Life-Changing Infusions for Morquio Type IV

Поделиться
HTML-код
  • Опубликовано: 23 ноя 2024

Комментарии • 38

  • @mervekirmizi2992
    @mervekirmizi2992 Год назад +9

    my hubby had 2 people in his family with Morquio syndrome. His brother and his cousin, who both unfortunately passed away to the disease, his brother was 20 and his cousin 18. They both ended up in a wheel chair and it progressed over time. I love Sarah's optimism and I pray she loves a long and full life ❤ such an inspiration.

  • @rosemariemichel7050
    @rosemariemichel7050 Год назад +6

    She is living life not just existing.

  • @m.c.1387
    @m.c.1387 Год назад +19

    What a lovely young woman, an encourager, motivater, and strong!! So glad this dropped in my feed 💪🏾🇺🇸✔️

  • @sahpem4425
    @sahpem4425 Год назад +5

    Wow! What a strong and independent young woman! ❤

  • @sonnybobsquarepants266
    @sonnybobsquarepants266 Год назад +14

    What an extraordinary person! Proving that the word impossible really spells I’m possible

  • @shoshannafachima1306
    @shoshannafachima1306 Год назад +13

    Her outlook in life is so refreshing and lovely

  • @alanaaites8292
    @alanaaites8292 Год назад +2

    I have a special needs child. It's the hardest thing because you want to take all of their pain and struggles away. They're the bravest children. God bless this brave young lady.

  • @H4CK41D
    @H4CK41D Год назад +7

    so amazing to see a young person with morquio thriving, thank goodness for advances in medicine. a lovely young lady too and the work shes doing is such a worthy cause. i love this!

  • @Howiesgirl
    @Howiesgirl Год назад +3

    This young lady & her family really brightened my day. I wish Sarah all the best! 😊

  • @raeperonneau4941
    @raeperonneau4941 Год назад +9

    What a lovely young woman! …with wonderful family and friends! I wonder if she’s ever considered opening an Etsy shop with her stickers? I purchase stickers, regularly, for my planner and would definitely purchase some of her art.

  • @tamarajohnson8446
    @tamarajohnson8446 Год назад +5

    I love how fast you drive down the ramp from the front door. Thank you for sharing your story. I’m an infusion nurse in Oregon. I have not heard of your condition before. Again thank you.

  • @jeanneblondewomanstamping9788
    @jeanneblondewomanstamping9788 Год назад +5

    Such an inspiring young lady. Beautiful inside & out! 🥰🥰🥰

  • @mandyholmberg5106
    @mandyholmberg5106 3 месяца назад

    I am sending out my thoughts and prayers and love to this whole family ❤

  • @muhammadsheraz1206
    @muhammadsheraz1206 Год назад +1

    Really, I LOVE Sarah a pray more healthy and long Life.
    My daughter is MPS-IV-A live in Pakistan. Yesterday Birthday now 16 years old. facing very difficult time have FIT conditions twice a week this is very hard time unfortunately in Pakistan have no facilities and no treatment.

  • @lindadroy7323
    @lindadroy7323 Год назад +6

    Wow a amazing beautiful young lady . She is such a encouragement know matter who u are . God created a little bit of her for different people, her smile and laughter I just love 💕 how she can do this . Blessings to u sweetie. 😊

  • @karencorban607
    @karencorban607 Год назад +7

    A great attitude do what you can with what you’ve got and go for it

  • @susanhicks255
    @susanhicks255 3 месяца назад

    Brave young woman. Bless you ❤❤❤

  • @terrinew9474
    @terrinew9474 Год назад +3

    Sarah you are such an inspiration, I love your love of life.

  • @gailrodgers3079
    @gailrodgers3079 8 месяцев назад

    I get an IV for my rheumatoid arthritis every 6 weeks that takes about 2 hours. I think I have been getting it for about 10+ years now and it has done wonders in my life. I can feel me going downhill the week before I am due for it. Then I get it and have to rest the next day then I am doing much better. I had been having flare-ups every week that lasted 2-3 days. Once I was on it, I lost track of the fact that while I might have a bad day, I wan't having flare-ups until out of the blue I had one. I had forgotton how bad they were. We don't have the same problems but boy those IVs sure do help and I am glad that you are having such a good effect from yours and that it allows you to work parttime. I had to quit working as a nurse 22 years ago I got so bad. Now at 68 I don't think I can't even think about trying to go out to work! Best wishes to you and I hope that you continue to get good relief.

  • @annepoitrineau5650
    @annepoitrineau5650 Год назад +4

    Thank you for sharing and educating us with such grace.

  • @ALT-vz3jn
    @ALT-vz3jn Год назад

    Sarah you’re a wonderful and sassy young lady, I bet you’re an amazing friend to those around you. Sending much love from California ❤

  • @susanwills4723
    @susanwills4723 Год назад +2

    I have enjoyed watching your video. Your so uplifting. Your an inspiration and hope for success. God bless you darling. Thank you for sharing your story 👏👏👏👏👏👏💐💐💐💐🥰🥰

  • @irishgirl1753
    @irishgirl1753 Год назад +1

    You are lovely and I’m glad to have found you god bless you and your lovely family ❤️🙏🤗💕

  • @keztukariri
    @keztukariri Год назад +3

    As amazing as always, the beautiful humans featured here on Attitude ❤

  • @debbiebrannon8874
    @debbiebrannon8874 Год назад +1

    Praying for a healing amen

  • @darleneburns8906
    @darleneburns8906 Год назад +3

    Simply beautiful!! You n your friend ❤

  • @deniselancaster6888
    @deniselancaster6888 Год назад +4

    Lovely young lady.

  • @mecaloxa
    @mecaloxa Год назад +5

    Very cool, I love it

  • @mgray3130
    @mgray3130 Год назад

    Wonderful, amazing really!

  • @tatianaflores1926
    @tatianaflores1926 Год назад

    ❤so motivating!!!! ❤

  • @melissahenderson754
    @melissahenderson754 Год назад

    Happy birthday

  • @marquezanlacerdaTrenheira
    @marquezanlacerdaTrenheira Год назад

    beautiful

  • @nhinhi9725
    @nhinhi9725 Год назад +1

    ❤❤

  • @ryanbeyea2834
    @ryanbeyea2834 8 месяцев назад

  • @holdencawffle626
    @holdencawffle626 Год назад

    Whoa

  • @thiabrabson2533
    @thiabrabson2533 Год назад

    ❤❤❤❤❤❤❤❤

  • @ryanbeyea2834
    @ryanbeyea2834 8 месяцев назад

    😘