What a beautiful, intelligent, articulate woman. Thank you for a clear, concise explanation. I wish I lived in Denver! I just started back on MTX with Hydroxychloroquine and Folic Acid after 3 different infusion drugs and Xeljanz failed.
Just took my 1st 10mg dose of Methorexate! I am horrified by all of the videos I have watched & all the comments I have read. I will know tommorow how I will tolerate this med. Wish me luck
@@lindamerrill928 I had no side effects with my 1st dose last week. I took my 2nd dose last night & I have no side effects again. So far so good. Next week I will increase from 10mg 1 time per week to 15mg 1 time per week.
@@markbigelow2608 I do take 1mg of folic acid daily. I took my 1st dose of 10mg Methotrexate last week & I had no side effects. I took my 2nd dose last night & again no side effects. I also take 200mg of Hydroxichloriqine daily. When I 1st started the Hydroxichloriqine I had a little stomach cramping/upset but it passed within 2 days.
I saw one video that recommended not to take folic acid the same day as your Methotrexate dose. It said to take your folic acid the following day. Probably insignificant, but I thought it was interesting.
I lost a lot of hair taking both in the same day. I don’t take any sort of a vitamin when I take methotrexate on that day. After my doctor upped my dose to 20 that’s when I saw significant hair loss! So now I’m back down to 15 mg.
Are you sure Folic acid every day, not one a week? Next Right after MTX? Because my doctor prescribed it once a week, like MTX. Grazie per I’ll tuo lavori.
I was on MTX for 4 months but noticed zero difference in pain levels. I actually dialed back on the folic acid to the minimum recommended amount in the hopes that would help but there was no benefit. Otherwise I had zero side effects other than some mild stomach upset for the first few weeks after starting MTX. After that I tried a carnivore diet. Within 3 days I noticed a 50% reduction in pain levels, but stopped the diet after 3 weeks for various reasons. I returned to a maintenance dosage of prednisone but also made a point of avoiding so-called inflammatory foods: specifically wheat and sugar. After another month or so I'm starting to be able to reduce how much prednisone I'm taking. It's still early and the difference is small so far but it's the right direction, so fingers crossed.
@@Rheumatology101 I get really bad nausea. My rheumatologist has increased my folic acid 20mg the day after my injection but I am still feel sick. I also take nausea medication which helps a little bit. I have read that I might not be absorbing the synthetic folic acid this is why I could be getting nausea 🤷♂️
MTX works very well for MOST people. Unfortunately it had too many adverse effects for me. Despite taking a double dose of folic acid, the fatigue was severe and I continued to have flares of my PsA.
Wow that is what I take now. 10mg Methotrexate 1 time per week & 200mg Hydroxichloriqine daily. With 1mg folic acid & 10mg prednisone daily as well. I was taking 20mg Leflunomide with all meds listed above minus the Methotrexate. The meds worked very well to control the awful CPPD & inflammatory arthritis in my hands & fingers. Unfortunately, about 4 months after the 20mg Leflunomide was added to my meds I began to experience hair loss. So my Rheumatologist took me off the Leflunomide for 3 months. Now she had added the Methotrexate in its place. Hopefully I get the same relief without the hair loss.
Im sure you will do great! Think of all the good things this will bring you: no more joint pain, swelling or morning stiffness. (not your doc, but assuming you may have some of these symptoms). Best of luck we are rooting for you!
What a great question! Studies were done mostly with folic acid. Truth is: when you want to revert completely the effect that is when we use folinic acid. That’s not what you want, unless you have side effects. Hope this helps explain :)
Hi im a bit nervous about the hair loss ... imon 10mg weekly, just started 3 weeks ago..... how much hair can I expect to lose if I take folic acid daily? I would like to keep some hair....!! Thank you :)
Hi my doctor put me on mtx tablets 2 times a day for 3months is that safe i am feeling very scared to start it i have to the doctor next 3 months with my blood works my doctor also said i have to do an eye test is that normal
It’s always scary to start. But it really is something we have a lot of knowledge about for a very long time. Reach out to your rheumatologist to get reassured. Rooting for you
I cannot give medical advice and recommend you seek your doctor’s help. We know how to take care of these situations and they should be helpful! Rooting for you.
Hi and thank you for your question. I cannot give medical advice here. So please make sure to ask your rheumatologist. Theorically, this shouldn’t be a problem!
That is actually pretty common. A trick that some of my patients find useful is to “chew” the folic acid and put it all over your mouth before swallowing it. Let us know if it does the trick for you!
Metho was not good for me the first 6 months. Yes i had a lot of vomiting and yes my hair shedded really bad. It wasn’t the best but over time it’s ok for this disease, polymyositis.
Thank you for this feedback! We have improved our processes since this video. You should check out some of our recent ones and let us know if there is a topic you would like me to cover.
Thank you for the feedback. This is an older video, and we have improved our processes with this channel since then! Check out some of our more recent ones!
I don’t know what it is but I am hooked and want to watch your teaching every second and learn.
Thank you
Thank you so much!! Next live will be postponed today by two hours but I’ll be there :-)
What a beautiful, intelligent, articulate woman. Thank you for a clear, concise explanation. I wish I lived in Denver! I just started back on MTX with Hydroxychloroquine and Folic Acid after 3 different infusion drugs and Xeljanz failed.
Thank you. Wishing you the best!
Just took my 1st 10mg dose of Methorexate! I am horrified by all of the videos I have watched & all the comments I have read. I will know tommorow how I will tolerate this med. Wish me luck
Hopefully our video reassured you.
How are you feeling? I started last weekend - 15mg. Did not experience any immediate side effects. Taking my next dose tonite
I had a little upset stomach the next day but then ok. Take the folic acid🙂
@@lindamerrill928 I had no side effects with my 1st dose last week. I took my 2nd dose last night & I have no side effects again. So far so good. Next week I will increase from 10mg 1 time per week to 15mg 1 time per week.
@@markbigelow2608 I do take 1mg of folic acid daily. I took my 1st dose of 10mg Methotrexate last week & I had no side effects. I took my 2nd dose last night & again no side effects. I also take 200mg of Hydroxichloriqine daily. When I 1st started the Hydroxichloriqine I had a little stomach cramping/upset but it passed within 2 days.
Excellent clear information many thanks
Glad it was helpful! Thank you for your feedback
Thank you! Very happy it is useful :)
Thanks for the feedback
Thank you. Very helpful
Starting on Friday. A little nervous but trust my Rheumatologist.
The first step towards remission. You got this!
Great, to the point video. Very informative. Thank you.
I saw one video that recommended not to take folic acid the same day as your Methotrexate dose. It said to take your folic acid the following day. Probably insignificant, but I thought it was interesting.
I lost a lot of hair taking both in the same day. I don’t take any sort of a vitamin when I take methotrexate on that day. After my doctor upped my dose to 20 that’s when I saw significant hair loss! So now I’m back down to 15 mg.
Are you sure Folic acid every day, not one a week? Next Right after MTX? Because my doctor prescribed it once a week, like MTX. Grazie per I’ll tuo lavori.
Wouldn’t the methylated form-methyl folate work better than the synthetic form-folic acid??
Most studies have been done with folic acid. That said when there is evidence of overdose we may want to use folinic acid.
hi，can I take folic acid first? then next day i take methotrexate
So is methotrexate the safest RA medication?
I was on MTX for 4 months but noticed zero difference in pain levels. I actually dialed back on the folic acid to the minimum recommended amount in the hopes that would help but there was no benefit. Otherwise I had zero side effects other than some mild stomach upset for the first few weeks after starting MTX.
After that I tried a carnivore diet. Within 3 days I noticed a 50% reduction in pain levels, but stopped the diet after 3 weeks for various reasons. I returned to a maintenance dosage of prednisone but also made a point of avoiding so-called inflammatory foods: specifically wheat and sugar. After another month or so I'm starting to be able to reduce how much prednisone I'm taking. It's still early and the difference is small so far but it's the right direction, so fingers crossed.
Very interesting.
I wonder if you had the wrong diagnosis. Just a thought.
Very helpful but I found the background music so intrusive…
Is there any difference / benefits from taking 5-MTHF rather than the synthetic folic acid with Methotrexate?
I do not think I have read any studies about that. Did your rheumatologist recommend this?
@@Rheumatology101 I get really bad nausea. My rheumatologist has increased my folic acid
20mg the day after my injection but I am still feel sick. I also take nausea medication which helps a little bit. I have read that I might not be absorbing the synthetic folic acid this is why I could be getting nausea 🤷♂️
MTX works very well for MOST people. Unfortunately it had too many adverse effects for me. Despite taking a double dose of folic acid, the fatigue was severe and I continued to have flares of my PsA.
Fortunately we have many more options :)
@@Rheumatology101 Yes. I start on apremilast as soon as my doctor can work things out with my insurance.
Is there a reason of why folic acid doesn’t reduce the efficacy of methotrexate ?
I'm wondering if 10mg Mex once a week and 200mg hydroxychloroquene every day is even more effective?.
There are studies that show that it indeed is!
Wow that is what I take now. 10mg Methotrexate 1 time per week & 200mg Hydroxichloriqine daily. With 1mg folic acid & 10mg prednisone daily as well. I was taking 20mg Leflunomide with all meds listed above minus the Methotrexate. The meds worked very well to control the awful CPPD & inflammatory arthritis in my hands & fingers. Unfortunately, about 4 months after the 20mg Leflunomide was added to my meds I began to experience hair loss. So my Rheumatologist took me off the Leflunomide for 3 months. Now she had added the Methotrexate in its place. Hopefully I get the same relief without the hair loss.
@@jamiemcmahon9638 I hope it works out for you🙂
Did not work for me, I had to stop as I had too many severe side affects
I start my first dose today, hopefully I will not have serious side effects we shall see tomorrow
Im sure you will do great! Think of all the good things this will bring you: no more joint pain, swelling or morning stiffness. (not your doc, but assuming you may have some of these symptoms). Best of luck we are rooting for you!
I am on 15mg MTX for over an year. My Dr. Hhs prescribed 5mg Folic acid. But shouldnt we take active forms of folates - methylfolate or folinic acid .
What a great question! Studies were done mostly with folic acid. Truth is: when you want to revert completely the effect that is when we use folinic acid. That’s not what you want, unless you have side effects.
Hope this helps explain :)
Hi dr I’m taking methotrexate, and I’m having rashes on my face, what do i do with it?
I cannot give you medical advice. Do reach out to your rheumatologist. They will know what to do.
Best
Hi im a bit nervous about the hair loss ... imon 10mg weekly, just started 3 weeks ago..... how much hair can I expect to lose if I take folic acid daily? I would like to keep some hair....!! Thank you :)
You shouldn’t have much hair loss with that dose :) although everyone is different and responds differently to it. You got this!
@@Rheumatology101 thank u so much 🙂🌈🐬
Hi my doctor put me on mtx tablets 2 times a day for 3months is that safe i am feeling very scared to start it i have to the doctor next 3 months with my blood works my doctor also said i have to do an eye test is that normal
It’s always scary to start. But it really is something we have a lot of knowledge about for a very long time. Reach out to your rheumatologist to get reassured.
Rooting for you
I was on methotrexate,l found out l was pregnant, what is your advise
I cannot give medical advice and recommend you seek your doctor’s help. We know how to take care of these situations and they should be helpful!
Rooting for you.
Doctor what if I took methotrexate a day earlier by mistake ?
Hi and thank you for your question. I cannot give medical advice here. So please make sure to ask your rheumatologist.
Theorically, this shouldn’t be a problem!
Hi, i just want to ask if i can take my multivitamins while taking Methotrexate?
I unfortunately cannot give medical advice. It’s a very easy question to ask your rheumatologist who will respond to you knowing you. ❤️
the music is a little loud.
Ah… the joy of creating a channel. Thank you for your feedback. I’ll try to see if it can be adjusted.
Has anyone had mouth ulcers on roof of mouth? How do I treat them? Im on 10 mg MX weekly 2 mg folic acid
That is actually pretty common. A trick that some of my patients find useful is to “chew” the folic acid and put it all over your mouth before swallowing it. Let us know if it does the trick for you!
@@Rheumatology101 ok Thank you!!! Im gone let the dentist take a look to make sure its nothing else
Metho was not good for me the first 6 months. Yes i had a lot of vomiting and yes my hair shedded really bad. It wasn’t the best but over time it’s ok for this disease, polymyositis.
I’m sorry to read this. Even splitting the dose and with folic acid?
It sounds like you’re doing better so that’s wonderful!
@@Rheumatology101should i take methotrexate a day before folic acid
Music is too loud!
Thank you for this feedback! We have improved our processes since this video. You should check out some of our recent ones and let us know if there is a topic you would like me to cover.
The background music is a huge distraction 🫤
LOSE THE BLOODY MUSIC !!!!!!!!
Thank you for the feedback. This is an older video, and we have improved our processes with this channel since then! Check out some of our more recent ones!
Folic acid cause the worse pain in my hands…OMG!
That is odd. Go and see your rheumatologist to discuss this with them. I’m sure there is an answer for this