I wouldnt survive with 2 hours of questioning as i will feel trapped and uncomfortable/irritated.. and just want everything around me to stop asking bloody questions
I just got diagnosed Tuesday 31/05/22.. waited 2.5 yrs for my NHS appointment. I have to wait for my report 2-3 weeks then have a questions & support meeting this coming month. I’m glad I’m not crazy or mad like I was feeling before getting diagnosed. Intrigued to read the report. I did the Aspie Quiz, RAADS & AQ tests as part of my preparation for assessment. Finally I feel at peace and happy with who I am and I’ve found my tribe. Now the work to learn how to unmask everyday will begin, I’ve done it so long on auto-pilot for decades, it will be quite the journey and challenge.
The process for adults is completely different to the children's one except the making a story with the objects, the process is really hard, I hope you hear the results soon
Rohan that is a dumb comment. The lady in this youtube posting is providing information that is well presented and helpful to lots of people for different reasons.
Nigel Baldwin Dumb or intelligent, I have seen the horrors firsthand, that autism's representation has inflicted, or overseen the infliction upon, those they view as a subhuman collective, for having the label laid upon them in the first place. So i seek to work my way to humanity, having uncovered a ways for self-emancipation from the brand. I thus pose an existential threat to autism itself with my coaching its collective to enter the workforce by any means necessary, especially self-employment and the answering of want ads. Heck, i'm even designing a game around it, where the goal is to emancipate yourself from a subhuman collective you get to name, and then work or fight towards its abolition! For these reasons, my own mother is plotting to eliminate me if she cannot have me completely subdued, intending to protect my own autistic status from my efforts to mutate it. As an existential threat to me, she must be charged with false accusations, fraud, and attempted murder, as well as have made known her history of domestic violence, child abuse, blackmail, conspiracy, and exploiting her own children. What she's protecting in the end though, is her historic crutch, now trump card.
Just got back from my assessment today, aged 44. I was on the waiting list for an assessment for almost two years. Thanks for putting this video out, it was very useful for me in the lead up once the date had been confirmed. I was so anxious once the date was set I could barely think. Just wanted to say persevere to all those still waiting or thinking of trying to get a diagnosis. Such a relief. Still waiting on my official report but the diagnosis was confirmed.
@@Jay-ys2cf It was OK in the end, the process of assessment was not as grueling as I feared! To be honest the hardest part of the process is getting on the waiting list to begin with.
I took the on line test and scored 34 out of 50. I am 62 years old. I live in the U.S. so my cultural experiences may be different from(or as you say different to,I think) yours. I feel that anyone on the spectrum who has a higher I.Q.( mine is 145- can "pass" to an extent in society.) I have no friends but can deal with people in superficial situations-I worked with the public- as long as I am in control. My main feeling is that of not belonging among people. Good luck with all your travels through life.
@@ancientexercise8973 I have no friends at present but as a child I had quite a few. I would have friends that lived in the same neighborhood(almost like a village) and we just stuck together. I am very loyal to friends but lost some of my long term friends through time and distance. I guess I don't have the ability to reach out to friends and family at a distance(it always seems an insurmountable task) but once with them I am fine. I guess it is part of the syndrome but I know that others that I meet don't have the same issues(the so called normals).
Thank you - this is exactly what I've been looking for. I've had a surprisingly hard time finding detailed information about what ASD evaluations are like. I'm seeing a neurologist soon and I think, based on my issues, I might be referred to get an evaluation. Maybe not, but I like to be prepared. I wish you luck with your own efforts. Also, I hope you don't mind me asking, but why is it that you weren't diagnosed when you were younger? I would've been screened for neurological conditions earlier, but my mom refused to let the doctors test me after I was flagged.
good luck with your evaluation. The reason I wasn't diagnosed as a kid is because high functioning autism wasn't as recognised then and I was exceptionally academic so the teachers just didn't see it. all the behaviour problems happened at home. I was passed off as shy and my meltdowns deemed normal child tantrums.
Sounds so invasive!! I'm on a waiting list. I don't know how it was missed when I was younger, although I suppose there wasn't much information on autism yet, much less in girls. It's so frustrating that it takes so long to be assessed. It is over a year and thousands of dollars in the private sector and two years wait time in the public sector.
I'm getting tested next week . I'm really grateful for this video but also really really nervous . I didn't know there were activities to do . Hands on things make me really really uncomfortable especially under pressure ..
I really I think I have ASD and I feel like the only person that takes me seriously is my girlfriend everytime I try to talk to my dad or anyone else they dont understand or they tell me something is "normal" when I know it's not or they try to say I do something because of another reason like they try to justify it or normalize it and it makes me feel so invalid
wow you test sounded very intense especially the part where he asked you personal questions about relationships, thanks for sharing. I got diagnosis in 2015 so I could have more time with my assessment in college which I badly needed. My assessment involved a lot of talking about the teenage years with regards to social interaction and basic problem solving skills and other IQ tests I think I started 9:00 am and finished around 3:00 if was funny I was give a sheet to fill in and a soon as I was in the middle of writing my name down the psychologist can into the wait room to greet me which I didn't notice her as my back was turned from the entrance and she took it as an aspergers trait lol the worst part was her English was the best so I had a hard time trying to understand her. I find the worst part of my aspergers is that I give up to easily when the going get tough. I'm now 30 and I'm going to get my BA in fine art come June 2019 which will be my biggest achievement so far I'm both happy and annoyed that I waited this long. Anyways my message to any person who is in 3rd level education and is going though a tough patch don't give up there will be crappy times but stick with it as it will be worth in the end.
It’s supposed to be. It’s not supposed to be fun for autistic people. It’s designed to break you and chip at your mask until it breaks. A lot of people cry during the test.
I was diagnosed almost 3 years ago this summer/autumn time at CAMHS and they asked about relationships and whether I’d marry a guy - needless to say that made me extremely awkward but they let my mum in the room with me cuz I got super scared in the first place. BUT LIKE IT SHOULD BE NONE OF THEIR BUSINESS TO DATING AND MARRYING - especially they assuming me as straight. Plus I was questioning back when I was 14. But yh now I know. (I go by split attraction model) - I’m asexual but panromantic and I have a crush on this girl at my sixth form (I’ll be yr13 in September 2018) - so even at the time i was pretty annoyed. I guess that’s heteronormativity for you ppl unfortunately :(. Also they made me do some rlly babyish stuff and they made me play with toy cars and toy dinasaurs and when I mentioned I love playing video games singing and playing my violin (grade 5/6) i got shut down by the person assessing me - like what the? how rude. I still remember it clear as day. It’s so cringeworthy & humiliating how they assessed me. I literally cannot get over it. Plus the paper pre-questionnaire some of the questions freaked me out so much that I get flashbacks still even now. Also not to mention I was physically exhausted and drained afterwards especially since it happened on a school day when I was in year9 (2015). Anyone relate to me?!
It's a struggle every day to pull through until the next whether you have the offical stamp or not. Nothing really changes after diagnosis for you personally.
Holy cow it was a 3 hour long Assessment, you were brave to go through that. I was diagnosed by a few Psychiatrists and Psychologists with High Functioning Autism quite a few years ago but the problem was that all of them said that they no longer can diagnose Adults since they switched to diagnosing kids. So now I'm trying to find some help where I'm living in Hillsboro, Oregon to be able to get a diagnoses. It's been tricky and really hard to find.
The day I from out I had autism (aspergers because it was still under the DSM-4) it only took like an hour but the doctor knew it within seven minutes. But if he had me do those tests and talk about the birds and bees I wouldn't come back. Not even for candy and soda.
all i got done to be diagnosed was do this assessment called ADOS-2 basically a pattern you have to solve with pieces, then there was this book with flying frogs... but she asked questions about friends and stuff and what's the difference between friends and lovers and stuff like this.. she also pulled out toys and told me to make up a story... next day my dad had to answer like 3 hours of questions on the phone then in like a week I got a letter and a email explaining my diagnosis was ASD-1. They recommended me also be assessed for ADHD and OCD which I did and was also diagnosed with them also. Oh I also had to act out washing my teeth with an imaginary sink and stuff.
I had the ADOS test today and tomorrow have the IQ & sensory profiling bit. I found it draining - mainly because I was pretty useless at it! I hope you get your report soon.
I had 3 cameras on me and was observed remotely for almost everything. Had many of the same tests, but also a lot of drawing from memory after seeing a complex geometric figure, word associations and definitions, plus a full IQ tests, then a bunch of lengthy questionnaires. Should have my report back soon and plan to make a video for it.
I was 16 and my assessment was different I was sat in a room with an educational psychologist and a psychiatrist and then outside the room there was a team of people observing me and taking notes. they asked me a-bit about my childhood and then they just got me to do different activities (they didn’t do the lunch thing) and the assessment only took 1 and a half to 2 hours and I got my diagnosis on the day
Thank you for this video it was really informative. I'm a bit concerned cause my assessment only lasted an hour. I was alone and received 2 or 3 sheets of A4 as my report. I've seen others like yourself say they have had more intense assessments. Hope you get your report soon ☺
I have my assessment tomorrow. I purposely didn't make notes because I'd been told from other people elsewhere in the world I didn't need to. Now it's 3.20am in the UK and I'm getting anxious thinking I've got to make a list of stuff and notes. Ughhhhhhhhh.
Have you already had the interview where they ask you about your childhood and stuff? I made a list for that including social problems, sensory issues, stims, the fact I avoid people and have few friends etc. That was just so I didn't forget. If it's the actual assessment then you won't need to take notes. Good luck & try not to worry.
I have my assessment tomorrow and I'm TERRIFIED!!! My 19 year old daughter was told she didn't have Aspergers after 2hours and I'm frightened they'll do that to me too 😱
I feel the same way as you. I live in France and they do not even acknowledge aspergers in females yet or just in certain parts of France. So, I have to go in with the high functioning autism and already, having mentioned it to two different "professional" females, got laughed at, so am dreading it.
What happened?? I'm worried the assessor won't be familiar with more female presentations of autism and she'll say my voice isn't monotone or whatever so I'm not autistic haha :(
Thank you for this video and Wish I watched it before mine. I am 46 and spent 7 hours talking and was completely exhausting,I had to wait 3 months for the report.
Intresting I had my assessment last week was slightly diffrent x we went over all qestinares I had filled in they asked me lots of questions like social and communication mental health etc and was only 1 person in the room my mum stayed in room whole time they asked her questions in same room x
It's clear that autism diagnosis assessments differ in process but should always aim to determine ASD characteristics as specified in the most up to date version of the DSM. In my assessment I began by sharing my own perception of what I consider to be an unreliable DSM criteria, not due to the criteria in itself but due to the uncertainty within the psychiatry community over the DSM series particularly since 1994 when DSM IV was published. DSM does not outline recommended treatment and services for mental disorders so the variation in diagnosis process i.e. type of questions, observations etc, is always going to be exhaustive. DSM criteria always needs to reflect the current understanding of autism as determined by the APA (American Psychiatric Association) A full diagnostic assessment for ASD is a time and resource intensive pro- cess and places a potentially significant burden on the individual being assessed.
The psychiatrist didn’t ask so much questions about boy. Friends and my history. I had to do a puzzle with only one type of shape. And then I had to look into pictures book and should tell a story. I just described what I saw. At least the psychiatrist made me take 5 objects. He did the same. He started to tell his story, quite phantasyfull. I had objections that I could use for a real story. I couldn’t invent a story.I gave him a lot of written stuff. I should have given the papers on which my parents answered, they lie for standing good in the outside or if they benefit in any way. And they don’t know much about me because I wasn’t at home all the time. Most time I was in boarding schools and because I’m nearly blind the only thing that was odd for them that I didn’t watch them. I was diagnosed with PTSD earlier and so the psychiatrist wrote that there are many symptoms related to autism but he thinks they come from my PTBS. And the differences in autism between male and female is in my country totally unknown. So my special interests (that sometimes change) were considered as “normal”.
@@BecomingAutism I went with my girlfriend Rachel as she's the only family I have left, I was assessed by a psychiatrist who specialises in Autism and a mental health care professional, They separated me and Rachel and asked us questions for around 45munites and then they swapped us over and spoke to us for another 45munites, They couldn't believe it when Rachel said I don't get any support outside of her, They said the report usually takes up to 8 weeks but as I have a PIP assessment on Tuesday they said they will try and get a support letter out to me which would make me think perhaps I'm on the spectrum, I'll let you know what happens, Thanks.
Thanks for the video, very informative. I'm going to be assessed in a week and was (am) super anxious about it. As it wont be done in my first language (nor second to be fair, it will be in french), I'm specially worried about the language and communication part...
Becoming Savannah thanks! It's super difficult to find a medical team prepare to diagnose adults in my home country (Brazil), and I'm living in France now, I pass 11 months of the year here. I decided to finally go after the diagnosis because I hate not being sure of things and feeling like I'm overreacting but couldn't find anyone that speaks portuguese nor english so, french it is. I'm not comfortable with the language as I am with english but I guess I do speak it as I go to university here... Sorry for the ramble!
Hey your lucky to get tested. It’s awkward for me to live in this world bc no matter how I try to please ppl I never feel genuine care for them or connection it just feels weird to be with ppl on a close level.
I was asked at my assessment do I feel regret? I said I wish I could have been a better son to my mother and been more intune with her feelings as I find other people's feelings hard to read, I don't understand Love, Shame, Guilt or Embarrassment, My question is how are you with these Emotions? Thanks.
I find guilt a very hard one, I usually replay scenarios over in my head of situations I've been in where I feel guilt, to the point it drives me mad. I don't do it as much anymore but its still there. In terms of shame and embarrassment, I do get these a lot due to low self esteem but I do struggle to identify sometimes if I should feel these emotions or when I should feel them.
Have you got your results yet? Also if you don't mind me asking, but how old are you? (over 18?) I had my assessment over a year ago and I think the way they test adults is super different to how they test children/teenagers, apart from talking about loads of stuff and doing the story object thing.
I’m on the waiting list but even after I explained everything about my symptoms in childhood and how Afab autism differs from amab autism my parents are still adamant that I’m not autistic cause I Wasn’t the amab style so I’m pretty sure they won’t diagnose me cause my parents suck
Hey again. Just wanted to update you that I had my own assessment on Friday. Sadly it wasn't like yours. I was told that I can't possibly be autistic because I let my partner sit down. They refused to even do the ADOS test because of their outdated stereotypes. I've just put up a vid about it. I'm so sad right now :( feeling totally flat.
I'm so sorry to hear that! Was it an NHS assessment? Please, please don't give up. Try and ask for a second opinion if possible. I hate how outdated the tests are. Unfortunately the place I had my assessment closed a few months afterwards 😔
@@BecomingAutism Yeah it was NHS :/ I’m going to ask for a second opinion but might have to wait for the results of this one to come back formally before I’m allowed. Yeah, they are very outdated and inappropriate for adults. They need to be taken with a pinch of salt tbh. In fact, even the service manager of the place I went to has published an article in a journal 2 months ago saying the ADOS-2 is ineffective at predicting autism diagnosis, and yet that’s what they scheduled me for before dismissing me. So strange.
I was ripped off. I paid £1000 for a private diagnostic session. My test was not like yours and I believe some standardisation is necessary, if a diagnosis is going to be meaningful. I strongly believe that the expert on autism is generally the person with an autistic spectrum disorder. I don't think psychologists, psychiatrists and speech therapists, who are neurotypical, should be allowed to diagnose on their own. I think there should be a panel with one autistic member, preferably of the same gender as the candidate, because the presentations are so different between genders, from what I have read. I am disgusted at the length of time that you have had to wait, because this means you may have been struggling with difficulties, that access to support, advice and services could have reduced. As your own expert on your own presentation, what things do you think would help you to enjoy your life more and to achieve what you would like to achieve?
It’s not a transaction. You are font buying a diagnosis. Your are paying for the evaluation. Also, you went to a private provider, which means they have creative freedom.
You don't need to be a kid to chew on something. People chew gum, they bite on vape pens or a toothpick. I guess that makes it more acceptable and adult looking to some. I figure if someone is biting on a chew toy, they must have a need or reason. The majority of people, especially those who may be already socially ostracized, don't want to look out of place or draw attention to themselves, so it must be necessary. The behavior is not noisy or disruptive. Everyone, even NT has some kind of a crutch in life to help them cope. I am not meaning "crutch" as a negative. Thank you for sharing your testing experience. I know it was stressful and difficult for you, even before you ever even went to your appt. Blessings to you and in your journey.
The day they actually create a test for females (not just males) on the spectrum will be a day to celebrate. Thank you, for sharing your experience!
Huh? Are there different symptoms for male and female? If so what are they?
hey, girls with autism do presentely differently. Feel free to check out my videos on autism in girls and the differences on my channel
I wouldnt survive with 2 hours of questioning as i will feel trapped and uncomfortable/irritated.. and just want everything around me to stop asking bloody questions
Blacide 2327 right? Fuck that. Hahaha
That’s the point. They’re trying to break you. Neurotypicals can handle it.
I just got diagnosed Tuesday 31/05/22.. waited 2.5 yrs for my NHS appointment. I have to wait for my report 2-3 weeks then have a questions & support meeting this coming month. I’m glad I’m not crazy or mad like I was feeling before getting diagnosed. Intrigued to read the report. I did the Aspie Quiz, RAADS & AQ tests as part of my preparation for assessment. Finally I feel at peace and happy with who I am and I’ve found my tribe. Now the work to learn how to unmask everyday will begin, I’ve done it so long on auto-pilot for decades, it will be quite the journey and challenge.
I didn't realise the process was so long made me anxious already I'm going to go through process soon 😔
good luck, you'll be fine!
How did it go?
That might help your case! Lol
How did it go? Mine is in June..
The process for adults is completely different to the children's one except the making a story with the objects, the process is really hard, I hope you hear the results soon
thank you
Rohan that is a dumb comment. The lady in this youtube posting is providing information that is well presented and helpful to lots of people for different reasons.
Nigel Baldwin Dumb or intelligent, I have seen the horrors firsthand, that autism's representation has inflicted, or overseen the infliction upon, those they view as a subhuman collective, for having the label laid upon them in the first place. So i seek to work my way to humanity, having uncovered a ways for self-emancipation from the brand.
I thus pose an existential threat to autism itself with my coaching its collective to enter the workforce by any means necessary, especially self-employment and the answering of want ads. Heck, i'm even designing a game around it, where the goal is to emancipate yourself from a subhuman collective you get to name, and then work or fight towards its abolition!
For these reasons, my own mother is plotting to eliminate me if she cannot have me completely subdued, intending to protect my own autistic status from my efforts to mutate it. As an existential threat to me, she must be charged with false accusations, fraud, and attempted murder, as well as have made known her history of domestic violence, child abuse, blackmail, conspiracy, and exploiting her own children. What she's protecting in the end though, is her historic crutch, now trump card.
Late stage capitalism at its finest
Thank you for the information.
Just got back from my assessment today, aged 44. I was on the waiting list for an assessment for almost two years. Thanks for putting this video out, it was very useful for me in the lead up once the date had been confirmed. I was so anxious once the date was set I could barely think. Just wanted to say persevere to all those still waiting or thinking of trying to get a diagnosis. Such a relief. Still waiting on my official report but the diagnosis was confirmed.
im glad it helped!
Omg I hope it doesn't take so long... I need answers I'm going crazy 😭
How did it go?
@@Jay-ys2cf It was OK in the end, the process of assessment was not as grueling as I feared! To be honest the hardest part of the process is getting on the waiting list to begin with.
I took the on line test and scored 34 out of 50. I am 62 years old. I live in the U.S. so my cultural experiences may be different from(or as you say different to,I think) yours. I feel that anyone on the spectrum who has a higher I.Q.( mine is 145- can "pass" to an extent in society.) I have no friends but can deal with people in superficial situations-I worked with the public- as long as I am in control. My main feeling is that of not belonging among people. Good luck with all your travels through life.
I've not been yet. But really don't want to. I'm already dyslexic and I've got ADHD I don't think I could handle it if I found out that I had that too
I don't really have friends either.
@@ancientexercise8973 I have no friends at present but as a child I had quite a few. I would have friends that lived in the same neighborhood(almost like a village) and we just stuck together. I am very loyal to friends but lost some of my long term friends through time and distance. I guess I don't have the ability to reach out to friends and family at a distance(it always seems an insurmountable task) but once with them I am fine. I guess it is part of the syndrome but I know that others that I meet don't have the same issues(the so called normals).
128-- can pass among strangers, but at work, I am still the weirdo at 54.
Thank you - this is exactly what I've been looking for. I've had a surprisingly hard time finding detailed information about what ASD evaluations are like. I'm seeing a neurologist soon and I think, based on my issues, I might be referred to get an evaluation. Maybe not, but I like to be prepared. I wish you luck with your own efforts.
Also, I hope you don't mind me asking, but why is it that you weren't diagnosed when you were younger? I would've been screened for neurological conditions earlier, but my mom refused to let the doctors test me after I was flagged.
good luck with your evaluation. The reason I wasn't diagnosed as a kid is because high functioning autism wasn't as recognised then and I was exceptionally academic so the teachers just didn't see it. all the behaviour problems happened at home. I was passed off as shy and my meltdowns deemed normal child tantrums.
Sounds so invasive!! I'm on a waiting list. I don't know how it was missed when I was younger, although I suppose there wasn't much information on autism yet, much less in girls. It's so frustrating that it takes so long to be assessed. It is over a year and thousands of dollars in the private sector and two years wait time in the public sector.
I'm getting tested next week . I'm really grateful for this video but also really really nervous . I didn't know there were activities to do . Hands on things make me really really uncomfortable especially under pressure ..
each assessment is different - good luck!
I really I think I have ASD and I feel like the only person that takes me seriously is my girlfriend everytime I try to talk to my dad or anyone else they dont understand or they tell me something is "normal" when I know it's not or they try to say I do something because of another reason like they try to justify it or normalize it and it makes me feel so invalid
That’s “normal” for them to do that because they care and don’t want you to stress on it.
wow you test sounded very intense especially the part where he asked you personal questions about relationships, thanks for sharing. I got diagnosis in 2015 so I could have more time with my assessment in college which I badly needed. My assessment involved a lot of talking about the teenage years with regards to social interaction and basic problem solving skills and other IQ tests I think I started 9:00 am and finished around 3:00 if was funny I was give a sheet to fill in and a soon as I was in the middle of writing my name down the psychologist can into the wait room to greet me which I didn't notice her as my back was turned from the entrance and she took it as an aspergers trait lol the worst part was her English was the best so I had a hard time trying to understand her. I find the worst part of my aspergers is that I give up to easily when the going get tough. I'm now 30 and I'm going to get my BA in fine art come June 2019 which will be my biggest achievement so far I'm both happy and annoyed that I waited this long. Anyways my message to any person who is in 3rd level education and is going though a tough patch don't give up there will be crappy times but stick with it as it will be worth in the end.
That’s good. They intentionally try to break you down.
Thankyou so much for explaining the process, its so hard to find on the internet.
Gives me anxiety hearing you describe the test. Not pointed at you... the test itself sounds dreadful. :(
@@judip.6805 please explain your comment. I dont understand it.
It does sound like a lot. Mine is in a month and I'm not looking forward to it.
It’s supposed to be. It’s not supposed to be fun for autistic people. It’s designed to break you and chip at your mask until it breaks. A lot of people cry during the test.
I was diagnosed almost 3 years ago this summer/autumn time at CAMHS and they asked about relationships and whether I’d marry a guy - needless to say that made me extremely awkward but they let my mum in the room with me cuz I got super scared in the first place. BUT LIKE IT SHOULD BE NONE OF THEIR BUSINESS TO DATING AND MARRYING - especially they assuming me as straight. Plus I was questioning back when I was 14. But yh now I know. (I go by split attraction model) - I’m asexual but panromantic and I have a crush on this girl at my sixth form (I’ll be yr13 in September 2018) - so even at the time i was pretty annoyed. I guess that’s heteronormativity for you ppl unfortunately :(. Also they made me do some rlly babyish stuff and they made me play with toy cars and toy dinasaurs and when I mentioned I love playing video games singing and playing my violin (grade 5/6) i got shut down by the person assessing me - like what the? how rude. I still remember it clear as day. It’s so cringeworthy & humiliating how they assessed me. I literally cannot get over it. Plus the paper pre-questionnaire some of the questions freaked me out so much that I get flashbacks still even now. Also not to mention I was physically exhausted and drained afterwards especially since it happened on a school day when I was in year9 (2015). Anyone relate to me?!
It's a struggle every day to pull through until the next whether you have the offical stamp or not. Nothing really changes after diagnosis for you personally.
Holy cow it was a 3 hour long Assessment, you were brave to go through that. I was diagnosed by a few Psychiatrists and Psychologists with High Functioning Autism quite a few years ago but the problem was that all of them said that they no longer can diagnose Adults since they switched to diagnosing kids. So now I'm trying to find some help where I'm living in Hillsboro, Oregon to be able to get a diagnoses. It's been tricky and really hard to find.
The day I from out I had autism (aspergers because it was still under the DSM-4) it only took like an hour but the doctor knew it within seven minutes. But if he had me do those tests and talk about the birds and bees I wouldn't come back. Not even for candy and soda.
yeah it was very awkward!
How did you know they knew within 7 minutes? Did they tell you?.
all i got done to be diagnosed was do this assessment called ADOS-2 basically a pattern you have to solve with pieces, then there was this book with flying frogs... but she asked questions about friends and stuff and what's the difference between friends and lovers and stuff like this.. she also pulled out toys and told me to make up a story... next day my dad had to answer like 3 hours of questions on the phone then in like a week I got a letter and a email explaining my diagnosis was ASD-1. They recommended me also be assessed for ADHD and OCD which I did and was also diagnosed with them also. Oh I also had to act out washing my teeth with an imaginary sink and stuff.
Thank you for the video ! I am 19 years old too and I get my assessment it’s hard I know but I don’t take stress .
Thank you for this video. Sharing your report is a show of strength, I look up to you.
thank you so much!
I had the ADOS test today and tomorrow have the IQ & sensory profiling bit. I found it draining - mainly because I was pretty useless at it! I hope you get your report soon.
it definitely is draining! i still haven't heard anything.
Oh no :( I hope you find out soon - I feel quite anxious waiting.
Thanks for sharing your experience. I have mine coming up and it sounds incredibly frustrating and patronising in parts :(
I had 3 cameras on me and was observed remotely for almost everything. Had many of the same tests, but also a lot of drawing from memory after seeing a complex geometric figure, word associations and definitions, plus a full IQ tests, then a bunch of lengthy questionnaires. Should have my report back soon and plan to make a video for it.
Mine was slightly over 4 hours with basically no breaks the
I was 16 and my assessment was different I was sat in a room with an educational psychologist and a psychiatrist and then outside the room there was a team of people observing me and taking notes. they asked me a-bit about my childhood and then they just got me to do different activities (they didn’t do the lunch thing) and the assessment only took 1 and a half to 2 hours and I got my diagnosis on the day
What country did you get your diagnosis?
I always thought that was a young person illness what symptoms did you have?
Thank you for making this video.
Thank you for this video it was really informative. I'm a bit concerned cause my assessment only lasted an hour. I was alone and received 2 or 3 sheets of A4 as my report. I've seen others like yourself say they have had more intense assessments. Hope you get your report soon ☺
china black thank you! All assessments are different, as long as you got your answer :)
Thank you for the great video. I am not sure of your name, but see you're from the UK. Many thanks :)
I have one tomorrow and have been waiting for months. Kind of anxious but I made a list so I don't forget anything, I appreciate the video!
I have my assessment tomorrow. I purposely didn't make notes because I'd been told from other people elsewhere in the world I didn't need to. Now it's 3.20am in the UK and I'm getting anxious thinking I've got to make a list of stuff and notes. Ughhhhhhhhh.
Have you already had the interview where they ask you about your childhood and stuff? I made a list for that including social problems, sensory issues, stims, the fact I avoid people and have few friends etc. That was just so I didn't forget. If it's the actual assessment then you won't need to take notes. Good luck & try not to worry.
I made notes simply because I wanted to make sure I covered everything I was concerned about as my memory is awful. Good luck
Also having my assessment tomorrow and now its 3.15 in Germany and I am getting anxious
I have my assessment tomorrow and I'm TERRIFIED!!! My 19 year old daughter was told she didn't have Aspergers after 2hours and I'm frightened they'll do that to me too 😱
I feel the same way as you. I live in France and they do not even acknowledge aspergers in females yet or just in certain parts of France. So, I have to go in with the high functioning autism and already, having mentioned it to two different "professional" females, got laughed at, so am dreading it.
What happened?? I'm worried the assessor won't be familiar with more female presentations of autism and she'll say my voice isn't monotone or whatever so I'm not autistic haha :(
I'm going through the process atm and this video was comforting to watch. Thankyou
oh., thank you! good luck with your diagnosis
Thank you for this video and Wish I watched it before mine. I am 46 and spent 7 hours talking and was completely exhausting,I had to wait 3 months for the report.
wow! it is definitely exhausting
Mine was nothing like my partners ;-) his was well quick
Stay strong girl!
Whatever anything else ..... lots of love to you ....
Thank you, this is really helpful.
Intresting I had my assessment last week was slightly diffrent x we went over all qestinares I had filled in they asked me lots of questions like social and communication mental health etc and was only 1 person in the room my mum stayed in room whole time they asked her questions in same room x
quite similar then
I did my test 2 weeks ago, tomorrow I’ll be going in to get my results
This was really helpful. I’m getting my first assessment in three days
I'm feeling freaked out and i have to take mine soon......(I'm a girl btw)
It's clear that autism diagnosis assessments differ in process but should always aim to determine ASD characteristics as specified in the most up to date version of the DSM.
In my assessment I began by sharing my own perception of what I consider to be an unreliable DSM criteria, not due to the criteria in itself but due to the uncertainty within the psychiatry community over the DSM series particularly since 1994 when DSM IV was published.
DSM does not outline recommended treatment and services for mental disorders so the variation in diagnosis process i.e. type of questions, observations etc, is always going to be exhaustive. DSM criteria always needs to reflect the current understanding of autism as determined by the APA (American Psychiatric Association) A full diagnostic assessment for ASD is a time and resource intensive pro-
cess and places a potentially significant burden on the
individual being assessed.
Your videos are more honest than aspie world. Thank you
The psychiatrist didn’t ask so much questions about boy. Friends and my history. I had to do a puzzle with only one type of shape. And then I had to look into pictures book and should tell a story. I just described what I saw. At least the psychiatrist made me take 5 objects. He did the same. He started to tell his story, quite phantasyfull. I had objections that I could use for a real story. I couldn’t invent a story.I gave him a lot of written stuff. I should have given the papers on which my parents answered, they lie for standing good in the outside or if they benefit in any way. And they don’t know much about me because I wasn’t at home all the time. Most time I was in boarding schools and because I’m nearly blind the only thing that was odd for them that I didn’t watch them. I was diagnosed with PTSD earlier and so the psychiatrist wrote that there are many symptoms related to autism but he thinks they come from my PTBS. And the differences in autism between male and female is in my country totally unknown. So my special interests (that sometimes change) were considered as “normal”.
I have my assessment this Wednesday coming at 10AM at the complex mental health department at the stein centre in St cathes hospital.
how was it?
@@BecomingAutism I went with my girlfriend Rachel as she's the only family I have left, I was assessed by a psychiatrist who specialises in Autism and a mental health care professional, They separated me and Rachel and asked us questions for around 45munites and then they swapped us over and spoke to us for another 45munites, They couldn't believe it when Rachel said I don't get any support outside of her, They said the report usually takes up to 8 weeks but as I have a PIP assessment on Tuesday they said they will try and get a support letter out to me which would make me think perhaps I'm on the spectrum, I'll let you know what happens, Thanks.
@@BecomingAutism I got a support letter today to tell me I've got Autism today and I'll get my full official report in eight weeks.
Thanks for the video, very informative. I'm going to be assessed in a week and was (am) super anxious about it. As it wont be done in my first language (nor second to be fair, it will be in french), I'm specially worried about the language and communication part...
you're welcome! May I ask why its not in your first language? good luck with it!
Becoming Savannah thanks!
It's super difficult to find a medical team prepare to diagnose adults in my home country (Brazil), and I'm living in France now, I pass 11 months of the year here. I decided to finally go after the diagnosis because I hate not being sure of things and feeling like I'm overreacting but couldn't find anyone that speaks portuguese nor english so, french it is. I'm not comfortable with the language as I am with english but I guess I do speak it as I go to university here... Sorry for the ramble!
oh wow good luck with! see if they can get a translator when your report does come through
Hi Savannah I am currently being assessed by CAMHS for ASD have you done the questionnaire part what is it used for?
Yes, the questionnaire scores you on autism traits
Hey your lucky to get tested. It’s awkward for me to live in this world bc no matter how I try to please ppl I never feel genuine care for them or connection it just feels weird to be with ppl on a close level.
I got diagnosed with autism when I was a baby
@Menolikeit Me a 2 year old is a baby
My autisum plays up the most if I'm hot
Ashley Pickford dame
Same
Relatable. Best to stay cool with a big fan in front of your face for ages
They call me so dramatic when I feel any kind of pain or change in temperature, but it IS that dramatic for me.
I’m not sure this is anything like my autism assessment will be, because I’m only 12, but thanks! It’s going to be December before I get results ugh
homosexual duck how did it go?
I was asked at my assessment do I feel regret? I said I wish I could have been a better son to my mother and been more intune with her feelings as I find other people's feelings hard to read, I don't understand Love, Shame, Guilt or Embarrassment, My question is how are you with these Emotions? Thanks.
I find guilt a very hard one, I usually replay scenarios over in my head of situations I've been in where I feel guilt, to the point it drives me mad. I don't do it as much anymore but its still there. In terms of shame and embarrassment, I do get these a lot due to low self esteem but I do struggle to identify sometimes if I should feel these emotions or when I should feel them.
Have you got your results yet?
Also if you don't mind me asking, but how old are you? (over 18?) I had my assessment over a year ago and I think the way they test adults is super different to how they test children/teenagers, apart from talking about loads of stuff and doing the story object thing.
No not yet we've complained. And I was 19 at the assessment
I’m on the waiting list but even after I explained everything about my symptoms in childhood and how Afab autism differs from amab autism my parents are still adamant that I’m not autistic cause I Wasn’t the amab style so I’m pretty sure they won’t diagnose me cause my parents suck
wonderful thank you
I have an appointment at a clinic December 6th. Can’t remember if they said that’s the assessment date or not.
Thank you Becoming Autism for your video. 😊
Hey again. Just wanted to update you that I had my own assessment on Friday. Sadly it wasn't like yours. I was told that I can't possibly be autistic because I let my partner sit down. They refused to even do the ADOS test because of their outdated stereotypes. I've just put up a vid about it. I'm so sad right now :( feeling totally flat.
I'm so sorry to hear that! Was it an NHS assessment? Please, please don't give up. Try and ask for a second opinion if possible. I hate how outdated the tests are. Unfortunately the place I had my assessment closed a few months afterwards 😔
@@BecomingAutism Yeah it was NHS :/ I’m going to ask for a second opinion but might have to wait for the results of this one to come back formally before I’m allowed.
Yeah, they are very outdated and inappropriate for adults. They need to be taken with a pinch of salt tbh. In fact, even the service manager of the place I went to has published an article in a journal 2 months ago saying the ADOS-2 is ineffective at predicting autism diagnosis, and yet that’s what they scheduled me for before dismissing me. So strange.
i have one of these coming up. omg i want to vomit. STRESS
I love your shirt Savannah, where did you buy it ?
Im going to go through the process soon
I can see how some of those evaluations are based on stereotypes and autism in males more specifically.
I aslo find it way more easier to write things down than to say it out loud.
Got my assesment tomorrow and am SO SCARED
Good luck!
Courtney17_ How did it go?
I think the only thing I could do was the story thing because I'm a writer
Thank you for sharing
where was you assessed? I've been referred to maudsley hospital.
Sounds like utter hell.
it was a difficult day
Cute..great video
Wow my test was nothing like that
how to set up assessment please
I'm going tomorrow
I hope that it was good ????
it was draining
So… an IQ test? Joy
I was ripped off. I paid £1000 for a private diagnostic session. My test was not like yours and I believe some standardisation is necessary, if a diagnosis is going to be meaningful. I strongly believe that the expert on autism is generally the person with an autistic spectrum disorder. I don't think psychologists, psychiatrists and speech therapists, who are neurotypical, should be allowed to diagnose on their own. I think there should be a panel with one autistic member, preferably of the same gender as the candidate, because the presentations are so different between genders, from what I have read. I am disgusted at the length of time that you have had to wait, because this means you may have been struggling with difficulties, that access to support, advice and services could have reduced. As your own expert on your own presentation, what things do you think would help you to enjoy your life more and to achieve what you would like to achieve?
It’s not a transaction. You are font buying a diagnosis. Your are paying for the evaluation. Also, you went to a private provider, which means they have creative freedom.
i stopt the video at about 3 min you talk to much to fast
scroeffie sorry it’s just part of my autism
@@BecomingAutism meanwhile I watched it on 1.25 speed. XD You're fine.
@@BecomingAutism you didn’t seem to talk too fast to me.
Sorry why do you have a chooey toy you are not a kid but some people do like stress toys and stuff I do
I have Autism and sensory processing so when I get overwhelmed I bite myself
I bite my lip bloody when I get stressed. Thinking about making a bite necklace.
You don't need to be a kid to chew on something. People chew gum, they bite on vape pens or a toothpick. I guess that makes it more acceptable and adult looking to some. I figure if someone is biting on a chew toy, they must have a need or reason. The majority of people, especially those who may be already socially ostracized, don't want to look out of place or draw attention to themselves, so it must be necessary. The behavior is not noisy or disruptive. Everyone, even NT has some kind of a crutch in life to help them cope. I am not meaning "crutch" as a negative. Thank you for sharing your testing experience. I know it was stressful and difficult for you, even before you ever even went to your appt. Blessings to you and in your journey.