What is Hodgkin's Lymphoma: First Symptoms Explained | The Patient Story

What is Hodgkin's lymphoma? Hodgkin's lymphoma survivor Dr. Sam Siegel and top lymphoma experts Dr. Natalie Grover and Dr. Stephen Ansell explain what Hodgkin's lymphoma is, how it differs from non-Hodgkin's lymphoma, common symptoms to watch for, and how its a blood cancer that often starts in the lymph nodes.
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The interview has only been edited for clarity. The interview has only been edited for clarity.
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[@jonmoceri]

At age 12 I was diagnosed with Hodgkins. My symptoms were night sweats, weight loss, and difficulty breathing. when running and exercising. A chest X-ray showed a mediastinal mass pressing on my trachea. A lymph node biopsy showed Hodgkins.
This was in 1971, before the days before CTs and MRIs, so I had a staging laparotomy and splenectomy. I was stage lllB, and I had MOPP chemo and chest cobalt radiation for treatment.
That was 53 years ago.

[@lorisilverstein3010]

My brother was diagnosed with Hodgkin's Lymphoma at age 17 but they estimated that it developed around the age of 14. This was in the mid 1970's. He slept A LOT! We were a sports oriented family and my brother would seem to only have enough energy for school then he would fall asleep almost immediately after getting home from school. He had night sweats, he felt that "bugs were crawling all over him". My mom had found a lump on his neck 1-1.5 yrs prior to diagnosis and yeah, medical gaslighting happened back then too. The doctor's kept telling my mom "she was over protective", " making a mountain out of a mole hill", "it's just an enlarged lymph gland probably from a recent infection". Back then the survival rate for Hodgkin's was not that good. Of course, the lump removal, the biopsy, once diagnosed, The doctor told my brother he had 5 years to live. The staging the doctor's told him late stage 3. Massive amounts of radiation. I think the doctor called it 4 RADS of radiation. So much so that doctors would refuse to give him anymore. The doctor stated, "I don't want to liquify his spinal cord and he can't have anymore. He got the max the first time around." Radiation would eventually take all of his teeth. He would have such pain with his teeth, the dentist finally agreed to remove 1 tooth-all appearances on the outside looked like a healthy tooth. Inside, all the nerves in each tooth had died. He lost bone density, a simple bump of his arm, would cause him to break a bone. He also developed a benign tumor on his spinal cord. I don't have the name of it but the doctor explained, it was a non cancerous tumor usually found in 60 year old women's abdomens. This developed on his spinal cord. The doctor stated it had tendrils like an octopus which where integrated in his spinal cord. They could not remove it, only trim it back every 3-5 years so it would not continue to press on his carotid artery. Entering from C-3 to C-6. Each time he would have this surgery he would loose the complete use of his left arm. He had to teach himself how to regain use of his left arm from a total of 5 separate surgeries. He started having choking problems when taking his pills and he was a living pharmacy of narcotics. We are talking the very large brown prescription bottles almost as tall as a 2L bottle of soda. He was a legalized drug addict. You go through 5 spinal surgeries and tell me how you would cope with that amount of pain every three to 5 years. We could tell when he was due for another surgery. He wasn't getting the oxygen to his brain and he would always sound and walk as if he were drunk. Well, those massive amounts of radiation did keep my brother alive. But the radiation NEVER stops working on your body. The last years of his life were hell. 3 massive heart attacks and the kicker, Mesothelioma. Tumors on the both plural sacs and pericardium. So yeah, Pleural effusion and cardiac tamponade. From diagnosis to death roughly 2 months hospitalization. He fought for 28 years. He taught me to be a propionate for quality versus quantity. RIP Stephen.

[@user-hf7zm2sm3v]

God bless everyone. Prayers 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏

[@Bebs995]

thank you for information lovely lady ❤

[@ithacacomments4811]

My nephew had a three year battle with non Hodgkins after he contracted Lyme Disease.