This makes me feel better. I'm so scared. I have it and will have to travel quite a distance to get it removed by a very special surgeon. I still don't understand what can happen to a person if it is not treated. I've been living with this for decades and it's finally been diagnosed. I was always treated for severe anxiety, and I wasn't believed by anyone that I was sick.
Hi Dr Khoo! I’m a patient w pituitary Cushings Disease AND we now suspect a pheo and I have two aunts who had pheos. I’d love to meet with you!!!! I have the nightly severe flushing, tachycardia, palps, high cortisol, acth, pit tumor, Hashimotos, super high pulse, have had CT left adrenal is larger than right but was read as normal.
@@AKAGlenn still doing workup for the pheo all labs are high but so far CT can’t identify anything adrenal but I have another CT coming up soon fingers crossed. I also have a genetic mutation in the MAX gene which causes pheos, pituitary adrnomas and renal cancer, :(
This makes me feel better. I'm so scared. I have it and will have to travel quite a distance to get it removed by a very special surgeon. I still don't understand what can happen to a person if it is not treated. I've been living with this for decades and it's finally been diagnosed. I was always treated for severe anxiety, and I wasn't believed by anyone that I was sick.
Hi Dr Khoo! I’m a patient w pituitary Cushings Disease AND we now suspect a pheo and I have two aunts who had pheos. I’d love to meet with you!!!!
I have the nightly severe flushing, tachycardia, palps, high cortisol, acth, pit tumor, Hashimotos, super high pulse, have had CT left adrenal is larger than right but was read as normal.
Any update, how are you doing now and have you been treated? I have much of the same symptoms, and I’m currently waiting for an endocrinologist.
@@AKAGlenn still doing workup for the pheo all labs are high but so far CT can’t identify anything adrenal but I have another CT coming up soon fingers crossed. I also have a genetic mutation in the MAX gene which causes pheos, pituitary adrnomas and renal cancer, :(
Have you heard of Pseudo-Pheocromocytoma?