This was the worst surgery i've ever had (and I had my leg cut off twice)
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- Опубликовано: 2 окт 2024
- Forever grateful for all the help that my friends & family came around me with. 💜
Why I had to have the surgery: • Another amputation sid...
#Amputation #Surgery #Hospital
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My Amputation Story!
Fourteen years of pain and failed ankle surgeries brought me to 2018, when I made the difficult decision to become a twenty-seven-year-old below-the-knee elective amputee. This channel has documented my journey adjusting to life with a visible disability as an amputee, and continues to be a haven to discuss physical and mental health!
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Dude, you don't sound "victimy". If we don't talk about medical mistakes, nothing will ever change. It's literally their job to make sure this shit doesn't happen. Yes the system is overburdened and yada yada, but there's still a huge problem at the individual level with far too many healthcare workers. They don't understand pain nearly enough. They don't pay enough attention. Then something goes wrong and they mismanage and neglect complications. They need to be held accountable. Thank you for talking about it and I'm so sorry you went through this!!
Very good point and well said!
I agree! I feel like they should be tasered once to experience high level pain, maybe that would help them feel some more compassion for their patients…
That's not even mentioning how many pain studies are over represented in white, middle-aged men. Just acknowledging that different communities tend to handle pain meds differently is rare. Pain is dismissed unless it can be seen and even then it's under managed.
A friend of mine had a lobectomy of her right lung. This woman had her chest cracked and was allergic to locals. Any "caine" caused anaphylaxis. Yet because of fear of "the opioid crisis" the hospital wouldn't prescribe any. She had a mild heart attack due to tachycardia and blood pressure due to pain. She is the toughest woman I have ever met.
well said.
honestly if a doctor ignored you talking about having symptoms of cervical [or other] cancer and then found it later at stage 3 you'd have just as much cause to complain and educate.
When I was younger my good friend's mom who was a nurse at practicing nurse at the time when in to have the gastric sleeve put on. She'd never had a major surgery in her life and so had never dealt with trauma level pain.
In my family we don't let anyone go to the hospital without an advocate for them if we can help it and by advocate I mean so when my mom was in the hospital I got to know the nurses at the front because I could be there during visiting hours for her and make sure that things weren't slipping through the cracks.
I will never forget her telling me about 2 days in that she would never look at pain management in the same way again. If you haven't been through high level chronic high level or chronic pain you really don't understand what that means. My friend's mom went on to be a much better nurse. Because she now understood traumatic pain and was on top of that because she got it finally She understood She could empathize instead of sympathize. That there is a world of difference between those two words
As someone who deals with chronic pain on a daily basis, my heart absolutely goes out to you. The US Healthcare System is revolting. The old phrase “one bad apple spoils the whole bunch” is spot on in this particular industry. The fact we have to accept the punishment due to other’s addictions is unbelievable. Rather than making drs responsible for closely monitoring an individual taking pain meds, they’d rather just avoid using them. I truly feel like if those in power had to live a day in our shoes, this wouldn’t be the case.
Without being in the shoes of someone with chronic pain or trauma level pain you cannot empathize.
Sympathy can only get you so far.
Empathy opens a door to a museum of complicated feelings and pain, pain/management and all of the stuff in between.
How about we also blame the idiots that abuse the system causing more problems than any doctor.
I used to date someone who was 1. A recovering addict (11 years clean) and 2. Had an infection and emergency surgery in their testicle. It was a mess! On the one hand, he has a high opioid tolerance, and was in significant pain. Needs meds. On the other hand, he was labeled "drug-seeking" because of his history of addiction, and also because of his behavior when he's stressed and in pain. He probably didn't need all the drugs he asked for, physically. But he was not doing well emotionally and asked for more. Especially bc his NA friends couldn't visit the hospital due to covid. Not even his sponsor. I was no help. And instead of any sort of help or support, the medical staff seemed antagonistic. They made things worse. They lied to him about how much medication and when he got it. They yelled at him to calm down. They withheld care. After the very first nurse, I don't think anyone tried to sit down and have a calm conversation with us. I'm not saying the staff were all good or bad, I'm not saying my ex was all good or all bad. Just trying to highlight the issues. It was messy.
Amen to that that
@@Heywoodthepeckerwood the doctors (and others in power) are the ones abusing the system.
A few years back, my daughter was carried into the ER in excruciating ab pain. The staff thought she was drug seeking. In the morning she was rushed into surgery as she was bleeding internally from a ruptured ovarian cyst. She almost died. Not to mention my own misdiagnosis told to go home and take a laxative. I had advanced colon cancer. Yup I know how bad the system is.
Prayers for you to mend quickly ❤❤❤❤❤❤
Lord sounds like Florida
A young mother died in emergency up here in Canada over New Years because they also thought she was drug seeking and didn't catch her bleed before she already had organ failure. She'd had a slow internal bleed for months following a horse riding accident.
Its disgusting.. absolutely disgusting that you can't seek help now without being labelled a drug seeker. I got trigeminal neuralgia after jaw surgery and put off surgery because I thought I would be treated that way until I ended up in the back.of an ambulance screaming and smashing my jaw with my fists because the pain was so bad...
After years of tests, CT scans, x-rays, blood draws, now I know why they label there "profession", practicing medicine.
The "drug seeking" accusation is infuriating. I have been dealing with debilitating pain down my entire left side and across my collarbone, as well as mysterious electrical shock sensations, for 15 years that nobody has been able to figure out - not that a single one of the specialists I saw actually tried that hard - and it wasn't until two weeks ago that my dentist figured out my jaw was misaligned. $800 to fix. 15 *years* of being called a hypochondriac and told I was just looking for attention or pain meds. Lost several jobs because I couldn't focus for entire days at a time. Just a misaligned jaw. Why don't they LISTEN to us.
This is why patient advocates are so important. Patients are just ignored so often. They are not believed when they say they are in pain, they are forgotten- it’s awful. Having someone there to stay on the ass of the medical personnel can be so helpful.
That's exactly why I take my dad with me to pretty much every doctor appt even tho I'm 35. But I'm female and I look younger than I am and I'm short and small and I'm not taken seriously when I advocate about my chronic health problems, especially the chronic pain. But my dad doesn't let them get away with shit and I'm very thankful he's willing to advocate for me. I definitely get better treatment when he's there.
Especially female patients in pain.
It's a necessity this day and age to have someone with you on a regular basis to make sure you are getting the care you need and to speak up for you when you are still under some sedation.
I've experienced "being forgotten" while bedridden in a hospital and NO ONE should ever have to go through that....ever. I felt betrayed and guilty in my neediness and lost a lot of trust in the people caring for me. We move past that and regain our pride with the help of close friends and family. Huge respect for all you're going through.
I was "forgotten" in the ER once. I was the only patient... The nurse just decided that I didn't deserve care because I summarized my symptoms as "food poisoning." She told me, a firefighter, it takes DAYS to become dehydrated. It takes... maybe an hour, in the right circumstances, and I had those circumstances. Someone I didn't get the opportunity to thank finally made her give me an IV about 5 hours later. She was shocked to find signs and symptoms of life-threatening dehydration. The only patient in the entire place and she almost killed me just to prove a point she was wrong about.
@@adde9506 oh my God, I'm so sorry! And angry! I hope she faces consequences
@@Kick0a0cat Knowing the system, she almost certainly won't unfortunately. They don't have enough people to punish the ones that keep getting it wrong. They just hope for the best that it doesn't happen again.
@@adde9506sounds like you almost killed yourself being irresponsible and not managing your hydration properly. If it was in the acct of being a firefighter I have no sympathy. Your know the risks of the job.
@@samhowl1152 EDs often tell people not to drink.
But also if it's food poisoning, it's coming straight out, you can't absorb anything anyway.
REALLY does not sound like you understand what the conversation is about...
Being a vicim doesn’t necessarily mean you have victim mentality. That was so brutal, you have to give yourself space not only to heal the wounds but also the horrific trauma. You have a lot of survival mentality.
Really really hope it turns out that the surgery will help in the end. ❤
God I hate the words "victim mentality". It's just a way to victim blame and silence people who have been hurt by others if they dare to acknowledge that they were hurt
I had an emergency c-section. After surgery I was immediately taken off IV meds and forgotten about. I had to call staff in and beg them for medication. This wasn’t once but every single time. On day 2 they decided to only give me Advil. It took the nurse looking at me for 30 mins shaking and crying to finally give me something stronger. You are not alone.
Yep happened to me in 2005.
C Section at 5:17p was awake almost the whole night.
Could be shock or excitement.
Apparently they changed pain killer protocols between kids.
I was getting all kinds of other meds so maybe 15 hours out nothing for pain
ADVIL????? You were cut open to get your baby out safe and they gave you ADVIL??
Like many here, including you Jessica F and Stephanie Howe, I've been tormented and even tortured by what I call the Anti Medication Inquisition: The high-handed, self-righteous, judgement-jumping, arrogant, persecution of those with Chronic Pain, in my case, or Acute Pain. In the USA since at least 2010 and the UK. I've been Medically Molested so many times by these misguidedly self-righteous admins and doctors etc. It's the flip side of the well known Opioid Epidemic: The Torture of those with Legitimate Pain. It's an Inquisition, like other Inquisitions. Like against Galileo, etc. In 2nd grade I was one of the last children to be tormented and traumatized by the Anti-Left-Handers Inquisition! My 2nd grade teacher was furious the school board wouldn't let her "Change me." So she took it out on me other ways. My mom got talking with a friend downtown: the friend shared she'd had a horrific 2nd grade teacher too. It was the same one! My Leftie mom had been locked in a closet for the "Boogey Man" to "Get" in 1st grade to make her write right handed. "You'll return on bended knee to thank me," the teacher claimed. Mom figured the Boogey Man might be less awful than her teacher. My Leftie grandma's left arm was tied behind her back in early elem. school, to force her to write Right handed. So another Inquisition.
@@jessicahoward9046 if you want to breastfeed, they can't give you anything else. But they'll give you the maximum Dose your liver can handle.
Pain level was ok for me, but I think an emergency C section that has to be done with a cut from top to bottom is way more painful.
@@jessicahoward9046 what? You mean getting a major abdominal surgery hurts? Woman are so whiny 🙄
As a nurse that used to work in a hospital, I’m so sorry that happened to you. I can’t imagine the suffering , both physically and emotionally you went through. Speedy healing❤❤
+
Yes, our system is broken. I was forgotten, in pain that was unbearable. Then I was released from rehab with zero pain meds. I love your videos but they also scare the shit out of me. I'm like you.... if it can go wrong medically, it will. I have several super rare medical conditions and now no leg. I feel your pain....literally. My prayers are with you.
I hope that never happens to you again 🫶
👋 Fellow 'medically, if it can go wrong it will, and/or I'll break in the absolute weirdest way possible' person here. Fighting to get a diagnosis for a frankly debilitating and painful issue that no one can figure out (and honestly, most doctors haven't cared to REALLY look at it and try, just 'eh, it's not surface-level and doesn't look like anything I recognize, sooo... *shrug*' - I do mean that they've legit shrugged and not answered when I asked for more tests and where I need to go/what I need to do to get diagnosed). Whatever it is it happened.... *checks notes* While I was sleeping on my back one night. No joke. Soooo... I feel ya. I just wish all of us (medically weird or not) didn't have to fight so hard to get the help and healing we need. Sending love ❤
This sent me back to some of my worst experiences in the ER. Particularly being abandoned, screaming in pain, for hours on end, is something that's happened to me multiple times. Once when I came in with what turned out to be kidney stones and was placed in a room and promptly forgotten about. No nurses, no tests, no medicine, for five hours. By the time they got pain meds into me the stones had already almost entirely passed; somehow they were capable of hearing full volume screams and not popping in to see what the issue was. Then another time I was brought in by ambulance with chest pain and severe dizziness, and left in the waiting room strapped into one of those locked wheelchairs because I could not walk and they didn't want me falling out. I blacked out in the wheelchair; they never discovered me or checked on me. I woke up in the same wheelchair a few hours later, delirious, managed to get my restraints off, and wandered out into the parking lot, IV still in my arm. I walked right past the front desk and security to get out, but no one seemed to be concerned about a delirious patient, IV still in arm, wandering into traffic.
The fear in your voice mirrors mine; I have medical PTSD from it all (and I'm sure you do too) because being helpless and abandoned and in pain is one of the most terrifying experiences one can have. When we have these medical procedures, we are agreeing to put our lives in the hands of nurses and doctors. We are consenting to let ourselves be put in a potentially more dangerous situation, where our abilities and personal freedoms are limited (the number of times I've been unable to even get the pain relief I'd be able to get with OTC pain pills that I simply was not allowed to take bc I was in an ER!!!!!!!) and we are at higher risk, because there is an understanding they will take care of us. When that pact breaks down, the result is, quite frankly, hell.
I’ve been there 😢it’s the most awful thing ever
I’ll give you some matches if you want
Next time you have kidney stones, it might be better to go to an urgent care center than ER. My late husband had kidney stone issues and we found that he got better and quicker care in an urgent care center than an ER for a fraction of the price.
OMG. I am so sorry you had to go through this experience 😢
I feel so sorry for you both!
What country and city was it?
I’m so sorry that happened. As an emergency healthcare provider (paramedic) I apologize for what happened to you. As a recent surgical patient that took 2+ hours postop to control my pain, I empathize with you. I also get where you’re coming from about allowing people to help and asking them to help. (I’m non-weight bearing on my right leg).
Thank you for sharing your journey. I can see it’s hard for you but I know educating people who don’t really realize just how broken the healthcare system is. Take care. 🙏
Ah, Jo. I'm so sorry so many things went wrong. It's hard to advocate for yourself when you are post surgical. I started keeping a log of all meds and times. Who checked on me, what they did, said. Even when home, I write down times, med & dose. It's so easy to lose track, and it really does make a difference.
Mend well and heal swiftly.
@@judewheeler5368 that is an excellent idea. I am scared to death of going into a hospital because of Jo experience.
Is there something we can say as women to get the care we need? Maybe threaten a lawsuit? Like what type of respectful threats work? I just don’t wanna get the cops called bc I’m acting absolutely feral bc someone is letting me be in excruciating pain or letting me die. I have been dismissed by doctors all my life and i also wanna have kids but with the political landscape… I wanna prepare
My goodness. It never stops amazing me how incredibly awful our medical system is.
This isn’t my worst hospital experience but it’s along the same vein as yours.
When I was 18 I was forgotten in a hospital room for 8 hours and when a nurse finally came into my room she was 100% shocked to see me in that room as she was bringing another patient to it. My mom had been to the nurses station 15+ times to try to get me some help as I was literally bleeding out onto the floor and no one even made a record of what room I was in. This was all after already waiting 4 hours to get into this room. I lost so much blood I was in critical condition and barely responsive when the first nurse finally came in to check me out.
once my wife was in the hospital for a skin infection during chemo, she is allergic to most antibiotics so they keep her cause of special IV treatments. I visit her and realize for days they forgot her IV antibiotics. it fell off the computer and none of the nurses even tried to remember anything about patients. I threw a fit. being sure to be loud enough so every patient on the floor hear me advocating for all of them. how many other people are missing treatments? I wanted them all to ask that. II was just short of getting arrested police were there. I told the police and the dept head there to please arrest me, I want the news coverage. the system does suck.
And yet they bill you for that nonexistent care as if you got it. Our local hospital blew my late husband’s lungs apart with the ventilator and they got almost a quarter million dollars for killing him.
About to finish my first year of med school, and thanks for sharing these stories. It continues to motivate me towards the kind of doctor I want to be. To echo what others have said, you don’t sound “victimy”, you genuinely were/are a victim of the shitty system we’re stuck suffering with until someone changes things on a big scale. I hope to change it on a small one at least. Recover fast as you can!!!
Doc as a former pain pill addict please remember they are for short term use. They actually cause pain. After I went on suboxone and got off that I realized I was cured from my surgery. IT was the pain meds causing the pain. Don't get me wrong surgical patients need access to an deserve to have their pain controlled with strong narcotics. Just not for to long 😊
@@pamelaernstine9751 Your situation is NOT the norm. Opiod pain meds do work for long term use & there's plenty of evidence to support that. My pain was controlled with opiod pain meds for 7 years before I was forcibly cut & now the pain is debilitating which shows that they were indeed working long term. We get gaslighted enough by drs who are more afraid of the dea than for the death of a patient because their body couldn't take the pain without the relief from opiod meds.
As a person with severe 24/7 pain for 14 years, please have compassion on those who have painful disease or condition. Every day is a struggle to just wanting to see another day. The treatment of pain has gotten so bad in not only this country but others as well & changes still need to be done. My pain was controlled enough for 7 years till forcibly cut due to 2016 Guidelines. Now it's debilitating. I'm lucky though that I have a PA who fights for me not to be cut further. I guess what I'm saying is, please try to take pain patients seriously as most are being gaslighted & abandoned. I realize that drs are in a tough position as well when it comes to treating pain but together we can get changes needed.
im a pharmacy student, and I'm really sorry that all of these things happened surrounding this surgery. i very instantly recognized your description of the pain as an allergic reaction, and I'm really disappointed that none of the healthcare providers around you could do so until you were forced to really advocate for yourself
Worked in a pharmacy for a few years. Pharmacists are by far the most competent medical professionals we have. I've pretty much given up on going to the doctor and just ask my pharmacist what to do. Has saved me a lot of money and grief.
@@adde9506 I have done that too. Dont have health insurance and was picking up my antiinflammatory at a new pharmacy and the pharmacist asked me why I would need this prescribed. They suggested that if this antiinflammaroty is too expensive, use one over the counter all day long. I told them what I am treating with it (they didnt asked, I gave out the info willingly), and they said it would be worth it to give an over the counter a shot. I said ibuprofen doesnt work, but I never took Tylenol before, and guess what? Regular old Tylenol does the trick. 2 years now, least amount of pain I have been in.
I also use Flonase and the pharmacist told me (at the time I did have health insurance) that my insurance covers the medicine from the pharmacy and it would be only like 5 bucks rather than the over the counter one in store almost 20 bucks. Pharmacists also always give me coupons because I do not have health insurance. Got my 80 dollar inhaler down to 50 last year. Much love to pharmacists❤
Pharmacists don't get enough credit. I've had a few negative experiences [being young & on opioids will bring out the asshole in some], but... The vast majority have been fkn incredible, knowledgeable, helpful people.
One time, I didn't have insurance when I got a pretty big second degree burn on my abdomen. My partner & I went to the pharmacy to ask what they recommend for treating a burn at home... The pharmacist grabbed some basic first aid stuff, let us buy a jar of Silver Sulfadiazine w/o an RX, & gave us instructions on how to treat it & to go to the ER if it gets worse. So eternally grateful for her. She saved my skin, literally, lol 💕
I ran a pain management practice many years ago. I’m so sorry for how you were treated. From what little I’ve heard you tell us, you had pretty much non existent pain management. Good pain management is absolutely necessary for quick healing, and increasing your quality of life while recovering. I hope you never EVER have to go through that again!
Hi Jo, I had 38 surgeries in 3 and 1/2 years trying to keep my right leg below the knee after a motorcycle accident just over 20 years ago when I was 21 years old, and so number 39 was when I finally had enough. I've been through most of all things you describe and I want you to know that you are as strong a woman as I've ever seen, you will manage to get through this and it will all work out. God bless you !!!!
Bryant, I'm on number 7 and a few more to go. Also a motorcycle accident, lost half my left foot and fighting to save what's left of it. I'm not at the point of giving up but can imagine what you went through and the call you made to end it. I'm 33, had the accident 5 months ago in January. Jo's channel has been part of what's helped me cope with the ordeal. From South Africa.
I was 8 and had 26 surgeries in a 3 and a half month period, then 4 more over the next 2 years. I had a staph infection (in addition to a bunch of other problems). My left ankle is now permanently fused (it was nearly amputated).
I wish I had someone like Jo when I was going through it, especially during the time I was relearning how to walk.
@@philip5798 I enjoy her channel too Phillip !! You can do it boss, keep your head up !!! Cheers !!
Jo, you are not a" victim." You are human, honest, and realistic. I truly wish that you would experience feeling better every day. ❤
It's a victim mentality not a victim. No need to feel ashamed of being a victim because the victim means something wrong happens or done to you.
I just love you and love your channel. I am 67 years old and have 4 children. I have a husband that is paralyzed from the neck down due to a massive stroke 10 years ago and he is at home. I am his caregiver. 3 of my 4 children have type 1 diabetes - I am a type one diabetic as well. I have spent my life as the caregiver. You make me feel good. You take life in stride and deal with all that comes up as it comes up. People always say to me you’re so strong. No I am not I just deal with it as it happens and don’t hang on to it. You are an impressive woman. . T
Hey there! I came across your comment and I just had to reach out and say hi. Your perspective really caught my attention and I would love to get to know you better. Would you be interested in chatting sometime? Looking forward to hearing back from you!
Hugs. Having worked in health care and being a patient myself, I'm sad to say that this doesn't come as a surprise. I had deep vein thrombosis and pulmonary emboli once and, because of the nurses' misunderstanding. I was sent home with a script for two anticoagulants. When I did a follow-up with my PCP he gave himself a smack on the forehead when I told him. This was confusion was set up by the hospitalist who only wanted to see which of the medications was cheaper and covered by insurance, which the pharmacy couldn't tell him unless he ordered both medications. This was compounded by the Pharmacist not catching the order for two anticoagulants when she checked out the order when I picked them up.
This makes me a little anxious about having my cataracts removed but it's have them removed or slowly go blind.
At least they caught it before you ended up in the ER with a bleed.
Dude, you are a badass for being so active and present while recovering from such a bad experience.
Not wanting to do it in the first place and having it come out like this just isn't fair. At least it's looking up a bit now!
Thanks for keeping us in the loop!
I’ve had knee surgery, and pelvic reconstructive surgery which resulted in compartmentalisation syndrome in my right leg because of the position they kept me in for 8 hours. I also ended up with some tissue necrosis. The compartmentalisation syndrome was ABSOLUTELY the worst pain I have ever experienced. Recovery sucks, but recovery with complications sucks and is scary. I hear you on this one, Jo. ❤
THEY. DIDN'T. TURN. IT. ON?????!!!!!!!😢😢😢😢😢
I wonder if they just didn't have training with that pain pump? That's very odd
@@alylu-to-esutejThey work with that stuff all the time. They know better.
Wow!! That's so messed up!!
OMG WTAF?!
😭
As someone who's been a surgical patient, had direct family go through many procedures and am now married to a healthcare professional I've seen all sides. It genuinely pains me so much knowing how broken the system is. How underfunded essential resources are and how burned out so many of the truly amazing healthcare workers are is so discouraging. My heart goes out to you and I wish you all the luck and speed in your recovery.
I understand completely, Jo. I know from my own experiences with surgeries and hospitals just how totally f**ked up the health care system is. You're 100% right, Jo. Most of the nurses and other care workers are great. However, I've had problems very similar to yours, Jo. Mistakes get made, but, like you said, it's the system that's at fault. I'm so sorry to hear about all the trouble you're having, dear Jo, and the problems you had in the hospital. You go ahead and vent to us anytime you want or need to. It's ok. I'm praying for your complete recovery, Jo, and I'm personally sending you all the love I have for you!!! 🥰❤️🌹 You're beautiful and amazing!!! ❤❤❤❤❤
Pain management in the US is seriously screwed up. Been there, got the tee shirt... I suffer from peripheral neuropathy and the pain is a permanent part of me for the rest of my life. Everyone is so fearful, that those who truly need medication can't get it. I often think that if they could feel the pain I'm in, they would do anything to get relief. I'm so sorry you had to go through that nightmare.
EDS & Lumbar Stenosis over here. I recently realized I've been on Tramadol for about 10 yrs now... My immediate feeling was shame. And I hate it. I hate that Dr's have made me feel ashamed that I use pain meds to live as full of a life as I possibly can. I should be able to enjoy my somewhat improved quality of life & not feel bad for the tools I need to have it... I'm so sorry for you & Jo & everyone else who has been dicked around by the system.
I've recently started EMDR & one of my traumatic triggers was when my meds got accidentally messed up a few months ago... Every other time my meds have been dramatically decreased w/o a discussion, it was because a Dr unilaterally decided I didn't need it anymore. That my pain wasn't real. And I'd be gaslit into believing they were right. Even tho it was gratefully an error in the system, I was paralyzingly afraid for over a week... That this Dr I had trusted thought I was lying. That this Dr I had trusted went behind my back. That I would have to find an all new Dr & risk being seen as a liar or drug seeker again. No one should feel that way... But so many people do.
I can't tell you how much this video hit me and helped me right now. I'm coming off two major surgeries done within 5 weeks of each other and having regrets about the 2nd one (though in the long run it's totally the right thing to have done). Some related issues got worse but I hope the end results will be worth it all. I also live alone and have relied on amazing friends and neighbors to help me through. It's been hard to accept help but have learned to take it when it's offered.
Here's to healing for everyone who is going through it at the moment... and I hope nothing but healing and improvement for you!
I hope you feel better soon!
Same to you❤
hope ur doing okay
I want to thank you for being so open about things and making me realize that recovery isn't something a few days long and then you are fine. I got out of a 3 month carehome/rehabilitation stay last June after a bad break in me right leg. I've spent a year relearning how to walk more than a block or so. My family and friends have been great but it has been your videos I've turned to for encouragement. My rehab has gone well but feels like it has taken forever. You have shown me its ok to be mad at the situation and even have a few pity parties as long as I then pick up and go on.
I'm sorry that you have had such a rough time with the health care system. It's broken for sure but know through all of it you are still making a difference to people. Thank you for being you and I think all of us are proud of you through this and beyond. As a human being you are amazing and if it helps to get mad at it all then I'm here to listen to that too. You being human reminds me I don't have to be strong every second and it's ok to take breaks. This has gotten pretty rambling so I'm sorry about that. I just want you to know you do make a difference.
Zombie leg round 2? Wow, being one of those people that if something can go wrong, it definitely will go wrong in my life, I have absolute sympathy for you and the mess you've been through. Others have said it but it's worth repeating, Jo, you are an absolute badass. Hugs to you and hoping that all the bs of this surgery round ends up being worth it in the end. Thank you for the updates and for being you.
Had an experience with that 2 years ago during peak covid lockdown i kept telling my disabled ass be extra careful we are not going to the hospital in this hell . Then I slipped getting out of the shower and shattered my ankle bones into 3 pieces orif surgery left me with a plate and 10 screws and 38 staples that hurt more getting removed then breaking my leg . As soon as they removed my cast I just never went back to the hospital , did physio at home still can’t walk on it for very long .
Wow. Just wow. I know it isn't rare for this to happen unfortunately, but damn. After your video explaining your fears and then those coming true in all the worst ways. I can't imagine how you wouldn't be traumatized again by all that. That is so much suffering to bear in an attempt to heal your body. I'm sorry the system fell apart and failed you again Jo. You are a very strong person and to share this with all of us and relive it in the retelling and editing. I can only hope you finally get relief from the pain after going through all that.
Exactly.
Never be afraid so say exactly how you feel. It gives incredible insight (among many other important things) to us who haven't gone through that kind of pain weather it be physical or mental. Saying it how it is, especially in your unique experience is something we came here for, and even if that wasn't what drew us in, sharing your stories as you do highlights the flaws of our medical system, and that's the first step to fixing it. You channel is an integral part towards awareness, education, and hopefully, a better reality than the one we live in now.
I am so sorry... I have been forgotten too and also have had to hold a bladder full of urine for over 12 hours after years of having a foley catheter in 24/7 with no relief when my catheters have blocked up! So i get how that feels to be forgotten and have medical trauma to some degree at least
I was given Lasix when hospitalized for covid on New Years Eve. Hooked up to a ton of stuff in the ER. No restroom in the room and alone and unable to get up. Very sparce staff and getting help took forever. I was wet with sweat my hair was dripping wet. Just as I was due to get the next IV dose a doctor came in and asked why the Lasix and had them stop it. A overfull bladder is wretched misery.
@@wandadevers9598 yes it's HORRIBLE especially when your bladder isn't used to even a drop being in there really since 2017! And I've had to go up to 15-16 hours without getting a drop out 2 times since 2017. Now everytime I have trouble irrigating my Foley I panick afraid I will have to suffer like that again! It can really be used as a torture method! It would be ok if that happened and I could just pee on myself some but when they did my bladder surgery in 2017 they completely blocked my urethra off because every bit of urine was leaking out that way because of my birth defect and then they made a stoma in my abdomen and I've been stuck with a Foley every since 😭
Your strength is so inspiring. You are more amazing then you know. We are rooting for you. Seriously. And thank you for being so transparent. Love your spirit
What some people also may not understand is that every time pain meds are reduced, even a tiny amount, can cause withdrawal symptoms.
I've never gone through the amount of pain that you've had to deal with, but I do know how the system can let you down. I hope that from here on out that your pain at least eases for you! You're extremely strong Joe, it's cool to be upset, angry and sad. Don't sweat it, just make sure you let it out.
We need a new generation of potent non-addictive pain medications. Does anyone know of any in the works?
@@richardknott4626 The one I know of that currently exists is Gabapentin, which is a nerve depressant. It has sedative effects so it's not without its drawbacks, but it's pretty effective at dealing with nerve pain, which is difficult for most pain meds. It was originally designed to be an anti-epileptic (though it didn't turn out to be all that great at that), but it has found a lot of other good uses since then. My wife took it for a while to help with her migraines (though it wasn't as effective for her as it is for some), my dogs were given it post-neuter to help calm them and reduce their pain, we gave it to one of our cats to help her deal with the stress of going to the vet, and I take it to deal with a neuropathic heat hive issue (without it I break into hives when I get hot, sit in the sun, or exercise, fun times)
As I understand it they're starting to control it more aggressively because of some people abusing it, but I can't really imagine it giving you any kind of recreational high
@kevinwells9751 I use Gabapentin. It helps, especially with fibromyalgia. But it doesn't cause enough pain reduction. The side effects I found disappeared in the first few months. I've tried multiple types of pain meds in the past 20yrs. I actually found patches worked best, this is because they keep the meds even 24/7. Unfortunately, I had a pretty good allergic reaction to it. It literally burned my skin, but this is rare. I'm now on a low dose of morphine. I have a rare breathing condition, so I have to keep the level of pain meds low.
@@mamawnamidreviews9978 Yes that and Cymbalta can work some for neuropathy, but otherwise our pharmacological options seem limited.
Everyone has already said what i thought and felt about your experience. So I'll just say, "I APPRECIATE YOU". I appreciate your sharing on YT. I am sending prayers, love and light to you.
Jo, you are such an absolute sweetheart and a brave warrior. I think I speak for many of us when I say, that if there was some way we could each take a little bit of your pain on ourselves to make it easier for you, we'd jump at the chance. Love ya.
I’m so sorry you’re having to go through this, Jo. That sounds awful and I want you to know we’re all rooting for you. You’re not alone in this 💙💜
Your strength is absolutely remarkable. Keep as positive as possible. You've got this.
Keep posting, and keep up this great attitude you exude! Just lost my best friend and fiancé to brain cancer. 35 days from diagnosis to death. Do not believe the doctors messed up, it was just the cards she was dealt. Hearing your story helps me process. Keep sharing for us. And, ugghhh, you are so strong! I would have been a crying two year old given your circumstances.
You are so incredibly resilient! I know a lot of people say that, and it's true, but it still SUCKS having to go through lack of proper medical care. I gave birth during the height of the pandemic, and received very sub-par care. Left alone in excruciating pain, told the doctor was with another patient when I was about to go unconscious, and being told I could NOT change the medication without the doctor's consent. Feeling I was reacting badly to it, which ended up being true and putting my baby in cardiac distress. Then apparently contracted an infection that no one told me about until 9 weeks later, when I complained about heavy bleeding for the whole duration of that time. No meds, not even the courtesy to tell me I had an infection. Excuse the rant, it just still gives me PTSD 2+ years later.
The system is SO screwy. And your situation I cannot even imagine. Nerve pain is so awful Thank you for telling this story here on RUclips. Sending the best vibes your way during this difficult recovery.
I am so sorry you - or anyone, for that matter - has to go through the horrible mess our health care system has become. I was in tears watching because of the memories of what I've witnessed through some of my closest family. My mom was forgotten for hours in the hospital after her cancer surgery, and finally had to drag herself to the nurses station for any attention. My daughter was in and out of hospitals for 14 years fighting her cancer. And when wed got to the end of all traditional treatments for her, people who had no medical degree or experience with brain cancer patients - personally or professionally - were deciding what drugs my daughter would be allowed to try to maybe extend her life. It just makes me so mad that a system that is supposed to help us, doesn't. And like you said - at least with my daughter - most of the doctors and nurses we've worked with over the years have bent over backwards to make sure she got the care she deserves. I don't even know how many hours her oncologist spent on the phone fighting with the insurance to get her some of the chemo we wanted to try for her. And it really sucks that their hands are tied a lot of the time to do what is best for the patients they're caring for.
I really hope the recovery goes well for you!!
I am really scared for my surgery, but you always make me feel better about it. Helping me see the positive sides of it, even though you are going through a really rough patch. Thanks for being positive about this and I hope everything goes smoothly from here on out. Thanks ❤
Im so sorry you experienced all of that.
My colon twisted April 2020 and I was in the hospital for about a week. The nurses told my husband they would get me a prescription of my antidepressants but they never did.
The hospital pharmacist said I was ok to breastfeed my 4 month old on my meds. Thankfully, I called our pediatrician because he told me it was absolutely not ok and I couldn't breastfeed for 48hr after stoping the medication.
When they switched me to oral pain meds I called 3 times asking for pain meds and no one told my nurse. One nurse even came into my room and told me they were going to go find my nurse. She finally came to check on me an hour later and brought me pain meds as soon as I asked.
I had an incisuion down the entire lenght of my abdomen and wasn't alowed up by myself. Plus no visitors were allowed so I get feeling helpless.
Fellow weirdo here, so I'll be tuning in for that next video, for sure. :P I am so sorry you had to deal with this. Our system is so completely busted, and there just doesn't seem to be a will to fix it at this point. I hope your recovery is swift and complete, and you're able to function without pain!
I just wish you some sunshine days ahead. You are a warrior. Much respect to all you have had to endure.
You are absolutely amazing.
I'm so sorry so many things went wrong, I started choking up when you said they forgot you for 5 hours. But I'm so glad you're back home now and slowly improving. Sending you all the positive energy, you're a true inspiration.
I’m crying 😢watching you and hearing you describe what you went through. I haven’t been anywhere close to the trauma you have experienced, but growing up with a terminally ill mother and my life pretty much was spent in waiting rooms and emergency rooms fighting for my mom to get the adequate care and then losing her in a hospital and then fighting my own chronic illness with endometriosis and fighting to prove that I’m not making up my pain and that I am sick since I was 15 and I’m 32 is exhausting. I’ve been there where you’re crying in pain and the nurses keep saying they’re coming they’re coming they’re busy to which we all understand I was a nurse, so I do understand but you’re absolutely right, the medical system especially here in the country is so messed up and backwards in so many ways.
9:57 its all because the DEA has doctors etc afraid to prescribe much pain medication. They want to prevent addiction etc but they have went too far with it.
Yes! I always say that I'm not living, I'm suffering. There's no need for people to suffer like this when we have the medicines to stop the pain. I understand now more now than ever why people turn to drugs. I've even been in the position that if I knew where to get drugs, I would have done so. The government is actually creating addicts, not stopping addiction.
@@bishplease4363 yesss 1000%! So many states won't even legalize medical MJ for those who can and are willing to use it so allow us to get our medications we need safelyfrom our doctors!
Jo so so sorry that you continue to suffer so much. You are an inspiration
I have missed you and wondered how your journey was going. Very sad to hear how difficult it has been and how intensely painful it has been. I am sending you loads of virtual (((hugs))) and {{{snuggles}}}!! Thx for the update!! Much love, Jules
So sorry you went through that. Hope the surgery does at least reduce your pain in the long run. You deserve good things. ❤
I originally stumbled onto your videos because my husband has a similar injury. He fell off a 3 story roof at work in 2007 and has had multiple surgeries on his ankle ever since. He fell through a tree which saved his life, but broke his leg and ripped every ligament/tendon in his ankle except the achilles. That was our major introduction to how broken the medical system is, despite like you pointed out it having many great individuals. I've had my own issues too, and it really does leave you feeling so powerless and frustrated. We deserve better.
I'm so sorry that you are having such a hard time. I really hope that in a couple of months, you will be posting a video saying, "Hey guys! My pain has gone down a ton!" ❤
I like your honesty in your videos. I'mm sorry for all the pain you've gone through. Yet through all this you remain so wonderfully positive. You are a beautiful person. Cudos!!!!!
Damn Jo. I’m sorry you did not have ideal hospital stay. Sending good vibes to you. Feel better soon! 😊
Off topic but the ad I got in this video is OF YOU TOO! So proud of you. So sorry you had to deal with this ridiculous situation
You are such a strong individual. It is hard for you to be unable to care for yourself and then need rely on strangers. This is what its like for a lot of people who grow old without having family around to help take care of them. You really needed a family member to be with you to advocate for you so you are not forgotten about for five hours!
Omg, I am so so sorry Jo 😢 I am so sad and angry at how the medical system failed you so many times and the many complications you’ve had. I have had different kinds of medical trauma over many years and when you started to get choked up talking about it I did too 😢 I’m so glad you have a wonderful group of friends there for you physically and emotionally and a good show to binge and art to work on and enjoy. We all so appreciate you sharing your story with us. Not sure if you have ever tried therapy or are someone open to it, but I’ve found it helpful to work through medical trauma with my therapist. I may be wrong but I think you mentioned having ptsd in an earlier video. I have had severe complex ptsd for 12 years now and it’s so hard. I just can’t thank you enough for your honesty and transparency through your videos. I’ve been thinking of you often and hoping better days are ahead 🤗
Was going to comment sending you good thoughts and vibes for continued healing and a good recovery - now I've read just a fraction of the comments - OMG - good thoughts and vibes for healing and recovery to you, Jo and everyone else who needs it. So, so sorry you were on the receiving end of these mistakes and excruciating pain. Hugs!
I hope that healing, mobility, and comfort come to you soon. I love the digital art you've been working on!
Wow. Yeah, just wow. I went through the exact same thing after my ankle reconstruction. Any kind of pain management in this country right now is ridiculous. People with genuine need have been paying for those that abused the system. If your doctor prescribed something the pharmacy shouldn't be able to change it. Your doctor seems om the ball though. I can tell you that our entire hospital system is overwhelmed right now at unbearable levels. I know people that had to wait in an ER for almost 12 hours, and ended up getting flown to another hospital 70 miles away because there were no beds or OR's available (from one level 1 trauma hospital to another) . I hope you're making progress, how ever slowly. You can do this.
Even though we're disabled in different ways (I have mental and invisible muscle disabilities), your videos have really helped me with being a bit kinder to myself, especially since Ive also been the victim of medical neglect. I really hope you have a speedy path to less pain.
Well honey get better , sending you love and prayers.. love your outlook on life. Your awesome and so strong. You go lady.
"So many suits" made me chuckle lol. You are so tough, I could never deal with what you've gone through. I appreciate you sharing everything with us. Much love to you ❤
Hey Jo, it's you, who is incredible! Incredibly strong! Unbelievable! I wish you all the strength you need to come to full recovery!
huxx from Munich, Germany
Markus
Good to see you in good spirits (or faking it amazingly well). Pain is a pain.
I had a stroke and they tried to make me an invalid.
I kept on them to take me for walks. I couldn't get out of bed unless I was supervised. Fortunately I was out in a week. No pain but imprisoned.
I'm glad to see you doing so well. Sometimes we need a little help from our friends. Perhaps you blessed their lives also.
Sending love and light to you, Jo. I have so many medical experiences akin to those you described in this video. Being forgotten, ignored, minimized, disbelieved (and suffering consequences as a result), and so many other horrific things. Medical trauma is real. I went into medicine hoping to be at least one healthcare provider who truly gives a shit and tries their best in this awful, broken system. Currently too sick to work and care for any patients other than myself, but I hope to return to the bedside. Thank you for sharing with us - please be gentle with yourself and give yourself permission to hold space for the traumatic nature of these experiences. Your feelings are valid and acknowledging them doesn’t make you a victim. It makes you a survivor on the path to healing. 💕
I'm glad you made this video. As with all your others, the content is not only clear, but also brushes on many important topics that people who have not dealt with sustained/recurring medical issues in their lives simply don't experience, and often don't believe. Having another voice - and such a clear and eloquent one - to bring with us, to support us, when bringing these things forward, is priceless.
(side note, Canadian medical system has many of the same issues as y'all do)
I can’t relate to a lot of what Jo’s gone through but I CAN relate to being ignored while under the care of post-op. It makes you feel crazy when you feel you’re being forgotten.
I love that you teared up at the love and compassion of your friends. I hate that you were "lost within the system" so many times. They really need to do better. Thanks you for sharing this slice of your life with us. Stay amazing!
I understand that the system is a major part of all of these issues. But I'm going to be honest, that sounds like a very poorly run hospital and it sounds like those medical professionals lied to you. Especially considering the pain med situation. If they knew you wouldn't be able to get the amount of pain meds you needed, they straight up lied to you about what was reasonable for sending you home. Obviously the system limits pain meds like that but they KNEW. I would honestly suggest filing an official complaint with the hospital and make sure you get an itamized bill to make sure they aren't cheating you on any charges.
I loved your nest! As someone who's often bedridden (and even when I'm not I spend most of my day lying down) I totally get that feeling of creating a cocoon of pillows, blankets and all the other things you need near to hand, it feels so great when I get it all sorted just right and can relax in confort (and pain)!
You poor girl. I know exactly what you went through. I went in the hospital for shoulder surgery and left 33 days later after learning to walk again. I watched all the old sci-fi movies from the 50’s and 60’s. ALL OF THEM.
Jo I wish I could reach through my computer just to give you a hug of support. You have had your share of trials and tribulations with your leg. I hope this path leads to you having some comfort and relief! Wishing you all the best.
You’ve been through the ringer numerous times because the medical system has failed you. What you experienced was (in my eyes) not bordering on medical trauma (paraphrasing what you said); it was trauma. If you feel it was, it is okay to claim that. If you don’t, that’s okay too. But, never feel as though you need to make your experience more palatable.
I hope that this surgery is successful, because you so sincerely deserve this win. ❤
Oh my. I’m so sorry. I can relate! I had a life threatening emergency (pleural effusion and pneumonia) last year. Spent 6 nights in the hospital. No pain management until day 3, no hospital rooms, roaches, and a medical mistake that caused (temporary) kidney failure. I was too sick to advocate for myself. It was scary. It was a nightmare and I pray I never get sick again or ever need to be hospitalized.
It was explained to me that hospitals are short staffed on doctors and nurses due to the recent pandemic.
*Sending you ALL the best thoughts*. I'm so sorry this has all been SUCH a trial for you. I hope you get the relief you're hoping for and much more.
Hi there! I just found your channel and I just want to say thank you for your honesty/realness/openess/transparency with what you're dealing with. Its nice to know there are other people out there who would say the exact same things I would say, or get to a point where you need to say something, and it articulates something I'm feeling, but I haven't gotten there yet. So many people look at a person like you (or me) with a significant injury or medical challenge and think that's all that's going on in your life, but yeah, no. Life still happens, and bad shit can still happen to you. I applaud your positive attitude, and appreciate your honesty about how difficult this can be (tying in to your "happy" video).
I broke my left index finger 5 years ago on a mountain bike ride. I developed Complex Regional Pain Syndrome, which I wouldn't wish on my worst enemy. After 2 years of intense pain, an atrophying finger and no improvements (despite trying PT, hand therapy, desensitization therapy), I decided to amputate my finger. I then developed neuromas at the amputation site, and underwent TMR surgery about 18 months later (which was about 18 months ago). This surgery also resulted in further "revision" of the amputation, but now in my hand. I can relate to you coming out of surgery in intense pain. They gave me two doses of fentanyl which did NOTHING for me.
For me, recovery kinda plateaued around the 4-6 month mark. It was definitely better than after the first amputation, and it is better than when I still had the finger, but I still can't ride my bike, clap my hands and do a bunch of other things.
I'm now going through another round of desensitization therapy, and I'm beginning to suspect I have more neuromas, that some of the nerves didn't R in the M the way they were T'd to do... So I'm trying to decide if I want to roll the surgery dice again. And I just don't know. And there's no one to help me make this decision.
How a country so wealthy can have such a poor medical system is beyond me. I really hope it works out and long term it reduces the pain you were experiencing.
I guarantee you don't want to be any where else though., Yes I have been on the short end many times and if it weren't for my mom advocating for me I would have died
@@jessicacapizzo524 I live in Australia, I have never once had to worry about going into debt because I was sick. I just go to the doctor. A GP visit or even an emergency room visit are free, and you usually only need to pay for specialists which are usually rebated anyway. If I lived in America I'm certain I'd be dead by now.
I was also wondering, with stories like that, how are US-Americans still so afraid of socialized medicine.
This is the worst example but I always have this type of problems when I need to have any type of paperwork done... any mistake possible will happen to me, my documents or appointments... and you just want to complain and scream "why me?". The system is broken... definitely. If I feel like that with some stupid paperwork I can't even start to imagine your frustration... and remember, you are aloud to complain. Not everything is a bed of roses and it's ok to mention it.
Is so good to hear from you again ❤
Brave thing , i feel your pain, i have had heart bypass, facial cancer removed, BNA amputation, after losing three toes first, just last week i was back 4 left foot toe amputation, Amazing young Lady Joe. Best Wishes from Down under down under, Tasmania. :-)
I’m so sorry for the trauma of laying in unbearable pain while people ignore/forget you 💔 sending love and healing to both your leg and your heart. ❤️❤️❤️
That many hours without pain management esp when the surgery was on the nerves is so dangerous (and obviously cruel). Pain management is a huge part of post surgical care. It’s just inexcusable. Did you have a case manager at the hospital? I learned last time to ask for one immediately (or plan ahead) so I have a person I can call right away if there are issues. I’m so glad you are home and healing. Thanks for sharing all this especially when it is all so new.
I just randomly happened upon this video by the algorithm and watched 3 of your videos one after the other. After watching you talk about how you went through so much pain, suffering, and trauma, and still have it in you to joke around and be positive... Wow, you are one of the bravest and strongest people I've ever heard of. You're a role-model for people who are suffering and can't see the light at the end of the tunnel. With all my heart, I am sending you love, happiness, warmth, peace of mind and I hope your leg will heal quickly. Sending you positive thoughts and vibes and a big hug if you'll have it from me as a stranger (33f). With love from the Netherlands
You really went through the ringer, didn’t you?! I’m so sorry you were forced to go through that. Thanks to your friends for being supportive. ❤
That is fucking horrific, I'm glad you survived such an awful experience. Sending love and positive vibes, hopefully the rest of your recovery goes smoothly
Get a lawyer. The system can't be fixed until they literally pay for their mistakes.
I’m sorry about the difficulties. The system is definitely broken. I’ve had my own experiences with it too.
I hope the recovery goes better from here on in. Take care, Jo
Your strength and ability to focus on the positive through all the shit you've had to endure is truly inspiring. Thank you for sharing your story with us. I'm sending you all kinds of positive vibes and healing juju!
I wish I could say words that could make up for even a fraction of what you've had to experience, but all I can say is I am so, so sorry about everything that has happened to you. Nobody should have to suffer like that. I really, really hope you get some relief in the long-term.
really hope the rest of your recovery goes quickly!!
I’m so pained to learn of your experience, Jo. Someone with all of your hospital stays and experience with medical teams and advocacy and this still happens to you?where does that leave the rest of us? The system is truly broken. I had a semi-similar negative pain management experience many years ago after a surgery which did cause a likeness to PTSD but in your case we’re talking days with additional cascading effects and that’s insufferable. I pray that this is a successful surgery. What a journey you have been on with such unexpected extensive mishaps. Also, it’s great that you can find support in your friends. Get well soon.
You don't sound victimy, you sound incredibly strong, eloquent and aware. In this society we always seem to want to be able to tell a positive story, to ensure everyone around us it will all be ok. But sometimes life just sucks and I'm grateful you were willing and able to remind us of this. It will help us forward even when times are rough. I hope you feel better soon!
I am crying when you are crying because I honestly know that same kind of trauma after surgery. Nurses and doctors not listening to the patients Is so scary. Each patient is different and after any surgery you need to treat them individually. I have taken over hospital and recovery rooms from the about of crying and yelling from the pain. Only to see the nurses and doctors not listening to me and they feel stupid. I wish our medical system would change. I never has many surgery as you have but i have neglected my own needs to have a new surgery because of the trauma. I know you will be better as time passes by healing and being active. I know this video is older but i feel you so much. I follow you cuz although don't have the same leg problems it feels like when you share your experience and feelings are so inline with mine for years now. Blessing for a better recovery
Former bedside RN here. Stories like this take me back to those horrid days of me being in the middle of all this but as a medical professional. The system is so messed up to say the least. All I can say is how sorry I am this happened to you.
And we get to pay them $300 an hour for the privilege of being ignored and traumatized.
You don't sound like a victim... You sound like someone whose very aware. I'm so sorry you had to suffer, that's awful... Sending you all the healing vibes and positive juju..
I'm so sorry all of this happened to you, Jo. I truly hope this procedure worked and you're feeling better soon. Sending love and lots of (gentle) hugs.
Ohhhh Jo that sounds like a latex allergy and as someone with a bad latex allergy myself I feel for you so much. I've actually had to take a photo of my arm after a nurse didn't listen to me and used latex tape to hold down an IV with the swelling and the skin peeling off and keep it on my phone now so every time I get an IV or blood drawn they're horrified into making sure they're using the latex free 3M medicare tape.
I'm so sorry things have been so horrible. I'm glad you're feeling well enough to talk to us though. Take it easy and hoping so hard for you that the surgery ends up having been a success. 🤞💜
My late husband was horrifyingly allergic to mist medical tape. He had very sensitive skin. One time he let our son put a rub on tattoo on his arm and it made a big festering hole that he had to get medical attention for.
As a healthcare worker in another country - I am so sorry for your experiences in hospital.
I can’t and won’t say that it is better where I am, but I hate that you had to experience so much pain and being forgotten.
I understand excruciating pain to some extent due to a lower back injury, and feeling like you aren’t being listened to regarding pain relief is so frustrating. But I hope that by having my own experiences of severe pain, I am more compassionate towards my patients and their needs.
thank you for sharing this story with us, we send you lots of support and love! I'm glad you're friends took good care of you, you deserve that💖
Also, as a digital artist (been there for years now) your paintings amaze me! And you're new to that?? Unbelievably good, congrats!