LIVING WITH DEMENTIA EP. 25 | KNOW WHEN TO CALL THE DOCTOR
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- Опубликовано: 7 сен 2024
- LIVING WITH DEMENTIA EP. 25 | KNOW WHEN TO CALL THE DOCTOR. If you have any concerns about your love one, do not hesitate to contact your provider. If their behavior is making you feel unsafe, seek help. Waiting will only cause you and your loved one more harm.
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Why not charter a boat for a day, with a captain on board
Exactly.
What a great idea!! Let Jason sail it under supervision! I vote this! Lolol there ya go Jason!
A fantastic idea, because you could choose to experience different types nautical vehicles.....I think you’d both enjoy that!
Great update! Glad to see you both happier! I do think a little exercise would help the respiratory and possibly sleeping! Good luck! Much love to you both! Boat time!! 😆
Good idea
Jason “looks” much more relaxed in his face and eyes. Hallelujah. Before he almost looked in pain…or maybe the “spark” had gone away. Love you guys.
yes and upbeat and mister smarty pants 😁
You look wonderful Jason! I can see 100% difference in you on the increase of your medicine. I’m glad you’re are sleeping nights now too. It takes a while for you to get use to the increase so you might level out on your sleepiness. God bless both of you. I love you both so much. No no no, not ready yet for the boats. Maybe later. 😉😉😉
I was just coming to say similar - he looks really good in this video (as does Lesley :) )
And Lesley looks beautiful
I agree, big change!
What a wonderful way of educating people. No sailboat sadly. What an amazing caregiver you have. Beautiful lady.
Thank goodness for Jason’s brilliant personality and humour. He made me laugh so much .
Ditto! He is a special guy for sure ❤
Rent a boat!
I love the coffee pot joke, Jason! 🤣I'm glad that the recent change in meds has had a positive effect!
Happy to see you both relaxed and having the jovial banter. Maybe renting a boat and having a friend commandeer it.
@marywallace, that was my thought too. 🙂 Jason looks great!
I agree with all those who suggest to go on a weekend sailboat excursion with someone else commandeering ; a pro on hand ready to take over if needed. Saying ‘no’ to pleasures Jason would enjoy & add to his enjoyment & quality of life seems harsh to me, Leslie ! You always do it sweetly & with a laugh but I do think you should think of this possibility for your dear husband!
So glad Jason's mood is more stabilized!! Hopefully the tiredness will settle down a bit. It's like you have to sacrifice something in order to get something else...ugh! That has to be frustrating!
Wow This is so surreal… in this conversation he does not look like he has any health issues at all! Looks like you could be our neighbors just having a conversation. I think those medications are working! 😊
Lovely to see Jason feeling more like himself and for you too!
You're right we love Jason and therefore desperately want to say yes to the boat but I'm with Leslie on this one ❤
You two are such beautiful souls. What an honor it is for me to be invited into your lives through this channel. Thank you so much for helping the rest of us through our dementia journeys. My mom was diagnosed 11 years ago. How I wish I’d had someone to give me the advice and information you’re giving. I wasn’t given any information on what to expect or how to handle issues that would come up. Sadly, mom is in the last stage of her journey. I’m going to miss her so very much. One interesting thing though is that she stopped recognizing me a few years ago, but now she recognizes me and gets the most beautiful smile on her face when she sees me. Is this normal? It’s been the greatest honor and privilege of my life to have walked this path with her, as I’m sure you feel the same Leslie. Jason you look and sound great since you’re off that other medication. Thank you both for all you’re doing for each other and the rest of us. God bless you both.
My mom has had Alzheimers for close to 15 yrs and in late stages. Rarely recognizes me and i understand the grieving process is happening before they pass on. Recently I broke my ankle and had cellulitis so I wasn’t able to visit mom for almost a month. My brother told me mom missed me because she mentioned me often. When I say mentioned me it doesn’t make sense but she said my name frequently. Finally saw her yesterday and was I ever surprised when she said “Hi and my name” “where have u been?” I was shocked by this because she often can’t complete sentences nor recognize me. Every person has unique issues. She has trouble swallowing now. So the fact that she was so happy to see was amazing!! She no longer walks. But when I visited her she read the label on her newest wheelchair. Like seriously…how can the brain not complete a sentence anymore but still read. The wonders of those awful plaques in the brain are devastating and interesting all at the same time. She turned 90 last month. She no idea of whose BD it was but so happy to be with those who love her. The first 10 years were awful & difficult but now she is calm and peaceful. I thank God for that.
You both look so much better & at peace in this video. When things are good live in the moment and draw strength from them, when things aren't as great.
❤❤❤
Amazing how Jason can reason out with his feelings and actions!
My bro in law and brother certainly couldn’t do that.
And No. Jason, no sailboat! 🙁
Go for a sail with a boat owner. They will usually let you help with the sails and even the wheel on a little cruise.
I would Love for Jason to have his Sailboat, but....sorry. I love your videos where Jason talks a lot. His sense of humor is wonderful. I am thankful that your medication has you back on track. It must be miserable for the both of you when it isn't. Love You Both! Thank You Jason for the Gym idea. I'll start going to the "gym" more too. LOL
I'm glad things have improved for you guys. You deserve it!
Ha ha very sneaky Jason putting you on the spot! We went on a sailing boat that took passengers just for a 3 hour sailing. Was quite enough for me! I sleep all the time but that’s part of this disease as you have to concentrate so much harder on everything. About the breathlessness, I get very breathless and had problems with doing things because of it. Our brains (folks with dementia) don’t work automatically any longer, so everything we do has to be input again and again. It’s like changing from a modern wizardry computer to one made in the 80s. Hugs to both!
Yes you can.
Truthful Kindness here. Sorry Jason, we have a sailboat, but my own energy and sleep patterns reflect yours with Lewy symptoms; wonderful to sleep now, even if it means i am sleeping 12 hrs a day. When i have no energy to tackle exercise, then it is obvious i do not have the energy needed to take part in sailboat responsibilities.
Jason, you are amazingly generous with your experiences......I have so much respect and admiration for you.
I have to say, Jason looks and sounds much better, awake and positive.
Take care Leslie❤
God bless you both!
So glad med changes are working! How about a toy sailboat to play with your grandson?😊 You two are so sweet and Jason is so lucky to have you on his team! Tfs!❤
I just love Jason!! Tell him I am stealing the “going to the Jim/Gym” line from him.
"Listen Linda" cracked me up. Good one Jason.😂❤
So glad Jason is feeling better. Trying to get my husband on a med to help him.
Same...mine won't discuss Doctors visits with me and gets mad when I make suggestions!
My mum was like that, she wanted nothing to do with doctors and would get so mad at me. She wasn't even diagnosed with dementia until about 8 months before she died as I couldn't get her to a doctor before then! Good luck with your husband.
Jason seems so much more relaxed, I am glad the meds are working…
I know this won’t take the place of a sailboat, but in my 55 over community we have lakes and the men get these sailboats about 2 feet long that the men here gather and sail their sailboat toys… they look like the real thing only shrunken in size, if you have a park with a lake or even a pool he might enjoy sailing one with remote control
I love Jason he is so damn entertaining ❤
Love you too Leslie ❤️
I would say no on the sailboat.
My husband wanted to go to Italy with his mom & siblings; I had to make the decision not to go. Family didn’t understand, but I knew what I was doing at home would be impossible to do in Italy.
NO, Jason. You are not able to sail a boat by yourself. But, I love both of you!
Great update! So glad that you, Jason are having a smooth time and I know you, Leslie need this smooth time maybe more than Jason does. Jason, about the sailboat, don't you have friends that have sailboats that could take you and Leslie for a day trip just sailing around relaxing? I'll bet just feeling the gentle movement of the boat on water would be very soothing to your soul. Jason, I love you quick wit!
It's great that you have Jason's "mood medication"adjusted and that he is more 'mellow' now.Leslie.. i have some idea of what you are experiencing, a family member of mine is having the same issues with her spouse and she is walking on eggshells too.Jason is incredibly charismatic and so witty! I will tell her about your channel as i think it will help her a lot. Sorry Jason but the sailboat is a firm no... Best wishes from Canada.
it's the side effect of the meds. if you want to know how it feels - just take one or tell her to take ONE. it's not going to hurt her at all and she will understand after trying it herself exactly how it feels. :)
Jason looks so relaxed and happy its so good to see you both relaxed and happy xx
We appreciate so much your willingness to help us understand at least some of how dementia affects lives. We also know that we are seeing only a small part of what is happening; the day to day is surely filled with frustrations for you both. Yes, constant contact, for positive of negative reactions is necessary. Some folks are afraid to “bother” their doctor or feel this is just how things are progressing. Your medication change is a good example. Thank you!
Love that Jason called you Linda
He was talking about that little boy on Facebook saying,” Linda, Linda, Linda listen!” 🤣😂😂
When you haven't posted for a while, I begin to worry. Hope the two of you are doing okay!
This is so lovely to hear and infact it’s clearly obvious even in a small glimpse of your day that Jason seems so much more himself and the smile on your beautiful face shows things are better in this area. Beautiful amazing couple 💗 love from Donna in the uk xx
You two are a trip! No joke glad to see things are calmer! Love his sense of humor you can get through anything with laughter!
No sail boat. Get him a small table top model to add to your decor.
It breaks my heart, as I'm sure it does yours too, Leslie that when Jason is feeling good you would think there is nothing wrong, therefore he still has adventures he wants to live out but realistically he cannot. That is why this disease is s devastating, to know the man Jason was, so full of energy and adventure and to see that diminishing is very very hard to say the least.
Yes, please do@danymilll707
One of the side effects of the medication may be cardio. Check his labs and heart. Also, hopefully he’s getting in a little walk daily - even if it’s at the park from bench to bench. Check out day cruises for sailing.
Totally agree with charter a boat with a captain and you can both enjoy the sailing without the stress. Nothing better than being able to walk onto 3:00 a boat and relax and walk off when it’s over, without all the work.
What about just plain old depression and loss of “HOPE”. His life was basically yanked out from under him and told your life is basically unrecognizable and downhill from here. I’m a nurse as well (ER) now retired. This happy, active, funny guy was told life is over. I would recommend talk therapy and guided on how to seek out interests that would help with the hopelessness. These ideas may have already been put in place. It’s the old nurse in me, what can I say…let’s fix the situation…Leslie?!?! Take care you two. Praying 🙏 for you.
Sorry, Jason, its a "NO" on the sailboat. Perhaps one of your friends could take you out for a short afternoon cruise, as a passenger only? I do not think Jason has the physical energy and perhaps stamina to crew 100%. So why not enjoy an afternoon experience as a passenger with friends? Or perhaps a restaurant and park by the docks or harbour or beach where you can walk, picnic or play with Hudson?
I am so happy to see you both more relaxed and Jason more like himself. So enjoy time together, maybe more park visits after "Jim" visits. But I really think more movement throughout the day perhaps chair yoga 🧘♀️ or putting in the backyard...gentle fun activity might help everyone. Leslie you are doing an amazing job caregiver to a loved one. Please remember to care for yourself.❤❤❤ sending hugs to you both.
I'm so sorry Jason but I'm voting no on the sailboat. That's a whole lot of responsibility and stress for Leslie. My husband thinks we could have a boat again and maybe a camper. Who does he think would be hauling this stuff around and setting it up?!?!😱🤯
Hahaha, you guys are adorable! I know this is so hard ( my mom just passed from dementia) but you are both educating people about dementia with vulnerability, grace, love and humor……..so much humor. My prayers are with you.
I suggest you try an afternoon out on a cruise and see how you feel then. 💕I have 3 autoimmune diseases and I always think “ What a great idea” until I do it and for me especially the day after. This sucks. 😢
Getting the right meds is so important! My husband is now on Wellbutrin & Zoloft & this controls the anger & belligerence. His doc & I (an RN) feel this combo meshes nicely with the Aricept & Namenda.
It’s good you feel more normal. But it’s always nice to have nap time.
Mood medications are trial and error. I am happy to see you are happier. Good advice to contact the doctor for adjustments. Sleeping at night is important. You are a beautiful couple. He has a funny sense of humor!
Wow, Leslie, I can see an amazing difference in Jason!, so much more relaxed and not so agitated!! Such a wonderful blessing!! Always something to be thankful for!! Much love, sweetheart!! ❤️❤️💋💋
Jason seems happier and so do you Leslie----Great video.
Sailboats are hard work and a lot of money to maintain! I loved ours but it was a lot to keep up!
@danymilll707 yes
It's amazing to see how Jason talks about his disease. My husband doesn't admit that anything is wrong with him. He definitely wouldn't talk about it!
I found myself absokutely smiling so much at how flattered you seemed in this video.
Jason just look so much better!!
Even his eyes are not as wild looking!!
THANK GOD FOR WORKING IN YOUR LIVES THE WAY HE IS.
AND I PRAY HE WILL CONTINUE TO BE IN YOUR LIVES AND HELP YA'LL EACH AND EVERYDAY
MAY GOD GREATLY BLESS
YOUR FAMILY
YA'LL ARE THE SWEETEST PEOPLE!!!!!!
No sailboat. My husband has dementia and he loves to sleep outside, but his problem is he uses a walker, falls down going to the "built tent" that is up in the woods. It is moldy and falling down so I tell him no. He is also 76. I let him go on his own once, while I watched him and he fell flat on his face coming down the hill. I had to call the neighbor to help pick him up. He was not hurt at all. He still wants to go up there. It is so hard being the caregiver and saying no, but some things are just not feasible, so Jason, no sailboat. Sorry 😢.
Jason if your having difficult carrying a chair down stars operating a sailboat might just been a little much to handle. Go on day trips (rentals) with someone else operating it.
He is so intelligent! He was really clear today .He carried it thoughts through and said all he meant to say. Encouraging to you both I know. Blessings to you both
We just got the diagnosis of the beginning of dementia for my brother. We live that together so help each other. I also am a nurse but unable to work as a nurse due to my own health. I am nervous of what the future holds. He was not put on any medications yet as he needs to get a lot of referrals done and see a different Dr for the mood changes. Right now, we are in the stage of waiting with all we need to get done. Along with my as needed job that is not nursing it will be a long tough road!!
Just stopping by to say hello! It’s been a couple weeks, so I just wanted you to know even if you can’t post, you are both still in my heart and I’m praying for you. ❤
I was thinking the same thing that another person has already said. Why not charter a boat and get a friend to take you on a few short trips? Bless you! 8:21
I totally understand your frustration…. When the doctors determined that they needed to change ‘mood’ medications it was a nightmare. First they had to slowly stop the medication she was taking before they could start her on the new one. And when they started her on the new one they had to slowly increase that to the target dose. I know where you are. It is not easy and I know we only get a glimpse of your life in front of the camera but I have a very good idea what is going on throughout your day. As always, I will pray for the two of you!
Jason seems so different since the change in meds. His demeanor is like what it was 2 years ago. He seems happy, pleasant, upbeat and wanting to share his thoughts. This is tremendous! So happy for both of you! It may not be perfect, given some of the things you mentioned were still problematic, but so very much improved.
We went through the sane with my Husband changing meds. He had Lewy Body Dementia. He was acting up so they gave him a new med. The med made him fall down & he was out of his head. Doc took him off that & and increased his Happy Pill med.
Maybe charter a boat for a day or so. Have a Captain with u.
Glad Jason is feeling. I know this is hard on u Leslie. I took care of my Husband for 8.5 years. He was sick 10 years. I'll love my Husband till the day I die. Good luck to both of you.
Did he just make a Slingblade reference with the Listen, Linda, Linda?. Sounded like it! Love you two. ❤
Jason is consistent with his sail boat request. I know he is missing all his previous activities. So happy his moods are getting better after the med readjustment and that he still realizes how hard it was on you . Keep smiling Jason. Bless you Leslie ❤❤🙏🙏
Such a refreshing upbeat video. Based on this video alone, I saw no evidence of Jason’s dementia. You are both looking good!
Jason, you’re a sweetheart and I love you but that’s a BIG NO to the sail boat.
I noticed right away that Jason looks so relax in his face. I am glad that things are getting back to his "normal" and he is feeling better. Would Jason love a Viking type cruise? It's kind of a "Sail boat" thing, just a bigger boat or maybe a sailboat cruise. Just thinking. Glad for you that he is feeling better also. Love your videos.
My neighbor had dementia and he always said that he would rather be left alone because he CANNOT control his feelings. He lost his temper quicky, which he did not before demetia. His wife had pancreatic cancer at the same time. It was very rough. Jason reminds me so much of my neighbor. Dementia scares me so much. It changes lives. My heart breaks for Jason and it breaks for you, Leslie. My sister and brother in law took care of his Mom with Alzheimer's and when it really affected their health they put her in an assisted living facility for people with dementia. They didn't want to, but could no longer cope. Hugs coming your way. ❤🙋🙏🌹✌
I really ❤ you two! Jason is very articulate & is good at explaining his situation. Catamaran sounds feasible! 😂
This renewed medication seems so much better for Jason. I hope you can find something that allows you both to sail and have an enjoyable time. Maybe go with friends or family who can help with the chores of sailing. Please tell Jason hi. Miss his jokes!
Again, thank you for this helpful video. I know you are making a difference for others in your situation. Sorry, Jason-no sailboat. Bummer I know. But remember that you are on the struggle bus with energy and stamina. Sailing take a LOT of both. Hugs to both of you!
A sailboat! NO,no, no! You need to have to access to medical attention and having the energy and mental acuity to handle a crisis for either one of you!
JASON DOES LOOK BETTER . THANK YOU GUYS FOR THIS. LESLIE, YOU ARE FANTASTIC, AND ALWAYS LOOK GREAT
Great couple, this is such a difficult adventure. My Mom is showing signs of dementia and it’s frightening to think of losing her mentally. I’m glad there is medicine that helps
Thanks for the up date. So glad to hear he is back on his reg meds and back to his normal Jason. NOPE, NO BOAT BUDDY!!!!! Not safe
Awesome couple! ♥️Blessings always.
I worry about Leslie's "spark" too. Who is seeing to that? Please Leslie, make sure you get yourself taken care of too!
Good luck, Leslie... you may have received a preview of things down the road. Signed: Been there
I just love that you both share your ups and downs. You don't know how much it helps me watching and learning. My husband my not be doing things like Jason but sometimes they are simular.
Tom forgets where the light switches are and forgets how to get in and out of the vehicle. Gets lost real easy. May God bless you two. 😊
Absolutely we just had a similar experience and upped the meds and life's good again. Get a boat if that makes you happy. Live life to the fullest.
Glad the meds and moods have been stabilized. Hopefully his energy level will return guess need to check with Dr and local.pharmacist who can offer insights into whether that is a normal reaction. I know some mood elevators, antidepressants etc can zap you of energy.
A big NO to sailboat. It is sad knowing that your days of adventure and travel are over but Jason's well being comes first , as well as yours.
I did listen again and he did reference you as "Linda" - "Linda" when discussing wanting to get a sailboat. I am certain it is only one of many changes or perhaps just a slip of the tongue. I have done that myself over the years.
So glad you've got the meds under control. When the MS fatigue, pain and mood swings set in, we know it's time for us to call the neurologist. Great advice. Sorry Jason, but that's a big no on the sailboat. Maybe watch Cape Fear and you'll be cured of that. 😉All the very best to both of you.
Jason seemed really happy on the video. Glad things are going a little better. Take care.
As a former boat owner and a wife, I say no to the sailboat. Go out on a chartered boat with a captain and take a trusted friend who is knowledgeable about sailing. A half day sail shouldn’t be too tiring.
I’m thinking you need to find Jason a nice sailing RUclips channel. 💙 But because we love him, it’s not honestly in his best interest.
Love you both!
Hugs from Oregon💙
Yes, charter a boat and crew!!! I support that. Life is short.
I’ve not seen you for a few months and I can’t believe Jason’s improved demeanor and relaxed conversation! With all the meds that are being taken, exhaustion could be an unexpected side effect. Have you checked Jason’s oxygenation when he’s spent? Someone recommended taking a sailboat rental or getting a couple of tickets on a boat. It might be a good thing to see how your energy level is after a few hours to see how physically challenging/exhausting taking a boat out can be!😅
Hi Leslie & Jason, I’ve been missing you. Hopefully all is well.
I wish you could have all the sailboats in the world, but Leslie is right, she is the one who knows. I hope Jason understands how hard it is for Leslie to always haft to say no to things...
To the Gym every morning love it, sorry Jason maybe just a sailboat trip with a crew, hope you are feeling up to cooking soon , thanks again Leslie for sharing
Jason you are on the sea of life trying to navigate ,let the Good Lord continue to be your captain as you sail along....❤
Glad the medication switching is helping. I pray he gets an increase in energy! 🙏❤️
You 2 are special!!!
Jason you rock!! God Bless from a Great Gran in MN
Hi, havent seen in anything from yall in a few weeks. Just checking to see how you are doing. Miss listening to yall. Praying things are going well. I pray daily for yall.
Many psychiatric medications have caused me shortness of breath and general incapacity to do exercise without severe discomfort. I haven't taken many AP, but I know people who have and still take APs and say they experience this type of secondary effects too. It's very hard to try to exercise, to be less sedentary, when it's so difficult to exercise.
I see such a wonderful change in Jason. So much like his old self! I pray that God will continue to work in Jason's life and help both of you along this journey. It would be wonderful to hear of great things God has done. PS - take Jason on a sailboat cruise (is there such a thing - where it's someone else's sailboat and they provide the "tour"?) Enjoy life - I pray you continue to be aware of each other's needs and that God will be your strength, peace and joy. Blessings on you both.
Love you Jason, but, no on the sailboat LOL
Jason you are looking so good! I'm glad you are feeling better!
Jason, find a friend that owns a boat!!! 😄😄 I love the Jim comment! 🥰
I like the idea of naming the coffee pot Jim!
No sailboat, Jason. Trust Leslie’s opinion on activities. She’s got your best interests at heart.