how we're really doing... day 280 in the NICU
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- Опубликовано: 5 фев 2025
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YT family.... Thanks for sitting in on this really raw and real video. I love you all so much and always appreciate the support of our family.
xoxo,
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I had a NICU baby many years ago. You are an amazing Mom! It's so easy for some to hide behind their screens and throw criticism. My son now has 6 kids of his own and is a thriving adult. Hang in there ♥️
Hi! My baby sister had a NICU baby! He was 3months early! He's an adult now and doing well plus he's a dad of 2 great kids!.
Don't criticize until you have walked a mile in their shoes, until then and only then, give your opinions. I personally think you and B are doing amazing.
Imagine, there will be a day when you and Braxton will be sitting on a bench in a playground and the boys will be running around laughing and playing. And you will know that you made it and it is all thanks to all the hard work you are doing now.
For now stay United. You and Braxton are a team.
I'm a NICU nurse and I've never seen a family go through so much with triplets.
Just because it “could be worse” does NOT mean it’s not the worst thing you’re experiencing currently. It’s stressful. It’s overwhelming. It’s emotional. It’s HARD. And many people can’t even start to put on your shoes to see from your perspective.
The things you were mentioning is exactly why I've been hesitant to go on RUclips. I'm very glad you're standing up for yourself, but you don't owe anyone an explanation. You're a wonderful mom. It's very evident that you're doing the best you can to deal with the what goes on with your boys and the difficulty that comes with it. People that do not walk in your shoes have no idea what you feel and go through.
You’re doing a GREAT job and I know you can never hear it enough. You were handed a very large hand of hard/complex/unexpected cards. Doesn’t mean you don’t love your family. Doesn’t mean you’re not happy and ecstatic about the family/life you’ve created. You are ALLOWED to feel all the feelings. Sadness and grief does not replace the feelings of pride and happiness.
My son is 2 now and was in the NICU for 77 days. Every NICU journey is different, but you are helping more people than you even realize. People (including myself) don’t realize how hard it is until they live it. Keep doing what’s best for your babies. You’re a great mom!
I had my baby in the NICU , not near as long as what your baby boys are going through , but I feel you when you say it can b isolating, and so stressed about what people can say. All I can say is YOURE DOING GREAT. You’re doing your best for your triplets! Thank you for sharing and bringing awareness to this! Prayers for you and your boys 💙
You think you’re “weak” by posting this video but you are SO strong!! I couldn’t be as strong or brave as you are being so raw, honest and posting this video. You are amazing. I look up to you and you are my hero. I am praying for y’all 🙏🏻🙏🏻🙏🏻💙💙💙
I love what you guys are doing, i'm only like a minute in so far. Other people may expect you to get raw and be emotional, and I appreciate also when you show yourself happy, but please don't ever feel expected to show people what they think you should be feeling. Its also ok to be happy or what others say "fake"" when so many things could have turned out differently, I think it's amazing to be honest that you can be happy and why not! all these little moments are a happy milestone, 1 baby home, then 2 babies home, successful trach surgery, all the milestones they acompished in NICU. My mum is a NICU nurse here in the UK. Its not easy being a mum of a NICU baby let alone 3! You are just AMAZING! LOVE YOU KEEP THE FANTASTIC WORK - MOMMINGBOSS! ♡♡♡♡♡
I am a triplet mama as well, ours are six months and at home now. I have also hated the feeling of nobody remotely understanding what we’re going through. The isolation of the NICU bubble was definitely the worst. Luckily, our kids didn’t have as many complications as your little ones, so I have no idea how you are surviving all this.. All the best to you, you’re doing a great job! 💪
I have an insane amount of respect and compassion for both yourself and Braxton. I have 3 kids, and our youngest (almost 2) is a medically complex babe. Complex heart condition and has had 4 heart surgeries so far - postnatal diagnosis when she went into heart failure when she was 3 weeks old. Then we almost lost her 3 days after her first surgery (5wk old) when she went into cardiac arrest and had 23mins of CPR followed by days of brain monitoring for seizure activity, an MRI under sedation etc. She has been fed via NG since she was 3 weeks old and developed a major oral aversion due to all the oral intervention with surgeries and her PICU complications. So many weeks in hospital with surgeries, bouncing in and out of hospital plus hundreddddddsssss of apppintments, (she has been under the care of about different specialties so far) check-ups, therapies (something like 50+ Emergency visits and 15 hospital admissions so far). Plus (almost) 2 years of pumping, a developmental delay for her after so long sedated, PTSD for both her and I, a global pandemic that meant I couldn't even see my older kids for 2 months because of lockdown rules, another child on the autism spectrum with his own needs and therapies. You are SO right - no-one is ever satisfied with what you do. You're either doing too much of something or not enough of something else. Everyone has an opinion, always. And someone is always upset with you. ALWAYS. I cannot even fathom how you are both keeping your heads above water. You are amazing, and inspiring. Keep doing what you are doing. You are so loved, even by people you have never met (and probably never will.)
I remember when my first 2 girls were 22 months apart. I literally was completely overwhelmed. The tiny walking toddler and trying to carry the the new infant in the car seat to just be able to go out and escape. Then trying to put on makeup or do my hair, oh i was a disaster. I would just cry and feel like a failure for feeling tired and overwhelmed. My girls grew in my womb almost to term. GIRL! I just can't imagine and pray constantly for you and your hubs because now my 3 girls are grown and on their own. (AND now I foster a million animals because I miss that chaos) My son is 16 and still home but I remember those moments where I struggled and I just want you to know I bow to your strength and courage. I'm in awe of you sweet girl. You inspire me with your story. This moment is just for now. My prayer for you is for you to look back as I am now and remember that you made it!! And see what beautiful boys you raised and nurtured. In this moment Im lifting you up in prayer and will continue 🙏. Love you!
I am completely in awe of how you not only handle your own situation but how you continue to share your story to help others!! Wow… even thinking about self-care much less doing it can be daunting but if you can do it, no one has an excuse! What an inspiration you are to EVERYONE!! And saying, learning that whatever you feel (joy, sorrow, excitement, happiness and sadness, etc) is OK TO FEEL THAT WAY! And to learn to allow yourself to feel it when crazy is going on around you, is one of the greatest challenges…All you can do is put one foot in front of the other and you are killing it!
Again, PEOPLE BE NICE. They are doing amazing given the situation. I was a nurse and they are going through hell. If I could have stayed home with my kids when they were young, you bet your bottom that I would have. As an adult parent of the children, you are doing great. You do you. I would love to say your worse days are behind you, but when they all get home you will have a different type of chaos.
I had 1 NiCU baby and almost lost my mind. Yall are doing amazing, ALWAYS remember that. I pray for all 5 of you daily and continue being you. 💙💙💙
I personally don’t think anyone should be judging you. Period. Support and understanding goes much farther than being judge mental.
The fact that anyone who hasn’t walked the exact path you’re on feels that they can comment in any negative way towards your reality is absurd!! I can’t believe anyone would be telling you how they think you should be handling this. I can’t imagine what this must be like for you. I truly can’t. I don’t think any of us can. The two boys that are home and growing would be enough to break any parent at times. Having another one with a trach and on a vent and the uncertainty that brings seems incredibly overwhelming. You’re an amazing mom. The way you’re handling complete 180 your life took 280 days ago is admirable. Keep up the great work. You’re a rock. You’ve got this!! This RN is incredibly proud of how you’re handling the enormity of your situation.
I don't have multiples nor have I had Children in the NICU so I can't imagine the struggles, but I commend you for all that you're going through and how well you're handling what is on your plate, especially at your young age.
Hi you are one hell of a strong mama, I am a adoptive mom of a short gut kid that lived a majority of his first 2 years of life in hospital and I just wanted you to know I am so glad there are other young strong mom advocates for their kids ,your own mental health ,and relationships. You rock one of the first to make me feel a little less alone .
I can’t even imagine how hard things have been since the babies have been in the NICU. Not to mention all the medical needs the baby’s have right now too. All of that to say, you’re literally incredible. I’m so proud of you. You are a superhero. Praying for your boys to get all better and for your guys mental health. You guys are literally superheroes.
What’s amazing about social media is if you personally don’t like to see family content with children, you simply have the power not to watch. It’s pretty evident what this channel is about.
I would never ever ever ever wish a parent witness their child being so ill. Yet alone THREE children. I think you are FABULOUS and LOVING parents. I could never imagine being in your shoes. And I would NEVER as a stranger comment what you “SHOULD” be doing and feeling. And probably as a friend either unless you personally asked for advice.
Most of these people commenting these ridiculous things most likely do not have children or their children have never been critically ill.
I SUPPORT YOU. AND I THINK YOU AND DAD ARE DOING EVERYTHING RIGHT FOR THOSE PRECIOUS BOYS!!!❤️
I really appreciate your honesty in this video. Saying a prayer for you all right now.
I just want to come and give you a big hug! Stay strong mummy! All your feelings are valid
Thank you for sharing your raw emotions, you’re right and we can’t even begin to imagine what you and Braxton go through and we have no right to judge. You are doing amazing and your honestly is appreciated and seen ❤️
Oh, sweet Aubrey. My heart breaks for your sweet little family and all the tough things that have comprised your lives since the boys were born. I was wondering why you hadn't gotten nursing hours to help with Croix and Dax. Since I'm a retired NICU RN, who has an empathetic heart,...I sure wish I lived closer so I could volunteer with Croix and Daxon a couple of days every week. Probably the people among your friends/family who haven't stepped up to the plate, are backing away out of fear. I'm so glad that you guys can earn some income through RUclips. I'm also very glad that you've been able to live with your family for now. I'm grateful that you are receiving counseling. I will continue to pray for your precious family. Your strength amazes me! You're in my prayers daily. I do understand how unbelievably hard this is on you two. My love and neverending prayers are coming your way from Savannah, GA.💙🙏🥰
I have no children and I'm thankful I do not yet bc I am only 23 and cannot imagine what it would be like to have a child, let alone 3, especially three nicu babies with special medical needs. I have said it before and will say it again, you are both so so inspiring! I love your family, you are doing great. I know it is hard to do but I am glad you are working out a way to find time for each of you to have to yourself to take care of your mental and physical health. Don't listen to the mean people that sit and criticize you, and pls don't criticize yourselves. You are both trying so hard and dealing with so much it is totally understandable to be irritable or emotional or neglect yourselves from time to time. Thank you again for sharing your lives in such a raw and real way. ❤❤❤ much love from NV
Your journey will help a lot of other moms and dads. Please take 30 minutes to an hour to yourself everyday if it is just soaking in the bathtub or just decompressing in a quiet place in the house. You both need it! Keep being amazing parents!
I am BLOWN AWAY by your authenticity & maturity about EVERYTHING. I am so glad that you were able to vent too, while being straightforward re: the hurtful, MEAN, degrading, insulting, RUDE, super disrespectful, etc. comments. This also applies to those giving unsolicited & extremely unhelpful “advice”, & so on, from persons that have never walked even an hour in your shoes. You have been nothing but amazing parents from the minute you conceived your miracle babies. I hope you both know that in your hearts🥰.
PLEASE BELIEVE THAT!👶🏻👶🏻👶🏻
I worked as a Pediatric ICU RN for years & if I lived anywhere near you (did not require airplane travel), I would literally be there in a minute. I am single & unfortunately now on disability for my own chronic health issues. I have no one here that needs me. When I could no longer work full-time, I became “less than” to everyone in my life, including family.
I have no children, but I can relate to how you described feeling like you, BCD+E are in a bubble with the rest of the world going on around you. I describe my own feelings of a somewhat similar isolation, as my feeling like I am alone on an island & everyone else is living their lives “status quo” over yonder on the mainland.😔
Obviously, what you & Braxton have been dealing with is MUCH worse than my issues, but I just wanted to share how this non-NICU mom, non-triplet/multiples mom, non-preemie mom, non-pumping around the clock mom & NOT EVEN A MOM AT ALL…can STILL relate to one aspect of your story & learn from THE FULLER FIVE!
Your family has touched my heart in ways that no one else has to date. THANK YOU. I am sure this is MUCH easier said than done, but please try to ignore the loser haters that are cowardly hiding behind their keyboards. They are just jealous of your trio of handsome baby princes👑👑👑❗️
KEEP BEING THE AMAZING PARENTS YOU ARE & LOVING ON YOURSELVES & THOSE SWEET BABY BOYS!💙💙💙
PS- Please do share a safe/PO Box address where we can send things to you guys! I would be happy to gift you the startup costs of the PO Box rental, if that would help?🥰
If so, message me on IG at the same handle as here (maybe underscores instead of spaces?). I have no IG posts, because nothing in my life is anything anyone would want to see…I am only saying that because profiles w/o posts sometimes make some people think I am a creeper account, which count not be further from the truth.
Sending positive energy your way!
Hang in There! ✌🏼💜 😇
~Melissa in CT
Mama you are rocking this. Don’t pay any attention to those criticising what you two are doing. You’re the boys parents you know what’s best for their current situation and you’re doing you’re damn hardest and best for them boys !
Just because you’re not crying on camera doesn’t mean it doesn’t happen because if you did do that people would slate you saying you’re being negative.
I am in absolute awe of you both for the way you are handling it. With such strength and bravery even if you don’t feel like you are. You have to take the mini wins when they come and celebrate them !
Uaaagh man! I feel so much for you! My son was born with a heart condition (VSD) and needed surgery. It was "only" 3 months of struggles and then it was over, he is healthy now. I can't imagine what you must been feeling right now. I'm still processing those three months and a birth that didn't go as i wanted. It's been 2,5 years and I'm still crying some days over it. I wish i could just take all your stress and hard things away!!! This will pass and you will recover mentally from this. Your boys will grow up and it's going to be easier and easier. You're in survival mode right now! Hang in there. You're are right now the strongest you've ever been! Cut yourself some slack! ♥️♥️♥️
Don’t let people upset you,they don’t know everything you are going through,block them!!!!
Hiya precious you spoke from your Heart 💜 firstly as a woman and secondly and the most remarkable thing to a woman is becoming a mother , the joy the sadness all the emotions one can experience , please continue to do what you are doing , even in your darkest days remember , your having a very bad day not a bad life , sending you all the positive energy you deserve and love ❤️ and hugs and blessings to you all always 🙏💜
It is sad that so many people make judgemental comments and unless they have walked a mile in your shoes they shouldn't judge 😕 you guys are doing great by them and it's very evident you love those boys fiercely hang in there❤🙏
Fellow NICU mamma here! You are incredible to those three precious boys.Thank you for sharing your journey with all of us. I know that any current or future NICU mom will be helped by your videos. Prayers and blessings to each of you 💙
My cousin’s daughter is a NICU graduate after being born at 25 weeks and was in the NICU for about 6 months. Had a lot of issues while in the NICU, not as complex as your boys. She’s going to be 22 this year so there’s hope for the future. Fill us in when you can. Don’t feel like you need to unless you can take time out from taking care of yourselves. Hang in there. The NICU will be a distant memory soon!
I just have to say that you’re seriously amazing! People come on here and say things like that because they are hiding behind a screen. You and Braxton are doing an incredible job and I am cheering you on every day!
People are quick to judge or express their opinion for situations they are not in or even understand. These parents deserve RESPECT and support. Not stupid critism. It's admirable how good they're handling so much!!!
I think it's great to call out the haters because they have no idea what you or anyone else has been through. Those who throw dirt are always losing ground. You're doing great momma, chin up!
Rather than people being so critical of you and Braxton, people should be appreciative of your vulnerability and transparency. I cannot even begin to imagine all that you two and your family are going through. I really do hope that, despite all the negativity, you and Braxton are giving yourselves as much grace as you possibly can. Your strength truly is admirable!
I can’t even imagine. My 23 weeker spent 101 days in the NICU and that was stressful. Plus months of only dr and therapy visits. Thankyou for sharing…
You are doing great . My oldest has spina bifida and I spent first year in hospital and I felt allot of what you share . You are reaching some ,, and for those who share the dum comments or opinions .. don’t give them power over your strength .. you will have better days as time passes those boys will heal and be strong .. and with the love you give them all will be ok..
Just happened upon your videos, and you are amazing! Don’t listen to any of the negatives, they are jealous that they could never be as mature or composed as you are. This situation is super tough,and you deserve whatever support you can get during this long process. You do not ant and should not apologize to any naysayer!
I have a 36 week, stopped breathing at 5 days only 11 days in the Nicu boy, and I almost fell apart with just that. He is 14 now and doing well. I prayer that your kiddos will one day be in perfect health like mine. You are awesome, never forget!
So hard to do this NICU life. I had a 26 weeker who came home after 91 days and then that same year I had a 25 weeker who was in the NICU for 515 days. He came home with a trach, feeding tube, breathing treatments, short gut, over 13 surgeries, probably 9 near death experiences where we were told to plan for his funeral. After almost 18 months we brought him home and they didn't know if he would walk or talk. I wish there was internet in 1987. I felt so alone. There were a couple groups but nobody in our town had a kid home with a trach. Nobody gets it until they live it. Zach was at his local hospital and then one 3 hours away and then finally a children's hospital over 2 hours away. I worked and took care of our other little one who was only 11 months old when Zach was born. Guilt was so hard Becasue you couldn't not be every where. So frustrating because nobody understood he wouldn't be alive with out the vent and no he isn't ready to come home. Or once he was home they would say you are so lucky to have help in your house (nurse). WHAT??? With out that help he couldn't come home nobody can stay up 24 hours and watch a trach baby. I am 58 years old and these feeling are still there. You got this momma! You are doing a great job!!
You are a super hero and at some point you have to block out the comments because you said it- no one knows what it’s like and your doing amazing making it through each day. You have every right to feel everything your feeling and don’t need to explain yourself or apologize to anyone. You should be so proud of yourself. Again, your a superhero ❤️
you and braxton are the strongest people i have ever come across to date. you are inspiring, strong, and graceful. i know it’s hard to remember but you do have an army behind you who, can only support you through a screen but support nonetheless! i love this channel and it reminds me everyday how lucky i am to have my child. thank you for what you do.
I have no children and it absolutely blows my mind that people have the audacity to tell you how to feel and how you should be acting.
You and B are so strong, I’m sending lots of love and positive vibes to you both and your sweet boys❤️
I normally don't write comments, because I always think that I have no time for that because I have ONE baby at home 🤣 but I wanted to tell you guys this: in this video you really really touched my heart deeply. your videos always do, but this time I just couldn't stay silent. I always thought that all the ONE-baby-moms are already struggling regularly, even with a healthy kid. So I cannot say HOW MUCH I respect you guys for caring for three babies, dealing with their special treatments and with being apart from them for such a long time, not even mentioning fearing for their life sometimes.
So I wanted to say this: You guys are already doing THE BEST JOB in the world by surviving this situation!! Plz never forget this (and I know every parent is fighting with self-doubt)! What you do for your kids is extraordinary!
And 2nd thing I wanted to say: f*** these negative comments. They obviously have no idea. 🤣😂 (nor do I actually 🤷♀)
Sending you guys all my love! Plz know that your little family is in my heart since more than one year now and I feel with you.
Came to your channel via your pregnancy announcement video and stayed for your journey. Congratulations for all you have achieved thus far. In the last 2 videos showing Daxon I have noticed a huge improvement in his development since being home. You have achieved that. I pray that Ezzy makes it home soon. Look after yourselves the best you can. You’ve got this 💪🏻
You are doing amazing and I completely understand what you are saying. I had twins at 26 weeks baby A was 1lb 12 12.5 inches long and she spent 127 days in the NICU I couldn’t imagine spending 9 months there the 4 months my daughter was there was the saddest scariest moments of our lives. She had surgery at 2 today old cause she had NEC and then she had chronic lung disease. She needed up having 3 surgeries and now she does have Spastic Diplegia Cerebral Palsy in her ankles. Her only problem is learning how to walk but she will walk. Baby B was 1lb 15oz and 13.5 inches long my sweet angel passed away at 21 days old cause a nurse stuck a feeding tube through her stomach and gangrene ate her whole stomach out and. So during surgery they had to remove her stomach. I remember they said the next 48 hours will the most critical and my sweet girl made it 38 hours. She is and was such a strong beautiful baby. Losing a baby is a feeling and a pain I just don’t understand yet it hurts so bad I almost can’t feel it (if that makes sense). My daughters are identical twins so we get to see my angel through her sister. God bless you and your family I think y’all all are amazing.
NO JUDGEMENT!! As a mom of premature twin daughter's I understand a SMALL piece of what you're going through. My girls did well, a few bumps in the road but for the most part healthy. I had 4 kids 4 and under and remember the feeling of isolation. You don't need random advice/judgment, You just need time... and SLEEP!! My girls just turned 38. Beautiful, happy adults!!
You will get there!!
I have twin girls that were born at 32 weeks because of my own health complications (as well as 4 older children). We got very lucky and they didn't have any health issues. My heart goes out to you. Even though we were lucky with a short nicu stay it was alot so I can't imagine going through what you are. The stress has got to be so overwhelming. I am so sorry that you have to deal with negative comments on top of everything. You seem like such an awesome person and mom and I look forward to watching your videos and following your story. I hope that things get easier for you (even though that seems unrealistic right now).
Rant Away Girl, I hear you. I admire your strength. I cannot imagine the amount of stress you face everyday. So anytime you need to Rant I say go for it. I think you will get more support than you think. So glad the boys are doing better and adjusting to being home, hopefully it won't be long before all 3 of them are home together.
Aubrey❤️ It will get better. Everyday is new. The boys have faced challenges, and they will Catch up. Takes time. Praying for you always❤️
You and Braxton are so amazing, truly! You guys do have so much on your plate and at such a young age. Most seasoned, older parents couldn't handle what you do. Your boys are so blessed to have you as their parents!!
I so wish that I could hug you. You are doing everything you possibly can for your children. I strongly suggest that when someone is very hurtful with their comments you block them. You don't need that negativity. There are so many people sending positive, healing thoughts out to you and your family. So for now try to remember that this won't last forever. your boys will grow stronger and they will know that they are very loved.
no one can tell you how you should be feeling because no matter the situation no one has been in your exact situation. If you need to cry, do it. If you need to scream, do it. What people see in a 10 minute video is NOT a reflection of your real life, so screw the negative people. Be proud of what you accomplish daily even if it means all you did was survive the day. Celebrate taking time just to eat and nourish your body. Give yourself Grace for what didn't get done because your family made it through another day and you have another shot the next day. Sending big virtual hugs.
100% Respect for you both ! My Granddaughter has two babies 11 months apart she has a rough time trying to care for them on her own basically 😕 with no real medical issues ..so Hats off to you with the care you are giving those sweet babies of yours .God Bless you and lm one of your supporters 🙏 for sure 👍 please keep us posted on how you are all doing and screw those who run their mouth they have NO IDEA what you are going through !
Why can't people start supporting or caring instead of either criticizing or ignoring others. I am not going through what you are, still I am either ignored or not supported, if I lived closer to you I'd volunteer to help as I have no one and a family that wants nothing to do with me, the scripture that comes to mind is when we try to get the mote out of someone's eye when we still have a beam in ours, little humans are resilient and have the drive to survive, as their parents you gave them that, a pat on the back goes so much further, then a sharp word from the tongue, kudos to you and their daddy!
Oh, Mama! Sending you a virtual hug! I’m sorry people think they have the right to tell you what you should or shouldn’t do. Imagine how different life would be if we would all just assume that everyone is doing the best they can. I hope you truly hear those of us who follow your channel and know you are!💞
I have been following your journey and am amazed by the two of you as parents! Pay no attention to the haters, as no matter what you do there will always be critics. God Bless you and your sweet little family!
Don’t you ever ever listen or take notice of anyone who is critical of you or Brax..You two are the most amazing parents I have known, you are both so young and first time parents and I cannot even start to understand all the information knowledge and the enormous load that you both have to contend with 24/7..Remember you are only human and your emotions are valid..Continue to look after you the best you can…my prayers are with you and your beautiful family…xo
You have got this, ignore what people say they do not live your life, no one but you and your family do, everyone has their own struggles and you have definitely been given a lot more then most people can handle, we only see what you show us we don’t see what goes in behind the camera, you are both so strong and your amazing look how organised you are look how well you are doing, I have 4 children and my life is no where near as busy as yours, you have both got this, sending my love and prayers as always ❤️🥰
Honestly I don't think I could handle what you both do on a daily basis. So as far as I'm concerned you guys are friken amazing!! Who cares about what other people have to say you don't t owe any explanation to anyone just keep doing what your doing hun. You both are amazing in an extremely difficult situation. All that matters is the 5 of you!!❤🙏💙
Thank you for saying it!! 👏 it does suck in all sides! And saying and validating the truth doesn’t make it any less grateful for the fact they are alive. We are grateful mothers but we are also realistic enough and it does suck. People who don’t live it can’t possibly understand. Thanks for saying the truth like this!! It is very validating to mothers of special needs kids and micro preemies. You are the mother, you have the right to say whatever you like or show your reality however you like. They are yours and the experience is also yours, you are going through this just as much as they are. 👏❤️may God forever keep you strong and realistic too. 🙏👏👏👏❤️
Hang in there sweetie. Don’t pay attention to the idiots. You know you are doing the best you can. Sending prayers for you and your family. ♥️🙏🏼
I had a baby girl born with Down Syndrome and all the medical issues that come with that diagnosis. I learned I was a strong woman and I had no clue. You soon learn how strong you are when being strong is all you got. Hang in there!
I love how some people call it Up Syndrome on social media. You are a strong momma yourself. Do you follow Raising Autumn on you tube? Audrey’s daughter has DS & Austism
We're never dealt anything we can't handle. You guys are doing amazing.
Your feelings are yours, whatever you are feeling in that moment is yours. Sad cry, laugh uncontrollably, I can't even imagine how people can keep it together. My grandson was transported by a small plane 2 and 1/2 hours away at 3 days old in NICU for 1 night and peds ward for 5 days. What ya'll are going through is so hard. Don't worry about the negative people. You stay as strong as you can minute by minute. You know one minute feel one way and the next minute some other feeling pops in, it's really OKAY Love ya'll. Blessing and prayers to the Fuller 5🧑👧👶👶👶
I can’t imagine how you guys are feeling mama 🥺 I thought 77 days in the NICU was so hard and long. I can’t imagine 280 days and counting. I pray for you guys every day.
NICU ptsd is such a real thing and tbh I’m TERRIFIED of another NICU stay with this new baby.
Please don’t let those rude ass people bring you guys down. You guys are so strong and I love watching your guys journey and I pray every day for your family ❤️
Keep your head up momma. I couldn’t imagine being in your shoes. Love watching your videos. Praying for the boys always. ❤️❤️
My sweet girl don’t you ever ever doubt yourself
I understand it’s much harder behind the camera but you all are amazing. I pray that everything goes well every day for you all.
I can relate to that disappointment around close one disappearing on you when you need them the most. I am still not friends with them that broke that promise to help and didn't when it was harder then they thought. I didn't have a choice and i felt alone. I'm so sorry you are going through that too! ♥️♥️♥️♥️
I just want to give you the biggest hug 🤍 what you’re going through is incomparable to anything else and you’re literal saints for even managing to get through this far as well as you have. We’re all rooting for you, through the great days and the worst days. Sending all the love 🤍
even when ,having a bad day,you are one strong cookie,and i think you help a lot of other people,respect ❤,nobody can judge,unless they walked your shoes😋bless team Fuller x
I can only imagine! When I was in high school I helped a mom who had triplets who all had cerebral palsy, and different levels. Because of them I went to college for nursing. I’ve been sick and not working right now, but when I do work I do pediatric home health care. I love it. Stay strong but cry when you need to. I wish you lived near me.
Truly praying for your family. No matter what you do, your day is never easy.
You guys are doing the best you can, your wonderful babies are thriving,beautiful, and a ray of sunshine. God is with you and guide on a journey. Keep being you.❤🌻🌻🤗♥️♥️
Aubrey, I just wish I could give you the biggest hug ever. I’m a loss mom, my son lived for a month in the nicu (he was born at 25 week) and passed away from necrotizing enterocolitis.
Nothing prepares you for anything other than what you envisioned for bringing your kids home. You are SO strong, and an amazing freaking mom. AMAZING.
My girl! There is no other human walking that could do what you 2 have HAD to do! Because nobody are YOU! I feel my heart leave my body every time I watch a vlog! I want to cry, I want to scream...why GOD, WHY DO THESE 2 young people HAVE to go through this...?
I do not know you in person but you are in my thoughts, in my heart and my mother heart wants to break with every word from you...you look so strong and you are, BUT you did not have choice in any of this... its not fair and I know I shouldn't say it or even put it down black on white! I want to take you and swaddle you in cotton, cradle you with love and compassion, wash all your worries and heartache away with tears...
Sometimes I can't watch the videos...just because I feel so much pain...
How do I encourage you? How do I tell you it will get better with time, if I'm not convinced it will? Today I'm a 59 year old woman, who once was a sick little girl, whose parents had to go from hospital to hospital dr to dr...and although I'm severely disabled today, my biggest heartache are for my parents, their journey! I want to cry when I think about it. And I'm sure they felt a little like you...
I'm so sorry for all of you...how do we see the works of an almighty God?
Ps 34:17-19
When the righteous cry for help, the Lord hears and delivers them out of all their troubles. The Lord is near to the brokenhearted and saves the crushed in spirit. Many are the afflictions of the righteous, but the Lord delivers him out of them all.
This is written and true and all you can do is hold on to HIS promise.
Keep well my girl 💕
You are amazing! Ignore all the negative noise. Your whole family is making a difference to so many people in the world
You just described so much of what you are going through and STILL there is no way we can know the actual depth of what you guys are living through right now. You are kicking ass and I'm sorry you have to deal with anyone's illusion that their voice matters in their opinion of you. You both are getting it DONE
I can’t even imagine how hard your situation is. Even if you are barely surviving that is an accomplishment!
Also, I definitely struggle with mourning the loss of my pre-kid life. I think it’s very normal and it’s okay to be sad that you can’t do normal things like you used to. I always try to hold close that one day my kids will be grown and I will have that time again! But it’s still so hard in the moment
I know it’s hard but stop letting people bring you down, you guys are doing the best you can and no one knows what is going on really except you guys and your family.Some people find it their job to complain and say what others should be doing or not doing.You guys are great and it may not seem it right now but you will make it through and your boys will do amazing things.
i pray for your family and hope God answers it soon. I come across many people that are hurting in my ministry so please keep God in your hearts.
I love that this was filmed in my room 😂 I love you! you guys are doing amazing
I admire you both. You are doing your very best. That's all anyone can ask for. You have my prayers.
You are doing a great job. My opinion doesn’t matter at all but it makes me feel better when I’m struggling and someone tells me that.
As a former NICU family (and now family with a medically complex baby), the “bubble” you described living in is spot on. I hate that you get negative comments when you choose to share your life and your family with others. I know I have personally felt seen watching your videos and you have normalized so many of the things I have been through with my own child. Your boys will be proud of you both for helping others with your story and for being such fierce advocates for them. I look forward to every video 💕
Sweetheart you are doing such an amazing job taking care of your precious boys. You both are making the best decisions for your boys,and spreading awareness to help and make a difference in helping others. Prayers for you both and your boys. Love you sweetheart ❤️
Thank you for your video. I am so sorry that some people on the internet make hurtful comments and lack understanding, and that your family is going through such a difficult time. Sometimes life does suck, despite the blessings we have. You have a HUGE number of things going on in your life and I can't imagine how difficult it must be trying to juggle everything, let alone try to find some balance. I understand the feeling you described that you and your family are living in a kind of bubble and everyone else is just going on with their lives. I have felt that too, particularly after being in hospital dealing with stuff and then coming out and seeing life going on as normal for other people. I do not have multiples, nor do I know what it is like to have babies in the NICU, but I do know what it is like to have several children with special needs and to feel overwhelmed by all those needs.
I am very sorry that you do not have much support caring for your children and I hope that your insurance soon comes through with paying for nurses to help you at home. It is sad that people you thought you would be able to count on for help and support have not been there for you. Many years ago, when I was a young mother of 4 small children (the oldest was severely intellectually disabled and the other 3 all had challenging behaviours later diagnosed as developmental disorders) I became very ill. I could not care for my children. We had a family meeting with my parents, siblings and sibling's partners to discuss my problems and what help we needed. I asked very little of my family and I had hoped they would be there for me in my time of need, but they weren't. Even my mother let me down. We relied on help outside the family, often paid help, to get by. And you are correct - you do what you have to do to survive, and you do the best you can with what you have. You expressed yourself very well in this video. I have liked your video and subscribed to your channel. I don't know what else I can do to support you and your young family. Hang in there.
You are so kind. You write so well also.
Hey how ever you do it is right for you we all never stop learning or some can’t they leave ignorant comments instead. It’s too bad utube can’t block them. I pray all your boys outgrow all these issues. Believe me somewhere out there a mom and dad are having problems and searching for help even on utube. Thankyou for sharing all you do. I pray your life gets easier soon. Don’t let rotten people get to you. Everyone loves seeing babies growing up it’s crazy to me the ones that ridiculed can’t just change the channel…talk about problems. 🙄 geez
Your both amazing your doing what you possibly can and some. No matter if you have 1 or multiple babies there's always ppl who say they be there and are not. I couldn't begin to imagine what you have both been going through. You will both get to that point where things will become a little bit more easier a little bit more relaxed. In a few years you will both look back on this and go wow we did it. While your kissing your 3 babies good night be able to put your feet up knowing thier all safe an past these difficult stages. Your both going to get there and your boys are and will continue to be strong little fighters. Xx
I’m so sorry people are so horrible. My heart breaks watching your videos, I can’t even imagine how difficult it must be having to be away from one of your children and then baring the judgement of the internet. You’re doing amazing mama. Keep it up. I love watching your videos. Keeping you and your family in my thoughts. Britt from New Zealand xx
You can feel HOWEVER you want to feel! You are going through so much and you’re totally right that no one should tell you how to feel or what to post! Sending you all of the love from KC!
I hate hate hate that you even have to address some of these things. You are right though, there will always be negative for people to find. You are doing amazing, and none of us could handle it in the way that you are. I wish your support system was bigger to ease some of that stress from you and Braxton. Thinking of you guys always ❤️
I am in AWE of how incredibly strong they are. They have handled this unfortunate situation with so much grace, and I have nothing but the upmost respect for them. The world can be challenging, but I remain optimistic that it will better for them.
You are amazing mama. Bring a mama with two kids that are medical unstable, you give me support and help so many people out. Keep being you and being amazing. The boys are so lucky to have you guys as their parents. You guys got this.
You guys are amazing 😻. Hang in there. I’m sorry for all of the negativity. I appreciate you guys for sharing this journey with your RUclips family. You guys are so strong!! Sending you guys positive vibes, hope, strength, faith and grace.
I admire you so much for showing your process! It's important for people to know that what you're going thru is doable. It's hard as heck, but it's doable. Other families facing the same hardships will benefit so much from your transparency. ❤