♡ Starting a Life Changing Drug!! + Update! | Amy's Life ♡
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- Опубликовано: 17 окт 2024
- ♡ Starting a Life Changing Drug!! + Update! ♡
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I always find myself rewatching Amy. I miss her. These videos feel like hanging with a best friend. We miss you Aimes..
Me too we miss you Amy 😭❤️
I’m in Canada, I’m 25 and have been on Xolair since the day I turned 12yrs old. I started it for allergic asthma and mast cell, if I had another asthma attack/allergiC react I would have died, I had already died twice. It has kept my lung function at 42% for 12yrs and it’s saved my life
I miss you Amy ! Very very much .. whenever I’m not feeling my best I re-watch all your vlogmas videos. They always make me feel so much better to just hear your voice . ❤️✨❤️
She was a wonderful person
Amy, no need to apologise for your absence. We all understand what your going through.
But it is nice to see you again. Be safe. Greetings from Sydney. 🇦🇺😁⭐️
Never forgotten 💗
Amy, don't worry. We still remember about you! Everything is going to be ok here :)
😔
So sad to watch this after hearing Amy Lee fisher passed away r.i.p Amy u changed a few people's lives aswell as fighting for yours got high angel spread your wings
I started Xolair 3 months ago. Didn't start working until a few months in. Before, I'd go into anaphalaxis from the cold, heat and exercise. It's working. Such a relief. Still carrying epi around. Still getting hives from stuff, but no more anaphalaxis signs/symptoms. Glad it's working for you!!
I’ve missed you so much. Was worried about you. Great to see your beautiful face ❤️❤️
I pray for your pain to be better controlled. I have constant chronic pain which isn’t controlled the greatest. I understand not sleeping and being so frustrated and hurting that you cry yourself to sleep. I feel you absolutely did the right thing by making your life and wellbeing a priority. You are what matters the most ❤️
Ask your Dr. for Tramadol , it's the last best thing of what is classified a narcotic but is not that addictive, been using it for a few years and it helps my spinal pain, and since the Docs won't prescribe Oxycontin anymore, it's the next best thing and so far it's not controversial.
Nigon Kouk Tramadol is the only thing that gets me through each day. I’ve been on around the clock scheduled doses, every 3 hours 24/7 (yes, even throughout the night, all through my J-tube), for 8 years now. It doesn’t even come close to taking my pain away, but it takes some of the edge off, which is something I’m thankful for, and is something I lived a long time without. Even a small amount of relief is still relief, and Tramadol certainly works a million times better than anything OTC, with the added bonus of it being VERY difficult to become addicted to. I can honestly say that even after taking it for such a long time, 8 years of scheduled 24/7 doses, I still don’t have any level of addiction or dependence on it, I could quit anytime and the only thing I would experience would be more pain, nor has it lost its level of effectiveness. The hospital my specialists work at is very strict when it comes to pain medication, and thus far Tramadol is still the only drug offered to me for regular pain control. It makes me furious at all of the people who have abused the system, making it so much harder, if not impossible, for people who are facing severe genuine 24/7 pain to receive adequate pain relief. I’m just glad that Tramadol exists, as I truly don’t know where I would be without it. I’m still primarily bedbound and dependent on around the clock care due to the progressive and degenerative nature of my disease, but Tramadol is one of the few things that adds a small amount of quality back to my life, and for that I am grateful everyday for its existence and availability.
Girl, you are a fighter and the best youtuber despite your sickness and pain! Glad to see your face again ❤️💪🏻 think we’re many many people who’re rooting for you and feel connected to you despite not knowing you. Wish you the best of luck with your new treatments.
YES XOLAIR! As soon as I saw the title I knew it must have been. My docs pronounce it Zol-air. I’ve been on it since it was a clinical trial in 2017. This has absolutely saved my life. My MCAS is worse with environmental allergies, I was going into anaphylaxis after ~5 minutes outside with a mask, sunglasses, long sleeves and pants. It builds up in your system overtime. At first my reactions were just becoming less severe, but last spring was my first spring without a reaction, and this year I was able to start allergy shots without anaphylaxis. I get 2 injections every 2 weeks for mast cell and asthma. The side effects faded overtime for me. I am so sorry you’re doing poorly, please take your time to feel better! I hope this eases some of your allergies, just give it time ❤️
Omg I was on montelukast for asthma and allergies too. Small world
Stumbled on this, and also suffer from a lot of digestive tract pain, cramping, bloating, spasms, gas and nausea from severe IBS-D, Lupus/Sjogrens, fibromyalgia and significant joint/ligament intersection damage from a life-critical anaphylactic reaction to a chemo drug 1.5 years ago. Know how much my life completely blew up from my conditions, cannot imagine having to deal with the level of issues you do.
Wow, amazed how you function at all! 5 years ago my health blew up, after 30 years of managing things enough to have a good career. My body just finally hit me with a hard stop!
Hope you see this, and know that some of us who have less severe conditions than you understand and admire how you manage to live your life despite the medical sh*tstorm!
There you are, Amy❤️
I'm so happy to see you again. Your videos have helped me in the past few months to get through a hard time. I'm in deep depression and didn't really see any light at the end of the tunnel. Then I started watching you videos every evening/night and slowly but surely you sparked a little flame inside me and showed me how life can be.
I'm so thankful for what you've done. You changed my life.
Thank you, thank you, thank you ❤️
Maybe one day I'll be able to make you smile😊
I’m combing through all of these old videos now that Amy has passed. I missed a lot of this. I’m learning from it. I find her health journey so interesting because I relate it to my own.
I am a new subscriber and have been binging on all her vlogs :-) Just how did she pass away? Do you know what happened? I know she had several issues going on but I wasn't expecting her to pass away so fast.
Xolair changed my life! It made my asthma so much better. The first one or two days after the two injections are horrible, but having a month or more between serious attacks is sooo amazing. Now I am allowed to inject myself. That's fantastic. Hope it does the job for you as well.
I'm so glad you are doing better. I always looked to you for inspiration you are such a fighter. I was just diagnosed with hEDS (finally) a month ago. It's a blessing to finally have a diagnosis for what's been going on with me my whole life! I have more of the dislocations and tears of cartilage because of it. Keep fighting!!! You are so brave and beautiful and such an inspiration 🦓❤️
Omg I've been on Xolair for 2 years now for chronic idiopathic urticaria and angiodema and it has made such a difference! Hope it works out for you m'dear 😊💜 best wishes to you and Tom x
I'm glad you posted a little update video again, I gotta say I missed you and I was worried about you. But always remember that if you don't feel up to vlogging or aren't well enough to edit the videos you have, that's totally fine. We'll wait for content if that means you're taking care of yourself, so don't stress too much on it. ❤ Love you!!
I was on xolair 3 years ago when it was new here in the US.. I had to have it because I had chronic hives all over my body with know known cause. They would get up around my neck and would cause breathing issues, which was concerning since I have asthma. I remember how thick the solution was when they injected... They had to inject soooo slowly and it was just so uncomfortable.. I had several rounds and due to moving I decided to discontinue... now I'm solely on the montelukast primarily for my asthma, but also as a buffer for my hives. I haven't had any problems since! I genuinely hope this continues to be effective for you and slowly stops causing more pain in those first few days!!! It really is a wonderful medication!!!!
Is that one of those commercials we see now on TV in America? I didn't know it was controversial, can't wait for Amy's next video when she talks about it.
I've been on Xolair for over 4 years now at 2 injections every two weeks and even though they help immensely with my Hives, some are from unknown causes and the others are from both heat and cold allergy, I still take daily allergy prescription as well. I hear the States has a new drug just for the hives that is in the testing phase but unfortunately it is not available in Canada yet :(
I was on it then too, but now that it’s out of testing it is much thinner than it used to be. The nurses used to shake trying to push down the plungers...
@@em-agan I'm still on the Xolair that comes in the vial and needs to be mixed so that one is still as thick as before, the new pre-filled syringes are a thinner substance so I didn't want those. But there is a new drug out in testing now only in the states for the condition so hopefully that one is released soon since it's said to work even better than Xolair
I take Xolair, been on it for 5 months now and it has worked miracles for my chronic hives that are caused by my Lupus. I hope it works for you too, good luck!
Hi Mai ... so happy XO is helping you! take care...
So wonderful to see you and Tom again. There's no pressure to vlog. And please, no apologies needed. 😊
So nice to see you again Amy! I was super worried about you, but didn’t want to pry. So happy to hear you have a good gut feeling about this drug, and my fingers and toes remain firmly crossed for you! Keep your chin up lassie 💕
Glad to see your face again! Missed you and Tom so glad to see you guys enjoying the new home. Hopefully that new pain medicine is helping. I think aiming for once a week vlogs is a good starting point to get back in to it and not overwhelm yourself with everything going on.
I was so worried hope you're doing well
I’m on those shots too, since Jan. The side effects were harsh in the beginning but get better every month ( 7 mo now) I almost never feel bad on shot day anymore! It’s reducing symptoms SIGNIFICANTLY!
Glad to see you’re both safe and sound xxxxx
Glad to hear you’re doing well! I just started my xolair injections in April due to going into anaphylaxis 3 times a week. It has helped so much in that I don’t have to worry about the anaphylaxis so much anymore, it’s greatly improved my MCAS symptoms in numerous categories. I hope they work out for you as well. Love watching your channel and thanks for the update!🙂
Omg we missed you too, but more than anything that your safe and healthy!! I love you guys sooo much!!! Please stay safe and it’s so great to have you back!!!
Hello Amy!!! So glad to see you again. I, too, have a chronic disease. It’s interstitial cystitis.....aka IC. In this video you mentioned the drug Montelukast. I was put on that over a year ago. I had to stop taking it. I was sweating from head to toe. I could bathe then dress and after that task I needed another bath. My hair was never dry, always wet. So I stopped taking it. My question to you is, “Were you taking this for your mast cell disorder?” I have mast cell disorder also. And when it flairs it’s ugly head....whoa, it’s bad. I battle constant pain. I don’t think I would know what being pain free is like. Just know you’re not alone. The diagnosis may be different but some symptoms are similar. Take care Amy!! It was so good to see you!!!
This is so crazy I was just thinking about you a few hours ago and was going to try to see if there were any updates on how you have been. I'm so glad you are doing as okay as you can be. Plus I'm so happy that you guys are moved into the new house finally
Sweet heart, no one absolutely NO ONE is judging your skin. Please stop apologizing for it. For one, it's not as bad as you think it is, 2, we don't care anyway and 3, your subscribers, love you for you, who you are, as you are. Your better than perfect because your authentic and that includes your skin. Honour is, and honour yourself in the process. Much love. Xx
if TPN is $1500AUD I can only imagine how much TPN costs here in America 😖
A lot but not a lot more then that really depends by insurance I guess
@FunWith_Jaylyn my mums on it and we pay $422 and some change for a 14 day supply plus the cold shipping price. It does depend on your insurance plan honestly.
I’m sure in the UK they told me it was approximately £1000 per day and £100k in total to send someone home on long term TPN. Luckily we have the NHS, so don’t need to pay 🥺 It helps you understand why it’s always last resort to put someone on TPN, main issue of course is the potential complications, but it is life support in some cases. ♥️
RiP Amy ♥️ xo.
Medicare would have paid for most of it .
Oh it’s so nice to see your beautiful face again! Sorry you are having so much pain. The house looks great! Wishing you and Tom all the best❤️
So glad to see you're doing OK and that you are home!
Glad to see this update! I’m so sorry about your pain- I have chronic pain myself and I know how difficult it is to push through that. I just ordered an Amy’s Life sweatshirt, and I know you’re not religious but I do pray for you and for Tom. He is an amazing man.
I missed you! Thanks for the update video. It was super cool to see some of your new house. I hope the new injection works well and that the new pain med helps with your pain levels.
Great to hear from you Amy, I have recently been rewatching some of your videos as I have just been diagnosed with Heds myself and am having symptoms of gastroparesis, you are a great source of information and awareness and I am so grateful for your channel,
I am so sorry to hear things are not going too well at the moment, you are an incredibly strong woman and I am sure you will get through this rough patch, sending hugs, love and light x
Nice to see you back Amy. Sorry things have been harder for you. Sending you love
Don't worry Amy! Take your time OK Amy? I hope you feel better soon
So happy that the new med is working for you. Hopes for the pain team to make your days better as well.
So glad to see you. Just take care of yourself. We will still be here. 🙏🏻🙏🏻🙏🏻❤️❤️❤️
Amy’s videos really make my day! Such a fighter ❤️
So happy to see you well as can be. Prayers for better health
It’s nice to have you back! Good to hear you’ve started Xolair - I think it took about 3 months before I reached the full benefit. Aside from the hangover it’s pretty great, I hope it continues to do good things for you. Hang in there, you’ve got this. 🦓
Kate Anderson it gives the worst hangover. Cheers to injection days 💗 mine was just the 2nd. My birthday. Lol. 😣
So happy your safe❤️❤️❤️❤️ you don’t need to apologize
Sorry to hear that you are going through such a hard time
On a happier note your house is fab good luck with it here’s to many happy years in it ❤️
Happy to see you back! Hoping your new meds work wonders for you! 🤞🏼🥰
Oh, hunnnneeeeee....so good to see you again and get an update!!!! Your home is lovely and glad to see you feathering the nest!
I'm glad to see you feeling a little better and finding medications that work. I've missed your videos the past couple months and I hope that you continue to feel better and that everything else can get under control. Love you 🥰.
You just do what you can and we will all be happy with that! Take care and be safe.
I have been tearing through so many of your old vlogs while you’ve been gone. It feels so great hearing from you again and I am glad you are making some life-changing changes. Take care, Amy ❤️
You are so amazing and strong. Please don’t feel the need to apologise, your true followers understand ❤️
I administer Xolair at an allergy and asthma clinic here in the states! I’ve heard nothing but good things from our patients. As soon as I saw your title “life saving injections” I knew it was Xolair 😄
It is good to see you again. Don't worry, a lot of us here also battle chronic illnesses. We understand that sometimes we are simply not able to do what we need/want to do. You don't have to apologize for what is beyond your control. Love from Jacksonville, FL. ❤
Amy, I am SO excited you are getting this medication!! Okay so my MCAS got so out of hand last year that Stanford Hospital here in the US started me on it last fall (2019). This drug has literally not only slowed all of my allergic reactions and respiratory issues it also started helping my gastroparesis! Here in the US it’s $29,000 for 300mg. Now that I’ve been on it for so long I get it every 3 weeks. I still have to get it at the infusion center at the hospital because of it’s black box warnings. I am so so so happy for you! I can’t even explain how well your MCAS symptoms will improve! I feel emotionally happy for you. I know we have never met but I feel like because I experience some of the same diseases as you I immediately start to empathize! I can’t wait to keep seeing more from you. As soon as I saw the alert I did a little dance ☺️ You have no idea some of the struggles your vlogs have helped me through! You inspire me to get my butt posting, sharing my zebra stripes, advocating, and helping others not feel alone! Just like you did for me. Much love and respect from Cali 🧡
Ah sweetie, love you too. Thanks so much for the vlog. I'm really not happy that you are in pain and I pray that it will soon be under control.. And I sincerely hope the newinjections bring you some well deserved relief. Thanks for the mini house tour, love that flooring. When Tom was washing it I had some serious giggles. Thanks.
I’m so happy to see that you are ok. Welcome back love xxx
So good to see you again Amy and Tom!!! I was also worried, but no apologies needed, we will be here for you! Loving you both from Canada xo
I found your channel about a month ago, and since then I've started getting intermittent episodes of gastroparesis, it's scary. I'm so greatful I found you when I did, I don't know what my body's doing but knowing that whatever happens I'll manage really helps
I'm glad you're doing well, Amy!
So good to see your beautiful self again!
Soo good to see you! Hope everything gets better! All that matters is you getting healthier physically and mentally
These are awesome news! All the best for you :) I'm so glad you're doing well.
Happy to see a video again :) I use to work in a hospital pharmacy and would prepare Xolair (Zo-lair), not something I would ever want to get its SO thick! But I hope it helps with your reactions!
Happy to see you again, Amy.Hang in there, we are with you. Love from Seattle. 💕
I’m glad you’re doing ok and I hope this drug works for you, you deserve nothing but the best and hopefully this will help do the trick ❤️
I mix weed with rubbing alcohol and put it on any of my pain of my joints and my arthritis helped me so much that I’m able to sleep at night now. I would recommend looking into this.
Amy you inspire me so much! I started Xolair in March! For my MCAS! and yes I agree the bone pain sucks and the nausea is so bad. But it has really helped my MCAS! I do twice a month 💗 I was diagnosed with EDS this year and I really can thank you enough for it because I didn’t realize it was what I had until I started watching you! My immunologist realized it right away. Medical Zebras! Xolair takes some time but it gets better. It’s helped me a lot. The manufacturer helps with the costs as well! If you need to look for that info! You pronounce it Zolair! Lol that’s how we say it here. It’s for severe asthma and urticaria and it really has impressed my doctor with it working! He had no idea it helped until I researched it! So glad you found it! Bright blessings! Please message if you ever need to vent! I live so much of this with you! I promise 💗
Good to see you. Hope you have a change for the good in your pain. I miss seeing you but don't overdue. No need to apologise .
So happy to hear your doing as well as possible lovely ❤️
Have been so worried about you and Tom too
Love you both ❤️❤️
Your videos always make my day. Stay strong lovely!
Missed seeing you so much. So glad to see you again and hear you are ok. Sending warm thoughts and prayers your way!
Dear Amy, I just want to say to you Thank you, for your videos, for your courage, your unbreakable heart. You are an amazing person. In my country, we have a lot of problems with medicine. I mean, many disabled people can't leave their apartments, go somewhere...
God gave you a beautiful purpose) You are like a light for people who have lost their hope. I wish you long, happy life))
Hi Amy...so thankful to hear from you....your home is so nice what you shared...always keeping you and Tom in my prayers..... Kathy from Hawaii🌺🐝💜
I'm so glad you're back, Amy! I've missed you so much!
I missed your videos!! So glad to see you settling into your new home, it’s beautiful.
So good to see you!! I've missed you!!💜💜💚💚💚🥄🥄
never feel bad for taking time for yourself and your health. health always comes first!
You don’t need to apologise for not being able to post. Your health comes first. We all still love you!
I’m so glad the MCAS treatment is helping and that things are going well in the new house. I hope you and your team find a way to better manage your pain 💜
I'm so glad to hear from you again. I have been thinking of you and sending you positive vibes. I have been taking Montelukast for several years for my asthma. I have found it helpful. Take care of yourself. I look forward to the next blog whenever you can manage it.
So happy to see you back 💙 We’re all behind you x
Glad to see you again, and I can't wait to get your updates. Things are looking up, finally!❤
I’m so glad you’re back, I missed you. Your new house 🏠 looks great 👍.
I’ve been struggling so bad this year too, so know that you aren’t alone and you make me and others feel like we are not alone either. Soooo happy to see you back! Stay strong girl, you got this!
Ahhh I love 911! Such a good show. I hope the new meds work for you and you start feeling better soon!
We love you, Amy. You are one tough girl. ❤️
So happy to see you on here again!
I'm so glad your getting beter
Loved the video. Also its nice seeing Tom and him chatting and stuff in it 🧡💚
I’m glad to see that you are doing videos again. I wanted to let you know that Ulta is offering eyeshadow palettes for the different houses in Harry Potter. I hope your health improves and you are enjoying your new home.
So great seeing you and Tom. I have missed you both. Glad you are doing well. Love you bunches 💗
Oh my god, im supposed to start getting that injection!! It was cancelled when the lockdown happened but I was given a new appointment and its on the 15th.
I have Urticaria and Angioedema, ive only had it for 1 year, but im covered in Hives from head to toes everyday and I also get severe swelling around my eyes and mouth also tongue and throat so I also have epi pens.
I have heard such great things about this injection and can not wait to start taking it.
I'm so happy that it helps you. I can believe that when i started watching you I didn't have anything wrong with me and now we are both relying on this injection, its crazy how life can change.
Wow', hope you get better somehow, I had the hives once and there's no way I could stand it for any more than that.
It’s an amazing treatment. She isn’t exaggerating the word life changing 💗 it’s made a world of difference in my life in the almost 4 months I have been on it.
So I had my first two injections on the 10th July and wow!!! Im still getting hives and swelling but it has calmed down dramatically!! My second set is on the 10th of August and I can not wait. Honest like you both have said it is life changing.
Thank goodness you’re back!! Hoping you’re doing okay
Excellent you are back Amy! And i hope that medicine makes your life the healthier and happier of the world!! :D
Thumbs up beautiful, thanks for everything you taught us. thank you for always being strong and brave. I will always remember you❤
i’m so glad you are ok i missed you ❤️
Omgeeeeee! So happy to see yall! So sorry about the pain you've been in but so happy about the new injection for you! I've been in quite a bit of pain myself and am trying to get things with my pain team sorted out as well. Best of luck to us lol...
Glad to see you back Amy 💕
So happy to see you back 👏👏👏👏👏
So glad to see you again. I missed watching you on youtube. You are such an inspiration.