I don't want to go back to my PCP. He told me I need to exercise and he knows because he has a loved one who has it. I am calling all over trying to find one. The nearest one I can find is about 2-1/2 to 3 hours away. Sorry to hear you've been under the weather. You have the best smile that is encouraging as soon as I see what hat you have on today. The timbre and cadence of your voice is calming. Your information is invaluable. (How many hats to you have?!?!) You're in my prayers as is the whole gang.
Great tip. I found one in new England, where I live, and was lucky to have access to him. Took a whole year of waiting for my first appointment. Now I have 3 ME doctors but it's been a long process. 4 years of 1-2 appointments per year and many medication trials. BUT I'm doing a lot better than I was 4 years ago. 4 years ago, I never thought I'd be able to go out with friends or enjoy just sitting in the sun on a hot summers day. I can enjoy those things now,.with limitations, but I am so thankful for that.
A great point you make in this video. However it's way easier said than done. I have a doctor a pain management doctor who gives me controlled substances for a very severe movement disorder I have at night. I cannot leave this doctor because nobody else will give me the medication. As you know opioids are a big No-No even if they help for your amazingly severe pain. My specialists do not understand what I'm dealing with having CFS and all the things that come with it but unfortunately some of them I have to stay with because if I leave them I will lose medication and then my life would end literally. So I don't know what to say. I would love to find a doctor and I had one one once he was not an MD he had six doctorates none as an MD but he totally understood CFS/ME fibromyalgia all the different things that come with being sick with this syndrome. I totally agree with you unfortunately there are mitigating factors that have kept me bound to a Dr. It SUCKS. Be Well. How are you feeling these days?
Yeah, unfortunately some people don't have options. Its frustrating to hear. I wish everyone had a decent Doctor. Its the least M.E. sufferers deserve. I have been up and down. Have had some tough weeks lately. But thanks for asking.
@@fight4me747 hi can you please tell me your name. Sorry to hear about the times of Struggling you have been facing. I completely understand. Unfortunately. Thank You for Creating this Channel. It's very supportive
I just want to share my experience, I used to have extreme fatigue and headaches for 2 years I tried everything until recently did hijama ( cupping therapy ) its famous here in arab country and muslims , after it immediately the next day felt really good and energetic and I got back to the gym and my normal life I used five cups 2 in the neck and 3 in the back , and im sorry about my English, hope u all tru this maybe it will make different with your healthy
There are not enough doctors here just for regular stuff. i know loads of families that go without a doctor for them and their kids. people have to stand up in lines at emergency outside in the cold just for a simple thing. my doctor is part of a teaching clinic - sound good. not at all. no one looks at your file, you NEVER see the same person - and i get drugged incorrectly all the time. i am not allowed to ask for my doctor specifically anymore. So - for ME - i'm out of luck - i couldn't get help for ripped tendons in my knee 3 years ago - and that has completely stolen my life as i cannot walk now. you see wher this is going is i can't work and was nearly homeless the same year - 2nd lockdown . open up the flashbacks now again. i can't leave the house alone. Another doctor? there isn't one to be found.
@@fight4me747 Ontario. and it just occurred to me thinking about when i was in healthcare - There's two psych hospitals here -but no psychiatrists. insane. we've flipped to the dark ages too just bulldozing the homeless and sticking other people in the places to die. Throw away the key. I wont' be getting treatment in this lifetime - they 've already screwed me up getting things wrong.
I don't want to go back to my PCP. He told me I need to exercise and he knows because he has a loved one who has it. I am calling all over trying to find one. The nearest one I can find is about 2-1/2 to 3 hours away.
Sorry to hear you've been under the weather. You have the best smile that is encouraging as soon as I see what hat you have on today. The timbre and cadence of your voice is calming. Your information is invaluable. (How many hats to you have?!?!) You're in my prayers as is the whole gang.
My GP and I have learned along the way (13 years) throughout my CPTSD diagnosis then M.E. Fibromyalgia. X
Great tip. I found one in new England, where I live, and was lucky to have access to him. Took a whole year of waiting for my first appointment. Now I have 3 ME doctors but it's been a long process. 4 years of 1-2 appointments per year and many medication trials. BUT I'm doing a lot better than I was 4 years ago. 4 years ago, I never thought I'd be able to go out with friends or enjoy just sitting in the sun on a hot summers day. I can enjoy those things now,.with limitations, but I am so thankful for that.
Thats amazing. Glad you can do that. It's so important for mental health.
Thank you for your channel x
Good advice. I’m on my fourth doctor and she gets it. The third somewhat got it and recommended me to no 4. Sooo good to have someone care.
A great point you make in this video. However it's way easier said than done. I have a doctor a pain management doctor who gives me controlled substances for a very severe movement disorder I have at night. I cannot leave this doctor because nobody else will give me the medication. As you know opioids are a big No-No even if they help for your amazingly severe pain. My specialists do not understand what I'm dealing with having CFS and all the things that come with it but unfortunately some of them I have to stay with because if I leave them I will lose medication and then my life would end literally. So I don't know what to say. I would love to find a doctor and I had one one once he was not an MD he had six doctorates none as an MD but he totally understood CFS/ME fibromyalgia all the different things that come with being sick with this syndrome.
I totally agree with you unfortunately there are mitigating factors that have kept me bound to a Dr. It SUCKS. Be Well. How are you feeling these days?
Yeah, unfortunately some people don't have options. Its frustrating to hear. I wish everyone had a decent Doctor. Its the least M.E. sufferers deserve. I have been up and down. Have had some tough weeks lately. But thanks for asking.
@@fight4me747 hi can you please tell me your name. Sorry to hear about the times of Struggling you have been facing. I completely understand. Unfortunately. Thank You for Creating this Channel. It's very supportive
I just want to share my experience, I used to have extreme fatigue and headaches for 2 years I tried everything until recently did hijama ( cupping therapy ) its famous here in arab country and muslims , after it immediately the next day felt really good and energetic and I got back to the gym and my normal life I used five cups 2 in the neck and 3 in the back , and im sorry about my English, hope u all tru this maybe it will make different with your healthy
You the man.
Thank you and take care x
There are not enough doctors here just for regular stuff. i know loads of families that go without a doctor for them and their kids. people have to stand up in lines at emergency outside in the cold just for a simple thing. my doctor is part of a teaching clinic - sound good. not at all. no one looks at your file, you NEVER see the same person - and i get drugged incorrectly all the time. i am not allowed to ask for my doctor specifically anymore. So - for ME - i'm out of luck - i couldn't get help for ripped tendons in my knee 3 years ago - and that has completely stolen my life as i cannot walk now. you see wher this is going is i can't work and was nearly homeless the same year - 2nd lockdown . open up the flashbacks now again. i can't leave the house alone. Another doctor? there isn't one to be found.
Sorry to hear this. Where are you located?
@@fight4me747 Ontario. and it just occurred to me thinking about when i was in healthcare - There's two psych hospitals here -but no psychiatrists. insane. we've flipped to the dark ages too just bulldozing the homeless and sticking other people in the places to die. Throw away the key. I wont' be getting treatment in this lifetime - they 've already screwed me up getting things wrong.
great tip, thanks!
❤
Does anyone know any good doctors in Colorado? Thanks for your encouragement and support ❤ As always a great video!
Does anyone know of a ME Doctor in Alberta, Canada