It's so exciting and freeing! I'm in the process to get my first custom titanium wheelchair here in Toronto, Canada (hEDS + Othrostatic Intolerance + MCAS ... and all the other EDS stuff). I started trying to figure it out in January 2023. While there's theoretically 100% coverage through the Assistive Devices Program (ADP - like wheelchair services on the NHS) if you're on ODSP (the equivalent of PIP here in Ontario) I still have to pay $1448 out of pocket to get my prescribed combination. Grants for ambulatory adults with EDS are non-existent in Ontario - so cobbling the funds together. Apparently side guards are just thought of as "clothing guards" - not something essential to stability and positioning (and therefore safety). So they only cover $99 - but side guards start at $307 for metal and over $350 for carbon fibre (winter + metal against legs = issues - so carbon fibre it is.) It's amazing that you got the fendered pink side guards. That must be amazing in rainy England! Just $99 of that is the purple anodized accents - because design is so important for mental health. I'm putting off the specialized hand rims (NaturalFit LT) for a few months so I can just get my wheelchair. They're essential for long term use - because EDS skin.
Yay! I'm so happy for you! I'm really enjoying the new video format btw. It's only a matter of time before the algorithm gets on board and your channel really takes off.
The nhs does on occasion provide light weight chair, I just asked when I was at wheelchair services for something else they said they do provide them or you can use their voucher scheme where they give you the amount they would spend on a wheelchair towards your new chair, I managed to get a quickie argon 2 through them and it has been amazing!
Yeah, they do it more often now but you have to meet wheelchair service criteria which means you have to be unable to walk or severe walking difficulties I think (which to them means like unable to walk like a metre) x
Your voice is incredible! Can I ask what mic you are using at the beginning, the sound quality is amazing. Congratulations on your wheelchair, I'm a new sub and wishing you all the best.
![Megan Thee Stallion - Bigger In Texas [Official Video]](http://i.ytimg.com/vi/QxTkZTLWdo4/mqdefault.jpg)
It's so exciting and freeing!
I'm in the process to get my first custom titanium wheelchair here in Toronto, Canada (hEDS + Othrostatic Intolerance + MCAS ... and all the other EDS stuff). I started trying to figure it out in January 2023.
While there's theoretically 100% coverage through the Assistive Devices Program (ADP - like wheelchair services on the NHS) if you're on ODSP (the equivalent of PIP here in Ontario) I still have to pay $1448 out of pocket to get my prescribed combination. Grants for ambulatory adults with EDS are non-existent in Ontario - so cobbling the funds together.
Apparently side guards are just thought of as "clothing guards" - not something essential to stability and positioning (and therefore safety). So they only cover $99 - but side guards start at $307 for metal and over $350 for carbon fibre (winter + metal against legs = issues - so carbon fibre it is.)
It's amazing that you got the fendered pink side guards. That must be amazing in rainy England!
Just $99 of that is the purple anodized accents - because design is so important for mental health. I'm putting off the specialized hand rims (NaturalFit LT) for a few months so I can just get my wheelchair. They're essential for long term use - because EDS skin.
Yay! I'm so happy for you!
I'm really enjoying the new video format btw. It's only a matter of time before the algorithm gets on board and your channel really takes off.
The nhs does on occasion provide light weight chair, I just asked when I was at wheelchair services for something else they said they do provide them or you can use their voucher scheme where they give you the amount they would spend on a wheelchair towards your new chair, I managed to get a quickie argon 2 through them and it has been amazing!
Yeah, they do it more often now but you have to meet wheelchair service criteria which means you have to be unable to walk or severe walking difficulties I think (which to them means like unable to walk like a metre) x
yaaaay that's such a good news ! Lots of spoons !
So stressful! I’m so glad you have it now xx
Your voice is incredible! Can I ask what mic you are using at the beginning, the sound quality is amazing. Congratulations on your wheelchair, I'm a new sub and wishing you all the best.
I joined the discord!