For years I made myself much sicker because I was always taught to push through. I pushed until my body gave me no choice but to do different. I still have a hard time Pacing at times. It feels good to do things. Once I started Pacing and working with ME rather than against it, I figured out how to still do things and take care of my body at the same time. It's empowering but it took me years to get to that point. ME can be a total mind screw.
Thank you, excellent discussion which you're hitting on many crucial points! Pacing and recovery, like chicken and egg scenario, is the most important in my daily dance. I live listening to my body, not only recognizing current energy reserves, I also consider emotions and what's going on around me which could affect me. ❤ It's soothing to know I'm not alone.
It's so exhausting to have to advocate for myself, but I continue to do it. Thanks for talking about how these experiences affect our mental health. And thank you for talking about how, as women, we often struggle to stop when we have PEM. I have that issue. I am struggling to find balance between rest and meeting the needs of others.
Thank you for talking about this. I’ve never seen or had a therapist be able to talk about chronic illness without patient-blaming, or saying it’s a choice (when CBT/changing thoughts fails, it’s because we chose to continue being ill, supposedly because we benefit in some way from the misery and fallout). The gaslighting from people like Mate and others is entrenched in the profession. Thank you so much for even admitting that it’s real! Can you write an article for Psychology Today, or write a book, or have a training for your peers. You’re seeing it so clearly and describing it perfectly. You’re brilliant. Thank you and wishing more can hear you. This is a huge blindspot. Your validation of our reality, the reality of chronic physical illness, is potentially literally lifesaving.💙
As a person who just couldn’t stop, who is also autistic, I can tell you, my disease progressed from mild to moderate. I kept crashing and kept getting worse. But that was before the pandemic and wider recognition of energy limiting post infection disease. I always warn people, don’t do what I did.
For years I made myself much sicker because I was always taught to push through. I pushed until my body gave me no choice but to do different. I still have a hard time Pacing at times. It feels good to do things. Once I started Pacing and working with ME rather than against it, I figured out how to still do things and take care of my body at the same time. It's empowering but it took me years to get to that point. ME can be a total mind screw.
Thank you for this amazing discussion. The clinician validating the benefits of pacing for our mental health was like a breath of fresh air.
Thank you, excellent discussion which you're hitting on many crucial points!
Pacing and recovery, like chicken and egg scenario, is the most important in my daily dance. I live listening to my body, not only recognizing current energy reserves, I also consider emotions and what's going on around me which could affect me.
❤ It's soothing to know I'm not alone.
It's so exhausting to have to advocate for myself, but I continue to do it. Thanks for talking about how these experiences affect our mental health. And thank you for talking about how, as women, we often struggle to stop when we have PEM. I have that issue. I am struggling to find balance between rest and meeting the needs of others.
Thank you for talking about this. I’ve never seen or had a therapist be able to talk about chronic illness without patient-blaming, or saying it’s a choice (when CBT/changing thoughts fails, it’s because we chose to continue being ill, supposedly because we benefit in some way from the misery and fallout). The gaslighting from people like Mate and others is entrenched in the profession. Thank you so much for even admitting that it’s real! Can you write an article for Psychology Today, or write a book, or have a training for your peers. You’re seeing it so clearly and describing it perfectly. You’re brilliant. Thank you and wishing more can hear you. This is a huge blindspot. Your validation of our reality, the reality of chronic physical illness, is potentially literally lifesaving.💙
As a person who just couldn’t stop, who is also autistic, I can tell you, my disease progressed from mild to moderate. I kept crashing and kept getting worse. But that was before the pandemic and wider recognition of energy limiting post infection disease. I always warn people, don’t do what I did.