Removing a Lymphatic Malformation - Victoria's Story
HTML-код
- Опубликовано: 12 авг 2010
- Victoria's Mom shares her experience with Nationwide Children's Hospital and Dr. Shiels unique approach to treat Victoria's lymphatic malformation.
To learn more about radiology services at Nationwide Children's Hospital, visit: bit.ly/Y1qUqd
Watch this video to learn more about the new treatment of lymphatic malformations at Nationwide Children's Hospital: • How to treat Lymphatic...
![mgk - Sun to Me (Zach Bryan Cover) [Live from Cheshire Cottage]](http://i.ytimg.com/vi/_ZnbTEs4O6U/mqdefault.jpg)
![Gunna - back in the a [Official Video]](http://i.ytimg.com/vi/oBrbejOHjLw/mqdefault.jpg)
I have it on my face, I've been getting surgery every year since I was born and it's a struggle to live with it everyday. No one looks at me like I'm normal.
Me too,. My friends and family tell me that it looks fine but I can't stop wondering
I have lymphangioma on the left side of my cheek. I just had surgery recently to reduce the size of it, to make it more even as the other side of my face and to get rid of most of the pain
Same here with me, I have it on the front of my neck. I absolutely hate it, and I’ve had 2 very invasive and painful surgery’s with long healing times left me with a massive scar going straight across my neck, but it keeps reoccurring. I never had it until 2 years ago, and in almost one month it went from a tiny pea sized lump in my neck to a baseball sized lump, and ever since then it has just been growing. I often need to go to the emergency room (at least once a month) to have them do emergency drainage because it restricts my breathing and swallowing. I am having another operation in one month with a new surgeon who says he’s confident he can fully remove it, he says he will have to cut me from ear to ear and that I will have a 3 month recovery. I am praying that this will be my last surgery, but I am also just loosing hope at this point because nothing seems to work.
I am 21 year old university student, and just two years ago I used to be so confident in my self and was very social with others but now I’m just so depressed and anxious because of this that I hide myself from everyone and everything.
I hate living with this.
@@sylviaclinton8849 I hav Also same pblm...
I also done surgery very recemtly... bt its reoccuring......
Bro is there any permanent remedy...
What about cosmetic surgery...?
Chicken Strips how did your surgery go?
What a brave little girl!
I hade one behind my right eye. The doctor thought it was cancer, I nearly got my head cut open, but it ended up just being a malformation. I’m better now, I didn’t need surgery.
I have venous malformation in right shoulder, arm, scapular region , forearm since birth and done sclerotherapy for 8 times... its too painful ...feels like my hand is burning in fire.... I feel difficut to sleep from right side...and I alway sleep from left side....at last left hand muscles become weak from everyday strain and now I can't sleep from left side too....sometimes I can't sleep whole night figuring how to sleep... I feel strong when I watch this type of video that there are many people suffering from this malformation....from my very childhood I always think that I will die... but i think its not true ... I am 24 years...and still doing sclerotherapy hoping for better life....I laugh , smile and do whatever I want even though I feel physical pain... be strong... be calm... be happy...
Any use doing manual lymphatic drainage?
Glad to see shes doing better. My 2 yr old had it on her neck chest and under her arm pit, she has to have the shot therapies & im very nervous for her
How did it go with the shot therapies ? My son has one on his neck and it seems like that's the therapy they are going to use for him .
@@luzethreyes6400 hello, how did your sons therapy go? My daughter just got recommended this surgery and trying to do as much research as I can
My son also has it in his left arm.
aww
My daughter has vascolear veins problem age 1.5 year old
Ive had this since i was born. Left side, abdomen to knee.
Hope you are doing well, Jen!
I was born with abdominal lymphangioma and I'm 26 been searching for a doctor to help do you have a doctor that knows what there doing I'm always in pain need this gone
My baby girl has it in her eyelid, it travels through her cheek and forms down into the roof of her mouth. She also has Microphthalmia of the same eye (the left eye).
Oh no! I have microphthalmia on the left eye too!
MY SON HAS THE CASE EXACTLY LIKE THIS GIRL , HE IS LIVING IN TURKEY , CAN YOU TELL ME WHERE CAN I OFFER HIM THIS KIND OF MANAGEMENT?
I am 21 years old and I have LM in my right thigh (Right abdomen to knee).
Guganesh Gugan - Which doctor you r consulting?
;....( ( sniff sniff). Poor little girl
Hlo sir my baby suffring from same problem lymphatic malformations sir how much need money to treatment in India can u reply sir plzzzz
My little brother are suffer this cancer.what can i do??
Hello Anik, so sorry to hear your brother is ill. There's plenty of information about cancer care, research and support services on our website - www.nationwidechildrens.org/specialties/hematology-oncology-bmt .
Sad wa
My grandson has one on his neck
Ruby Ervin my granddaughter has one on her neck also
My daughter as well
my son also has one on his neck .... Have any of them been treated and if so what treatment was it and how was the experience ?
My daughter's entire right arm is affected by the same thing. Not an easy journey to be sure!
Hi dear. My i know whether u did any treatment?
@@sasriahasan1747 6 invasive surgeries and 27 additional surgical procedures. She plays the drums now. If she wears long sleeves, you can’t tell.