Participating in Clinical Trials: How Patients Can Make a Difference

Erin Brown (Lead Clinical Project Manager - UCB’s Rare Disease Organization), discussed the importance of patient participation in clinical trials for rare diseases.
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On March 9, 2024, TSF hosted a Patient Day for NMOSD & MOGAD in New England in collaboration with Dr. Michael Levy and Dr. Marcelo Matiello at the Mass General Brigham headquarters located in Boston, MA.
Our event was joined by 100+ patients, caregivers, clinicians, and advocates, and we were delighted to welcome Christine Ha, NMOSD patient/advocate and celebrity chef as a special guest to this one-of-a-kind community event!
Special thanks to our sponsors Amgen, UCB, Alexion, and Portal Instruments.