VLOG coffees and chemotherapy

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  • Опубликовано: 24 ноя 2024

Комментарии • 97

  • @DebMoon17
    @DebMoon17 11 месяцев назад +18

    I’m an Adolescent & Young Adult cancer research nurse in Australia. I worked with AYA patients who had sarcoma. You MUST have chemotherapy to eradicate micro metastatic cells that don’t show on imaging. It will definitely make a difference to your survival. I’m sorry to say the cancer has probably already spread you just can’t see it. Ask your oncologist and surgeon what your survival will be with chemo and without chemotherapy.

    • @RockeraMJJ
      @RockeraMJJ 11 месяцев назад +3

      I would say ask for a second opinion. And a third. And take a fully informed decision

    • @isabelgracep
      @isabelgracep  10 месяцев назад +3

      I don’t have metastatic cancer:) the entirety of the tumor was removed

    • @DebMoon17
      @DebMoon17 10 месяцев назад +7

      @@isabelgracep you don’t have metastatic cancer that you can see on imaging yet; the chemo is for micro metastatic cancer that may be lurking in the blood/lymph nodes or other place. Please ask your oncologist questions about this.

    • @traciprovins3221
      @traciprovins3221 10 месяцев назад +4

      @@isabelgracepI am a doctor and have to agree with the comment above. There are always tiny tumor cells breaking away and seeding other places via the lymph nodes and blood vessels. It’s impossible for them not to break away. Given that you had a significant amount of time that your tumor grew and it is aggressive, your odds of staying NED (no evidence of disease) is probably around 15%. Sarcoma already has poor prognoses. I just would hate for you to look back one day and wish you had done everything you could to eradicate the micro metastases. I am also a cancer patient and they couldn’t decide whether to do radiation after my entire thyroid was removed bc of a micro tumor. I had it done bc I wanted to eliminate any cells that had spread through my bloodstream already. It was very difficult and I had to be completely isolated from family and even my dog for 10 days. The first day I was allowed around people was my first day of medical school. It has caused me fertility issues, miscarriages and having to find a way to pay $22k for Ivf to only get one embryo. I need another round but it’s entirely expensive w $500k in debt from so much schooling. My only real dream in life was to have a baby. I’m 35 w menopause expected at 38 based on labs bc of my treatment- that they didn’t expect to affect my eggs. But I am alive and cancer free.
      You seem like a very reasonably person and I’m unlikely to change your mind; I just hope your doctor has explained how cancer cells are constantly breaking away and seeding other areas. It takes lots of time and millions of cells to be able to see a nodule or tumor on imaging. Cancer grows for years before they see it sometimes. Certainly you have cells lingering. It’s a matter of how many, how quickly they divide, and whether your immune system has fought any off. Wishing you all the best regardless moving forward.

    • @dboogs6184
      @dboogs6184 8 месяцев назад

      @@isabelgracepI am an oncology nurse and I see the damage chemo does to patients. Make a very informed decision before doing anything. Maybe look into high doses of vitamin c infusions also

  • @carleey9513
    @carleey9513 11 месяцев назад +5

    Dear beautiful Isabel Grace, we all stand with you on your journey of healing. Hopefully, your body will remain healthy for many many more years. We have a body but are not our body, we are so much more. The essence of what you are, of what we all are, can never be tainted or destroyed. You display such courage, such wisdom. Nothing can take that away from you. Be gentle with yourself. Have compassion for yourself in those moments when you do not feel strong or positive. Thank you so much for sharing with us. ❤️💕

    • @isabelgracep
      @isabelgracep  11 месяцев назад +2

      thank you for this beautiful comment- I am so grateful for the support in this

  • @aguyinnc2865
    @aguyinnc2865 11 месяцев назад +3

    I too am a cancer survivor, my surgery went well and I am cancer free. Wishing you the best with your recovery. Sending prayers, God Bless!

    • @isabelgracep
      @isabelgracep  11 месяцев назад +3

      Yay!!! I’ll say a prayer for you today I’m glad you shared this:)

    • @aguyinnc2865
      @aguyinnc2865 11 месяцев назад +1

      @@isabelgracep thank you.

  • @kvlogsyoutube
    @kvlogsyoutube 9 месяцев назад +1

    I discovered your channel on my home feed. Sending lots of love to you sharing your cancer journey here. It takes courage to share and love your videos keep it up ❤ I myself has rare cancer living with it called a Waldenströmsmacroglobulinaemia (blood cancer non Hodgkin lymphoma) sharing too my cancer journey here lots of courage and strength needed to do ❤❤

  • @yorkiemum-xu2dv
    @yorkiemum-xu2dv 11 месяцев назад +3

    When you make the decision that feels right for you , it's absolutely the right decision! God bless you as I know he will ...

  • @nicolei9876
    @nicolei9876 11 месяцев назад +5

    Having survived breast cancer, chemo, and radiotherapy, I wish you all the best in your recovery 💚

  • @dnagoddesshealings2212
    @dnagoddesshealings2212 11 месяцев назад +2

    Prayers for your recovery and your health journey. I admire your spirituality, your strength, courage, and your firm choices on your decisions. However it goes, just know it will always be your own personal decision.

  • @Qkano
    @Qkano 11 месяцев назад +3

    Interesting as your story is ... More of the Cat please :)
    I can never fell depressed with a purring cat on my lap.

    • @isabelgracep
      @isabelgracep  11 месяцев назад +1

      Now that I’m back at my place I am so missing the cat😔

  • @orlitamarov
    @orlitamarov 11 месяцев назад +2

    I can see the Shrine of the Bab from my bedroom window, and now every time I see it, I will be thinking about you and sending all the thoughts and prayers from here

    • @isabelgracep
      @isabelgracep  11 месяцев назад

      Aw this is the sweetest thank you🙏

  • @4leglizzie
    @4leglizzie 11 месяцев назад +1

    Dear, sweet Isabel! You're facing all of this news with courage, wisdom, and a spiritual perspective. You're doing what is right for you. ❤❤❤

  • @mariemaiorano
    @mariemaiorano 11 месяцев назад +1

    You are AMAZING !!!! So brave. I will be sure to say my prayers for you tonight.I am not a religious person but I saw a study that was done Years ago about prayers. It was done by a university (not connected to any religion) . It took two groups of people with terminal cancer, seperated them. One group was prayed for and the other not prayed for. The group that was prayed for had a higher survival rate than the group that wasn't prayed for. Not that you are terminal, but you deserve all of our prayers no matter what. I hope I haven't frightened you in any way. I just want you to know I care. You have a beautiful soul . Let all of your feelings flow ,don't hold back. My best hopes and wishes for you. Toni

    • @isabelgracep
      @isabelgracep  11 месяцев назад +1

      Wow that is an incredible study and I feel extra blessed to have so many prayers coming my way♥️

  • @aylavolpe3766
    @aylavolpe3766 11 месяцев назад +4

    Trust your intuition. You probably have a window of time if your intuition changes. I always listen to my gut instinct and it is subject to stay the same or change at any given moment. You have the power. Stay strong!

  • @teresaford4584
    @teresaford4584 11 месяцев назад +7

    You are an inspiring young lady. I support your decision not to "follow the party line". Modern medicine can do amazing things but they don't know everything. Big hug from a 71 year old widow.

    • @isabelgracep
      @isabelgracep  11 месяцев назад +1

      Thank you:) yes, we need a balance!

  • @TheCrankshaftRotator
    @TheCrankshaftRotator 8 месяцев назад +1

    Respect for not doing Chemo! My mother and a old woman I know did the same thing.

  • @amywilliams6696
    @amywilliams6696 11 месяцев назад +1

    It's crazy you look like a younger version on me ,and after seeing my mom and cousin go through Chemo i said to myself i would never put myself through that let me live whatever time i have not feeling so much more sicker but i haven't been delt with that yet ,good luck little princess enjoy your life

  • @ukingly
    @ukingly 11 месяцев назад +3

    Hi, I dont follow any religion but i will send out good thoughts to universe for you.
    You are so brave dealing with this in your own way.
    Although you have refused Chemo I do hope they will still keep a good eye on you, especially as they have said it is an aggressive cancer. Good luck on your Journey. X

    • @isabelgracep
      @isabelgracep  11 месяцев назад +2

      I hope they keep supporting me too! I will continue to monitor myself so still relying on the doctors in some way. Thank you for your thoughts🫶

  • @brooks6348
    @brooks6348 11 месяцев назад +1

    You have the most beautiful hair I’ve ever seen! Feel better!

  • @debrapay8924
    @debrapay8924 11 месяцев назад

    I am sending love and prayers to you ❤ . A lovely caring friend, said something like, "When you make a decision that feels right for you, it is absolutely the right decision." I agree, particularly because you have "Spirtuality" in your Life". God will Bless You Always.
    Deb x

  • @kathyhelmold7358
    @kathyhelmold7358 11 месяцев назад

    🙏🏼🙏🏼♥️♥️You are a very strong young lady. Praying for strength and healing for you

  • @LindaLTPs
    @LindaLTPs 11 месяцев назад +2

    Continuing to keep you and your family in my prayers. You definitely need to do what is best for you, even if it’s not the norm.
    Definitely deep dive into what you eat and other holistic approaches. Those choices can make all the difference.
    Sending lots of love 💕

  • @jennyvdwesthuizen2478
    @jennyvdwesthuizen2478 11 месяцев назад

    I respect your decision ❤ sending you lots of prayers and positive vibes ❤

  • @Crazy-Crafty-Catie
    @Crazy-Crafty-Catie 9 месяцев назад +1

    I respect your decision to not do chemo but even though your cancer has not metastasized there can be microscopic cancer cells that have broken off from this sarcoma. I wish you well. Prayers.

  • @aliana0_
    @aliana0_ 11 месяцев назад +1

    Miss you lots!! I hope that everything is going well ❤

  • @franistone8252
    @franistone8252 11 месяцев назад

    You are one exceptional and inspiring young woman.

  • @Faith37471
    @Faith37471 11 месяцев назад

    Prayers to you in your journey.🙏🏼🙏🏼❤❤

  • @lisalisa97411
    @lisalisa97411 11 месяцев назад

    Good for you making your own decisions and doing your own research. So many holistic things you can do to keep cancer cells in check. You are a smart girl, take care and have a Happy New Year!

  • @BlazingSadles
    @BlazingSadles 11 месяцев назад +1

    I most definately believe you should visit a cancer center and see what other options there may be for you as far as treatment. Also eat as clean and sugar free as you can. God bless you seetheart!❤❤

    • @isabelgracep
      @isabelgracep  11 месяцев назад +1

      I go to the cancer center every week:) cut out most sugar and eating Whole Foods! Excited for this healthy lifestyle

  • @DrGregoryHouseMD
    @DrGregoryHouseMD 11 месяцев назад +7

    I’m Doctor Gregory House,
    Today, we’re going to discuss your claim that living your best life is by rejecting a potentially toxic, but life-saving treatment which might even give you a chance at a longer, better life. Don’t want mommy and daddy feeling guilty of neglect when consequences happen down the road.
    Doing whatever your doctor says is better safe then sorry. Doing chemo vs no chemo has a significant difference. When we don't follow a doctor's highly recommended option, we settle for a stupid one. The problem I see here is that the world doesn’t work that way just because you want it to. Rare cancer or not, you formulate your decisions based on the answer you want to hear.
    There is something you can do about it if the cancer cells have spread. Take the treatment, get the bad stuff out of you. Hair always grows back, sometimes even better then before. Think rationally… I don’t want to be the person who says: “I told you so."

    • @isabelgracep
      @isabelgracep  11 месяцев назад +1

      Thank you for your comment but my oncologist and surgeon have done an amazing job of removing my cancerous tumor:) I’m living my life sarcoma-free! All cancers are different so I suggest researching a little more “dr. House” ☺️

    • @DrGregoryHouseMD
      @DrGregoryHouseMD 11 месяцев назад +1

      @@isabelgracep Wow! Didn't know that soft tissue sarcoma can still have lingering cancer cells even if removed in surgery. Have you been declared "cancer free" already? That's pretty fast... When those naughty lingering cancer cells move around to new locations, we'll have to reach a new level of being anxious, but we probably won't find out until 2 - 5 years have passed. Mistakes are as serious as the results they cause. I have to act like a decent human being, and you know what a strain that puts on me.

    • @lisalisa97411
      @lisalisa97411 10 месяцев назад

      @@DrGregoryHouseMD Wow! You are one sick person. What a joke, Dr. House. Disgusting!

    • @Vikingowa1983
      @Vikingowa1983 10 месяцев назад

      @@isabelgracep ... wow, if you believe that removing tumor is enough to beat the cancer you are very wrong. Micro cancerous cells that are not visible on any scan, could spread into your body. Chemo is needed to kill those cells, to prevent cancer from spreading. I wish you the best but your decision is really immature... I'm happy to live in Ireland where Chemo and Radio is a normal thing to do after surgery for every patient with cancer. Thanks to that I might be already cancer free and feel great with the knowledge that I've done everything what was possible to kill the beast.

  • @chavlicek92
    @chavlicek92 11 месяцев назад +1

    I also have sarcoma. What type did yours turn out to be?

  • @tahirihmoffett6930
    @tahirihmoffett6930 11 месяцев назад

    Love & respect to you, Isabel 💜🙏🏽

  • @nopenever3
    @nopenever3 10 месяцев назад

    Personally, I have always thought I would probably not do chemo but I am older and have many health problems... not cancer. My time is my time. That being said you are very young. I don't have the fight left that you do. I respect your decision, either way. I do think you should consider a second opinion from a different team of doctors. Prayers 🙏❤️

  • @AzadehPerry-z7d
    @AzadehPerry-z7d 11 месяцев назад

    Sending you love and prayers ❤❤

  • @petermyers7928
    @petermyers7928 11 месяцев назад +1

    Prayers 🙏 🙏 🙏

  • @kazzicup
    @kazzicup 11 месяцев назад +1

    First time visiting your channel. In which state do you live?
    I am praying for you. Happy holiday season! 😾😾🧡

  • @cindyl4716
    @cindyl4716 11 месяцев назад

    Smart..And you also know best it's your body.

  • @hmgrraarrpffrzz9763
    @hmgrraarrpffrzz9763 10 месяцев назад

    Personally I'd go with what the experts (oncologists) say in that regard, because they're the experts and know best. Then again, we all live only once and therefor should of course decide on our own what happens with our bodies, and that means if we don't like a procedure or therapy or drug then we can just refuse to do it. I hope that you're right and things go well

  • @davidlaroche4537
    @davidlaroche4537 11 месяцев назад +8

    It’s ok to be angry. Know the feeling. Regarding the chemo, Please reconsider your decision not to do chemo. Chemo is tough, but I think you can get through it. You are tough, strong woman. I know…it’s your choice, but…

    • @BlazingSadles
      @BlazingSadles 11 месяцев назад +7

      I agree the doctors know what they are talking about. And they did use the word "aggressive".

  • @B.L.Creations
    @B.L.Creations 11 месяцев назад

    I decided not too have chemo as well . I was diagnosed with four different cancers about two months ago .

    • @isabelgracep
      @isabelgracep  11 месяцев назад

      Sending positive thoughts to you, thank you for sharing💕

  • @Dmcsw-xg9cq
    @Dmcsw-xg9cq 11 месяцев назад +10

    Please reconsider chemotherapy. This is not a scenario where you can decide later if it returns. You will be in a much more precarious position. It’s concerning that your MD’s categorize your cancer as aggressive. Declining recommended post surgical treatment is extremely risky. At the very least, obtain second opinion at an NCI cancer center. Wish you the best!

    • @isabelgracep
      @isabelgracep  10 месяцев назад +1

      Im making a video to clarify but I don’t have metastatic cancer! The entire tumor was removed and chemo was a precaution. I’m not dying of cancer if I don’t do chemo, the doctors offered it as possible next steps

    • @watchthisheadspace
      @watchthisheadspace 9 месяцев назад

      They offer chemo I believe because they can't be certain not a single cancer cell entered your system and isn't working it's way to another part of your body and could grow there. There's no way of knowing that and the chemo is to help fight the risk of that happening

    • @Crazy-Crafty-Catie
      @Crazy-Crafty-Catie 9 месяцев назад

      @@isabelgracep
      It’s imperative to eradicate any microscopic cancer cells left behind that are not seen that can spread somewhere else. You need to be proactive.

  • @exploringwithdonald8444
    @exploringwithdonald8444 6 месяцев назад

    You got a new subscriber

  • @wandadavis2468
    @wandadavis2468 11 месяцев назад

    Prayers

  • @nikkis7375
    @nikkis7375 11 месяцев назад

    Sending lots of love ❤

  • @brooks6348
    @brooks6348 11 месяцев назад +4

    I know you don’t want chemo, but ask about immunotherapy. You may be eligible for that, and it doesn’t make you feel bad or lose your hair. Maybe you should visit a major cancer center for another opinion! Best wishes for a long healthy life!

    • @isabelgracep
      @isabelgracep  11 месяцев назад +1

      I asked about it and they was advised by my oncologist not to pursue immunotherapy for my particular case but I have heard it’s great for some!

  • @beverleycumming1876
    @beverleycumming1876 10 месяцев назад

    Your health, your choice…

  • @shadowboy2332
    @shadowboy2332 11 месяцев назад

    Any update

    • @isabelgracep
      @isabelgracep  11 месяцев назад +1

      New vid posted and another one on its way😉 (spoiler alert: things are going really well!)

  • @josemoreda3649
    @josemoreda3649 11 месяцев назад +5

    Please don't give up. A sarcoma is really dangerous. If you don't do chemo your died. Please don't give up. I'm from spain and my daughter had beat a ewing sarcoma and believe me only the chemo and Proton terapy in stage1 works. Please talk to the doctors. Don't give up

    • @isabelgracep
      @isabelgracep  11 месяцев назад +3

      This is the last thing from giving up! I am so excited to live a full life and make my health my #1 priority. Every sarcoma is different. If I had a Ewing I would be getting chemo. Mine is very new in the cancer world and we have much to learn about them. Im so glad your daughter is getting the care she needs! Prayers for her healing

    • @aylavolpe3766
      @aylavolpe3766 11 месяцев назад +1

      I'm curious what this new cancer is called? @@isabelgracep

  • @Niki-qr1nd
    @Niki-qr1nd 11 месяцев назад +3

    You may not have a life, if you don’t try to stop this cancer
    This is very scary I am very scared for you cancer is horrible and hard to stop please think about chemo usually people that decide not to have chemo are sorry after the cancer keeps moving you don’t want to lose your leg or your life, sorry your going through this it is very serious I will pray for you🙏🏻🙏🏻🙏🏻

    • @isabelgracep
      @isabelgracep  11 месяцев назад

      thank you for the prayers:)

  • @deedeew4040
    @deedeew4040 11 месяцев назад

    I am no expert in cancer. I honestly feel everyone has to go with their gut feeling and if I was in your situation I would opt out of chemo. Sending you healing prayers. You are going to be okay.

  • @ZeusApostle
    @ZeusApostle 11 месяцев назад

    Can you qualify for disability and a mobility parking permit? That would be a double win! Merry Christmas x

    • @isabelgracep
      @isabelgracep  11 месяцев назад +1

      I think so at least for the parking pass- I am hyped about that!!

  • @wadehamlin
    @wadehamlin 11 месяцев назад

    are you still on crutches?

    • @isabelgracep
      @isabelgracep  11 месяцев назад

      yes, slowly transferring to weight-bearing but I'll start PT soon!

    • @wadehamlin
      @wadehamlin 11 месяцев назад

      I'm praying for you,

  • @ZeusApostle
    @ZeusApostle 11 месяцев назад +2

    They always do precautionary chemo to protect their butts on paper. Makes me wonder how necessary it is as chemo is so toxic to the organs.

  • @brianbabbot3217
    @brianbabbot3217 11 месяцев назад +1

    If you're not already a born again Christian, you need to repent of your sins (be sorry for them and ask God for forgiveness), then you need to forgive everyone else for their sins against you. Believe that Jesus is the Son of God who died for our sins and rose again from the grave. Ask Jesus to forgive you and cleanse you of your sins and come into your heart and give you His Holy Spirit. Then spend time reading the Bible to get to know Jesus, praying continually. I'd also suggest fasting, which can help people get close to God and even possibly healed (but obviously no guarantee). Those who make it to haven have an AWESOME life with the Lord and the best of this life is nothing in comparison. Sometimes, what seems like the worst thing that could have happened to us is actually the best thing that could have happened (from an eternal perspective). God bless! and I'll be praying for you!

    • @DrGregoryHouseMD
      @DrGregoryHouseMD 11 месяцев назад

      You talk to God, you're religious. God talks to you, you're psychotic. Religion is not the opiate of the masses; it's the placebo of the masses. Rational arguments don't work on religious people like you, otherwise there would be no religious people.

    • @janem5900
      @janem5900 11 месяцев назад

      Your promotion of a blackmailing mythology is pretty poor choice in this or any situation. Gods only exist in the minds of the indoctrinated. There is zero evidence for any supernatural claims.

    • @wendycayless
      @wendycayless 10 месяцев назад

      What a toxic, abusive comment.

    • @hmgrraarrpffrzz9763
      @hmgrraarrpffrzz9763 10 месяцев назад

      If your God exists, then your God create on purpose a universe with cancer. At which point I'd wonder why one should worship your God to begin with (if it would exist that is).