My Cancer Keeps Growing Back Even After 3 Remissions | Tatijane's Leukemia Story | The Patient Story

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  • Опубликовано: 19 мар 2023
  • Tatijane first knew something was wrong when she started having pain near her ribs. Her pain became so severe she was rushed to the ER and was then diagnosed with acute lymphoblastic leukemia, both B and T cells, with mutations. At 24, she was then given 6 to 8 weeks to live.
    She shares how she processed her shocking diagnosis, the different treatments she’s undergone including a double CAR T-cell therapy clinical trial, and how she’s giving back to the cancer community.
    Full story & transcript → www.thepatientstory.com/patie...
    The interview has only been edited for clarity.
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    #cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #acutelymphoblasticleukemia #bloodcancer #ALL #Leukemia #leusm #acutecancer #chemo #clinicaltrial

Комментарии • 150

  • @party518
    @party518 Год назад +78

    Thank you all for watching this video and for all your wonderful comments! ❤ your all so amazing!

  • @kailynguilieri9478
    @kailynguilieri9478 Год назад +42

    I went to high school with her and she was always the sweetest and kindest soul! She stayed so positive during her treatment. May she Rest In Peace 🙏😇

    • @keishasemelfort811
      @keishasemelfort811 Год назад +13

      Oh no, she passed away. Sorry to hear this.

    • @nesekitty9703
      @nesekitty9703 Год назад +4

      😢🙏

    • @barbcosgrove64
      @barbcosgrove64 10 месяцев назад +3

      🙏❤️🙏❤️....

    • @godschild3640
      @godschild3640 10 месяцев назад

      @@keishasemelfort811😭😭😭😭😭PLEASE 😭ANSWER😭 ME ….😭I have stage 4 non small cell lung cancer. On Keytruda only it shrinking. Can it grow back ,,can I be cured ..

    • @MrsOverthetop341
      @MrsOverthetop341 10 месяцев назад +1

      Oh my 😢

  • @marilynhendry2061
    @marilynhendry2061 Год назад +59

    You are absolutely amazing! When i was diagnosed with cancer, i was totally dysfunctional for months. You have a lot to offer this world young lady❤❤❤

    • @HelenAbalos
      @HelenAbalos Год назад +2

    • @sherrybutts5947
      @sherrybutts5947 Год назад +3

      Yes cutie pie u are amazing and so much stronger than u knew!! Hang in there for a full healing😅

  • @debrarouth855
    @debrarouth855 Год назад +24

    My son had the same thing. ALL. Got it in 2014. He had CAR-T after it came back after chemo, then Bone marrow transplant in 2017 and he's fine today. CAR-T was his trial back then when it first came out. Saved his life!

    • @party518
      @party518 Год назад +5

      I'm so sorry he had to fight ALL. But he's a warrior to! I'm so happy the treatments worked!

    • @FathimaSaleem-qp8uw
      @FathimaSaleem-qp8uw Год назад

      Car t is it costly

    • @debrarouth855
      @debrarouth855 Год назад +1

      @@FathimaSaleem-qp8uw His insurance paid for it.

  • @hollypaduano8032
    @hollypaduano8032 Год назад +23

    Watching this as I just finished my 3rd chemo. You are a SuperHero! OMGoodness!!

  • @barbaragalletta3030
    @barbaragalletta3030 Год назад +19

    She is an incredible young lady. To get that news at any age let alone 24 & covid time. God bless her with good health.

  • @ChrisKlein0
    @ChrisKlein0 Год назад +24

    6-8 weeks to live at 24, I have no idea what I would do if I was told that so young.
    It sure seems cancers are getting more and more common and hitting people younger and younger…

    • @kailynguilieri9478
      @kailynguilieri9478 Год назад +5

      Unfortunately she passed just a few days ago. Still so young, only 26.

    • @btudrus
      @btudrus Год назад

      "I have no idea what I would do if I was told that so young"
      I have several ideas I would try. For example several weeks of water fasting...

    • @btudrus
      @btudrus Год назад +2

      @@okamiamaterasu5416 "that's deadly wth"
      depend on the length of the fast and your fat storage. an average adult can certainly do 4-5 weeks without any problem... someone who is overweight can even do half a year...
      my own "record" were 32.5 days of a waterfast, i know what i'm talking about...
      letting the cancer grow is definitely more deadly...

    • @SM-zm5hz
      @SM-zm5hz 11 месяцев назад

      @@btudrusso true . Fasting starves cancer

    • @btudrus
      @btudrus 11 месяцев назад +1

      @@SM-zm5hz "Fasting starves cancer"
      Not really. Fasting changes the cellular signalling. Saying that fasting starves cancer ist too simplistic and not really true...

  • @AS-yz2iz
    @AS-yz2iz Год назад +30

    Someone needs to pay the price of all the people who were forced to experience traumatic health situation without support.
    Good luck to you. You're very strong. My son had Acute Myeloid Luekemia in 2019.

    • @macpduff2119
      @macpduff2119 9 месяцев назад +1

      America needs universal health coverage for all traumatic health events costing more than $5,000-$10,000. Major hospital bills are the major cause of bankruptcy in this country.

    • @AS-yz2iz
      @AS-yz2iz 9 месяцев назад

      @@macpduff2119 No, we do not

    • @k9khodi363
      @k9khodi363 4 месяца назад

      I went to the ER myself and was told I might die (unfortunately I didn't). I went on to get a head injury I had to deal with myself and had to take care of my terminally ill 130lb dog myself while dealing with the head injury. Lots of people have ZERO help or people who harm us instead of help.

  • @Howiefaye1996
    @Howiefaye1996 Год назад +5

    That’s my amazing,strong, and beautiful warrior cousin!

  • @cathytauscher6760
    @cathytauscher6760 Год назад +31

    You are definitely a warrior and your positivity is amazing. You are DEFINITELY making a difference ❤

    • @nesekitty9703
      @nesekitty9703 Год назад +2

      sadly she passed away.😢.may she R.I.P. 🙏☮🕊🌹🤍🧚‍♀✨

  • @stacydavis1682
    @stacydavis1682 Год назад +8

    You are a warrior in every sense of the word. Just said a prayer for you.

  • @valorieoathout6956
    @valorieoathout6956 Год назад +12

    You such a strong lady. Admire you a lot! God Bless❤

  • @faithf5846
    @faithf5846 Год назад +12

    Beautiful brave girl. Thank you for sharing your brave story. You got this! Cancer will be a memory.

  • @130crowd
    @130crowd Год назад +17

    Know we are out here cheering for you. Thank you for your generosity, your bravery and your strength. ❤

  • @sueu6263
    @sueu6263 Год назад +24

    You’re incredible and so is your art! Wishing you the best💕

  • @mariatoth2649
    @mariatoth2649 Год назад +9

    You are an incredibly brave and amazing girl ! and you're helping so many people. My daughter is also fighting a rare form of cancer, I call her "my hero" !. You are one also, a warrior ! keep this beautiful spirit. God bless you. ❤

  • @e.agoraphobicdickinsonpoet660
    @e.agoraphobicdickinsonpoet660 Год назад +8

    What a lovely young woman. ❤

  • @OscarsMama
    @OscarsMama Год назад +12

    You have to be the most chill, amazing person I've ever seen. If I had your diagnosis, I would probably just crawl in a hole and die. GOD BLESS YOU!

  • @agaaga2578
    @agaaga2578 Год назад +10

    YOU are AMAZING! Wishing you the best of luck, pretty girl!

  • @michelles9897
    @michelles9897 Год назад +15

    💟 thank you Tatiana for sharing. I so enjoy watching your story.

    • @ThePatientStory
      @ThePatientStory  Год назад +2

      Thanks for watching!

    • @godschild3640
      @godschild3640 10 месяцев назад

      @@ThePatientStorycan 🥶cancer 🥶shrink 🥶then 🥶grow back 🥶

  • @kellyfarley9678
    @kellyfarley9678 Год назад +7

    Amazing you are
    Keep fighting

  • @clairebeever3038
    @clairebeever3038 11 месяцев назад +2

    What a beautiful young girl the world can be such a cruel place … well cancer is ! ❤❤❤ thank you for sharing it so helps me dealing with cancer myself …. Amazing talented positive caring kind beautiful girl ❤

  • @ElephantsRock19
    @ElephantsRock19 Год назад +4

    You are such a bright light, I feel blessed to have come across your story and wish you nothing but peace and love...🕊️🙏❤️🕯️ETA: I meant to add that 1 of my sisters very recently had mixed phenotype A.L.L., and your story and grace and positivity has helped me tremendously, thank you! 🙏❤️

  • @alohatvj
    @alohatvj 8 месяцев назад +1

    Thank you for sharing your survival story. You are a very strong woman. I am sending love ❤️ 😍 💖 and look forward to the day you are finally in full remission.

  • @kathyerb3134
    @kathyerb3134 Год назад +8

    So proud of you. I wish you every success in your continued cancer journey and helping g scientists and other patients now and going forward. You are a star girl. Keep rocking. Love your personality. From Canada 🇨🇦 😊

  • @sawdust2556
    @sawdust2556 Год назад +6

    ❤🙏Sending you hugs. You’re amazing.

  • @lucyadams2521
    @lucyadams2521 Год назад +4

    So incredibly courageous

  • @suchitraroy1758
    @suchitraroy1758 Год назад +3

    Prayers for your complete recovery.. 🙏 Thank you, for volunteering for this trial..

  • @jenniferboughton5966
    @jenniferboughton5966 Год назад +2

    I’m praying for you my friend! Thank you for sharing your story

  • @vivianjones5904
    @vivianjones5904 Год назад +9

    GOD BLESS YOU!!!❤😂

  • @donnajanecastle4807
    @donnajanecastle4807 Год назад +5

    Thank you for sharing this. You're a great person!

  • @Ceerads
    @Ceerads Год назад +3

    Thank you for this video. It’ll help many. I wish you everything good in life.

  • @Leah.says.the.things
    @Leah.says.the.things 11 месяцев назад

    Thank you for sharing your story ❤

  • @qratorn
    @qratorn Год назад +10

    ❤❤Love from me in Sweden and the southest Town called Ystad.

    • @hildeknarvik2440
      @hildeknarvik2440 Год назад +2

      I am in Norway. We are neigbours😄. 🇳🇴🇸🇪

    • @party518
      @party518 Год назад +1

      ❤❤❤

  • @sarahdermody6665
    @sarahdermody6665 11 месяцев назад +1

    Wow! You are such a kind and grateful person. Your positivity is inspiring ❤

  • @maryellenblount6376
    @maryellenblount6376 Год назад +5

    Your story is amazing and you are so courageous in that your desire is to help others. God bless you in your journey. You are such a beautiful spirit! ❤️🙏🏼

  • @deirdrekiely6187
    @deirdrekiely6187 Год назад +10

    Don't let doctors weight shame you into blowing off the proper care you should receive them. If a doctor attributes *all* your problems to weight then get a new doctor or ask the Dr. if this is the care plan they would give a thin person.

  • @dianataylordeguerrero3888
    @dianataylordeguerrero3888 Год назад +1

    Love, sending prayers and wishing you the best from Mexico.❤

  • @Begging-xm6iz
    @Begging-xm6iz Год назад +1

    You have such a positive spirit, and I will pray that they will find the right treatment for you and others going through the same diagnosis.
    You're a beautiful young lady inside and out, and your family has to be so proud of you, putting yourself out there to help others and the doctor's, I wish you a positive recovery & remission. God bless you.🙏💕🙏

  • @lindasalera5650
    @lindasalera5650 Год назад

    Prayers for you to keep fighting, you are amazing!🙏❤️

  • @createwithlinda5181
    @createwithlinda5181 Год назад

    Wow, you’ve been through it…God bless you! I will add you to my prayers…stay strong!🙏🙏❤️

  • @user-wb2yv7ll9d
    @user-wb2yv7ll9d Год назад +1

    What a brave and good person.

  • @helenbennett4391
    @helenbennett4391 Год назад +3

    Wow!!! You are an amazing human being, if only there were more people like you, our world would be a far better place.
    Keep strong, keep fighting.
    I will pray to the universe for you.
    God bless ❤

  • @FredaFlynn2008
    @FredaFlynn2008 Год назад +3

    Such a strong woman you are and I wish you a full recovery given time, I know this can’t happen over night. Sending love and best wishes from the UK and hoping you’ll stay strong to kick cancers *ss!

    • @macpduff2119
      @macpduff2119 9 месяцев назад

      According to newer comments this lovely lady has passed away. Prayers for her family

  • @nikkihines3652
    @nikkihines3652 Год назад +1

    God bless you dear. You definitely working on your soul mission 😊

  • @susiebilk9905
    @susiebilk9905 Год назад +6

    You are wonderful ❤

  • @yasmeen66
    @yasmeen66 Год назад +3

    Tatijane… You are a lovely person. I love your attitude.
    I wish for you the very best.❤️🌻🤲

  • @deborahevans1052
    @deborahevans1052 Год назад +8

    Yea keep going your doing great 👍

  • @jmnightingale9055
    @jmnightingale9055 Год назад +2

    I have AML Leukemia with the MECOM mutation and so I was given a Stem Cell Transplant in August of last year, after five days of extreme chemo which I believe was similar to what you went through. It sounds like you either had fewer side effects or you are just tougher than me because my experience was extremely traumatic while you seem to have glided through it, well, relatively. And you are right, that it is best to share everything with the docs, without worrying about TMI (too much information). I really admire your spirit and your resilience. Hang in there!

  • @macpduff2119
    @macpduff2119 9 месяцев назад

    I was diagnosed with the rare CMML -2 leukemia - 4 months ago. One week on Azitadine chemo and 3 weeks off. Thank you so much for posting this video - it's a big help for others like me. I am sad to read that you have passed away.

  • @sweetsharie66
    @sweetsharie66 Год назад

    What a beautiful spirit. 🙏🏾💗

  • @truckerhill
    @truckerhill Год назад +8

    Wow youre my hero

    • @party518
      @party518 Год назад +2

      Thank you❤❤❤

  • @malshamaldeniya7997
    @malshamaldeniya7997 Год назад +4

    I'm also reciving t-lymphoblastic lymphoma.. I can feel you❤ lets fight together..

    • @party518
      @party518 Год назад +1

      You got this! Ur a warrior 💪🏼 ❤️

  • @Mimi92818
    @Mimi92818 Год назад +1

    What a beautiful soul❤️🙏

  • @NikhilSingh-ev8zw
    @NikhilSingh-ev8zw Год назад

    You are amazing. God bless you Mam 🙏❤️

  • @journeywithjan4388
    @journeywithjan4388 Год назад +4

    I'm told the same thing. You need to lose weight! Drs need to listen to the person who has lived in the body for however many years. Praying for you and sending hugs. You are amazing.

  • @peggysue7898
    @peggysue7898 Год назад +7

    Do you have your own RUclips page? If so, I would love to follow your journey and give you as much support possible. Sending you prayers for healing 🙏❤

  • @nesekitty9703
    @nesekitty9703 Год назад +3

    her friend
    @kailynguilieri9478 posted here 2 months who went to high school with Tatijane commented sadly she passed away.😢.may she R.I.P. 🙏☮🕊🌹🤍🧚‍♀✨

  • @myrnajoven9339
    @myrnajoven9339 Год назад +2

    Let’s keep on praying to overcome the cancer . God is Good and Trust and Believe in His Healing hands.

  • @tarawhite8847
    @tarawhite8847 Год назад +3

    I too have cancer,,,,,I hope all the best for you

    • @party518
      @party518 Год назад +2

      I'm sorry you have cancer to. But you got this, ur a warrior! ❤

  • @jimig399
    @jimig399 4 месяца назад

    So tragic and heartbreaking.

  • @ronlample4407
    @ronlample4407 Год назад +2

    You are such an inspiration to all of us fighting cancer . Love and blessings to you ! You help all of us cope by showing how brave you are❤

  • @HWolfe
    @HWolfe 11 месяцев назад +2

    Rest In Peace ❤️.

  • @carolirvine3367
    @carolirvine3367 Год назад

    I hope you know how many people across the world are rooting for your wellbeing x

  • @clairem3543
    @clairem3543 Год назад

    Sweetheart you are making a difference already.❤ Hugs to you.

  • @countrygirl366
    @countrygirl366 Год назад

    Prayers sweetie ❤️🙏❤️🙏💖🙏💖🙏❤️🙏💖🙏

  • @tracymcgrath1192
    @tracymcgrath1192 Год назад +1

    So sorry. Not fair. 🙏🙏♥️♥️🌹

  • @splash6427
    @splash6427 2 месяца назад

    🙏 ❤️ 🙏
    For You
    Always & Forever

  • @momo43momo66
    @momo43momo66 7 месяцев назад

    May she rest in Everlasting Peace 😔🕊️❤❤❤❤❤❤❤,

  • @kriscomer7118
    @kriscomer7118 Год назад +4

    Brave! Super woman! ❤

  • @Sheila612Miller
    @Sheila612Miller Год назад +2

    I'm so sick of doctors not listening and thinking they know your body . It's so frustrating. Your amazing and you deserve all good things and a long long very long life. Life can be so unfair. Always fight . You rock girl. I wish you were my friend,you seem so fun. I love crafting and mermaids too( but u won't catch me in a mermaid tail lol.)

  • @A.L.I.S.O.N
    @A.L.I.S.O.N Год назад +5

    2yrs kickin butt, you've got this girl! The food looks delish & I'm craving that now, lol. I had my uterine lining come out all at once. It was like giving birth to me. We didn't know what was going on so we took it to the ER & they confirmed it was my uterus lining. It happened bc I was on birth control so I was told I can't take birth control anymore bc it's too dangerous. I'm wondering what the dr will say about yours.

  • @crimenexdor
    @crimenexdor 9 месяцев назад

    It drives me insane that doctors keep dismissing symptoms. They should be held accountable!!

  • @cindyhouston6789
    @cindyhouston6789 Год назад

    You are a beautiful, strong woman. Trust God with everything and keep your pleasant , positive attitude. I'm praying for you!.

  • @janroach1852
    @janroach1852 Год назад +1

    So angry at your doctors for ignoring your health problems and automatically blaming it on your weight with absolutelly no investigation. Your positive attitude is pulling you through, sheer will.

  • @exboyjr
    @exboyjr Год назад

    ❤❤❤🙏🙏🙏 You are beautiful!

  • @Ida-Adriana
    @Ida-Adriana 10 месяцев назад +1

    Lastly, please see Serrapeptase also and Nattokinase (poweful enzymes) and Lumbrokinase and their anti carcinogenic actions.

  • @jessicamariee5466
    @jessicamariee5466 9 месяцев назад

    Hunny you are a special woman and very strong prayers to you ❤

  • @danielliu9616
    @danielliu9616 11 месяцев назад

    RIP

  • @ginaesperanza8239
    @ginaesperanza8239 Год назад +1

    im colon cancer stage2 diagnose last march 2022 had my operation with colostomy,done 8session of chemo biopsy is negative,my 4th ct scan done last march and its ok.but in blood there still trace of cea..and my oncologist refer mi for PET SCAN..Any one experience same mine?

  • @sylvietezier4374
    @sylvietezier4374 Год назад +3

    Je dénonce les diagnostiques stade 4

  • @ElizabethNoelleK
    @ElizabethNoelleK Год назад +4

    ❤️❤️❤️❤️

  • @lidiawroblewska1184
    @lidiawroblewska1184 Год назад +5

    ❤❤❤

  • @kevanhubbard9673
    @kevanhubbard9673 Год назад +1

    Sadly it, the cancer, often does find a way to get around the treatments.

  • @KS-yp1jl
    @KS-yp1jl Год назад +2

  • @margaretcoyle4224
    @margaretcoyle4224 Год назад

    🙏🙏🙏❤️❤️❤️🏴󠁧󠁢󠁳󠁣󠁴󠁿

  • @DutchEVP
    @DutchEVP Год назад

    Tatijane sadly died on May 4.

    • @danielanderson204
      @danielanderson204 10 месяцев назад

      Oh No, was it the cancer or the therapy that she died from...
      It's so Upsetting we don't have cancer Cures in this day of Technological Advances!!!
      Beverly - breast cancer Thriver since 1-2-19
      ( on my hubby's YT account)

  • @katrinagodfrey9931
    @katrinagodfrey9931 Год назад

    🗣🗣🙌🏿🙌🏿🙏🏾🙏🏾

  • @avm1645
    @avm1645 Год назад +7

    I pray for your healing in The Name of Jesus.
    Ask the Lord Jesus to help you and be in relationship with him as your Lord and Saviour
    He has healed me from cancer, Thanks Be to God the Father 🙏

    • @party518
      @party518 Год назад +2

      Thank you, 🙏🏼

    • @avm1645
      @avm1645 Год назад +2

      ​@@party518 You are more than welcome Tatijane.. praying for you always 🙏

    • @donnarobertson252
      @donnarobertson252 Год назад +3

      A young man had stage 4 colon cancer and just ate no food. He didn't feed the cancer. He occasionally had protien like a t-bone steak once every week, but the fact that he had no sugars that cancers love to feed on healed him. His cancer diminished. He fasted for a few months. His cancer shrank to a fourth it's size and that's when he had radiation. Cured.

  • @tarawhite8847
    @tarawhite8847 Год назад +3

    Were you on immunotherapy or targeted therapy at all?

    • @party518
      @party518 Год назад +1

      I'm currently on an immunotherapy. The double car-t was a targeted therapy because it targeted my 2 cells that were infected.

  • @Gesundheit888
    @Gesundheit888 3 месяца назад

    Go on a Lion diet! and look at the interview between Dr. Seyfried and Dr. Ken Berry.

  • @dennishassler605
    @dennishassler605 11 месяцев назад

    TRY TOTALLY changing your diet? We all pray for you, too!!!!

  • @sharonlovely4653
    @sharonlovely4653 Год назад +1

    Dr Lorraine Day

  • @nikkisolo9080
    @nikkisolo9080 Год назад +5

    I wonder if she took the jab since this happened during Covid.

    • @annmarie1689
      @annmarie1689 Год назад +4

      All these super cancers ..God help this woman.

    • @Ceerads
      @Ceerads Год назад +1

      Stop saying idiotic things on this site. 🤮😡

    • @keishasemelfort811
      @keishasemelfort811 Год назад

      Who cares about a covid vaccine. Is that what's important here? Something is wrong with you.

  • @madonnaanderson3877
    @madonnaanderson3877 7 месяцев назад

    🙏🏻🙏🏻🙏🏻🙏🏻♥️♥️♥️🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻♥️♥️♥️♥️♥️

  • @nesekitty9703
    @nesekitty9703 Год назад +4

    @nesekitty9703
    1 second ago
    ...and so many turbo cancers over these past 2 years...even moreso lately on a MASSIVE scale...instantly/SUDDENLY so agressive and widespread throughout thr body
    stage 3 but mostly 4😢 ... youtube,social media is with flooded so many new cases

  • @luislallave9666
    @luislallave9666 3 месяца назад

    Have you tried vitamin C infusions?