I have lived with cerebral palsy for over 50 years and now understand what causes it so much better. Thank you so much. Just one thing, whilst we do know it is a static condition, we know that whilst the brain damage that caused cerebral palsy won't progress, the motor impairments that result from the brain damage can. As a result, ageing with cerebral palsy can have a significant impact on one's communication skills, energy levels, and physical and mental health.
I completely agree with you my cerebral palsy is more balance related I can't remember what he said it was I also have a learning disability involved my memory is crap it's like a goldfish LMFAO I completely agree with you I am in my late twenties and now I am starting to have issues holding things up and my balance is way worse the apartment building I am in is specifically for those with disabilities but they do not have me on the first floor and they will not put any of that traction tape down on the steps I have now fallen down the steps once and I keep dropping cups all day long
As a Person that suffered a Moderate Level of Cerebral Palsy I had a communication device After school when I was in first grade, That surgery wasn't until December a year later in 2016, My Condition of Cerebral Palsy is now Mild but I still couldn't do things like most people can do which is, Tying My Shoes, Carrying a Dog or a person or other animals like Guinea Pigs, ETC and using Chopsticks, I Don't talk that much and I feel that this may come back to me due to my communication. I've lived with Cerebral Palsy ever since I was born 16 years ago. So I'm happy my parents took care of me while I still have this disability, Today I can walk better and go safely and peacefully.
Your videos are absolutely wonderful!! Thank you for helping all of us struggling through nursing school where they just tell you to memorize these symptoms and gloss over the causes. When you understand the "why" its so so soooo much easier!
I write the following remarks as a person with Cerebral Palsy and a Rehabilitation Counselor (like an Occupational Therapist for the mind of people with disabilities). 1. This is a good video with a lot of important information in a short period of time. 2. Be careful in referring to any disability as non-progressive or static. I understand this is an accepted medical term. However, this gives the impression that Cerebral Palsy cannot get worse. The condition cannot get worse in and of itself. The ability of the individual with the condition to handle the disability will certainly change because of aging, changes in the physical environment surrounding the person, other psychosocial realities, (e.g. families, relationships, employment, other co-occurring conditions- PTSD, Autism, etc.), and sociopolitical framing of the term disability and what having a disability means to society. All of these factors (and more) will impact a person’s ability to handle CP. A better term to use when discussing any disability that may be considered non-progressive and/or static would be dynamic. An individual’s disability and how they cope with that disability will change according to the dynamic factors above. 3. For many people who use wheelchairs, Dermatologists are a crucial member of the support team. The human body is not meant to sit the majority of the time, and yet this is a reality for many people with CP. Dermatologists are key members of the treatment team when seeking to address the skin problems sure to follow someone who must use wheelchairs for mobility. Thanks again for this video
I have CP and autism actually, finally someone who understands me, I have urinary urgency, frequency and leakage with my CP, I leak in bed, and I have a lot of pain with my CP as well and bad vision
100% if you stop therapy sessions you regress, ive seen that with my son consistent exercise is a must,not always financially possible but yes exercise and proper customized equipment is very essential, my son is non verbal aswell and that makes communication impossible i just go on mother's instinct mostly,and thank God it has helped me and my son. Good luck to you and all of us
You deserve a clap 👏👏👏 What a good and fantastic explanation with an easy and creative way . Literally I have understood and memorized everything in just 13 min,🤓 seriously it is very effective than just attending a lecture for 2 hours . if our college hire people like him, I will literally attend the lecture without complaining. (A lot of thanks for making this overview)
Excellent explanations.... Am preparing for my examination.. I thought i could just brush up... But i understood each and every word and the condition as well completely.... Thank you
same thought indeed .....such peoples are creative too and they cannot resonate with our traditional teachers who are teaching us to get their pay with having no passion to teach....
It's possible they are more concerned with making a correct diagnosis than you knowing about the condition in depth. I'm sure there's a lot to remember and cover in general medicine.
Phenomenal video, easy to follow. My daughter has cp (hemiplegia) due to abuse and subsequent brain injury. I’ve never had a doctor explain this to me and certainly not in detail. When i read about it i get overwhelmed, so Thank you for this.
You can sue then the doctors did a error to your child’s development you can get up to a million dollars in the lawsuit my mom won and errr living good since 2019 we have Tesla’s and nice cars don’t let the duct or get away with this
I think what people don’t understand is that you can have this and not be disabled at all, maybe your foot turns in and you limp slightly, or you can be as disabled as people can get. Which is really tough for people with extremely mild versions. People treat us weird like we’re disabled and we’re not at all. I walk a few miles a day and I’m incredibly healthy. I’m not disabled.
Being disable means the inability to do certain things. you don’t have to be in a wheelchair to be called disabled as long as you don’t have the ability to do certain functions that the typical person can, you’re disabled!
Today went to the doctor for a normal check up I’m 26, we found out that I have mild cerebral palsy. I’ve lived with it playing sports and now working out most my life. Makes so much sense now watching this video. Glad to find some people in the same boat
I have the mixed CP hemiplegia type. If I don’t consciously think about it, my right arm and hand and shoulder will do whatever it wants and is incredibly painful when I don’t control it. I have a little bit of dyskinetic movements in that arm as well. My right foot goes down and inward to the left. I do you have tremors on my left hand as well. This was so incredibly helpful to learn what CP entails. Thank you!!
I am a home care nurse and most all of my cp patients are late birth related cp. I know as a mother I was 40 weeks and my doctor was in clinic when time to push. Nurses begged me to not push. Luckily my son was born with no defects. I truly think it has a lot to do with birth difficulty and time in the birth canal.
My daughter has CP, 3 years old now and we are really struggling to adapt. she also screems suddenly and abruptly for no reason and the neighbors are complaining. sleepless nights are the order of every day.
@@ResearchPapers1most likely this was a typo. There’s no cure for cerebral palsy so even if their child reduced their symptoms they aren’t healed. Some ways they could have reduced the child’s symptoms of cerebral palsy include 1) physical therapy 2) walking aids 3)certain exercises
Thank u so much, best infos and knowledge about cp, we are vloggers who wants to help those with cerebral palsies and u teaches me how to relate and understand them,GOD BLESS U
I to walk on my toes. It hurts after 20 mins to an hour. People would assume I was lazy but it's like my feet are being crushed off. And when I talk to people I don't know I come off as much more slow minded. It's difficult to make eye contact. My parents brushed that off as being shy but it's like way worse then that. I lack certain judgements like navigating traffic so of course I have never drove a car. Bummer lol. Oh I can't pick up a penny with my right hand from off the floor , it looks funny when I try ,like this English dude from the movie Their is Something About Marry. Though thankfully I don't need crutches to walk, it's just funny looking.
Toe walking is something my PT has always tried to get me to stop but I can't. I drop things a lot because my hands just seem to open sometimes without warning. I can drive but I'm super cautious because I always feel like I'm driving to close to everything.
Wow got a bit shocked when you discussed the whole team of folks around one CP sufferer. I'm very mild, but as a child with my CP I had a physio I saw 4 times a year and a pediatrician I saw once a year and that was it. I did have some one off treatments (and wore splints only for a few years), but nothing regular aside from physio and once I hit 18 the NHS completely cut me off from anything like I'd just be fine. I've had physio once as an adult because I had one specific problem that cropped up and that has been it.
You must be British because you said NHS. In the states we go to what are called therapy units several times a year to be evaluated by a group of doctors and physical therapists that we also see separately. When I was a kid in these meetings there would generally be my equipment vendor, the guy that made my braces, one or more occupational and or physical therapists, and I think maybe or maybe not my orthopedic surgeon? Plus in my state in the u.s. you're under this type of care until you are 21. Then when you're an adult if your independent enough to have control of yourself, you can get your medical insurance at 18 and work with your medical vendor yourself at 21 to get anything like wheelchairs or lifts etc.
Sounds like my childhood and I was born in Baltimore which has the best medical care. These children need to get the same daily or weekly training that child athletes training for the Olympics get, with the same sort of pride in training. Child athletes get told constantly how wonderful they are. Children with CP need the same positive training-not shame based, patronizing stuff.
I have a friend plus an extended family member who has cerebral palsy. My friend who lives in California lives in a residential facility and the extended family member also lives in a facility.
My book rehabilitation psychology is have 20+ pages about cerebral palsy after read that i can't able to understand the difference between spastic and dyskinetic .. but in this video you just explained everything easily moreover I can able to understand easily . Thank you so much...
My 3 years old daughter has mild CP and she can't walk and talk, but she understands and shows normal reaction and emotions. As a father, I have the worst feelings of my life these days.
CAC Panchasakar churna is an Ayurvedic formulation that consists of mainly five ingredients as its name describes. This medicine is known to have properties like laxatives and purgatives etc. The Churna contains ingredients such as Shunthi (Zingiber officinale), Haritaki (Terminalia chebula), Trivrith (Operculina turpethum), Pippali (Piper longum), and Sauvarchala lavana. It decreases the abdominal pain, bloating, constipation that maintains a healthy colon and supports the overall health of the body.
I was born with CP. I went from deploying as a contractor to Afghanistan Iraq and Qatar in my 30's with mild CP. To excruciating chronic pain and weight gain by 45. This is no Joke. Doctors want to diagnose every problem and pain as CP related. I started declining when the apartment had a saver black mold infestation. Overnight I went from what was my normal. To falling 3 times a week on the way to work. There were even days I was furniture walking to keep my balance. I even had physical and visual hallucinations of bugs and lice infestation. To this day I have chronic pain and inflammation. I keep a recumbent bike, an elliptical trainer a starch machine , a 60-up balance trainer and recently got a treadmill for what I call "the little gym" in my home. I moved to a dyer climate to get away from the mold and got a job where I can work from home. I work in IT. I figured out that the full body vibration machine really really really helps. So did getting away from the black mold. I am Leary of walking in public. I brace myself against vehicles or reach for objects when climbing curbs. I use curb cuts and ramps . I climb and descend stairs slowly. Holding on to railings. Most of it is fear. I would fall 2-3 times a week going to work in Washington DC. And I did not know what was making me worse. I will say. I figured out the music benefits by the time I was 9 years old. Music also helps calm all the spasticity and thus the pain associated with muscle tightness.. An also pretty sure I have a lot of undiagnosed micro fractures from falling and an undiagnosed hernia. Last time I went to the ER after an Ice-cream freezer bowl dropped on my "good foot" . I was given x-rays and told it was not broken and accused of doctor shopping for pain killers. 5 yeas later the bones where the ice-cream freezer bowl bowl fell from the top freezer of the refrigerator. The bones are crooked and the toe nails do not grow right. That has been the kind of care I have gotten all of my adult life. The doctors are not only dismissive. They are hostilely accusatory with pain management. Keep in mind I have made 6 figures and have some of the best medical insurance in the United States. Because of my chosen profession. Doing any kind of unnecessary medication prescribed or not would interfere with my job. I have known that for more than a decarded. I refuse to ask Doctors for help at this point. I make Arnica tinctures and tea baths for Pain Management and listen to music to keep my muscles looser during the day, Once a month I spend a Saturday sleeping for 24 hours or longer to fight fatigue. And just call it a "CP Day" so people don't bother me about it. Friends and family act like I am crazy and just treat me like I am lazy and fat because I workout less. Relatives fat shaming and laughing about my growing struggles. Where there used to not be makes is worse. I cut them out of my life too. My advice to Adults with CP. Check your physical environment for Black mod and Toxic Mold, Toxic People, and Toxic Healthcare Provides . Build yourself a "Little Gym". Get a good chiropractor, and schedule a weekend or two each month to sleep the clock around. Make Arnica tea baths. Take Arnica Flowers and put a hand full in a knee high sock to the sock to the bath spigot and run the bath water to fill the bathtub over the Arnica Flowers. That will numb and loosen the muscle es without drugs. It has been my experience, the reason there is not enough research on Adults with CP. The medical community is either hostile, dejected or both. Towards adults with CP. The best thing you can do for yourself is help yourself. And check and remove the things and people that are toxic to you. And turn up the Music on a daily basis.
My foster baby was recently diagnosed with CP. Her biological mother regularly abused heroin (and possibly other drugs) during the first trimester and some of the second trimester. Biomom was incarcerated when she was almost 5 months pregnant and was put on methadone. My foster baby was born at 6.5 months and had methadone in her system but no symptoms of withdrawal or drug dependence (addiction). I was wondering if the history of drug usage would be a contributing factor to the baby’s CP diagnosis?
I don’t agree that Cerebral Palsy doesn’t get worse with age. I have it because I wasn’t breathing when I was born and it has got worse as I have got older.
I found a girl online she had this we like each other but we have to break because of some situation now I'm here to understand what she is suffering from please pray for her i miss her a lot. May I'm honoured to take care of her in future 😭😭😭
I’m almost but not quite there. Which is really awful because with really mild CP, you aren’t disabled at all, but people treat you like you are. Walking five miles a day makes me strong but I’ve still got the damn limp that everyone judges me for, and that makes it hard professionally. You are lucky.
@mmy7186 actually I didn't start having seizures until this year and I found out that I was misdiagnosed that I don't have cp I have closed lip schizencephaly.
thank you for the great video. just suggestion, you should include physiatrist ( physical medicine and rehabilitation spesialist) as a part of the medical team there 🙏 thank you
I have problems with vision, pain, movement and my bladder, every time i drink a cup of liquid i have to urinate urgently, and I still wet the bed a little bit, I struggle with urinary frequency and urgency several times a day and at least twice a night and i still leak sometimes, and I have to wear eyeglasses because of my visual impairments, and I struggle with neck and back pain also
Wow unbelievable! I never comment on videos, or very rarely.. you are soo through and educated beyond any other video I have seen. Thank you for sharing your knowledge 😌🙏🏼
I have lived for over 60 years with cerebral palsy. I can walk short distances. However I can jump very easily at sudden noses is that part of the cerebral palay
Thank you.. I'm not a rocket scientist.. But w the naritor and drawing it was soooo easy to understand. I've been dating a man w spastic cp. I love him and just needed a lil education on it.
Got an MRI and the Neurologist still doesn't know if my son is having seizures or not. Seems like I need a second opinion. The pediatrician has been no help. i have to tell her what to do in order for her to write referrals. Then most of the time they do not write them the correct way which prolongs my son getting help. I just don't understand the incompetency.
My son has been diagnosed with hereditary spastic Paraplegia through genetic testing..I and several of my family members have it. My daughter however has been diagnosed with spastic diplegia CP. I thought CP required some sort of scarring on the brain. My daughter, son, and other family members have had that brain scan and show no scarring..could it be that my daughter doesn't have spastic diplegia but hereditary spastic Paraplegia. She has not had genetic testing. Also is clonas a type of involuntary movement? It can be stopped by situating the foot in s different position, but still is that considered involuntary and therefore be considered a different type of cp? I ask because we all have clonas in our family, my son and daughter have balance issues in various degrees...
There is a doctor in India, who is known internationally by name MK Sastry. You can look him up on Facebook. He actually treats CP with scalp acupuncture. Brain stimulation. I've seen seen make those kids get better and they'll be completely normal post completion of treatment for sure. Probably only doctor on earth confident of such feat.
What is more important and missed in this video is the role of Rehabilitation specialist or a PHYSIATRIST… The whole Rehabilitation program is guided by people specialized in the same, ie the PHYSIATRISTS …
🎥 DON'T JUST WATCH, LEARN ACTIVELY! TRY THE QUIZ! 🤓
youmakr.ai/test-playground/questionnaire/673d3d64859b9c170836ecfd
I have lived with cerebral palsy for over 50 years and now understand what causes it so much better. Thank you so much. Just one thing, whilst we do know it is a static condition, we know that whilst the brain damage that caused cerebral palsy won't progress, the motor impairments that result from the brain damage can. As a result, ageing with cerebral palsy can have a significant impact on one's communication skills, energy levels, and physical and mental health.
You are brave!
Do you have any physical pain or painful spasms?
Kindly share your email I talk to you please
I completely agree with you my cerebral palsy is more balance related I can't remember what he said it was I also have a learning disability involved my memory is crap it's like a goldfish LMFAO I completely agree with you I am in my late twenties and now I am starting to have issues holding things up and my balance is way worse the apartment building I am in is specifically for those with disabilities but they do not have me on the first floor and they will not put any of that traction tape down on the steps I have now fallen down the steps once and I keep dropping cups all day long
@@courtneymcgraw5036sorry dear
i am a med student and this is the most concise lesson i have come across regarding CP
God bless u
As a person who have pc im crying 🤡
You, Osmosis, Online Med Ed, and Canada Q Bank are what get me through PA school. Thank you!
So I'm I .
As a Person that suffered a Moderate Level of Cerebral Palsy
I had a communication device After school when I was in first grade, That surgery wasn't until December a year later in 2016, My Condition of Cerebral Palsy is now Mild but I still couldn't do things like most people can do which is, Tying My Shoes, Carrying a Dog or a person or other animals like Guinea Pigs, ETC and using Chopsticks, I Don't talk that much and I feel that this may come back to me due to my communication. I've lived with Cerebral Palsy ever since I was born 16 years ago. So I'm happy my parents took care of me while I still have this disability, Today I can walk better and go safely and peacefully.
Your videos are absolutely wonderful!! Thank you for helping all of us struggling through nursing school where they just tell you to memorize these symptoms and gloss over the causes. When you understand the "why" its so so soooo much easier!
Me. My life doesn't inspire me I was also born with cerebral palsy. I refuse to walk since i will turn 18. This is good for myself.
One of the best videos I have ever seen talked about CP, Thank you so much 😭 it’s really great explanation
I write the following remarks as a person with Cerebral Palsy and a Rehabilitation Counselor (like an Occupational Therapist for the mind of people with disabilities).
1. This is a good video with a lot of important information in a short period of time.
2. Be careful in referring to any disability as non-progressive or static. I understand this is an accepted medical term. However, this gives the impression that Cerebral Palsy cannot get worse. The condition cannot get worse in and of itself. The ability of the individual with the condition to handle the disability will certainly change because of aging, changes in the physical environment surrounding the person, other psychosocial realities, (e.g. families, relationships, employment, other co-occurring conditions- PTSD, Autism, etc.), and sociopolitical framing of the term disability and what having a disability means to society. All of these factors (and more) will impact a person’s ability to handle CP. A better term to use when discussing any disability that may be considered non-progressive and/or static would be dynamic. An individual’s disability and how they cope with that disability will change according to the dynamic factors above.
3. For many people who use wheelchairs, Dermatologists are a crucial member of the support team. The human body is not meant to sit the majority of the time, and yet this is a reality for many people with CP. Dermatologists are key members of the treatment team when seeking to address the skin problems sure to follow someone who must use wheelchairs for mobility.
Thanks again for this video
I have CP and autism actually, finally someone who understands me, I have urinary urgency, frequency and leakage with my CP, I leak in bed, and I have a lot of pain with my CP as well and bad vision
100% if you stop therapy sessions you regress, ive seen that with my son consistent exercise is a must,not always financially possible but yes exercise and proper customized equipment is very essential, my son is non verbal aswell and that makes communication impossible i just go on mother's instinct mostly,and thank God it has helped me and my son.
Good luck to you and all of us
You deserve a clap 👏👏👏
What a good and fantastic explanation with an easy and creative way .
Literally I have understood and memorized everything in just 13 min,🤓 seriously it is very effective than just attending a lecture for 2 hours .
if our college hire people like him, I will literally attend the lecture without complaining.
(A lot of thanks for making this overview)
Excellent explanations.... Am preparing for my examination.. I thought i could just brush up... But i understood each and every word and the condition as well completely.... Thank you
I have spastic diplegia affecting my lower limbs. This was actually really informative and interesting, so thank you.
I have a Grandson years ago,on the news the medical community had a injection that would help relax the muscles. Had you heard of this.
Yes. I’ve had it. It’s called Botox.
So do I
My brother is diagnosed with this
@@asteryxabyss I hope he's doing alright! Wish him all the best
Why they don't teach us like that in med school?
If I were a president of med school I would hire these people to teach their lessons.
same thought indeed .....such peoples are creative too and they cannot resonate with our traditional teachers who are teaching us to get their pay with having no passion to teach....
www.trishlafoundation.com/cerebral-palsy/
It's possible they are more concerned with making a correct diagnosis than you knowing about the condition in depth. I'm sure there's a lot to remember and cover in general medicine.
now a days, there is no reason a student can't be surfing the net to see the many afflictions, because they are all here in videos.
How did you learn it?
I don't know why but it is so satisfying to see those pictures you draw it keeps me hooked to the video
Phenomenal video, easy to follow. My daughter has cp (hemiplegia) due to abuse and subsequent brain injury. I’ve never had a doctor explain this to me and certainly not in detail. When i read about it i get overwhelmed, so Thank you for this.
You can sue then the doctors did a error to your child’s development you can get up to a million dollars in the lawsuit my mom won and errr living good since 2019 we have Tesla’s and nice cars don’t let the duct or get away with this
God bless you, bro. You have a gift of teaching. Thanks for your efforts in creating your videos.
I think what people don’t understand is that you can have this and not be disabled at all, maybe your foot turns in and you limp slightly, or you can be as disabled as people can get. Which is really tough for people with extremely mild versions. People treat us weird like we’re disabled and we’re not at all. I walk a few miles a day and I’m incredibly healthy. I’m not disabled.
Praise God!!!
Yes I also have mild Cerebral Palsy as well stay strong we got this🤝💪
YES. Someone who understands! Yes, I use a posture support walker in crowds and AFO leg braces to keep my knee from turning in. But I am NOT disabled.
Being disable means the inability to do certain things. you don’t have to be in a wheelchair to be called disabled as long as you don’t have the ability to do certain functions that the typical person can, you’re disabled!
Today went to the doctor for a normal check up I’m 26, we found out that I have mild cerebral palsy. I’ve lived with it playing sports and now working out most my life. Makes so much sense now watching this video. Glad to find some people in the same boat
Its obvious, but thanks a ton. I wish my actual class was this good. You owe the title of modern world educator.
Your videos are basis for developing concepts(esp 4 medicos)!!!!😊keep going
I have the mixed CP hemiplegia type. If I don’t consciously think about it, my right arm and hand and shoulder will do whatever it wants and is incredibly painful when I don’t control it. I have a little bit of dyskinetic movements in that arm as well. My right foot goes down and inward to the left. I do you have tremors on my left hand as well. This was so incredibly helpful to learn what CP entails. Thank you!!
I agree with you
Please contact Dr MK Sastry for further guidance if you're interested for cure. Look up his Facebook videos.
Contact +918473814247
I can't thank you enough, your art, knowledge and explanation! you are really something else
I am a home care nurse and most all of my cp patients are late birth related cp. I know as a mother I was 40 weeks and my doctor was in clinic when time to push. Nurses begged me to not push. Luckily my son was born with no defects. I truly think it has a lot to do with birth difficulty and time in the birth canal.
Amazing video here, with explicit illustrations. Has made my study for CP much easier.Thanks so much.
Thanks for Sharing. My son is CP Warrior, he is now 4 yrs old.
Please contact Dr MK Sastry for further guidance if you're interested for cure. Look up his Facebook videos.
Contact +918473814247
I have a Ifantile cerepral palsy too🚶♀️🙏
My daughter has CP, 3 years old now and we are really struggling to adapt. she also screems suddenly and abruptly for no reason and the neighbors are complaining. sleepless nights are the order of every day.
My 3 years old had CP too 😢😞 it’s like a bite in the middle of my throat
@@deardiary-nw5my Hi, When you say "had", it means she has since healed or improved, right? And if so, how did you do it?
@@ResearchPapers1most likely this was a typo. There’s no cure for cerebral palsy so even if their child reduced their symptoms they aren’t healed. Some ways they could have reduced the child’s symptoms of cerebral palsy include
1) physical therapy
2) walking aids
3)certain exercises
@@deardiary-nw5mydid anything happen during child birth?
yes, premature birth at 30 weeks of pregnancy witch caused the CB.
@@Rryllis
I am level 1 Cerebral palsy & that video was very good to me.
level 1 cerebral palsy is curable... using #herbalistevelyn 4weeks natural medicine. subscribe to her channel for reviews and testimonials..
Thank u so much, best infos and knowledge about cp, we are vloggers who wants to help those with cerebral palsies and u teaches me how to relate and understand them,GOD BLESS U
Sir bhot ache se samajh aaya ( i understand very well wowww , excellent sir)
Sir your teaching skill is the best❤❣️
Fantastic! Thank you so much Armando. Just beginning my inquiry into CP, and I found this to be a very helpful introduction.
I have it buts It’s super mild
The problems I have is back pain
Crappy vision, stiff muscles and I walk on my toes.
Hey me too, I also urinate often and have little accidents every now and then, in fact i have to urinate again right now
I to walk on my toes. It hurts after 20 mins to an hour. People would assume I was lazy but it's like my feet are being crushed off. And when I talk to people I don't know I come off as much more slow minded. It's difficult to make eye contact. My parents brushed that off as being shy but it's like way worse then that. I lack certain judgements like navigating traffic so of course I have never drove a car. Bummer lol. Oh I can't pick up a penny with my right hand from off the floor , it looks funny when I try ,like this English dude from the movie Their is Something About Marry. Though thankfully I don't need crutches to walk, it's just funny looking.
THE GRUMPY DRAGON so r u cured?i mean r u normal now ?plz tell me it would b great help bcz i heard that there is no cure of this?
Toe walking is something my PT has always tried to get me to stop but I can't. I drop things a lot because my hands just seem to open sometimes without warning. I can drive but I'm super cautious because I always feel like I'm driving to close to everything.
Same here
Terimakasih Pak Hasudungan atas semua penjelasan yang sangat mencerahkan. Tuhan memberkati.
Thank you for a wonderful and detailed explanation of CP. I can now understand myself better
I want to put one thousands like’s, but can’t.... this is really best lecture what I saw.
Such a nice and easy way of teaching 👏🏿👏🏿! Thank you!
Wow got a bit shocked when you discussed the whole team of folks around one CP sufferer. I'm very mild, but as a child with my CP I had a physio I saw 4 times a year and a pediatrician I saw once a year and that was it. I did have some one off treatments (and wore splints only for a few years), but nothing regular aside from physio and once I hit 18 the NHS completely cut me off from anything like I'd just be fine. I've had physio once as an adult because I had one specific problem that cropped up and that has been it.
My child is a CP Warrior also. He is now 4 yrs old
You must be British because you said NHS. In the states we go to what are called therapy units several times a year to be evaluated by a group of doctors and physical therapists that we also see separately. When I was a kid in these meetings there would generally be my equipment vendor, the guy that made my braces, one or more occupational and or physical therapists, and I think maybe or maybe not my orthopedic surgeon? Plus in my state in the u.s. you're under this type of care until you are 21. Then when you're an adult if your independent enough to have control of yourself, you can get your medical insurance at 18 and work with your medical vendor yourself at 21 to get anything like wheelchairs or lifts etc.
58tb of it
Sounds like my childhood and I was born in Baltimore which has the best medical care. These children need to get the same daily or weekly training that child athletes training for the Olympics get, with the same sort of pride in training. Child athletes get told constantly how wonderful they are. Children with CP need the same positive training-not shame based, patronizing stuff.
The same as me. As soon as I reached 18 I didn’t have anyone to help me.
I have a friend plus an extended family member who has cerebral palsy. My friend who lives in California lives in a residential facility and the extended family member also lives in a facility.
My book rehabilitation psychology is have 20+ pages about cerebral palsy after read that i can't able to understand the difference between spastic and dyskinetic .. but in this video you just explained everything easily moreover I can able to understand easily . Thank you so much...
Highly resourceful. I came for a review but got more. 😊 Thanks for the knowledge
My 3 years old daughter has mild CP and she can't walk and talk, but she understands and shows normal reaction and emotions. As a father, I have the worst feelings of my life these days.
amazing drawings and illustrations ............love learning !!
CAC Panchasakar churna is an Ayurvedic formulation that consists of mainly five ingredients as its name describes. This medicine is known to have properties like laxatives and purgatives etc. The Churna contains ingredients such as Shunthi (Zingiber officinale), Haritaki (Terminalia chebula), Trivrith (Operculina turpethum), Pippali (Piper longum), and Sauvarchala lavana. It decreases the abdominal pain, bloating, constipation that maintains a healthy colon and supports the overall health of the body.
What an incredible explanation 😍
Thank you so much for this comprehensible expression.llustrations definetly help to understand the issue.
one of the best video I ever found
The best video to have clear cut knowledge 😊
Thanks, now i can eat my breakfast
I was born with CP. I went from deploying as a contractor to Afghanistan Iraq and Qatar in my 30's with mild CP. To excruciating chronic pain and weight gain by 45. This is no Joke. Doctors want to diagnose every problem and pain as CP related. I started declining when the apartment had a saver black mold infestation. Overnight I went from what was my normal. To falling 3 times a week on the way to work. There were even days I was furniture walking to keep my balance. I even had physical and visual hallucinations of bugs and lice infestation. To this day I have chronic pain and inflammation. I keep a recumbent bike, an elliptical trainer a starch machine , a 60-up balance trainer and recently got a treadmill for what I call "the little gym" in my home. I moved to a dyer climate to get away from the mold and got a job where I can work from home. I work in IT. I figured out that the full body vibration machine really really really helps. So did getting away from the black mold. I am Leary of walking in public. I brace myself against vehicles or reach for objects when climbing curbs. I use curb cuts and ramps . I climb and descend stairs slowly. Holding on to railings. Most of it is fear. I would fall 2-3 times a week going to work in Washington DC. And I did not know what was making me worse. I will say. I figured out the music benefits by the time I was 9 years old. Music also helps calm all the spasticity and thus the pain associated with muscle tightness.. An also pretty sure I have a lot of undiagnosed micro fractures from falling and an undiagnosed hernia. Last time I went to the ER after an Ice-cream freezer bowl dropped on my "good foot" . I was given x-rays and told it was not broken and accused of doctor shopping for pain killers. 5 yeas later the bones where the ice-cream freezer bowl bowl fell from the top freezer of the refrigerator. The bones are crooked and the toe nails do not grow right. That has been the kind of care I have gotten all of my adult life. The doctors are not only dismissive. They are hostilely accusatory with pain management. Keep in mind I have made 6 figures and have some of the best medical insurance in the United States. Because of my chosen profession. Doing any kind of unnecessary medication prescribed or not would interfere with my job. I have known that for more than a decarded. I refuse to ask Doctors for help at this point. I make Arnica tinctures and tea baths for Pain Management and listen to music to keep my muscles looser during the day, Once a month I spend a Saturday sleeping for 24 hours or longer to fight fatigue. And just call it a "CP Day" so people don't bother me about it. Friends and family act like I am crazy and just treat me like I am lazy and fat because I workout less. Relatives fat shaming and laughing about my growing struggles. Where there used to not be makes is worse. I cut them out of my life too. My advice to Adults with CP. Check your physical environment for Black mod and Toxic Mold, Toxic People, and Toxic Healthcare Provides . Build yourself a "Little Gym". Get a good chiropractor, and schedule a weekend or two each month to sleep the clock around. Make Arnica tea baths. Take Arnica Flowers and put a hand full in a knee high sock to the sock to the bath spigot and run the bath water to fill the bathtub over the Arnica Flowers. That will numb and loosen the muscle es without drugs. It has been my experience, the reason there is not enough research on Adults with CP. The medical community is either hostile, dejected or both. Towards adults with CP. The best thing you can do for yourself is help yourself. And check and remove the things and people that are toxic to you. And turn up the Music on a daily basis.
This is helping me with my project thanks so much😄
I am a Greek person who has spastic dypligia. Great video sorry for my bad English
My foster baby was recently diagnosed with CP. Her biological mother regularly abused heroin (and possibly other drugs) during the first trimester and some of the second trimester. Biomom was incarcerated when she was almost 5 months pregnant and was put on methadone. My foster baby was born at 6.5 months and had methadone in her system but no symptoms of withdrawal or drug dependence (addiction). I was wondering if the history of drug usage would be a contributing factor to the baby’s CP diagnosis?
Thank you so much for this in-depth detail video .
I don’t agree that Cerebral Palsy doesn’t get worse with age. I have it because I wasn’t breathing when I was born and it has got worse as I have got older.
I found a girl online she had this we like each other but we have to break because of some situation now I'm here to understand what she is suffering from please pray for her i miss her a lot. May I'm honoured to take care of her in future 😭😭😭
Outstanding presentation. Thanking you 🙏
Very helpful...thanks for the explanations😊😊.....now i understand CP better 👍
Brings back memories of years of therapy during my childhood. But now most people don't realize I have it. Unless they really watch me.
Me too! Except now, in my mid-50’s, I struggling with more falling issues.
I’m almost but not quite there. Which is really awful because with really mild CP, you aren’t disabled at all, but people treat you like you are. Walking five miles a day makes me strong but I’ve still got the damn limp that everyone judges me for, and that makes it hard professionally. You are lucky.
@ravenel2 it's funny i forgot I wrote this. Yesterday I was in the er for seizures, I've never had before.. have you guys ever experienced seizures?
@@brandyylee216hi I also have mild cp does your epilepsy awaken? I am in my 20s
@mmy7186 actually I didn't start having seizures until this year and I found out that I was misdiagnosed that I don't have cp I have closed lip schizencephaly.
Best video ive ever come across so simplified
Good my son has cp....14 now.... doing great...I am happy
Your video helps a lot of me..I have son with CP..1year old and 3months.Hoping for some development.
This was really helpful man, thanks a lot
Fantastic 👏 👏 👏 explained very clearly and easy to follow drawings
I have lived with cerebral palsy for 21 years so it is not easy
I want to cry after seeing this
thank you for the great video.
just suggestion, you should include physiatrist ( physical medicine and rehabilitation spesialist) as a part of the medical team there 🙏 thank you
Yes
Thanks for the information. my son has cp. thanks for educating us 🙌🏽🙏🏼
I have problems with vision, pain, movement and my bladder, every time i drink a cup of liquid i have to urinate urgently, and I still wet the bed a little bit, I struggle with urinary frequency and urgency several times a day and at least twice a night and i still leak sometimes, and I have to wear eyeglasses because of my visual impairments, and I struggle with neck and back pain also
This video was beautiful! Thank you!
Thank you for producing this informative video.
You should do a video on connective tissue disorders (Ehlers Danlos Syndrome, Osteogenesis Imperfecta, Marfan Syndrome, etc)
Very sequencly and effectively explained👏
Dear Armando ,when is your next video on causes ,symptoms,and management
Wow unbelievable! I never comment on videos, or very rarely.. you are soo through and educated beyond any other video I have seen. Thank you for sharing your knowledge 😌🙏🏼
Just going around doing research on my own disorder slowly scaring myself
Who u telling I’m 21 with CP and I got hip desplacyia
Same
Saaaame
I'm 20
I honestly think I have all 3
I don’t know how to say thank you. Great video
I have lived for over 60 years with cerebral palsy. I can walk short distances. However I can jump very easily at sudden noses is that part of the cerebral palay
just found out my sister had it. please pray for her.❤️
great overview before reading on this topic!! thank you sm
Thank you.. I'm not a rocket scientist.. But w the naritor and drawing it was soooo easy to understand. I've been dating a man w spastic cp. I love him and just needed a lil education on it.
very detailed! perfectly done👏
Wow! You guys are truly mature, to have recommended the Osmosis video.
This was really helpful. Thank you!
Which book reference do you use Armando?? Because everytime your videos are just fantabulous
Wonderfully helpful overview!
Great clip and explanation!
Got an MRI and the Neurologist still doesn't know if my son is having seizures or not. Seems like I need a second opinion.
The pediatrician has been no help. i have to tell her what to do in order for her to write referrals. Then most of the time they do not write them the correct way which prolongs my son getting help. I just don't understand the incompetency.
Great video.
At 2:39, you describe the cerebellar lesion as “ataxic” but its written “akinetic syndrome” on the board. Maybe it should be “ataxic”??
They mean in the same in this context, I guess.
Good presentation sir
More information you gave me ,, follow you.. God's Lord's blessed..
It's really helpful for me .Thank u so much for ur great job ..
Are the you the one doing the drawing? I'm really impressed
My son has been diagnosed with hereditary spastic Paraplegia through genetic testing..I and several of my family members have it. My daughter however has been diagnosed with spastic diplegia CP. I thought CP required some sort of scarring on the brain. My daughter, son, and other family members have had that brain scan and show no scarring..could it be that my daughter doesn't have spastic diplegia but hereditary spastic Paraplegia. She has not had genetic testing. Also is clonas a type of involuntary movement? It can be stopped by situating the foot in s different position, but still is that considered involuntary and therefore be considered a different type of cp? I ask because we all have clonas in our family, my son and daughter have balance issues in various degrees...
Can someone please share the screenshot of whole topic
Great explanation...thank you very much😭
Very well explained.
Great video.
Wish I could draw that quick lol
The various types of cerebral palsy aren’t necessarily called syndromes. I have what they classify as spastic hemiplegia cerebral palsy.
Is there any help or association that help ppl or specific seniors with cerebral palsy?
There is a doctor in India, who is known internationally by name MK Sastry. You can look him up on Facebook. He actually treats CP with scalp acupuncture. Brain stimulation. I've seen seen make those kids get better and they'll be completely normal post completion of treatment for sure.
Probably only doctor on earth confident of such feat.
Thank so much for all the knowledge u share
What is more important and missed in this video is the role of Rehabilitation specialist or a PHYSIATRIST… The whole Rehabilitation program is guided by people specialized in the same, ie the PHYSIATRISTS …
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