The medical system failed me. I told several Ophthalmologist and optometrist that it was dry eyes or nothing was wrong with me. I had a lot of these symptoms including blindness in both eyes and once I had Amerosis Fugax. I was failed by the system. Luckily your video gave me some peace and transparency. I know it can’t get worse and can improve. What’s worse is I told an ophthalmologist I saw before that eye drop steroids improved my vision. When I asked for another script he said no 🤦🏿♂️. I’m 3 months into this madness with 3 episodes. And damn near a 4th. My vision is 20/25 in one eye and 20/20 in the other one. But I’m nearsighted and my vision at night sucks. As matter of fact I thought my vision just sucked at night but it’s dimmer in the day time too. Can the brightness be improved on over time with eye drop steroids, healthy diet, reducing risk factors and time?
Ive heard the biggest risk factor is a small cup to disk ratio, a crowded optic disk, and drusen. Those are structural issues that cannot be controlled by the patient. Some are even just born with it.
“Over the next several months, you may see some improvement.” Is that really true, or what’s really happening is that the patient learns to compensate, leaning on the field of vision that was unaffected or least affected?
It will not improve or get worse. I went through a 12 month clinical trial at Boston Medical Center. The cells in the optic nerve that die from lack of oxygen cannot and will not come back. There’s a 30% chance it will affect your other eye within a year. After that year that good eye should be fine. I dealt with a highly regarded Neuro-Ophthalmologist. 13 visits. The clinical trial involved injections directly into the eye. They couldn’t get enough participants even after opening it up to 5 European countries. The injections were of no benefit. Good luck.
Howdie, My NA_AION eye sees about 10% so my eye is pretty much useless. I have attacked all of the risk factors and on avg patients with unilateral NA-AION have about a 30% chance of having just affected the second eye. There needs to be more education about the condition since many of the risk factors also cause other health issues.
Thank you doctor that's a great information. Actually I have optic toxic neuropathy because of Ethambutol tuberculosis medication. After one year of treatment my eye sight improved. Still improvement is happening slovenly. Most of Dr. told me eye sight will not come back. only one retina specialist told me within 2 and half years whole eyesight will come back. What's your opinion Dr. ?
Hi..How is your eye ? I'm also suffering from optic neuritis.I did not take any medicine cause i'm afraid from side effects.Mounts passed and i'm hearing that is may be permanent so i'm so worried.Because of covid-19 i cant go hospital or i just should go? I'm really worried.
optic neuritis is a direct inflammation of the optic nerve head and is usually painful sudden loss of vision, usually worsened by exercise or heat. usually, patients report a loss in colour vision. NAION is painless and presents as a result of atherosclerosis of the posterior ciliary artery supplying the optic nerve.
I experienced NAION 2 and a half years ago. It is obvious that there are controversial (no clear knowledge) what is the main cause of NAION. So I want to express some of my personal observations here. I suffered imputation of 2 biggest toes and frontal parts of the foot on the left leg when I was 5. This was the reason my spine become deformed with time and I suffer constant pains in the whole region of the spine. Also, I suffered tingling in my left hand and left part of my face. At night as I slept on my left side this tingling was stronger and sometimes I felt pain in the entire left part of my head. This was I believe the reason for NAION in my case - and is probably hidden somewhere in my spine in relation to fact that I slept on the left side - this may cause increase nerve pressure in my spine and was the cause of deficient blood circulation in the left side of my head. So it becomes pretty clear to me that in my case NAION had neurological ground and I believe it is possible that most cases of NAION are rooted in health troubles related to the spine. Finally, it was found that the optical nerve in my left eye is decayed and I am entirely blind in that eye consequently. Also, my sight in the right eye is partially effected. I read a statistic that every third person with NAION eventually loses sight of another eye, too, which makes me seriously think about what can I actually do to prevent this bleak outcome. As I said it was pretty clear to me that the way I sleep may be an important factor (besides the leg injury) for my development of NAION. First I have to say that I don't use a soft mattress for years now. Now I decided to try to sleep solely on the back, which was firs unpleasant for me until I rearranged the upper part of my bed so my entire upper body is lifted for about 20 degrees. This way I sleep even better now, and without tinglings or other negative effects. The entire health situation of my back is improved significantly so this gives me at least hope I will not become entirely blind eventually. I realized that sleeping on the back has two significant advantages. First, as we sleep our spine is not curved in any direction out of its natural position, and second, by lying on the back the entire spine is not only sheltered from any coldness we may expose it during the sleeping period but is actively warmed-up and protected from below, by the warm surface of the mattress. I wanted to speak out about this in case somebody may find this information useful.
is there a way ( about me FUCKING WAY : ) to repair a damaged optic nerve ( after a tragical serious accident...)...cause in my country , in Italy, it's simply impossible...Is there a stem cells treatment?
I was diagnosed with NAAION in August 2022. Overnight i lost not only my vision, but my life as I'd known it up until that day i simply woke up, no pain, no symptoms beforehand, nothing to indicate i had a problem with my eyes. Devastating doesn't begin to describe this little-known disease
Thank you, Dr. Ghaiy. That was Informative and insightful!
The medical system failed me. I told several Ophthalmologist and optometrist that it was dry eyes or nothing was wrong with me. I had a lot of these symptoms including blindness in both eyes and once I had Amerosis Fugax. I was failed by the system. Luckily your video gave me some peace and transparency. I know it can’t get worse and can improve. What’s worse is I told an ophthalmologist I saw before that eye drop steroids improved my vision. When I asked for another script he said no 🤦🏿♂️. I’m 3 months into this madness with 3 episodes. And damn near a 4th. My vision is 20/25 in one eye and 20/20 in the other one. But I’m nearsighted and my vision at night sucks. As matter of fact I thought my vision just sucked at night but it’s dimmer in the day time too. Can the brightness be improved on over time with eye drop steroids, healthy diet, reducing risk factors and time?
How it’s going your eyesight?
دددد🤣😁😆😆قييدددس دد😊😅🎉. دردغص. ب☺️
Ive heard the biggest risk factor is a small cup to disk ratio, a crowded optic disk, and drusen. Those are structural issues that cannot be controlled by the patient. Some are even just born with it.
This was so helpful for me.
Yep....sleep apnea. That was the risk factor that got me. No other factors except that one.....
“Over the next several months, you may see some improvement.”
Is that really true, or what’s really happening is that the patient learns to compensate, leaning on the field of vision that was unaffected or least affected?
It will not improve or get worse. I went through a 12 month clinical trial at Boston Medical Center. The cells in the optic nerve that die from lack of oxygen cannot and will not come back. There’s a 30% chance it will affect your other eye within a year. After that year that good eye should be fine. I dealt with a highly regarded
Neuro-Ophthalmologist. 13 visits. The clinical trial involved injections directly into the eye. They couldn’t get enough participants even after opening it up to 5 European countries. The injections were of no benefit. Good luck.
Howdie, My NA_AION eye sees about 10% so my eye is pretty much useless. I have attacked all of the risk factors and on avg patients with unilateral NA-AION have about a 30% chance of having just affected the second eye. There needs to be more education about the condition since many of the risk factors also cause other health issues.
Thank you doctor that's a great information. Actually I have optic toxic neuropathy because of Ethambutol tuberculosis medication.
After one year of treatment my eye sight improved. Still improvement is happening slovenly.
Most of Dr. told me eye sight will not come back.
only one retina specialist told me within 2 and half years whole eyesight will come back.
What's your opinion Dr. ?
Hi..How is your eye ? I'm also suffering from optic neuritis.I did not take any medicine cause i'm afraid from side effects.Mounts passed and i'm hearing that is may be permanent so i'm so worried.Because of covid-19 i cant go hospital or i just should go? I'm really worried.
Sir mere 4month phale optic neuropathy ho gai please sir koi treatment ho to bataye please call me 9414625764
@@iclipatates8614 hey how your condition now,did you recover your vision???
What is the difference between NAION and optic neuritis? Thanks
optic neuritis is a direct inflammation of the optic nerve head and is usually painful sudden loss of vision, usually worsened by exercise or heat. usually, patients report a loss in colour vision. NAION is painless and presents as a result of atherosclerosis of the posterior ciliary artery supplying the optic nerve.
I like this Doctor & the way he explains this eye disease & puts you at ease.
Is there any surgical management for non arteritic posterior ischemic optic neuropathy I can't find any I don't know what to put in our case study
Ive got a problemof optic neiropathy .and never get healed ..what can I do to regain my normal sight!
if is permanent the problem is it unrepaiable? Couldn't rebuild optic nerve? So damaged patiet is fucked?
+84 Ateo patiet = PATIENT
I experienced NAION 2 and a half years ago.
It is obvious that there are controversial (no clear knowledge) what is the main cause of NAION. So I want to express some of my personal observations here.
I suffered imputation of 2 biggest toes and frontal parts of the foot on the left leg when I was 5. This was the reason my spine become deformed with time and I suffer constant pains in the whole region of the spine. Also, I suffered tingling in my left hand and left part of my face. At night as I slept on my left side this tingling was stronger and sometimes I felt pain in the entire left part of my head.
This was I believe the reason for NAION in my case - and is probably hidden somewhere in my spine in relation to fact that I slept on the left side - this may cause increase nerve pressure in my spine and was the cause of deficient blood circulation in the left side of my head.
So it becomes pretty clear to me that in my case NAION had neurological ground and I believe it is possible that most cases of NAION are rooted in health troubles related to the spine.
Finally, it was found that the optical nerve in my left eye is decayed and I am entirely blind in that eye consequently. Also, my sight in the right eye is partially effected.
I read a statistic that every third person with NAION eventually loses sight of another eye, too, which makes me seriously think about what can I actually do to prevent this bleak outcome.
As I said it was pretty clear to me that the way I sleep may be an important factor (besides the leg injury) for my development of NAION.
First I have to say that I don't use a soft mattress for years now.
Now I decided to try to sleep solely on the back, which was firs unpleasant for me until I rearranged the upper part of my bed so my entire upper body is lifted for about 20 degrees.
This way I sleep even better now, and without tinglings or other negative effects. The entire health situation of my back is improved significantly so this gives me at least hope I will not become entirely blind eventually.
I realized that sleeping on the back has two significant advantages. First, as we sleep our spine is not curved in any direction out of its natural position, and second, by lying on the back the entire spine is not only sheltered from any coldness we may expose it during the sleeping period but is actively warmed-up and protected from below, by the warm surface of the mattress.
I wanted to speak out about this in case somebody may find this information useful.
is there a way ( about me FUCKING WAY : ) to repair a damaged optic nerve ( after a tragical serious accident...)...cause in my country , in Italy, it's simply impossible...Is there a stem cells treatment?
I was diagnosed with NAAION in August 2022. Overnight i lost not only my vision, but my life as I'd known it up until that day i simply woke up, no pain, no symptoms beforehand, nothing to indicate i had a problem with my eyes. Devastating doesn't begin to describe this little-known disease
@ CarolinaGirl33 how long was your diagnosis until you lost your sight
@@taytay8283 Aug of 2022. I'm not completely blind but I'm disabled, vjsually impaired so much so, that i qualify for disability