I was cleaning up my subscriptions on youtube the other day and noticed you hadn't posted in a while. I was hoping you were still ok. Glad to see you put out another update. One thing with the VNS is that you don't know what it has actually done to help, since you have it currently. Your seizures could have been worse without it, but you wouldn't really have anyway to know that. I know it has helped my granddaughter, even though right now it doesn't seem to make any difference (her other seizure meds are being adjusted and she has had more grand mals). Her VNS is maxed out. And she doesn't seem to notice it, luckily.
I’m definitely going to be posting more now, hopefully weekly. Yeah, i am for sure going to try to get it turned down just a bit so I can see if it’s actually helping. If not then I may just get it removed.
I was cleaning up my subscriptions on youtube the other day and noticed you hadn't posted in a while. I was hoping you were still ok. Glad to see you put out another update. One thing with the VNS is that you don't know what it has actually done to help, since you have it currently. Your seizures could have been worse without it, but you wouldn't really have anyway to know that. I know it has helped my granddaughter, even though right now it doesn't seem to make any difference (her other seizure meds are being adjusted and she has had more grand mals). Her VNS is maxed out. And she doesn't seem to notice it, luckily.
I’m definitely going to be posting more now, hopefully weekly.
Yeah, i am for sure going to try to get it turned down just a bit so I can see if it’s actually helping. If not then I may just get it removed.