MY DIAGNOSIS STORY: TYPE 1 DIABETES
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- Опубликовано: 7 фев 2025
- #type1diabetic #mydiagnosisstory #insulindependent #dka
Hey everyone! Today’s the day!! I share my story on how I came to find out I had Type 1 Diabetes. T1D has changed my life in the most amazing ways possible!! I believe I have this disease for a reason!! Thank you all for your support!!
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BE KIND • SPREAD POSITIVITY • BE THANKFUL
God Bless,
Maddie 🦋
They should be teaching this basic stuff in high school!
Appreciate this video as I was just diagnosed with type 1.. love the positivity and upbeat spirit💕 thank you for using your platform to bring awareness to type 1 diabetes!!!
Thank you very much for such a kind and sweet compliment! Living with type 1 diabetes isn’t easy but it is certainly possible! ♥️
I'm 18 and I was just diagnosed two weeks ago. I went to the ER and I was in diabetic ketoacidosis, at 630 and I almost died. This has honestly been the worse experience of my life but knowing I'm not alone and a lot of others went through these awful symptoms and now manage this condition successfully has given me hope and comfort.
Hi Abbey! Thank you for sharing your story! I hoe you are doing well with your diabetes diagnosis. I recommend making a Beyond Type 1 account (if you haven't already). I am very active on their as well as many other diabetics (we are all one big family)! I have a link in my description box that will take you right there to sign up. :) Thanks for watching!
I’m one of those rare ones that went into DKA as a T2D! Super sucks, but my diagnosis story was very close to yours, except I am type 2. Thank the Lord we are both ok! Thanks so much for your videos!
Wow! That is extremely rare! Thank you for supporting my channel Melissa! I too am thankful you are here and doing well! :)
My sister has Type One Diabetes and she has questioned the Lord. I will have her watch this it will hopfully help her and give her peace that she has a person who is still loving God through that. God bless I will pray over you
i didn’t ever realize it until you talked about it... i remember having reacurring yeast infections too before diagnosis
Yep. It’s a very mild warning sign. Yeast or candida thrives in high sugar environments.
Same I just found out!
Chloe matteson I’m having recurring yeast infections rn 😧 I’m not a t1d but I have some symptoms but I think I’m just being paranoid
Cambi you should make sure then
Great video! Thanks for sharing your story. I agree with KD , You're definitely a warrior and a true dia-badass!
THANK YOU ROY!! YOU TOO ARE A T1D WARRIOR!! WE ARE ALL IN THIS TOGETHER!! :)
Thanks for sharing your story and being so vulnerable!
Thanks for taking so frankly about your experiences. Every time I hear about someone who has survived and got a proper diagnosis of T1D and is living a more or less normal life, it lifts my spirits!
I was seeing an endocrinologist for something else. The last thing he always does is send you to the vampires to take you blood. About 5 or so minutes after I left, he called me on smartphone. He told me to park in a safe place, call 911 and go to the ED. I found out my blood sugar was 698. This was 5 year ago. And, there are times I do the why does it have to be me thing. Then I kick myself in the butt and get going.
Stay healthy from T1D and COVID-19!! :)
Thank you Jonathan for sharing your experiences! I am doing well! Hope you are doing well too!
This video made me cry because you came that close to leaving this world.It was so tramatic but Im glad you finially got the help in time.Be thankful you are in a time in history that the tests and knowledge is out there.I grew up with many many doctors that basically knew as much or less then their patients.I am blind in my left eye as I was misdiagnosed at 5 yrs old.Im so glad you are handling it with grace and helping others to learn and cope too.May the Lord bless you always Maddie.What a story!!
Thank you Putter!! 💙💙💙💙
Maddie I went in DKA at 56 two and a half years ago. I had all the same symptoms as you and ended up in ICU for four days in coma. I am, like you, lucky to be alive. My AIC since my diagnosis has never been higher than 6.5! Rock on younger girlfriend!
Thank you for sharing your story!! Warrior on!! 💙
Wow! Thank you for sharing. It's great to see you standing up to this and this video is strong encouragment to others that have to face T1D.
Thank you so much! :)
Thanks for sharing it helps others realize they are not alone
Yoselin Vega you’re welcome! Glad you enjoyed!! :)
I hope those comments don't come across as offensive. I think both women, person and Character respectively are brilliant. I really like their phonetic precision and syntax. I just subscribed. I'm going to nursing and then Med school. Hopefully I'll post some videos soon until then I'll tune into your videos!
I’m 45 and diagnosed with type one but late onset. I had a uti which led to my diagnosis
Hi Mddie i had same experiences as you same symptoms and everything DkA AND THE drips that was BACK IN 2002
When I watched your video you reminded of me. It was more harder for me 1 week after losing my mom everything was hard to deal.
I really think your doing well and thank you for sharing your diagnoses experiences with us ☺️
Thank you! I love your instagram posts! You are an inspiration to me! :)
@@MaddieNielsen you are a inspiration to me as well 🤗👍
You are freaking awesome thank you!
Happy 6th Diaversary Maddie!
Thank you!
@@MaddieNielsen I am definitely known for remembering dates 😂
@@marinakiell1069 it means a lot to me for the well wishes! ❤️❤️
I was diagnosed 1/18/1985, just after my 17th birthday. Had my 39th diaversary in 2024. Lots of tech changes during that time. No pumps back then (they weren't covered by insurance) and CGMs didn't exist. Needles were much larger than the nice 32-gauge ones now. Only pork or beef insulin. I swear I sound like an old guy saying "back in my days....." The worst part for me was it made an appointment at the Air Force Academy an impossibility. My father was in the USAF for 22 years, and I had dreamed my whole life of going the the Academy to learn to fly jets. Then right around the time you begin to apply for it, I got it yanked out from underneath me. There are worse conditions. And yes, at least T1 is treatable. I am very highly impacted by high blood sugars. They make me feel like crap, so I tend to run lower a lot - which is certainly not ideal. I hope you are doing well 5 years later!
God bless you! I hope your kidneys are doing good now.
Thank you! Thankfully, I had no permanent damage from my diagnosis!
Glad to hear I am not alone.
I also peed my pants. I also wet the bed a handful of times. It was embarrassing.
But 2-3 hours of using the bathroom…I was going every 20-30 minutes. I was scared to leave the house bcs I knew I would need a bathroom nearby.
I also got my first yeast infection bcs of T1 Diabetes (didn’t know it was from diabetes though)
17:50 Blood from a vein is normally dark Maddie. It’s dark purple, almost nearly black. Because venous blood has released its oxygen already. When people donate blood for the first time they think something is wrong when they first see it.
I was diagnosed at age 12. Did not end up in the hospital, just had a blood test because my doctor thought I had anemia and my mom thought I had diabetes. Mom was right. But, it took 6 days to get the blood test result because the doctor didn't think it needed to be rushed, and then it was another 12 days before I started insulin. Which I started at the endocrinologist's office on an outpatient basis. But, had the classic weight loss (112 pounds to 99 pounds in the course of a week or two), constant thirst, constant urination symptoms. (I had a yeast infection too, but not until 1 or 2 months after diagnosis.....)
What a crazy diagnosis story Carol! Thank you for sharing this!
I'm t2 - the morning of my first Endo appointment my FBG was 398 - she put me on Lantus (along with the Trulicity I was already taking) and ordered labs. My a1c was 11 but the antibody test came back negative and my c-peptide was normal.
Wow. Yes usually the c-peptide is one of the determining factors for differentiating between type 1 and type 2 diabetes.
Great video 💜
Thanks 💙💙
Thanks for sharing your story. What was your diet and exercise regimen like at the time and before your symptoms began? I'm researching if overexercise could cause type 1 diabetes.
how often do you get an a1c test as a diabetic?
I get one every 4-6 months. But some people get them more frequently
I just love your stories
Thank you!
AMEN you catch in time
Thank you for sharing your story.
My son was diagnosed on his 4th Birthday with Type 1. No one in our family has diabetes. It was a shock to us all. My son is 19.
My son started getting sick about a month before diagnosis. God was trying to tell us that there was something seriously wrong. However, diabetes was the farthest thought from my husband and my mind. -- It all started with my husband and son getting sick with a virus. They were both vomiting. I took my son to the doctor for a thorough check up. He had a blood test and a urine test. Everything was fine according to the doctor. He said that the virus will pass. As weeks went by Ben started eating a lot. I thought he was just going through a growth spurt. His second to
oldest brother had Endocrine issues, so we went to the Endocrinologist every 3 months.
I would always take all my sons to the Endo. It was kind of a day out for us. Anyway, as we were walking out of my son’s endo appointment a nurse who has know us for years ran after us carrying a small black case. She said, “ wait Wait,”. You forgot your glucose kit.” I said, my what???
She looked at me like I had two heads. The nurse said, Your son’s blood glucose test kit”. I asked her what that was for and she said, diabetes. I looked at her like she was crazy. “Well no one in my family has diabetes. We don’t have to deal with that.” Little did I know that the doctors visit would be so prophetic. On the way home we stopped off at McDonalds. Ben grabbed his brothers hamburgers and ate them. Then he proceeded to drink 2 milkshakes. This is a great deal of food to fit in an almost 4 year old’s tummy. But, obviously Ben was on a growth spurt. At the time, I had a very long twelve hour work schedule. I worked from 6pm to 6am, four days a week. My oldest son and husband were trying to stop Ben from drinking too much in such a short space of time. Poor Ben would just cry. That Friday, Ben looked really sick. I called his pediatrician and he asked me if Ben was keeping hydrated. I informed him that he sure was. He was drinking a lot. His pediatrician told me not to worry. As long as he was hydrated. That night I had to go to work. I couldn’t call off because there was no one to take my shift. My husband said that he would call me if Ben’s conditioned worsened. And that he did. I returned home to find my poor little boy emaciated. He looked like a skeleton. He was unrecognizable. We rushed him to the hospital. The ER doctor had no idea what was wrong with our son. It took 5 nurses to put an IV in. The doctor had to get a very experienced RN. It was actually the RN who smelled my son’s breath. She told the doctor to smell his breath. The doctor ordered tests. They came back. The doctor said what we’re looking at is our son is a Type 1 diabetic. His blood sugar was 1350. I thought I was going to pass out. The ER doctor called my son’s pediatrician to tell him the news. The pediatrician cried because it had only been 2 weeks since he had seen him for his physical. He felt terrible. I don’t blame the pediatrician. He had done a basic diabetic test and his BG was 79.
I think more doctors need to be educated about Type 1 diabetes. When doctors think of diabetes they think of unhealthy adults.
Exactly!! Thank you for sharing your son’s diagnosis story! It’s a very scary time! Having a bg of 1350 is very high! He is very lucky to be here. Blessings to you and you’re family! :)
Same thing happened to us. Sadly my 10 years old son got diagnosed with type1diabetic a year ago. As u said too, we never had a diabetic in both side of families and believe it or not we didn't even know such a health condition even exists. I am still in huge shock and can not believe that this happened to us😢😢
But more importantly, before his diagnosis (3 to 4 months before) he got sick really bad....fever, cough and etc...but we were told that is was a allergy!!!!!!
Now that I am going back and remembering his symptoms, they do exactly match with covid19... I am 95% sure he got the covid and the virus attacked his pancreas.... I do not buy this stupid genetic theory at all. I am sure virus and our foods are the real cause of TD1.
I get frequent yeast infections.
This morning I had a fasting blood test, and my face was completely bright red.
I would continue to go for further testing if I were you. Frequent yeast infections can be a sign of a lot of different conditions (type 1 diabetes being just one of them)
I’m starting to have early signs of excessive thirst and fatigue and increased urination but maybe it’s all in my head idk 😐 😂
If you feel like you are experiencing any symptoms, please go and get a test! A physician can easily tell you if you have diabetes by just a simple finger prick.
It's been 5 years now how are you doing..
Hiii ! Stupid question Im kinda curious if i may have diabeties im not sure i dont have any syptoms but I always feel sick and Im always itchy like every night morning im always itchy,and plus i have excema so its worse.But I just wanna know whats a normal blood preasure i have checked and i was 90/71
90/71 would be a little on the lower side but not super Low. If you are unsure, always have a doctor check your glucose. That will determine a diabetes diagnosis.
i was diagnosed at 350 😢😖
Wow! That is still high! I feel awful if my blood sugar is above 160 :(
Your grandmother saved your life!
Did they keep you on a low dose of insulin during the honeymoon phase?
Yes they did. My honeymoon phase was extremely short though. It was only a month long.
@@MaddieNielsen are you on here right now Maddie? I had something to tell you
@@2listening1 yep! I am currently active here on RUclips! 😊
Have not seen you lately
I am around. Been busy with school but more videos will be coming out soon!! :)
have you heard of the carnivore diet? Its a 0 carb/0 sugar, high fat/protein diet . humans shouldn't be eating any carbs/sugar, we were hunters thousands of years ago. Being able to process carbs is an adaptation when there weren't any animals to hunt. some people are more adapted than others and can keep making more insulin to keep blood sugar down, and others do not have that adaptation such as in the case of t1D.
You speak like Temple Grandin or "Bones". I'm glad all is well now.
Never even thought of that. And thank you 😊
i didn’t think going to the bathroom ever 2-3 hours was that much 😳i was going ever 30 minutes
It got worse as I got closer to being diagnosed. Normally, bathroom breaks should be every 4-6 hours.
@@MaddieNielsen 4 to 6 hours?! I have started to drink like sooo much water today. I also feel really week and have to pee literally every 20 to 40 minutes. Everything just started today but I my dad is dismissing it even though I just hope I don't have diabetes. Also sorry about what happened to you xx❤
@@gigi2hot4you Do you have an update? Did you have diabetes
Hay sup
Daboss 23456789 hi
In this video there was so many red flags 🚩🚩🚩that was missed and ignore
I almost had a hundred more than you i was 595
Wow! Very high blood sugar at diagnosis! I am so glad you are with us! :)