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Thank you. I appreciate your work and contribution to the research.

I’m full of adhesions from endo & other pelvic ops. The big pain for me is the endo & adeno fusing my bowel & uterus together. Definitely the endo bits hurt most. I have a huge mass of adhesions beneath my navel from surgery, they don’t worry me at all.

What’s the difference between Covid lung collapses and endometriosis lung collapses = menstruation

1. SNOMED and ICD define the definition of endometriosis. Not advocates that do not understand hospital software and pathology. 2. This group of doctors does not know how to code a diaphragm endometriosis surgery, the correct pathology or imaging for endometriosis. 4. This group of doctors do not understand how to evaluate surgery complications or to provide patients with informed consent 3. Endometriosis is caused by EDC exposure defined by 26,000 medical journals and exposome science. 5. It's concerning that advocates with obesity are trying to provide advice in healthcare when obesity is a public health crisis.

It took over a decade of having repeat laparoscopic surgery and hormone treatments that made me very sick and unable to function. I found one specialist in Wisconsin to do my surgery and at that time it was the worst it could be covering everywhere the surgeon looked. I hope others don’t have to go through that where it disables them like it did me.

Any endometriosis patient that has a cateminial pnenothorax should not be flying. Flying with a collapsed lung is not recommended because the pressure changes in an airplane cabin can make it worse. This would require a Thoracic MD to sign-off on.

This is why I booked my endo surgery for thanksgiving week! It was a great excuse not to have to be involved!

Way to go Keara!! 🎉

It doesn’t kill you but it sure does kill you while I’m alive. This is no way for anyone to live like this and don’t have money to. It’s effed up .

💎🌹🇨🇦

Thanks for the video, it really helped know what sort of questions to ask my provider and level of expertise to look for

I have both im in pain all the time

Thank you for this information.

When are doctors going to listen to us women. And not toss us aside saying "your IBS is in your head" or "you just have a bad period." it should take a decade or more for our pain to be real and diagnosed.

You lost me at "people assigned female at birth" 🙄

Thank you for saving lives

Thank you for this

Do bowel movements always have to be painful? Mine arent painful at all... but i have severe constipation and other endo symptoms

Thank you so much for this helpful interview. Loved the format and relevant questions you presented to the doctors. Thank you all 🙏🏽

I’m going through all of this now and tired of expressing myself and the horrendous pain. It’s so hard dealing with all that’s going on, endometriosis/ adenomyosis and fibroids. My stomach is swollen like I’m pregnant and very tender around my pelvic on the left side. I’ve been referred to physio due to severe radiating pain down my left leg and lower back on the left and after multiple appointments I’ve cried to have an mri which came back as I have a disc bulge L4 L5 , L1 to L5 I’m still on a waiting list to see a specialist gynaecologist which keeps getting cancelled and rebooked. I describe my left side as being completely broken because of the constant pain having a period or not and I find myself limping too tilted. My periods are horrific like I’m in labour and huge clots where I’m spending my first few days mostly in the bathroom 😓

I wish some doctors would take people and the pain they feel with endometriosis/ pelvic pain seriously and go into detail. Anything I’ve learned regarding my condition has all been through talks like this where I’m educated enough to express when I’m speaking. I’ve been going round in circles with this for over 20 years and 1 operation. I’m now back to the severe pain with adanomyosis and fibroids with endometriosis, my stomach is swollen like I’m pregnant with radiation chronic pain down my left leg / pelvic area . I describe my pain as my left side being completely broken but again I’m going round with physio gynaecologist and still ongoing with appointments 😓

What about the sharp stabbing pain? Not cramping…

Hi Dr. Sallie ! 🇨🇦💎🌼

I have multiple cysts, adenomyosis, and a cyst that grows to 7-8 cm and bursts to 2-3 and repeats. I desperately need a hysterectomy. The bloating, pain, sweats, doubling over, severe severe bleeding. It’s misery.

Thanks SO much for these summits. We are currently devouring them as we wait to see physicians.

I had surgery with Dr Sinervo in 2022. These videos are so validating and wonderful to watch, thank you.

Thank you so much! My daughter has been on a long journey and for the past two plus years has also suffered with leg/hip pain and even had impingement surgery which did nothing. Only very recently did she learn there might be a connection between her endo (which she had given up on being recognized as an issue after seeing several doctors in spite of past history of endo ablation) and the leg/hip pain. She is currently being evaluated and alas is finally being believed. This info further confirms we may be getting closer to finding relief for her. She has always been active and an athlete and just wants her life back. Thank you so much for sharing and for your dedication to this field. We've been living the nightmare with her and are hoping there may be light at the end of a long tunnel.

Ivf ruined my ligaments I tore everything. My hypermobility was manageable prior

This is my 3rd or 4th video I've watched and every time I start to doubt myself for seeking surgical care, a doctor on here says something and I can relate to it and it makes me feel slightly less anxious about having surgery. I'm 6 weeks away from finding out for certain if I've really been dying slowly on the inside for the last 20 years of my life. Nervous but ready for real answers. I've been in pain all my life, so I can "handle" it. What I can't handle at all is having zero answers for WHY.

If only general gynaecologists would watch this.

Hello, I’m not sure when your next live will be. I would like to view it. I’ve had surgery at Rush hospital in Chicago about a year ago. I talked to Dr. Sinervo about 4 years ago. I’m still suffering from ascities. My gut under my rib cage stays swollen.

I’m so thankful for the Endometriosis Summit and that you all are having these kinds of conversations! I have had unilateral hip pain for years and I often felt like it was associated with the uterine pain I was also having. I was diagnosed with a labrum tear, had surgery for that, only for hip pain to return. I was later diagnosed with Adenomyosis and have recently been wondering if I also have Endometriosis. I am working with a Dr related to my Adenomyosis, but have had a hard time finding a doctor who would even consider the relationship between hip pain and gynecological concerns. Just glad to know someone’s out there talking about these things and that I’m not crazy! Thank you!

I can’t believe I’m just now discovering this condition! I have been undergoing so many tests for so many years. I’ve been sent to GI dr, heart dr, autoimmune specialist, gallbladder tests not once but twice in 3 years, & so many more and nobody ever mentioned this. I have right side pain, shoulder pain and pain in diaphragm area! Wow after paying all that money, I find the answer for free on RUclips !

It causes pain because the endometriosis is foreign to the abdomen This is what happens when there is a flare up for some women . The body tries to fight it causing swelling and cramping

😥please someone help me. I'm in so much pain still at the age of 42 I had a partial hysterectomy leaving one overy at 21 due to severe endometriosis. My overy + hemorrhagic cyst and small intestine is adhered to my pelvic floor. Last year a second surgeon backed out of the surgery once he was in there due to the fact that there was no visual of major organs.

Eu sinto muitas dores no meu período menstrual, mas dor mesmo de chegar a ficar de cama, além de sentir dor após a relação sexual, sinto essa dor como se fosse no estômago, mas não é no estômago ou no intestino sei lá. Fiz recentemente uma transvaginal e perguntei a médica de ela conseguia ver na trans e ela falou que não tinha sinais de que eu teria, já tentei várias vezes engravidar e não consigo e também não tomo remédios para evitar gravidez, não uso nada. Talvez eu tenha que fazer outros tipos de exames para saber de fato se tenho, porque os sinais eu tenho.

Eu fui diagnosticada aos 38 anos, mas me lembro de uns 10 anos atrás ouvir de uma Ginecologista que a dor no ato sexual, era que meu parceiro era bruto e grosseiro comigo. Saí do consultório confusa. Eu também escolhi não fazer uso de hormônios durante minha vida e tive que usá-lo após o diagnóstico. A minha foi silenciosa, sentia algum desconforto no período menstrual, mas nada que eu não deixasse de cumprir com meus compromissos.

My absolutely favorite session! So many excellent topics abt the state of healthcare now and future potentials of AI to train surgeons and provide supportive parameters to establish and maintain video documentation for general gyn to gather information for referral.

Dr Vidali found mine after no one did

Hi! Thank you Dr. Sallie , Heather, Dr. Gaby Moawad ! 💎💎💎🇨🇦👸🏻✍️✍️✍️

How do you find good Drs like this that will actually examine you with such detail and knowledge?

Endometriosis is a life long disease. Grief catches up after so many years of being isolated, suffering without much support and knowing that you won't have a child to hold your hand, when you really need it. As i get older, I feel much older....Its damn exhausting. My depression is so bad that I go mute for days....talking is just too much, especially when in pain. I'm trying to get surgery overseas for nerve entrapment, and my body feels so heavy and diseased. I was a registered nurse before my first lap, which basically ruined my life. I went from pain a few days to pain everyday. There needs to be Endometriosis clinics for support and advocacy and other resources in every part of the world. We used to have a women's hospital 20 yrs ago but seem to have gone backwards. I'm starting my art up again to have something positive to do. Thanks for talking about this, Jo. I haven't had any further surgery since 2001.....my symptoms are bought on mechanically by faeces sitting on the nerves and my ligaments ache all day after having a bowel motion. I also have crotch zapping, which indicates further nerve involvement. So, I'm trying to get surgery with a neuropelvologist in Australia to at least have a look see and remedy some of my pelvic nerve pain. I've done CBT and counselling and physiotherapy, but to be honest, nothing has really helped. I was 12 when my periods were unbelievably painful, put on the combined pill at 14, and diagnosed at age 26. Total hysterectomy age 28. I'm now 55 and I'm loosing weight for not eating much. Food equals going to the toilet which means pain. It's starting to actually take my life.....so I need exploratory surgery as I had stage 4.

My anti depressant Venlafaxine Drug Medication 💊 225mg worked for about four years and last year in the spring/summer , I was in a scary terrifying uncontrollably withdrawals HELL and I had to learn how to wean myself very sloth like slowly so that I can tolerate the hell a little bit more. I’m still going through HELL withdrawals but are little but bareable hell . Doctors don’t know the long term adverse side effects on the human but a lot , many many people have unalive themselves because of the iatrogenic paradoxical harm injuries that are very serious and dangerous for us and top with dealing with endometriosis and severe painful death periods every month. I am trying my best to hang on no matter what . I’m trying my hardest ! Some times people make it and other times people don’t make it and unfortunately that’s life BUT we humans can help each other and come together as a compassionate unity 💎🦢🦋🇨🇦🙋🏻‍♀️Love Shanda ! I love you Dr. Sallie! Your INVALUABLE HUMAN BEING! 💖✨

Thank you ladies!!!!💎💎💎🦢🦢🦢🇨🇦🙋🏻‍♀️🫂🫂🫂

Thank you to you all! Love you all like minded civil people ! 💎💖👩🏻🇨🇦, ✍️📝💻 📖📳🧠🤯

The reason is for some reason any women problems are dismissed as us being overdramitic. Almost site I have endo but no one will ever confirm

Thankyou so much for this information.

Investigation is the key here. As Dr Chung said, the pain may be coming from elsewhere. It looks like it will take further studies to give true numbers of appendix endometriosis. Im pleased to know that surgeons are removing the appendix regardless of what stage of endometriosis.

I have surgery to confirm endo next week. Doctor says he’s almost sure I have it but he won’t be able to confirm until he goes in with the camera in my stomach. I got my first period at 12 and a few periods later I started getting a severe abdominal pain. Life became scary. Every time the week of my period got close I was terrified. The best way my 12 year old self could describe it was “there is an alien inside of me doing god knows what to my intestines “ I didn’t know if the pain was truly from my intestines but that’s how it felt. Like a twist stabbing. later I learned my abdomen muscles involuntary contract constantly for days while on my period. Causing the extra soreness in my abdomen. I started having severe diarrhea after foods at 15 years old. The normal person who could go to restaurants or eat outside was Gone. I have suffered with the IBS symptoms for 13 years. It’s. A bit better but still there. All gyns I’ve seen put me on birth control. Which helped me not have severe period pain but after weight gain my fat didn’t look normal I looked swollen. Like with inflammation. I’d seen rheumatologist recently that don’t know why there’s so much inflammation in my markers in blood work. 15 years later a doctor listened. I will get laparoscopy surgery Feb 7 2024 to see if there’s endo inside of me which I’m almost sure there is. I hope this explains why I’ve had joint paints and pain in my body and extremities. We think it’s inflammatory because that’s what my blood work says. Which endo is an inflammatory disease. So I feel close to figuring out why I feel how I do for so many years.

Dr Chung is on the right track as the pelvis is made of so many nerves. I'm not willing to be injected with botox or other medications, because a surgeon didn't take the care to have a good look and see. I think all gynaecologists need to learn neuropelvology via Dr Possover, so they DO feel competent and skillful to see what is happening within the pelvis.