30 Lessons about life with a chronic illness... [CC]
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- Опубликовано: 6 июн 2024
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Jessica Kellgren-Fozard I love u and I’m vintage too just like u...ur my role model!!! ❤️❤️
Betterhelp said I'd be better with a physical counselor which I have
Thanks for this, as a queer 20 year old girl trying to figure out all her diagnoses I really connect with your content! I’ve just got a cane and I’m working on trying to accept my limits and take care of myself. Your positivity and advice is so beneficial for disabled people, especially those who are new to being disabled or younger disabled people. Thanks for being so awesome, I would love some more disability videos :)
BetterHelp is really expensive, doesn't take health insurance, and refuses to refund for their crappy therapists. That said, the second best and the most helpful therapist I ever had was on BetterHelp.
Thank you for these answers!!
"mindfulness does not reduce pain - JOG ON". Absolutely iconic.
There are probably some very confused americans right now, wondering about this strange slang! Love ya Hannah x
I agree if anything I want to be less mindful, less aware of my body. ^_^ I'll take that option. I don't need my body to keep telling me life sucks, I know it does, let's watch something funny on tv. >.>
Jennifer Vance- this is why writing saves me, it lets me be anywhere but here, it's much better living lives where you aren't hurting.
I'm going to tell my mom this next time she tries to tell me that, because I know I have something, I should be able to control it.
I.e. paranoia. Since I know I have paranoia I should now be able to control it by knowing what makes sense. Just think through it logically! Great, now I have a detailed idea of how a terrible thing could be happening right now.
I did find the Breathworks Mindfulness for pain course really helped, not to reduce it. But to not fight it or physically tense against it and to accept limitations etc. But it's v carefully developed by someone (Vidyamala Burch) with lived experience of chronic severe pain. I love too that VB still openly talks about bad days, her own struggling and severe pain, she gets up regularly in sessions to move her body etc so no one feels if they aren't magically cured and feeling "better" they fail.
There's a video interview of VB with RicK Hanson where she talks about mindfulness in severe pain I'll try to find. I think a lot of ppl me incl got VERY put off by standard mindfulness that just was making us feel/be aware of pain more, uh not good, not helpful.
WHATEVER I HAVE SEEN THE LIGHT AND COME BACK
YES WE LOVE LEGENDS SUPPORTING LEGENDS
doddleoddle - um...hi?
Hey you two should do a collab one day xx
Oh my god my gay crush watches my other gay crush's videos!!!
awwwwwwwwwwwwwww dodie how amazing is jessica???
“You are allowed to love the you today even if you want tomorrow’s you to be different” WHAT A GOOD QUOTE OH MY GOD???
“Keeping life chronically interesting” should be the slogan for this channel
T-shirt??
“You don’t look sick” UGH YES big autoimmune disease struggle!! Glad some people understand this!
And then that sometimes carries into "You don't look sick so I'm going to tell you how my temporary condition is harder than your forever condition."
Chronic pancreatitis struggle too! Them: “Oh but you look fine! “ Me: “you can’t see my pancreas”.
I want a T-Shirt saying "I'm NOT pregnant. I'm on a shit load of Steroids!".
I asked my parents once to print my colonoscopy and endoscopy picture results when I was really sick so when people said something to that effect I could deadpan and show them a picture. And probably also sarcastically throw confetti at them.
Chronic migraine struggle 😒
"mindfulness will not reduce pain. JOG ON" i need this on a t-shirt stat
McKenzzii but really let’s get a shirt. Obsessed with this comment.
This definitely needs to be in her shop. All of the things. Totes, throw pillows, socks, all of it. 😃
YESSSSSSS!
Yes I definitely need that t-shirt!
Yes!
Every time Jessica says "hello lovely people" i always answer "hello lovely person!" in my head
Bastonikov Istah SAME!!! 😂
#same
#same
My Boyfriend with EDS wanted to mention just how much he FELT that dislocated rib comment.
Renee Rials my ribs dislocate regularly fellow EDS person here
Hello! Fellow Zebra, current rib issues!
fellow EDS person here, thank god I don't dislocate joints, I just have constant lower end pain in most of my tendons
fellow EDS person!my shoulder regularly dislocates so thats a blast
EDSer here too. Starting PT for 2 ribs on my left side that keep subluxing. It's exhausting.
"you will spend a lot of energy helping people cope with the emotions they have other your illness. eventually you will stop telling people you're ill." YES. THIS. i have been struggling SO HARD with the reactions i get from people when i tell them i'm sick. when they baby me, and they pity me, and act like it's awful and that they need to react with such HUGE amounts of "awww poor jason!!"
like, um... no? why is it suddenly different now that you know that i'm ill? i am not YOUR sob story and i am NOT your baby dolly to play mother with.
ayyy agree
I used to care about their emotions, until it became obvious the sentiment wasn't returned. Now I just say “send money”.
Yah my gf has POTS and when someone starts babying her I tell them "thats my job and I'm not caring for her right now so she dosent need care so you dont need to treat her like she's your puppy and not an adult who knows how to handle thier own issues weather that means handling them herself or bringing someone she knows who she is who can do the handling for her.
We joke I'm her emotional support human becuase i can tell when she's not doing well before she can. Others can't see it becuase thier not around her as much and it's not something you can exactly teach so I can get her to a chair before she passes out.
@hello the problem is they stop treating them like an adult who can handle themselves the best response is "ok, do I need to know anything for incase you have an incident" or, "thanks for letting me know I'll keep that in mind"
While a lot of people go "Oh you poor baby" then go doting on them like thier incapable toddlers.
As a chronically ill purson dating a more disabled person (who can't hide it as much) I hate when people treat her that way it makes her feel small and insignificant and in the way and it so frustrating when people flip the script from treating them like thier an adult to doting on her like she's incapable yah it's better then the bitch who dosent believe her and pulls her out of a disabled sear to prove thier point but it's still not treating them like thier normal being othered weather positively or negatively done still hurts.
Mines commen enough that people don't do this othering shit as much
I agree
YAY I’m sick of doctors insisting mindfulness can stop chronic pain. It can help distract from the lower levels a little as a coping mechanism, but is useless when you are at the stage you are begging your SO to use a heavy object to knock you unconscious!
Amen. I use mindfulness for a bit, and then I go get a big pain shot.
I am absolutely loving the rising levels of sass on this channel.
Yas Jessica **clicks**
OMG yes. Jessica has absolutely started showing additional signs of chronic sass, and it seems to be progressive. I am so here for it.
@@sonipitts Hah! Chronic humour at its best ;-) Here for it.
# 21 MINDFULNESS DOES NOT REDUCE PAIN!!!!!! Please tell everyone! It does help with anxiety, but not pain!
Your hair looks amazing
Okay so! I have been a huge fan of yours for years but since recently being diagnosed with a list of things (it is always a list, isn't it.. goodness) "wrong with me" at the age of 20 when literally all I want to do is survive university, I have become rather... it's been lot. However, your videos have literally been giving me the motivation to at least try to get out of bed in the morning because you make me feel valid and seen, and the scary impossible things seem slightly less scary and impossible.
So thank you for your content, and I appreciate you
Janet disliked this video because Jessica missed her party.
Let's be honest if Jessica missed my party I would be devastated. She is awesome.
Finally getting into the genetics doctor because a other fun thing about living with a chronic Illness is trying to get a diagnosis!!!!
Big mood. Best of luck!!
That chronic state of being undiagnosed is the worst. I'm halfway there. At least my docs recognize and accept that I'm on the hypermobility spectrum somewhere. And now, after checking it out, I'm 90% convinced I meet the new 2017 hEDS criteria, but I've got to figure out how to make that happen (not sure if a GP can administer that or not). Or where the $$$ will come from to do it. ~~glares angrily in American~~
@@sonipitts Yes, hypermobility is so irritating, so many Docs don't even know what a Beighton score is. If you dont have classical eds type 1 with stretchy skin they are so confused.
Good luck! I'm on a similar path. Appointment in March - never have I been so excited to hear that some test was positive and I can now get a referral 🤣
I understand this. I've had doctors treating my symptoms for 15 years because enough proof exists that something is wrong with me but it seems like the doctors don't care about an official diagnosis because we know some of the things it causes but I would like to be proactive and not just reactive about whatever my condition is.
As someone who has been more depressed and down about my chronic illness and disabilities lately, I am very glad you made this video. It was what I needed to hear today, and it is painfully accurate.
I'm so happy you covered the real lives of the chronically ill, I find a vast majority of people simply cannot understand what life is truly like! Thankyou! ☺️
It's amazing how much overlap I got from this with Chronic *Mental* Illness - I often go through horrible periods of guilt because people can't see what's wrong with me and I'm able-bodied (aside from mild scoliosis), but still have so many symptoms. It helps a lot to be seen, even periferally. Thanks, lovely.
“Think happy thoughts and pray” are the ones I get all the time with my depression and anxiety. Ummm, please don’t say those things to me. Having depression is not a switch I can turn off and on by think happy thoughts and praying.
Having faith and hope only helps with my anxiety and keeping me from freaking out but doesn't help with my depression
Dayum I'm an agnostic..
Sassy Jessica is my favourite Jessica.
I don't have a chronic illness, but I do have mental illness as does my sister. I can absolutely say I can attest to the 'you'll be managing other people's emotions'. I'm more often than not caught between wanting to share what I'm going through with friends and family because it's HARD to do it myself, and then... the regret immediately after when they ask what they did wrong to make me like this or... them being worried about my future and how are they supposed to deal with this. BUT when I keep things to myself... they're upset I didn't' share. Awful vicious cycle XD
I suffer from a panic disorder, as well as physical things, and it's just as hard.
I love that phrase "You can love today's you even if you want tomorrow's you to be different!" I feel like that's the perfect way to describe how I try to feel about myself.
"You are allowed to love the you of today even if you want tomorrow's you to be different"
I love this so much, i wish i could truly believe it. Thank you Jessica ❤️
WOW. I CANNOT LIKE THIS VIDEO HARD ENOUGH! I identified with every. Single. Point! Especially finding out who your real friends are! Thank you Jessica, your hair is ON POINT 👌👍💜☺️
Your top/dress is so beautiful!!! please share details!!! 💜💜💜 p.s. your hair is always so lovely 😊
Yes!! I scrolled down to see if she would tell us where she got it! And she looks amazing. Her hair is even shinier than usual, too. How did she do that??
Hi guys! I got it in Malaysia and it was a one off xx
Really love this and it is all so true and everyone needs to watch it. Also, your story with Claudia on how she advocated for you to get the rest of your diagnosis’ inspired me to write down all of my symptoms and issues and go to the doctor and finally push for a diagnosis. I’m currently still under going tests to fully understand what is happening with my body but a hereditary connective tissue disorder and chronic fatigue syndrome seem to match up the most. I really appreciate all you are doing. You have encouraged me to love myself, rest when I need to, listen to my body and spend time on myself to feel beautiful and this helps me so much. Thank you so much and keep doing what you are doing. Love you and Claudia so much! And Walter and Tilly of course. Also, that dress!!!!
Josephine Anne Weigers good luck, I’m doing the same thing rn. It sucks!!! I’m also looking at connective tissue problems so I definitely appreciate what you’re going through.
Hope the process brings you positive things, good luck and well done for taking these steps, symptom tracking and asking doctors for help can both be really hard! X
I'm still grieving, I'm still trying to love my body 6 years after my diagnosis, but your videos are a huge way for me to cope, so thank you once again from the bottom of my heart.
This video was so charming and honest. I one hundred percent agree with everything you said.
Also I want “Whatever, I have seen the light and come back” on a t-shirt.
“You could do that yesterd-“
“WELL I CANT NOW, BRIAN.”
(My new favorite quote.)
Honestly all of these are so on point I have a hard time picking my favorite. The internet has absolutely saved me. Fanfiction makes me smile when I feel horrible. RUclipsrs like you give me a circle of people to turn to to keep me company. Being able to shop online makes days when I need things but can't manage a shopping trip so much better.
Also totally agree with becoming an amazing faker. It's incredible how many people have no idea how awful I feel most of the time until I sit them down and explain it in great detail...and then they promptly seem to forget about it all the next time they see me and I seem "fine".
Resting is totally a lie. Stress is the worst. Going to the doctor is such a huge bitch.
In short, perfect video! 🙌
"Well I can't today Brian! Deal with it!"
Thank you for sharing this! It's so nice feeling understood!
Sorry, cant today....I have plans to have a sleeping contest with my cat. LOL
"Window shopping for a new house" I do this A LOT.
Needed to hear that today! Thanks lovely x
Watching you is part of my self-care.
When I was first diagnosed, I didn't grieve because I don't think it registered how serious it could get. I was 12, so fibromyalgia wasn't really something significant, especially since I lived through the time of "this is a psychological disorder, there's nothing wrong with you" from the whole world (luckily, my dr didn't feel that way. He even did research on pediatric onset and found nothing, which made him more worried). It's been 22yrs since I was diagnosed. I still work in a physically demanding field (child care, hoping to be working special needs very soon) because its easier to ignore pain when you are mentally challenged. I love hiking because I can literally walk for miles, and being physically exhausted but mentally recharged is great. Being still when I don't have to be is dangerous
Hello, where were you living to be diagnosed with fibromyalgia at age 12? Sorry if this is a personal question or one that you cannot answer
THIS WAS AWESOME!!
Thank you for making this! It was fantastic and so accurate and really helped my mood :)
Thank you, i totally needed to hear these!
This hit hard today. Thank you
This is one of my favorite videos you’ve ever done! So beautifully said.
Loved this, thank you.
This was absolute perfection! Exactly what I needed right now, thank you so much!
Your videos are so, so helpful, thank you so much!!!!
I really needed this right now
Thank you, I needed this so much.
I’m so glad you’re getting sponsored!! You deserve it
Oh man this video is really speaking to me, thank you as always for your amazing videos ❤️was feeling a little down and this is exactly what I needed
Im in tears. Thank you for this 💜
I nearly choked on my tea watching this video. Every single point in this video I couldn't agree more with. Even 10 years on I still have family that think I'm at it or I'm a wimp, or as my brother asked me last week "you still milking this?" He was 'joking' but we do have a strained relationship at times because of it. I know I'm in a mess health wise but I'm done justifying myself.
This is one of your best videos, Jessica; I love this!!!
I really needed this video today
I needed to hear number 2 today, thank you for everything Jessica!❤️
I needed this today. I love your videos!
“You will grieve, but you still have great potential.” Just what I needed to hear today after a negative appointment with my rheumatologist. Thank you Jessica!!
I appreciated how light and happy this was but i had an anxiety attack today and I'm crying at how better i feel and how validating all the points were. TY Jessica youve impacted me more than i can ever really express TY girl you're amazing
By number one I was crying. I needed to hear this so bad. Thank you.
Thank you Jessica, I needed to hear this x
My goodness this was an amazing video. Thank you so much for makeing this, it was awesome.
Awesome video! Thank you!!!
I needed this, on so many levels. Thank you.
I needed this a lot thank you so much...
I love you and your channel so much ❤ This world is better for having you in it
Thank you so much. I really needed this video.
This video is absolutely everything!! This is exactly what I needed to hear today! Thank you!!!
You give so much support with your videos! Thank you and much love! ❤✌
Jessica this made me cry, thank you so so much
I needed this today. Thank you.
Pure gold, Jessica!
Your an inspiration Jessica.❤
#2, right in the feels. Thank you, Jessica.
This is so helpful to me. Thank you!
I very much related to most of the 30!! Such a great video! Happy 30th!!
Thank you for existing
Thank you 💙 I needed this today
You have no idea how much this video talks to me. So accurate! Thank you for making it! Looking absolutely gorgeous as usual. Xox
Thank you for such a wonderful video! So much wisdom! I could definitely relate to all 30 of these! And your hair does look amazing!
Fantastic video!! Every single one so so true, i was so hard on myself and still do have the odd day where I get frustrated. I love your channel so much thank you xxx
❤️ Your editing has been top tier lately!!! Let your lovely personality shine 🙃
LOVE this!
This is perfect. Thank you.
Thank you for your videos ♥
You are such an inspiration, Jessica ❤
You are Awesome, and wonderful. Thank you.
I’ve never found a video I fully related to before this. This is incredible!
This is soooooooo relatable. I love #2 especially. Thank you, lovely person (who has fabulous hair).
Thank you for this! Having an iffy morning and this really helped me to be hopeful that better days are ahead 🙂🙂
One of the Best videos ever, thank you
This may be my all time favorite video of yours!
Love this video thanks for always having great videos and thankful for internet and DVR and Netflix and Hulu and e books
This video is everything. You really hit every point so perfectly. 💖
Jessica that was incredible...Thank You 🖤
I love how cute your top looks!
Thank you soo much for this video. It really helped me. Hope you are having a wonderful day.
This is the most uplifting thing! Thank you!
Your smile always brightens my day!
Thank you for raising awareness. I have learned a Lot from this Video
Perfection! This my life!
I so, so needed this today.
Bad spoon day with no end in sight.
What a great video!! Very moving and informative. Thank you