HEALTH UPDATE DROM VLAD (ME/myalgic encephalomyelitis)
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- Опубликовано: 25 ноя 2024
- Whats is ME? me-pedia.org/w...
Vlad's main channel - / vladvexler
Vlad's Chat channel - / @vladvexlerchat
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Whats is ME? me-pedia.org/wiki/Myalgic_encephalomyelitis
Vlad's main channel - ruclips.net/user/VladVexlervideos
Vlad's Chat channel - ruclips.net/channel/UCn7XHZiW6EUgSuxItybLLMgvideos
Vlad's philosophy channel - www.youtube.com/@VladVexlerPhilosophy/videos
Support Vlad's work on Patreon!
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Support Vlad via PayPal
www.paypal.com/paypalme/vladvexler?country.x=GB&locale.x=en_GB
Great idea, the contrasting subtitles! Thank you!
I’m new here. I got ME back in the 80’s. Hoping they can help you. It’s rough and few understand how hard it can be. 🤗
Always in such great spirits. An inspiration to us all. Cheers Vlad 💕
We love you, Vlad! Your presence is a light for many in the world increasingly plunging into darkness! We need you now more than ever.
Love love
We love you to stay humble and never give up brother
We are so privileged to have you visit us from your other world.
💛
I feel it is almost impertinent to comment, but thank you for this Vlad. So many of us count on you as a wise friend in troubled times, and I hope the knowledge of such love is some assistance as your indomitable will carries you to better health. Thank you enormously.
Took me months to write, I still battle the urge to resist, yet feel I comment too much.
@@PandemoniumMeltDown I feel the same way exactly! Hearing about people leaving made me think it was time to finally show some appreciation and not just mumble in the corner :)
Ive had ME for 22 years. Everything that you are saying I go though. This disease is so hard to negotiate. The fact that you are able to STILL help us to understand the quagmire of the political sphere is amazing. You are very much appreciated. The reaction to medications is real.. After taking 6 Covid Vaccines I no longer can tolerate that, either.
I get it Vlad. As a disabled veteran who has learned to embrace and manage my disabilities, I appear to most people as a strong and active man, who is stronger and more active than most. Those people don't see the rare days that I have had to crawl on my hands and knees to get to the bathroom, and would likely be very surprised to know that about me. Those days really freak my wife out by the way...lol.
There's nothing that I can say that would make you feel better...but you are in my thoughts anyway.
You are in my thoughts as well. No one deserves to suffer like this.
Such a brilliant description of M.E. I feel the same. Every day is filled with immense suffering. And healthy people would scream if they were put in our bodies just for a day. I hope you will improve and have better days 🙏
Much love from the human community to the chronic illness community... :)
You are nice
Yes arohanui Vlad thank you for how mindfully you spend your time in our world
Tears in my eyes, I am so sorry. Lots of love ❤️
💛
Vlad, I’m devastated to hear about all of your health problems and suffering, and equally in awe of how you handle it with such grace and so eloquently describe your experience. With my own minor chronic issue and how much turmoil it has given me, it makes your demeanor all the more inspiring. I sincerely hope you improve, and wishing you the best.
As a fellow chronic illness companion your description of visiting from another world resonates completely. Good mental health is a powerful bastion in these circumstances. It makes it possible to engage well in the moments we can and not have them sucked down into the vortex of suffering through fear or the need to express or offload on another. For me, not being afraid of pain, being able to assess it objectively and manage it as effectively and logically as possible helps me a great deal.
Oh so sorry Vlad! Stay strong ..we all love you. You are a gentle, and calm island in a rapidly flowing river. Sending lots of healing hugs from Oz
I think you are doing a great service to the many others who live with chronic illness... by sharing a window into your world of living with chronic illness.
I urge all your subscribers to really take it onboard... We each may know someone living with chronic illness, not to the extend of yours, but who have to make extreme effort when they engage with us in the outside world and the people they want to be out there with for a time.. and to be conscious of that for them and make it possible if they need your help or compromise of activity or time for them to be able to do so..
It's so lovely to met you at the beach, Vlad.
💛
What absolute torture.
Your heroic efforts to bring your political analysis are an inspiration.
I can't imagine the struggle and the deep dark blackhole that is constantly trying to pull you into its darkness.
You are light, a light that shines on many of us to better understand this crazy world.
I hope you keep that in your heart and grab it when you need a bit of strength to get you thru.
I dont know you, but I send you my love and prayers.
We are sending warm feelings of support and caring, friend Vlad. Your diary of the symptoms you experience is valuable in its own right. As is your typical approach to explanations, you are profuse in your philosophical elaborations. This is difficult for you, yet you are precise and deliberate in your insistance on this documentation. Other people with ME, and also health professionals, can benefit from watching this update. It helps others understand. And you so badly want them to understand. Your compassion is palpable. Those of us who have experience in the multifarious effects that neurological illnesses can have upon behavior and interpersonal interactions can recognize how remarkable your reaction to all of this is. Rather than rage against an unjust fate, there is careful probity and self-reflection. I am, as a physician, sometimes in awe of this ability of yours. You are an amazing human being. Stay beautiful. 🌻
You are a wise and beautiful person, Vlad, and I appreciate the truth and hope you have given me.
You describe it all so well Vlad. We're lucky to have you. Fair play for using some of your precious energy to help raise awareness, thank you!
Good luck Vlad. I only wish one day this would all be behind you - ME included. It makes one feel frustrated and melancholic at the inherent natural injustices of our existence, lots of love ❤️
Your a strong bugger Vlad! Thanks for all you do for the community. Much love from Australia 🦘
Love back!
😢
So, so much love to you, dear Vlad.
Thank you so much always!
Thinking of you every day Vlad. xx
Vlad, I can't help but admire your mental strength and courage. Your comment about "visiting us from another world" I totally understand and relate to. For with chronic illnesses, chronic pain, mental health issues or other disabilities those brief periods of interaction, 'on the beach, are what most people see. Thus, people may make unrealistic interpretations about the capacity or quality of life that individual has based upon this brief interlude from their "impaired and undesired social withdrawal" not realising beyond this 'bright period' things are considerably more difficult. Thank you for your insight and appraisal of 'social events, tendencies and trends' and belief in freedom, free will and ability to express opinions despite authoritarian civil tendencies. I pray that you regain a greater level of functionality and greatly diminished pain.
Do take care ❤
You are a very important person in the world You are a light in the darkness
Thank you so much for all you share with us ❤. Sending good thoughts your way!!! Wishing for as much comfort for you as possible.
Lots of love from France. We are here.
hi vlad, ty for the update and continuing to teach people about how ME/CFS and other conditions can affect you. i have been going through a similar although less extreme version of what you're dealing with and it's put us in a situation where we are about to go under financially and these vids give me hope that i can find energy to give to work from somewhere.
i hope things turn around a bit for you soon, i know how unpredictable it is for me, and i love you very much. 💜🦄
So sorry you're going through the shit. Been thinking of you.
I find your resilience and positive attitude almost impossible to comprehend. Your ability to push through and provide the deep analysis and thoughtfulness to us, while going through the worst of ME and Covid effects is beyond what I considered possible for a person to do. Remarkable.
Vlad, you have my sincere empathy. You have wisdom not only about philosophy and politics but also how to take good care of yourself during challenging health issues. Your openness is like a lesson in medicine. You and your information matters to me. Thank you for sharing. Sending loving and healing energy your way.
God bless you Vladislav. Take care.
A while ago I was asked if/what I do for work besides raising two kids by someone from my ME Twitter bubble. I felt so hurt that she didn’t know my reality.
But it happens to me too. I visit from this other planet for an hour and generalize the things I see.
Raising two kids while having ME is a massive thing to do! - And a worthwhile thing too. (No more important job in my opinion) “Hello” from this ME planet!
@@ruthherring5684 Hello to your planet. I hope it’s not too bad over there.
I was just so baffled that for two years she imagined me returning home after work every day before I go on Twitter, when in reality I usually can’t sit up for more than 15 minutes without repercussions. Now I laugh about it.
Thank you. It’s irresponsible to have children when you have more than mild ME, but I didn’t choose it. I know the pain of many who wish to become parents, but can’t because of this **** illness.
Sending ❤.
@ Hello! It’s so hard for other people to “get” what it’s like on our planet, isn’t it?! I have had SO many experiences similar to yours. People are often wildly off the mark when it comes to the way they imagine your life to be. Vlad seems to explain it so well. My “planet” has had “good weather” today thanks! (For me, anyway)
Vladdy! You are so brave, so honest, so generous of spirit, and witty, and making jokes as you share with us your painful reality. Blessings on you. May your strength return soon! You are an inspiration. 🥰
Best wishes and a quick recovery from Germany! Love your videos Vlad, thank you for posting even if it is difficult.
I'm running out of encouraging things to say at this point for these updates, but thank you for everything that you're doing, Vlad. ❤
Big hug Vlad!!! We love you!!! You give us, confort, prospective, good judgement, food for thought. There is no other like you.Thank you so much!!! Rest and take it easy we can wait. Xxxx
Stay strong Vlad we love you
And you can still laugh! Unbelievably resilient. I wish that the doctors could do more. Sending you much love from the land down under and wishing you the speediest of recoveries 🙏 🙏
When I was training for a half marathon (chubby middle aged dad), it was a growing time for me. 60 minute max heartrate session felt like a torture. I was counting every second.
Thinking of people who are suffering without their choice was my motivator.
I'm so sorry your health didn't improve yet.
One step away from asking you a whole checklist of "have you tried...?"
Sending digital hugs instead if you like. 🧡
You’re a very articulate and wise man Vlad! Thx for your insight! Hope you get better asap!
Thank you so much for your honesty. I watched this video in particular because I wanted to know a bit about what you are going through... because I want to share with you a bit of my strength. I was once, in my youth, a Ukrainian- canadian dancer. Ukrainian dance is simply beautiful. May our thoughts move together and become a healing circle. Wishing you strength, dear Vlad.💛💙🇺🇦🌻
We need you more than ever!!❤❤❤
Thanks for the videos, Vlad. I suffered from ME for several years. I was lucky to make a good recovery but I remember how totally debilitating it was, physically and mentally. I remember the brain fog and the exhaustion. Despite your illness your clarity of thought and analysis of the world are incredible. You are an inspiration! I hope your health improves soon. Sending love ❤
❤
I feel so lucky to live in the same planet as you project your conscience to share your knowledge and insights with us, dear Vlad.
I am not religious by I am always wishing you good health and improvement.
Lots of love and admiration from a Brazilian random guy and loyal follower.
What an extraordinary human you are Vlad!
Thank you
Dearest Vlad… just trying to find words… you are my hero..and I don’t have any problems…, love, Julia
Thank you for this insight into what daily life is like for you. It makes the wisdom and humour of your videos seem even more remarkable. I know there's no real chance of a quick recovery for you, but I hope the worst symptoms do abate and become more manageable, and that you'll soon be able to be a bit more active.
My heart and tears go out to you❤😢
I have hope for your improvement!
You are such an amazing person!
Sending you encouragement & strength, hope you can feel the love from everyone 🙏🕊️💕
I had no idea Vlad how much suffering you are going through. You are an inspiration to us all to be able to keep on working your channel with the chronic pain and all the challenges you endure to keep us informed every day.
Bless you Vlad much love and a big thank you.
I wish so much that all these things would lift from you. I can be quite a depressive person and have been stuck in a bit of a rut of thinking since maybe 2018, but I identify coming across your channel as being part of a turning point, with some of the ideas you've communicated being a real catalyst to the improvement of my own mental health and starting to enjoy life again. The idea of dancing with life really clicked for me in a world of algorithmically driven advice about muscling new habits into yourself, strongarming your brain chemistry etc. - you once said, of JP, "this might get you into the right gear" to which I like to apend something like "but it's not great in the end if the steering wheel is jammed". Anyway you've helped me a lot and though I get the sense you'd be wary of getting into focused content on it, I'd love to hear how you manage your mental health. ❤.
Thank you for sharing. I have been following you quite a while and you have always been such a welcome voice of reason and optimism in these turbulent times. I wish you all the best health wise, and would be very relieved to hear from you one day that your situation has improved.
I am inspired by your ability to stay so strong psychologically!
Big hug Vlad ❤ you are important.
We care
So much love in return!
Respect❤
All I can do is send you love, my heartfelt prayer for a miracle to release you from this hell, and admiration for your courage in the face of this extremity. As desperate as I am about the election outcome, it cannot come close to your anguish. How you manage to do videos is beyond me. I so appreciate your intelligence and analysis. I pray God comforts you in some tangible way.❤️🙏
Lots of love, Vlad. Please take care:-)
So Much LOVE to you, Vlad !!!!💝 Please get well, amazing human! We need you! ♥
Thankyou for sharing your situation, Vlad. My partner has suffered from chronic illness for many years, so I have some small understanding of your circumstances. I wish you the best for a speedy and successful recovery.
I truly hope for better days ahead for you dear Vlad. Thank you for spending your precious better moments on us. Thank you so much.
It feels like being poisoned.
I'm lucky that right now, I don't feel that way 24/7 anymore.
Dance with these symptoms. If only we could... Dance! It's a nice dream though. I'm grateful for being able to dream nice dreams. ❤
Can't imagine what you going throuh... Wish you health and feel better soon Vlad.
Oh Vlad, I am SO terribly sorry! Thank you for using your eloquence to describe what you and others suffering from chronic pain are going through. Wishing you to not lose your peace of mind and to find stuff which helps your state improve! Much love and thanks!
It’s living while you’re alive. A friend of mine dealing with cancer taught me that. I miss her.
Hope it gets better, Vlad
Thank You, stay strong, God bless!
I am sorry that you are suffering so profoundly....but you are suffering profoundly...which ironically is a benefit for us who are not. Your generosity of insight into what you are going through is making us better human beings....
I wish you comfort and healing but will settle for your continued courage if that is your fated life path.
You are such a beautiful, thoughtful, person; amid the noise and confusion online, you have reminded us how to think and feel as human beings. God be with you.
I daresay this was a good use of your latest arrival on the beach. A powerful mental image to help us all improve our empathy.
Wishing you good health and good cheer Vlad.
Much love and best wishes to you, Vlad. I know a little of these types of struggles, and you have my sincere nest wishes.
Hi, Vlad, greetings from Wales, and thanks for sharing this. As a fellow long term sufferer from ME, I empathise with you: you do seem to have been going through the mill with it lately, whereas, fortunately for me, I've been going through a relatively extended period of remission. Your obvious suffering not only reminds me of my early days, but also makes me feel remarkably grateful for NOT being in your position now! Hopefully you will pull through this bad patch soon (DON'T try too hard: it makes things much worse!) and be able to get out and about in the "real" world outside of your room.
No words.... Just a BIG virtual hug and best wishes.
And greatest respect for your mental resilience
Get better soon ❤❤❤
Praying for you, Vlad. Thank you for sharing your journey with us. ❤️🇨🇦
So basically what happens is Vlad living normally in conditions very similar to hell sometimes comes to visit us to cheer us up, give energy, hope and just his nice calming presence before returning to his unpleasant space. This is incredible. Vlad all the best, see you soon and lots of love
We're not the beautiful people, Vlad; you are. We don't deserve you. Lots of love.
So rare to hear speaking such a light. I have chronic pain and exhaustion. I am so sorry you are dealing with ME and pray for your recovery.
Тримайся друже. Дякую що ти робиш для підтримки України.
I once was healed by a light energy entering my abdomen as if it was like a blast from a firehouse coming from a dimension that opened in front of me. As I lay in the hospital recovering from a stroke at age 30, the light entered my body and it seemed to go throughout my body and into my finger tips. I remember looking at my hands to see what was happening to me. I do not know how this healing light energy came to me. I am not religious but am spiritual and I suppose it came from the prayers and well wishes of others. I am wishing for some healing light energy to come to you.
❤
Thank you for your insights into ME and chronic illness. I've been battling long covid for 4 years. I had another hospitalization just last week. Your updates make me feel like I'm but alone. Your strength gives me courage.
Sending you good health wishes.
"I had no shoes and complained, until I met a man with no feet."
I also have chronic pain and freely complain to myself about it.
Hearing your situation has given me a new perspective. I appreciate your candor and openess, as well as your ability to use your intellect and voice at such a troubling time.
Many, many sincere thanks.
Thankyou for taking the time to visit from Planet Illness... we all appreciate it, and I really hope there's more they can do and that you arrive at a medical solution that's agreeable. 🌼
Vlad, sending you healing thoughts!!
Your health situation - makes me dump and unable to really understand what you are going through.
I just think to myself that it must energized you a lot to practice the way of thinking you do. Walking in and out of perspectives on your illness. How you feel it from inside, and how you distance yourself by looking at your health situation from outside in a fact checking position.
Sending love and consern🤗😍
Vlad, I'm suffering from old age and poverty. The depression that comes with them is sometimes almost more than I can bear. When I was your age, I enjoyed good health; being poor did not matter. If I had then gone through what you are going through, I don't think I would have made it to where I am now. I would call you brave, but the only choice you have is to be courageous or to succumb to the illness. However, your overt attitude is distinctly admirable. Of course, we don't know your private experience, but perhaps you are as courageous when you are alone as you are with us. I do know this. We who follow you on RUclips share a concern and compassion for you, and wish we could do more to help alleviate your suffering. If wishes are thoughts and thoughts are energy, then I know that many of us are sending all the energy we can through our thoughts; thoughts of goodwill and wellness. Be well, my friend, be well. 💖
Vlad I cry for you, you don’t deserve this and arguably we don’t deserve you. What an impact you’ve had on the illumination of thousands and thousands of people. Sending ineffectual and worthless but genuine positive thoughts
There is nothing that I can do to mitigate your illness nor the suffering it imposes on you. For that, I am sorry. All I can do, is to tell you that my thoughts and prayers are with you. And, that I sincerely appreciate your dedication to your viewership. Your personal insights into Russia as a whole, and it's ongoing war with Ukraine, provide the public with an important perspective into a complicated piece of world history in the making. Thank you. I wish you peace❤
Dearest Vlad - your strength in the face of such suffering is so courageous and so inspirational my prayers and heart continue to go out to you. Much love xxx
My Friend & Mentor I pray you get better. I'm so sorry you have to deal with with your medical issues. I've faced death a few times & was fortunate to continue. YOU ARE NOT ALONE MY FRIEND ! BE WELL ! Phil with a spinal cord injury from Boston Ma USA
Wishing you all the best! :)
Much, much love from this world to yours! ❤
Thank you so much for everything you do for us,through your suffering. I wish you well. ❤
Your mental health is totally amazing to me. You don’t mention fear. I would be very frightened. And your thoughts are still so very orderly and clear. Does that make suffering better or worse? Blessings and prayers, dear Vlad.
You are more of an inspiration to us than you can possibly imagine ❤
I am amazed at how much clarity of thought you have while being this ill.
Vlad, thank you for all you do for the beautiful community. You give me hope in these dark times. I am sending loving kindness and lots of healing thoughts to you and all who suffer with ME and other chronic illness... I struggle with a chronic illness and love the beach and bobbing in the waves example. 🧡💛💙💙💙💛💛
My heart goes out to you, seriously, sincerely, you are inspiring. Keep breathing for all of us. 🙏 ❤
Oh Vlad, so sorry that you are going through this...and at the same time wanting the energy you give.
Vlad you will be in my prayers
So grateful
I am so sorry Vlad! I had no idea that you cope with this ongoingly. It's hard to believe that you do all the great work that you do! I appreciate your info on the war so much here in Canada.
I have MS with Trigeminal Neuralgia, an undiagnosed heart problem, and ME. I feel quite ill quite more often than not, and over 30+ years it has wrecked my life. It started in my 30s. Please get well soon. And thanks so much for the link to the ME page! It will greatly help me talk to my neurologist! So many best wishes and lots of love to you! ❤❤❤