I think it can be easy to worry about stuff and that you just need to think about good things and the positive side of the situation while still taking things seriously and making sure your making good decisions for yourself.
hello! I've seen some of your videos as I have pulmonary hypertension also, but I don't need oxygen because my breathing aloe is fine? but I struggle a lot with walking and lifting ad eating foods with spics that make my lungs feel pain and my heart palpitate heavy like I almost have a stroke? so I careful with what eat.i saw that you had a surgery for a new lugs? I wanted to do that too but my cardio dr says im not sick enough or in life threatening situation to get one but honestly im so tired of living this way for 6-7years and it just got worse this year =( I barely can eat much meals due to breathing problems when im stuffed or too full but the thing is I don't even eat a lot, I eat like a toddler portion of food in a small soup bowl but how ever my lungs feels uneasy and I can't breathe well after and I only eat ice a day now =( I can't even eat ice cream too much either as it causes my throat to hurt and when I start to caugh my lungs hurt a lot and im always afraid that I might irritate my lungs and cough up blood which is the worse because when that happens it so painful an so scary that I don't know if ill die or survive.can you tell me how I can convince my doctor to have a lung transplant because I can barely walk these months now and barely getting to the bathroom most days and sometimes the lungs hurt to much that I can't even move I have stay in bed for 5 days to 1 week without excessive movements like cleaning or washing dishes or mopping or walking my dogs outside if I do it hurts a lot that I can't breath sometimes but when I get to the ER all doctors there tell me everything seems fine and normal but I don't feel fine or normal I feel so awful! =( that I cry sometimes and I can't even sleep for a few days and I end up asking for morphine and atavan for the pain but since I been getting those for 6 months the finally told me I can't take them anymore and the er doctors sends me home while im still so much in pain and can't mov =( my cardio tells me that the pressure in my lungs ha not changed and it has been the same since 6 years and im not in any danger? but I feel is awful inside it feels like I have bronchitis all the time with the pain and coughing etc.sorry it's a long comment just want to explain my situation for you and anyone that can help me? also im wondering if you ever rode on theme park rides and its ok' because I find that when Im riding in cars and the movements are like the roller coaster rides my lungs feels pressure and pain? im not sure why? im wondering if anyone with this condition ever rode on a theme park rides and were ok? because I still wanna live my life without limits I wanna ride on theme park rides but I don't know if its a good idea? it may cause me to cough out blood? im so scared day to day living like this now before it didn't bother at all and I was so hopeful but since I've gotten more sick and feel more pain in the Chest that the doctors can't explain why its hurting when all tests are coming out normal I suddenly have to take 3 different depression and anxiety pills daily? switching from 2 pills alternative depending how scared or how stressed iam? any way thanks for reading.i do see you're dong so well and I hope one day I can get there again soon..back to normal life without any woriries or pain and that im healed from this disease and also the pill they gave me I think its making me have hair loss?oh what to do?
I'm so sorry you're going through such a difficult time. Please remember that you are not alone. Sending you big hugs and hoping a cure comes around VEEEERY soon! 💜
Çhole, I just love your personality, your a hoot. Charming and lovely as well. I was wondering how your legs/feet are doing did you have surgery? Hope you don't mind me asking, hope you're feeling well. Take care lovely lady. Thanks for making us smile ☺️ xo Michelle 💞
Thanks so much, Michelle! :-) Feet and legs doing much better, thanks for asking! Had surgery to repair an artery in my leg due to ECMO and things seem to be a bit better now. xoxo
What great advice
I think it can be easy to worry about stuff and that you just need to think about good things and the positive side of the situation while still taking things seriously and making sure your making good decisions for yourself.
Right on the money. I will apply this method :)
Thank you, that is a very good question, and it helps to get a positive vibe :)
Greetings and love from Bulgaria! :)
Thanks, Chloe!
When I start to worry about things beyond my control, I’ll say “spritz” . Thank you 😊
That's SO great!!!
@@ChloeTemtchineLife any more vids coming soon?
hello! I've seen some of your videos as I have pulmonary hypertension also, but I don't need oxygen because my breathing aloe is fine? but I struggle a lot with walking and lifting ad eating foods with spics that make my lungs feel pain and my heart palpitate heavy like I almost have a stroke? so I careful with what eat.i saw that you had a surgery for a new lugs? I wanted to do that too but my cardio dr says im not sick enough or in life threatening situation to get one but honestly im so tired of living this way for 6-7years and it just got worse this year =( I barely can eat much meals due to breathing problems when im stuffed or too full but the thing is I don't even eat a lot, I eat like a toddler portion of food in a small soup bowl but how ever my lungs feels uneasy and I can't breathe well after and I only eat ice a day now =( I can't even eat ice cream too much either as it causes my throat to hurt and when I start to caugh my lungs hurt a lot and im always afraid that I might irritate my lungs and cough up blood which is the worse because when that happens it so painful an so scary that I don't know if ill die or survive.can you tell me how I can convince my doctor to have a lung transplant because I can barely walk these months now and barely getting to the bathroom most days and sometimes the lungs hurt to much that I can't even move I have stay in bed for 5 days to 1 week without excessive movements like cleaning or washing dishes or mopping or walking my dogs outside if I do it hurts a lot that I can't breath sometimes but when I get to the ER all doctors there tell me everything seems fine and normal but I don't feel fine or normal I feel so awful! =( that I cry sometimes and I can't even sleep for a few days and I end up asking for morphine and atavan for the pain but since I been getting those for 6 months the finally told me I can't take them anymore and the er doctors sends me home while im still so much in pain and can't mov =( my cardio tells me that the pressure in my lungs ha not changed and it has been the same since 6 years and im not in any danger? but I feel is awful inside it feels like I have bronchitis all the time with the pain and coughing etc.sorry it's a long comment just want to explain my situation for you and anyone that can help me? also im wondering if you ever rode on theme park rides and its ok' because I find that when Im riding in cars and the movements are like the roller coaster rides my lungs feels pressure and pain? im not sure why? im wondering if anyone with this condition ever rode on a theme park rides and were ok? because I still wanna live my life without limits I wanna ride on theme park rides but I don't know if its a good idea? it may cause me to cough out blood? im so scared day to day living like this now before it didn't bother at all and I was so hopeful but since I've gotten more sick and feel more pain in the Chest that the doctors can't explain why its hurting when all tests are coming out normal I suddenly have to take 3 different depression and anxiety pills daily? switching from 2 pills alternative depending how scared or how stressed iam? any way thanks for reading.i do see you're dong so well and I hope one day I can get there again soon..back to normal life without any woriries or pain and that im healed from this disease and also the pill they gave me I think its making me have hair loss?oh what to do?
I'm so sorry you're going through such a difficult time. Please remember that you are not alone. Sending you big hugs and hoping a cure comes around VEEEERY soon! 💜
How you been doing with your health since your lung transplant? PH friend Lenny from California❤
Çhole, I just love your personality, your a hoot. Charming and lovely as well. I was wondering how your legs/feet are doing did you have surgery? Hope you don't mind me asking, hope you're feeling well. Take care lovely lady. Thanks for making us smile ☺️ xo Michelle 💞
Thanks so much, Michelle! :-) Feet and legs doing much better, thanks for asking! Had surgery to repair an artery in my leg due to ECMO and things seem to be a bit better now. xoxo