I've been taking Humira for 1 year and 3 months. Find out what I've learned in that time. If you have any questions about humira please ask them... I will answer them all x
I have honestly teared up watching this and the hope you’ve given me.. I’m just waiting for my insurance to approve it and I’ll be picking it up! Your positivity is beautiful!!! Thank you for giving me hope!
Hope that by now your insurance has pulled their finger out and approved it. Honestly I'm sure it'll cost them more in the long run if they don't because of how many other drugs they'll need to treat you.
I’m 24, a dental hygienist, and was just diagnosed with RA 3 months ago. We caught it very early, thankfully. This is the absolute worst career to be in with this disease because of how heavily it relies on my hands working. It has completely destroyed me mentally especially being so young I feel like I have so much longer to have more and more damage vs if I was diagnosed at 50. I am able to push through the pain to work (because i really have no other choice). But my doctor has had me on Plaquenil for 2.5 months so far. In general I am doing a bit better with pain, but the joint pain is still spreading to other fingers and I do have bad flare ups every couple weeks. My rheumatologist is going to put me on Humira with Plaquenil in hopes that it gets me to a full remission. This video has helped me feel much more hopeful about it. I am actually excited to start Humira because if it does give me my life back, I will never take opening a bottle cap, curling my hair, putting my shoes on without pain for granted again. Thank you, and please wish me the best outcome with this. I am so glad it has helped so many people.
Just waiting to find out if insurance will cover it. It is $7,000 a month if not, which is completely unrealistic for me and 99% of the population. If it cannot be covered, unfortunately I will not be able to use it.
Thanks for sharing this I just took my first shot and I desperately want my life back... rheumatoid arthritis is so confining for me I’m 39 and it’s a struggle to do anything.... I pray for results like yours.🙏🏽🙏🏽
Great video! I have been on humira for 5 months for my Crohn's disease. It has been great so far! I agree with everything you have said. I felt results after the first week which was great. I was diagnosed in 2010 and have been admitted to hospital 3 times trying over 5 different medications. Nothing was working until I found humira! Its my second to last option. But its going so well. Thanks for this video!
Thank you! I'm glad it's helping some people out with knowing what to expect from the medication. Crohns man... that's some heavy stuff. My friend is back and forth the hospital for infliximab infusions for Crohns. I'm so happy that I get to just do my treatment at home. Keep well!
You look and sound so happy !!!! I’m so excited for you. As a fellow behect’s sufferer I understand how bad this disease can get. Your happiness is truly contagious, thank you for making this video. I’m praying for your continued good health. God bless. Xoxo
Thank you so much. I really am the happiest I've been in a long time. I have an energy that I'd forgotten could exist in a person. I hope you're keeping well too xxx
Thank you so much for all your videos...I’m starting humira for my Crohn’s disease and I’ve been terrified of the side effects cause I’ve already been in so much pain for soooo long now...but you’ve really calmed me down
Thanks for the videos about this medication. My insurance just approved this for me to control my vision loss. I haven't had my first injection yet but you've given me something to look forward to with a time frame of expected results. This is big when you have something going on inside you that sometimes doctors can't quite explain. Being a welder messed me up inside and has left my body in a state where it attacks my optic nerves. I've completely lost vision in my right and now it's coming for the left eye. It's good to see you doing better, thanks again!
I love that you made this video. I have been diagnosed with A/S and R/A when i was 20 years old, 6 years on... and 1 year on humira its finally a drug thats worked for me. I totally agree when you said that you got your life back. I feel exactly the same!! god bless the people who created it for us. Only, thing ... which is a mild side effect (but as a women) my hair loss ], other than that feeling amazing :) :)
Hello! I know this video is almost a year old but, Thank You! I am 36 and have server/chronic ulcerative colitis. I start Humira injections tomorrow and watching all of your journey has helped. Looking forward to finally having a life again!
OMG your video brought me to tears. I’m a 33 year old stuntman in film and tv, a father and husband. I just had my right hip replaced and it didn’t work... they think I have AS or Sacroiliitis and it feels like a death sentence for me and my career and many other things. I’m about to be tested and heard about Humira and found this and my God you just gave me a the hugest amount of hope! God bless you and I hope you’re still feeling great! Let’s beat this! -Justin Gant
Well done, you look good for it. Your confidence appears through the roof compared to your first video. I've got my humira in the fridge awaiting the nurse for my first injection next week. Mines for ulcerative colitis.
I’ve been rethinking my decision to use humira - the things you’ve just said have convinced me to try again. I have felt like life was pretty much over for me. Just pain and exhaustion and nothing else. It’d be great to have my life back again! Thanks for the video- I know it may not effect me the same way but it’s worth a go I think 🤔
It's worth trying things. I felt like you but then i thought 'what's the alternative??? just more of the same' I hope your second go has been successful x
Your story has given me hope. I will start Humira very soon and I'm really hoping it works for me as well as it has worked for you. I have psoriatic arthritis and I really need my life back. Thanks a lot for sharing. You have a new subscriber.
I have my fingers crossed for you. I've heard for others with your condition and the treatment has worked well for them so there's light at the end of your tunnel, i'm sure of it! Good luck! x
I have the same disease and i am on humira almost a year now,the only side effect that is really sad is weight gain...because inflamation reduces the metabolism slows down..and you gain weight by eating the same..that is what my doctor said.Before the body is fighting the inflamation it is burning the calories but once there is no inflamation it keeps almost everything :((((
Hey, I am a medic starting adalimumab this week. You can tell the difference it's made between the 2016 video and this one, very hopeful. Just a tip, you can pasteurise eggs at home, 60 Celsius for 5 minutes (you'll need a cooking thermometer), then back to the fridge. You can poach them at a later stage then. But be careful with brie, untreated eggs, etc, etc. If you catch Listeriosis, Campylobacter or Salmonella you could become septic on these medicines.
I'm getting ready to start Humira too for my Behcets. I am definitely nervous but I'm hoping I can get my life back too. Thankyou for sharing your story ❤❤❤ I'm so glad it's working for you 😊
Tiffany Williams don’t be nervous. It’s the best thing I’ve ever done for myself. Just remember it takes time. Don’t be disheartened if it hasn’t kicked in within the first month. Let me know how it’s going or if you have any questions xx
Hey, thank you for this inspirational video. I started using humira 3 weeks ago for ankylosing sondylitis but I'm too afraid because till now I havent' felt any improvement in my pain at all. Has it happened to you as well? I mean, shouldn't i have felt something already? Thank you for sharing your story
Heinz Meier I've had AS for ten years and never taken meds they want me to start these injections but I've always refused I'm too scared of the side effects
Kalyn Coghill You’re welcome. I had no idea what Humira was until my rheumatologist told me that it was the next thing to try. Hope you get what you want x
I’ve had a very similar experience. The only downside for me was gaining weight, but my doctor explained that the reason my metabolism changed was because I was hypermetabolic before Humira, due to the stress of pain and illness, and I know that’s true, so I can adapt to a more “natural” metabolism.
@@camillebambi6449 I gained about 30 pounds during the first 6 months, but then I went on Ozempic and they came back off easily. Prior to Humira, yes I would have periods of sudden weight loss, like 5 pounds in a week without trying; it was weird. So, I don’t think my metabolic responses to illness are really that normal- aka I think my metabolism overreacts to stress. On Humira, I have a lot less stress, so my metabolism slows down (relaxes) a lot, and probably too much. But, like I said, I think Ozempic has really stabilized my particular metabolic syndrome. 🙂
Thanks for the honest review! I'm wondering do you still need to take medication for pain and stiff joints as well as Humira? Ive just been diagnosed with ankylosing spondylitis and will be starting humira soon. Cant imagine life without NSAIDS at the moment. It's really inspiring to see how well you're doing. xx
wow congratulations! thats great to hear that it works. tysm for sharing. i have ankylosing spondilitis and my doctors are telling me to go in meds and its been months and still hesitant to take it and im starting to get alot of pain. My lower back, my neck is stiff. i just dont wanna to take humira cuz of side effects etc. So since now that you feel like your life is back, you dont have to take the meds anymore correct
i’m in the same boat. i was recently diagnosed with AS. a long history of manageable Ulcerative Colitis and psoriasis. hesitant to start humirex. waiting to talk to my GI doctor and family doctor. trying to get as many professional opinions as possible, hang in there :)
Just seeing this now, and it was great! Do you intend to do another update as it's been about a year and a half since this one. I hope it's all going well for you still!
Andrew Davis I’m so glad the video has been helpful to you. It’s been really great to see the positive impact it’s had for people like you who are about to start their Humira journey. It’s been such a fantastic medication for me and I really for the same outcome for you. Let me know how you’re getting on!
I have been told that I should go on Humira ... however doing research there are a number of lawsuits on Humira .. one even includes Doctors getting kick backs and now they are stating they will be going after youtubers ... thoughts?
Hello! SIDE EFFECTS: After injecting I would feel 2 things. Firstly, I had a bit of a dead leg. It wore off after an hour and I was fine. Secondly, I had a headache. I wasn't sure if this was the result of a Behcet's flare up or not because it made my brain a little fuzzy which I always get when I have a flare up. Again, these would disappear after an hour. This went on for about 4 injections, then it stopped and I haven't felt those side effects since. DO I GET FLARE UPS: I'm not going to lie and say that this will wipe out all flare ups but this is my deal. I used to flare about once a month and twice if i'd really overdone it. (let me be clear, at the time 'overdone-it' pre-humira meant working 4 1/2 hours a day and then just *thinking* about going for a meal with my husband). My joints were in pain constantly and during a flare that pain would turn to pure agony. That is not my life anymore. My flare's only come when I've truly overdone it. These days overdoing it looks a lot like everyone else's overdoing it; shopping, dancing, exercising, parties, housework, events, workload. It's given me my life back, I still need to plan how I spend my spoons... but I'm starting with WAY MORE spoons than before.
Hi, I'm starting this treatment, I was wondering if you still on any other meds, and what condition you are taking it for. So pleased it has worked for you, fingers crossed I may gey the same results after so many years of pain.
Hi. I have Behcets Disease and suffer with incredibly painful joints as a result. My rheumatologist has prescribed Humira 'off licence' - which I understand to mean that Humira is licenced to treat certain conditions; RA, AS etc. but as some of these symptoms cross over with other conditions your doctor can decide to prescribe if there is a strong possibility it will work. I'm also on Azothioprine, Colchicine, Lymecycline, Omeprazole, Meloxicam (occasionally), Rizatriptan (occasionally). As Azothioprine is a high risk drug to take with Humira I'm being monitored very closely and have regular bloods taken. Hope this helps and I really hope your Humira journey is successful! x
Thanks for the very prompt reply and your concern. I look forward to experiencing the obvious relief that shows at the end of your video presentation. I hope you stay well and in good health, for the longest time possible.
Stick with it. I expected quick miracles and after the first two months I was really disheartened at my lack of progress, then one day I was heading home from work and realised that I hadn't been in pain all day. It still amazes me after all this time and I make the most of being able to move every day. Good luck!
Hey, I know this video is a year old but I just want to know how you’re doing? I’m going onto Humira for my RA and would love to know what you feel now 2 years on? I hope you’re well! Xx
I have been on the fence about taking Humira for the past 2 years trying to manage my disease by diet and exercise but my symptoms have become so bad that I feel like I may need to explore my options of taking Humira. The only thing that really scares me half to death is not really the side effects so much as the increased possibility of developing Lymphoma cancer from this medication.
Chris Mongelli that is totally valid and it terrified me too, especially given that I take Azothioprine. But I read the labels on some other meds I’m on and there’s worry there too. I weighted it up, was it better to live an existence of agony or chance it. I’m still worried but I get regular blood tests and medicals.
Very valid points! How long did it take before the medicine helped reduce the pain or how long before you started to notice that it was working? Also thank you for the reply! :)
You're welcome! It took a while. I started my injections in October and by the end of December I was about to give up because I wasn't seeing any change. Then in mid January it suddenly dawned on my that I'd gone a whole day without being in pain, i hadn't even noticed! I though it was a fluke but after a week I thought I'd test myself and went to the gym (I didn't go wild but enough to push myself), still no pain. And that was that - I got my life back. It's probably worth noting that I only started with one injection. I'm hearing about people starting with 4, I guess to boost the speed of efficacy. That could have a bearing on why it took so long to work for me maybe?
Thank you so much for the information! I am so happy for you that you have your life back and the medicine is working! Hope and pray it can do the same for me and the rest of the people who suffer from these autoimmune diseases.
Hi we have a 9 year old who has uveitis, she has been on methotrexate, for some reason it has not had any improvement, doctor is gona monitor and possibly next step will be humira, honestly we are terrified of this drug, with this drug did it weaken your immune system, did you get alot of coughs and cold , I came across your video by chance
I have to start on humira because I have psoriasis. But I am scared because of the side effects. I was going to ask.....If you get sick from a cold. Does it take you longer to heal?
Not too much longer to heal. A few days or so. The best thing is to keep away from sick people... you have to put your wellness first otherwise where's the point? I carry antibac hand gel and wipes with me so i try my best to avoid the germs but I'm not going to live my life scared of what-ifs xx
Thanks for this I’m going to,be starting humira for crohns in next few weeks, been saying up the pros and cons it was this or methotrexate to start with anyway being battling for years had major life saving bowels operations and been dealing with symptoms joint pain ,sickness ,toilet trips etc etc every since just taking the tablets for,the symptoms , and trying to be a mum too ,cut a long story short I don’t know whether to go with injection or the pen ? Also we are planing to go to America in July was wondering how I would travel with it ,co they need to stay in fridge, the side affects are what I’m getting anyway , great to see its really helped you and hope it works for me , I’ve thumbs up and subscribed to your channel are you from Wales 🏴 im in Cardiff 🏴👍🏻
Croeso Kate... a fellow Welshy!, Methotrexate is a marvelous drug for some. I've never taken it but my mum, who has the same disease as me is on Methotrexate and is happy with her treatment but my consultant wanted to try me on this. For me the pen was a no-brainer. It takes the thinking out of the injection completely and you don't see the needle. I guess it's about preference. I'm assuming it's Healthcare at Home that will deliver your injection to you so ask them for a travel case. You'll need to tell the airline that you're travelling with the injection (you can't put it in the hold, it has to be carry on). Then your airline will tell you if you need to bring your prescription or a letter from your doctor. It's not easy and I'd recommend taking as much proof with you as possible! If i'm due to inject a day or so after I leave then I just bring it forward a couple of days to save travelling with it... don't follow what I do though, ask your doctor what she recommends! Good luck with your treatment!
I do have a few questions... How often do you inject? How long did it take for you to realize the effects? How much does it cost you? Were you taking prednizone before?
Hi. I inject once every two weeks. It took about 3 months to feel the full effect on this dose. I am British so am lucky enough to have the NHS pay for it. No, I was taking Azathioprine. Hope this helps.
As symptoms of Behcet's disease treated with Humira, do you have neurological problems like spasticity in the legs, loss of muscle mass and urinary incontinence? Thank you
Had my first injection today. I have Crohn’s disease which has started to attack my joints. I’ve been in a tremendous amount of pain and I hope it helps. I’m concerned because I’ve read it may cause weight gain. Have you experienced anything like that. You don’t seem over weight at all. Just getting a consensus.
Bessie A I was really concerned about that too, and personally I truly believe that any chemicals in your body could slow your metabolism down because your body doesn’t recognise them. I eat super healthy and exercise when I can because I think it’s important to give your body the best chance at being healthy, but I don’t think I’ve had to work any harder because of the Humira. X
Mustafa aliraqi I started taking it in October and by January I started to see the benefit. Like I said it took a while and I was under the impression I’d get immediate results. Nevertheless when it did eventually work its excellent!
That's great news! I've read about few people who've had immediate results and it must just be the best feeling. I think maybe it depends on what you're taking it for or how well your body accepts the medication but the fact that some people see instant results is so awesome! I know some people load up on like 4 injections or something crazy for their first round. My doctor didn't let me do that, I'm guessing because of the other meds I'm on. Did you get to 'load up' with 4?
praisedalord58 it doesn’t burn at all. They’ve taken that ingredient that made it burn out, I believe. I always inject my thighs. I’m just more comfortable doing it there
Cashmere And Pain thank you for your reply. Sadly, it burned very much. 😧 I gave it in my thighs. Maybe next time will be easier. I’m glad the burning doesn’t last long though! Lol Are you on humira indefinitely? Blessings!
No. Not at all, quite the opposite in fact. But at the same time I stopped bleaching my hair and took it back to its natural color so that might have more to do with it than the Humira! :)
You know your helpful forgiveness be real oh yeah kel be realistic can you please repeatedly I know your smart enough to know that about you and yeah I love you so much with all my heart God bless you 💖 yes I love you so much with all my heart God bless you 🌹💞 another person interested in me again💖😭🤗😅😍✨😘🤐🤐💖🤗😭😴🤤💖✨😍🍬🍫✨🎂🥛🍪🎂🥛🍬🍫😅😭🤗💖✨🙏
Just started Amjevita, Humira biosimilar. Your video gives me hope. Thank you!
I have honestly teared up watching this and the hope you’ve given me.. I’m just waiting for my insurance to approve it and I’ll be picking it up! Your positivity is beautiful!!! Thank you for giving me hope!
Hope that by now your insurance has pulled their finger out and approved it. Honestly I'm sure it'll cost them more in the long run if they don't because of how many other drugs they'll need to treat you.
I’m 24, a dental hygienist, and was just diagnosed with RA 3 months ago. We caught it very early, thankfully. This is the absolute worst career to be in with this disease because of how heavily it relies on my hands working. It has completely destroyed me mentally especially being so young I feel like I have so much longer to have more and more damage vs if I was diagnosed at 50. I am able to push through the pain to work (because i really have no other choice). But my doctor has had me on Plaquenil for 2.5 months so far. In general I am doing a bit better with pain, but the joint pain is still spreading to other fingers and I do have bad flare ups every couple weeks. My rheumatologist is going to put me on Humira with Plaquenil in hopes that it gets me to a full remission. This video has helped me feel much more hopeful about it. I am actually excited to start Humira because if it does give me my life back, I will never take opening a bottle cap, curling my hair, putting my shoes on without pain for granted again. Thank you, and please wish me the best outcome with this. I am so glad it has helped so many people.
Just waiting to find out if insurance will cover it. It is $7,000 a month if not, which is completely unrealistic for me and 99% of the population. If it cannot be covered, unfortunately I will not be able to use it.
Thanks for sharing this I just took my first shot and I desperately want my life back... rheumatoid arthritis is so confining for me I’m 39 and it’s a struggle to do anything.... I pray for results like yours.🙏🏽🙏🏽
Great video! I have been on humira for 5 months for my Crohn's disease. It has been great so far! I agree with everything you have said. I felt results after the first week which was great. I was diagnosed in 2010 and have been admitted to hospital 3 times trying over 5 different medications. Nothing was working until I found humira! Its my second to last option. But its going so well. Thanks for this video!
Thank you! I'm glad it's helping some people out with knowing what to expect from the medication. Crohns man... that's some heavy stuff. My friend is back and forth the hospital for infliximab infusions for Crohns. I'm so happy that I get to just do my treatment at home. Keep well!
You look and sound so happy !!!! I’m so excited for you. As a fellow behect’s sufferer I understand how bad this disease can get. Your happiness is truly contagious, thank you for making this video. I’m praying for your continued good health. God bless. Xoxo
Thank you so much. I really am the happiest I've been in a long time. I have an energy that I'd forgotten could exist in a person. I hope you're keeping well too xxx
Can you explain the No Egg...unpasteurized chez
Thank you so much for all your videos...I’m starting humira for my Crohn’s disease and I’ve been terrified of the side effects cause I’ve already been in so much pain for soooo long now...but you’ve really calmed me down
I'm glad Mike. The best thing I've ever done for myself was start Humira. I really hope your journey is a great one!
Thanks for the videos about this medication. My insurance just approved this for me to control my vision loss. I haven't had my first injection yet but you've given me something to look forward to with a time frame of expected results. This is big when you have something going on inside you that sometimes doctors can't quite explain. Being a welder messed me up inside and has left my body in a state where it attacks my optic nerves. I've completely lost vision in my right and now it's coming for the left eye. It's good to see you doing better, thanks again!
I'm so glad your insurance has approved it... hopefully you'll start seeing results soon. Good luck in your treatment!
Glad to hear that it worked for you! I’ll be starting on Humira here soon for Crohn’s with severe joint pain. I really hope it helps :)
I love that you made this video. I have been diagnosed with A/S and R/A when i was 20 years old, 6 years on... and 1 year on humira its finally a drug thats worked for me. I totally agree when you said that you got your life back. I feel exactly the same!! god bless the people who created it for us. Only, thing ... which is a mild side effect (but as a women) my hair loss ], other than that feeling amazing :) :)
Have you suffered form hair loss also?
Hello! I know this video is almost a year old but, Thank You! I am 36 and have server/chronic ulcerative colitis. I start Humira injections tomorrow and watching all of your journey has helped. Looking forward to finally having a life again!
OMG your video brought me to tears. I’m a 33 year old stuntman in film and tv, a father and husband. I just had my right hip replaced and it didn’t work... they think I have AS or Sacroiliitis and it feels like a death sentence for me and my career and many other things. I’m about to be tested and heard about Humira and found this and my God you just gave me a the hugest amount of hope! God bless you and I hope you’re still feeling great! Let’s beat this!
-Justin Gant
Well done, you look good for it.
Your confidence appears through the roof compared to your first video.
I've got my humira in the fridge awaiting the nurse for my first injection next week.
Mines for ulcerative colitis.
I hope you're first injection went well. Yes, I feel like my confidence is back... I guess that's what being pain free can do for a person!
Thank you for sharing your story. I was diagnosed 2yrs ago with spondylitis. I am about to begin taking humira and you have encouraged me. Thank you.
I’ve been rethinking my decision to use humira - the things you’ve just said have convinced me to try again. I have felt like life was pretty much over for me. Just pain and exhaustion and nothing else. It’d be great to have my life back again!
Thanks for the video- I know it may not effect me the same way but it’s worth a go I think 🤔
It's worth trying things. I felt like you but then i thought 'what's the alternative??? just more of the same' I hope your second go has been successful x
Your story has given me hope. I will start Humira very soon and I'm really hoping it works for me as well as it has worked for you. I have psoriatic arthritis and I really need my life back. Thanks a lot for sharing. You have a new subscriber.
I have my fingers crossed for you. I've heard for others with your condition and the treatment has worked well for them so there's light at the end of your tunnel, i'm sure of it! Good luck! x
I have the same disease and i am on humira almost a year now,the only side effect that is really sad is weight gain...because inflamation reduces the metabolism slows down..and you gain weight by eating the same..that is what my doctor said.Before the body is fighting the inflamation it is burning the calories but once there is no inflamation it keeps almost everything :((((
Hey, I am a medic starting adalimumab this week. You can tell the difference it's made between the 2016 video and this one, very hopeful. Just a tip, you can pasteurise eggs at home, 60 Celsius for 5 minutes (you'll need a cooking thermometer), then back to the fridge. You can poach them at a later stage then. But be careful with brie, untreated eggs, etc, etc. If you catch Listeriosis, Campylobacter or Salmonella you could become septic on these medicines.
thank u for the video i have proriatic arthritus and starting humira tmrw .i would love my life back im a waitress and struggle x
I hope your first injection went well. It's scary the first time isn't it?! I'm sure your journey will be as positive as mine has been!
Lisa Collins same here. I just took my second shot yesterday and I'm hoping to see the same results as this woman. I hope you do too!
Thanks so much for this video. I start on this soon and can't wait.
I'm getting ready to start Humira too for my Behcets. I am definitely nervous but I'm hoping I can get my life back too. Thankyou for sharing your story ❤❤❤ I'm so glad it's working for you 😊
Tiffany Williams don’t be nervous. It’s the best thing I’ve ever done for myself. Just remember it takes time. Don’t be disheartened if it hasn’t kicked in within the first month. Let me know how it’s going or if you have any questions xx
Thankyou 😊
6yrs later! Are you still taking Humira? I’ve been offered it and it utterly scares me. X
Thank you so much for your comment. That really helped me out so much. 😀👍
I'm glad to have helped. x
I AM STARTING HUMIRA AS SOON AS I GET IT THROUGH THE POST. THANK YOU SO MUCH FOR THE VLOG VERY INFORMATIVE JUST HOPE IM AS LUCKY AS YOU.
Thanks Jonny, glad it's helped. Good luck with your Humira journey!
Congratulations, I'm very happy for you.
Thank you for making this video ... big help ❤️
Took 80 mg pen 3 days ago, 1/31/20.. Absolutely NO pain. RN assisted. Drove home 5 minutes after..
I hope it works for me, thanx gwad its working for you.. been staring at the Humira kit for days, getting my courage up, not ready for nurse atm.
U uploaded this a while ago I would like to know how your humria is still going because I don’t see many people that take this drug for a long time
Thank you for this. I just started and this is the best testimonial so far. How is it going now?
Hey, thank you for this inspirational video. I started using humira 3 weeks ago for ankylosing sondylitis but I'm too afraid because till now I havent' felt any improvement in my pain at all. Has it happened to you as well? I mean, shouldn't i have felt something already? Thank you for sharing your story
Heinz Meier I've had AS for ten years and never taken meds they want me to start these injections but I've always refused I'm too scared of the side effects
@@Dj.slothy it's because your AS is likely not so bad. When u get to a point where all you feel is pain, any side effect is worth to get any relief
As a mom who is about to have her kid start Humira. Thank you for this positive video ❤️💪🏻 stay strong
I really hope your kid thrives on Humira! Good luck!
Hi, I am currently in the process of trying to qualify for humira. Thank you for this video.
Kalyn Coghill You’re welcome. I had no idea what Humira was until my rheumatologist told me that it was the next thing to try. Hope you get what you want x
i will start Humira next month .... your video gave me hope thank you so much
Hi thanks so much.
Please can you still take heavy things with AS ?
I’ve had a very similar experience. The only downside for me was gaining weight, but my doctor explained that the reason my metabolism changed was because I was hypermetabolic before Humira, due to the stress of pain and illness, and I know that’s true, so I can adapt to a more “natural” metabolism.
How much weight gain did you experience from it? Were you losing weight before withhout trying?
Rachel are you still on it?
@@camillebambi6449 I gained about 30 pounds during the first 6 months, but then I went on Ozempic and they came back off easily. Prior to Humira, yes I would have periods of sudden weight loss, like 5 pounds in a week without trying; it was weird. So, I don’t think my metabolic responses to illness are really that normal- aka I think my metabolism overreacts to stress. On Humira, I have a lot less stress, so my metabolism slows down (relaxes) a lot, and probably too much. But, like I said, I think Ozempic has really stabilized my particular metabolic syndrome. 🙂
I'm very scared of the side effects
You look great. Big change from when you first started.
Thanks for the honest review! I'm wondering do you still need to take medication for pain and stiff joints as well as Humira? Ive just been diagnosed with ankylosing spondylitis and will be starting humira soon. Cant imagine life without NSAIDS at the moment. It's really inspiring to see how well you're doing. xx
wow congratulations! thats great to hear that it works. tysm for sharing. i have ankylosing spondilitis and my doctors are telling me to go in meds and its been months and still hesitant to take it and im starting to get alot of pain. My lower back, my neck is stiff. i just dont wanna to take humira cuz of side effects etc. So since now that you feel like your life is back, you dont have to take the meds anymore correct
Dreamw8ing2cometrue I'm the same as you my condition is getting worse my neck crunches now and I can't open my mouth very far, what to do hmmm
i’m in the same boat. i was recently diagnosed with AS. a long history of manageable Ulcerative Colitis and psoriasis. hesitant to start humirex. waiting to talk to my GI doctor and family doctor. trying to get as many professional opinions as possible, hang in there :)
@@Chanoramik I wish it disappears by itself
@@Dj.slothy the doctor said better get treated soon before it gets worst
Just seeing this now, and it was great! Do you intend to do another update as it's been about a year and a half since this one. I hope it's all going well for you still!
I hand't thought about it but yeah, I will do another soon to give you an update!
Great video, im starting next week ☺ its for my chrons dissase
Jonathan Wallin good luck in your treatment Jonathan. I really hope it works as well for your Chrons.
I’ll be starting soon too for Crohns. Your videos are a god send. Thanks so much for this. Love from Utah, US
Andrew Davis I’m so glad the video has been helpful to you. It’s been really great to see the positive impact it’s had for people like you who are about to start their Humira journey. It’s been such a fantastic medication for me and I really for the same outcome for you. Let me know how you’re getting on!
Thank you for encouragement
mazeed sumon no worries. Good luck in your treatment journey!
Thank you!
I have been told that I should go on Humira ... however doing research there are a number of lawsuits on Humira .. one even includes Doctors getting kick backs and now they are stating they will be going after youtubers ... thoughts?
Hi. I’m in the UK so our doctors aren’t paid to prescribe medication, those decisions are taken by the NHS. Good luck with your treatment journey!
Thank you! This is so helpful!
You're welcome!
I’m starting Humira soon. Did you have any side effects when you first started? Also, do you get any flare ups at all now?
Hello!
SIDE EFFECTS: After injecting I would feel 2 things. Firstly, I had a bit of a dead leg. It wore off after an hour and I was fine. Secondly, I had a headache. I wasn't sure if this was the result of a Behcet's flare up or not because it made my brain a little fuzzy which I always get when I have a flare up. Again, these would disappear after an hour. This went on for about 4 injections, then it stopped and I haven't felt those side effects since.
DO I GET FLARE UPS: I'm not going to lie and say that this will wipe out all flare ups but this is my deal. I used to flare about once a month and twice if i'd really overdone it. (let me be clear, at the time 'overdone-it' pre-humira meant working 4 1/2 hours a day and then just *thinking* about going for a meal with my husband). My joints were in pain constantly and during a flare that pain would turn to pure agony. That is not my life anymore. My flare's only come when I've truly overdone it. These days overdoing it looks a lot like everyone else's overdoing it; shopping, dancing, exercising, parties, housework, events, workload. It's given me my life back, I still need to plan how I spend my spoons... but I'm starting with WAY MORE spoons than before.
Can you please make an other video if u still in Humira and tell us how is that going?
How are you doing? Still on Humira I assume. I’m supposed to start it soon. Very nervous.
Garden Girl yeah, still on it! Don’t be nervous... it’s not as bad as you think it is... promise! X
Hi, I'm starting this treatment, I was wondering if you still on any other meds, and what condition you are taking it for.
So pleased it has worked for you, fingers crossed I may gey the same results after so many years of pain.
Hi. I have Behcets Disease and suffer with incredibly painful joints as a result. My rheumatologist has prescribed Humira 'off licence' - which I understand to mean that Humira is licenced to treat certain conditions; RA, AS etc. but as some of these symptoms cross over with other conditions your doctor can decide to prescribe if there is a strong possibility it will work. I'm also on Azothioprine, Colchicine, Lymecycline, Omeprazole, Meloxicam (occasionally), Rizatriptan (occasionally).
As Azothioprine is a high risk drug to take with Humira I'm being monitored very closely and have regular bloods taken. Hope this helps and I really hope your Humira journey is successful! x
Thanks for the very prompt reply and your concern.
I look forward to experiencing the obvious relief that shows at the end of your video presentation.
I hope you stay well and in good health, for the longest time possible.
Stick with it. I expected quick miracles and after the first two months I was really disheartened at my lack of progress, then one day I was heading home from work and realised that I hadn't been in pain all day. It still amazes me after all this time and I make the most of being able to move every day. Good luck!
How long did it take before you noticed the humira beginning to work?
it took a few months. i started taking it in October and by January I started to feel the effects
Hey, I know this video is a year old but I just want to know how you’re doing? I’m going onto Humira for my RA and would love to know what you feel now 2 years on?
I hope you’re well! Xx
Did you get the meds on the NHS or PMI?
I have been on the fence about taking Humira for the past 2 years trying to manage my disease by diet and exercise but my symptoms have become so bad that I feel like I may need to explore my options of taking Humira. The only thing that really scares me half to death is not really the side effects so much as the increased possibility of developing Lymphoma cancer from this medication.
Chris Mongelli that is totally valid and it terrified me too, especially given that I take Azothioprine. But I read the labels on some other meds I’m on and there’s worry there too. I weighted it up, was it better to live an existence of agony or chance it. I’m still worried but I get regular blood tests and medicals.
Very valid points! How long did it take before the medicine helped reduce the pain or how long before you started to notice that it was working? Also thank you for the reply! :)
You're welcome!
It took a while. I started my injections in October and by the end of December I was about to give up because I wasn't seeing any change. Then in mid January it suddenly dawned on my that I'd gone a whole day without being in pain, i hadn't even noticed! I though it was a fluke but after a week I thought I'd test myself and went to the gym (I didn't go wild but enough to push myself), still no pain. And that was that - I got my life back.
It's probably worth noting that I only started with one injection. I'm hearing about people starting with 4, I guess to boost the speed of efficacy. That could have a bearing on why it took so long to work for me maybe?
Thank you so much for the information! I am so happy for you that you have your life back and the medicine is working! Hope and pray it can do the same for me and the rest of the people who suffer from these autoimmune diseases.
Hi please update your story with Humira. Many thanks.
Hi we have a 9 year old who has uveitis, she has been on methotrexate, for some reason it has not had any improvement, doctor is gona monitor and possibly next step will be humira, honestly we are terrified of this drug, with this drug did it weaken your immune system, did you get alot of coughs and cold ,
I came across your video by chance
I have to start on humira because I have psoriasis. But I am scared because of the side effects. I was going to ask.....If you get sick from a cold. Does it take you longer to heal?
Not too much longer to heal. A few days or so. The best thing is to keep away from sick people... you have to put your wellness first otherwise where's the point? I carry antibac hand gel and wipes with me so i try my best to avoid the germs but I'm not going to live my life scared of what-ifs xx
Thanks for this I’m going to,be starting humira for crohns in next few weeks, been saying up the pros and cons it was this or methotrexate to start with anyway being battling for years had major life saving bowels operations and been dealing with symptoms joint pain ,sickness ,toilet trips etc etc every since just taking the tablets for,the symptoms , and trying to be a mum too ,cut a long story short I don’t know whether to go with injection or the pen ? Also we are planing to go to America in July was wondering how I would travel with it ,co they need to stay in fridge, the side affects are what I’m getting anyway , great to see its really helped you and hope it works for me , I’ve thumbs up and subscribed to your channel are you from Wales 🏴 im in Cardiff 🏴👍🏻
Croeso Kate... a fellow Welshy!, Methotrexate is a marvelous drug for some. I've never taken it but my mum, who has the same disease as me is on Methotrexate and is happy with her treatment but my consultant wanted to try me on this. For me the pen was a no-brainer. It takes the thinking out of the injection completely and you don't see the needle. I guess it's about preference. I'm assuming it's Healthcare at Home that will deliver your injection to you so ask them for a travel case. You'll need to tell the airline that you're travelling with the injection (you can't put it in the hold, it has to be carry on). Then your airline will tell you if you need to bring your prescription or a letter from your doctor. It's not easy and I'd recommend taking as much proof with you as possible! If i'm due to inject a day or so after I leave then I just bring it forward a couple of days to save travelling with it... don't follow what I do though, ask your doctor what she recommends! Good luck with your treatment!
So as of today 6/21-How have you been? Any side effects!
I do have a few questions...
How often do you inject?
How long did it take for you to realize the effects?
How much does it cost you?
Were you taking prednizone before?
Hi. I inject once every two weeks. It took about 3 months to feel the full effect on this dose. I am British so am lucky enough to have the NHS pay for it. No, I was taking Azathioprine. Hope this helps.
@@cashmereandpain996 Thanks, I'm happy its working well for you.
As symptoms of Behcet's disease treated with Humira, do you have neurological problems like spasticity in the legs, loss of muscle mass and urinary incontinence? Thank you
Danilo Boffito No I don’t have any of those issues.
Had my first injection today. I have Crohn’s disease which has started to attack my joints. I’ve been in a tremendous amount of pain and I hope it helps. I’m concerned because I’ve read it may cause weight gain. Have you experienced anything like that. You don’t seem over weight at all. Just getting a consensus.
Bessie A I was really concerned about that too, and personally I truly believe that any chemicals in your body could slow your metabolism down because your body doesn’t recognise them. I eat super healthy and exercise when I can because I think it’s important to give your body the best chance at being healthy, but I don’t think I’ve had to work any harder because of the Humira. X
Hellow....m suffering analysing Spondylitis 3years
Before 6days doctor referred Humira injection
??? Plz help me tell about Humira injection
I'm scared to try it. Can I get cancer from it,
How long did you take it until it started being effective
Mustafa aliraqi I started taking it in October and by January I started to see the benefit. Like I said it took a while and I was under the impression I’d get immediate results. Nevertheless when it did eventually work its excellent!
Mustafa aliraqi It depends on the person I felt great a week after starting it!
That's great news! I've read about few people who've had immediate results and it must just be the best feeling. I think maybe it depends on what you're taking it for or how well your body accepts the medication but the fact that some people see instant results is so awesome!
I know some people load up on like 4 injections or something crazy for their first round. My doctor didn't let me do that, I'm guessing because of the other meds I'm on. Did you get to 'load up' with 4?
Thank you for your help! Thighs or tummy? I’ve got to decide! Does it burn bad?
praisedalord58 it doesn’t burn at all. They’ve taken that ingredient that made it burn out, I believe. I always inject my thighs. I’m just more comfortable doing it there
Cashmere And Pain thank you for your reply. Sadly, it burned very much. 😧 I gave it in my thighs. Maybe next time will be easier. I’m glad the burning doesn’t last long though! Lol Are you on humira indefinitely?
Blessings!
Did your hair thin?
No. Not at all, quite the opposite in fact. But at the same time I stopped bleaching my hair and took it back to its natural color so that might have more to do with it than the Humira! :)
Is it forever or for limited time and then you stop using it ..?
medo medo he hasn’t actually given me an end date, and to be honest I’ve never asked. I hope I’m on it forever!
Do you take mtx with humira
Are you still on humira?
Teresa Gutierrez Yes! About a year and 6 months now.
How often do you have to inject yourself?
Once ever 2 weeks. I read about people doing it once a week and event twice a week. Once ever two weeks is working well for me at the minute.
No runny eggs on Humira???? Nooooooo!
I know right?!
You know your helpful forgiveness be real oh yeah kel be realistic can you please repeatedly I know your smart enough to know that about you and yeah I love you so much with all my heart God bless you 💖 yes I love you so much with all my heart God bless you 🌹💞 another person interested in me again💖😭🤗😅😍✨😘🤐🤐💖🤗😭😴🤤💖✨😍🍬🍫✨🎂🥛🍪🎂🥛🍬🍫😅😭🤗💖✨🙏