Through the looking glass
Through the looking glass
  • Видео 440
  • Просмотров 1 170 781
This Happened… I Wrote a Book About My Chronic Illness!
Chronic illness book journey-writing, illustrations, and healing process. Behind-the-scenes look at creating a book on living with chronic illness, resilience, and personal growth.
Writing this book has been such an emotional journey-full of challenges, healing moments, and a lot of self-reflection. My goal was to shine a light on the real, raw, and often unspoken realities of living with chronic illness.
In this video, I take you along as I visit my brother in Amsterdam, who’s creating the illustrations for the book. Seeing the drawings come to life has been such an exciting part of this process, and I’m thrilled to share this behind-the-scenes look with you.
This book isn’t just my story-i...
Просмотров: 157

Видео

Can You Beat Fibro Fog? Try these 5 Simple Hacks! + bloopers!!
Просмотров 36314 часов назад
Are you tired of forgetting why you walked into a room or losing your train of thought mid-sentence? Welcome to the world of fibro fog, a frustrating and often misunderstood symptom of fibromyalgia. In this video, I share 5 practical strategies to regain clarity, manage mental exhaustion, and navigate through the fog with resilience. Stick around until the end for some exclusive bloopers-they’r...
The Hard Truth About Pushing Through Chronic Illness
Просмотров 55714 дней назад
Hey friends, today’s video is completely unplanned and straight from the heart. ❤️ If you caught my last vlog about the spontaneous trip to the U.S. and our amazing hike, you saw the beauty of that moment. But what I didn’t share is the aftermath-the reality of life with a chronic illness. 🌧️ Right now, I’m in bed, feeling the full weight of the "price" I paid for those beautiful moments. The p...
Why You Should Say YES Even with Chronic Illness
Просмотров 1,4 тыс.21 день назад
Hey there! 🌿 This vlog is all about embracing the unpredictable moments in life - and doing it while living with a chronic illness. I decided to pack up my van last minute, grab a friend, and head out on a spontaneous camping trip. Yep, no detailed plans, no reservations, just a couple of good weather days and a desire to explore. We crossed the border (a little nerve-wracking!), faced forgotte...
Surviving a Fibro Flare + My Best Tips
Просмотров 67528 дней назад
Today’s one of those days. 😩 I’m feeling the full force of a flare, but I wanted to share this journey with you. Let’s keep it real, living with chronic pain isn’t just about staying positive; it’s also about those tough days when everything feels like an uphill battle. In this vlog, I’ll take you through my day, figuring out how to take care of myself, finding that tricky balance between rest ...
A Cozy Fall Day with Chronic Illness - My Routine
Просмотров 788Месяц назад
Hey friends! 🍁 Fall is full peak here, and I’m diving right in! I just signed up for a pottery class I’ve been dying to try, and I’m super excited to get started tomorrow. Tonight, my daughter and I are making some homemade apple cider and settling in for our yearly tradition of watching Gilmore Girls - it’s the perfect cozy night! Also, if you’re looking for a fall read, I’ve got the perfect r...
Meet Our New Puppy: A Little Hope in Tough Times
Просмотров 446Месяц назад
Hey guys! Today's vlog is an emotional rollercoaster, and I’m still trying to wrap my head around everything that just happened. If you've been following me, you know how much we’ve been missing our sweet dog who passed away a few months ago. Well, today was a huge day-we scattered her ashes in a place that meant the world to her, and it was such a beautiful moment of saying goodbye. 💔🌿 But... ...
Struggling with Fibromyalgia? This Will Help!
Просмотров 750Месяц назад
In this video, I open up about my personal journey with fibromyalgia - a diagnosis that changed the way I viewed myself and my future. For a long time, I let it define me, feeling stuck in a story I didn't choose. In this reflection, I talk about the messy reality of transformation, the importance of embracing discomfort, and the power of rewriting our own narratives. Whether you're struggling ...
Pain Clinic Disaster. What I Wish I Knew Beforehand
Просмотров 671Месяц назад
You are not going to believe how my day went! What started as a regular vlog took a few unexpected twists. I had an appointment at a new pain clinic, and let’s just say things didn’t go exactly as planned... but that’s not all! I also met up with a friend for something I’ve been keeping under wraps for a while-something I’m super excited to finally share with you. You’ll want to stick around to...
What I Wish I Knew When I First Got Diagnosed With Fibromyalgia
Просмотров 5722 месяца назад
Hey friends, this video is all about something close to my heart - what I wish I knew when I was first diagnosed with a chronic illness. If you're living with one or navigating some big life changes, I hope this can be a space where we can reflect and find a little hope together. I’m sharing lessons I’ve learned over the years, like how it's okay to not have all the answers, how no two journeys...
I have EXCITING NEWS to share!!
Просмотров 5022 месяца назад
Hey friends! I’m so excited to finally share some big news with you today - I’ve just launched my very own newsletter, Musings from My Chronic Life! 🎉 This has been a long time in the making, and I can’t wait to bring you a little piece of my world right to your inbox. 💌 In the newsletter, I’ll be sharing personal reflections, practical tips for navigating chronic illness, stories from our amaz...
Fibromyalgia Flare-Up Stages Explained
Просмотров 1 тыс.2 месяца назад
Fibromyalgia Flare-Up Stages Explained
Confessions of my Fibromyalgia Life - what I wish wasn’t true
Просмотров 8073 месяца назад
Confessions of my Fibromyalgia Life - what I wish wasn’t true
Navigating Grief and Loss
Просмотров 5333 месяца назад
Navigating Grief and Loss
My Journey to Medication-Free Migraine Relief: How HeadaTerm 2 Changed My Life
Просмотров 2,9 тыс.3 месяца назад
My Journey to Medication-Free Migraine Relief: How HeadaTerm 2 Changed My Life
Why Pain Makes Us Crave Sugar (and How to Handle It)
Просмотров 4223 месяца назад
Why Pain Makes Us Crave Sugar (and How to Handle It)
Raw, unedited opening up about my struggles.
Просмотров 1,1 тыс.4 месяца назад
Raw, unedited opening up about my struggles.
Navigating Summer with Chronic Illness
Просмотров 4654 месяца назад
Navigating Summer with Chronic Illness
Fibromyalgia's Most Frequently Asked Questions
Просмотров 5804 месяца назад
Fibromyalgia's Most Frequently Asked Questions
Doctors Failed Me.
Просмотров 7094 месяца назад
Doctors Failed Me.
SCAPE your pain - 5 movies to watch when you are in a flare
Просмотров 4255 месяцев назад
SCAPE your pain - 5 movies to watch when you are in a flare
Life with Fibromyalgia: living the small moments
Просмотров 4795 месяцев назад
Life with Fibromyalgia: living the small moments
How long does a Fibromyalgia Flare last?
Просмотров 7665 месяцев назад
How long does a Fibromyalgia Flare last?
My Battle With Back Pain: A Health Journey Update
Просмотров 1,1 тыс.5 месяцев назад
My Battle With Back Pain: A Health Journey Update
Running away from my problems - chronic illness vlog
Просмотров 6485 месяцев назад
Running away from my problems - chronic illness vlog
I Turned 50, Here Are 50 Life Lessons
Просмотров 3326 месяцев назад
I Turned 50, Here Are 50 Life Lessons
I flew to Brazil to find answers for my chronic back pain.
Просмотров 7976 месяцев назад
I flew to Brazil to find answers for my chronic back pain.
The Secret To Staying Motivated Even When You're Exhausted
Просмотров 3756 месяцев назад
The Secret To Staying Motivated Even When You're Exhausted
What's like to have an ANXIETY ATTACK
Просмотров 6526 месяцев назад
What's like to have an ANXIETY ATTACK
I won't stop until I find relief for my pain
Просмотров 6056 месяцев назад
I won't stop until I find relief for my pain

Комментарии

  • @anisapurdin8674
    @anisapurdin8674 4 часа назад

    Congrats ,I can not wait to read your book!! Your brother is amazing ,my daughter drawls I can not do it though. lots of healing prayers and love sent your way!

  • @lucidmed3343
    @lucidmed3343 17 часов назад

    Hi and congrats on writing your book!! So happy for you and I'll definetly be reading it!!! Danielle

  • @christinethewlis1527
    @christinethewlis1527 18 часов назад

    Congratulations on your book 🎉

  • @janedarby7521
    @janedarby7521 21 час назад

    My dog was very intent on watching your brother draw the picture! It is beautiful. She also runs to the security screen when some is on the stoop. She knows her treats and food are delivered. Thankyou for showing this. Can not wait till it is available. Hope the travel did not effect you.

    • @tt_looking_glass
      @tt_looking_glass 21 час назад

      Aw, your dog sounds like such a character, how sweet that she was so into watching the drawing process! Thank you for your kind words about the book. I’m so excited for you to see it when it’s out! As for the travel, it really hit me hard this time. Almost three weeks later, and I’m still struggling to recover. My body just can’t handle much right now, unfortunately. But hearing your support means so much, it really helps on the tougher days. Thank you for being so thoughtful!

    • @janedarby7521
      @janedarby7521 4 часа назад

      @@tt_looking_glass I was wondering how you would fare from the travel, I know what it is like. So sorry you have to suffer this. There is a book By a lady dr. that has the fibro etc. i will tell you the name but, can not make it into the living room right now.

  • @notyourbusiness99450
    @notyourbusiness99450 22 часа назад

    What is one supposed to do with that shit while working?😮‍💨

  • @klb374money
    @klb374money 22 часа назад

    Congratulations! I'm happy and proud of you for sharing our story. For it is a story of all of us that suffer with this invisible illness that leads us down all sorts of different paths. Hugs from Michigan.. <3

    • @tt_looking_glass
      @tt_looking_glass 21 час назад

      Thank you so much! Your words mean so much to me. You’re so right, this is all of our story, and it’s a privilege to be able to put it out there and give voice to what so many of us go through with invisible illnesses. It’s a tough journey, but having this kind of support from our community makes it feel so much less isolating. Sending big hugs right back.

  • @katik268
    @katik268 2 дня назад

    Hi Daniela. 🙂I'm posting again because I really care that you finally find relevant answers that explain everything. I see you as a very nice person ♥and I wish you to stop being stuck in the eternal carousel of limitations. That's why I last mentioned the starch solution, or a lifestyle where you keep fat in your diet to almost zero. As presumptuous as it may sound, I am deeply convinced that you have a condition called Very Long Chain Acyl CoA Dehydrogenase Deficiency (VLCADD). You cant break down very long chain fatty acids into energy and you end up with mitochondrial dysfunction. Trust me Daniela and get it checked. Also, trust me that if I write to you that it might take a few months for you to heal, just hang in there and continue like this forever. It may be hard to believe, but yes, you can be healthy like never before and forever. 🙂

  • @swararajini
    @swararajini 2 дня назад

    Drink Apple Juice with paracetamol. Vicks vapo rub on forhead. Sleep. Love from Holland

  • @dudee06
    @dudee06 2 дня назад

    i never heard about this illness what is it i hope u heal from it

    • @tt_looking_glass
      @tt_looking_glass 2 дня назад

      MCAS (Mast Cell Activation Syndrome) is one of those invisible illnesses that can wreak havoc on your body. It’s when mast cells, which are part of your immune system, go haywire and release too many chemicals, causing all sorts of symptoms like allergic reactions , pain, and fatigue. It’s not very well-known, so I’m glad I could bring some awareness to it. I’m managing it the best I can, and messages like yours honestly help. Thanks for taking the time to ask and wish me well, it really brightened my day!

  • @suebolton5
    @suebolton5 2 дня назад

    I have never heard of this before, so sorry you have to suffer like this ❤

    • @tt_looking_glass
      @tt_looking_glass 2 дня назад

      Thank you, Sue. MCAS (Mast Cell Activation Syndrome) is when the body’s mast cells overreact, causing unpredictable allergic-like responses to everyday things-it’s exhausting. I’ve stopped asking why this happens and instead, I now focus on getting through each day. Your kindness means a lot. ❤️

  • @MildredS-b6j
    @MildredS-b6j 4 дня назад

    Thanks! Making his eyes roll back as he immerses in bliss, it's a mind-blowing experience, I did what I mentioned last week and the look on his face says it all, I learned the exact moves following Jevie Hindlerg’s advice. After go’ogling her latest it all keeps getting crazier!

  • @LaurenT-y3e5h
    @LaurenT-y3e5h 4 дня назад

    Great vid! Making his eyes roll back as he immerses in bliss, it's a mind-blowing experience, I did what I mentioned last week and the look on his face says it all, I learned the exact moves following Jevie Hindlerg’s advice. After go’ogling her latest it all keeps getting crazier!

  • @amandalininger-bortko1616
    @amandalininger-bortko1616 4 дня назад

    Hi friend! SO SORRY I have been MIA. I really missed you! I ended up getting diagnosed with more chronic illnesses, and one of them is scary to me. I was clinging to Jesus like tomorrow wasn't coming! It's SO good to see your face again! For me, I push it too, but that's starting to change because my husband is finally starting to understand that I can't do what I used to do. Went hiking 2 times, and that caused my SI joint to go out of place on the left side. I'm probably going to get the whole "you're going to need back surgery" deal, and I'm going to say NO. I have Ankylosing Spondylitis that is progressing very very quickly. But it was the EDS that caused my SI joint to go out of place. That's the story. Also diagnosed with myalgia. It doesn't end. You are such a bright light for people like us, and I truly missed you dearly! I'm sending you so much love, Daniella ❤️!

    • @tt_looking_glass
      @tt_looking_glass 3 дня назад

      Oh Amanda, my sweet friend, I’ve missed you so much too! First off, don’t ever apologize for being MIA. Life with chronic illnesses is an absolute rollercoaster, and just showing up when you can is more than enough. I’m so sorry to hear about all these new diagnoses. I totally understand, and my heart is with you. ❤️ I’m so glad your husband is starting to see and understand what you’re going through. It makes such a difference to feel truly seen. I’m sending you the biggest, warmest virtual hug right now, and please know I’m here whenever you need to vent. You’ve got this, even when it doesn’t feel like it.

    • @amandalininger-bortko1616
      @amandalininger-bortko1616 2 дня назад

      @tt_looking_glass awwwwwe! Sending so much love to you!!! Hugs my friend ❤️.

  • @fadielaisaacs3137
    @fadielaisaacs3137 4 дня назад

    This is m. I do not go to shops because i find myself staring and have not a clue why and what i wanted to get as for the house i do one thing and forget the rest.

    • @tt_looking_glass
      @tt_looking_glass 3 дня назад

      Brain fog is such a frustrating thief of focus. 😅 I’ve definitely been that person standing in the store like, “Wait…why am I even here?!” It’s like your brain just decides to take a little vacation at the most inconvenient time. Honestly, I’ve started writing everything down before I go anywhere, otherwise, it’s a mystery what I’ll actually come back with!

  • @sarahpenny3852
    @sarahpenny3852 5 дней назад

    Such a beautiful day for you! ❤❤❤

  • @sarahpenny3852
    @sarahpenny3852 5 дней назад

    What a cutie!❤❤❤❤

  • @sanaaangel95
    @sanaaangel95 5 дней назад

    Should we add Mental Flog in our new vocabulary? 😂 Brain fog is real for us with chronic conditions, but we just have to work with it!

    • @tt_looking_glass
      @tt_looking_glass 5 дней назад

      Mental Flog is absolutely my new favorite word.

  • @Mena-tb7ym
    @Mena-tb7ym 5 дней назад

    I'm so sorry you're going through such awful symptoms. Sending you warm healing hugs, God bless 🩷

    • @tt_looking_glass
      @tt_looking_glass 5 дней назад

      Thank you so much for your kindness, Mena. That means a lot, especially on the tough days. MCAS really can knock you down, but the support I get from my community makes a bigdifference. 💕

  • @Mena-tb7ym
    @Mena-tb7ym 5 дней назад

    I'm so sorry you're going through such awful symptoms. Sending you warm healing hugs, God bless 🩷

    • @tt_looking_glass
      @tt_looking_glass 5 дней назад

      Thank you so much for your kindness, Mena. That means a lot, especially on the tough days. MCAS really can knock you down, but support from my community makes a big difference. 💕

  • @sarahpenny3852
    @sarahpenny3852 6 дней назад

    Loving the bloopers! That’s so true of fibro! 🎉🎉❤❤❤❤

    • @tt_looking_glass
      @tt_looking_glass 5 дней назад

      It really is! Filming some days can feel impossible.

  • @sarahpenny3852
    @sarahpenny3852 6 дней назад

    Together with autism and fibromyalgia fog life can be such hard work! Thank you! ❤❤❤

    • @tt_looking_glass
      @tt_looking_glass 5 дней назад

      It’s such a heavy load to carry, and I see you. Sending you so much love.❤️

    • @sarahpenny3852
      @sarahpenny3852 5 дней назад

      @@tt_looking_glassright back across the Atlantic!❤❤❤❤

  • @lumberlikwidator8863
    @lumberlikwidator8863 6 дней назад

    Thanks for taking a sensible and lighthearted look at a symptom that can get increasingly scary as chronic disease takes its toll over time. It has become a real problem for me over the last few years. I’ve experienced every one of those situations that you enacted in the beginning of the video and I’m thankful for the hacks presented here and in the comments. As usual the music was a nice addition and amplification of the scenes depicted. I got a big kick from the scene in the snack aisle of the grocery store because the label on the tortilla chips meant “what’s happening?” in Spanish. Nice touch! I guess we’re all wondering what’s happening to us when fibro fog sets in.❤❤❤

  • @deborah6972
    @deborah6972 6 дней назад

    Please look up Curry Blake. He will help you.

  • @TheSimmerWithChronicIllness
    @TheSimmerWithChronicIllness 6 дней назад

    Just you saying share your fibro fog stories had me giggling. I feel like that’s my entire life! Your bloopers were definitely my daily life. I can’t English most days 😂

    • @tt_looking_glass
      @tt_looking_glass 6 дней назад

      Haha, right? I swear, I can’t English period! I’m so glad the bloopers gave you a good laugh. It’s nice to know I’m not alone in this foggy mess! Thanks for sharing, it means a lot!

    • @TheSimmerWithChronicIllness
      @TheSimmerWithChronicIllness 6 дней назад

      You are never alone! You taught me that 😊

    • @Capricornrose73
      @Capricornrose73 6 дней назад

      @@TheSimmerWithChronicIllness 🤣🤣🤣

  • @jamesmcconnell2473
    @jamesmcconnell2473 6 дней назад

    Nobody but nobody could be so tickled about forgetting her migraine medication.

    • @tt_looking_glass
      @tt_looking_glass 6 дней назад

      The one thing could not forget. One during a trip to Brazil we had to cut a dunes adventure short halfway through to raid a pharmacy for migraine medication. But I wasn’t about to let that stop me, we still went sandboarding afterward. Let’s just say it didn’t go as well... I ended up breaking my tailbone and getting my first concussion. Definitely a memorable adventure! Me and my adventures....

    • @jamesmcconnell2473
      @jamesmcconnell2473 3 дня назад

      @@tt_looking_glass hey Daniella did you make a video about what you talked about breaking your tailbone and getting a concussion?

    • @jamesmcconnell2473
      @jamesmcconnell2473 3 дня назад

      @@tt_looking_glass full circle by Phil keaggy

    • @tt_looking_glass
      @tt_looking_glass 3 дня назад

      @jamesmcconnell2473 I did not. I made a video about my second concussion which was a fall down the stairs. This is why my second concussion was so severe it’s because it was my second.

    • @jamesmcconnell2473
      @jamesmcconnell2473 3 дня назад

      @@tt_looking_glass oh my god. I have sensory ataxia. I can't even dream of using stairs. I even considered wearing head protection. With me falling is an issue aggravated by darkness small spaces like a bathroom. When you have sensory ataxia it means you don't have officially ataxia. It can be treated with gabapentin also it can be caused by gabapentin

  • @jamesmcconnell2473
    @jamesmcconnell2473 6 дней назад

    You always get like this. Like a silkworm ready to bust out of your cocoon. Never giving a thought to what's about to happen. In this case your flare on November 4th. Excuse me October 31st

    • @tt_looking_glass
      @tt_looking_glass 6 дней назад

      you have such a way with words!

    • @jamesmcconnell2473
      @jamesmcconnell2473 6 дней назад

      @@tt_looking_glass an influencer making one think of words.

    • @jamesmcconnell2473
      @jamesmcconnell2473 6 дней назад

      @@tt_looking_glass strange powers: the magnetic fields

    • @jamesmcconnell2473
      @jamesmcconnell2473 6 дней назад

      @@tt_looking_glass audioslave-I Am the highway live

    • @jamesmcconnell2473
      @jamesmcconnell2473 6 дней назад

      @@tt_looking_glass EarthQuaker sessions episode 40 star crawler no more pennies

  • @jamesmcconnell2473
    @jamesmcconnell2473 6 дней назад

    Might be why planner book videos are popular? Dedicating your memory to a hobonichi A6 planner book especially in the case of ADHD. Not to mention the decoration of those books and the practice of good penmanship.

    • @tt_looking_glass
      @tt_looking_glass 6 дней назад

      I certanly do. It also gives that little spark of motivation to stay on top of things, even if we only sometimes follow through 😅