I am a cancer Survivor as well and I am LLoyd Raymond Wells and I am from New York USA but now live here in Cebu Philippines and I was diagnosed with the same I had a astrocytoma and a Brain mass in my front left frontal lobe for many years as well and I had a 10 hour craniotomy and the tumor was removed back in 2020 and I am a survivor..
I appreciate you taking the time to make this video. My 39 year old son has astrocytoma grade 4 diagnosed in 2015. Appreciate you sharing your story and addressing the elephant in the room.
You have an amazing attitude! I'm waiting post surgery (6 weeks) for my tumor biopsy. I'm not frightened, but would love to spend more time with my grandchildren. I'm 62.
@@JasonGastley Mine too. Did your oncologist talk to you at all about taking Tibsovo? My oncologist isn't even going to have me do chemo or radiation unless it transforms into a grade 3 or 4. The new IDH inhibitors like Tibsovo are showing a lot of promise. So far the plan for me is to keep watching the residual tumor that's left over from my resection. The neurosurgeon & oncologist both say it's hard to tell how much is still in there. I'm just going to keep getting MRIs every 3 months and whenever we start to see changes they're going to start me on Tibsovo.
Thanks for sharing your experience. My wife has been battling a Astrocytoma grade 2 now for 3 years
I am a cancer Survivor as well and I am LLoyd Raymond Wells and I am from New York USA but now live here in Cebu Philippines and I was diagnosed with the same I had a astrocytoma and a Brain mass in my front left frontal lobe for many years as well and I had a 10 hour craniotomy and the tumor was removed back in 2020 and I am a survivor..
I appreciate you taking the time to make this video. My 39 year old son has astrocytoma grade 4 diagnosed in 2015. Appreciate you sharing your story and addressing the elephant in the room.
Best of luck to him. It’s rough but good things can come of it, it has for me 😊
Hope you are doing well today 🙏🙏
You have an amazing attitude! I'm waiting post surgery (6 weeks) for my tumor biopsy. I'm not frightened, but would love to spend more time with my grandchildren. I'm 62.
How did everything work out for you?
Don’t let time pass family is so important and those little ones have a way of making the world bright and magical place. Best of luck to you!
Hey. I have a grade 2 Astro as well. I’m 30 years old. I had a resection 3 months ago. Does your tumor have the IDH mutation?
It does it has the idh1 mutation. Which does help a little.
@@JasonGastley Mine too. Did your oncologist talk to you at all about taking Tibsovo? My oncologist isn't even going to have me do chemo or radiation unless it transforms into a grade 3 or 4. The new IDH inhibitors like Tibsovo are showing a lot of promise. So far the plan for me is to keep watching the residual tumor that's left over from my resection. The neurosurgeon & oncologist both say it's hard to tell how much is still in there. I'm just going to keep getting MRIs every 3 months and whenever we start to see changes they're going to start me on Tibsovo.
@@joojoofoohow are you doing now?