I just wanted to point out that Methotrexate is on this list in the video but that should be held off on in MCTD, as it can induce lung fibrosis- which MCTD patients are in the 50% bracket of having. Granted if the Dr thinks the patient is more of a lupus symptom dominant case, or after monitoring for some time they feel less likely to develop, and the potential benefit outweighs the risk then it would be given. There are MCTD patients on it who respond well - just should be kept in mind. Leflunomide is another potential lung fibrosis inducer. Of course the fun part: rituximab and cyclophosphamide can both be given to treat the fibrosing lung disease but also run a risk of inducing it. Those aren’t first line meds anyway though unless really aggressive presentation- which in the case of MCTD probably includes lung disease.
I thought the ‘overlap’ has been substituted for ‘mixed’, however if U1-RNP has to be present in order for it to be ‘mixed’, how to do we classify the ones without this AB? Thank you
You would classify it as UCTD (undifferentiated connective tissue disease), and from a coding or documentation standpoint list the disease manifestations that you are seeing signs of (SLE, RA) And, no MCTD is a specific overlap syndrome- unfortunately some use the term as a catch all for any overlapping CTDs - which is not correct, and results in misdiagnosis- which increases risk of medicating this with actual MCTD improperly. Methotrexate is on this list in the video but that should be held off on in MCTD, as it can induce lung fibrosis- which MCTD patients are in the 50% bracket of having. Granted if the Dr thinks the patient is more of a lupus symptom dominant case, or after monitoring for some time they feel less likely to develop, and the potential benefit outweighs the risk then it would be given. Some MCTD patients actually do quite well on it but again it’s important to understand the difference between mctd and other unspecified overlap syndromes. These diseases all overlap with each other frequently anyway so not exactly an anomaly to have that - but the specific overlap syndromes like MCTD, PM-SSc, Antisynthetase have antibody profiles and a clinical picture that includes likely further disease manifestation and prognosis that need to be carefully considered.
I was diagnosed with MCTD in Feb. Doctors say there’s no definite cure for any auto immune diseases yet, so just manage the symptoms and try to live a healthy and active lifestyle with certain prescribed meds. That’s it. Lifelong thing!
@@ahmedthamir9531 Actually it is a huge relief. By knowing what it is, you know what it is not and can treat it properly. There is no cure and yes, no known cause, but there are meds to treat it and also by knowing what it is a doctor can be aware what to check for to determine if it is getting worse. To compare, imagine having severe coughing and pain in your lungs and not knowing if you have a pleurisy, pneumonia or lung cancer. I bet you and your doctor would want to know exactly what you have so it can be treated properly and monitored.
I just wanted to point out that Methotrexate is on this list in the video but that should be held off on in MCTD, as it can induce lung fibrosis- which MCTD patients are in the 50% bracket of having. Granted if the Dr thinks the patient is more of a lupus symptom dominant case, or after monitoring for some time they feel less likely to develop, and the potential benefit outweighs the risk then it would be given. There are MCTD patients on it who respond well - just should be kept in mind. Leflunomide is another potential lung fibrosis inducer. Of course the fun part: rituximab and cyclophosphamide can both be given to treat the fibrosing lung disease but also run a risk of inducing it. Those aren’t first line meds anyway though unless really aggressive presentation- which in the case of MCTD probably includes lung disease.
What if you want to go the natural route and not take medications???
My mom had this and just passed away yesterday but she live 67 beautiful years!!!
When she identify this disease
How many years this disease youer mother
How long did she last with her mctd
Or how long did she have it for
May she rest in peace forever with the lord🥰
Symptoms are so so similar. I was misdiagnosed with Lupus, but have Amyopathic DM. WHAT ABOUT.about an ANA TEST?
Please clarify: for the Raynaud part, do you take a calcium supplement of stay away from calcium? thanks
I thought the ‘overlap’ has been substituted for ‘mixed’, however if U1-RNP has to be present in order for it to be ‘mixed’, how to do we classify the ones without this AB? Thank you
You would classify it as UCTD (undifferentiated connective tissue disease), and from a coding or documentation standpoint list the disease manifestations that you are seeing signs of (SLE, RA)
And, no MCTD is a specific overlap syndrome- unfortunately some use the term as a catch all for any overlapping CTDs - which is not correct, and results in misdiagnosis- which increases risk of medicating this with actual MCTD improperly. Methotrexate is on this list in the video but that should be held off on in MCTD, as it can induce lung fibrosis- which MCTD patients are in the 50% bracket of having. Granted if the Dr thinks the patient is more of a lupus symptom dominant case, or after monitoring for some time they feel less likely to develop, and the potential benefit outweighs the risk then it would be given. Some MCTD patients actually do quite well on it but again it’s important to understand the difference between mctd and other unspecified overlap syndromes. These diseases all overlap with each other frequently anyway so not exactly an anomaly to have that - but the specific overlap syndromes like MCTD, PM-SSc, Antisynthetase have antibody profiles and a clinical picture that includes likely further disease manifestation and prognosis that need to be carefully considered.
Thankyou for the video
want more content about this topic
Are you able to accept patients from the UK?
Can this be treated with steroids?
Hey! You're early 😊
I like it 🙏
is this high top medicine??? we just treat symptomes...?????
woooow what a solution for people!!
autoimmune? There is none. Make pain your friend.
I was diagnosed with MCTD in Feb. Doctors say there’s no definite cure for any auto immune diseases yet, so just manage the symptoms and try to live a healthy and active lifestyle with certain prescribed meds. That’s it. Lifelong thing!
If you do any research at all, you’ll find that is correct.
Thank you
How long can you leave with mctd
As long as anyone unless you decide not to.
Proton pump inhibitors should be given
For treating gerd
@@mashalazhar3070 wrong
Never
Thanks
Mctd is mixed connective tissue disorder
it is interchangeable
Kertzmann Shoals
why bother to diagnose when you gonna treat symptomatically anyway? 😒
What about the symptoms you're talking about
@@mashalazhar3070 what do you mean?
@@ahmedthamir9531 Actually it is a huge relief. By knowing what it is, you know what it is not and can treat it properly. There is no cure and yes, no known cause, but there are meds to treat it and also by knowing what it is a doctor can be aware what to check for to determine if it is getting worse. To compare, imagine having severe coughing and pain in your lungs and not knowing if you have a pleurisy, pneumonia or lung cancer. I bet you and your doctor would want to know exactly what you have so it can be treated properly and monitored.
Yes. Mine won’t diagnose me either. Just treating my symptoms
@@leighsaldivar4439 its steroids no matter what you call it.
🎉
Ya done effed it up
Shields Expressway
Patience Creek
🎉😂
Thanks to americans who have save israeli from quran
And now Quran is no more that try to take away jacob's vision, quran is no more in this world and into our house
What? Stick to topic.