Tourette’s Syndrome - From A Parents Perspective
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- Опубликовано: 5 фев 2025
- hey!! thank you to everyone who sent in questions, if yours didn’t make it to this video it was probably because they were all quite similar!💗🎗
thanks to my mum for doing this with me!!💕
little update: i have started medication for my tourettes for the first time ever, it’s a bit nerve wracking because i’m on other meds and we were worried about them clashing. i’ve only been on the new ones for 2 days so far and they’re making me feel drowsy and they’ve lowered my blood pressure even more so i get very dizzy when i stand up but hopefully my body will adjust!! just keeping you all in the loop!🎗💜
hope you enjoyed this video and maybe learnt something new,💘
thank you for watching🥰🥰
Regardless of subject, it's refreshing in this crazy world to see such a lovely family ... So beautifully down to earth.
My thoughts exactly!
@@aprilisme1186... We should start a family lol
exactly what I was thinking!!!
@@kaylakoonz6838... Not wanting to risk sounding like a bounder or anything but ... Johnnie and Kayla ... That could work too lol
I love the natural birdie sounds.
"It was just putting a name to it"
"Beans"
Tourette's has now been rebranded
It’s comments like this that make my day
Evie clearly got her cuteness from her mom. You're both so pretty.
Literally beautiful.
my tics make me hit my mum alot and i always feel really bad, but shes so sweet about it
There is no more loyal love than a Mom and her child.
@@choppermike3329 lol so not true. Only a few kids get the sweet non toxic loving ones.
@@erlenederenecourt1360 Sorry you feel that way but of all the families I've known in my life, only a very small percentage involved a "toxic" mother. In general, Mothers love their children.
@@choppermike3329 maybe that depends what people you know, I have a very toxic mom and I can easily spot that kind of person. They often seem normal, even kind as a first impression, but then you sense this tension from the child, cause it knows it's fake :) I also know many loving families but I wouldn't call them ,,general''
@@Minji_Poland I never said that families were "general". I'm saying generally a Mother loves her children. I never said every single Mother loves their children or child unconditionally. That's why I used the term "generally".
WE CRUMBLED
No, we didn't.
LOL
Ikr
When was that?
@@ItsCrazyandready 0:50
Why did someone dislike this video? How can they dislike this heartwarming video.
The only way I can think is coz they are bitter coz there question didn't get answered or they clicked by accident and didn't notice.
Or if they accidentally clicked dislike, I've done it before
People dislike because they want to be different. They want to be part of those 3 dislikes that people see when the click on the video. It’s just attention seeking
I don’t know I did see were someone was calling her fake on another video tho they basically said that people use this as an excuse for bad behavior... I was dumbfounded yes it’s called a medical practice meaning we’re always learning new things but the call someone with a neurological problem a faker is beyond stupid
There are people who think she’s faking it 🙄 so I’m sure there’s plenty of stupid reasons people can dislike
Do be so sad about not being a teacher in a school. You ARE still teaching people, just in a different way. The amount of awareness you bring to Tourette's and the knowledge people gain from your videos is HUGE! You ARE still teaching AND you are allowing others with Tourette's find a safe space to just be themselves.
This is the sweetest and most understanding mother ever.
In your own way you are the opitomy of girl power!
I love to see mother and daughter in this harmony, in my opinion you are an example to follow❤
She is such a lovely girl beyond and including the turrets, I hope some day she have her own family and enjoy life to the fullest xx
@@MrRobWaugh she deserve that kind of life,because she never give up,she loves in the clearest way possible(sorry if i made some ortographic mistake but i'm italian)
You are the spitting image of her! Wow.
Their matching bangs are gorgeous!
not really. both very different but i understand why people say that.
Both of them are so beautiful 🥰🥰
As a parent of a special needs child, I should say that I really admire your parents...haven't seen much of your dad on camera but I love the relationship you all share together...I strive to have the same with my special little one.
baking video with my dad coming soon 🥰
I love you guys. My mom was diagnosed with dementia and, last week, fell and broke her hip. So the roles for me are a bit reversed. It's so hard, but you guys help inspire me that I can help, I can do this. We can figure this out. Thank you.
It'll get better. Keep your head up majesty
@Evening Commenter Dementia is awful and sorry you’re all going through this! I’m in healthcare and dementia causes you to eventually forget how to do everything, starting with the most recent life events first. They therefor don’t know their limitations anymore. Sorry to be so clinical, my Mom took a stroke that killed 95% of her right hemisphere of her brain, I know it all too well and it’s how I deal. She’s the reason I do what I do, she was my first patient. Try to stay positive but please, watch out for caregiver burnout, take your time to regroup too.
@Evening Commenter if she has dementia she would keep forgetting and trying to stand up and she would just fall as her hip is broken
I apologize to anyone currently undiagnosed with tourrets and has family who are not acknowledging it as a real diagnosis and are thinking you are not being real about it. Love you guys and hope you find that acceptance. I accept ya'll
U're so sweet, I have diagnosis and have had tics for 11 yrs nw, I'm 21 and my family still doesn't accept it it's craxzy
@@lujainalshami2073 thank you. You've got this. 💜
Turrets! I love it! Do you have the verbal pew pews?
@@lullylew9083 huh?
@@thatoneredhead3816 they mean it is spelt Tourette’s
Your mum is such a rock star.
I LOVE YOUR MOM SO MUCH SHE’S SO CHILL Y’ALL HAVE SUCH GOOD VIBES TOGETHER
I truly salute your mom for her never ending patience, caring and unconditional love for you. She deserves all the praises!
I showed one of your video’s to my mum (the fight song video) and she cried and she said that you look so wonderful and strong❤️
Ugh i wish my mom liked evie but when i showed my mum one of her videos and explained that she had tourettes my mum said that "that's not tourettes" and that "she's very rude" 😢
@@ioanna1500 owh that’s not so nice
Honestly, Evie and her mom are so sweet together. If she did not have Tourette's and I stumbled upon her channel accidentally, I'd still watch.
Thank you for being so open about mental health. I have severe depression, social anxiety, and generalized anxiety that makes my future seem very bleak. But when I see what you're dealing with and how you're still succeeding in life, it gives me hope. It's also comforting to see you normalize living with your family as a mentally ill adult, it honestly makes me feel like a loser sometimes knowing I may never be able to move out even though I'm only 19. Anyway, thanks for all you do. Much love.
Wow are you literally me? Lol
You are such a strong, charismatic and inspiring person Evie! I’m so happy for you with the amazing news of your book release!! I can’t get enough of that sweet contagious laugh you have.
Ps, Your mother is admirable.
Big Love ❤️
Found this angel's channel last night and haven't been able to stop watching since...I feel the same way as your comment...and her mother is amazing!
What's the book called?
Your mum is the true definition of what a mother should be...loving, caring and supporting!! Such a lovely video xx
God, your mum is just the loveliest.
Also, Beans! is the cutest tic ever.
Your mom is such a beautiful human! She's raising one as well. It makes me feel calm to watch you guys together :)
I have seizures a lot, for 12 years now (we're about the same age). I never really looked into this before. Youre very inspiring! I tend to meow, over and over and over again. Or make movements that I can't control. To be honest I've always thought it was just my seizures and the medication side effects (perhaps it is) but I'm going to bring this up to my neurologist. Thank your mom for me for sharing her insight, i'm greatful that I have my mom by my side too. I can't live alone. Youre amazing, xoxo
Your mum is such an amazing person, she puts you before herself in every way and you can tell that example has made you such an amazing person, this is what parenting should look like diagnosis or not, you are both such great people, joy can conquer so much
so my mum doesn’t really support it in a way. 🥲 she didn’t believe it for a while, and when she did she asked me to control it around her and suppressing is hard. But seeing you guys work in harmony makes me so happy! makes me look forward to when my mum does want to understand. i wish i knew how to explain it to her but patience is virtue. thank you so much for the video!! So cute! as always 💕🌙
Sometimes I meow when usually when things are awkward
Same
I would not mind having Evie as a roommate, just saying. ❤
I would say beans back to her
@@brittanypanda9348 and she would be mad at you,since she doesn't like when someone comment her tics
@@marcosv295 but thats not? Its the same thing her mom does? Plays it off as a joke?
@@marcosv295 if we are with a group of people and she shouts beans and i shout beans it wont be as weird for people who dont know her.
@@brittanypanda9348 she thinks:"laugh with us,not at us" so if you repeat beans at her tic you will stimulate her tic to repeat beans,her mom answer her tics,not repeat(sorry for my english but i'm italian and i'm not using google translate)
I was diagnosed with Tourette’s somewhat recently. And your content really helps me with self acceptance, and positivity. You’re amazing.
Your mom is literally "keep calm and carry on" 😊 just the embodiment of calmness
Your mom is an angel! ❤️
I love more than anything else that Evie looks so much like her mum! And how her mum aged with so much grace. This is such a beautiful family, struggles, giggles and all.
You’re mum is so pretty🥺
Kind of weird complement but you guys have great genes, you look almost like sisters and you’re both very pretty ☺️
(This is a great vid idea, I’ve never heard from a parent’s perspective)
Totally agree they are both stunning
Your mum is so lovely, funny and level-headed, I can understand why you are just as lovely too. I really hope you can find the treatment you're looking for.
I stumbled on your videos quite a while ago and have been following from "afar" periodically checking in to watch and I just have to say that your candor and reality that you expose is simply amazing. It makes me wonder how in the hell anyone ever thought people with conditions like this were ever worthy of stigmatization!
Though exhausting and OBVIOUSLY awful to experience from both your perspective and your mums, I can't see how I could ever think someone with tourette's as anything but worth of love and also respect for their strength.
Your relationship with your parents is so cute!!❤️
Can we just take a moment to appreciate how pretty both Evie and her mum are? ❤️
Your relationship is so sweet! I love how she just held your head up when you had the paralysis tic. She just reached out to support the weight and continued talking.
I have Tourettes but people don’t believe me and I’ve lost friends because of it. You are my only understanding friend and I support you. The only thing is that you don’t know me, you’re still my only understanding friend tho.
Is there a support group in your area? Have you tried an online support group? I'm going to sound like my father and say if they left your side over anything that was beyond your control, they weren't your true friends. I hope you find peace in your life. Never give up yourself. 😊
i understand this too. my parents don’t believe me and they punish me for ticcing and some old friends have left me. i can say you will find people who support you. my gsa teacher has helped me tell other teachers so i can tic freely in school now. it will get better. i promise
Your mum and dad are extaordinary people. I admire your mum so much and love the sense of humour you share!
0:01 I couldn’t I just lost it and laughed super hard thanks for making my day!!!❤️❤️❤️
I gotta tell you I just stumbled upon this and it is amazing how the two of you are so kind to one another and enjoy each other’s space it’s nice to see family care so much about each other
I declare an Official Fantastic Mother Award, to you, Evie's Mum. You are truly a wonderful woman! ♥️🌻🌹🌻🌹🌻🌹🌻🌹😀
That hug halfways through the video. Bless your family, and I hope you all make more videos smell the flowers and enjoy life to the fullest.
Awww the way she calls you pet is so sweet 🥰
God Bless your family, y’all are awesome. You’ve helped to Change my own thoughts. My daughter is 24 with Autism, IDD, Epilepsy, OCD Sensory disorder.
Yesterday my daughter had her first Grand Mal. It scared me so bad. It was after that I googled to see what other peoples grand mals were. I found you. You and your family are an inspiration. Thank you for getting me back on track on my daughter’s disability. We are not alone. ❤️
Evie you are so cute, and you have the most patient mother, love y’all both! 💗💗
Best mother-daughter team ever! Next time you should have a chat with dad too. 🦋🌺
Your illness must be utterly exhausting for you and your family, the fact you cope with such style, panache and perseverence is a credit to you all, love and respect always....
Your mum's a true champ! Having said that , you take after your mum I think....
If anything, the absolute trust and unconditional love between the two of you shines through this entire video. Do keep on seeing the funny side of things please, you two seem to be REALLY good at it..
I'm gonna show this to my parents who accuse me of faking. I'm currently undiagnosed
I wish you good luck
@@BorkBorkBorkBorkBorkBorkBork I just got a letter for a phone appointment. I can't wait
@@thebrokensystem4915 even though I got diagnosed my mom still thinks I'm faking it and that I can stop at any time.
Hopefully if you get your diagnoses your family will be more understanding
@@underfreak1046 I feel sorry for you because of that.😥 Stay safe!🎀
@@thebrokensystem4915 YES! Congratulations ❤️
Your Mom is such a lovely person, what a blessing she is for you!
Your mum is just the loveliest person ever!
You still get to be a teacher, just not in the way you thought. You are teaching all of us about something we might have never experienced. You are teaching kindness and strength and love and those lessons are far more valuable than anything we ever learned in school. Your determination and perseverance is absolutely astounding and you deserve every ounce of respect everyone has to offer. The family dynamic you show is superb. I am close to my parents like this but a lot of people aren't. Trust me Evie, you are an absolutely beautiful person and it's clear you got that from your equally amazing parents.
You two have one of the most beautiful relationships I've ever seen. 2:01 I'm really proud of Evie for holding back that punch. BEANS!
Only recently found your channel, and it is brilliant. Being so open and helping people understand the condition is an amazing thing really. I think so many people shy away from tourettes, mental health issues and related problems, this helps opens their eyes to how it is in the real world. I love the fun you bring to it all :-) x
When she moves I laugh especially when she says "beans" I can't stop laughing it's so cute,you're so strong! Keep fighting!
love you!
I can't belive someone dislike this, How would they do that to a heartwarming video!?
Was wondering how you were, its great to see the mother daughter relationship you have. So sweet and loving. Like peas in a pod you two.
Oh your mum is just a sweetheart !!!! Beautiful face and spirit. I’m so glad you have a beautiful family to support you
I loved this! You and your mum are just like two peas in a pod. Very inspirational ❤️❤️
Two beans in a pod. Lol
I think you guys have an amazing relationship. You can see how much you love your daughter and not because of her illness. You really do enjoy spending time with her.
I’m sorry that she has this bad disease but you guys have opened my eyes to it and I’d love to help in anyway possible. ♥️♥️
I showed your videos to my parents and they said your so inspirational to all your fans🥺🥰
Evie you are a teacher in a sense! You are teaching us how we can’t stereotype people with disabilities and you are bringing light to how tourette’s doesn’t have to be a turmoil when you have love and support
Awww you literally have the cutest relationship 😊
So glad to hear that you realize that you’ll be safer under their care. You’re just a young’un, maybe once the hormones are done and the new medication levels out, you’ll surprise yourself with how independent you cam become. Yup, dinner time must get messy, I saw the pancake dozen eggs episode, lol. We got to meet your Dad that time too! You have an amazing family and it warms my heart to see your support system. Now go rock the world Evie, life would be too boring without you.❤️
I can understand how your mum feels about seizures, my last epileptic seizure I stopped breathing, which was very scary for her
I recently discovered you on tiktok and have watched both yours and your Moms repeatedly lol I just did discover this RUclips channel so I am now watching all of the content here. I just have to say I love this one so far. The bond between you and your Mother is refreshing. You can see and feel the love. You are so lucky. I lost my Mom 5 years ago and I miss her so much. Congratulations on your book! You are a beautiful soul and you deserve greatness!! I suffer from anxiety, depression and BPD so stories like yours give hope that it can and will get better if you continue to fight and be true. Thank you Evie!
Mom was great. Not boring at all. This is something I have no idea about, and your channel has been enlightening.
This is so heartwarming. Your connection is amazing and you guys are so sweet.
heyy, thank you so much for making content
you inspired me to start working on my art again and also because of you I was able to go get a tourettes diegnosis
Such an amazing insight you give into Tourette's syndrome, you show its not always about the swearing but, about living with the issue and how it affects you. Great insight, please keep making these videos so, we all can become more aware of what it actually is and how a family deals with it. Absolutely amazing.
Your mom is my hero. I have 3 boys, 2 of whom were diagnosed ADHD and one with very high functioning autism. If only I had her grace and calm...
I am so happy you have a mother and father and family like u do. And the Witttttttttttty is strong with your mamma. She is so quick. I just adore watching and listening. When your mom said "thanks for that contribution" I lost it. She is a strong witty mom and I'm glad you have each other. I get a literal warm belly watching..... like I've just ate Thanksgiving dinner and I'm visiting with family. 🧡🧡🧡🧡🧡 btw. I sing also and I love how you guys connect with music.... maybe I'm wrong but I get the feeling music helps you BOTH.
1:13 Just got me giggling but you and your mum are so adorable such a great family bond between you.
Much love ♥️ you wanted to be a teacher, and you are one on a grander scale than you could have imagined, just differently than you may have hoped. But either way, you are loved and appreciated!
What an outstanding mom! You both are lovely.
Your mum surely is very understanding and lovely ♥ Watching her talking about how fretting doesn't help you during a tic attack or a seizure makes me remember my mum's freak-outs during my panic attacks. Soooo yeah, I can definitely agree with your mum, it really doesn't help
She is sooooo beautiful ❤️❤️
Thank you for being part of my life! I binged all the YT videos haha.. You and your mom are an amazing super team; The love for each other is indescribable. For some reason watching and listening to you makes me relax, and your voice sounds beautiful. You have some a inner peace that comes out somehow. I can't really describe it. As somebody with a (light) spastic disability, I completely understand the concept of the lack of control of the body. Thank you for being you!! love,love,love... a big hug from the Netherlands! Stay safe!! PS. Every time I see beans, I smile and think of you. (It's weird I know haha! I have a parrot that gets a bean-sprouts mix one in a while).
I am glad that your family is supportive because ive had many friends where family wasent supportive. I have adhd but i have adhd tics . But i trying to control it. But i am glad that your family know how to handle it
Your mum is so nice. You two have such a great conection❤❤❤. I LOVE YOU😘😘😘😘
Send a lot of love!
You're mom is gorgeous
Greetings from Poland!
I honestly love how you can do your eyeliner, even with Tourette's, and all the constant movements. You're very pretty either way. Keep it up Evie!
When people with tourettes focus on something their tics calm down :)
Your Mom is beautiful and very British (meant to be a compliment). Y’all have a wonderful day. 🇺🇸🇬🇧
Honestly these videos really help me keep positive on days when my tourettes is acting up badly. These vids remind me that there is so many posiyive ways to look at tourettes
I'm 25 and my 3 year old has epilepsy and autism. He's also mainly non verbal. Sometimes it gets really hard for me but I don't ever show how lost I feel and actually guilty even though ik I couldn't have done anything to change it. He's had 17 seizures in such a pinical time in his brain development but as of now he's 10 months without a seizure and I am so grateful for it. I'm still worried about it but I can't help but be happy and just focus on his SIB behavior and his autism and understanding his ticks. He has sensory displacement as well. Which is an entire other world
Have you taught him baby sign language? My mom did the same for me because I was also non-verbal. It worked well. Of course, every autisic child is different. But it can make a huge difference!
He's learned a bit of sign language. Basic "more, eat, all done, milk, play"
@@xjjeal1424 that's good! I'm very proud of him! I hope you can teach him more! There are books for it as well! 😊
Your mum is a real HERO. You obviously love her to bits.
NOOOO IM IN SCHOOL!! I CANT WATCH 😭💕 I'll watch later!!!
Something about this is really beautiful.. Love to see you have healthy support, both ways. Also about wanting to teach, I felt through RUclips you're teaching people about your conditions that they might share or get help from.
I know it's been said about a thousand times, but you have a great mom 💕
You have the most loving, beautiful, supportive mother. Yalls relationship is something that I want to have with my child whenever that day comes. Much love from Texas!
Omg her mom is so pretty, her skin is glowing. I want that face.
I don't know why that was the best thing I've watch in a long time. You guys are awesome. Beautiful family. 🥰
8:10 awwww that situation :´D I´m glad you have a good family which loves you so helpfull ♥
Your mum is amazing, I have FND & Tourette’s as well. I am very lucky that my husband & mum have been amazingly supportive. I will show my mum this video! 💖
Omg I love you so much omg omg your laugh is so cute 🥰🥰🥰
your mum seems so sweet🥺 whenever I see videos of her she reminds me of my friend’s mum, my friend had seizures too and her mum was always just so calm and unfazed (her stepdad too, he was a full time carer for her - they’re both lovely)
"Willy." "Thank you for your contribution." xD
I don't have the rite word to say how much respect and admiration I have for you and your whole family. The things that all of you must have to deal with concerning your condition must be extremely hard. Eve you are such a warm and wonderful young women. What you are doing to help bring awareness to Tourette's syndrome by putting yourself out to the public is just great. It has given me a whole new perspective and awareness to this issue. Thank you Eve for all your work. All the best and much Love to you and your family. Your video's and posts are great and you are a very talented artist and I look forward to purchasing some of your work. Please keep your shinning light and spirit. BIG FAN.
Hey love, I just recently got diagnosed with TS and I was wondering if you could recommend some good fidget toys for our condition.💙💙💙