16x9 - Dangerous Diagnosis: NMO patients treated for wrong disease
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- Опубликовано: 12 апр 2012
- Imagine being struck by a crippling, debilitating disease-and then being misdiagnosed. 16x9 speaks to patients of a life threatening disease called NMO. Over half the patients who have NMO are misdiagnosed. In this 16x9 investigation we speak with one woman who spent 17 years being treated for the wrong disease.
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Carla you are a beautiful, strong, loving, vibrant lady. I am honored and blessed to be a part of your life. I'm happy that I had a chance to be a part of your life as one of your caregivers. I have never met anyone like you that regardless of what life has thrown at you, You remain strong and full of life. It's truly unfortunate that this happened to you and many others. But you, Carla are my inspiration to be a NMO advocate. To spread the word about this disease that many have NO knowledge of.
Carla it is truly a blessing to have the opportunity to work with you. You are a strong, artistic, beautiful, and kind. You have taught me what NMO is. It is truly unfourtunate that you have this disease. But you will always be ok. You have a purpose in life, which could be to be an advocate of NMO. I'm honored to be a part of your life. ♥
I thank you and commend you for what you did and how you did it. My daughter was diagnosed with NMO 2020 and it has been a living nightmare for me. 2019 she lost her sight in her left eye and I had no knowledge of it because she was married and she went through that by herself because her husband had caused division between her and I but that’s a whole different story. It was when she left him and came back home when I found out about her vision loss in her left eye. In 2020 she was diagnosed with NMO and wasn’t long after that she lost her vision in the right eye. God is faithful and it’s because of him and his strength that I can talk about it without breaking down. All her symptoms is gone but she still haven’t regained her sight but my daughter and I know that her sight will be restored because God told her and reminded her of the man in the Bible whom he restored his vision, we’re just continuing holding onto our faith and believing that the day is coming when she open her eyes she will tell me that she can see me. My daughter name is Delnesia and she’s really handling everything with a good spirit and I truly admire her for how’s she’s handling it. I just wanted to thank you for what you’ve done and still doing and I’m believing one day they will find a cure. God Bless You 🙏🏽
It is frustrating to hear about how many people are "misdiagnosed" and treatment delayed. The "silo effect" is a major problem in research--evident in the case of chronic cerebrospinal venous insufficiency (CCSVI). There has been so much evidence that a simple venous angioplasty can help improve symptoms for some people with MS--whom may have been misdiagnosed--but in Canada, the neurologists don't want to accept that maybe a vascular condition is involved. Quality of life loses to egos!
omg i cant thank you enough for this videos God bless and if u can contact me that would b great, so I can learn more about this disease
Noncombatant no
Non know l
Why does it take so long to spread this word among americans?
No. Onnk k l k no Nokia. ME mom no