Multiple System Atrophy (MSA): Diagnosis, Treatment and Future Research
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- Опубликовано: 4 окт 2024
- This session will shed light on the signs and symptoms, guidelines for diagnosis, strategies for treating symptoms and future research for MSA. Dr. Zesiewicz will offer helpful insights to individuals seeking a deeper understanding of the complexities of MSA.
I was diagnosed with Parkinson's Disease in 2012. Later in 2017 I was diagnosed with Multiple System Atrophy, but have done my best with the huge support from the Multiple System Atrophy Coalition to spread awareness of MSA through documentaries and while displaying the MSA Beast my 1970 Dodge Dart as a rolling billboard for MSA awareness.
What were your symptoms???
@@RobdeKlerk-qg6lc my very 1st symptom was a tremor in my hands and blacking out when standing. It is extremely hard for an EMT-I to do an IV in the back of a rolling box going down the road.
@FightingMSA good luck my friend...breathing problems as well ?
@@RobdeKlerk-qg6lc correct.
@@FightingMSA Thank...my friend
Thank you for this! I learned the difference between MSA, PD, and PSP
My 75 year old father is some 80 % confirmed to have this, but parkinson's is most certainly a factor.
Alot of the issues and symptoms line up and the last few years of history with him being at home seem to confirm a few things. He had hallucinations and weakness at home, would stop eating and drinking. eventually hospitalised with dehydration and such.
Lost roughly half his Body weight in 6 months down to 54 kilos. Now has Postural hypotension so can't really walk far or stand long and has had several nasty falls (which new hospital 1000 % monitor now to ensure he doesn't fall again ) , bladder issues, REM disorder, sleep problems, but has been steadily improving the last 2 weeks at a new hospital. Have to tackle his depression, in order to get a Stomach endoscopy test done, to confirm if has had stomach cancer.
Overall, his mental health has a good shot at recovery to a good extent, his physical issues are 50/50,
My father is suffering from MSA P. wishing for a cure for this disease.
Hi my name is Kathryn, im in Australia, i a as diagnosed with MSA in 2016. Life is getting a little harder these days . Things are progressing a lot quicker all of a sudden. I have been really good up to now but im noticing im startingv to get a lot slower, spelljng hard and my hand is starting to twitch a lot but my Neurologist cant believe im still walking, passing out is fun. My legs are ohaving trouble though now so i dont think it will be long. Til wheelchair bound. I have ALL these things that is being talked about . But ill keep fighting .
My sister was diagnosed with this disease ( MSA) this July only. she was advised by her neurologist that the only help they can do is to undergo physical therapy. I hope the symptoms will not worsen rapidly.
My name is David a Olsen. I was diagnosed in 2017 with Parkinson’s disease but lately I have the symptoms of PSP and MSA I don’t know which one I really have. Some days are good some days or not. I have balance problems lately falling backwards, or the tendency to fall backwards. Luckily I’ve been able to catch myself now I have high blood pressure I have swallowing problems I have droolingand I have very bad hand coordination. I don’t know which one I have nothing seems to be working. It’s getting a little worse each year is is there any way to find out which one I really have thank you for any help you can give me
A neurologist who specializes in PSP and MSA
Ive noticedthat it hasnt been said about chronic indigestion/reflux. I often think I'm having a heart attack also when ilay down to go to sleep my heart pounds , i can almost hear if. I have to lie there and talk myself down to make it slower. My body in bed feels lie a thousand million ants ard runninv all oved it I sleep 4 hrs if I'm lucky 7usually I cramp up. I nod off during the day only for a minute the day while I'm in the middle of doing something, which is funny as I'll wake up because I've fallen out the chair or banged my head on the table 😅
There's a pandemic of protein misfolding diseases.