Losing a Loved One to Early Onset Alzheimer's I NOVA I PBS
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- Опубликовано: 1 сен 2020
- Heidi Fillo was 59 years old when she lost her battle with Alzheimer’s. After it ravaged her brain and body, she left her husband and kids behind.
PRODUCTION CREDITS:
Produced by: AJ Fillo, Emily Zendt, and Ari Daniel
Production Assistance: Grace Berg, Christina Monnen, and Madeline Weir
Archival:
Jason D. Fillo
Peter G. Fillo
Kate Ferrand
National Institute on Aging/National Institutes of Health
Shutterstock
Videoblocks
Music: Kevin Macleod (incompetech.com) / CC BY 3.0
© WGBH Educational Foundation 2020 
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Having witnessed this first hand, It takes everything away. It even robs you of grief and mourning, because at the end all there is is relief that it's all over.
My dad has very early Alzheimer’s but he is very normal so far, he is only a little forgetful about misplacing things or responds the wrong answer to a question he is 55, I had no idea until I overheard my parents talking, I haven’t told them I heard and I can’t help but cry myself to sleep, somebody please help me, I am 21, I hope it doesn’t get worse, I don’t know what to do
@@datway3582 it will get worse , much worse , stay strong . ❤️
@@datway3582 I hope you're doing ok. This disease is very unfair. I hope they find a cure soon💓
This is so true, my mom has it but she is much older. I could not imagine watching someone young go through this and how hard it is for them and their loved ones. Such a sad story.
Went thru this with my mom. She looked at me one day and said “I don’t know who u r but u make me laugh.” She never remembered me from then on. My heart broke that day.
I am a frontotemporal dementia patient. I'm 61. Decline is somewhat rapid. One gift from this condition: I am losing over-attachment to my mind/brain, and I wish it for humanity at large, particularly in the developed world.
I am free with the freedom of Spirit.
I fear that I have it. I’m watching this as I’m having difficulty with simple math that I knew before, I often mess up writing things (usually always an error), I totally forgot a name that I speak of daily. That’s a snippet. Does it sound familiar? I’m so scared to go my doctor, I’m waiting until I’m back from this family vacation. I can’t get bad news so far away from home.
This is helping cope with father’s long goodbye. My heart is shattered into a million pieces, and I don’t even know anymore. Ty.
My husband was diagnosed last March, 2022. He is 79. He is very forgetful with short term memory and some days long term also. It’s devastating to watch and not be able to help.❤️🙏
My husband was diagnosed last year at 43. For now he is doing well. The tremors are constant but manageable.
Just so sad. I wish they could find a cure for this horrible devastating disease . It's so heartbreaking to see such a beautiful active, intelligent woman with such a loving family go through such pain and loss.
Her passing, ...was a release....and a release to those that loved her...and rememberd the whole person she was. What never will fade, or die...is those memories she created with loved ones, and friends. This wretched disease, can NOT touch, or alter THAT memory. May Heidi rest in the memory-of-arms, that loved her so...and she loved back, so.....
Crying while watching this. I’m losing my aunt to early onset Alzheimer’s after she fought a trauma filled life from first her husband and then her kids. I wish I could rewind time and advocate for her care. Due to hipaa we cannot find out about details regarding her care. But after watching this it is pretty clear that she has already advanced as she cannot remember short term or long term memories, can’t remember our names, doesn’t use the bathroom properly, and sometimes doesn’t eat by herself. I am going to try to reach out to her social worker and maybe find part time work just has a nursing assistant within the Hospital she is currently residing at to at least make these last few years comfortable for her. Devastated to watch this
Sorry for your loss. My dad had early onset Alzheimer's as well. It isn't fair for someone to be taken so young.
How is your cognitive health?
Horrible disease, may they find a cure or effective treatment soon.
Thanks for sharing, AJ. I can't imagine how difficult going through that would be.
I wish someday you'll join us, and the world will be as one.
Really good video Jules. So simple and clear and wise. How I wish I would have had it when I worked on a dementia unit to offer to family members when they struggled to interact with their loved one. I watched the one about using music and it was also excellent.
💔, at first.. but just to see that Heidi was /is forever a beautiful one, is forever the memory :’)
At 47 I feel a cognitive decline. My Grandmother and Great-Grandfather both had Alzheimers. I've made a doctors appointment but am afraid to find out at the same time. I watched my Grandmother cry each time we left the nursing home because her Father no longer knew who she was.
Don’t wait. At least you can advocate for yourself if you catch it early
I've been taking care of my mom for 6 years now.
Hope you are doing alright. Being a caregiver is so hard. I looked after my dad for 2.5 years. The hardest part was knowing that each morning a little bit more of the memory would be gone. Be strong you got this.
@@Letscurealzheimers Thank you very much.
@@Letscurealzheimers My dad has very early Alzheimer’s but he is very normal so far, he is only a little forgetful about misplacing things or responds the wrong answer to a question he is 55, I had no idea until I overheard my parents talking, I haven’t told them I heard and I can’t help but cry myself to sleep, somebody please help me, I am 21, I hope it doesn’t get worse, I don’t know what to do
@@datway3582 sorry to hear. Early stages of Alzheimers is 30% of the time misdiagnosed. Poor nutrition, depression are the leading misdiagnosis. A good person to follow is Dr. Dale Bredesen. He has had success in turning poor cognitive patients healthy. Proper testing from doctors is essential. Your dad will need to have brain imaging tests, cognitive tests and blood tests to help with getting a proper diagnosis. Unfortunately getting a positive diagnosis is difficult. Be strong. Alzheimers has no cure as of yet. The meds help to slow the decline. Aricept help my dad but he had the side effects of low blood pressure and was prone to fainting. I took him off the drug and his decline accelerated.
I lost my dad to this horrible disease. It was very hard to watch
I lost my stepfather on Sunday to Alzheimer’s. He had it for over 10 years. I feel your pain and I’ve never met you. I’m very sorry for your loss 😔 may peace be with you 🙏
Sorry for your loss. I was a caregiver for my dad. 2.5 years of pain watching the personality and life slip away. It is such a horrible disease.
I also lost my grandma due to Alzheimer, my grandma now could not understand me, looking back I feel heartbroken, see you to look after me when my parents are doing business at other countries, did not watch me very well due to the lack of Education, but I know she tried her best, he got separated from her husband because of family issues, I hope that one day I can treat Alzheimer's, I hope one day end all the suffering, The best scenario is that hope will come true and God will give us another chance.
I’m so sorry…❤️
i lost my mom.. all of the hopes and drama of the future so evaporate, are destroyed
I still believe the cure is out there. I hope we find it sooner rather than later
Please hurry science 🧬 please 🙏