Doctors Failed Me.

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  • Опубликовано: 29 ноя 2024

Комментарии • 66

  • @redsorgum
    @redsorgum 5 месяцев назад +7

    I think that most of us who have been dealing with chronic illness have come to the conclusion that we need to take matters into our own hands. That includes not caring what people think if we have to use mobility aids, slowing down, and reducing certain activities in our lives. I’m 62 and I just started to be on Social Security this July. I plan on slowing down my work schedule because it’s becoming way too much on my body. My mind says keep working, but my body says " dude, enough already" 😬

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад +2

      It’s so true that we need to prioritize our well-being and not worry about what others think. Taking control of our health and using the tools available to us is crucial. Your decision to slow down and listen to your body is inspiring and an important reminder for all of us dealing with chronic illness. Wishing you all the best on this new chapter and a more balanced work-life pace. 🌟

  • @nadiaaquino7382
    @nadiaaquino7382 4 месяца назад +4

    I think that after we get our diagnosis we have to do our own research and figure out what we can do to live with and manage our pain. It’s not a one size fits all answer. Drs can only do so much and the rest is up to us, especially when you don’t have an insurance plan that doesn’t cover most of these treatments. It’s not easy and it can lead to frustration and depression at times. We can’t give up on ourselves. We need to allow ourselves these bad days and then try again. Hope the equipment works for you.

    • @tt_looking_glass
      @tt_looking_glass  4 месяца назад +2

      Hey Nadia! You’re absolutely right - after a diagnosis, it often falls on us to do our own research and find ways to manage our pain. It’s so true that it’s not a one-size-fits-all situation, and doctors can only do so much. The lack of comprehensive insurance coverage for many treatments adds another layer of challenge.
      It’s definitely not easy, and feeling frustrated or depressed is completely understandable. But I love what you said about not giving up on ourselves. Allowing ourselves those bad days is important, and then we get up and try again. Thank you for the encouragement. 💜

  • @CuteCatsofIstanbul
    @CuteCatsofIstanbul 5 месяцев назад +3

    Oh that pool! You're sooo lucky! I haven't been in a pool in decades. I could save up some money, buy a bathing suit and go to one, but the effort would not be worth it, plus my body dysmorphia makes it ... challenging. Whenever a doctor tells me 'you should swim, it's the best exercise', I want to hit them in the face. Of course doctor, you are right, but you think it is accessible for all? The inversion table ... looks like torture to me to be honest. My vertigo went wild just thinking about it! Hope it works for you though. 😻

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад +1

      Thank you for your comment! I completely understand how challenging it can be to access a pool, especially with body dysmorphia. It's frustrating when doctors don't consider the practicalities we face. I recognize everyday how lucky I am to have access to the things I do. Swimming is great, but it's not always accessible or comfortable for everyone. As for the inversion table, I get how it might seem like torture, especially with vertigo. I'll take it slow and see how it goes but so far I have to be honest and say I am not a big fan. We'll see how it goes. Thank you for the well wishes!

  • @EllenMorrissey-b2m
    @EllenMorrissey-b2m 4 месяца назад

    Been in hospital so late to see. Medical mismanagement again for me. Bless you for sharing this. This is wisdom personified.

    • @tt_looking_glass
      @tt_looking_glass  4 месяца назад

      I'm so sorry to hear about your hospital experience. That is so frustrating. I hope you're feeling a bit better now. Thank you so much for your kind words. Sharing my journey and what I've learned along the way is something I hope can help others. Sending you lots of positive vibes and a speedy recovery. Stay strong! 💜

  • @jaeldekkers1
    @jaeldekkers1 5 месяцев назад +3

    Your cherry tree is so aesthetic and pretty!❤

  • @GeraldineFaust
    @GeraldineFaust 5 месяцев назад

    Oh Daniela everything you said resonated with me! I have had an intense flare with my coscochondritis and the pain has spread. It hurts to breathe when it gets bad. I agree that sometimes we need to seek other answers to our problems. I hope this table with help you! I know stress too can exacerbate a flare and my husband's pulmonary fibrosis has worsened. Thank you for making these video! You are such an encourager and inspiration to me to keep going! Please keep us posted on how it is working for you! I always look forward to your videos! Congratulations on assembling the table!!...The cherries look so good!! Sending many hugs to you and well wishes!!💝💕🥰 Geri

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад

      Geri, thank you so much for your kind words and for sharing your experience. I'm so sorry to hear about your intense flare with costochondritis and your husband's pulmonary fibrosis. It's incredibly tough to manage such pain and stress. I hope you find relief soon. I will definitely keep everyone updated on how the inversion table works out. Your support means the world to me, and I'm glad my videos can offer some encouragement. Sending you many hugs and well wishes too! ♥️ And yes, those cherries were delicious! Thank you again for your lovely comment.

    • @GeraldineFaust
      @GeraldineFaust 5 месяцев назад

      @@tt_looking_glass Thank you so much Daniela! You are a beautiful and caring soul!🥰💖

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад

      Thank you so much. ♥️

    • @GeraldineFaust
      @GeraldineFaust 5 месяцев назад

      @@tt_looking_glass ❤

  • @lumberlikwidator8863
    @lumberlikwidator8863 5 месяцев назад +4

    I sold fitness equipment for many years before my retirement, and I was always cautious about selling inversion tables. I always advised potential buyers to check with their doctor first before putting the table in use, particularly if they had any concerns with their blood pressure, heart rate, or their general cardiac health. I’m particularly concerned about you, Daniela, because of your POTS syndrome and the effects of your body position on your heart rate. I also can see that your unit is missing an important safety feature. There is supposed to be a strap that runs from the bars that hold your ankles to the frame of the table to keep you from tilting too close to the vertical. I used to advise users to start gently, fastening the safety strap so that they could only go through a short arc, with their head only slightly lower than their feet. This way, assuming that your doctor feels you’re healthy enough to use the table, any potential problems can be brought to light before they become serious or life-threatening.
    The above was written in all seriousness, by someone with many years experience with health and fitness equipment. I would recommend that you check the assembly instructions once more and see if your unit is missing its safety strap. If you are, then you can contact the manufacturer and they will send you the missing parts. If your table does not come with a safety strap, then I would advise you to stop using it and return it to the seller. There are many inversion tables that come with the safety strap, and if you would like to get a different brand I would recommend the tables made by Teeter. They are without doubt the sturdiest, safest, most comfortable inversion tables that I’ve ever seen. They are also easier to put together than any other brand I’m familiar with. They’re more expensive, but they’re worth every penny.
    Finally, please never use an inversion table when you are home alone. We in the community need your care and support! Best wishes, whatever you decide!

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад

      Thank you so much for your detailed and thoughtful advice. Your experience and concern are truly appreciated. I completely understand the importance of safety, especially given my POTS condition. Thank goodness I don't have high blood pressure. I will definitely check the assembly instructions again for the safety strap and consult my chiropractor before continuing to use the inversion table. If necessary. Thank you for caring and for all your helpful insights. Best wishes to you too!

  • @cathie-aussiegirl6547
    @cathie-aussiegirl6547 4 месяца назад

    It’s cherry season at Christmas here, I can’t wait. The table reminds me of the hospital tilt table, I threw up during my testing, don’t know if I’d be able to manage it but very curious how you get on with it, the idea behind it sounds delightful. ❤

    • @tt_looking_glass
      @tt_looking_glass  4 месяца назад

      Hey Cathie! Cherry season at Christmas sounds so lovely - what a delicious treat to look forward to! 🍒
      Spoiler alert: the table didn't quite work out for me. I'll be sharing my experiences in a future vlog, so stay tuned. The idea behind sounded great but it didn't work out like I had imagined. At least I tried.

  • @janedarby7521
    @janedarby7521 5 месяцев назад +2

    The pool and hot tub would really help

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад +1

      They really do. It's just too bad that I can only use them for such a short time of the year. Summers in Canada are so short!

    • @janedarby7521
      @janedarby7521 5 месяцев назад +1

      @@tt_looking_glass I was going to ask about that. same here.

  • @amandalininger-bortko1616
    @amandalininger-bortko1616 5 месяцев назад +1

    Awesome video! Great water shots by the way! Inversion tables are awesome! They help. My husband's and my friend has one, and we used to use it all the time. Be very, very careful though. It made me decompress too much once, and it sent a nerve shooting with horrible pain. I almost wanted to go to the ER. That was the last time I used it. Lol. I get PTSD just thinking about that day! 😮.

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад

      Thank you so much! I'm glad you enjoyed the video and the water shots! Credits to GoPro. I'm excited to give the inversion table a shot, but I'll definitely keep your advice in mind. That sounds like a terrifying experience, I'm so sorry you went through that! I'll be sure to take it slow and listen to my body. Thanks again for the heads-up, and I hope you're feeling better now! 😊

  • @GeraldineFaust
    @GeraldineFaust 5 месяцев назад +1

    ...Also, your little furbaby is so darling!! How special! What is her name?...I have a fur baby, a little orange tabby kitty. Scooter is his name and he is so loving and comforting. Our fur babies are so special. They love us no matter what and don't care if we don't feel like getting dressed and putting on makeup, etc..they love us unconditionally!!🥰❤💗 Geri

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад +1

      Geri! My little furbaby is indeed very special. Her name is Kayla, and she's such a sweetheart. She is very old, turning 16 soon, but unfortunately, I don't think she will be with us much longer. She is very sick. Your Scooter sounds adorable! Fur babies truly are a source of unconditional love and comfort. They are always there for us, no matter what. Give Scooter some extra cuddles from me!

    • @GeraldineFaust
      @GeraldineFaust 5 месяцев назад

      @@tt_looking_glass Aww...You are so sweet! And I definitely will!..I am so sorry to hear little Kayla is not well. Please give her extra hugs from me. I am sure of one thing: she knows how much she is loved! No doubt about that; I know you have given her a wonderful and loving home!!💓❤😻

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад

      Aww, thank you so much! I will definitely give Kayla some extra hugs from you. She is indeed very loved, and your kind words mean a lot. Knowing she's had a wonderful and loving home brings some comfort during this time. Thank you for your support and love! ❤️

    • @GeraldineFaust
      @GeraldineFaust 5 месяцев назад

      @@tt_looking_glass 💝❤💓

  • @anniemoulinsteffen3465
    @anniemoulinsteffen3465 5 месяцев назад +1

    You are so blessed to
    have a swimming pool. I'm happy for you❤

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад +1

      Hey Annie! Thank you so much. I do feel really blessed to have a pool, it's been such a lifesaver, especially on tough days. It's one of the few places where I can move around without so much pain.
      It’s just too bad summers in Canada are so short! I try to make the most of the warm days while they last. I hope you have something that brings you comfort and joy too. Whether it's a cozy spot in your home, a favorite hobby, or just spending time with loved ones, those little blessings make all the difference. Thanks for your sweet comment! ❤️

  • @janedarby7521
    @janedarby7521 5 месяцев назад +1

    luckily for me my son put mine together. I have trouble getting up on it and down. I can not sit like you on the floor anyore or squat . Was so glad to see you on today. I am in dire pain last night and this morning. Watching yur video helps to lift my spirits! Thankyou

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад +1

      Hey Jane, I totally get where you're coming from. I’m so glad your son was able to help you out! It can be so tough when our bodies don't cooperate the way we want them to. I'm really sorry to hear about the pain you're in; it's so frustrating when it hits hard like that.
      I'm actually pretty flexible in my hips and shoulders too, and I've wondered if I might have EDS as well. It's a weird mix with the stiffness from AS and the hypermobility. Sometimes it makes it hard for others to understand what we're going through.
      I woke up in so much pain today too. It took me an hour and my husband's help just to get out of bed. I have a birthday party to go to later with old university friends, and I’m torn between missing them and not wanting to explain my situation. It’s exhausting.
      But you know what? Watching your video comment and knowing you're out there lifting your spirits with my videos makes my day a little brighter too. We might not be able to do everything we used to, but we’re still here, and we’re still pushing through.

    • @janedarby7521
      @janedarby7521 5 месяцев назад

      @@tt_looking_glass I taught exercise professionally for 20 years, so, I can touch the ground with my palms yet I have trouble bending, go figure. I was oing pretty good at your age now in 70's. you have alot more info now than i did back then in 1997. the barometric pressure is getting to me. the doctors use to always say to me"well you look good", not much help. At that time or maybe later they started calling it fibro. They thought it was the membrane covering muscles swelling and irratated. can not type so forgive the errors, pain. Hope yoour day is fun, no matter what you decide to do! No one really gets it, so, is difficult to go to functions. Ta!

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад

      Jane. It sounds like you've been through so much and still managed to keep going strong. It's incredible that you taught exercise professionally for 20 years! I totally get what you mean about the barometric pressure affecting you, weather changes can really make things tough. It's frustrating when people don't see beyond appearances and don't understand what we're truly going through. Your resilience is inspiring, and I'm so glad my videos can help lift your spirits a bit. I hope you find some relief from the pain soon. Wishing you a peaceful day and sending you lots of positive energy.

  • @jessiefrances
    @jessiefrances 5 месяцев назад +1

    Sounds like a really great plan and i can’t wait to hear how the new inversion thingy works for you 🥰

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад

      Thanks so much! I’m really excited to see how the inversion table works out too. I’ll definitely keep you posted on how it goes. Fingers crossed it helps! 🥰

  • @TheFemaleBoss93
    @TheFemaleBoss93 5 месяцев назад +2

    Those cherries looked so good! What are you going to do with them? Also I hope the inversion table helps and works for you. Please keep us informed. Also happy Canada day!

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад +1

      Thank you so much! Aren't they just the best? 🍒 I'm planning to make a delicious cherry pie. I'll definitely keep you updated on how the inversion table works out for me, fingers crossed it helps! And thank you! Happy Canada Day to you too!

    • @TheFemaleBoss93
      @TheFemaleBoss93 5 месяцев назад +1

      @@tt_looking_glass You inspired me to take my strawberries out of the fridge and cut them up. This always entices me to eat them haha. Ooo a cherry pie sound so yummy, can I have a slice please? I'll keep my fingers crossed for you!

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад

      @TheFemaleBoss93 I'm so glad to hear that! Strawberries are such a delicious treat. 🍓 Of course, you can have a virtual slice! I’ll try to share some photo in my community post. Thank you for the support, and fingers crossed indeed! ❤️

  • @healwithlaurennicole
    @healwithlaurennicole 5 месяцев назад

    Love this video! My dad has an inversion table and it has helped him so much. ❤ Good luck with it!

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад +1

      Thank you. ♥️ That’s awesome to hear about your dad’s experience with the inversion table. It’s encouraging to know it’s been so helpful for him. I'm really hoping it does the same for me.

    • @healwithlaurennicole
      @healwithlaurennicole 5 месяцев назад +2

      @@tt_looking_glass Fingers crossed! 🥰

  • @HoomanthingMeetDog
    @HoomanthingMeetDog 4 месяца назад

    What song is that when youre swimming?

  • @DebbieWallace-w8c
    @DebbieWallace-w8c 5 месяцев назад

    Great video , our dog is a cutie, yes your right about trying other things by side just medical stuff !

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад

      Thank you so much! I'm glad you enjoyed the video. Yes, sometimes trying different things alongside medical treatments can really make a difference. And I agree, our dog is such a cutie! 🐾😊 If you don't mind me saying so. LOL Thanks for watching and for your lovely comment!

  • @amandafoxton6463
    @amandafoxton6463 5 месяцев назад +1

    Wow you need an engineering degree to put that together! You are so blessed to have a swimming pool and hot tub. Water was always the best for me. I used to do aqua which was brilliant and then….I couldn’t get in or out of the pool😢 so that ended that. I suppose a local swimming pool with the ladder I could do. I will look into it. I am doing exactly the same with my drs only seeing them for appointments which is generally 6 to 9 months 😂. Laughable! Thankmyoumso much for this video it encourages me to try and do more for my health. I do not have the money for physio or chiropractor. I would love to see an osteopath as that worked better for me. I would also like to try acupuncture but it costs money to do all these things and I don’t have a car so getting around is hopeless. But, I will try and do more for myself . I wish you all the best with your bed, let us know how it is going very interesting concept and totally logical

    • @janedarby7521
      @janedarby7521 5 месяцев назад +1

      I use to do water also, indoor and warm. Can not get there and back now, plus the dressing room was freezing and reversed most of the help. I have an outdoor pool here where I bought but, have never been in it.
      a little afraid of all the others since covid. Best to your endeavors!

    • @tt_looking_glass
      @tt_looking_glass  5 месяцев назад

      It does feel like you need an engineering degree, doesn't it? 😂 I'm truly grateful to have a pool and hot tub; water brings me such a relief. I'm so sorry to hear about your struggles with getting in and out of the pool. Maybe a local pool with gentle steps could help. Some pools even have a device to get people with mobility issues in and out of the pool It's worth checking to see if they are disability friendly. I'm glad the video encouraged you! It is tough without access to physio or other treatments, but small steps can still make a difference. I’ll definitely keep you updated on the bed. Sending you all the best wishes on your health journey! 💖

  • @sandyandies8309
    @sandyandies8309 5 месяцев назад +1

    That looks like it is fun! Lol

  • @jamesmcconnell2473
    @jamesmcconnell2473 4 месяца назад

    Topical pain spray recipe on Anne Wheeler's channel "how I got my mobility back" in comments. Give it a chance to fix you somewhat. By that I mean to back off using so you can objectively judge it. Supplements same deal.

    • @tt_looking_glass
      @tt_looking_glass  4 месяца назад +1

      Hey James! Thanks for the tip! I'll definitely check out Anne Wheeler's channel for that topical pain spray recipe. It's always good to explore different options and see what might help. Giving things a fair chance and evaluating them objectively is solid advice.

  • @RunningNotStopping
    @RunningNotStopping 3 месяца назад +2

    And??? Results?

    • @tt_looking_glass
      @tt_looking_glass  3 месяца назад +1

      From using the table?

    • @RunningNotStopping
      @RunningNotStopping 3 месяца назад +1

      @@tt_looking_glass yes please

    • @tt_looking_glass
      @tt_looking_glass  3 месяца назад +2

      Thanks for asking! So, the table didn’t work out for me at all. I woke up the next day unable to turn my body, totally stuck! 😣 I think what happened is that while I was on the table, I did get some decompression, but as soon as gravity kicked in, everything got compressed even worse. I was in so much pain for like three days that I haven’t dared to use it again. Maybe one of these days, I’ll try it for just a few seconds and see if that helps, because it does feel good while I’m on the table, but right now, I can’t risk another flare.