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Oh no, that must've been so unsettling, especially since it's not something you're used to dealing with! When something hits out of nowhere like that, it’s hard not to immediately think the worst. Hopefully, it was just a one off thing and you're feeling better now.

I’ve been there too, and it's so frustrating when it happens. It’s hard not to feel a little defeated by it. Just know you're not alone in that feeling, and it's okay to take those breaks whenever you need to. Take care of yourself, friend. Your body’s just asking for a little extra love in those moments.

It’s scary and frustrating when your body feels like it could give out at any moment. I’ve had to lie down unexpectedly too, especially when everything starts spinning. It’s tough, but it’s like our body’s way of making us slow down. Do you find that resting helps, or does it linger for a while after? It’s always such a balancing act between pushing through and listening to what we need. Keep hanging in there, you’re not alone in this!

I sometimes feel like it’s over so I get up and it immediately comes back ( I’m not diagnosed )

Ugh, I totally get that frustration! Fibro changes everything. It’s like all the little things we used to do without thinking suddenly become huge hurdles. I’m so sorry you're going through this, especially when it’s something like makeup that used to make you feel good. I’ve definitely had moments where I just wanted to scream at this f’ing disease for taking things away from me. It’s okay to feel angry about it, honestly, I think we all do. Just know you’re not alone in this, and you’re still amazing, makeup or no makeup. Keep hanging in there. You’ve got a whole community behind you that gets it, and we’re right here with you through it all.

I find Sprite a bit too sweet, I think I would prefer Gingerale.

@@tt_looking_glass that's mostly what my daughter drinks when she has nausea.

I hear you, and my heart goes out to you. Managing fibromyalgia while raising two little ones and working full-time is beyond tough. I’ve had young children myself, and even without the chronic pain, it’s exhausting. It’s hard for others to truly understand how draining it is, both physically and mentally, to keep pushing through that daily pain and fatigue. When it comes to medication, my honest advice, as someone who’s been through the trial and error, is that you won’t know until you give it a try. I’ve heard from people who’ve had amazing results, some where it helped for a while and then plateaued, and others who found it didn’t suit them. We’re all so different, and even our bodies can react differently as we move through different phases of life. Personally, I’ve found that LDN has been a lifeline for me, it’s the thing that’s allowed me to reclaim parts of my life I thought I’d lost. You’re doing an incredible job, even if it doesn’t always feel like it. Just the fact that you’re showing up for your family and work, despite everything, is proof of your strength. I’m rooting for you, and I truly hope you find something that brings you relief. You deserve it. 💛

@tt_looking_glass Thank you so much for taking the time to send a reply. Especially one that so authentically heard what I was saying. I appreciate your advice, and it has given me a positive outlook on trying the medication. So thank you sincerely! Your video was well worth your time and effort to make as hard as I can imagine it was to do on a bad day, as it represents that we are not alone and it's a journey we share with others, albeit I wish no one had this and a cure was there to save the years it takes away.

Thank you so much for your kind words! Honestly, hearing that you felt truly heard means the world to me. It’s all we really want sometimes, right? Just for someone to "get it." I'm so glad that my advice helped give you some positive thoughts about trying the medication. It's never easy, but that little bit of hope can make a big difference when we're dealing with the daily grind of chronic illness. And you're right, making content on tough days is a challenge. But knowing that it resonated with you and reminded you that we’re not alone in this journey makes it so worth it. I’m so grateful you are here and I hope you explore my other videos. Keep me posted on how the medication goes for you. I'm rooting for you!

So glad you stumbled upon it, even if it was a little late! 😊 That spot really was beautiful, and we totally lucked out with the weather. Nothing beats enjoying nature when it’s dry, right? Unfortunately, that was the only time I went camping this whole summer, and it makes me a little sad it came to an end so quickly. I'm still holding out hope for my annual backcountry trip, but the weather just isn’t cooperating right now. Fingers crossed though, we'll see! Thanks again for watching and sharing, it really lifts my spirits to hear from you! ❤️

@@tt_looking_glass Thank you Daniela for your kind reply. Some of the trails you hiked reminded me of Niagara Glen. That’s a small nature preserve on the Canadian side of the Lower Niagara River. We used to love that spot! No matter how hot it gets, Niagara Glen is comfortably cool. The trees are marked with different colors just like the spot where you went. We’d see all kinds of wildlife there, brightly colored birds, small deer, and even occasionally a gray fox. It’s such a secluded and beautiful spot but not far from populous areas, like Nature placed one of her jewels right there among the towns and power plants along the river. Of course it’s ancient, there are fossils (do not take any) and layers upon layers of geological formations. And the trees! Great little half-day trip. I was always surprised how few people, even Canadians, knew of it. Thanks again for sharing and caring about your “family.” Here’s hoping you can get away for your back country trip. Happy camping!

Niagara Glen sounds like such a gem! It must’ve been such a peaceful place to visit. It’s crazy how even locals don’t always know about these places, right? That makes it feel even more special, like a little secret escape from the busier world. Thank you for sharing that memory, it’s giving me all the wanderlust feels! I hope I can get away for that backcountry trip soon too. There’s something so healing about being out in nature, even when life (and health) make things harder. Sending you all the good vibes, and maybe we’ll both find some new hidden nature spots to enjoy soon!

Exactly!

Wow, that’s really interesting! It’s amazing how things like cervical instability and posture can have such a big impact on our bodies-who would have thought it could trigger POTS symptoms like that? I’m so glad you were able to figure out the connection and get some relief through physiotherapy. It must’ve been such a huge shift to see those symptoms start to vanish after all of that. Neck issues and posture really can mess with so much, it's a reminder of how connected everything is. Thank you for sharing your experience! It might help someone else who’s dealing with similar symptoms and searching for answers. I'm hoping things keep improving for you! Keep doing what works, and I’ll definitely be paying closer attention to how posture might be playing a role too.

Yeah i got to know about it after i came across Dr Houser on youtube here is its channel "youtube.com/@caringmedicalprolotherapy?si=ICDMQykDCy7W2bSk" you would be surprised how its related to POTS and other issue related to cervical issue for people who check their heart brain etc with no issue but still having symptoms i have seen in the comments, one must check their cervical i hope it helps someone out there cuz these symptoms can destroy your daily life and causes severe anxiety. Thank u

@@tt_looking_glass yeah you would be surprised to know how POTS is related to cervical and neck issue. I got to know about it after i came across Dr Ross houser on youtube, here is the channel "youtube.com/@caringmedicalprolotherapy?si=ICDMQykDCy7W2bSk" One must check their cervical issues if they are having these symptoms with every organ working fine and the doctor can't diagnose it, it can really mess with ur daily life and causes severe anxiety , i hope it helps. Thanks u

Hey Carol! Welcome to the community! 🌟 I totally get what you mean about humid weather, it's a big trigger for me too. The dizziness and that overwhelming heavy feeling can be so tough to push through. And I'm with you on the clothing thing! Anything that's not soft and comfy feels like it's adding to the struggle. Sending you lots of gentle hugs and hoping for some better, flare-free days ahead. 💖 Keep hanging in there, you're not alone in this! Thank you for subscribing, I hope you stay for a while.

You are welcome. ❤️

I’m so sorry you’re in a flare right now, but I’m really glad my words brought you some comfort. It’s tough going through these times, but knowing we’re not alone can make it just a little bit easier. Hang in there, and take care of yourself as best you can. Sending you healing thoughts and strength to get through this. 💜

Blessings to you too! I completely understand that frustration of planning to do something simple, like going shopping, only for your body to suddenly decide it’s not happening. It’s so hard when your health dictates what you can and can’t do, and sometimes all you can do is give in and rest. It’s all about taking things one moment at a time, and knowing that it’s okay to adjust your plans when your body needs it. Thank you for sharing your thoughts, and for being part of this journey with me. We’re in this together, no matter how unpredictable the days may be. 💜

Rodney sounds like such a sweetheart, and I can just imagine how comforting it must be to have him snuggle up when you’re not feeling well. Pets really do have this magical way of making the pain a little more bearable. It’s so important that you’ve learned to recognize those red flags early and know when it’s time to take care of yourself. And I totally agree, taking on too much too soon can put you right back where you started. Thank you for sharing your experience and your kind words. Sending love to you, Rodney, and your whole furry family! ❤️

I totally get what you mean, it’s like the day can take such a turn out of nowhere. It’s so frustrating when you start off kind of okay, only to end up crashing hard. I’ve had those days too, where you sleep so much you lose track of time. I’m really glad this chat was helpful for you, though. Sending lots of love and hoping tomorrow is a better day. 💜💜💜

I’m so sorry you’re in that constant state of pain, it’s exhausting and feels like there’s never a break. I completely understand how a 5/10 day can feel like a win when you’re used to so much worse. Flares are tough because they’re like spikes in pain or symptoms, but I know for some of us, the “normal” days already feel like a constant flare. I really hope you can find that day of rest you’re longing for. And thank you for watching and commenting, it means a lot to me that you’re here, even on the toughest days. Sending you gentle hugs. 💜

I’m so sorry you’re going through such a rough flare right now, especially with no sleep, it’s just the worst combination. I’ve definitely experienced those flares that seem to come on like clockwork, almost as if my body has its own twisted schedule. It’s so frustrating when they hit at the same time every day, and the fact that you’ve been dealing with this for so long just makes it even harder. That fuzzy feeling between your eyes, the pressure, the dizziness, it’s like your body is sending out all these distress signals at once, and there’s no escape. I’ve heard from others who also notice patterns with their flares, whether it’s tied to certain times of day, stress levels, or even just routine activities. It’s like we’re constantly trying to decode our bodies’ messages, but they keep changing the rules on us. Sending you lots of healing vibes right back and hoping that today’s flare is a bit kinder to you. Thank you for being part of this community and sharing your experience, it really helps to know we’re not alone in this. Hang in there, and take care of yourself as best as you can. ❤️

@@tt_looking_glass Its like you say you hate to know others are suffering but it helps so much not to feel alone. That's exactly right with the decoding...it's maddening. I did find out Friday I am anemic so that's something very treatable. yay :) you are providing us all with hope and I always stop what I'm doing to watch a new vid....big hugs

It really is such a bittersweet thing, isn’t it? You never want to see others suffering, but knowing you're not alone in it makes all the difference. And the constant decoding of symptoms and signals from our bodies, it’s like a full-time job that never ends. I'm so relieved to hear that it's something treatable, yay for that! 😊 It’s moments like these that give us a little boost of hope, and I’m so glad to hear you got some answers. Your support means the world to me, and knowing you take time out of your day to watch my videos is just amazing. Big hugs right back to you, and let’s keep holding on to that hope together! 💜

@@tt_looking_glass ❤️🤗❤️

Ethereal, I’m so sorry to read that you have this experience that you know is coming. I think that might be worse than random, unpredictable flares that come and go like a sudden rain shower. I can picture myself in your shoes, knowing all along that it’s coming and there’s little or nothing I can do. I pray that the Lord will release you from this terrible situation. Sending love and strength your way!

I'm so sorry to hear you’ve been struggling for so long. Eighteen years is a lot to carry, especially while trying to study for 12 hours a day, no wonder it feels so tough. Chronic pain and migraines can be incredibly isolating and exhausting, and it’s hard when it feels like there’s no end in sight. While I can’t offer a cure, I want you to know that you’re not alone, and there are ways to manage and possibly reduce the frequency and severity of migraines. Have you had a chance to explore different treatments, like lifestyle changes, medications, or alternative therapies? Sometimes it takes a combination of approaches to find something that works, and even then, it can be a journey of trial and error. But please, if you haven't already, consider reaching out to a healthcare professional who specializes in migraines or chronic pain,they might help you discover options you haven’t tried yet. In the meantime, make sure you’re being kind to yourself. Studying for that many hours is a huge feat on its own, and adding chronic pain on top of it is even more challenging. Don’t hesitate to take breaks when you need to. You’re doing an amazing job holding it all together. Sending you lots of strength and hoping you find some relief soon. Hang in there. 💖

@@tt_looking_glass i think 7 hours of sleep and lifestyle changes like only home food + morning walking help me but nowadays i take classses online and only 5 hours sleep that's why i am dealing with past one week from i will sleep 7 hours and take good food plus early morning walking lets what happened. And yeah thank you If migraine attack comes i take zerodol tablet after that 10 min it disappear

Sandra, your words hit home in such a deep way. You’ve captured exactly what it feels like during those unbearable moments of a flare, when everything is just too heavy and every little task feels impossible. It’s like the world keeps spinning while we’re stuck on the sidelines, weighed down by that crushing fatigue and pain. I know that feeling of watching life from the outside all too well. And yet, somehow, we find the strength to get through it, especially when those rare good days come around. It’s such a delicate balance, isn’t it? Managing to work, take care of our families, and just hold it together despite the chaos our bodies put us through. You’re doing so much more than just surviving, you’re showing resilience that not everyone can understand. Thank you for sharing this with us. It’s comforting to know that even in our toughest moments, there’s a community of us who get it. Keep holding onto those good days, and know that I’m here cheering you on, every step of the way. Sending you so much love and strength. 💖

Thank you Danielle. Your words are both an encouragement and a relief 🩷

It really is tough, isn’t it? I completely understand how easily that discouragement can turn into something deeper and heavier like depression. It’s like this cycle that’s so hard to break, especially when our bodies aren’t cooperating. But you’re right,reminding ourselves that these feelings won’t last can make such a difference, even when it feels like they will. I’m so glad that the pep talk helped you today. Sometimes we all need that little reminder that we’re not alone in this, and that brighter moments are ahead. Just know that you’ve got someone here who gets it and is rooting for you. Keep hanging in there, and take things one moment at a time. 💖

@@tt_looking_glass Thank you for being you and being there. <3

Amanda, your words truly touched my heart. Thank you so much for being here and sharing a bit of your journey with me. I’m so glad that the focus on self-care and mindfulness resonates with you. It’s such a rollercoaster, isn’t it? Flares can creep up gradually or strike out of nowhere, and it’s so frustrating. Like when I was out just last Friday, enjoying some time with friends, and then suddenly, bam! The weekend hit, and I couldn’t even get out of bed. It's like being hit with the flu, that overwhelming fatigue and pain, but without any of the usual explanations. It’s comforting to know we’re not alone in this, even when our bodies throw us these unexpected curveballs. Thank you for being a part of this community and for your kind words. You’re appreciated too, more than you know. Sending you so much love and gentle hugs. 💖 I’m sending all the gentle, healing vibes your way. Here’s to resting up and hoping this flare passes soon for both of us. Hang in there.

Amanda, I’m glad you’re able to keep on with your hobbies at least part of the time. It’s so satisfying to see and hold something that you’ve made with your hands. I’m not so good at this meditation and mindfulness thing, but I hope it brings you much joy and peace. Much love and prayers coming your way!

I'm so glad it resonated with you, Rhonda. Sometimes, hearing exactly what we need in the moment can make all the difference. Sending you lots of strength and gentle hugs today! 💜

@@tt_looking_glass My family have no idea how to support me mentally and emotionally! You have become my support! So thankful you take your time to reach out and remind us how to take care of ourselves!

@@rhondaevans4509 Rhonda, no one should have to face this without the unstinting love and support of their own flesh and blood. You are in my prayers.

Hi Suellen, welcome to our community! It sounds like you’ve been through so much already, and I’m glad you’re here with us. Chronic pain, especially with everything you’re dealing with, fibromyalgia, chronic migraines, trigeminal neuralgia, is so overwhelming. It’s hard when it feels like you’re doing everything right and still not getting the relief you deserve. As for supplements, I take magnesium before bed and vitamin D and zinc in the morning. I believe they can help give our bodies the best chance at healing, but I also know they’re not a cure. With fibromyalgia, since we’re still not sure what causes it, finding a cure is really difficult. But I definitely believe that, aside from external factors like weather and stress, our mindset is one of the most important aspects of healing. When it comes to diet, I totally get how challenging it can be. I know what I should be eating, but actually making it happen is a whole different story. I believe that our bodies thrive best on a whole foods diet with minimal to no processed foods. Anything that comes out of a box with a list of ingredients, especially those with names I don’t understand, makes me cautious. I try to eat the rainbow and minimize animal products, which I believe helps, but I’m not a nutritionist or a doctor, so I can’t give professional advice on this. It’s just what I’ve found works best for me. I hope you find some comfort and support here. We’re all in this together, and while the journey isn’t easy, having a community can make it a little more bearable. Thank you for sharing your story, and please know that you’re not alone in this. Sending you lots of strength and gentle hugs.

@@tt_looking_glass Thank you… yes a Nutritionist is next on my list of things to try.

@@suellenpatrick3587 There are so many words about supplements and nutrition online, but how do you know what to believe. There is so much clickbait out there and then you watch and find out they’re trying to sell you some snake oil that might do more harm than good. A nutritionist who sees you personally may be helpful. I hope you find the right person who understands and cares. God bless!

Ugh, I feel you! Being in a flare is no joke, and that exhaustion and pain can really take it out of you. Just know you’re not alone in this, so many of us are right there with you, and we’re all just trying to make it through one moment at a time. Be gentle with yourself, and hopefully, this flare passes soon. Sending you lots of good vibes and strength!

@@tt_looking_glass 💜

I’m so sorry you’re dealing with a flare right now, especially without knowing exactly what’s going on yet. That waiting game for the first rheumatologist appointment can feel like forever. I’m really glad the video was relatable and helpful for you, though sometimes just knowing someone else gets it can make all the difference. Hang in there, and I’m sending you gentle vibes as you navigate through this. Thanks for sharing and take care of yourself!

@@tt_looking_glass Yes, I was referred back in I want to say January, maybe February of this year. Was told I'd get a call in June (of this year) for an appointment in July (also of this year). I don't hear anything in June and they don't return my voicemails. In July my family doctor gets a letter from a different rheumatologist in that city signed by all the others including the one I was referred to saying essentially any patient they haven't already physically seen in office will need to be referred elsewhere. Next closest rheumatologist is about 3.5hrs from where I live...approximately double the drive. I was referred 2 weeks ago and now get to start this wait all over again.

That is beyond frustrating, and I’m so sorry you’ve had to deal with this. It’s like they don’t realize how much stress and pain this waiting game adds to an already tough situation. Having to start the whole process over again, especially with such a long drive to the next rheumatologist, feels like such a setback. I hope you get some solid answers and care soon, no one should have to go through all this just to be seen. I know very well the struggle of waiting for a specialist referral and how difficult it is during that waiting time. It’s so disheartening when you’re just trying to get the care you need, and the system makes it feel impossible. I’m really hoping things move quickly for you now, and you can finally get the help you’ve been waiting for.

@@acgvlogs5764 That’s just heartbreaking. It’s awful. I don’t know what to say except don’t give up. Many of us are hoping and praying that you get to see a specialist closer to home, and much sooner as well. God love and keep you. You deserve much better than what you’re getting.

Oh my goodness, clean, brushed hair feels so amazing!! ❤ It is something most people take for granted... Just brushing is a struggle.... Good job... ❤

Those shower and hair wash days can feel like such a victory, can’t they? I love that feeling. I totally get it, it’s all about celebrating those small wins that can mean so much when you're in the thick of it. Gratefulness goes a long way in this journey. I’m glad you’re finding those moments to hold on to. Keep being kind to yourself, and thanks for sharing that bit of positivity!

feel for you, you are not alone in this. went to corner store to get mail and now down. hope you get better real soon!

I feel you guys too. I had a really low-key get together on Friday, and I've been in bed since. It's tough when even the smallest things can take us down like this. Sending you both so much love and hoping we all bounce back soon! ❤️

I have been in a flare since May... So sad that my favorite season is almost here, and I am unable to do anything with my husband and kids. In survival mode right now.... And now seasonal allergies have decided to add to the misery....

@TheBreeyah I’m so sorry you’ve been in a flare for so long, and now with seasonal allergies piling on, it’s just too much. It’s heartbreaking when your favorite time of year rolls around and you feel like you can’t fully enjoy it with your family. I totally get what you’re going through, survival mode is real right now. Just know you’re not alone in this, and I’m sending you all the strength and love to get through these tough days. 💜

​@@tt_looking_glassthank you... you and your channel have been such a huge help and comfort to me since I found you on here a month or so ago. Thank you for doing this. You really have helped me so much... ❤

Yes they are!

Olesia, thank you so much for your kind words. I can totally understand why you’d be feeling confused and overwhelmed. It is absolutely possible to have all three, Fibromyalgia, POTS , and Chronic Fatigue Syndrome at the same time. Many people, myself included, find that these conditions often overlap. They share a lot of common symptoms like fatigue, pain, and brain fog, which can make it really tricky to figure out what’s going on. It’s great that you have an appointment with a rheumatologist coming up. They can help you get closer to some answers and maybe a better plan for managing everything. In the meantime, be gentle with yourself-what you’re going through is tough, but you’re not alone in this. Sending you lots of love and strength as you navigate this journey. I’m here cheering you on, and I hope the rheumatologist can provide some clarity and relief for you. 💖

@@tt_looking_glass Thank you so much for you support ❤ 😘

Oh my gosh, I totally feel you-POTS really is evil! 😖 Hydration can help so much, but yeah, it's frustrating that even the things that are supposed to help come with risks. It’s like you’re constantly trying to balance everything and avoid making things worse. The struggle is too real, but I’m so glad you’re doing what you can to manage it. Keep hanging in there, and know that you’re definitely not alone in this fight! We’ve got to keep sharing the little wins and tips to get through it together. 💪

I’m so sorry you’re dealing with this right now, especially with all the pain and fogginess in your eye. I know how tough it is. For me, it took around 6 months to fully heal, and I was on steroids the entire time, which helped eventually restore my vision, though the doctors weren’t sure at first. Hang in there, and I really hope the is clears for you soon.

You’ve captured it so perfectly, fibromyalgia really does force us to live on our own terms, no matter what others might think or say. I totally understand how it feels like a ticking time bomb, especially when you’re dealing with multiple illnesses on top of fibro. It’s like there’s no room for planning because you never know when your body will call it quits for the day. I love your encouragement to just keep going in whatever way feels comfortable. You’re absolutely right, it’s like being a zombie, just trying to move through the fog and uncertainty. But your attitude of going with what you can manage and not worrying too much about the rest is spot on. That’s exactly the kind of mindset that helps us keep moving forward, even on the hardest days. Thank you for sharing your experience and wisdom. It’s messages like yours that remind us all we’re in this together, finding our own paths through the fog. Sending you lots of love and hoping for more peaceful days ahead. ❤️