Brooke's experience with a tilt table test
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- Опубликовано: 10 сен 2024
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I had my test today! It was the worst test I’ve ever had in my life! Finally got my diagnosis, but damn, I never want to ever have to do it again. 😢
It's not very nice, sending love to you and wishing you a speedy recovery from the test!
What did you get diagnosed with?
@@Kayleetvvv delayed orthostatic hypotension, which is one of many forms of dysautonomia. My blood pressure dropped to 48/30 at its lowest point during the test.
@@lavenderredneval6347 ok I got diagnosed with anhidrosis. I don’t know if I said that right but it’s where I don’t sweat.🥹
Appreciate this kind of video, having a heads up of what procedures are like really helps with the stress and gives me a baseline to work from if something feel right. Makes it a lot easier to advocate when youre informed!
So what the ttt is is not a true to life test. I find this bizarre. No coffee or tea for 24hrs before test? No food 2 hrs before test?
I won’t be following these procedures. I have 2 knee ligaments missing in same knee. I would prefer a true to life test.
How is Brooke managing her pots now?
Medication?
We all manage our pots through a variety of strategies, I believe AHC have videos on pots management