Megan Doerr
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- Опубликовано: 7 сен 2024
- Megan Doerr
Director Applied ELSI Research
Sage Bionetworks
“Big health data research and group harm: A tool for researchers, access boards, and ethics boards”
Megan Doerr, MS, LGC, leads Sage Bionetworks' applied ethical, legal and social implications research team. Her research focuses on operationalizing and evaluating community interests in big health data research, addressing the ethical, legal and social implications of informed consent, research participation, data governance and data sharing. She has developed electronic informed consent processes for a variety of studies, including the U.S. National Institutes of Health's (NIH) All of Us Research Program and the NIDDK Kidney Precision Medicine Project, and served as a consultant to the several of the U.S. National Institute of Allergy and Infectious Disease’s (NIAID) COVID-19 Prevention Network (CoVPN) vaccine trials. Doerr advocates for innovative, data-driven, participant-centric approaches to open science. Through the Global Alliance for Genomics and Health, she works to promote global collaboration and best practices in research governance. Doerr is a licensed genetic counselor who previously practiced at the Cleveland Clinic.