of 5, very driven, perfectionist tendencies. Most FMers are.
Dr. Ko, Does Ketamine show any potential for helping trigeminal neuropathy? My hubby suffers from it, and it's terribly difficult to treat. Thanks for all of you awesome information!
Check out our blog post/video here: www.resetketamine.com/blog/2018/10/4/ketamine-treatments-for-trigeminal-neuralgia
Sounds amazing I have fibro I'm Aus I'm keen to try
There may be some clinics in Australia!
Good luck beloved one
Me too Julia, I have been recommended ketamine as well. I can get it from my pain clinic x
I’ve tried ketamine infusions couple of times for central sensitization and chronic pain. But each time after infusion I get pain flare up lasting for several days. Can you please explain why this is happen and if it’s normal?
Tnx
Hi! I'm Ricardo, anesthesiologist from Brazil! I work with intravenous infusion of Ketamine for depression and chronic pain. I would like to hear your opinion on ketamine-guided psychotherapy. Do you do it in your clinic?
In the case of chronic pain, do you usually only have cetamia or do you perform the Sympathetic Venous Block?
Not during the infusion but highly recommended afterwards.
I think memory encoding is what's being rescripted by the introspective or "spiritual" encounters. In other words, the patient is working through the body/minds trauma and resetting the fight or flight memory response.
Has there been any new data on this? My first infusion is Thursday, I have CPTSD and Fibromyalgia.
Not much. Unfortunately, there is limited research funds for generic drugs like ketamine.
How did your treatment go
CPTSD as well, probably the trigger in my case for FM; and/or the shitty fkn vaccines that the psychopaths force on just about everybody, including just about all children.
Ketamine, psychedelics.. have been the only thing in the external world that has done anything worthwhile, and been profound and beautiful at that
Good luck and keep us posted! I have both too
Well how was it?
4) Made it tough to express what was going on w me. I hid doans pills, Tylenol, excedrin. My dad went thru similar things tho not widespread pain. Mostly his chest, head, neck, depression. He was a pastor so this wasn't looked at kindly by fellow pastors. At. All. He died 30 days from 65. Sigh.
Can ketamine help chronic fatigue syndrome?
2)My legs, low back, hips began "being chewed on by zoo animals" when I was 6-7yrs old. At puberty, (12-13) after sitting still(school, church) pain made getting up & moving unbearable & embarrassing.
Curious if the dosing is different for fibro or other sfn pain
We have a blog post on this question here: www.resetketamine.com/blog/the-right-ketamine-dose
I have fibro and have been on all the drugs dr.s normally prescribe and it just seems like my symptoms have been getting worse over time. I've even tried CBD and Kratom but not much luck. I did try smoking ketamine once but it was more of a high than anything else so I would like to know if there is a better way to do this that would be more effective for pain relief.
We treat patients with intravenous (IV) ketamine with continuous vital sign monitoring. We believe this is the safest and most effective for pain relief.
They tried to kill you, but you are alive and you will get through this! :) Go natural in general, ketamine and proper use of psychedelics are great tools.
@@ResetKetamine Do you know if this is possible in Sweden, Scandinavia overall? Have you heard anything?
@@JonasAnandaKristiansson In Oslo - axonklinikken.no/about
@@ResetKetamine Wow okay!! Thank you :)
I take ketamine troches 100mg 2 a day. Works so good crazy nerve pain
Can it also work with semi-active arthritis?
Anti inflammatory and opioids are not effective in fibromyalgia and in fact opioids will make it worse and cause opioid induced hyperalgesia - as the natural opioid system Is already maxed out with the central sensitisation possibly caused by glial cell inflammation - anti inflammatorys will only help if there is also peripheral inflammation as well as the fibromyalgia .As well as the Duloxetine you mention there are also the older tricyclic a/d. As well as attempting to boost the descending inhibitory pathways with neurotransmitters gabapentanoids can be used to dampen glutamate excitement- neither approach works in more than about 1/3 of patients with about 30% pain relief - the numbers are a little better with poly pharmacology such as Duloxetine with Lyrica - but still not great and with bad side effects so Ketamine in a most welcome development.
I'm curious how this would affect migraines...
We actually have a blog post on this topic here: www.resetketamine.com/blog/2018/11/18/ketamine-for-migraine-headaches
Flare ups happen during stress increasing the inflammation causing increased pain
3) I thot every girl felt her insides being ripped out when urinating/bowel habits during her period. Migraines. Increased pain included shoulders, neck, every trigger point. Note that I'm like a copy of my paternal gr'mother and my Mom hated her.
Are you able to treat fibromyalgia and mental illness at the same time?
Yes!
I wish ketamine was covered by insurance!
We have faith that insurance companies will come around and start covering ketamine infusions someday!
Don't get me wrong ur wicked smart but that Colorado kid died of ketamine. Isn't this known as special k? Wasn't this known as a club drug in the 90s? Chance of addiction.
1) Ketamine must be used responsibly at all times, and ideally with doctors present. I'm not sure of the exact details of the death in Colorado, but it's not 100% safe, especially in high adrenaline situations involving carotid chokes & unknown medical history.
2) Ketamine was known as special K on the street and was known as a club drug. Read about the history of ketamine here: www.resetketamine.com/blog/2018/10/14/a-brief-history-of-ketamine
3) Please read this post about chance of addiction here: askp.org/are-ketamine-infusions-addictive/
Omg 😳 I thought this was a Cat tranquilizer Rx .. hmmm 🤔 I remember that story they stole the ketamine from a veterinarian clinic and took it orally.. .. man I’m just tired of having pain .. but I will do more research on this special K ..
Study some more and rid the cultural-media based biases.
Me me me!