Myositis and Exercise using the Functional Index-2 - Patent-led education

Fiona, a patient with dermatomyositis and interstitial lung disease, shares her experience and knowledge using the Functional Index-2 by Helene Alexanderson. Fiona walks us through the Functional Index-2 and the Intensive Resistance Training program and shares how she used these to increase her strength and improved her life. She went from bedridden to now walking unassisted, and she even hikes. This is not medical advice. Resources provided at UnderstandingMyositis.org/exercise

[@anjelitamalik9763]

Thank you for this video. I recently had a severe flare of PM. My CK went to 3300, difficulty of walking and I fell once while standing up unsupported. I had to take IVIG, and later take immunosupressant and methylprednisolone. Now my CK is around 300 and I don't have fever anymore. I have started to feel that some muscle function slowly coming back. I want to start physiotherapy next week. This video helps me in understanding the benefits of exercise and the progression that we can work for.

[@lilaccilla]

4 years ago it says , and want to know how you are doing now please ?

[@dogdancing2160]

(PM here) How about those of us who have to work? I never feel well, weakness is progressively getting worse. I need to exercise but don't have the luxury of being able to do it every other day as recommended. There are no down days in my life, ie my muscles work every day. Would adding in a exercise program over my normal schedule do more harm then good?

[@myositissupport]

Hi there. The functional index 2 doesn't take too long. Aside from working and daily activities, the functional index 2 targets specific muscles that not be used effectively otherwise. I would start very slowly to ensure you don't overdo it. It is best if you could get in with a physical therapist to at least have them go over the exercises with you and to help create a schedule.