@CanineGrowTime MANY of them are incompetent, others don't care.... There are only a few good ones and they are hard to find. It's very true and very unfortunate... We MUST listen to our body when it's trying to teach us what it needs to stay healthy or get healthy.
It took me years to get diagnosed. Once I did, my troubles didn’t end. I’m on 18 different medications. And I still feel sick everyday and I’m in pain every day. My quality of life is poor.
I can’t work and I was fired from my last job after requesting reasonable accommodation. Also I’ve been denied disability many times. I waited 2 years for an ALJ hearing and the judge denied me outright I think because I look healthy. Idk I’m at a loss.
As Sistahs, this is why we have to be kind and loving to one another because we never know what a person is going thru. Wishing Solange the best! ❤🩹🙏🏽
I have Sjogren’s Syndrome as well, one of which she has. Sjogren’s (show grins) is nvisible and chronic. I just got over the longest flare-up I have ever had, 7 months. Dry mouth, dry eyes, dry nasal passages that caused nose bleeds, stiff joints, stiff muscles, persistent digestive issues, and migraines. I was soooooooo exhausted, a shower would have me sleeping for hours. Thank goodness, I’m better.
@@MsManeevent I’m glad you’re feeling better friend. I have chronic nerve pain and I understand and relate. I hope ALL of us get better or at least some relief. 💖
@@drmonica couldn’t agree more. I was diagnosed with Pseudo tumor Cerebri . I began losing my sight, dizzy, I gained weight rapidly and I experienced the same symptoms of a brain tumor. It’s hard because black women are called lazy whenever we’re not hyperactive. My family pretended like I wasn’t sick & just lazy.
I was also diagnosed with Sjogren's Syndrome. I am going to keep Solange lifted in prayer. God can heal all of our afflictions and I will be praying for her complete healing from all three conditions.
I have POTS and fibromyalgia and I totally understand her. I’m an ER nurse and the pains that I get without any visible causes is horrible. Doing CPR really takes me out easily too especially with my asthma. I wish her the best and I hope she can help them all each in different ways.
@@JackDenn I have Fibromyalgia, Severely Anemic along with carrying the Sickle Cell trait which I have crisis. Then during an angiogram to look at the two aneurysms I have on the right side of my brain it was found I have a Birth Defect of my heart. I am as told by my doctors 1% of the population that is living with my heart condition. I've never taken anything for granted before and really don't now, life is fragile. ✌️🙏💜✌️🙏💜✌️🙏💜
@@Commentraider3 thank you so much. I appreciate this. I try not to let it get me down. I have patients who are battling more on a daily basis so I try to be my best for them.
My heart goes out to everyone inflicted with chronic illness autoimmune conditions and the like you are blessed your life is worth living keep your spirits high pace yourself it’s not your fault and you will be ok.
Cranes In the Sky always has had a special place in my heart 😢. As a person with PCOS, this gives it an even more personal meaning to me now. Hope she finds peace everyday with her struggles 🫶🏾
I complained over and over to my doctors and anyone who would listen about how tired I was feeling all the time. They couldn’t figure it out. Some even thought it was all in my head. Turns out it was a symptom of triple negative breast cancer, which they didn’t find until two years later. Diseases without visible signs are difficult to diagnose and are stigmatized.
@@ParahSalin I was in pain for a whole year and my doctor blamed it on osteoarthritis....I am beginning to understand why they say their PRACTICE/PRACTICING .
As someone who is afflicted with multiple invisible illnesses, my heart goes out to her. Having invisible illnesses is incredibly difficult, especially because people can't see your symptoms, and you look alright to them. 😢
I'm 43 diagnosed with MS 10 years ago. It's a daily battle😩🙏🏽 I've never heard of many of these invisible illnesses that we have now. It's very puzzling to me. Where they coming from 😩 Nobody knows which is even scarier🙏🏽What's in our air, water and food🤔🤷🏽♀️
I live with 4 chronic and invisible, 3 which autoimmune, diseases. Lupus, Fibromyalgia, Chronic Connective Tissue Disorder (CTE) and Heart Disease. I am impacted by it hourly, daily, and weekly. Praying for all those living with invisible diseases. Society can be so tough on us. We often do not look how we feel on the inside, thank God!! It's definitely a journey that calls for a great deal of self reflection and often.
@Awareness 73 Wow What were your signs and symptoms of the tissue disorder? And Lupus if u don't mind me asking. One of my doctors want me to see a Rheumatologist due to my ANA so right now I have had 2 total knee replacement at the same time and Ostiarithrits along with Firbomagia and Degenerative disk disease lost my job almost my mind and I'm 52 with 5 grandkids and can't stand or sit long please I hope u write me back thank u hands are swollen and I'm getting tired pray for u and everyone is dealing with daily chronic horrible life changing diagnosis love u all❤
@@sadrekawest-bey5338I'm trying but keep loosing entries. Initially, lots of unexplained and extreme fever, fatigue, stiffness and pain throughout body. Extreme fatigue ie for 1/2 day of minimum activity 2 to 3 days of recovery is required. Stiffness in hands/fingers difficulty gripping or writing. Swollen face and limbs. Sun sensitivity like a vampire. Extreme elevated ANA initially. Migraines and cluster headaches. Difficulty with focus/ concentration (extreme). Pain/burning in chest/lungs during deep breathing it becomes worse. All of these were my early signs. Connective Tissue Disorder and Lupus mimic one another with the exception of blood work. Inflamation throughout body and in my brain. Brain Inflammation creates temporary stroke like symptoms such as slurred speech, weakness on one side and stumbling/falling to one side. Sometimes I use cane or walker to ambulate. I have relied upon a wheelchair too. Unfortunately most diseases found in the body is caused by prolonged inflammation. The immune system gets over active and disoriented trying to fight inflammation and begins to attack our body and organs. Eventually could not work. Lots of hospital stays & ER visits. Lupus attacked my heart experienced massive heart attack with 4 silent heart attacks. Some kidney concerns. Developed lots of blood clotting in lungs and heart. Unexplained broken ankle. I now live with a pacemaker and defibrillator. Stress makes symptoms and conditions worse. So protecting my peace and keeping my faith is essential. God's Grace and Mercy is more than sufficient to provide all of our needs. Couldn't make it without God/Faith. I'm told that Fibromyalgia is the kissing cousin of Lupus. I'm a classic case of Lupus with all symptoms except weight loss( lol, jokes on me). Depression and Anxiety are apart of my life. Please educate yourself for self advocacy. We are not crazy. Journaling to keep up with conditions/symptoms. I am NOT a physician/doctor. However, I am a Lupus Warrior and Survivor!!
She is such a beautiful woman. Unique in her own style since coming out as an artist and NOT Beyonce's little sister. Because I remember her father and or her mother tried to dress her like her sister in the beginning but Solange quickly shut that down and became Solange NOT Beyonce's little sister . Well technically she will always be the little sister 😉 but y'all know what I mean 🙄
I also have fibromyalgia, but when I cut meat and dairy from my diet in 2016, I no longer have flare-ups and pain in my body as I did before and do not take any medication.
@@mm-in7tn you could’ve just said you’ve always gravitated towards her without mentioning her sister. No need to pit women against each other. Personally I have two sisters and i wouldn’t take it as a compliment if someone told me they like me more than either one of them
I have sjogren's syndrome as well and I also found this out around the same time when Venus Williams was diagnosed with sjogren's and it definitely can cause a lot of issues to deal with in your daily life so I truly understand and wish nothing but health for those dealing with autoimmune disorders.
Thank you Lailah for coming with the doctor's diagram to show exactly what part of the body was affected, all while still breaking down the tea. Love ya girl!👏🏾🙏🏽😘
I'm a black woman with 30 invisible illnesses. I feel everything she does. The fibromyalgia, pots, and mast cell alone are debilitating. The cervical instability is another monster that causes most of the issues. Doctors don't listen. I almost died not getting blood to the brain or heart. Was still told it was stress in an active heart attack. Become your own doctor. Its the only way I'm alive. I diagnosed myself with the last 10. Test confirmed.
@@prettyxbonez96 why is that so hard to believe? I'm the one suffering through the symptoms. Im an educated woman, I can research articles in the NIH. Test the theories by aggravating my own diseases just to make sure it's actually what I suspected. What makes it so far fetched to you that I couldn't possibly find out what was wrong with a body I've been in for 40 years?
@prettyxbonez96 right..and when many symptoms overlap one other it's harder to get a proper diagnosis. As someone who is both chronically physically and mentally ill, I went and got a official diagnosis to confirm my suspicions
Prayers of healing and renewed energy to Solange.❤🙏🏾 I have a cousin with POTS and I have Rheumatoid Arthritis. So I understand autoimmune illnesses being invisible, joint pain at times, and the fatigue accompanying them.
I remember seeing her wedding photos and later in the ceremony you can see pics of her broken out in hives. Now I’m wondering if this was related to one of her conditions. She is such a beautiful artist and I hope she finds strength through her art
I have POTS and MCAS among some other chronic conditions-they’re often missed in POC, especially WOC, it’s a shame. Great video with brief and accurate information. People are so right, stress in many forms is a huge trigger for symptom severity
@@WAAVA hey I have an autoimmune disease called CRPS but I think I’ve had POTS since I was a child. I’ve been passing out like crazy all my life and it would happen a lot when I go from sitting to standing. Like I could feel all of blood rush. I’ve been tested for years and they could never figure out what was causing it. What are somethings that helped you get diagnosed?
RA sufferer here sis, trust me I feel your pain...literally! I danced all my life and couldn't like I used to. It depressed me and felt like nothing.It's definitely a struggle.Praying for your strength.
@@lovelyrich54 omg I used to dance too.! So crazy how it forces you to adapt to the new way of life. Praying for your strength as well sis & your mental health lord knows I’ve had my struggles but we’re warriors we got this 🥰❤️
@@Jmarie0134 Trust me I get it...dancing was literally my identity and what I was known for. When that left I felt like I had nothing to offer. So I have just been staying prayed up and asking God to help me find my purpose. Yes we got this sis!❤️
I was diagnosed with RA 9 years ago took years before they could figure it out..I could hardly walk swollen hands n feet…so debilitating with fibromyalgia
I have chronic pain from a car accident 14 years ago 5 surgeries later I'm blessed. As an artist I choose to get better then go hard slowly but surely....it's not for THE WHOLE WORLD to know a person's illness unless asked and the Knowles has always been private,..I applied her coming out with her truth that resonates with others suffering in the darkness and bringing an inspiration ❤❤❤
Solange's situation is similar to Tia's. Solange was a young parent and has never really been alone, but her illness made her reflect on her life and realized she need to be her own person first, and everything ypu really need is inside you.
I have seen an uptick in POTS like syndromes over the past couple of years especially in younger people. It's really horrible and debilitating. Sending prayers and healing to her and everyone facing chronic illnesses❤❤
My heart goes out to her. I am in a family of people who have autoimmune illnesses. Several of my family members have SLE Lupus, four of who also have Fibromyalgia. Also, another four family members have MS. I am going through my own mystery illness as I type this and it is so scary. Menopause is worsening symptoms I already had. There’s a study that indicates that women tend to have these autoimmune illnesses more than men do. I feel like in our community often goes undiagnosed. I will keep Solange lifted up in prayer.
I believe this video just may have given me my answer and may possibly solve my 21 years of pain and suffering. Not ONE of the MANY doctors I have seen over the years have suggested or tested for any of these, yet I have EVERY SINGLE SYMPTOM of ALL 3. And yes I have been screaming these very symptoms to them for years.... ---------------------- I hope she gets the correct help so that she can return to a healthy state and get back to doing the things she loves to do. Please keep sharing 🙏🏾
I have Celiac disease and it took me three years to get diagnosed, many doctors misdiagnosed me during this time, it took me cutting out gluten before I figured out what I had.Then I was properly tested. It literally felt like I was dying and i was told nothing was wrong with me because I “looked fine”… I sympathize.
Praying for our SIS 👑 Solange healing & recovery from this terrible illness!!! Thank you Father for your protection!! 🙏🏾❤️👑💯💫💫💫💖💖💖💖💖💖💖💖💖💐💐💐💐💐💐💐💐💐💐💐💐💐💐💐💐😘💪🏾
Wow. Literally just asked about my family history with Sjogrens syndrome because I have many of the symptoms. I’m glad it’s being brought to the forefront.
Kudos to you Lailah for helping to bring light to this disorder. My husband has Dysautonomia from the toxic chemicals at Camp Lejeune. He looks like a picture of health. And oftentimes not taken seriously as it pertains to his dysfunction. Sending love and light to anyone suffering from these conditions.
I have Hashimoto's and Fibromyalgia. While I have refused to allow this to stop me there are days that are extremely painful. It's something that I rarely talk about because most don't understand the mental, emotional and physical pain we go through. Diet and weights have helped tremendously with my situation. Sending love and hugs to all my sisters dealing with autoimmune diseases. ❤
I have all that and had both knees replacement at the same time now this chronic daily horrible no cure I'm just so hurt I can't even play with my grandbabies my bones are so delicate I will keep u in prayer one of my labs came back high AnA so he wants me to go see a RA specialist 😢I'm tired of pain doctors can't stand or sit long lord help us all😢❤
I understand. I have autoimmune hepatitis and been going through different things trying to find out what else is wrong. I had a biopsy of my salivary glands to test for sjogrens syndrome but it was negative. One of my aunts has an autoimmune disease, her daughter has 3, one of my nieces has lupus and something else, and one of my cousins has an autoimmune disease. It's definitely sometimes silent. I just had a mild heart attack with 2 stents placements at 45. I've had to take Prednisone off and on since 2007. Believe me I understand. That's why we should just be kind to everyone because we don't know what people are going through. I pray for her healing as I pray for me and my family ❤
Sjogrens is so difficult to live with. I’ve been battling it for 10 years and every day is different. Pray for those that are battling autoimmune disorders 🙏🏾
Wow I really appreciate this video bcuz I’ve not of any of these conditions. My heart goes out to Solange, and I pray the Almighty grants her supernatural healing. 🙏🏽🙏🏽🙏🏽
Dang. I've always been a fan of Solange since the 00s. As someone who lives with an invisible illness (chronic migraine), it's always heartbreaking to hear about another Warrior's struggles.
I have systemic lupus and schizophrenia but I'm just starting to live my best life. I have battled these illnesses for 15 years now and I am still here. Thanks to God.
I have rrMS a nerve autoimmune disease with no cure and it’s extremely debilitating and at 34 I’ve been disabled permanently since age 27! It’s not easy but I fight daily and it’s very painful and I’m lucky to have my husband ride for me the way he does… she’s in my prayers, my doctors call multiple sclerosis the invisible killer and lupus & Sickle cell are sister diseases, i love Solange and understand
I have been battling Sarcoidosis of the lungs and liver ( an autoimmune disease akin to Lupus) and Hidradenitis Suppurativa (skin disorder also autoimmune) for over 20 years. My body is constantly inflamed. Suffer from constant exhaustion. I was lucky. My doctor ran every test known to man until he found out what was wrong-( I was a new patient).
I was indeed definitely surprised to hear about your health struggles Solo. I will be praying for You. Sending Light, Love and Good Vibes Your way, Gorgeous.💯🙏♥️☺️
I am very proud of solange being someone who also suffers from an invisible illness(Fibromyalgia) I completely understand what she went through and what life is like for her now.
I have POTS and it’s incredibly debilitating! People have no idea what someone is going through. I’ve known for a while that she was diagnosed with it as well and I’m glad to hear that she is speaking on her health more. I understand not wanting to be identified by your diagnosis. This is incredibly helpful Especially since it’s dysautonomia awareness month.
Some of these comments are just pitiful and people don’t have a clue what auto immune issues are. People called my friend a hypochondriac too and then lupus shut her organs down and ended her life at 36 years old leaving a 9 year old boy behind. Even her own family made fun of her sickness and called her a liar. Watch your assumptions….
I definitely have a chronic auto-immune thing going. Get checked up every 3 or 4 months. Nothing abnormal really shows up. Even though I don't have the access to quality healthcare she has, I get where she is coming from. Prayers for her 🙏🏾
I have sickle cell so suffer with daily pain, joint issues, no energy or appetite. I’m taking a chemotherapy drug to keep it under control. It’s so nuanced to have invisible pain.
Those women who don't have any autoimmune illness, PLEASE protect your health. Eat healthy and whole foods, get exercise, and make sure you are not chronically stressed. Speak to someone if you are, because chronic stress can completely wreck your immune system.
I have dysautonomia, POTS and adrenal insufficiency and it makes life a lot harder but God doesn’t give you anything that you can’t handle. These conditions are definitely not for the weak. I pray for every person that has to deal with this.
@TLee-k7h Why do people say that? If God didn't give you more than you can handle there wouldn't be so many people suffering from depression & unaliving themselves. That statement is so dismissive!
She is lucky enough to actually have been diagnosed. Many of us walk around telling doctors something wrong and they ignore us.
@@CanineGrowTime yup that’s me!!!!!
Factz fam
@CanineGrowTime
MANY of them are incompetent, others don't care.... There are only a few good ones and they are hard to find.
It's very true and very unfortunate...
We MUST listen to our body when it's trying to teach us what it needs to stay healthy or get healthy.
It took me years to get diagnosed. Once I did, my troubles didn’t end. I’m on 18 different medications. And I still feel sick everyday and I’m in pain every day. My quality of life is poor.
I can’t work and I was fired from my last job after requesting reasonable accommodation. Also I’ve been denied disability many times. I waited 2 years for an ALJ hearing and the judge denied me outright I think because I look healthy. Idk I’m at a loss.
I have lupus and Sjogrens and life sucks. Every day is a struggle but I’m a warrior ❤️ I will continue to fight each day
@@AJN_71 🙏🏽❤️🤗
@@AJN_71 me too
May God continue to grant you strength and peace. You will get through this and I am so proud of you for how far you've come ❤❤❤❤
I have, lupus, Sjogrens, and RA… it is brutal at times
Im a RA warrior we got this 💪🏽❤️
As Sistahs, this is why we have to be kind and loving to one another because we never know what a person is going thru. Wishing Solange the best! ❤🩹🙏🏽
@@beauty-bizness2845 so true
So true!
🖤
Amen ❤
@@beauty-bizness2845 I second that
I have Sjogren’s Syndrome as well, one of which she has. Sjogren’s (show grins) is nvisible and chronic. I just got over the longest flare-up I have ever had, 7 months. Dry mouth, dry eyes, dry nasal passages that caused nose bleeds, stiff joints, stiff muscles, persistent digestive issues, and migraines. I was soooooooo exhausted, a shower would have me sleeping for hours. Thank goodness, I’m better.
@@MsManeevent thanks for the knowledge
@@MsManeevent I’m glad you’re feeling better friend. I have chronic nerve pain and I understand and relate. I hope ALL of us get better or at least some relief. 💖
@@MsManeevent thank God you’re better 🙏🏾
But GOD
A 7 month flare up?! My God. I'm glad you're better.
stress.......triggers these things
@@ReadWell572 stress is diabolical
Yes
Very true
@@ReadWell572 Umhm
My first thought is what kind of trauma is she holding
I was just diagnosed with Lupus w Sjorens 9/26/2024 💜💜💜 To all my autoimmune warriors we got this 💜💜💜
@@barbietheemuslimah 🙏🏾🙏🏾🙏🏾
💜💜💜💜
💜💜💜💜
Most don’t understand these invisible disabilities bc visibly you might look great but on the inside you’re exhausted and depleted 😔
@@drmonica yes I completely understand what you’re saying.
@@drmonica couldn’t agree more. I was diagnosed with Pseudo tumor Cerebri . I began losing my sight, dizzy, I gained weight rapidly and I experienced the same symptoms of a brain tumor. It’s hard because black women are called lazy whenever we’re not hyperactive. My family pretended like I wasn’t sick & just lazy.
Yes as a RA warrior it’s exhausting having to explain my pain because I don’t look like it
@@Lastdayone I pray for your healing and know that I understand 🙏🏾💕
@@sabrinagreen6236 praying for your healing ❤️🩹 🙏🏾
I was also diagnosed with Sjogren's Syndrome. I am going to keep Solange lifted in prayer. God can heal all of our afflictions and I will be praying for her complete healing from all three conditions.
Amen ❤
@@DivinelyGiftedbyGod Amen in Jesus Name 🙏🏽
🙏🏾🙏🏾
They too have to be believers in Jesus Christ
Yes HE can. Still in the battle myself yet believing for complete healing
🙏🏾🙏🏾🙏🏾🙏🏾 for Solange and anyone else dealing with these diseases
I have POTS and fibromyalgia and I totally understand her. I’m an ER nurse and the pains that I get without any visible causes is horrible. Doing CPR really takes me out easily too especially with my asthma. I wish her the best and I hope she can help them all each in different ways.
Sending love and hugs 💕💜 having POTS and fibromyalgia AND a nurse. You are to be applauded helping others. Pls keep your health and self care first
Don't sleep with uncircumcised men ladies- THEY cause all sorts of problems with your body including cancers...
@@JackDenn I have Fibromyalgia, Severely Anemic along with carrying the Sickle Cell trait which I have crisis. Then during an angiogram to look at the two aneurysms I have on the right side of my brain it was found I have a Birth Defect of my heart. I am as told by my doctors 1% of the population that is living with my heart condition. I've never taken anything for granted before and really don't now, life is fragile. ✌️🙏💜✌️🙏💜✌️🙏💜
I'm so happy you are still able to work as a nurse. These conditions are no joke.
@@Commentraider3 thank you so much. I appreciate this. I try not to let it get me down. I have patients who are battling more on a daily basis so I try to be my best for them.
My 20 year old has P.O.T.S it's scary.😢 Praying for Abundant Health and Healing 🙌🦋🌻🌹✨
@@HannahLaKeisha315 oh my. One of my closest friends has it. I have never heard of anyone else. I pray she is okay. They are dealing with so much.
@@carap6343 💚
Never heard of this this is something new that they are trying to put out she will be put she'll be putting out a new drug commercial in 30 days😮
@latreace11 P.O.T.S has been around for over 160 years. It's just new to you. Be kind or be quiet 🤫
@@latreace11 P.O.T.S. has been around for over 160 years. You've just now heard of it. Be kind or be quiet 🤫
My heart goes out to everyone inflicted with chronic illness autoimmune conditions and the like you are blessed your life is worth living keep your spirits high pace yourself it’s not your fault and you will be ok.
Thank u so much for them encouraging message ❤
Cranes In the Sky always has had a special place in my heart 😢. As a person with PCOS, this gives it an even more personal meaning to me now. Hope she finds peace everyday with her struggles 🫶🏾
Sometimes the wrong man will make you sick. Not saying this is her case , but it can.
Stress can trigger auto immune diseases.
Cardi B is in the hospital now.
@@joishineCardi B had been out partying since she pushed out that baby.
😂😂😂that's funny
@@Rainbowsun1 runnin from her life. she was on ig having a meltdown. that stress will trigger a flare up & become chronic.
I complained over and over to my doctors and anyone who would listen about how tired I was feeling all the time. They couldn’t figure it out. Some even thought it was all in my head. Turns out it was a symptom of triple negative breast cancer, which they didn’t find until two years later. Diseases without visible signs are difficult to diagnose and are stigmatized.
@@ParahSalin I was in pain for a whole year and my doctor blamed it on osteoarthritis....I am beginning to understand why they say their PRACTICE/PRACTICING .
@@emmacooper3573 wow sorry. I’m a medical provider myself and a big advocate of pain management.
They think that women are hypo
@@emmacooper3573I definitely understand the practicing medicine part.
🙏🏽🙏🏽🙏🏽
As someone who is afflicted with multiple invisible illnesses, my heart goes out to her. Having invisible illnesses is incredibly difficult, especially because people can't see your symptoms, and you look alright to them. 😢
Sending Solange healing energy 🙏🏼❤️🩹
I'm 43 diagnosed with MS 10 years ago. It's a daily battle😩🙏🏽 I've never heard of many of these invisible illnesses that we have now. It's very puzzling to me. Where they coming from 😩 Nobody knows which is even scarier🙏🏽What's in our air, water and food🤔🤷🏽♀️
@@lotuslove3717 very much so
Wow she’s really going through it, sending her healthy vibes 🙏🏾
Wishing her good health and prosperity.
I appluad Solange.. She's a real sweetheart wishing her the best. Peace and blessings as she stay true to herself
I’ve always liked Solange’s style and music. I wish her all blessings that her health improves.
Omg! I have Sjögren’s Syndrome. I see a rheumatologist. I feel miserable all the time. My prayers are with her.
🙏🏾
❤
I live with 4 chronic and invisible, 3 which autoimmune, diseases. Lupus, Fibromyalgia, Chronic Connective Tissue Disorder (CTE) and Heart Disease. I am impacted by it hourly, daily, and weekly. Praying for all those living with invisible diseases. Society can be so tough on us. We often do not look how we feel on the inside, thank God!! It's definitely a journey that calls for a great deal of self reflection and often.
♥️🙏♥️
🙏🏾🙏🏾
@Awareness 73 Wow What were your signs and symptoms of the tissue disorder? And Lupus if u don't mind me asking. One of my doctors want me to see a Rheumatologist due to my ANA so right now I have had 2 total knee replacement at the same time and Ostiarithrits along with Firbomagia and Degenerative disk disease lost my job almost my mind and I'm 52 with 5 grandkids and can't stand or sit long please I hope u write me back thank u hands are swollen and I'm getting tired pray for u and everyone is dealing with daily chronic horrible life changing diagnosis love u all❤
@@sadrekawest-bey5338I'm trying but keep loosing entries. Initially, lots of unexplained and extreme fever, fatigue, stiffness and pain throughout body. Extreme fatigue ie for 1/2 day of minimum activity 2 to 3 days of recovery is required. Stiffness in hands/fingers difficulty gripping or writing. Swollen face and limbs. Sun sensitivity like a vampire. Extreme elevated ANA initially. Migraines and cluster headaches. Difficulty with focus/ concentration (extreme). Pain/burning in chest/lungs during deep breathing it becomes worse. All of these were my early signs.
Connective Tissue Disorder and Lupus mimic one another with the exception of blood work. Inflamation throughout body and in my brain. Brain Inflammation creates temporary stroke like symptoms such as slurred speech, weakness on one side and stumbling/falling to one side. Sometimes I use cane or walker to ambulate. I have relied upon a wheelchair too. Unfortunately most diseases found in the body is caused by prolonged inflammation. The immune system gets over active and disoriented trying to fight inflammation and begins to attack our body and organs.
Eventually could not work. Lots of hospital stays & ER visits. Lupus attacked my heart experienced massive heart attack with 4 silent heart attacks. Some kidney concerns. Developed lots of blood clotting in lungs and heart. Unexplained broken ankle. I now live with a pacemaker and defibrillator. Stress makes symptoms and conditions worse. So protecting my peace and keeping my faith is essential.
God's Grace and Mercy is more than sufficient to provide all of our needs. Couldn't make it without God/Faith.
I'm told that Fibromyalgia is the kissing cousin of Lupus. I'm a classic case of Lupus with all symptoms except weight loss( lol, jokes on me). Depression and Anxiety are apart of my life.
Please educate yourself for self advocacy. We are not crazy. Journaling to keep up with conditions/symptoms.
I am NOT a physician/doctor. However, I am a Lupus Warrior and Survivor!!
@@Kashmere-w9n thank you😊
I have Sjogrens. Took about 5 years to get a diagnosis after I took an A.N.A. panel test. As I've gotten older, my symptoms have greatly improved.
Literally was saving some photos of her on Pinterest, opened the app then saw this. Wishing our soul sister healing ❤✨
She is such a beautiful woman. Unique in her own style since coming out as an artist and NOT Beyonce's little sister. Because I remember her father and or her mother tried to dress her like her sister in the beginning but Solange quickly shut that down and became Solange NOT Beyonce's little sister . Well technically she will always be the little sister 😉 but y'all know what I mean 🙄
I can relate to Solange...I have Fibromyalgia and it's so hard to deal with... Invisible Illnesses affects your entire body.
Same 💔 duloxetine has gave me so much pain relief. 🙏🏾 Hope you’re doing okay.
@NoOne-wt3sv what kind of symptoms do you have. I am afraid to Start taking the medication.
I also have fibromyalgia, but when I cut meat and dairy from my diet in 2016, I no longer have flare-ups and pain in my body as I did before and do not take any medication.
Can u relate to the massive amount of skin bleaching she been doing
Ive always gravited more toward Solange then her sister since solo star. Best to her.
They both make great music. I never understand pitting sisters against each other.
@@extrashotofespresso_ they’re just overcompensating because solange is the less known sister
@@extrashotofespresso_ or maybe..they just simply like the other sister more. Nothing deeper than that. Stan culture and sheep mentality ..
@@mm-in7tn you could’ve just said you’ve always gravitated towards her without mentioning her sister. No need to pit women against each other. Personally I have two sisters and i wouldn’t take it as a compliment if someone told me they like me more than either one of them
@@originalblerd I am sorry you took. It that way. I was just speaking on their music style.
I have sjogren's syndrome as well and I also found this out around the same time when Venus Williams was diagnosed with sjogren's and it definitely can cause a lot of issues to deal with in your daily life so I truly understand and wish nothing but health for those dealing with autoimmune disorders.
Sending love to you as well! We got this! 💐❤️
Thank you Lailah for coming with the doctor's diagram to show exactly what part of the body was affected, all while still breaking down the tea. Love ya girl!👏🏾🙏🏽😘
I'm a black woman with 30 invisible illnesses. I feel everything she does. The fibromyalgia, pots, and mast cell alone are debilitating. The cervical instability is another monster that causes most of the issues. Doctors don't listen. I almost died not getting blood to the brain or heart. Was still told it was stress in an active heart attack. Become your own doctor. Its the only way I'm alive. I diagnosed myself with the last 10. Test confirmed.
If you dont mind me asking, what are the 30 & how do you manage them all? I will no longer be misdiagnosed.
Glad that you listened to your body.
You diagnosed yourself with 10 chronic illnesses ....okay
@@prettyxbonez96 why is that so hard to believe? I'm the one suffering through the symptoms. Im an educated woman, I can research articles in the NIH. Test the theories by aggravating my own diseases just to make sure it's actually what I suspected. What makes it so far fetched to you that I couldn't possibly find out what was wrong with a body I've been in for 40 years?
@prettyxbonez96 right..and when many symptoms overlap one other it's harder to get a proper diagnosis. As someone who is both chronically physically and mentally ill, I went and got a official diagnosis to confirm my suspicions
Prayers of healing and renewed energy to Solange.❤🙏🏾
I have a cousin with POTS and I have Rheumatoid Arthritis.
So I understand autoimmune illnesses being invisible, joint pain at times, and the fatigue accompanying them.
I remember seeing her wedding photos and later in the ceremony you can see pics of her broken out in hives. Now I’m wondering if this was related to one of her conditions. She is such a beautiful artist and I hope she finds strength through her art
Omg
I have a history of Lupus,Fibromyalgia, and secondary Sjorgen's syndrome. Serious and debilitating diseases,I'll pray for her.
I have POTS and MCAS among some other chronic conditions-they’re often missed in POC, especially WOC, it’s a shame. Great video with brief and accurate information. People are so right, stress in many forms is a huge trigger for symptom severity
@@WAAVA hey I have an autoimmune disease called CRPS but I think I’ve had POTS since I was a child. I’ve been passing out like crazy all my life and it would happen a lot when I go from sitting to standing. Like I could feel all of blood rush. I’ve been tested for years and they could never figure out what was causing it. What are somethings that helped you get diagnosed?
I got diagnosed with rheumatoid arthritis in 2019 chronic illness & auto immune diseases are no joke.!
RA sufferer here sis, trust me I feel your pain...literally! I danced all my life and couldn't like I used to. It depressed me and felt like nothing.It's definitely a struggle.Praying for your strength.
@@lovelyrich54 omg I used to dance too.! So crazy how it forces you to adapt to the new way of life. Praying for your strength as well sis & your mental health lord knows I’ve had my struggles but we’re warriors we got this 🥰❤️
@@Jmarie0134 Trust me I get it...dancing was literally my identity and what I was known for. When that left I felt like I had nothing to offer. So I have just been staying prayed up and asking God to help me find my purpose. Yes we got this sis!❤️
I also got diagnosed with RA in 2021, in my late 50’s. I pray for all who suffer from auto immune diseases and chronic diseases. 🙏🏾❤️💕
I was diagnosed with RA 9 years ago took years before they could figure it out..I could hardly walk swollen hands n feet…so debilitating with fibromyalgia
I have Ulcerative Colitis and Fibromyalgia. Having autoimmune diseases is lonely, energetically exhausting and debilitating. I’m praying for her.
Peace and Blessings to my Fav Solange!!
I have chronic pain from a car accident 14 years ago 5 surgeries later I'm blessed. As an artist I choose to get better then go hard slowly but surely....it's not for THE WHOLE WORLD to know a person's illness unless asked and the Knowles has always been private,..I applied her coming out with her truth that resonates with others suffering in the darkness and bringing an inspiration ❤❤❤
I was diagnosed with Sjogerns a year ago and never heard of it prior to that. Thank you for sharing this.
Omg Solange is my girl I had no idea she had health issues I hope she gets healed & has the support she needs ♥️🙏
you will suddenly have health issues to if your sister can possibly be charged from attending those parties and her best friend P Diddy house
Wishing for Solange to have healing with her health 😢🙏🏾🫡
Sending love, prayers and light to Solange. I have a friend that was diagnosed with POTS🥲🙏🏽
God Bless her Health and her ongoing Spiritual Journey. Can't help but want the best for her. I love her music and can relate to her in some ways.
Solange could play Jody Watley in a movie, It;s weird no one ever said they looked alike before.
Probably because nobody sees it but u. I definitely dont beloved. Both beautiful though
@@iamshesheisme8954 not at all they do not look anything alike.
Euhmm 🤔 No
Nope!
@@iamshesheisme8954 yess
Beautiful Solange sending you God’s total divine healing
Solange's situation is similar to Tia's. Solange was a young parent and has never really been alone, but her illness made her reflect on her life and realized she need to be her own person first, and everything ypu really need is inside you.
I thought about endometriosis which I suffered from as well
I have seen an uptick in POTS like syndromes over the past couple of years especially in younger people. It's really horrible and debilitating. Sending prayers and healing to her and everyone facing chronic illnesses❤❤
I read anxiety disorder & POTS go hand in hand. It's easy to be anxious. The mind does what it does.
My heart goes out to her. I am in a family of people who have autoimmune illnesses. Several of my family members have SLE Lupus, four of who also have Fibromyalgia. Also, another four family members have MS. I am going through my own mystery illness as I type this and it is so scary. Menopause is worsening symptoms I already had. There’s a study that indicates that women tend to have these autoimmune illnesses more than men do. I feel like in our community often goes undiagnosed. I will keep Solange lifted up in prayer.
Aww, prayers for Solo🙏🏾🙏🏾❤️
Her music means the world to me. You never know what people are going through. I pray they find a solution for her. 🙏🏾🙏🏾🙏🏾
I believe this video just may have given me my answer and may possibly solve my 21 years of pain and suffering.
Not ONE of the MANY doctors I have seen over the years have suggested or tested for any of these, yet I have EVERY SINGLE SYMPTOM of ALL 3. And yes I have been screaming these very symptoms to them for years....
----------------------
I hope she gets the correct help so that she can return to a healthy state and get back to doing the things she loves to do.
Please keep sharing 🙏🏾
Sending love and prayers
I have Celiac disease and it took me three years to get diagnosed, many doctors misdiagnosed me during this time, it took me cutting out gluten before I figured out what I had.Then I was properly tested. It literally felt like I was dying and i was told nothing was wrong with me because I “looked fine”… I sympathize.
I wish her much success and a full recovery
I send healing love and light to Solange. I absolutely love her and A Seat At The Table is my favorite album of hers.
Praying for our SIS 👑 Solange healing & recovery from this terrible illness!!! Thank you Father for your protection!! 🙏🏾❤️👑💯💫💫💫💖💖💖💖💖💖💖💖💖💐💐💐💐💐💐💐💐💐💐💐💐💐💐💐💐😘💪🏾
Dang I feel so bad for begging hard in her comments asking for the albums 😢
Praying for Solo ❤
Wow. Literally just asked about my family history with Sjogrens syndrome because I have many of the symptoms. I’m glad it’s being brought to the forefront.
@@Resilient_Brilliance me too. I'm learning something new today.
Me too. My mother has it 😢
I have POTS and it took years to find out what was going on. Especially when you have to have a sub specialist who even is aware of the illness.
Prayers for Salonge 🙏🏼
Kudos to you Lailah for helping to bring light to this disorder. My husband has Dysautonomia from the toxic chemicals at Camp Lejeune. He looks like a picture of health. And oftentimes not taken seriously as it pertains to his dysfunction. Sending love and light to anyone suffering from these conditions.
I have Hashimoto's and Fibromyalgia. While I have refused to allow this to stop me there are days that are extremely painful. It's something that I rarely talk about because most don't understand the mental, emotional and physical pain we go through. Diet and weights have helped tremendously with my situation. Sending love and hugs to all my sisters dealing with autoimmune diseases. ❤
Prayers up for healing & strength for Solange 🙏🏾🙏🏾🙏🏾
Bless everyone on this channel with these conditions I suffer with eczema I can’t complain.🙌🏾☝🏾🙏🏾😇thanks to my GOD I served.
I’m also a Spoonie. And it’s hard 1) to get a diagnosis and 2) to adjust to life.
Thanks helping to educate the audience on these issues. Sending love & strength to those who are managing chronic illness.
I had no idea. Prayers for her to keep strong through these challenging times
I have Sjogren's syndrome, Lupus, Inflammatory Arthritis and Fibromyalgia just to name a few. I so get it. I have been forced to slow way down.
What do you do to manage all of that?
I have invisible autoimmune diseases. Fibromyalgia, rheumatoid and osteoarthritis! The pain and exhaustion is so debilitating at times.
I have all that and had both knees replacement at the same time now this chronic daily horrible no cure I'm just so hurt I can't even play with my grandbabies my bones are so delicate I will keep u in prayer one of my labs came back high AnA so he wants me to go see a RA specialist 😢I'm tired of pain doctors can't stand or sit long lord help us all😢❤
Thanks for this. I didn’t even know this 😮 praying for her and anyone going through these illnesses
I understand. I have autoimmune hepatitis and been going through different things trying to find out what else is wrong. I had a biopsy of my salivary glands to test for sjogrens syndrome but it was negative. One of my aunts has an autoimmune disease, her daughter has 3, one of my nieces has lupus and something else, and one of my cousins has an autoimmune disease. It's definitely sometimes silent. I just had a mild heart attack with 2 stents placements at 45. I've had to take Prednisone off and on since 2007. Believe me I understand. That's why we should just be kind to everyone because we don't know what people are going through. I pray for her healing as I pray for me and my family ❤
Sjogrens is so difficult to live with. I’ve been battling it for 10 years and every day is different. Pray for those that are battling autoimmune disorders 🙏🏾
I love Solonge and I'm sending her healing energy and recovery. ✨🙏🏾✨
Wow I really appreciate this video bcuz I’ve not of any of these conditions. My heart goes out to Solange, and I pray the Almighty grants her supernatural healing. 🙏🏽🙏🏽🙏🏽
I work at children’s hospitals in Colorado and POTS is one that everyone can’t treat and very limited physicians knows what to do. Praying for her
Dang. I've always been a fan of Solange since the 00s. As someone who lives with an invisible illness (chronic migraine), it's always heartbreaking to hear about another Warrior's struggles.
I have systemic lupus and schizophrenia but I'm just starting to live my best life. I have battled these illnesses for 15 years now and I am still here. Thanks to God.
I have rrMS a nerve autoimmune disease with no cure and it’s extremely debilitating and at 34 I’ve been disabled permanently since age 27! It’s not easy but I fight daily and it’s very painful and I’m lucky to have my husband ride for me the way he does… she’s in my prayers, my doctors call multiple sclerosis the invisible killer and lupus &
Sickle cell are sister diseases, i love
Solange and understand
@@PEIALEXANDER 🧡🧡🧡🧡fellow rrMS warrior since 2014, sending prayers and love to you!
@ sending good energy and prayers to you and big hugs omg me since 2014
I have been battling Sarcoidosis of the lungs and liver ( an autoimmune disease akin to Lupus) and Hidradenitis Suppurativa (skin disorder also autoimmune) for over 20 years. My body is constantly inflamed. Suffer from constant exhaustion.
I was lucky. My doctor ran every test known to man until he found out what was wrong-( I was a new patient).
I was indeed definitely surprised to hear about your health struggles Solo. I will be praying for You. Sending Light, Love and Good Vibes Your way, Gorgeous.💯🙏♥️☺️
I am very proud of solange being someone who also suffers from an invisible illness(Fibromyalgia) I completely understand what she went through and what life is like for her now.
my daughter , auntie, cousin, my mom had lupus it’s horrible. Solange be well i know your struggles 😩❤️💯
She gives us such beautiful music and art during it all, thank you Solo and i wish you more health and life❤❤
They are definitely sisters. I’m happy she’s ok.
I have POTS and it’s incredibly debilitating! People have no idea what someone is going through. I’ve known for a while that she was diagnosed with it as well and I’m glad to hear that she is speaking on her health more. I understand not wanting to be identified by your diagnosis. This is incredibly helpful Especially since it’s dysautonomia awareness month.
Some of these comments are just pitiful and people don’t have a clue what auto immune issues are. People called my friend a hypochondriac too and then lupus shut her organs down and ended her life at 36 years old leaving a 9 year old boy behind. Even her own family made fun of her sickness and called her a liar. Watch your assumptions….
I first heard of Sjogrens from Venus Williams - that illness hampered that womans career so i definitely know Solange hs been going through it
I definitely have a chronic auto-immune thing going. Get checked up every 3 or 4 months. Nothing abnormal really shows up.
Even though I don't have the access to quality healthcare she has, I get where she is coming from. Prayers for her 🙏🏾
Sending prayers 🙏🏽🙏🏽🙏🏽 I have always wanted her and Willa to do music together
Oh God bless her 😢
Love Solange Good Health to this talented Lady! ❤❤❤❤
Hello everyone enjoy your evening
I have sickle cell so suffer with daily pain, joint issues, no energy or appetite. I’m taking a chemotherapy drug to keep it under control. It’s so nuanced to have invisible pain.
I wish her wellness and healing 💜✨️🙌🏿
Those women who don't have any autoimmune illness, PLEASE protect your health. Eat healthy and whole foods, get exercise, and make sure you are not chronically stressed. Speak to someone if you are, because chronic stress can completely wreck your immune system.
Prayers for her healing!🙏
I have dysautonomia, POTS and adrenal insufficiency and it makes life a lot harder but God doesn’t give you anything that you can’t handle. These conditions are definitely not for the weak. I pray for every person that has to deal with this.
@TLee-k7h Why do people say that? If God didn't give you more than you can handle there wouldn't be so many people suffering from depression & unaliving themselves. That statement is so dismissive!
@ladaps it’s depends on how you look at it! You have to have faith and understand that you are giving the devil control when you give up
Sjögren's syndrome/ Sjögren's disease, also affects the central nervous system(CNS).
Prayers for solange❤❤❤