Yes! Thank you for mentioning FAI and labral tears. This is a very informative video! I hope this can potentially save someone from years of unhelpful treatments. You say that pelvic floor PTs can work with the hips, but none of the pelvic floor PTs ( went to 7 in different states) I've been to have been able to work with my case and made me substantially worse, and assumed my pain symptoms were psychological. I was crawling around on the ground in pain barely able to walk for months at age 26-27 after having done pelvic floor PT because my hip diagnoses weren't discovered yet. The hips need strengthening so the pelvis can relax - not stretching or relaxation as weak hips will cause a further tightening of the pelvis. Symptoms of hip dysplasia include: Popping, groin pain, anterior pain, uneven leg lengths, and limping, and needs to be diagnosed by a dysplasia specialist through three methods; MRI arthrogram, CT scan, and X-ray. Post- surgery my pain has decreased by 60% at least Hip dysplasia can also cause labral tears and impingement. I had bilateral congenital hip dysplasia, cam impingement, and chondral separation of the labrum, which has now been corrected surgically. I currently have sacroiliac joint inflammation, hypertonic pelvic floor, vestibulodynia/pudendal neuralgia symptoms, and painful endometriosis symptoms (planning to have diagnostic laparoscopy). I just had a periacetabular osteotomy and arthroscopy on each side to fix my dysplasia, labrum, and impingement, and I feel as if my pelvis issues are getting better as well as sacroiliac joint! The edema on my sacroiliac joint is decreasing via MRI. I've seen over 17+ providers to get to my hip diagnosis. Nobody ever mentioned the hips, and I found out about my hips by accident - I decided to get them checked on a whim as nobody knew how to treat my symptoms and I kept getting worse and worse each session I went to for pelvic floor PT. I started out with a diagnosis of painful sex and vaginismus and then it ballooned out into a lot of issues as I kept going to pelvic floor PT which wasn't working. I was trying to fix my sexual dysfunction and endo symptoms. Ironically, within 2 sessions of only orthopedic hip PT before my surgeries, I had significantly less pain.
Similar to my story 20 years disabled severe pain even been suicidal. I’ve been like this since 22/23 I’m now 44 two surgeries for endo also. I have a huge lump in groin just ruled out hernia and lipoma with CT. They kept taking pics of my hip I finally demanded a pelvis MRI. They were still saying no to that I had to call ins to complain. The lump in my groin and swelling in hip is sooooo visible I can’t take the pain anymore I’m basically bedridden. I have a labrum tear but all the drs say years are no big deal most ppl have them. I don’t know what to do anymore and I’m all out of money from this journey. Sitting is unbearable also pain in butt I wonder if it could be groin endo or c-section endo cause c-section pain too but my groin also snaps. And they said they ruled out displasia I’ve also begged for xray that measures legs they won’t do it or the ultrasound. I don’t understandddddddd why drs leave us like this I’m losing my life I’ve been to over 100 drs no lie in this 20 years.
This is so messed up that while we are suffering practically dying from pain. We have to hunt for someone who can help which usually never happens without alot of money. I literally can’t take the pain anymore I’m so afraid I may not make it. A pain Dr I was referred to 3 weeks ago told me he’s sending me to a psychologist. Cause my MRI is clear he told me I don’t need the 2 pain meds I take a day from another dr. We got into an argument cause he was so rude and abusive not the first to be. I told him are you crazy all you can think about is I’m crazy and a druggie. I have a child to care for our life has been ripped to shreds by this delayed diagnosis/medical neglect. I am randomly tested all the time and in 4 years have never tested for anything but what I’m prescribed. I don’t want these meds I want a diagnosis and cure. It’s not my fault the pain is so bad that without pain meds who knows what I might do. And they only take some pain away im still always in pain. He raised his voice really loud told me take the referral to the psychologist and slammed the room door so hard the walls shook. He then had one of the medical assistance tell me to leave then 4 days later had one of the medical assistance call me to cancel my si joint injection Feb 2nd and my trigger point injection Feb 20. She told me my primary dr called them to cancel my appts and said to not make any future appts with me. I told her are you sure cause it is illegal for one dr to call another dr of mine to discuss my medical without my permission. So I called my primary Dr and left a message asking him why he did that. He called me back I miss the call and he left a message saying. “Hello Miss _ this is Dr _ I don’t know what has given you the impression I would do such I thing. I would never do such a thing the pain management Dr called me and all I did was listen.” So I called the medical asst back and asked her why she lied she said. “All I did was follow drs orders I don’t know anything else.” I waited 2 1/2 months for this appt to be treated like trash yet again. I was so looking forwar to finally having a dr manage the pain cause I’m at the edge. And I have a little girl who depends on me we have no other family and her dad passed. We’ve been homeless before cause of my delayed diagnosis. I’m in so much shock I’ve been left like this I’ve spent 20 years going dr to Dr to Dr. I can’t anymore cause it’s gotten to the point I can barely walk I’m so scared for my little girl for our lives I need to work. I don’t understand how all these drs have so little compassion for ppl in this kind of pain. If they had this pain they wouldn’t last a day without pain meds. And I went 20 years in this pain until I couldn’t take anymore and finally begged for help. 🙏🏼😢
I had an MRI 2016 about 25 of them before that and one in 2021. I found out with the 2021 MRI I had a labrum tear. The report said it got bigger from 2016 and neither dr told me. I asked the dr why he didn’t say anything he said cause most ppl have them they are no big deal. He said PT and hydrodisection injections would heal it. I stopped accepting PT years ago after about 5 years of it off and on. It causes the pain to increase 10 times more and lump in my groin to get bigger. I signed up for the show “chasing a cure” a few years ago cause I am so desperate but didn’t get the call back. How do I see this dr to at least get a diagnosis and then figure out a way to pay for what I need. 🙏🏼
I have had a huge lump on my groin 20 years I’m in so much pain I can’t take anymore and no one will help me or can diagnose me. I have a labraum tear but every dr says it’s no big deal. I recently had an MRI to rule out lipoma and hernia it’s negative. I’ve had two endo surgeries 2nd being July 2020 my question is what is the severely painful lump that’s visible is it endo or bursitis what is it. I’m demanding an ultrasound but they keep denying me one I’ve had 30 MRI’s. How can you have a visible lump and drs not go in to see what it is even if imagining is clear you can see it with your own eyes. I’ve told these drs you know MRI’ and CT’s don’t pick up everything pls go in and remove this painful lump I can’t take anymore help pls. And as you said some endo symptoms like the extreme stomach issues, heart symptoms, passing out got better, but I’m still suffering the comstipation with severe groin, hip, butt and leg pain. I’m working on my package now to go see Dr Vidali will he be able to tell me if I need to see one of the drs in this video. I don’t even know where to begin it’s like it’s so many drs I need to see to diagnose me since endo makes conditions hard ro diagnose. Why if drs know many hernias or even lipomas don’t show on images. But patient has a visible lump and pain why don’t they go in. And why instead of tell patients who are suffering so bad. “Sorry I can’t help you it’s out of my league I’m aware imaging doesn’t show everything.” They instead dismiss and abuse these patients and why in 2023 are drs still only relying on imaging. Why is exploratory surgery not a medical procedure being down for patients like myself where imagining is showing nothing but there’s obviously a problem.
So some hernias don’t show on imagining what do you do exploratory surgery. And my comstipation is so severe I have to use enemas constantly. My bowels are a little better since endo surgery in 2020. How does a dr give someone a hip surgery or hip replacement if they don’t need it. 😳😡 I swear the world has no idea what is happening behind the scenes. All the suffering going on because majority of Drs aren’t good Drs it’s so devastating.
Yes! Thank you for mentioning FAI and labral tears. This is a very informative video!
I hope this can potentially save someone from years of unhelpful treatments. You say that pelvic floor PTs can work with the hips, but none of the pelvic floor PTs ( went to 7 in different states) I've been to have been able to work with my case and made me substantially worse, and assumed my pain symptoms were psychological. I was crawling around on the ground in pain barely able to walk for months at age 26-27 after having done pelvic floor PT because my hip diagnoses weren't discovered yet. The hips need strengthening so the pelvis can relax - not stretching or relaxation as weak hips will cause a further tightening of the pelvis. Symptoms of hip dysplasia include: Popping, groin pain, anterior pain, uneven leg lengths, and limping, and needs to be diagnosed by a dysplasia specialist through three methods; MRI arthrogram, CT scan, and X-ray. Post- surgery my pain has decreased by 60% at least
Hip dysplasia can also cause labral tears and impingement. I had bilateral congenital hip dysplasia, cam impingement, and chondral separation of the labrum, which has now been corrected surgically. I currently have sacroiliac joint inflammation, hypertonic pelvic floor, vestibulodynia/pudendal neuralgia symptoms, and painful endometriosis symptoms (planning to have diagnostic laparoscopy). I just had a periacetabular osteotomy and arthroscopy on each side to fix my dysplasia, labrum, and impingement, and I feel as if my pelvis issues are getting better as well as sacroiliac joint! The edema on my sacroiliac joint is decreasing via MRI. I've seen over 17+ providers to get to my hip diagnosis. Nobody ever mentioned the hips, and I found out about my hips by accident - I decided to get them checked on a whim as nobody knew how to treat my symptoms and I kept getting worse and worse each session I went to for pelvic floor PT. I started out with a diagnosis of painful sex and vaginismus and then it ballooned out into a lot of issues as I kept going to pelvic floor PT which wasn't working. I was trying to fix my sexual dysfunction and endo symptoms. Ironically, within 2 sessions of only orthopedic hip PT before my surgeries, I had significantly less pain.
Wow this comment is so relatable to me..tysm
Similar to my story 20 years disabled severe pain even been suicidal. I’ve been like this since 22/23 I’m now 44 two surgeries for endo also. I have a huge lump in groin just ruled out hernia and lipoma with CT. They kept taking pics of my hip I finally demanded a pelvis MRI. They were still saying no to that I had to call ins to complain. The lump in my groin and swelling in hip is sooooo visible I can’t take the pain anymore I’m basically bedridden. I have a labrum tear but all the drs say years are no big deal most ppl have them. I don’t know what to do anymore and I’m all out of money from this journey. Sitting is unbearable also pain in butt I wonder if it could be groin endo or c-section endo cause c-section pain too but my groin also snaps. And they said they ruled out displasia I’ve also begged for xray that measures legs they won’t do it or the ultrasound. I don’t understandddddddd why drs leave us like this I’m losing my life I’ve been to over 100 drs no lie in this 20 years.
@@boundariessetinstone5893 You need dunn degree AP x-ray, 45 and 90 degrees, 3D ct scan.
This is so messed up that while we are suffering practically dying from pain. We have to hunt for someone who can help which usually never happens without alot of money. I literally can’t take the pain anymore I’m so afraid I may not make it. A pain Dr I was referred to 3 weeks ago told me he’s sending me to a psychologist. Cause my MRI is clear he told me I don’t need the 2 pain meds I take a day from another dr. We got into an argument cause he was so rude and abusive not the first to be. I told him are you crazy all you can think about is I’m crazy and a druggie. I have a child to care for our life has been ripped to shreds by this delayed diagnosis/medical neglect. I am randomly tested all the time and in 4 years have never tested for anything but what I’m prescribed. I don’t want these meds I want a diagnosis and cure. It’s not my fault the pain is so bad that without pain meds who knows what I might do. And they only take some pain away im still always in pain. He raised his voice really loud told me take the referral to the psychologist and slammed the room door so hard the walls shook. He then had one of the medical assistance tell me to leave then 4 days later had one of the medical assistance call me to cancel my si joint injection Feb 2nd and my trigger point injection Feb 20. She told me my primary dr called them to cancel my appts and said to not make any future appts with me. I told her are you sure cause it is illegal for one dr to call another dr of mine to discuss my medical without my permission. So I called my primary Dr and left a message asking him why he did that. He called me back I miss the call and he left a message saying. “Hello Miss _ this is Dr _ I don’t know what has given you the impression I would do such I thing. I would never do such a thing the pain management Dr called me and all I did was listen.” So I called the medical asst back and asked her why she lied she said. “All I did was follow drs orders I don’t know anything else.” I waited 2 1/2 months for this appt to be treated like trash yet again. I was so looking forwar to finally having a dr manage the pain cause I’m at the edge. And I have a little girl who depends on me we have no other family and her dad passed. We’ve been homeless before cause of my delayed diagnosis. I’m in so much shock I’ve been left like this I’ve spent 20 years going dr to Dr to Dr. I can’t anymore cause it’s gotten to the point I can barely walk I’m so scared for my little girl for our lives I need to work. I don’t understand how all these drs have so little compassion for ppl in this kind of pain. If they had this pain they wouldn’t last a day without pain meds. And I went 20 years in this pain until I couldn’t take anymore and finally begged for help. 🙏🏼😢
I had an MRI 2016 about 25 of them before that and one in 2021. I found out with the 2021 MRI I had a labrum tear. The report said it got bigger from 2016 and neither dr told me. I asked the dr why he didn’t say anything he said cause most ppl have them they are no big deal. He said PT and hydrodisection injections would heal it. I stopped accepting PT years ago after about 5 years of it off and on. It causes the pain to increase 10 times more and lump in my groin to get bigger. I signed up for the show “chasing a cure” a few years ago cause I am so desperate but didn’t get the call back. How do I see this dr to at least get a diagnosis and then figure out a way to pay for what I need. 🙏🏼
Is there a certain protocol/way to order MRI imaging that is recommended to rule out an occult hernia?
does anyone do consulttions with patients outside of the US?
I have had a huge lump on my groin 20 years I’m in so much pain I can’t take anymore and no one will help me or can diagnose me. I have a labraum tear but every dr says it’s no big deal. I recently had an MRI to rule out lipoma and hernia it’s negative. I’ve had two endo surgeries 2nd being July 2020 my question is what is the severely painful lump that’s visible is it endo or bursitis what is it. I’m demanding an ultrasound but they keep denying me one I’ve had 30 MRI’s. How can you have a visible lump and drs not go in to see what it is even if imagining is clear you can see it with your own eyes. I’ve told these drs you know MRI’ and CT’s don’t pick up everything pls go in and remove this painful lump I can’t take anymore help pls. And as you said some endo symptoms like the extreme stomach issues, heart symptoms, passing out got better, but I’m still suffering the comstipation with severe groin, hip, butt and leg pain. I’m working on my package now to go see Dr Vidali will he be able to tell me if I need to see one of the drs in this video. I don’t even know where to begin it’s like it’s so many drs I need to see to diagnose me since endo makes conditions hard ro diagnose. Why if drs know many hernias or even lipomas don’t show on images. But patient has a visible lump and pain why don’t they go in. And why instead of tell patients who are suffering so bad. “Sorry I can’t help you it’s out of my league I’m aware imaging doesn’t show everything.” They instead dismiss and abuse these patients and why in 2023 are drs still only relying on imaging. Why is exploratory surgery not a medical procedure being down for patients like myself where imagining is showing nothing but there’s obviously a problem.
So some hernias don’t show on imagining what do you do exploratory surgery. And my comstipation is so severe I have to use enemas constantly. My bowels are a little better since endo surgery in 2020. How does a dr give someone a hip surgery or hip replacement if they don’t need it. 😳😡 I swear the world has no idea what is happening behind the scenes. All the suffering going on because majority of Drs aren’t good Drs it’s so devastating.